CdLS National Conference - Orlando 2016

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Cornelia de Lange Syndrome

Cornelia de Lange Syndrome

Күн бұрын

Пікірлер: 40
@martinemikita9281
@martinemikita9281 2 жыл бұрын
The first little boy with the glasses... HE IS SO SO SO ADORABLE!!!
@Person0fColor
@Person0fColor 7 ай бұрын
He has a life limiting deformation but yea super cute. 😂 Mad cope
@Jesusjunkie402
@Jesusjunkie402 2 жыл бұрын
The baby with the glasses is the cutest baby I have ever seen😍
@SharonzaPenson
@SharonzaPenson 7 жыл бұрын
I can't thank The CdLS Foundation enough for this conference. It was such a blessing...gosh, beyond a blessing! I left loving my son, Elijah even more! It's a journey, but knowing you're here and all the other families I'm connected with makes a big difference, and I don't feel alone. I can't wait until Minneapolis in 2018. Thank you for all that you do! God bless you! 💜😀
@monikamichaelis-iw3to
@monikamichaelis-iw3to 7 ай бұрын
Did they ever find out what causes this?
@olivedog1880
@olivedog1880 7 жыл бұрын
the little guy with glasses 😍
@joseHernandez-xc4ix
@joseHernandez-xc4ix Жыл бұрын
😢I wish this was around in the 60's through the 80's while my sister was still here
@sarahquinn2224
@sarahquinn2224 Жыл бұрын
Daniel is so cute! Oh my goodness! What a blessing!❤
@خالدالشهري-ك1د
@خالدالشهري-ك1د 7 жыл бұрын
Im from Saudi Arabia and my first son Abdulrahman has Cdls , me and his mother so scared about his future but actually this video gave us hope about him, thank you so much and We hope visit you soon.
@komi5217
@komi5217 6 жыл бұрын
خالد الشهري i hope your son is better now.
@condensationcuredltd8313
@condensationcuredltd8313 5 жыл бұрын
Are you still scared ? I was scared but now not so scared
@jewelhaines8842
@jewelhaines8842 7 жыл бұрын
My beautiful daughter Nicole was born with Cornelia De Lange syndrome. She is 30 years old, and has surpassed many obstacles. She is living in a residential home for adults with disabilities. She has a 1 on 1 and is doing well. She does have issues with frustration and anger...but all in all, she is doing well.
@olivedog1880
@olivedog1880 7 жыл бұрын
Jewel Haines that's awesome to hear! I don't know a whole lot about this, as I just looked it up. but I bet ur daughter is beautiful and you're very proud of her ❤
@hurryupnow1
@hurryupnow1 6 жыл бұрын
why have you put her in there?
@gwendolyn0515
@gwendolyn0515 5 жыл бұрын
@@hurryupnow1 Probably cause she is violent towards people, I'm not a doctor, but I've done some research on this syndrome and people with CDLS have similar behavior to those with autism, and sometimes violence is one of them.
@cookiemonster93fly
@cookiemonster93fly 5 жыл бұрын
Daniel is sooo cute. What a doll
@janetpitts7302
@janetpitts7302 Жыл бұрын
Cdls kids have so much hair and crazy eyebrows, wonderful!!!
@andersonomo597
@andersonomo597 2 жыл бұрын
God bless all CDLS children and their families. It always boggles my mind that a fertilized egg is SOOOOO tiny and within that TEENY TINY start of life are even TINIER bits of DNA that can have such huge consequences.
@joanbaczek2575
@joanbaczek2575 Жыл бұрын
The music makes it so you can’t hear what the people are saying
@GeorgiaHakes
@GeorgiaHakes 7 жыл бұрын
i actually have mild CDLS! if i ever have kids they will 100% have CDLS! I am 14 years old!
@victorchavez6833
@victorchavez6833 5 жыл бұрын
Good
@condensationcuredltd8313
@condensationcuredltd8313 5 жыл бұрын
Hey & that would not be so bad, but it’s not genetic, or contagious. My son is 4 and adorable . Not what we planned but if doing the journey again we would defo take a detour to pick him up.
@fo7234
@fo7234 5 жыл бұрын
Los amo con todo el corazón cdls me marco la vida con mi pequeño facundo 💜
@Me-il8vk
@Me-il8vk 2 жыл бұрын
Don't have kids
@secretsquirrel7374
@secretsquirrel7374 Жыл бұрын
Don't have any kids then
@luvtoyscollector3373
@luvtoyscollector3373 2 жыл бұрын
Aww he is just a tiny cutie 🥰
@gerdyproffitt4916
@gerdyproffitt4916 Жыл бұрын
Beautiful children
@sarahquinn2224
@sarahquinn2224 Жыл бұрын
@irenedavo3768
@irenedavo3768 Жыл бұрын
Do you watch Freya?
@cookiemonster93fly
@cookiemonster93fly 5 жыл бұрын
They all have same eyebrows
@xandanamiq1509
@xandanamiq1509 5 жыл бұрын
I’m from Iraq my boy kako has clds
@ЛюдмилаСмелова-д5с
@ЛюдмилаСмелова-д5с 3 жыл бұрын
Как жалко детей!
@victorchavez6833
@victorchavez6833 5 жыл бұрын
What's wrong with their hands tf
@-SUM1-
@-SUM1- 5 жыл бұрын
It's called acheiria, the lack of development of the hands. Don't know why you had to say 'tf' to that.
@victorchavez6833
@victorchavez6833 5 жыл бұрын
@@-SUM1- tell that nigga gimme a high five 😂
@Roy-ol3qx
@Roy-ol3qx 5 жыл бұрын
Why would you say something like that? Don't be rude.
@victorchavez6833
@victorchavez6833 5 жыл бұрын
@@Roy-ol3qx lmao
@Roy-ol3qx
@Roy-ol3qx 5 жыл бұрын
No.
Is she severely affected? Looking at the CdLS spectrum
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