The first time I’ve heard of this was a couple of days ago and his name is Sebastian and lord he’s a beautiful little guy. It’s because of his video that I’ve been watching videos on this topic. Thank you for educating everyone.
@missymunro76912 жыл бұрын
Gorgeous Sebastian is in this video..
@lindahawthorne83372 жыл бұрын
I too started watching the child by the name Sebastian a beautiful boy, and his family’s interaction is stunning you out there, please go to his channel, his parents are amazing, this brought me here, and so glad it did, thank you for the post
@KrissiCreates Жыл бұрын
Yes ! I've been following this family too. What a beautiful little boy and family! I'd never heard of CDLS either.
@KrissiCreates Жыл бұрын
@@missymunro7691 I thought that was him ! Such a cutie !!
@lauraann7816 Жыл бұрын
@@missymunro7691 I definitely saw our Man Sebastián here. I am so happy it looks like he'll be home for Christmas 🎄
@joseHernandez-xc4ix Жыл бұрын
I really wish they had this in the 60's - 80's when my sister was still here 😢God rest her beautiful soul .
@graciesmom624 жыл бұрын
My first cousin, David had CDLS. He was non verbal, intellectually challenged and physically aggressive. I was one of his few playmates as we were similar in age. I’m so grateful for my cousin, who taught me about accepting differences in people. He also taught me that I didn’t have to be afraid of people who look different. He passed at age 24, after finding and ingesting my Uncle medications. I wonder if David was born now instead of 1958, would he have learned to verbalize or sign. He had no way to communicate; I can understand why he was aggressive. My Aunt was advised to put David in a state run hospital, but she refused. She took care of him at home until he passed away.
@angelicaduncan96942 жыл бұрын
Wow I’m so sorry I’m glad David had you to have companionship with ♥️ Rest In Peace to that beautiful soul. I wonder if he did have means to communicate if it would have made a difference. What a sad thought ♥️ but with each documented CDLS case comes new achievements and research
@joanbaczek25758 ай бұрын
I think the aggression is caused by neurological issues. With cdls the cognitive ability can range from mild cognitive problems to severe cognitive disability. If the child has severe cognitive disability the era they born does not make a difference. Girls often have a milder form of cdls if they have the genetic issue on X chromosome because of the second x. If cdls is caused by problem on 5th chromosome severity is about the same with girl or boy. The girl speaking in the beginning has milder form of cdls and only reason she’s functioning as she is. No amount of therapy is going to get a more affected child to function like her
@Death_Host2 жыл бұрын
I just found this channel and wish I found this earlier. I'm glad more people are learning of this. It brings a light to those who have CdLS like myself.
@marciajones29932 жыл бұрын
We’re all more than our disabilities. 💙❤️
@stacya10943 жыл бұрын
This made me cry, what a great foundation ! Thank you for helping children and families that need support!
@sasivelez54734 жыл бұрын
My son has this syndrome and I love him So much
@pennyvoll11692 жыл бұрын
Bless you
@bettydamnboop30302 жыл бұрын
Sasi he loves you too honey 🌹 he’s giving you this rose simply because he loves you. Wishing everyone health happiness .
@hamidhussain9028 Жыл бұрын
My son is also diagnosed with CDLS, He is 3 years old, I am very upset about it. Please someone help me, what should I do now, please someone guide, now what'll be the way forward.
@lisabeaver29192 ай бұрын
Or the channel ' Stephanie George ' her son Sebastián has it.
@donnataylor980 Жыл бұрын
❤❤❤ all these children are precious. I saw cute little Sebastian. I watch his Channel on KZbin. Stephanie George it's great❤❤❤
@cindyburbick95542 жыл бұрын
Love watching Sebastian I saw him in the videos pretty cool
@Dani-ICU-RN2 жыл бұрын
TY for sharing.Im 22 years ICU RN..never heard of this before..You are doing g a great job ♡
@dianasmith725 Жыл бұрын
God bless these strong brave young people
@abbieprice34305 жыл бұрын
CdLS seems like a really challenging condition! But it seems like everyone diagnosed with it is unique depending on how it affects them!
@blumberg19823 жыл бұрын
The word is disability!! Say the word!!! It is NOT a bad word or a something to be ashamed of and our community would appreciate its use to reduce the stigma and fear around disability. Thanks.
@doc45193 жыл бұрын
The video is about the syndrome, not just disabilities caused by it. The word “disability” was even used in the video.
@maritesmatining71483 жыл бұрын
May daughter has suspected to have this kind of Syndrome also because she has the signs and symptoms.. She has NGT since birth.. Though it is hard for us to see her like we love her soo much, and we are doing our best to take care of her
@angelicaduncan96942 жыл бұрын
♥️♥️♥️ wishing you the best and sending love and prayers your way
@katyyoder1481 Жыл бұрын
Any chance I can get the transcript for this video? I have a friend/family member I would like to show this to that has no access to KZbin. They have a baby with exact physical characteristics of CDLS, although no mention of it has been made and so far no diagnosis of any kind. All genetic testing has come back inconclusive... I only happened upon the syndrome through Gabe and Hannah's channel with the story on baby Avynn. It reminded me so much of my friend's baby. It's a delicate subject and difficult to know how to approach someone with a suggestion of what may be wrong with their baby. I thought maybe if I can show them something like this they might be more open to it...
@leopaddy35352 жыл бұрын
Such beautiful children
@avegailVillegas-lb7uc11 ай бұрын
My daughter had CDLS non verbal
@oliviaadan82082 жыл бұрын
1 in 10,000 is actually alot...so sad
@lindamarie6574 Жыл бұрын
You are all beautiful!❤
@lucreciacastaneda4781 Жыл бұрын
Que promedio de vida, tiene una niña, con el síndrome?
@stronger33813 жыл бұрын
shit's rough. wish em the best!
@aprilturner37623 жыл бұрын
What support is there for Canadian families ?
@emilynsinlao98763 жыл бұрын
My daughter has this CDLS syndrome. It is very hard because we don't have foundation intended for them in the Philippines
@maritesmatining71483 жыл бұрын
my daughter has suspected to heve this ki d of syndrome, she is turning 2 but looks like 4months old baby,, having NGT since birth.. it is hard for us but we will do our best to take care of her
@marciajones29932 жыл бұрын
@@maritesmatining7148 Am pretty sure your best is good enough. The fact you love her speaks volumes. Wishing you and your Daughter love and light. ❤️💙
@cindywhite44853 жыл бұрын
What is CDLS?
@emmarose42342 жыл бұрын
Cornelia de Lange syndrome.
@colinpostell63472 жыл бұрын
Cornelia de lang syndrome
@colinpostell63472 жыл бұрын
The people who have CDLS some can't talk some can't hear some use a walker to walk