Cancer week 24 - Off to yet another banger, and a very lovely gesture...

[@mia1951]

Alana, Your cancer story, from the very beginning, ihas been and continue to be a complete nightmare. I am a healthcare professional in the United States (licensed physician assistant for over 40 years) and your experience is truly one of neglect and malpractice. My prayers and heart are with you.

[@josephinenielsen]

Oh I’m so sorry for you. I thank my God that I live in Denmark 🇩🇰. I’l pray for you 🙏

[@Moopotsmum]

Just watching your latest blog. Please, please do not stop treatment! You only have two rounds to go. Someone I knew had cervical cancer and she had surgery and was offered chemo as a precautionary measure, she declined because she didn’t want to lose her hair and was confident it was gone, unfortunately it came back and sadly she lost her life. She wandered if she took the chemo would it have made a difference. Since then my view is to take any treatment offered because I can’t imagine how awful it must be to look back and think what if? Please be strong and make a formal complaint on a day you’re up to it, it WILL make you feel better and from then on I’m sure you will be treated a lot better. It’s wrong how you have to complain to get proper treatment but unfortunately it’s the way it is now in the nhs, those who shout the loudest get heard first. Much love and keep strong xxx

[@quark1]

I'm up to 4min in......omfg I feel you. I'm up to not holding my tongue. The next time I get incompetence from medical people.....I'm probably going to hit them. My psychologist has just told me I need to tell Dr's I have cptsd from dr's and incompetence. It started with being unable to diagnose my mum having such a massive brain haemorrhage she couldn't open her eyes.That's the bodies safely feature so your eyes don't pop out. She was throwing up with sudden headache.The ambos nearly didn't take her to hospital and the hospital took 12 hrs and s change of shift,to realise she was in dire need of brain surgery. I absolutely HATE that you're receiving substandard care. YOU ARE WORTH PROPER CARE ❤️🌈 Thanks for sharing your frustration.....makes me feel so much more normal that you have such similar feelings.

[@eileendoherty2836]

I am so sorry that your going through this nightmare you are so loved and prayed for 🙏🤗❤️💕💐

[@jolsaffs]

I am so sorry Alana to hear what is going on with your care. I have commented before on your channel to explain I am stage IV breast cancer and been under the NHS Oncology Dept in Aintree Liverpool since 2018 ( My first breast cancer changes were in 2009 and i was living in Dublin at the time) and been on various chemo treatments for most of that time. I can honestly say that I have had nothing but excellent care and always get through to the 24hr helpline. I want to reassure people about to start along the cancer road that not all hospitals are like the Ulster hospital Alana describes. Alana there is power in numbers so is there anyway you could find out how many other people are having the same problems as you. You then have the experiences of other people and the hospital will have to listen and look at the reasons why the care is going so wrong. I have had tough times with chemo and felt like giving up but I’m so glad I didn’t. I hope you gather the strength to complete the next 2 chemo treatments as you will know you have done everything you can for yourself and your family. Take care. Love Maria 🇬🇧

[@Lionfires]

I hope you will feel better soon

[@judyrobinson3348]

God bless you you’re going through such hell that you really don’t need to. I hope you get some resolution you shouldn’t have to fight for proper treatment. I will truly pray for you.

[@DF-ju4cw]

So terrible sorry to hear that it’s still like that, the treatments of cancer patients! . I have exactly the same experience when my husband then 40 years old, was ill. On a medical conference I had the chance to talk before 1000 doctors about all that had happened to him and even to me personally as I was trying to help him. In the hospital, a big University Hospital they had zero respect for the cancer patients and this was 1990. As I had finished my speech at the conference people who were not working at the oncology department were shocked! What I had said was printed among all the other stuff which had been talked about in a book now and it was written about my speech in two newspapers as well. And so many could refer to experiences they had had themselves and they wrote to me and thanked me for daring to talk about it. But I really did it as a resurrection for the dignity of my deceased husband and to prevent it for continuing! Now I just are going through it in my memory again as you are telling us what is really happening “behind the stage” . My husband regretted starting the treatments and me too. If I get cancer I will not accept any hospital “care”. I would choose alternative treatments and die with my dignity if I would not cure. I feel so much for you! A big hug from a friend even though it’s a digital connection. Be strong and don’t let them gas light you! You are sane! They are not to be trusted, as you can see! Good that you are keeping track on what they are promising and like that you will be ok! Be well soon! Praying for you 🙏 ❤️

[@nicolewest5702]

I'm a palliative care nurse and a recent breast cancer survivor. Your experience sounds awful and it's not okay that you've been going through it alone. My doctor suggested taking loratadine a few days before and after my white blood cell injection to prevent bone pain. I'd also recommend taking regular anti-inflammatories along with your pain meds. I hope you keep going Alana. You got this

[@TheChurchill902]

Lord, I am so sorry about the run around you have been going through to try and get some help. Shame on the cancer clinic. I am tired of all the excuses about staff being over worked. This is YOUR health and life we are talking about. Someone smart needs to take the time to fix the broken system. Plus you are a good advocate for yourself. Think of those even sicker who can't get help. Just so very sad. About further treatments - that is going to have to be your call. You are still young. The added 3% chance it might give you might be worth it to you. I am in my 60s. I have fought some big health battles in my time. For me I would be saying no to more treatments. With no support it is too hard. But that is me. Whatever you choose for you - I am behind you 100%. Still sending the gentle Canadian hugs my dear. Xo

[@nancyguzzetta2637]

I'm so sorry u r going through this. I'm on my own cancer journey in NYC and I have team of doctors that are overly attentive to me. I have 3 more chemo rounds but may not get them because it damages my heart, will know when I get my echocardiogram on Thursday. There is an app, portal that I can use to message my doctors but it may take a while but they do get back to me, but not on weekends or holidays. If I was ever in really bad shape I'd have to go to the emergency room, luckily I've been ok. But struggling is the last thing u need. Get your pain pills and I hope u finish your chemo.

[@nesthi]

😘❤💙💜

[@lizprofe6986]

I have watched you from the beginning of your cancer journey, I do not personally know what you are going through, BUT you have been so brave and endured so much up until this point sweetheart. You asked what we thought if you should continue with the chemo...it is not long to go, try to push through and finish the treatment. Praying for you 💕

[@theresa5818]

You poor thing . I really feel so sorry for you . Its absolutely abhorrent how you are being treated . I can totally understand how you are at your wits end to the point of not wanting to go to the final chemo sessions . These medical staff have pushed u to the limits by their negligence and lack of care and support . I pray that you will beat this with your determination and that you will find the strength and energy to persue chasing up this diabolical treatment . You have every right to be angry . God bless you xx

[@lauraantebi9670]

Alana , you have been so courageous. please stay positive and just focus on healing

[@charlenekeillor1373]

Alana I feel so bad for you being treated the way the medical field is treating you. I’m praying for you. You’ve been through so much and have gotten this far I really think you should finish your chemo.

[@carolw5247]

If you stop treatment, they win.

[@darlenepietzak9847]

I live in the US and have breast cancer and other autoimmune issues and when it comes to pain, they are slow. They make you feel like your addicted and using your health issues to get meds. You have every right to feel anger and frustrated. You also have the right to cry. I hope you will get some relief soon. ❤

[@teresaburns5808]

Keep on keeping on your nearly there

[@bettybernier9703]

This is heart breaking! Obviously they don't understand how detrimental all this stress is to your healing!!

[@sharonfilmer2465]

Sending lots of hugs to you ,I would love hear you say I'm continuing with the chemotherapy, only you know how you feel,the bad days had obviously made you angry which I fully understand ,it must be terrible when you don't get the help you desperately need,it made me angry just listening to you,to think you have to put up that sort of thing ! All I can say is your nearly there,you are doing brilliantly, save all your energy for your self ,not for anyone else xx you can do this! Lots of love xxxx💪❤

[@morningmom6]

I am so terribly sorry. It is so wrong! Breaks my heart. You should not be going through this! 🙏❤️

[@angelamcgonigle5213]

Your 100% Alana xxx

[@coressaclark6354]

Happy Mothers Day

[@nicolawilson8773]

Thanks

[@AlanaDeadly]

Thank you so very much!!

[@lillyrose3545]

Please don’t punish yourself because of how inept other people are! I know where you are though, I have had terrible medical trauma and I have felt the same way about giving up, but I realized that they wouldn’t put it together that THEY are the problem. We end up giving ourselves the short end of the stick. I agree though, you don’t need this kind of not caring and stress while you are fighting for your life. It’s bull sh*t. You deserve quality medical care. I can promise that won’t happen if you give up the chemo. Hang in there.

[@peacepoppy3809]

Alana where is the link to donate directly to you ? Very informative great video. It’s always best to be brutally honest. Regarding making a complaint, I believe complaints bring about change, it’s those who don’t complain that facilitates the poor practice. Shining a light on the systems that surround you and are letting you down will make things better for others. The thing about people who are very sick is they don’t want to be a burden to their families or anyone else and that feeling doesn’t foster a call to action. Stand in your power complain and get things changed. Xxx

[@AlanaDeadly]

Under the video, there should be a heart icon, with a dollar sign in it, which if you click, you can tip me ;) But I don't expect it at all, its just there because I can enable it

[@jensjourney8184]

🤗 Stay strong hun. X

[@AlanaDeadly]

Thank you so very much!!! xxx

[@cw8593]

Good for you! Sounds like my local hospital. Absolutely incompetent!!

[@mariabottiglieri3047]

Alana, if I were you, I would continue the chemo. I acknowledge the fact that you have had a hard time with it. Also, I can identify with the feeling of being ignored. Thank you for being so honest with us ❤️ Happy Mothers day

[@MrsPrissNTexas]

My advice is to definitely continue treatment. Have the chat with your Doctor and express that things MUST change. But please, don't stop just because of a broken process at the Oncologist's office. Demand that your Doc share his\her personal cell phone number. This is your life. I beg you to keep fighting, both the cancer and the office inadequacies. Hell, give me their number and I will call to cuss them out all the way from Texas. ;-)

[@elizabethconroy7665]

Me too Shame on them all Poor,Alana to suffer like this and be treated so badly Breaks my heart Such a lovely Lady

[@debbythackray2436]

Keep going Alana…you are doing great.. Only 2 more to go! 😘

[@paulineparry214]

Alana I feel so very sorry for you. It’s disgusting in this day & age you have been treated this way. I would write everything down. Then when your the other side, you can take them all to task. You should not have to suffer this way. You are in my thoughts xx

[@nesthi]

Stupid health care people!😠 But I wouldn't chance it if It could be the difference between life and death. 2 to go! You've come this far sweetie! 🐻👊❤🖤

[@Shaz73]

You shouldn't have to lay the law down with your doctor but do it, let rip. Even show them this video. Yes you wanted to do a warts and all from the very beginning when I found you so yes you're right leaving the first section in. You have enough stress going through the cancer and treatment without becoming a doctors personal assistant. At very least pain relief needs to be set at a level where you're getting some meaningful comfort. Just remember you rock ❤️❤️❤️

[@DireChris]

100%

[@bettyfuller6940]

I cannot believe the care given these days to people with serious health issues. When is this going to end. So sorry you are going through this. Keep fighting and don't give up. Things will get better. ❤️

[@colettejoynson1041]

Have a talk to your oncologist before your next one tell him everything and your fears. Theres 2 left you can do this then you can say you have done everything in your power to stay cancer free you have got this thinking of you 🥰😘

[@suzannehedderly1331]

As horrible as things have been lately, in my opinion, I think you should continue. You have toughed it out all this time. You just have 2 more. Stick it out and you'll never have to second guess a decision to quit. Easier said than done, I know. Can people from the US donate or only UK folks? Will it convert dollars to pounds? Wish I could donate my pounds (fat...😂). Rant and rave all you want. 🙂 Best wishes from Virginia, USA. ❤️👋🏻👋🏻👋🏻

[@AlanaDeadly]

As far as im aware, anyone can donate xx

[@mariabottiglieri3047]

See if you can get some help from a lawyer it sounds like you may have a malpractice suit ! I have followed you since the beginning of your cancer journey and I am in awe of how you've been taking everything !

[@elizabethconroy7665]

Alana Have you documented all this If so,send to the Medical Health Board for complaints

[@TheoriginalANGEK439]

One more thing, if you get no where go to your local tv station and give them your story. 👍 or you could go there regardless. Good idea with the channel. I will definitely watch. 👍

[@karendeakin9628]

It’s so distressing watching you like this you really are suffering some appalling medical treatment but try and do the chemo if you can bring yourself to continue it’s nearly done I’m a nurse and sad part I left nhs because I couldn’t care for people the way I trained and I couldn’t treat people like you’ve been treated sending love x

[@jensjourney8184]

Hey Alana! 👋🏼 Arghhh! This is so frustrating and I really feel for u. Sounds like Belfast doesn’t really have a Chemo Unit. It’s something staff are asked to cover… 😖 You can go through the court process later if need be. For now concentrate on healing yourself and recovering from treatment. ❤️ See your a oncologist beforehand and I’m sure you’ll let them know your thoughts on complaints and court proceedings. 😉 That should give them a kick up the arse! How often are you supposed to have chemo? Definitely think you should finish chemo hun. It’s hard but if u can take on all this stress and still laugh about things, you’ll walk chemo. 💪🏼 🔥 🤗 Jen x 🏴󠁧󠁢󠁷󠁬󠁳󠁿

[@AlanaDeadly]

every 3 weeks :( x

[@jensjourney8184]

FFS! 🤦🏻‍♀️ When are u speaking to ur oncologist? X

[@Shelilah41]

I am so sorry that you’re getting treated like that it’s ridiculous you know you really want to put your full faith into your doctors and it seems that they let you down and honestly I think a lot of people have gone through what you have eaten with minor issues keep you holding on the phone passed from one person to the next treat you like a number-or you’re a drug addict it’s just plain ridiculous. It’s like hello I thought you wanted to be a doctor if you wanted to help people when actuality it just seems you’re like you’re lazy and you hate your job and you wanna go home

[@teddy2669]

Tell them your making a complaint to pals..watch them get there arses in gear. Not acceptable. Disgusting treatment, please contact pals.

[@annie1040]

ask about transferring your treatment to the City hospital

[@elizabethconroy7665]

Alana,it really astounds me how lax the supposedly medical Professions are at your end I live in a Third World Country and seriously the care is compassionate,kind,professional and caring Urgent care is available 24 /7 Bless your heart ❤️ Warm Hugs Please don’t give up,darling We do care about you Shame on those who treat you so poorly Heartbreaking 💔

[@maxine3587]

The most ridiculous part of all this is that the "care" you're receiving probably takes up more time in phone calls, different departments doing half cocked jobs. It makes me so, so angry, because it is exactly the kind of "care" my girl received. If people just phoned when they said, sorted out the issue you need help with, all these extra hours of admin wouldn't be necessary.

[@NeonQueenie]

love you wish i could take your pain for u xx

[@carolynhall1302]

So sorry about the really poor support you're getting x

[@DireChris]

[@juliehowman3912]

Alana, hun it is such a hard call as to whether or not you should continue your chemotherapy. My philosophical self vows to never have treatment if I get cancer, like my father did. Yes his cancer killed him after about 14 years but he was not I’ll until the last few weeks of his life. My brother had cobalt treatment and it made him so ill he missed out on so much, my sister had chemo and radio therapy and it was a doddle she worked as normal.. you’ve been so courageous throughout your ordeal, and you have young children. Our families are all grown adults in their thirties and fourties’ Personally, in your situation I think you need to have a sit down frank conversation with your husband and oncologist before you go any further. It really is a post code lottery when it comes to the NHS. One thing that is for certain is you cannot keep on as you are, you are putting your body through so much stress. You are also missing so much of life. Follow your heart, but make an informed choice. Prayers and thoughts are with you and your family

[@aeko5274]

I am so sorry about everything that you are going through. On going pain that never lets up is so debilitating and the fact that you are not getting pain med issue taken care of is a travesty. It seems to be a common problem, so sorry.

[@patsywoolery3900]

Your telling it like it is. No different in the US. Your not priority at all. Begging for help is not what I call being take care of. I have to beg each month for my pain meds Stage 4 lung, bone and breast cancer. So unfair I think we have enough to deal with.

[@AlanaDeadly]

You're in my prayers xx

[@mariabottiglieri3047]

Don't worry you will definitely have hair by the Winter time

[@KimberlyRottieMom]

Definitely file a complaint. This is so outrageously wrong on their part. I’m praying for you. My heart hurts for you. My opinion on continuing the last two. If you feel like you can push through then go ahead but if it’s gonna be like how you felt for this past week then skip it. I’m not a doctor and I don’t play one on tv so take that with a grain of salt.

[@elizabethconroy7665]

Can you take sleeping tablets I do occasionally or would go mad 😡

[@AlanaDeadly]

I finally got some from the doctor, and honestly-They didn't help...

[@leitzagould8357]

Thanks

[@AlanaDeadly]

Thank you so very much!!!

[@leitzagould8357]

@@AlanaDeadly I have been with you from the very beginning from Greece, (half English half Greek) we got diagnosed on the same day I was just lucky because I touched it by accident when it was still small...but I too was having the same feelings and fears and you were the only one able to keep it true for me. So when you get better I would love to have you come here for a vacation the invitation is always open