Celiac Disease 101: Everything You Need To Know

[@ketakipathak5630]

Very well presented. I am a dietetics student and this covers all the necessary points.

[@maurreese]

Great conversation thank you both!!

[@GastroGirl]

Thank you for your feedback.

[@idunsgarden]

I got tested when I was diagnosed for Hashimotos back in 2012. I got a “weak positive” for antigliadin and TTG was around 7. They said I was fine, but I started getting bloating really bad in 2020 so I cut it out. Recently had gluten while traveling and felt fine so I had more, now I’m back to feeling awful and bloated. I have one of the genes and wanted to get another blood test next week at the doctor but I don’t think I can keep eating it. 😅

[@jacobyson7629]

Although they said you should wait to get tested which is true, if you already have stopped don't bother. You know you get sick when you eat gluten, you have plenty of risk factors, so just take care of your health and don't eat it.

[@MoniqueAduSustainableLiving]

This was a very informative and helpful discussion to help those that may suspect Celiac, or have Celiac to navigate some of these challenging steps. Many thanks and blessings to you both for your time, and great discussion/tips.

[@GastroGirl]

Thank you for you comments.

[@gymnasticlife1788]

What if you feel immediate reaction like the next day feel horrible? One doc already suspected it currently waiting for blood work results etc etc but already diagnosed severe deficiencies and feeling anemic 😔 ugh

[@misssicily100]

I got diagnosed at the end of October I went on a gluten free doctor. I still have the symptoms when will I stat feeling like myself again?

[@חייםמ-י6ע]

At the age of 35, the skin on my hands began to crack, even bleed. For years, doctors didn't know what it was. A decade later, I started suffering from painless diarrhea and vomiting every few months. Even then, doctors didn't know what it was. So, a year ago, at the age of 52, I decided to look into it in depth and asked my doctor for a celiac test. He didn't understand why, but he agreed. Then it turned out that I had celiac disease. I stopped eating gluten, and it wasn't easy, but my hands healed and the vomiting and diarrhea went away. It's a shame that science hasn't found a cure yet, but I think the more people who have celiac disease, the more science will try to find a cure.

[@GastroGirl]

Thank you for sharing your story. So many suffer in silence without a proper diagnosis for years. Your experience likely will help inspire others to advocate for themselves and seek care. Here are some helpful and evidence based resources you may find helpful": www.beyondceliac.org/ celiac.org/

[@WendyHannan-pt7ez]

What about itchy scalp and skin, anyone else experience this ?

[@misshazel2106]

I do. And I get a rash on my cheeks

[@CourageUnderFire87]

Yes!!!! Itchy scalp

[@WendyHannan-pt7ez]

Yes the scalp and even the stomach area is the worst .

[@Sara-jb6zl]

I was diagnosted very very late, about I have already big Problems and searching for help. Is there a possibility to speak with someone?

[@christinaoneill3136]

How can an elevation in liver enzymes be caused by Celiac disease?

[@Saima.Nosheen]

My daughter is 12 she is celiac since she was little. It’s been few months that she complains that she feels sad all the time when her blood test vitamin D, B12, irons are perfect. I’m worried.

[@masoodkhoso2869]

Very great

[@rodbarker6598]

Gluten free is better for you, nature never developed processed food, you can eat very healthy and be Gluten free, I haven't been tested and have a bunch of symptoms and so far Gluten free is stopping those symptoms I don't want get sick to be tested easier to just go gluten free and eat healthy with varied natural foods.

[@GastroGirl]

Thank you for your comment and sharing your story. While this approach may be working for you, going gluten free may not be right for everyone. We appreciate your posting this as it raises a common question, "Should I follow a gluten-free diet if I don't have celiac disease?" I wanted to take a moment to provide some additional insight for this community. Most experts recommend that people who don’t have celiac disease or gastrointestinal irritation, remove highly processed foods from the diet before removing gluten. They suggest adding more fruits, vegetables, whole-grain bread or pasta, and lean proteins. Many people find they feel better just by eating better, not by removing gluten. See this article from John Hopkins. www.hopkinsmedicine.org/health/conditions-and-diseases/celiac-disease/what-is-a-glutenfree-diet Yes, a gluten-free diet is necessary for celiac disease, wheat intolerance, or non-celiac gluten sensitivity. Autoimmune and other digestive conditions my also benefit but research isn’t conclusive about the general health benefits of it. See this evidence-based article www.healthline.com/nutrition/is-gluten-bad We encourage people to speak with healthcare provider/registered dietitian before eliminating all gluten. If gluten is completely cut out of the diet, there’s a risk of nutritional deficiencies and you will be missing the benefits of nutritious whole grains, fiber and micronutrients. Getting enough whole grains in your diet is especially important if you’re at risk for heart disease or diabetes. This is a concise overview by Shannon Lewis, M.D., gastroenterologist, The Oregon Clinic, and Niki Strealy, RD, LD, outpatient dietitian, Providence Nutrition Services, Oregon, "Three Reasons to Go Gluten Free and Three Reasons Not To" blog.providence.org/regional-blog-news/three-reasons-to-go-gluten-free-and-three-reasons-not-to

[@deecee901]

Actually hoping this is what's causing my issues . I'm really sick & scared. Pain..

[@jacquelinegaulin4736]

@@deecee901 thank you for your comment. We encourage you to see your healthcare provider for an accurate diagnosis. Please let us know if you need assistance in finding a provider.

[@wrenfan]

Excellent reply. Recognizing the culprit and treating it as soon as possible makes the most sense. Why continue to damage yourself for the sake of an official diagnosis to end up right back where you are now. Your response to the diet is the best test out there.

[@Lorac3705]

Is Dr. Nandi taking new patients (Nov 2023)? Can you provide contact information please?

[@GastroGirl]

Hi here is a link to his practice at Penn www.pennmedicine.org/providers/profile/neilanjan-nandi

[@tonimartine370]

I don't believe I heard the difference between Celiac and Gluten mentioned. When I eat any food labled gluten free, I still get Ataxia. I've fallen after leaving restauranrs many times and ended up with staples in my scalp ( 3 to the most 10 staples). This is a dangerous issue and aught to be disussed in your forum.

[@Edie927]

They say people lose weight. I have gained weight. I have had diarrhea only 3 times since diagnosed, it depends on how much gluten i had. I eat a handful of nuts in the morning so i can take my vitamins which i take a bunch daily to make up for not being able to absorb it, figure maybe id get at least some extra in there. I have noticed that since i was diagnosed in 2019, my hair had become brittle at the ends woth breakage. My hair grows, but breaks at the end not allowing my hair to get longer. Is there anything to help with this? Im assuming this is because i may be deficient in some vitamin or nutrient. I use coconut oil on my hair practically drenched in it before i wash my hair and it makes it less dry when i style it and less breakage. I have schambergs disease on one leg not sure if this could be a symptom of celiac though. My nutritionist told me to take glutamine to help heal the villi, other than that i dont know why im gaining weight or how to stop the breakage in my hair.

[@CeliacandtheBeast]

Definitely work with a celiac disease knowledgeable dietitian! They can help you with everything that you may be dealing with after going gluten free, including vitamins and nutrients you may be missing on a gluten-free diet. I gained almost 30 lbs because I was so malnourished before my celiac disease diagnosis! You're not alone!

[@suzannewhittaker2280]

Autoimmune diseases can mean other autoimmune diseases. Have you had your thyroid tested? ?hashimotos

[@Edie927]

@suzannewhittaker2280 They did test for thyroid abd hashimotos, and Vitamin deficiency. I take calcium and many others but the only thing they told me was I am in early stages or have signs of osteoporosis. They used a term for it, like I dont have it but enough showed up in above test that I could get it.

[@RuaWaterwalker]

Has anyone considered, the chemicals that are used on our food and the pollution in our rain/water?

[@AruneshAgrawal-pp1oh]

My Celiac disease has significantly improved, after 3 months with IAFA Ayurveda. Their holistic approach, including personalized herbal remedies and dietary guidance, has alleviated my symptoms and boosted my overall well-being. I highly recommend IAFA Ayurveda for their effective and compassionate care.

[@sharchannel1836]

Can a stool test for caelics?

[@GastroGirl]

Thank you for your question. No, stool tests cannot diagnose celiac disease. Many people with celiac disease don't know they have it. Two blood tests can help diagnose it: Serology testing looks for antibodies in your blood. Elevated levels of certain antibody proteins indicate an immune reaction to gluten. Genetic testing for human leukocyte antigens (HLA-DQ2 and HLA-DQ8) can be used to rule out celiac disease. Source:Mayo Clinic Most important thing to remember: don't stop eating gluten before being tested since eliminating gluten from your diet may make the results of blood tests appear in the standard range. Please see this evidence-based article with more info on tests uses to diagnose celiac disease. celiac.org/about-celiac-disease/screening-and-diagnosis/screening/

[@sharchannel1836]

@@GastroGirl thanks this is helpful

[@muneebalatifabdullatif1756]

👍👍