CARLIN'S EPISODE CAUGHT ON CAMERA! DOCTORS PUZZLED... BRINGING CARLIN TO TEARS!

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[@amytheecookiemonster8605]

When Carlin was on the floor and cried out "what's wrong with me?" broke my heart. 💔 Also, Evan, it'd be a great idea to take CPR lessons just to be safe (and infant/child CPR) if you haven't already. I'm sure it would give you some added piece of mind when she has an episode.

[@melissabass7014]

It broke my heart as well and I cried with her. Carlin and Evan are such sweet people and I hate that this is happening. I know God is in control and I will be praying for the answers yall need about Carlins illness. Ya'll have 2 beautiful babies. Love yall!!!

[@donitawhite8111]

Absolutely. Great idea. My brother has a severe seizure disorder and he typically quits breathing every seizure. He has been intubated, put on a ventilator and life flighted. He didn't have his first seizure until he was in his 30's. One time he fell face first through a glass table and had a huge cut on his forehead. My cousin was holding a towel on his forehead to control the bleeding and I was doing CPR (all while he was violently convulsing). Witnessing a seizure is terrifying (and I'm a registered nurse).

[@16fambrough57]

This is a great idea except when it's a family member most tend to forget exactly what to do. My mom has been a paramedic for years and this happened to her when I had an episode and became unresponsive and stopped breathing.

[@InfoLunix]

* peace of mind.

[@UwU-ms8fq]

Epilepsy Mom here. Just in case it is a seizure (and it looks like one): When this happens, turn her on her left side, that way she doesn't have a chance of choking in case she throws up.Just keep her comfortable until it passes. Film it!! The are three phases of a seizure: Beginning (I feel weird, auras maybe), Middle ( called Ictal, seizing), post Ictal (up to 30 minutes, in and out of consciousness, it's like the brain is rebooting). Hope you can get into a Neurologist ASAP. The best type of EEG for detecting seizures is where they deprive her of sleep, blow on a pinwheel, use strobe lights, etc. They are trying to trigger epileptic brain activity. Praying for y'all. 🙏.

[@debcarpenter8519]

Thank you. Your information is spot on. You being an "epilepsy mom", I know you are 100% giving them the correct info. I worked peds for years, and I'm glad you left your comment. I hope your kid(s) are well! Have a great holiday weekend!

[@whitnilat2626]

Yes or bite your tongue.

[@shortii12341]

100%.

[@Kopitskid78]

Also rolling her to the left can help prevent her tongue from rolling up in the back of the throat and blocking her airway. As well as something for her to bite on, (popsicle stick) think they have something called a bite guard.that will protect her teeth when she is going through this (holds the teeth slightly apart). Those two things are equally important.

[@caseypoole6293]

yes!! get her to the floor and turn her to her left side!! I grew up with my dad and several of my friends having seizures.

[@SR-pb8id]

What a lovely supportive family, in laws and ambulance staff .

[@traciwilliams3900]

I agree!!! I love this! My in laws would step over me just to give my husband a popsicle.

[@denisebyrd3573]

On a positive note, how amazing is it to have a whole second family who loves you? It's hard to see you like that, but I bet it makes your parents and family feel better seeing how loved and cared for you are by your second family.

[@kindnessmatters4068]

Yes! Not everyone has that! Was so sweet!! ♡♡

[@amclaudet]

It made me tear up! The love!

[@bethanneg1217]

For real! I would be absolutely mortified if anything remotely close to this happened with my in laws.

[@Cindee-Schnitman]

@@amclaudet me too I was tearing up watching this. Reminds me of what I have gone through so many times- my husband cried every one he witnessed; side note all of mine happened at night?

[@vicky266]

The way Evan’s family stepped up and cared for Carlin was beautiful! They seem like incredible in-laws!

[@Emivibes96]

During your episode at your family’s house I was just so impressed with how calm and caring your family was

[@annielyst]

Me too! They were so loving and kind. What treasures!

[@jodifoster1973]

They were amazing!!

[@wyominggirl14]

They are so sweet

[@tabitha7206]

They were wonderful

[@amclaudet]

I know. They made me tear up- they are so loving!

[@youcancallmesteph]

Whatever you do - don’t give up. No matter how many doctors tell you that everything is normal - fight for answers. It took me 13 years to figure out what was wrong with me; a rare progressive neurodegenerative disease. All the doctors over the years that I saw, who told me it was in my head. I’m so thankful that I never gave up. You’re doing great you two 💜

[@anitadejong821]

Geef niet op jezus heeft haar in z’n arme 😂❤🙏

[@hopeandstrength96]

You guys are showing such strength and grace through this all. Have you ever talked about POTS before? Vanderbilt has a great team that treats it. Sending Prayers!

[@4PawsOnTheMoon]

That’s what I was just thinking.. I have POTS and can heavily relate to this

[@becm8753]

Evan…your Nashville family is AMAZING ♥️♥️♥️ watching them remain so calm…watching them sit with Carlin, hold her, comfort her, talk to her - brought tears to my eyes!

[@ash.leeann8166]

Me too 🥺

[@amclaudet]

Oh my gosh me too

[@cakepi573w562]

As part of my husband's epilepsy testing, they hooked him up with a portable EEG machine that he wore for 3 days. They were able to see EEG data during a seizure that helped in his diagnosis and plan for care.

[@suestephan3255]

They didn’t mention this to them and why not?????????

[@kuttfam0191]

Oh wow!! My son has done a 24 hour EEG, but never one for 3 days!

[@fightingbutterflieslifewit5102]

But sometimes the EEG doesn’t show anything, but you still have epilepsy. Don’t think that it isn’t seizures if the EEG is negative. HOWEVER, since this happened post partum, I would make sure she saw a cardiologist AND a neurologist. Probably a hematologist too, if her family has a history of blood clotting disorders. (I’m a very experienced patient, with Lupus and Epilepsy).

[@wendy4ronpaul]

Was she Vaccinated

[@valariep3443]

That's how they were able to definitely diagnose my daughter with epileptic seizures. It is unclear originally caused them but at least we had answers and were able to get her treatment for them. She still had breakthrough seizures but less often

[@margarethorst823]

I had episodes similar to this for years and years. Ended up being diagnosed with POTS. And later diagnosed with chronic Lyme disease- which was causing the POTS. It took many Lyme tests (because they’re unreliable tests) so I wouldn’t take one test result as definitive. Praying for relief and answers soon ❤️

[@antiarugula]

Did u grow up where ticks are common?

[@margarethorst823]

Love Love sort of but I only had one tick bite that I can remember. Never got the rash so we didn’t think much of it. Through the years my symptoms kept piling on and being diagnosed as autoimmune diseases. 80% of people with Lyme don’t get the rash and I’m in that 80%. You can get it from ticks, but also from mosquitos. We aren’t really sure the exact way Lyme entered my body.

[@StandBack15]

I was thinking the same thing, I have two good friends with POTS (thats a lot becasue it's rather rare) but they look just like this when they have episodes

[@lizardina8180]

@@antiarugula EVERY WHERE! I have Lyme and the heartland virus. I live in nny but they are everywhere. I just went to see my dad last weekend in PA and left with two more on me 😭

[@kaleighsmusicvideos]

this is my exact situation too😢❤

[@shanlee5177]

So my daughter started having seizures at 11, and it was like Carlin. Nobody could pinpoint anything. Until they did a sleep deprived EEG, and when we went in to the appt she was in status. Hookrd her up to the EEG and within 5 minutes we were sent to Seattle Childrens, where they finally diagnosed her and started her on meds. No issues since meds. Shes 25 now and living life fully! Maybe ask about a sleep deprived EEG. Sorry for the long post!

[@misseselise3864]

agreed, i think it’s seizures

[@kelseywinterhalt6468]

Seizures makes you want to sleep

[@kathrynmiller9622]

Great call!

[@bratmari]

My bff daughter started having seizures last year at 11yrs old too. After her annual check up. Lots of women have had lifelong reactions to guardasil and I wonder if your daughter and my friends had them.

[@deborahevans1052]

My granddaughter had seizures very scarey.She outgrew them at about 8 thank god.

[@darciclark4991]

I’m a epilepsy mom and your episode did look a lot like my daughters seizures. The postictal phase of falling asleep is spot on. Hugs and good luck.

[@suew6011]

Carlin, everything you’re feeling emotionally is completely normal. Your positive attitude is amazing and is so helpful. I was a nurse practitioner in neurology for 35 years and I just want to reassure you that often times the process of obtaining a diagnosis is long and frustrating.. But you will get this figured out!!! You’ve had all the appropriate tests so far and praise God that nothing obvious has shown up. I admire your family support so much and Evan is so mature and wise (and calm which helps so much!).. I have seen what a difference it is for someone with no support. You are blessed! It sounds as if the doctors have instructed you as to when you would need to take a trip to the ED.. I just want to add that if any episode seems particularly long compared to previous ones you need to call for an ambulance. Know that you and your family are in my prayers and again, although this seems long and frustrating, something will come to light!!! Take good care.

[@wendy4ronpaul]

WAS SHE VACCINATED

[@donnabarbieri2410]

@@wendy4ronpaul I wonder the same.

[@deborahmccllch689]

I have been praying and checking for updates several times a day. Love you guys so much.Hang in there. This too will change. They will figure this out.❤️

[@oliviahowie]

@@wendy4ronpaul That's a good question. It might just be from the vaccine. I know people who have not passed out but had fevers. I do know that they did have covid.

[@elisha052550]

Amein 💕🙏🏽

[@marandahoskins2531]

Currently going through POTS testing for similar reasons, not this severe. Highly recommend the tilt table test. Praying for you Mark 5:26-34. 🤍

[@krystinalocke]

I second this. I recommend a tilt table test also!! I have dysautonomia as well, but it's not this severe.

[@heatherheggen6547]

This came across my feed so I thought I would share in case it helps. I had Pots symptoms, heat issues, tingling, limb exhaustion, blackouts, convulsions and the list goes on. Magnesium deficiency. magnesium supplements gave me my life back. 20 years of doctors couldn't figure out what one amazing nurse could. good luck to you!

[@mayramontero4316]

People don’t realize how much magnesium helps us!

[@judypatiencetwo]

@@mayramontero4316 magnesium , iron and salt

[@LorisHartland]

OMG ME TOO! Magnesium has SAVED ME. I had POTS, heart palpitations and fatigue after a virus and Magnesium citrate has helped me soooo much.

[@lorena4371]

POTS is the first thing I thought of when she said they couldn't figure out what it was

[@jeannebenson9613]

That's what I was thinking this is.

[@huniebon]

Just now seeing this. I'm so sorry you're going through this! 🥺 I pray there's a diagnosis and treatment plan soon. Prayers of healing for you Carlin! Evan, your family ROCKS!!!!

[@christab3972]

I just bawled watching her have an episode! Evan you have been so strong through all of this! What a blessing that your family was all around during this big episode and that someone was able to film it for the drs to see! Praying over you Carlin!!! God will lead you to the right drs with the answers!!

[@getc1234]

Watching her have that episode just made me cry for Carlin and everyone around her! Evan your family was so, so sweet with her!

[@susanmoran692]

I cried too😢😢 praying for answers

[@vdeniceeckert3494]

Seen this before on someone else. Get both stress tests

[@sarapolk6714]

Love You Carlin,Evan,Zade,and Layla!!!! God Bless you always,and keep hanging in there!!!! We love you Bates's,God Bless,and hang in there!!!! Thoughts,and continued prayers for all!!!! We love you,hang in there!!!! God Bless always!!!!

[@tamarathornton5331]

Their last name is Stewart, not Bates.

[@lindagrendell9735]

After watching your video, the calmness and care you're getting from your husband, friends and family is truly amazing. I know what you're going through is scary as I have the same episodes as you. The collapsing aka drop attacks, fatigue, dissociative seizures, balance & tingling in my limbs & memory issues (forgetting what I want to say while having a conversation), dizziness and typically happens when I am at rest or just standing still, getting out of bed is another thing that will bring on my seizures. Finally, I got the diagnoses as FND aka Functional Neurological disorder. MRIs are normal as are my EEGs. Took 4 years to get a final diagnosis and been living with it for about 7 years now...not sure if this is what you have, but it is very similar to my symptoms! Prays & Huggs

[@garyandbeverlyneeble2028]

This just broke my heart seeing the episode at Evan’s parents home. Had me in tears. Thank you for updates, and I will keep her in prayer, and you, too, Evan! You all are precious!

[@Northwoods_78]

Same here 😭 My heart goes out to them both and praying for answers.

[@kristinheckman7767]

Yes I was crying also! Such a sweet family! Hope they find answers soon! 🫂🫂

[@thebluevelvetriver]

Had me in tears too. Love this sweet family and hope they get answers soon. ❤

[@ashbrook8087]

Nursing student here! In the case that these episodes are epilepsy related seizures or POTS, turn her on her left side so that in the event that she throws up she won’t choke. I would also inquire with her doctors about her blood pressure because she might have orthostatic hypotension which means she has a steep drop in blood pressure with position changes which would result in the fainting episodes. Hopefully the doctors have also been checking her blood sugar and potassium levels. 🙏 Praying for y’all!

[@joycohen938]

Yes - definitely put her in the recovery position during or after episodes

[@rebeccafried3924]

My sister started having "episodes"....passing out in her late teens and early twenties. She had probably hundreds and two car accidents over two decades. She saw neurologists, cardiologists and other specialists over the years. Wore heart monitors, but they couldn't find a cause. After going to Cleveland Clinic, they told her she needed a pacemaker. She has not had one episode since, and it's been almost 4 years. She feels great.

[@karensaurage1120]

Same thing happened to my grandfather. He was being examined by a dr when he had a spell. They put in a pace maker and he lived another 25 years around 85 ish.

[@bratmari]

Lots of women started having issues after hpv vaccine. It's one of the side effects. Did she ever get guardasil?

[@TheirMommy589]

This just randomly popped up and I was watching and I'm literally crying. When you asked what's wrong with me while aging in the hall I have felt that so many times myself for my own health issues. And as a mother I was so scared because my 3 month old had a febrile seizure and it wouldn't stop and he was 106° and the ambulance came and I never felt so defeated because they just said he will be ok and keep giving him Tylenol which I had been doing for 2 weeks at that point and he wouldn't break the fever no matter what I did. The ER wouldn't do anything, the pediatrician, nothing. So I know what he means about watching you shake and jerk and it being scary outside looking in. Because they love and care for you and don't want to see you that way and just want to help. I'm praying hard for you! And I'm praying for answers, healing, and peace and comfort.

[@825bharvell]

This definitely looks like seizures. I was diagnosed with epilepsy last August (at age 53) out of the blue. The neurologist had to do a 72 hour ambulatory EEG to detect the abnormal brain waves that were causing my seizures because nothing showed up during the short one in the hospital. I am thankful to the Lord and my doctors that they have been able to get me on a medication that has prevented any more seizures since December. Maybe a longer EEG is in order for you too.

[@valentinacardona173]

Totally agree with you

[@shelley6746]

I agree with you too!

[@emmasimonetti2378]

I am 45. I have epilepsy since I was 5. Carlin please find a neurologist. It looks like a gand mal seizure. I have had so many. I am so sleepy after. I am not a doctor but please see a specialist.

[@Cindee-Schnitman]

May I ask what meds you are taking? I am taking Briviact and Lamotrigine. This poor girl, my heart breaks for you Carlin.

[@sandyseibelhager7131]

I agree. The hospital kept my niece overnight hooked up to EEG to monitor for seizures. She has never had a seizure in the hospital but they still put her on anti-seizure meds. She went to the hospital after she had a seizure in her sleep and bit her tongue severely. She is still not allowed to drive but cares for herself and the kids on her own now. Someone needs to figure out what's going on and get her some treatment.

[@len-lenalegre3901]

My heart just broke when she says "What's wrong with me?" and breaks into tears. Sending prayers to the fam.

[@Adrianna76331]

I love Vanderbilt hospital. I had a gallbladder attack 3 months ago. Spent several nights in the ER then was moved to a room upstairs because of my medical history. They take really great care of you. I would recommend them to anybody.

[@DuvAngel1]

“Help me Jesus” is the quickest prayer that brings His healing. I just had an event that was very intense ~ got through it. I pray you all are healed, in Jesus’ Name.

[@deirdreeyster9039]

Carlin and Evan, my heart dropped seeing the videos you shared with us. How incredibly scary this was for everyone involved. Being in the medical field myself, I just want to say how incredibly proud of the calmness Evan & his family showed while all of this was happening. I know inside they were an emotional wreck but on the outside you couldn’t tell. Evan, you have been SO strong and supportive through all of this and just so incredibly calm when her events happen. Again I just want to say THANK YOU for sharing your personal life and keeping us updated on how things are going. I did see the IG post of Evan wheeling you out of the doctors office the other day, I’m glad the follow up doctor got to see an episode happen while you were with her. Now hopefully answers will be coming sooner than later.

[@marybrady607]

My son has epilepsy- these episodes are so similar to some of his seizures I have witnessed. As a nurse I am so glad to hear of all of the tests that have already been done. The not knowing is the frustrating part. Lean on your faith and your family. May Peace be with you both 💜

[@priscillarobinson7740]

I have seizures and didn’t start having them until I was in my 30’s. They couldn’t figure out what was going on until I was told to see a Neurologist. After a lot of testing they found my Depakote levels were low. After adjusting my levels to what they should be, I’ve been seizure free for almost 15 years!!!

[@MTknitter22]

@@priscillarobinson7740 Praise Our Wonderful Jesus Your healing is so encouraging to Carlin I’m sure :)

[@wendy4ronpaul]

Was she VACCINATED

[@laloramonmusic2674]

I just got diagnosed with PNES physcogenic non-epileptic seizures I had the same symptoms as you it’s taken a whole year for my diagnosis in and out of ER and ICU Rooms I would recommend you get a good neurologist and ask them to get a EMU done it’s where they admitted into the hospital for a couple day and monitor your episodes try to find your triggers like you said the worst part is not knowing that was the hardest for me and my family! Prayers to you 🙏🏽

[@gracebreen427]

Keeping you all in my prayers. I suffered from seizure like episodes for over ten years. Then I had a sleep deprived EEG. I was diagnosed with a seizure disorder but it is non epileptic. Mine are more related to stress and PTSD. I just had one at church on Sunday, that was embarrassing but everyone at my church was so loving and helpful. So blessed. I’m a new subscriber and I’m definitely sticking around and hope you get answers. Xoxo

[@krystynaolszewski6187]

Carlin manages to smile and still look adorable even in the ER during a traumatic experience. Watching Carlin grow up on her family’s tv series makes us all feel like she’s a member of our own family. Thinking of Carlin and her entire family…..praying for an answer. Hugs

[@545g]

I know she does. She is goofy and funny.

[@verlindaallen6299]

Yes she's a beautiful young lady.

[@sherrywiley4817]

I totally agree with you!

[@morganca42]

Oh Carlin. I am so sorry this is happening. I cried when I saw the footage of your seizure. How scary it must be for you to go through all of that. Praise God you have a super supportive family and darling husband to take care for you! Praying for answers and good health!

[@user-np6wq1tx9c]

I cried too! So awful what she is going through.

[@vivianburrell7731]

I also cried watching her going thru this. Definitely having a seizure, but why. Praying for answers!🙏

[@lesliemcguire9664]

I am just weeping through this video. Evan is precious and all of the Stewarts are wonderful. Praying hard for all of you!

[@jannwilkins5631]

I am so sorry this is continuing for you . You definitely have lots of prayers coming your way. Hopefully you will find out soon was is wrong and get on meds to help you out. Love you guys and appreciate the update. ❤️

[@breannarg]

Highly suggest a tilt table test and other stress tests… a lot of ppl are recommending and pointing out - they need to test during an episode. As amazing as the doctors are, sending her home without doing this is upsetting (and typical).

[@haileyfender7420]

Yes. Why no tilt table test?????

[@katwell115]

EDS

[@doricoldwell29]

POSTURAL ORTHOSTATIC TACHYCARDIA SYNDROME POTS, See Cardiologists, Nuerologist and do a MRV brain scan. Look for EHLERS DANLOS, CHIARI or CCI. Those look like seizures

[@hockeymom8906]

Carlin, you are a doll face even when you have medical equipment wrapped around your head 😂❤ Stay strong girly, you have a lot of people praying for you. ❤ Evan, you are doing a great job!

[@christyb.2272]

EVAN, you may have to fight for what you want. Don’t let the doctors blow you off when you ask for a certain test. You have to be proactive and be Carlin’s advocate. Doctors don’t like it when patients suggest things to them, even when they are obviously completely in the dark about what’s going on, so you keep fighting for every last test you want done.

[@FairyGodMom7]

The question should always be: If she is not significantly better by when, we should what? That requires an answer moving forward. And don't let the dr leave without answering that question. Also, the videotaping is helpful so that they can see what you're seeing. Still thinking positive thoughts and praying.

[@jenniferb.7250]

Yes, keep asking questions and I would recommend a notebook to write everything down for each visit because it can become so overwhelming. We carried that notebook every time we went to the fr or hospital. Jot notes and questions as you think of them so when you see your dr you have it right there.

[@sallydot8880]

Totally AGREE!!!

[@firecracker8071]

I so completely agree I can remember while my husband was in the hospital and being there 18 19 hours a day going home and doing research typing in One symptom and then another and the connections that it would make when I found the answer I printed it off the computer first thing in the morning I took it to the hospital headed to the doctor and I said do the test

[@firecracker8071]

@@jenniferb.7250 I also found that very very helpful I still have all the notebooks of the hospital visits in a blood pressures what time what medicines were administered so on and so forth

[@tiffanymartin3802]

Praying for Carlin and hoping your family get answers soon. It's great that you have such a loving, caring n attentive husband and family. Thank you for sharing your lives health and everything with us.

[@user-yu3ci4sl8v]

This sounds for me like epileptic seizures! I work in the healthcare system as a nurse and this is very familiar from what I have seen when it comes to epilepsy. I hope you get the correct diagnosis soon 🙏❤️ And please start to wear a helmet for to protect your head as you can get seriously hurt if you one day fall and hit your head. It might not be that cool 😎 - but better safe than sorry 👍❤️

[@littlehousepineywoods5352]

I cried when she cried and said "what's wrong with me?". Praying the medical team can find the right med for this.

[@sarahpage1773]

I had similar symptoms lately and had an episode where my arms and legs were going numb. I was taken to the ER in an ambulance and the doctors tested me for Guillian Barre and it was negative but then tested my B12 levels and they were low. My doctor has me taking b12 now and I haven’t had an episode since. I am praying for you all!

[@MorganPerong1308]

10:04 I felt that. I am 13yrs old and for the last year I have been going through severe health issues that no doctor can figure out. When I’m laying on the bathroom floor I cry out the same thing and also, can’t help but cry. You just need to know gods doin this for a reason and it’s making y’all stronger inside. God bless❤️😘🥰😔

[@DandyBeingTandi]

POTS survivor for 28 years. It's awful, and it's especially horrible in the summer heat. I take Liquid IV packets with me, everywhere I go. I count to 40 before standing very slowly. I've fainted in so many places: Walmart, church, gym, mall, kids schools, parks, etc. It has gotten better as I have aged, and it is manageable. My kids were around 3 and 4 and would see me faint in the kitchen and my husband said they would turn back to the TV while yelling "Dad! Mom passed out again!!!" That was literally their "normal". Family learned to raise my legs, get a cold cloth and a drink and wait. I don't wish it on anyone.

[@playtimewithpinkieandco]

Y’all, I cried so much watching this! My heart goes out to Carlin and your family. I’m praying for her daily ❤️

[@jessidc]

I hope you guys find answers soon ! 🙏🏼If a service dog is possible, that would be good to consider later down the road ! Some service dogs are trained to catch you before you even fall when they sense an episode coming, it’s amazing

[@caroldearing8002]

Izzy could be trained as service dog- poodles are great for that

[@jessidc]

@@caroldearing8002 yes true 👍🏼

[@sherriplath8346]

I would definitely check on getting Izzy trained for seizure detection . Dogs are so smart and helpful in the medical field.

[@jessidc]

@@sherriplath8346 yes exactly !

[@dalebrown6466]

I grew up with a mom having epilepsy and I often saw seizures. Very scary!! Evan, you are an amazing man to be so calm, patient and loving!

[@mandyroach02]

I went thru similar episodes and was finally diagnosed with dysautonomia. Keep pushing and searching for answers someone out there will be your blessed Dr. who will find answers and treatment. I'm sorry its so scary

[@lucyhallmark9253]

Same. I think she needs to look into tests for dysautonomia because I had the same symptoms and was diagnosed with that along with myocarditis.

[@jerilynn871]

i really think they hit a nerve in her spine with that epidural... praying for yall!! love from texas!! 😭

[@ChaiLatte13]

The heart monitor is the most important thing right now. I really think a Tilt table test is needed so they can monitor everything as she is being tilted. This test will show whether it's POTS and/or vasovagal syncope. It's not all that uncommon for people with vasovagal syncope to have myoclonic jerks during episodes. It's common for this to be confused as seizures.

[@musicgirlM17]

I’ve had all of these! I have POTS and was having these symptoms. I’ve had all the tests she had and more. There are beta blockers that cross the blood brain barriers and others that don’t. When I switched my beta blocker all of my symptoms went away. Looking at your blood pressure when it drops and your heart rate is SO important! Good job for Evans family for checking your vitals while you were having those symptoms!

[@ChaiLatte13]

@@juliereinhart2973 With all due respect, drinking water and staying away from caffeine doesn't stop someone from getting POTS or vasovagal syncope. It's so much more complicated than that. sigh

[@bethtucker2429]

I too have POTS- it all started after a very complicated twin pregnancy. I would ask for a tilt table study and a treadmill test-stress test. My blood pressure plummets when I change positions. I noticed your heart rate was very high at one point. I take a morning small dose of a beta blocker. My friend who also has been in and out of hospitals take a vaso constrictor. It helps keep her blood pressure up. I'm praying your doctors will find answers for you and that you will be on the road to recovery or at least the road to managing what is happening to you. I will say this...I am doing so well. It took a lot of time to get the diagnosis but I manage well. God has this!

[@juliereinhart2973]

@@ChaiLatte13 Never said would stop POTS. Caffeine consumption and poor water intake are agitators . Until she sees her cardiologist and receive a holter monitor result, it is something simple she could do.

[@ChaiLatte13]

@@juliereinhart2973 Well I've had POTS for 20 years and every doctor seems to think that drinking more water is some magical cure. It's just not.

[@Yannispawn]

I’ve passed out about 12 times and seize/posture while out. I have a pretty sunny disposition but my demeanor changes and I snap at people right before I pass out. It’s become a pretty good indicator. I’ve had several injuries and crazy situations from my episodes. You can’t be too careful. I felt every bit of anxiety you were having during your episodes. I pray you get answers and they figure out how to help you. 🙏

[@Rjmaaske]

I agree with so many others saying this looks so much like POTS. Even the discoloration in your legs in the hospital looks like a blood flow issue.

[@AP-sx4nx]

Agree completely

[@Jasmin-nm8pl]

Yep, my Dysautonomia does this, it sucks ☹️

[@ShelliBelliWF]

That's what I was coming here to suggest! And it's HARD to get a diagnosis if that's what it is.

[@TaylorSaysHi2U]

Watching Carlin cry and say “what’s wrong with me?” broke my heart!!! Praying for you sweet girl!!🤍

[@tammymyers7772]

If nobody has told you this; buy a 3" binder notebook and start putting every medical notes, results, etc... With the newest info on the top. With medical diagnosis you are your best advocate! I am so sorry your family is going through this! Prays!

[@my5ks48]

My daughter had very similar episodes, our pediatrician connected us to functional neurologist who diagnosed her with dysautonomia at first. Blood work revealed Lyme disease. I would highly recommend seeking alternative medicine. Functional / chiropractic neurologist, muscle testing mostly done by chiropractors or alternative practitioners. Doctor had no clue, ER’s said it’s neurological and said she’ll need meds. She’s never taken any meds and has been episode free for 1.5 years, no neurological symptoms. I deeply feel for you guys. Praying for you all

[@rick5653]

My beautiful daughter went through seizures right about your same age. She actually wrecked her car driving. By the grace of God I believe she was healed. It was just something she went through around your age and now she is almost 40 and hasn’t had a seizure for almost 20 years. God bless

[@teacupgirl1]

I’ve had epilepsy since childhood and watching this video is almost like a mirror image of my initial testing/diagnosis period. To this day I’ve never had a seizure during a test so I can understand how disheartening the lack of answers can be. I understand your frustrations and how life altering these seizures can be but I promise you it will get better. Maybe not today, next week or even next month but I know, in time it will get easier for you. Finally, The feeling you get before a seizure is known as an aura and when it occurs you’ll slowly learn how to read it and use it as a way to get yourself into a safe place, or in my case simply sit down on the floor, before anything happens.

[@sharonauker1049]

This may sound dumb, but a dog who is trained to detect a seizure before it actually happens may be a way to help to confirm or deny that it's actual seizures. Just a thought!

[@casielee18]

My name is Kc. I’m a friend of a friend of yours. I sent a message to your sister Erin Bates regarding P.o.t.s. I have these exact same episodes. I pass out randomly then shake and feel off for hours… sometimes days. I have other health issues including myalgic encephalomyeltis. You are having them exactly like I did. Postpartum is what made things bad and for months I got worse because I continued to push myself. I was told by a specialist if I had just taken it slow and tried to rest I would have never gotten as bad as I did. I won’t scare you but I will tell you it was REALLY bad for 5 years for me. I want you to know this because I wish I had known. I hope you see this….

[@kindnessmatters4068]

I hope she see your message!!

[@alleak0410]

I was hoping someone would mention this! One of my best friends has POTS and she had similar episodes to this for the longest time. All her tests also came back frustratingly normal as well. It’s been a long road of learning how to listen to her body and lifestyle changes to get it under some control. It really sounds like she may have POTS.

[@Devonbroyles]

I commented on one of her previous videos about POTS I was wondering the same thing

[@allmamalove]

I am just thinking she just had a baby still working alot. She needs to get some rest and slow down.

[@rachaeljohnson6120]

I was just going to suggest this! I got diagnosed with pots after my last pregnancy and had these same symptoms.

[@siobhanmulvey]

Beautiful you are able to understand some of the spiritual lessons/growth this condition is teaching you💚 Thank you for sharing w us.

[@destiniwarren1041]

I feel you when you said “I feel like God is saying just trust me, I’ve got this!” I said the same thing after a year and a half. I felt God had me go through this painful journey to stop me. I got sick the month before we went on Covid lockdown. I missed the whole summer of work because my body was in no shape and my losing feeling was unpredictable. Long story short, because I could no longer pursue being a flight medic I was led to lead high school girls at my church. Almost a year later I felt like physically God touch me on the last night of church camp. I heard “this is what it was all for Destini, this is where I want you.” It broke me down to my knees the overwhelming feeling of hearing that for the first time. I don’t think I’ve ever cried that hard, but it was relief of finally getting a diagnosis and confirmation I wasn’t crazy. Relief from finally having 6 months of prayers answered. Finally feeling like I knew what was happening with my life again…just really stopped me in my tracks and put me where He wanted me!

[@Joyfulminimalist]

I’m noticing a maturity in Evan already through this experience. Before he seemed to have some uncertainty about what he should do. Now, it’s like he knows all he needs to do right now is be there for Carlin. This is who you were all along Evan :).

[@tinabartlett6079]

Love you Evan!

[@vicky266]

Much love to Evan! He is an excellent husband and source of support

[@reginabyrd8903]

♡

[@km2927]

I would request an EEG that is longer than just a couple hours… it needs to be at least on her for 3 days or more! I know it’s not the easiest thing but she needs it done! Praying for y’all!! 💜

[@natashabeanecharlesmclean1932]

Yes!

[@christinemcnabb3117]

Yes I Definitely agree

[@stacysavage6408]

Agreed

[@HoneyBear13]

Did she take a c-vaxx? I don't ask to be critical, I'm asking because several people have had these same problems.

[@jinjin0135]

My daughter has passed out just like this about 10-15 times. The color in ur hands was completely gone. She was so pale. She was fighting to come out of it shaking like that. Always always stay hydrated and please see the cardiologist and get tested for POTS. Ur heart rate shoots up and ur blood pressure drops quickly.

[@maggiesmith4699]

What POTS ?

[@Elisa.s.journey]

@@maggiesmith4699 postural orthostatic tachycardia syndrome.

[@AdrienneMcGuire]

@@maggiesmith4699 Postural Orthostatic Tachycardia Syndrome

[@jinjin0135]

Postural Orthostatic Tachycardia Syndrome

[@heidiandbellatheservicepup3359]

@@maggiesmith4699 postural orthostacts tachycardia syndrome is what it stands for it where you heart rate bottoms out and so does you blood pressure sometimes it causes someone to pass out and become unconscious

[@melaniemcintosh8945]

I'm epileptic & I have similar symptoms that you are when I have seizures. The confusion & exhaustion afterwards is normal. It took some time to finally pinpoint what was happening. After multiple tests & medications, I finally was diagnosed. Prayers for you, your family, & the doctors.

[@gracefulliving_]

Thank you for the huge update. I sat here and cried and prayed and cried and prayed, and said, “Poor baby!” So many times. I just wanted to make the pain go away. I am so so glad you all have such a huge and amazing support system and God on your side. My thoughts and prayers are with you. ❤️

[@zoeygroat1560]

Oh my heart. I’m so sorry y’all are going through this. Sending hugs and prayers to all of you 💕

[@Chromium_507]

Hi guys. I'm Stacey from Thunder Bay, Ontario, Canada. I stumbled across this video scrolling through KZbin to keep my mind occupied. This afternoon at around 2:30 pm i had to put down my Black Lab Kaia. Her health had come to a crisis point. I became engrossed in this video and just had to send you a message. You both are lovely people and it warmed my heart how loving , supportive and strong Evan was. Carlin, you broke my heart when you cried out "what's wrong with me?" I myself have been there from the age of 14 to 28 before i was finally diagnosed with severe spinal damage. It's the unknown that is the most frightening and isolating. I'm 50 now and am managing my disease and all it's side effects. My advice to you Carlin, is to continue to try to be strong, and as difficult as it may seem, try to see one thing every day that is a blessing. Those dimples in your hubbies smile. That absolute adoring and trusting gaze from your babies. Seeing a beautiful bird outside. And so much more. I found just the task of paying attention for these moments, then realizing how many beautiful moments you encounter in each day, and the difficult task of just trying to choose one for that day can help you refocus your mind away from the fear of what's happening with these seizure like episodes. This daily routine will become a comfort. I even began keeping a journal to help sort out my thoughts. I will keep you in my thoughts and pray for you every night whenever i manage to settle down in bed. Keep smiling that gorgeous smile. You are a truly beautiful woman inside and out. Sorry for the long post. I'm a writer and suffer badly from verbal diarrhea. I'm well known for this little problem. I could keep you on the phone for hours!! Now im going to check out your other posts. ;) I might post on other videos and will try my best to keep the word count down!

[@hanlr_]

You seem like the loveliest human! Sending you love and best wishes

[@JackieHolliday]

Oh Carlin. Definitely keeping you ... and your family ... in my prayers. I was in tears watching you on the floor. Broke my heart. Hugs.

[@donnacouch5797]

Oh gosh, I bawled like a baby watching you go through this. Prayers they figure it out

[@karenmomoftwins8847]

Carlin, I pray for you. The doctors will figure this out. I am a former teacher and have experienced this with students in the classroom. Evan I know how scary it is. God is in control. He has you in his Hands❤️

[@pamelalatham1277]

My son was passing out. He would stand up and sometimes be able to walk a few feet and would pass out. He did fall on our balcony and hit his head. He was sent to a specialist. They did a stand up / sit down test on him with a heart monitor on. When he stood up it would take a bit for his blood flow to catch up to the pace he was standing up. With that, he would pass out. He was diagnosed with POTS. Have them do a stand up/ sit down test with a heart monitor on. Oh.. also… his started out of the blue at 17 years old. His legs would also turn purple-ish. I hope you find answers. Prayers.

[@autumnsloggett6499]

Right I have what’s called Nerocardiogenic syncope where my bp drops causing me to pass out only caught it you have a tilt table test done I also have a rare neurological disorder that only a special neurologist can diagnose I went miss diagnosed for years they called it non epileptic seizures

[@jinjin0135]

Did he get a Gardisal vaccine?

[@lastofhername6441]

This was my first thoughts as well!

[@alicegenevieve5982]

Praying they find answers soon. Evan you are so caring and it truly shows how much you love Carlin and your family melted my heart the way they kept talking calmly to Carlin and were letting her know they loved her and to not worry about Layla and Zade that they would be fine while she went to the hospital. I know this is scary for both families. Sending love and prayers for everyone.

[@jodyssbbwgirl9946]

They wont find answers, its from the jab. I have seen this hundreds of times.

[@hollibrown6550]

I pray God’s healing over sweet Carlin. This episode tore me up. I am praying God will move you in the right direction for answers and what to do next and that you’ll be safe in all you do. ❤️

[@playtimewithpinkieandco]

Amen

[@dinodancer4874]

Amen

[@mizeamandaj]

Can I throw out a suggestion? I started doing the exact same thing in 2015. I went to every doctor known to man and no one knew what was wrong with me. I had to take my health care into my own hands and then ask to be referred to the Mayo Clinic in Jacksonville. It was the absolute best thing that I have ever done for myself. Although I had several other things go along with the "seizure like" episodes, it might be worth a trip. You all have my prayers!!!

[@elianalm7776]

Highly recommend the Mayo Clinic also, best doctors who saved my dads life when ucla didn’t provide the same help

[@SD-ip2wb]

POSTURAL ORTHOSTATIC TACHYCARDIC SYNDROME POTS or Functional Neurological Disorder - psychosomatic and known in the past as Hysteria

[@jessicasmoot2252]

What did you find for yourself Amanda?

[@estherfilip3275]

It’s so heartbreaking, I pray y’all get some answers SOON!

[@kimlivingston666]

I'm so sorry you are going through this. Praying for your complete healing. Praying for Evan too.

[@faithevrlasting]

Please, please, please pay attention!!! I am an RN Masters in Nursing w 50 years experience, 20 yrs in Cardiac Intensive Care at a massive teaching, investigational cardiac facility Wm Beaumont in Royal Oak MI. PLEASE ASK MDS, CARDIOLOGISTS WHY THEY DO NOT THINK CARLIN HAS POTS (postural orthostatic tachcardia syndrome) its newly discovered, she is typical of so many symptoms, including in 20s, post partum, standing up causes passing out and she has tachycardia, her hands, fingers get pale, dark, indicating lack of circulation. This is cardiac, NOT NEURO FOCUSED USUALLY. PIN THEM DOWN ABOUT POTS, PLEASE!!!!!!!!!!

[@aSoldiersGirlieGirl]

I have been thinking the same! I’m a nurse too and also have POTS and Gastroparesis and some other stuff. I was borderline with her symptoms and puzzled why they haven’t done further tests except that they’d prefer her see a specialist, BUT, THIS VIDEO was great because I noticed her pale hands too when he was holding her hand and the camera zoomed in on that! It was very noticeable!!

[@bcordle0511]

Love how sweet and loving your family was throughout this entire situation. After watching your channel and everything, in my opinion, it looks to me like PNES, or pseudoseizures. Sending you guys positivity and prayers❤

[@lisaseachrist7931]

My heart goes out to you and your family. I was hospitalized in December of 2022 for 6 days with seizure like symptoms. My heart rate would go into the 120’s and 130’s. My sister in law saw who is a nurse and the CEO of 2 hospitals told my husband it sounded like I had the symptoms of MS. I was told I didn’t have MS by a neurologist. I was told it could be psychogenic non epileptic seizures because nothing showed up on any tests, but heart rate increase does not happen with psychogenic seizures.I just had a 24 hour EEG with video done and I am waiting for the results from my doctor. I understand your frustration and wanting answers. Do not give up your search for what is causing your episodes.

[@lindaibm1]

POTS can exhibit a rapid increase in heart rate.

[@lindaibm1]

What were the results of the EEG?

[@karenjonte2043]

Oh my gosh....broke my heart seeing Carlin on the floor having an episode!😢😢 Praying for you and that you get answers!🙏🙏 Love you guys!💜

[@christinamom9014]

😭 that was so hard to watch, I may or may not have balled me eyes out. I can't even imagine, I hope y'all get answers to exactly what is causing this to happen. Your husband is amazing and so is his family! I am definitely praying for you and your family! Thankful that Evan will be able to stay home too with you, as a mom myself my anxiety brain goes to all the what ifs and I can't even. Love to you Carlin! Answers are coming. 🙏

[@paulettaphillips3659]

I came across your video and had to watch it with my husband. I went through what you are for almost 5 years before I got answers. I even was sent to Vanderbilt for Autonomic neurology. They called mine absent seizures and some was seizures. I ended up getting a pacemaker this past April. My blood pressure would also drop to dangerous low levels. But every thing else my EKG, MRI, EEG all did just like yours would come back normal. I felt just like you, I like was going crazy. I never could feel any of mine coming on. I have fell in the shower and broke my ribs. I can't tell you how easy it is to get hurt. I don't want to scare you but I have felt like I have lived like this alone in this world. No one has had answers for me until this year when I passed out and didn't come back for 30 minutes and they put the pacemaker in for Bradycardia this April. Another odd thing we have in common is I too had just had a child when mine all started. But I had not put much thought into that ever. But my daughter was about 3 months old when I had my very 1st episode. I was washing dishes and fell straight backwards. I will pray for you and your family and I pray you don't have as long of a road to walk as I have had too.

[@lianet777]

I’m watching older episodes again and watching this breaks my heart for Carlin 💔😭 I’m so glad that she’s actually SO much better now♥️ God bless you girl! And your whole family. May the Lord bless you with healing ❤️‍🩹 from the inside out in Jesus name, amen❤

[@mkat23]

Hard to watch Carlin suffering. Praying for healing and answers to what is wrong. ❤

[@helliosity]

Really admire you guys for sharing such a vulnerable moment so openly. I'm going through some scary medical stuff at the moment and seeing Carlin so calm and positive is a great example!

[@kristennelson2480]

She really is amazing

[@janinedrewd79]

I pray that your medical problem is resolved and with good results. Keep the faith. God's blessings 🙏.

[@bird6943]

My husband has a pheochromocytoma and paraganglioma and it took 7yrs to get a diagnosis of which they are still working on. He has the SDHa gene mutation. He is a patient at Mayo Clinic in florida and UF Health. He also has seizures, encephalopathy, paraneoplastic syndrome and passes out. There are a myriad of other symptoms as well but it took numerous hospitals and years to diagnose because its super rare. Mayo clinic and UF health have been phenomenal. My husband has many episodes that are incredibly painful and the ER has never been able to help him because of the severity of his case and how rare his disease is. Its only the specialists who have been able to assist. His geneticist, neurologist and endocrinologist have played an integral part in his care. God has lead us in the right direction to get him the help that he needs! We are forever grateful! This might be a something that you want to look into.

[@maryeileenkrause8957]

Prayers for Carlin’s healing.

[@kaitlynarvetta2571]

I was brought to tears watching her episode, I prayed for Carlin and she is on my list of prayers 🤍 I pray the Lord gives you all an answer !

[@gabbyredmon6911]

Aw Carlin 🥺 I’m so sorry that this is happening to you, praying heavily for you! Glad you’re doing better and I hope we get answered soon

[@Ksudana29]

I was diagnosed with MS and, like you i am very type a...i want to be in control of what is happening in my life. And with ms i can wake up and have a body part not work...not quite like you with seizures but not knowing when to expect something to happen. I joke that God knows i am hard headed and had to do something big to get me to let him have control and to have the faith i profess to have...to make me REALLY walk the walk i profess. So the hardest lesson for me to learn is that God IS in control...either you give him that control willingly or he will take it. The second hardest is that no matter how much you WANT to have energy for all the things you used to do, the reality is that you dont. And if you push your body past your limits it will only cause more harm to you. Also, the most frustrating thing is not knowing what you are dealing with and feeling like you will never get an answer. At least when you get a diagnosis you know what you are fighting and can get a plan of attack. I saw posts about POTS and i actually have a friend who has that and it does sound very similar. You are in my prayers.

[@tofferarvid6589]

As I pray today you all will pray with me and as we agree so shall it be that the healing of God is finding her and lifting her up from sickness and removing it... We pray to you God and in the name of the son we agree that you will set her free🙏🤲🌅🕊️🗝️

[@emilybowers6103]

Watching this video and seeing what Carlin went through had me crying. My heart is hurting for y'all. I'm praying that you get answers to what is causing the episodes & I'm praying for healing. Love you guys!

[@doodlebug4022]

Oh Carlin and Evan my heart goes out to you. I’ve wrapped you in my arms and added you to our prayer list.

[@GodGuided]

I just saw that Carlins family has a page! I had to pray and cry for Carlin while watching this. Carlins family is so amazing and the love they have for her is amazing. The women talking to her during the incident, you could hear the pain in her voice.

[@1pfennig]

O Lord may your love and wisdom keep Carlin safe and may her doctors find the answers to bring her back to her health.

[@NCGirl-fs2ww]

My grandmother had seizures, and she would sleep for hours afterwards. Hers would just come on all of a sudden also. They finally got her on the right medication and she is doing great now. The doctors have never found what causes them. My prayers are with you.

[@leset8604]

Carlin's episode was hard to watch, but Evan's family was so loving and comforting to her. Praying for answers for you all. Glad you will be seeing a neurologist. Evan, you're doing a great job covering your wife and family.

[@sassygeorgiapeach]

In college, I started having episodes of losing consciousness. I went through a battery of tests (CT scans, MRI, EEG & 72hr EEG, EKG, Holter monitor, etc.) It wasn’t until I was sent to Emory University Hospital & had a tilt table test. that I got answers. My heart stopped during the test for a few seconds & when I came to, I was surprised to see a room full of people with a code cart ready to shock my heart. I was diagnosed with NEUROCARDIOGENIC SYNCOPE. If you need any more info, let me know. Praying for you to find answers.🙏🏼

[@bratmari]

I just heard a similar story. A woman started getting them after her shots that university gave her. Gave her no info of possible side effects.

[@p.brouillard]

Hi, your video randomly showed up. And to be honestly I’ve never heard of you guys. Watching this video brought me to tears. Because this is so similar to what my mom is going through!!! And my mom and I have been going through circles for over 7 years and the last 18 months have been absolutely hell. We live in canada and we are currently waiting for a week long observation EEG. Whenever they have availability. We have done pretty much every test under the sun. Tried different medication.( right now what she is taking is giving her a baseline at least but it’s not always working) The shanking, pain, buzzing, even the random skin irritation. My mom kinda passes out but is also fully conscious during her episodes. There are days that she’s completely normal and days, weeks, months where’s she’s bad. All her test always come back normal. It’s not seizures. Doctors can’t figure out. Also sadly our doctors keep saying it’s “anxiety” or PTSD that is causing stress on her body. This is not that!! And it’s so damn frustrating when all they can do is just suggest that to her. Because it happens and then A little bit later she’s “normal” again so they keep saying they can’t do anything because nothing is showing up. I really hope you guys get some answers soon. Because I don’t want to see someone else go through what my mom is going through. It’s scary for the people around but the feeling the person having the episodes is even scarier. My mom explains it as you can be completely find calm doing nothing like watching tv. And all of a sudden it feels like pure adrenaline is coming from your toes to your head that is tingly, numb, but also painful and your body seizes like your have a seizure and you begin to shake. My mom also goes into a claw like motion while she’s shaking and is uncontrollably moaning. I don’t mean to say all this to discourage you or anyone. But to see someone going through something so similar. In no disrespect is kind of comforting. Because I know my mom isn’t alone and that she isn’t the only one nor is thinking are we crazy? Are we creating something that’s not really there? You start to question yourself and self doubt when drs tell you there is nothing showing up every time. I’m not saying they have the same thing going on. My mom does have other medical stuff going on. But to see and hear something so familiar I can’t even put into word. I hope you get the answers help you need as soon as possible💗

[@madisonhuckins7651]

I am going through the same thing too and it’s been happening for a year

[@DoreenBurkey]

@p.brouillard - I am so sad after reading what you have been going through with your Mom. You're a good daughter and I thank God for you! You are such a good health advocate for your Mom! It's important that you go with her and stay as long as you can to help her get to a definitive diagnoses. How much longer do you have to wait until she can go for the week-long EEG? I am so sorry that you're having to deal with Canada's Healthcare system. My prayers are for answers, a diagnosis and proper treatment for your Mom and continued peace, comfort and advocacy for you! 🙏🏻❤️🙏🏻❤️