CdLS National Conference - Orlando 2016

[@martinemikita9281]

The first little boy with the glasses... HE IS SO SO SO ADORABLE!!!

[@Person0fColor]

He has a life limiting deformation but yea super cute. 😂 Mad cope

[@Jesusjunkie402]

The baby with the glasses is the cutest baby I have ever seen😍

[@SharonzaPenson]

I can't thank The CdLS Foundation enough for this conference. It was such a blessing...gosh, beyond a blessing! I left loving my son, Elijah even more! It's a journey, but knowing you're here and all the other families I'm connected with makes a big difference, and I don't feel alone. I can't wait until Minneapolis in 2018. Thank you for all that you do! God bless you! 💜😀

[@monikamichaelis-iw3to]

Did they ever find out what causes this?

[@olivedog1880]

the little guy with glasses 😍

[@joseHernandez-xc4ix]

😢I wish this was around in the 60's through the 80's while my sister was still here

[@sarahquinn2224]

Daniel is so cute! Oh my goodness! What a blessing!❤

[@خالدالشهري-ك1د]

Im from Saudi Arabia and my first son Abdulrahman has Cdls , me and his mother so scared about his future but actually this video gave us hope about him, thank you so much and We hope visit you soon.

[@komi5217]

خالد الشهري i hope your son is better now.

[@condensationcuredltd8313]

Are you still scared ? I was scared but now not so scared

[@jewelhaines8842]

My beautiful daughter Nicole was born with Cornelia De Lange syndrome. She is 30 years old, and has surpassed many obstacles. She is living in a residential home for adults with disabilities. She has a 1 on 1 and is doing well. She does have issues with frustration and anger...but all in all, she is doing well.

[@olivedog1880]

Jewel Haines that's awesome to hear! I don't know a whole lot about this, as I just looked it up. but I bet ur daughter is beautiful and you're very proud of her ❤

[@hurryupnow1]

why have you put her in there?

[@gwendolyn0515]

@@hurryupnow1 Probably cause she is violent towards people, I'm not a doctor, but I've done some research on this syndrome and people with CDLS have similar behavior to those with autism, and sometimes violence is one of them.

[@cookiemonster93fly]

Daniel is sooo cute. What a doll

[@janetpitts7302]

Cdls kids have so much hair and crazy eyebrows, wonderful!!!

[@andersonomo597]

God bless all CDLS children and their families. It always boggles my mind that a fertilized egg is SOOOOO tiny and within that TEENY TINY start of life are even TINIER bits of DNA that can have such huge consequences.

[@joanbaczek2575]

The music makes it so you can’t hear what the people are saying

[@GeorgiaHakes]

i actually have mild CDLS! if i ever have kids they will 100% have CDLS! I am 14 years old!

[@victorchavez6833]

Good

[@condensationcuredltd8313]

Hey & that would not be so bad, but it’s not genetic, or contagious. My son is 4 and adorable . Not what we planned but if doing the journey again we would defo take a detour to pick him up.

[@fo7234]

Los amo con todo el corazón cdls me marco la vida con mi pequeño facundo 💜

[@Me-il8vk]

Don't have kids

[@secretsquirrel7374]

Don't have any kids then

[@luvtoyscollector3373]

Aww he is just a tiny cutie 🥰

[@gerdyproffitt4916]

Beautiful children

[@sarahquinn2224]

❤

[@irenedavo3768]

Do you watch Freya?

[@cookiemonster93fly]

They all have same eyebrows

[@xandanamiq1509]

I’m from Iraq my boy kako has clds

[@ЛюдмилаСмелова-д5с]

Как жалко детей!

[@victorchavez6833]

What's wrong with their hands tf

[@-SUM1-]

It's called acheiria, the lack of development of the hands. Don't know why you had to say 'tf' to that.

[@victorchavez6833]

@@-SUM1- tell that nigga gimme a high five 😂

[@Roy-ol3qx]

Why would you say something like that? Don't be rude.

[@victorchavez6833]

@@Roy-ol3qx lmao

[@Roy-ol3qx]

No.