I'm 21 and had CES, I spent 2 years with bad back pain and doctors telling me it was all in my head and no one ever believing me because i was "too young to have back issues" November 2017 I was rushed into hospital after my pain had got so bad and i had finally lost all feeling and movement in my legs and my bladder had stopped working. I was then rushed in for emergency surgery December 1st, further needing another 2 emergency operations throughout december! I was in hospital for 2 months because of complications and failed surgeries! I'm now 6 months post 2nd op and have full feeling and movement back in my legs! I was very lucky and was told I was a day away of becoming completely paralyzed. If only the doctors had listened to me 2 years ago I would have not ended up the way I was! I had multiple slipped discs (i still do)i had spinal cord compression and I also have spinal stenosis (which is severe) I still get pains but no numbness, I'm terrified of future issues with my back and completely worried about CES again! Doctors need to listen! just because i'm young doesn't mean I'm not going to get a medical condition!
@rashedulhassanrahman14025 жыл бұрын
Did you have an mri done in early stages?
@narimanmohamed7145 жыл бұрын
I had cauda equina syndrome before 7 years ago but I'm still tired I feel numbness neuropathic pain 💔😔
@narimanmohamed7145 жыл бұрын
@Waqas Khan Yes regained control to some extent But I suffer from severe pain and numbness And neuritis
@romanhanajik31854 жыл бұрын
CES can happen also in age 16. For example, NHS have card of questions for doctors about urgency of CES and there is difference in age 16 what to do with a patient. youger can have CES, but only from tumor, not from spine disc.
@MEDMONK133 жыл бұрын
Thanks for penning down your story !!!
@LauraLegends7 ай бұрын
After years of back pain my doctor refused to grant me an MRI. One night my saddle went numb, emergency didn’t think I needed an MRI, I had to buy my own MRI for $1200 the day my bowel and bladder stopped working and I was rushed for two emergency surgeries due to cauda equina. One year post op, still no saddle feeling, no bladder or bowel, misfiring of nerves urging me to go number 2 every 5 minutes and horrid back pain.
@abhinavheya62896 ай бұрын
Hi laura, i do get those symptoms like yours especially the saddle anaesthesia and the bladder incontinence sometimes which gets healed with medication. I had a traumatic injury in the gym and got an mri done the very next day, they say it's a normal disc bulge and the cauda equina syndrome like symptoms were due to inflammation. my bladder is ok but I still feel nerve pain and difficulty in sitting.... I want to know how you are doing and are your symptoms too bad and reoccurring post op?
@freestylersuk Жыл бұрын
They keep telling me it is rare to have CES but as i'm finding out it's probably more common than we are led to believe...
@joyrayer6180Ай бұрын
OMG this is exactly what I needed to be given - A Card to refer to! This video is excellent and is resonating throughout my body! My GP misdiagnosed my CES and 2 days later a Paramedic diagnosed it immediately! Thank goodness for his ability to see the problem. After a fall down the stairs, November 2022 and in January 2023 the problems started and nobody in my surgery ever thought to advise me to get an X-ray. Bowel dysfunction, bladder dysfunction and after looking at my medical notes I see Suspected Cancer! Nothing was ever done until the Paramedic diagnosed my condition, in March 2024. The mind boggles!
@Rudas20074 ай бұрын
This is so frightening. Now in 2024 in my experience at least there is a greater awareness of this with medical teams. I had a few weeks of sciatic pain in one leg which ultimately led me to regular physio. CES was mentioned and symptoms discussed from the outset. Fast forward 7 weeks into physio when pain changed and spread to both legs (though zero numbness or incontinence) I was advised by the physio to go immediately to A&E as CES could be a risk. Prompt diagnosis following an MRI and immediate surgery I’m now 4 days out of surgery with next to zero lasting effects. Thank god for the NHS and the informed professionals along every step of the way.
@helencooper80302 жыл бұрын
I had CES back in 2012, I had never heard of it before. I had been in pain for many years before hand, thanks to an emergency MRI scan I was rushed in theatre as my disc was starting to pierce my spinal cord. I was 12 years old when I started with a bad back and 32 when I was finally treated.
@CalicoEcchymosis Жыл бұрын
I’m 46 suffered since I was 15 and telling doctors! Worked till Jan this year and just now diagnosed! Got a 3mm mass in my spine now! Doc accused me years ago of just going wanting pain meds! I left crying and in pain. Never went back! Till this year the pain has gotten so much worse!
@monicaacosta-zamora7183 жыл бұрын
It's probably too late for me, but I feel fortunate that Dr. Scott in rehab recognized it. She's extremely brilliant and competent.
@marlastonelyons45623 жыл бұрын
why is it too late for you
@the_famous_reply_guy3 жыл бұрын
It's never to late because love Heals you❤️
@musicistheworld Жыл бұрын
I don’t think this is the best definition of cauda equina syndrome. In my experience, my entire leg became numb and paralyzed. I was still booted out of hospital 😡 When I had an MRI FOUR DAYS LATER they went, oops, it’s serious. My leg has not fully recovered and it’s been nearly a year. Leg paralysis and numbness should absolutely be a concern and anyone who gets booted out of hospital on crutches should just go to a different hospital.
@ayoharris2438 Жыл бұрын
Saddle numbness should NOT have to be present. When we treat CES like this we increase the chances that it’ll be missed until later which leads to devastating consequences
@katieknapton21567 жыл бұрын
Really important information clearly presented essential for all Manual Therapists
@silverstrings5569Ай бұрын
Have a brother in sweden that had the EMS unit on scene tell him that an ambulance was not needed and he was fine. He had an acute compression, and after two weeks he had a laminectomy. He still has drop foot on that leg, and almost entirely lost usage of that leg. The insurace company there is kicking the can around, and has been for five years. Since then, he has had a second instance, and the same thing happened, an ambulance told him to just get someone else to drive him or call 'medical transport' to take him. The 4 ER doctors that he eventually saw him all tried to hit him with Dilaudid and send him home, dismissing him as a drug seeker. When his surgeon finally was notified he was on the table in less than 12 hours. Now there are two suits for the same thing, different instances. As an EMS provider myself, (in the US) it is distressing how many cases are missed or dismissed out of hand. This video really does need some serious boosting, and there needs to be a push for spinal injuries education across the world.
@crazybarber223 жыл бұрын
How about if you had none of these symptoms but herniated/bulging disc .. had emergency surgery woke up all numb in saddle area / legs , then they did another emergency surgery 3 days later to fix what he did 3 days prior .. and know it’s 5-1/2’s later and still saddle numbness ,not able to urinate, dont even want to talk about the erection problem he will probably experience, what should be done now ? Sit and wait for bladder to turn back on ...? Or go in for more testing ?
@the_famous_reply_guy3 жыл бұрын
Are you okay now?
@asaseahorse65836 жыл бұрын
This is a great video. If I'd listened too I too would be still working and walking. Not end up in a wheelchair after 2 spinal surgeries followed by sepsis and a spine infection, which led to 2nd surgery further up the spine and another infection, then 3rd surgery to have the hardware removed due to infection was on the hardware so antibiotics couldn't get rid of it. 5 years of my life was in a holding pattern.
@TheCorylipman1233 жыл бұрын
Sorry to hear this 🙏 how are you now?
@laurieboissonneault93784 жыл бұрын
Spinal fusion 8 months in and have pain again. Learned the hard way from using a bicycle and going for a ride. Herniated another disc right above fusion 6 months postop. More pain meds, nerve pain meds as well. No local help in my area. Feeling pretty scared. Does this mean more fusion or what?
@davidfraser48087 жыл бұрын
excellent video- thanks CSP
@joncarolyn Жыл бұрын
Have acid trips and it will help the nerves reconnect. I have managed to undo about 90% of the damage having a trip every month or so.
@freestylersuk Жыл бұрын
I've been through at least five London nhs hospitals...not one of them even mentioned CES...only when i went private did i get the full story...nhs advice and help after i told them was...if i have serious symptoms i.e wet myself go to A&E...so i have to wait until its too late and live with the discomfort cos the SSRI'S they keep repeatedly trying to give me dont work. When it's an emergency its too late but when a herniated disc is just "touching" its not enough...
@zippo_muk92542 жыл бұрын
*I’m suddenly having difficult ejaculating, and have numbness around my genitals and pelvis.* Is this cauda equina syndrome?
@ryanbaker2134 Жыл бұрын
Hi, did you ever figure out what the issue was?
@debbiethemadbee7 жыл бұрын
Thanks for this My issue has not been the physiotherapist, but some of the emergency doctors. I have been to my local A&E departments about 3 times over the past few weeks and the last visit the doctor was adamant that I don't have CES, even though I'm I have signs that I have likely CESI. Problem is it seemed that she was looking for/at the acute/complete type. She was determined that I don't have any sensation loss otherwise I would be paralysed. Doesn't she realise that sensation loss depends on which nerves are damaged and how much? I also know people who have no feeling from the waist down and can still walk. She pressed my tummy and said I was sticking it out. I couldn't tell and also maybe it seemed that way because I hadn't been properly opening my bowels. She said I had good tone because she was finding doing a rectal exam difficult and also it was very painful. Overall she suggested that my problems were from reading about things and worry. Yet it was the physiotherapist who had referred me to A&E and done me a letter which stated that I had suspected CES. No MRI was requested because I had recently had one which showed no nerve compression, unless something was missed. When I had my appointment with the physiotherapist, he asked me some questions and ticked a few of the boxes that suggested early red flag symptoms. I have just had a neurosurgeon referral go off, but hope it's not too late in terms of damage. I will find out if anything was missed. Is it possible that worry can cause some CES symptoms like bladder issues and gradual saddle anaesthesia?
@rashedulhassanrahman14025 жыл бұрын
What happend after?
@narimanmohamed7145 жыл бұрын
@@rashedulhassanrahman1402 can you help me please 💔😔 I'm so tired I had cauda equina syndrome before 7 years ago I had 2 surgery on my back Last surgery was Fixation L4 L5 and S1 💔💔😔
@elizabethmcleod2464 жыл бұрын
Worry will not cause nerve damage. I’m sorry you were brushed off and gas lighted. I was to and it hurts.
@mssatire145 жыл бұрын
Thank goodness I had microscopic blood in my urine a year ago when I had a cervical fusion because I asked my Dr to check my urine for my checkup just to see and it got worse. I called a urologist and since my kidneys, bladder, and blood work is good she thinks it's the L4-L5 Central protrusion/severe stenosis. My back Dr was just forgetting about my lower back because of the issues with my neck and midback. Thanks to the urologist he apologizes and wants me to call him after my urodynamics test. I had to bring up the urine and bowel weakness and retention and mention my urologist to him twice. I had no clue my urine and weak bowel issues could have anything to do with my centralized disc protrusion. My back Dr didn't bother to ever ask questions. Thanks to me asking for a simple urine test and my urologist asking questions I might be having a laminectomy to release the pressure to save my nerve before it's too late. I already lost some feeling but I can still use my mind to urinate to help the process along. Back dr.'s don't take things too serious because they have seen worse so minor cases (in their eyes) get pushed until it's too late.
@leanneantoine14976 жыл бұрын
Great video! Are these cards available?
@dvaidr5 жыл бұрын
I've had back and leg pain and numbness for twenty years. Painkillers, painkillers and more painkillers.
@monicaacosta-zamora7183 жыл бұрын
Same here.
@tinkotinkov18053 жыл бұрын
Same
@varghesetv3070 Жыл бұрын
Igetthisdiseasetouseayurvedatreatmet
@varghesetv3070 Жыл бұрын
Phisiotherapyfaultlgetthissyndromesosad
@TehEmileh3 жыл бұрын
I’ve got all symptoms of this, I had an MRI but have over a month wait for the results. :( been in so much pain for months
@ryanbaker2134 Жыл бұрын
Hi,I hope you are well. Whatever happened with your results? Getting my mri done tomorrow.
@luke-ov9hj3 жыл бұрын
Im recovering from caudal equina after disc surgery. Im now left with an IDC. It has totally fucked me up. I can use my legs again, but the bladder is still without feeling. WHY? because the fucking stupid doctor in the E.R didn't recognise the symptoms early enough and I waited in the E.R for 48hrs before being sent to a large hospital where a surgeon recognised the symptoms and sent me straight for an MRI, then straight in to surgery for decompression. My solicitor is now on the case.
@elmasloco49204 жыл бұрын
This is a serious thing I waited 3 days before going to hospital it's scary and it does start with lower pain
@Break0fdawn2 жыл бұрын
How are you now?
@puremoth3 жыл бұрын
Nobody mentions HOW this syndrome is caused. Can someone please explain how does someone get this?
@jltt22038 ай бұрын
Usually a slipped/herniated disc. Could be cause by spinal stenosis, cancer, or blunt force trauma. Mine was caused by injury, working out in the gym.
@CDLCDL702Ай бұрын
@@jltt2203what were your symptoms and did you have surgery?
@charlottecartwright37632 жыл бұрын
Please someone help me I’m not being taken seriously I need help my bowl gone I wet my self my nose leeks like crazy I have a noise in my head like s wishing water.numb back.please help it’s gettwose two years and it’s getting worse
@ruthrobinson22325 жыл бұрын
Wish my gp had taken me seriously rather than leaving me almost 3 days before I was sent for emergency surgery.
@elmasloco49204 жыл бұрын
Are you getting better now?
@stevenritchie54864 жыл бұрын
@@elmasloco4920 I waited 6 months :(
@elmasloco49204 жыл бұрын
@@stevenritchie5486 I'm sorry to hear that mean was a week or two but now after a year and a half I'm able to walk and most of numb parts are gone hope you are getting better sir
@janetrowe186 Жыл бұрын
How to clear mine???
@tinacollins92134 жыл бұрын
My L5S1 burst backwards and severed my nerves to my coxs nerves I have no feeling in my bum and vigina I can’t hold my bowels or urine , I was told I had crones please could you contact me I cough and I shit every where I feel suicidal with this
@kandlesbykate78684 жыл бұрын
All I got was painkillers until I collapsed and got rushed to hospital
@sherriealexander89453 жыл бұрын
This is what they did with my brother. Then tired to say he was only coming back for the painkillers. He will be having the surgery he needs soon.
@tinacollins92134 жыл бұрын
St marks told me I had cauda equine the hospital over here lost my records
@elmasloco49204 жыл бұрын
If your butt starts to feel numb get an mri tell your doc it’s been 5months since I had my surgery and it’s not easy to go threw but it gets better I got most my feelings back docs told me it might take up to 2 years before I can probably get my feelings back but it’s been 6 months and I got most my feelings back from my waist down I still can’t pee or poop normally but it’s getting easier I don’t soil myself no more also I can perform sexually again full function just Want to let people with same problem that it gets better don’t give up
@grettagrids2 жыл бұрын
I have ehlers danlos and. They are. ALWAYS. Momitoring me for. This..esp. with the leg. And low back pain. My veryabrae themselves. Ste. Hypermobile
@bouyant86593 жыл бұрын
PHYSICIANS ARE SO PREOCCUPIED & BUSY WITH THEIR OWN ADGENDAS, THEY DO NOT EVER FULLY LISTEN...!
@christophercarr64087 жыл бұрын
I don't know if it was any good as the pointless and irritating music made it unwatchable
@darrylmcneill67292 жыл бұрын
I got emergency
@williamshampine70455 жыл бұрын
I found copies of the reference card from the video here: macpweb.org/home/index.php?p=548