Celiac Disease: Living Gluten Free (Storytime & Q&A)

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[@ashleyjarrett3240]

I’m a pastry cook, and I always treat any customer who says they are gluten free as though they have celiac disease and take the precautions necessary, because I don’t want to be responsible for someone’s discomfort and sickness! I loved hearing you talk about it. I’m thankful I have mostly worked with people who also take dietary restrictions as seriously as they should, but I hope cooks who write it off as a “trend” will discover videos like yours and become better educated!

[@Mariemarie-uw7id]

Ashley Jarrett as someone with celiac disease thank you so much for that!

[@tiffytoo]

Thank you from the bottom of my heart for caring. Your BEAUTIFUL inside and out.

[@wendyhannan2454]

Thank you Ashley, I wish more people were like you. I’ve been glutened a number of times eating out. Not many cooks, chefs take it seriously it’s often ignored, plus they don’t really understand cross contamination. As a result I don’t eat out much, it’s not worth the risk. 😉

[@Glm867]

Bless you ❤

[@wendyhannan2454]

I wish there were more people in the food industry life you. Some people are really good and take it seriously, others find it an absolute nuisance. I’ve been glutened a number of times while eating out, after going through the whole spool. I no longer say I’m GF, I say I’m celiac, if they don’t know what that is, I explain. I hardly eat out anymore. So thank you, your very much appreciated 🙏

[@beeft999]

(Going through celiac diagnosis) I never would've thought that my depression could be linked to celiac. That actually explains a lot

[@sarahamad5899]

I was diagnosed with celiac disease a couple of months ago and honestly, the diagnosis was such a relief... I struggled my whole life with my health and I used a lot of antibiotics in my childhood I always felt fatigued and I started getting depressed... I started my gluten-free diet two months ago and it was amazing how my mood is lifting up and I feel more energetic and I am happy that I finally can feel good overall.. thank you for sharing your story .. love from KSA

[@kimberlyconner2216]

As a fellow Celiac lady, it’s nice that you’re educating people about this and the challenges of gluten-free lifestyle. Thanks for all your honest information!

[@Undiluted_Liquid]

seme

[@mischiefmaker3140]

This is so random do you drink alcohol? Is Gin gluten free ?

[@allieinwunderland9681]

My daughter is 18, she’s been sick and anemic for over a year. Very underweight and test after test finally lead her to a GI specialist where he immediately biopsied and diagnosed with celiac disease. We’ve all been tested and I found out I’m also gluten intolerant. Our family is now gluten free and she’s healing, as am I. I’m a nurse and I hate that celiac never even crossed my mind. We need more education on this disease and it’s symptoms. Thank you for your video, for spreading awareness. ❤️

[@jeanetteoxo]

I would love to see what you eat since you have celiac disease, like a what I eat in a week video please.

[@CharleyVegydise]

Please I need Ideas

[@thesharingtreewithshari2735]

Yes 🙌

[@lavellnutrition]

Thank you for your request Jeanette. I will consider doing a video on that for you and others who wish to know what I eat in a week. I believe you're right and it could be very helpful ti many people.

[@bae_nessa]

I just got diagnosed with celiac disease a couple of weeks ago and came across your video in my hours of research trying to figure it all out haha. Thank-you for being so informative, your video was super helpful! I too feel that even in the 2 weeks I’ve known and am transitioning in my diet that no one is really taking me seriously, so I already understand some of the struggle!

[@annagesaman7429]

What were all your symptoms? Any neurological? I have random pins and needles dizziness eye flashes etc

[@SaoPadlung]

I am now 57. On August 2019 I got diagnosed with celiac after long time of being sick. Because of very strict with gluten free diet, now my health get better and better. Don't give up everyone!

[@annagesaman7429]

What were all your symptoms? Any neurological symptoms? I’ve been getting random pins and needles and eye flashes and dizziness and pain in my neck etc

[@kishacameron5622]

OMG!! I'm having the same symptoms

[@UmeshKumar-xu2ng]

@@annagesaman7429 do u feel sleeping problems in celiac??

[@jamkenn4597]

Thank you for this video! Two of my four young kids (9 & 4) have been diagnosed with celiac. Everything you said perfectly sums up the disease and what goes into living with it. Thank you for this!

[@koryreid7566]

This describes my life story! Everything you described I went through too! I’m so glad you shared your story! Thank God I was diagnosed so early in my life! I’m so much better and have gained back all the weight I lost during my gluten years.

[@hiedinichols3310]

I don't have Celiac, but my boyfriend does. It can be a nightmare for him. Thanks for spreading the knowledge. :)

[@katierose2122]

Hiedi Nichols mine too! Not many people know how to avoid getting him sick...especially through cross contamination

[@hiedinichols3310]

@@Drizzlerrrrr Interesting that you say that because we just broke up a couple weeks ago haha. But thanks. It requires a lot of knowledge, but I was happy to accommodate it at the time. :)

[@littlemandar]

I don't comment on KZbin, I actually only just found you on KZbin... but I feel the need to express appreciation for this video. I was diagnosed 9 years ago and I don't really have anyone in my immediate circle who relates to me with Celiac. I have spent the last 9 years explaining to every family member, friend, acquaintance, server, or even coworker what Celiac is and how to handle it and they never fully understand. I love that this video exists, it makes me feel a little less "crazy" like I have some made up disease. This is HIGHLY relatable. I really loathe eating out or even eating at someone's house (and that's as someone in San Francisco a highly progressive city).

[@daniellemadson5368]

I just got diagnosed with celiac after several years of being sick! Thank you for making this, It made me feel better knowing I am not alone 💜🙏

[@kyleandkaeofficial8249]

What is your symptoms?

[@vijaysodhi2180]

Hlo I'm also a cealic.

[@caitlangunner2517]

Thank you so much for making this video. As a fellow celiac this is literally everything that goes through my mind - people choosing to be gluten free for no reason can be so frustrating 🤦‍♀️ thank you for bringing more awareness!! 💕

[@wendyhannan2454]

Thank so much, your gorgeous and look a picture of health. I’m 74 and was diagnosed 4 years ago. Looking back I had signs of having Celiac disease years before. It can be hard to diagnose. 😒 You explained every thing so well, thanks for sharing, keep well and keep up the good work. It’s great having some one like your self with Celiac disease, helping other fellow Celiacs. Cheers, Wendy from Australia. 👍

[@deelim6923]

Thanks for sharing your story Michel! I do not have celiac but I am extremely gluten sensitive. I am able to have minimal gluten(I use some sauces minimally) that has it. Which I found out has been ok for me. But for the most part, I avoid as much as possible. Otherwise my symptoms get pretty aggressive too. Such a great way to help educate those others that are trying to figure it out and learn!

[@twilightgirl44]

Didn't realize how common it is to have celiac's. Learned a lot from this video!

[@katiemac3025]

I was diagnosed at 10 years old. (18 years ago) and it was such a challenge back then. There were almost no gluten free options anywhere and nobody knew what it was. Society has definitely progressed a little. That being sad, I completely relate to the awkward situations when co-workers, or neighbors bring you food without asking and you have to politely decline. Also, eating is absolutely a social event. I have always felt out casted when groups of people wanted me to go to a bar or a restaurant I knew (or know) isnt safe. I can relate to your story. Moving from the east coast to the mid-west has made eating out that much harder.

[@chefoodie]

I also have celiac disease - thanks for representing the community and some of the struggles :) I would only point out that a colonoscopy isn’t required for diagnosis - an upper endoscopy should do the trick and is easier to go through - just don’t want to put anyone off of getting tested because of the unpleasantness of a colonoscopy :)

[@nellkristie4420]

I was just diagnosed with Celiac Disease 5 months ago! Not many people make videos about the disease, thank you for uploading!

[@carlysacks5760]

Love this video! I was also diagnosed with celiac disease in high school at age 18, but I got diagnosed through an endoscopy. I had similar symptoms of digestive issues my whole life, and then I was losing weight and throwing up the summer before my senior year of high school and got diagnosed in January of that year. Thanks for sharing your story!

[@zktelugufacts]

Ur parents have thise disease

[@megself7945]

You are very informative and I follow you mainly for Celiac experiences. I like seeing what you order when dining out and fast fooding as well as when you make your meals in your kitchen and shopping for groceries! It has really helped me. I also enjoy all aspects of your channel. Celiac is a bummer and you nailed it when referred to it as a lifestyle.

[@libbybocht1852]

YESS! YESS! THANK YOU! there is so many misconception on celiac disease! People need to get educated on it! I have been bullied by people because they think I am "making it up" or i am just being "dramatic". Thank you for this video!

[@taylorengelhart8734]

Thanks for the video! I am on my diagnosis journey now and my blood tests came back positive so I’m in research mode now and so appreciate you sharing your story!

[@chevonnethompson7349]

thank you for this!! I got blood test results that indicate I probably have CD, so I'm waiting to schedule a biopsy. I'm still in shock that this could really be me. Praying that it isn't. crying a lot. ♥

[@linaj63]

Hi, I would say that while the CD diagnosis certainly takes some getting used to, it can be done. There are loads of different flours out there (chestnut is good for brownies, etc.) but we are just constantly exposed to wheat (and not the same wheat that our ancestors were supposed to) as it's cheap. It's everywhere, on stamps, straws, in all sorts of places. I now eat better than ever before and focus on what I can eat, not what I can't. Good luck with your diagnosis, but don't despair; there is light at the end of the tunnel.

[@hendilman]

Thanks for telling your story. I was diagnosed in middle-age. Never had the classic 'tell' for Celiac disease of 'failure to thrive'. I had problems like you described my whole life but topped out at 75 inches of height, even serving a hitch as a US Army paratrooper. It was unworldly to learn that had I been diagnosed before my service I would not have been eligible even in case of WWIII. Stay strong and steadfast in your recovery, you're setting a great example.

[@jeanbb3283]

Thank you for making this. I’m one of those gluten intolerant/wheat intolerant people. I eat GF as honestly I feel so much better. This is after trying the GF diet over a decade ago and failing as the food was so awful. Now the range has expanded (benefit of the trendy GF crowd) it’s so much easier. I’ve eaten GF got 18 months. For the reasons you stated I always maintain very high standards when eating out to make sure I don’t give people the impression that they can be slack with anyone requesting GF but equally don’t make it a big thing as it’s sometimes demoralising seeing a menu and figuring out I might have one incredibly bland pricey thing and being sad when others have a huge choice. It’s so common for people to say I’m gluten allergic and then order cake for dessert which is such a bad example to set. Coeliac’s (UK spelling) diseas runs in the extended family so I bake exclusively GF too and most friends and family can’t tell > which is how you know you’ve cracked it!

[@natasadobrovoljski680]

Same symptoms occurred to my sister when she was 18 in HS. We were super worried about her being skinny for her height, being in pain, diarrhea, tiredness, always being angry and irritated and we wouldn't know how to help her to the point we thought that it's cancer basically. They also found no "hair" that absorb nutrients in small intestine that you've mentioned too. Also, she was super anemic. She went through endoscopy, colonoscopy, ultrasounds etc and eventually found out its Celiac disease. We didn't even know what it was. I also had some of the symptoms when I was 16, but when I got tested, they only found chronic gastritis tho I do carry the gene. Thank you for spreading awareness! Ps. my sister is now okay and we do not eat gluten as family most of the time, because of her. She gained weight and is happy mentally.

[@kdawson8981]

My 18yr old son was just diagnosed this week. Thank you so much. Your video is one of the first ones I’m watching to understand how he feels. I’ve done some research medically but I wanted to hear from someone his age to better understand what he’s going through. I appreciate you telling your story. ❤️

[@kelseyoconnor1]

I was just diagnosed last month. It was so nice to hear your story of how you received your diagnosis! I’m sorry it was such a long and drawn out process for you but glad to see you living your best GF life!!

[@zinzimashibini2949]

OMG yes. You never realize how much social life and holidays are focused around food unless you have this type of issue. My son has a very limited diet (due to sensory and swallowing issues, not allergy or Celiac) and I never paid attention to that before he was born. Everything from birthday parties to holidays to just going out is affected. Try doing a birthday party for a little kid who can't eat or even be around cake, ice cream, etc. 😐 I also love the way you explain it.

[@karirobbins1394]

I am glad you like to talk about celiac disease. It is informing people that don't know about celiac disease. I didn't know anything until I watched your videos. Very well informative. Thank you.

[@xuzix]

I was diagnosed earlier this year with a very similar story to yours. I am also convinced antibiotics set me off and caused it to show itself. I've been feeling pretty stressed about it and over it recently and your upbeat mindset about it was cool. Thank you for making this homie.

[@mischiefmaker3140]

Hi , do you drink alcohol?

[@xuzix]

Mischief Maker rarely. once a month if that. prior to being diagnosed I got extremely sick from it because I was drinking beer & just thought I was super hungover. now I stick to tito’s and I’m good. there’s a bunch of different brands out there that are gluten free if that’s what you’re wondering.

[@mischiefmaker3140]

@@xuzix I really hate this whole gluten thing still getting use to it. I was wondering if I can have Gin and Tequila lol I rarely drink

[@xuzix]

Mischief Maker yes actually most gin & tequila are gluten free. just look up the brand to double check. it does get easier! it still sucks all the time I’m not gonna lie but you learn how to navigate it. best of luck homie

[@loriboger5561]

Thank you for spreading this knowledge. My blood work was also negative but thank goodness my GI doctor still did the endoscopy and trusted his instincts. I was diagnosed in 2013 now because of Celiac Disease I also have POTS and Neuropathy.

[@peepeepoo7999]

IN THE MIDDLE OF THIS I GOT AN AD FOR GLUTEN FREE PIZZA LETS GOOOOOOO

[@cheyhawkins747]

i got one for gluten free bread

[@joelhill4107]

Ya, I got a pizza from PIZZA UNLIMITED in Calgary Alberta. Was so sick I thought I was going to die!! If it isn't made in a gluten free environment, it is contaminated. 2 crumbs of bread will set off this autoimmune response. Get it? Read the fine print. NOTRECOMMENDED FOR CELIAC DISEASE DIETS Thanks for your comment but, beware, If you care about your boyfriend.

[@tessamadar9957]

This was super informative and it is so great that you are educating people about celiac! When I was growing up one of our close family friends had celiac, so it is surprising to me how many people just have no idea it exists/how severe the symptoms can be. Loved this video!

[@meredithcraig2025]

Girllll Celiac babies are a REAL thing! Anytime I accidentally eat gluten I look 9 months pregnant and ready to pop. Thank you for making this video!! ALSO- if you’re ever in Nashville, my mama makes the best gf biscuits and gravy ever. People from Poedunk nowhere, TN know how to make some gravy.

[@angiegirl1604]

Meredith Craig, I would just about give a limb for her recipe. My ultimate fav food as I’m from the Appalachia. Could you possibly share it please😅

[@amyfrank6514]

Thank you for this video!! I'm one of those whose doctor has recently suggested cutting out gluten as a means of reducing inflammatory symptoms that I've been experiencing for a long time. I truly appreciate the explanation you provided and am encouraged to continue to do my research and adjust my diet to potentially eliminate more than just gluten as a solution.

[@EllaMyBunnyValentine]

You’re so courageous and always have a positive outlook. I’ve really been binge watching

[@Dancer4Life12OTH]

Thank you for sharing your story! This is super informative. My sister has celiac disease and was starving to death as a 1 year old from not absorbing nutrients. She was finally diagnosed after my grandma suggested it may run in our family. She is now 22 years old and I have learned so much about nutrition from growing up with her having celiac disease. I think it's super important that people educate themselves on nutrition in general, but especially to help the people who actually cannot eat gluten vs someone who just does it by choice. Great video!!

[@isabelprice2201]

I had a terrible experience with my diagnosis. It's interesting to me that you had a negative blood test, but WAY positive endoscopy and colonoscopy. I was a sophomore in High School. I loved to swim. I was getting really great at it and then suddenly, I lacked the energy to do anything. I'd come home from practice and just remember sleeping through dinner. I was really depressed and socially anxious. I had missed a whole week of practice to try and recover and come back, but I remember not being able to swim two laps before I felt like I had to throw up and pass out. My mom just thought I was quitting and she knew I was not acting like myself. She saw my depression and kept asking me what was wrong, but I legitimately was sick. My life completely flipped before and after diagnosis. Celiac is really prominent in my family, so it's weird it never raised a flag, but you don't think a 15 year old would have it! I was first diagnosed with a Vitamin B12 deficiency. The PA was great, I had bloodwork done showing low IgA levels and the prevalence of Celiac Disease. I also remember days leading up to my endoscopy that I consumed so much gluten because I felt like that was it, it was going to be the last time I'd ever have it. But then I had traumatic experiences with the GI specialist. He said my diagnosis was inconclusive. I was diagnosed instead with IBS and acid reflux which are also SYMPTOMS of Celiac for crying out loud & told me I could never have chocolate or coffee again. I laughed out loud, to that he told me,"i'm serious." I had to take prilosec which I felt made me worse, so I stopped taking it eventually. I came back for a consultation once and he felt down on my colon... very uncomfortable and told me it was spasming still and was mad because obv he thought I needed to keep taking my prilosec, like thank you!! He also essentially accused me of smoking pot because he had never seen such a terrible case of acidity in the lining of someone's stomach at age 15. It's just really sad I couldn't be validated and made to feel like some kid who was just living some wrong lifestyle to have so much acid LOL. Anyway, sorry for this LONG post, but I just wanted to say never stop fighting if you feel something's wrong with your body. People will knock you down because they're misinformed, but trust your instincts. I decided to go gluten free anyway, and I know I have Celiac. I don't need a doctor to tell me, although it would've helped with a lot of cafeteria issues down the line..but all my symptoms of IBS and acid reflux have subsided since then! I'm much happier and healthier! thank you for spreading awareness and showing that good can come from terrible situations!

[@rses916]

wow so sad the accusations of that Dr wth :( I'm sorry you went through this. Did you experience pale stools? I also wasn't diagnose because my GP never take anything I say seriously. I've been losing a lot of hair and he says he doesn't see it I hate Drs. Anyway I went gluten free since last year but sometimes there are traces of gluten that I eat anyway I have pale stools still and I'm worried.

[@Rouge-Gunner]

If you still ger acid then you are also dairy intollerant even if you don't believe it

[@isabelprice2201]

@@rses916 Yes I did from malabsorption. I did go in for shots for my b12 deficiency and that helped. But also if you have Celiac even the smallest amount can hurt you and stay in your system forever ugh!! Hope you find answers!

[@isabelprice2201]

@@Rouge-Gunner No, only had acid buildup upon diagnosis thankfully!

[@SamWest96]

This is really interesting. I'm having to educate myself at the pace of knots because my daughter is severely allergic to dairy, but not quite allergic enough to qualify for an EpiPen. Even the doctors and dietician didn't know that Calpol contains E420 which is derived from lactose. She was so incredibly poorly and I had no idea why. I feel so on my own learning all this stuff (my husband is too but he works so I'm her main carer) and even though it's nothing like celiac disease, it's comforting seeing someone I follow talk about their experiences of eating out etc. I'm only 5 months into this journey but I'm already sick of hearing "oh lactose intolerant?" No, as in she will be hospitalised, potentially on a breathing machine if she consumes dairy and will not sleep for more than 20 mins/will be constipated for a minimum of 4 days, more likely 7.

[@madisonk2195]

Home sick today, but a Michel video is already making me feel better ! ❤️

[@RosieGraham]

This is the first video I’ve seen of yours, but I just want to say thank you for making it! I started getting sick around 5 months ago when I turned 19, and it’s gotten a lot worse since then. I ended up finding out that my apartment had a ton of black mold that I was sleeping under and I went from having a bad cough to daily acid reflux and stomach issues. I stopped eating gluten for a few weeks and my stomach issues lessened, but I got a gyro and was accidentally given a pita that wasn’t gluten free, so I ate the chicken in it and started feeling sick again after that. I have an upper endoscopy this week so I started eating it again so the results will be accurate and it’s killing me with these stomach pains 🤧 and I’ve never had surgery so I’m lowkey scared but I’ll be glad if I can get a diagnosis so hopefully it’s worth it

[@rf1worlddreamer836]

Thank you so much for this video. I was diagnosed with celiac this past year and cross contamination does make me have an awful reaction. This video was really validating.

[@KayLoveNYC]

I feel the same way, I like that it’s forced me to be healthy as well and I like how conscious I am of what I am putting into my body. On the other hand, its kind of scary because I really want to know what they’re putting into our foods. Celiac went from 1 in 1000 to 1 in 100 over the past decade or so. The numbers are increasing rapidly and it’s hardly being talked about.

[@PriscaL]

This was really interesting! I'd love one about lactose intolerance- within in the past year I've become super sensitive to a certain amount of dairy and have cut out milk and am careful to take a Lactaid if I'm going to eat a lot of cheese etc. but I have not had anything diagnosed

[@emilyspears8911]

I'd like a video on this too!

[@shyofthemoon1175]

Hi I know this is a super old comment but if you have celiac, which can sprout up at any time in life, it wears done your intestinal villi as she said and the enzyme lactase that helps you digest lactose which is in dairy lives on the tips of the villi. So a lot of people with celiac disease have problems with dairy as well. Sometimes going completely gluten free helps their villi rebuild and heal enough to be able to digest dairy again.

[@katelynelizabeth9636]

My sisters, mom, cousins, and my aunt all have celiac disease! I didn't know the small intestine produces serotonin - that makes a ton of sense though. One of my sister's biggest symptoms as a kid was major mood changes (among other things), and eating gluten free totally changed her temperament. Cross contamination is such a huge deal, thanks for educating more people about the specifics of this disease!

[@aprilswallows9609]

Hi, so my step father has celiac disease and unfortunately went more than half his life before doctors figured out what he had. The education was just not out there like it is now. . He has a ton of medical problems because of it. And your so right about people not know the differences. People just assume it’s not really a big deal “like so what, u can’t have gluten”. They just don’t get how big of a scope the disease really is. Or how it effects the body. Kudos for u though. Keep putting the word out there. Educated is key to understanding and People shouldn’t have to suffer in silence to make others feel ok.

[@ssg8051]

This is an excellent video, Michel, thank you. Last December I became deadly ill. Due to a lack of awareness and frankly sheer laziness of the local clinic staff, I was left to conduct my own research and ultimately diagnose myself with Crohn's (in February). I've since learned to create my own diet and lifestyle accordingly. I empathize totally with your experience. I am extremely diligent about taking care of myself. Now I cautiously and carefully experiment with adding food to my very restrictive diet. Even so, I know firsthand how chronic diseases like ours can mutate or simply switch up symptoms. Thus far I've been unable to travel beyond an hour round trip outing. Eating out isn't possible yet. Yet as I come up on the anniversary of the onset of my illness (at least at its more dire state), I am so grateful for how much my situation has improved. Thank you for sharing your own story here and hopefully enlightening others---especially so-called healthcare professionals. Cheers, Ardith

[@shelbyragland]

As a regular viewer, I appreciated and enjoyed this niche video.

[@LucyMiller]

Thank you for the advice and for sharing so much useful info on this. I’m seeing a doctor in a couple of days because I’ve recently experienced most of the symptoms of coeliac disease. I was quite scared for a while with how I was feeling and I wasn’t quite sure what it was exactly, but I’ve now sussed it out and your advice made me feel a lot better about going forward and how to control my diet from now on :)

[@saramerrick6841]

Hi Michel! I really appreciate your channel! And thanks for being brave and talking directly about your experience with auto immune disease. I did want to take a moment to leave a (hopefully constructive) comment: I have had autoimmune diseases for decades and just recently was diagnosed with my 3rd. None of mine are celiac's, so i'm sure that what you talked about here is well researched and applicable to your disease; but more generally I think auto immune diseases would better be defined as incurable disorders caused by genetic factors alone that create a defect in a person's immune response wherein that person's immune system (usually the T cells, from what I understand) are triggered to attack a specific group of body cells at the onset of a particular virus. I think the most important thing for people to understand about auto immune disorders is that those living with them did absolutely nothing to cause or earn them. I have type 1 diabetes (my first auto immune disease) and often run into responses like what you were talking about where people don't take my symptoms seriously or they start to assume things about my life style based on things they have read or seen about diabetes - for the most part when ads or other sources mention diabetes they are talking about type 2 which is NOT an auto immune disease and can often be cured through life style changes. Anywho, I empathize with so much that you said in this video and hope you know that you are not alone! I know how hard the hormonal side of auto immune diseases can be and want to encourage you: you make a difference and are such a ray of sunshine for so many people! Thanks for creating this little corner of the internet 😊

[@erinkelly8006]

Thank you for sharing your story!! My mother has had celiac disease since I was very young so I know how difficult it can be to live with. Also, long time viewer of your channel and I’m loving these more personal videos!

[@felicity.m92]

I just came across your video because I'm in the process of being diagnosed with celiac disease. Your explanation is so so helpful! Thank you.

[@suemacalpine7006]

You did a great job explaining things. Have you ever considered becoming a teacher? Thanks for being so candid. It was very helpful

[@nikkimac5528]

The hardest part for me is work functions and eating out. It’s a guarantee that I’m going to get sick, even if meal is “gluten free.” So then in my head I think that if I’m going to get sick anyway, I might as well eat whatever I want! What I need is Self-control!!! I think I’m still in the denial stage.

[@touchtext890]

I was diagnosed with CD at 21 last year and it has shaped my everyday life so much - thank you so much for this video! It helped me see myself through someone else's eyes :D

[@habibariad7983]

I was recently diagnosed as well and it's so interesting how different it is from person to person! I live in egypt which is medically less advanced and celiac is so unknown to most people that i can't even say oh I'm gluten intolerant (if i say celiac they could never know what that is) without needing to explain what that means. I am 17 and it was so amazing to finally know what it is that I have mainly because so much finally made sense to me! I understand what you mean by having different symptoms. Thank you so much for spreading the knowledge!

[@jankenaude]

First! Love you, Michel! 🤗. From South Africa x

[@richardhutton6324]

10/10 young lady, been coeliac for 26 years, here in the uk we have the coeliac society, who are very helpful for sufferers, check out rock'n' fish at manhatton beach, great place.

[@MinnieMoo48]

I have endometriosis and gluten intolerance. The bloating you are talking about is so real for those suffering from stomach or pelvic conditions. Also, people who are gluten intolerant may not be as sensitive to gluten as those with celiac's, but we can still get sick from it. I'm glad you shared a disclaimer about other conditions!

[@tracyeast3397]

This video came at the best time for me because I have been going thru the symptoms for years and they really haven't done much for me. I started tracking food on my own and about 6 months ago came to the conclusion that I was gluten sensitive and feel a lot better. I have just had a biopsy this week to see if it is celiac or not.

[@mewtal_bean_13]

Thank you for talking about Celiac Disease. It was very interesting. I don't have Celiac Disease, but at the age of 3 I was diagnosed with Lactose Intolerance and IBS. Then at the age of 7 I was diagnosed with High Fructose and Corn Syrup Intolerance. Thankfully I "Grew" out of my intolerance's, but I still have IBS. I'm not trying to compare with what you went through but I understand the diet thing because I went through something kind of similar. I would love to learn more though about other dietary diseases.

[@morgan.a.mcneill]

I'm currently pretty sick + so fed up + frustrated. I have so many of the symptoms of celiac + emailed my gastroenterologist to talk about hopefully getting a biopsy done. it's scary to think about having it done with the virus still being a huge issue but I'm so desperate for answers. thanks for this video, it's extremely helpful. may God continue to bless you.

[@MatteaHenderson]

Today is actually six months after my diagnosis, it's still crazy that people are not aware of what celiac is or how it changes peoples lives if they don't know they have it, verses when they change their lifestyle! Thank you so much for sharing!

[@moneymanusa7]

Did it cause you to loose weight?

[@gracerogers5000]

This was super interesting to watch! I don’t have celiac disease but I have family with autoimmune diseases as well. Definitely nice to see someone talking about it 😊

[@debiogle3798]

Our grandson, age 10, was just diagnosed w/celiac. Your symptoms are his. He told his momma that he was glad to hear there is a problem. Bc he thought he was just being a “slacker.” We all feel so bad for him bc we thought he was just being picky. He goes to a endro doctor soon. As his grandma I want to learn all I can.

[@MAbdu-np6gf]

Your positive mentality is so inspiring 💕

[@eliseb6315]

Did anyone else get an ad for a pasta maker from Phillips to make gluten free pasta 😹 ?

[@yuliyalyube]

Yes! 😂😂

[@zinzimashibini2949]

Yep

[@marilynsoto8617]

I would love to see you making gluten free cooking videos! My fiancé has celiac disease and I’ve been learning how to cook safe for him!

[@catherineespinoza4551]

Thank you for sharing all this valuable information. I learned a lot of new things today through your video. I love watching all your videos. God bless you Michel ♡

[@lukechapman7037]

I got diagnosed with coeliac disease earlier this year after struggling with stomach issues for so many years and constantly going to the doctors complaining of belly pain and other issues. Listening to your story made me reflect on mine and I had a lot of the same issues that you had but the doctors never took it seriously now because they didn’t take the necessary steps it means I have complications from it with me having issues with the nerves in my stomach and first stage osteoporosis.

[@juliannahollopeter9484]

I am loving your channel! You are so down to earth. I never comment but I was pretty early to today's video :)

[@Nevermorenest]

Thanks so much for this video!! It was super informative. I got the diagnosis 3 weeks ago so been enjoying to hear everyones stories to see if I could find anyone with a story similar to mine!

[@rlgunnoe]

Thank you for sharing your story. I do not have Celiac, but I am gluten sensitive. I have Psoriasis and Psoriatic Arthritis and find that gluten is a huge trigger. It is hard to take care of yourself, when you have a family to take care of also. During the pandemic I have slipped into eating more than I did and definitely having arthritic pain and skin flair's because of it. As I get older, I have found that I am lactose intolerant, also. You are very correct that need to eliminate all those foods that cause inflammatory responses. You have inspired me to start taking better care of me.

[@reiofsunshine]

I’m glad you mentioned the Low FODMAP diet. Which shows how educated you are about the gluten subject.

[@julie2643]

Another Celiac/ gluten free video. Newly diagnosed and need pointers!! Thx

[@ruthgoddard6539]

My cousuns daughter has this and she had gotton so sick. Every once in a while she has a really bad episode. So glad to l e arn more about it

[@roccocharlieoreo]

Omg this video is so relatable and well explained. Thank you ❤️

[@starryky8823]

wow almost 40k subscribers!! congrats

[@kaiwelch9383]

Im currently going through my diagnosis had the camera done but my sample hasnt come back been told i will need more tests maybe so can't wait to finish this video and see what i got to look forward too

[@farah3541]

My 10 year old daughter diagnosed 6months ago. We are going so much to adjust.

[@NevyardVlogs]

Great job being a voice for celiac sufferers! Id love to see more cooking videos like what you started your channel with.

[@takemehigher3637]

Loved that you shared your story! I also live with this and my symptoms have been evolving over the last couple years.

[@mariyaBozh]

That was super informative, can you do something similar for your lactose intolerance?

[@alexa6260]

Omg thanks for making this video. I’m going through this

[@korneliacevasco9939]

In the last 25 years at lot has been done in nutrition. I remember my cousin visiting from Germany with her boyfriend who had celiac disease. The selection in food was awful .Since then luckily a lot changed . They use to do biopsies of the small intestines in babies/ children did not gain weight . One thing I want to say to take the fear away - an endoscopy or colonoscopy does not hurt - it’s an outpatient procedure . I also have an autoimmune illness and that Michel raised some flags for me.I almost every time I have a check up , my ANA is elevated . Apparently I do not have Lupus but inflammatory joint disease. But I do not have an elevated rheumatoid factor . I have so days where I am very tired and achy and also feel feverish. My question- some physicians say I have IBS and some don’t. It’s one of those symptoms which can not be tested for .May be you are up to date with some new research.Thanks

[@rheakalivas7036]

My mom does not have Celiac disease but does have a gluten intolerance. She eats healthy anyways but always jokes that because she can't have carbs (bread,pasta,cookies etc.) she's way healthier than she would be if she could eat gluten!

[@miashumway4070]

This is my favorite video! Thank you thank you for helping spread awareness about Celiac! More videos would be awesome, even just some of your favorite safe recipes!

[@AlisonBurtt]

This was so interesting! I learned a lot. Thank you for sharing so generously with us 😊

[@yuliyalyube]

Thanks for sharing about it!

[@lauraelisee]

I’m not comparing veganism to celiac’s at all but I definitely think a lot of the things you said at the end I can relate to. It forces me to eat healthier (most of the time) and I do feel awkward sometimes. But again, I am not comparing AT ALL to your medical condition because I won’t get sick if I accidentally eat something in the same way. But I think it’s great to spread awareness about dietary differences and health ♥️

[@clairealpes4244]

Thank you for making this video: one of my sisters has celiac disease and it first manifested itself in the same way it did to you (losing so much weight whilst having a huge belly), only she was 7 at the time and it was the beginning of the nineties, a time when celiac disease was absolutely not on the radar so she was misdiagnosed. Then she was correctly diagnosed at age 19 when she appeared to be completely anemic: one of our uncles had be diagnosed earlier that year and that is what pointed to running the tests on her (as you said: celiac disease is genetic so it is likely that this will pop up randomly amongst members of the same family).

[@arieltims8748]

I feel like finding out I have celiacs has depressed me. I feel like it’s all people wanna talk about to me and won’t invite me to anything because I can’t eat. But I do find it’s forced me to make my own food and not eat out. Also making me more healthy. I just hope it gets easier.

[@mcwmulkens]

My grandmother, my cousin (same bloodline) and one of my best friends, all have celiac disease. Oh and a co-worker, as well. My grandmother and co-worker got it a a later stage, my best friend and cousin were born with it. So, long story short, I'm pretty well trained in reading labels and making dishes without gluten. When I was young, there was no internet, so we had to check in a book whether a product had gluten or not, because it was not required that every ingredient was labelled yet... It is way easier now, luckily! But also, finding almond flour for instance is available in the supermarket, you can just buy bread now at the supermarket, instead of all the home baking my family had to do when they were younger... I'm glad it has made it easier over time :) Going out to dinner was always just chinese food, because they had a couple dishes that used the right products! Haha. Also way easier now :) My local bagelplace even has a glutenfree bagel, so much fun to take grandma out for lunch! (I'm from The Netherlands, fyi)

[@yuliyalyube]

Yay for 40K subs!!! 🎉🎉

[@nathyalexz]

I believe that I have celiac disease. I have all the symptoms, bloating, body aches, tiredness, mood swings, moments of depression, gastrointestinal problems. unfortunately my blood tests were also negative. And The doctor said that for The test works I have to eat gluten for at least 90 days, and I realy don't want to because makes me very sick. But I do really want The diagnoses.

[@b.995]

My 3 year old daughter is being evaluated for celiac disease. She just had a EGD with biopsies and her labs showed very high levels of gluten antibodies and low IgA. My husband also had ALL the symptoms you mentioned!! He was constantly sick as a child! Now he will be getting tested. My daughters deamidated gliadin IgG was over 201 (normal is less than 10), and we rarely eat gluten so that was surprising. The GI doctor said she can see signs of celiac dx in the small bowel.

[@steppeeaglefarm166]

I have very unusual question. How did this effect your relationship. My girlfriend became depressed , agitated and apparently at times angry on very minor issues. Small minor things would trigger her off. If she forgot a charger or wallet she would burst into tears how was emotional well being. With your partner parents or loved one

[@lisafadden3109]

What you have with the burning and blisters is called dh (dermatitis herpetiformis) its a autoimmune disease which normally comes with celiac disease. Gluten causes the blisters so must be avoided. Iodine also will make blisters appear as well. Iodized salt sea salt even eggs can make the bliters come. That also is the burning feeling it normally comes before the blisters. Hope this helps.