Caregiver Stress & Kyle Updates | SYNGAP1

It’s been over 4 months since we shared a video because the last few months have been stressful. I share some of the stressors I’ve been experiencing as a caregiver but also share some fun updates and recent clips.
________________________________________
Kyle was born in 2006 and has SYNGAP1, a rare genetic disorder that causes epilepsy, global developmental delays, intellectual disability, autism, etc. I share more about his diagnosis in this video: • What is SYNGAP1 | Rare...
#syngap1
________________________________________
Order my COLORING BOOK for Caregivers here: amzn.to/3hVa6kt
_________________________________________
LEARN MORE ABOUT SYNGAP1:
www.syngapresearchfund.org/

[@babyprincessplayground4250]

I am also autistic. I lost my mom 9 months ago to cancer. Watching your videos make me happy. You guys are lucky still have one another. God bless you and your family.

[@katherynbowles2354]

I absolutely love that kyle is so excited about elevators and escalators, my son has autism and loves them too, its the small things that make him happy, good information about when my son gets older ill have to check it out where we live, absolutely love this and love how kyle is always so happy, he is so cute!

[@icturner23]

I had no idea you were all so tall!

[@KelliKyle]

🤣 I'm almost 6'1" and now the shortest in our family!

[@icturner23]

I’d say it would be better to keep Kyle in school as long as possible. It will be one less transition in a year when you’ll have a lot of others, i.e. dealing with his status as an adult. And he’ll have a lifetime of day centres so it will just be better for the long-term variety he will have had.

[@KelliKyle]

Great advice; thank you!

[@icturner23]

However, I know that you get a grant for his school fees so if he wouldn’t be eligible for that as an adult then you shouldn’t overstretch yourselves to pay for them yourselves.

[@sheenaatchley8168]

Great video!! Things have been stressful for our family lately as well. My youngest, Aiden, has special needs. He just turned 11 in September. As he gets older, he gets very frustrated when he doesn’t get what he wants, and has started hitting himself and others. Nighttime is our biggest struggle. He doesn’t want to sleep so someone has to sit with him to make sure he doesn’t hurt himself. It’s so exhausting and sometimes I feel like I’m doing everything wrong. I really appreciate your videos and enjoy seeing your sweet family!! ❤️❤️

[@cassiepugh4029]

So great to see you again. Totally understand the need for a break due to stress. My daughter is having some new seizure type episodes that the doctors are trying (I hope) to diagnose so the struggle is real. We are trying to cut carbs at evening meals and that’s been frustrating for my 12yo too. 😢 Her favorite foods are all carbs.

[@KelliKyle]

I hope you get answers soon about the seizures! I know how difficult it is. ❤️

[@debcokinis]

So happy to see Kyle! Blessings to you and your beautiful family! 😊🎉

[@angelabeatty6538]

It’s crazy that you have to look UP to Kyle!! This was such a fun video❤ You rock!!

[@mariageldenhuys6309]

Welcome back Kelli. I have really enjoyed your videos. Sorry about the stress my dear.. Kyle has grown so much, but still has the same sources of enjoyment. Love you both. God bless.

[@pfister23]

Wow…Kyle did grow! 😊. I see that he still loves those elevators. 🤣. 😘

[@ButterflyMariposa226]

Kyle have fun in kings Island !!! Blessings beautiful family 🥰🙏🏻

[@PhD_Author]

Have been wondering and checking for updates. Take care of yourself and your family. The whole family is wonderful at giving him great experiences and a great life. There’s a big change coming up in all your lives, so that must be your priority. I wish you all the best. 🙏🏾

[@liberty3928]

Geez Kyle's excitement is so contagious. 😊 Sooooo sweet ❤

[@reedrothchild7966]

Kyle is such a good kid & I wish nothing but the best for your entire family .

[@user-tx7ih3ck1b]

kyle is so blessed to have you for his mom. i love you all!!!!

[@amyd5023]

I hope you all have fun at King’s Island!

[@amyd5023]

Glad to see Kyle happy!

[@josevladimiraustria2736]

Can't wait for Kyle's Kings island adventure. Stay healthy and strong Kelli and family.

[@TomsOnUK]

Good to see you guys are still doing okay

[@tammynelson1190]

Thank you so much for this wonderful video update. I kept checking for new video. Kyle is doing amazing. Your family is amazing. Thank you again for allowing followers to share your lives. My son David also enjoyed going through the car wash, mailing letters at post office and then stopping at Culver’s for vanilla milkshake ❤

[@KelliKyle]

That sounds like the perfect outing! ❤️

[@mattphillips4260]

thanks for the update how all are doing tell all hi for me hope yall have a very merry Christmas

[@sweetshirl]

I just found your channel and it is such a blessing! I'm a mom of an 8 year old with cerebral palsy and your videos give so much hope and helpful info. Kyle is wonderful 😊. Hope your family has a great holiday!

[@NickyJohnK219]

I missed you guys❤

[@pauladart176]

Have missed you

[@suedelwig4854]

I've missed seeing this gorgeous young man. He makes me smile and I can just feel his enjoyment over the simplest things. I think we should all take a page out of the Kyle book of life. Big hugs to you Kyle ❤❤

[@mandimc]

I’m praying for you and everything going on, thanks for taking the time to update and share with us.

[@dr_capgras]

It's so beautiful so see how the smaller things matter so much to Kyle! : 3

[@icturner23]

I don’t need to know what they are but I hope your personal stresses look better soon. :-)

[@elleneirk8066]

I'm a huge Bengals fan too!!!!!! Love this family

[@catiehays3361]

Great to see you guys. Happy Holidays!!

[@kathleenkuss8583]

Enjoyed your vlog as always, hope you get to post more! ❤️

[@meganharrell1021]

Hi Kelli and Kyle boy I have missed all of your wonderful video's!!!!! Kyle is so handsome and tall now wow!!!!!I can't wait for your Christmas vlog Kelli!!!!!!!!!!!!!!!!!!😍😍😍😍🤗🤗💖💖💖💖💖💖💖🎅🎅🎅🎅🎅🎅🎅

[@kaycieclem87]

Have Miss you

[@wincharles1195]

Bless your heart ♥️ on the paperwork

[@jessp2317]

You're such a tall family!:-)

[@ashleystribling9372]

he has gotten so tall

[@alexfowl]

Man, I didn’t realize he so tall! And I’m a little under 6’1” too.

[@MiaStrayer]

Have you considered we are limitless I go there and absolutely love it

[@katharinaspeelman1623]

How’s he feeling

[@Roman-oi1hj]

Aké.ma.tvoj.sin.postihnutie.co.mu.je.aka.to.je.choroba.povedzte.