Cerebellar Stroke

[@fuzzybug29]

Thank you so much Dr. Sullivan! I am recovering from a cerebellar stroke. What you describe in this video is exactly what I have experienced. It’s nice to have it explained and to understand how everything fits together. Im only 42 and in great health. Recovery is going good. Hoping whatever caused it can be fixed. Thank you for this informative video.

[@amahra100]

thank you so much. almost a year after my cerebellum stroke you've told me a lot more than my therapists and my doctors. here, I thought something was wrong with me because I'm not better after nearly a year.

[@LeonWolney]

I had a stroke on 11/28/2022 and everything u talked about is so true,I'm still having a lot of problems,I'm really off balance to where I run into the corner of walls and sometimes start to fall backwards when going up my back steps,my left arm has those really bad trimmers to where everything I try and do with my left arm,either tears something up or I hurt myself when it jumps out and hits stuff and now im having relationship problems with my childhood love,im gonna try and get her to watch your video so she has a better understanding on what i go through everyday.this has turned my life upside down,i get depressed alot and don't know how yo deal with it,thank u in so many ways for being there for ppl like me,God bless u for being who u are,u are blessed and thank u from Leon in Louisville,Kentucky

[@conniegraham1614]

I am 63 and had a left cerebellar stroke in January 2024. I lost control of the left side of my body. I had double vision as well. Within 20 minutes I was in the emergency room and lost ability to make sense. Slurred language. After about 12 hours I could talk again and after that my vision was restored. I am very fit and was preparing for a weight lifting bikini contest. 10 days later I was back in the gym. Working on my fine motor skills was challenging. Balance continues to be a challenge. The part where you were talking about the eye head turning was spot on for me!! What more can I be doing? Going shopping is scary by myself. Being in large rooms is tricky and scary. It almost feels like I will be passing out. Please let me know how I can contact you and what more I can do!

[@nataliefitzpatrick]

I’ve recently recovered from a cerebellar stroke at 25. This is wildly fascinating to learn more about and I truly hope it never happens again

[@daveonyoutube3374]

What we’re your main symptoms? Mine are dizzyness with turning left was right as well but that seems better now. And I have double vision

[@MarlinaPerkins]

Thank you for explaining this in an easy to understand manner. I just had a cerebellar stroke a few days ago - June 25, 2024 - & was discharged from hospital 36hrs ago. Great suggestions! Many thanks!

[@deborahherren9208]

2.5 years out after a left Cerebellar stroke. I had 2 weeks of inpatient rehab then 6 weeks outpatient and was walking independently by the end of that. I was still a little unsteady gait when looking one direction- I veered in that direction. After 18 months I asked for vestibular therapy and did that for 6 weeks and I feel it did help. Informative lecture since my neurologist told my husband when I was still on walker, how long til I would be back to normal. His response was never- that part of my brain was “dead”. Now Im driving, very minimal unsteady gait. Mainly looking up or down or side to side too fast- I get dizzy. Glad to know I will continue to get better! Thanks!

[@smca7271]

great to know 8 mths for me from left cerebellum tumor ...don't drive, more cause don't trust my decision making...still unbalanced and feel drunk, but your story gives hope.

[@brittanychance639]

Bless you for sharing your recovery it gives me hope

[@m.hansen7189]

Thank you! You confirmed my after effects of cerebellum stroke. Tremor in certain movements and walking. Cognitive effects being real. I just wish my family and friends understood . Education is the key! Again thank you.

[@jasperzabnet]

I got miss diagnosed 4 months ago. I am 53. I had dizzy and vertigo symptoms and low blood pressure. I also developed tinnitus which i still have 4 months later. I was taken to hospital and got told i had Labrynthitis. I was sent home without an MRI being done as one Dr booked me in for one whilst in hospital only to get it cancelled by another Dr. It was only when i got refered to an ENT specialist 6 weeks ago that he got me to have an MRI scan that they found a small stroke on the left of my cerrebellar. I have mainly had balance problems but they are slowly improving😊 They are doing lots more tests on my heart to see if they can find out why i had it and i have been prescribed medication. I was very lucky that it was not a lot worse but it has been a very traumatic time but you can improve over time and work. I found loads of balance exercises on KZbin which have helped loads. Also get out and walk if possible. Best treatment you can do ❤

[@NYDBLoCK]

You mind sharing which balance exercise you did? right now I am stuck on heel to toe

[@daveonyoutube3374]

@@NYDBLoCKany luck

[@NYDBLoCK]

@@daveonyoutube3374 Balance is a bit improved but it's still a W.I.P.

[@AP-mw1wo]

My husband (age 55) had a left cerebellar strroke a few weeks ago. It has been a very challenging time for us. He is recovering very well physically with major movements however this has been very helpful to understand much more. Thank you so much for this information!!

[@Crystalquartz964]

My son is 40 and hadc2 cerebellar strokes last week, he's still in hospital but making progress

[@biancar.5545]

This is all so helpful and I wish I had know this when I first started my rehab journey. Even if I would not have been able to capture all the details I would have absolutely appreciated knowing that I was not making up all my non motor function issues that still continue 3 years later. Hope to learn more as I have unfortunately had stokes affecting all 4 major regions and still do not know what my be impacted by injuries. Thank you for sharing your knowledge!

[@Divchyk]

I am so moved and inspired by your lecture! Today I had a conversation with the specialist who told me that I did have a cerebellar stroke based on my CT scan results. I had an absolutely horrible episode of my life that started on January 5th with all the symptoms you have described here: horrible vertigo (helicopters), violent vomiting, headache, speech impairment, coordination of limbs impairment. The only "classical" symptom of a stroke that was not present according to an emergency team that arrived to my place - I did not have droopy face...So, they thought I simply had a high blood pressure and migraine. They gave me a gravel shot so I could keep down blood pressure medication...My symptoms of vertigo and severe headache lasted for 2 weeks. I insisted on testing for stroke, as my family doctor thought I was too young for it, I also started taking 1 aspirin a day on the 2nd day of the episode, as I had a suspicion that was not a migraine. I am having trouble with finding words now, short-term memory, concentration, I am bumping into things with my left shoulder, I drop or knock things, which is not normal for me at all, and there has been change in my personality...This morning I am going for an MRI. Please keep sharing your knowledge. I am wishing you strong health and happy life!

[@smca7271]

things do get better...can relate to memory probs and speech...but once the dizzy spinning thing goes,life is better...

[@carolynlaborde3835]

Thank you so very much! I had a cerebellum stroke a year ago and this is the first time that i have had any clear information on exactly what happened and exactly what I needed going forward. Thank you so much!

[@icareforyourbrainwithdr.su7103]

I can't tell you how often I hear that! It's not right!

[@carolynlaborde3835]

@@icareforyourbrainwithdr.su7103 I live in Dayton, Texas and am wondering if you might have any suggestions for medical services in this area. I am not satisfied with the services i have now.

[@dawnga2822]

This lady is well studied.

[@meganmclenithan993]

I am so thankful I found this video! I have looked everywhere (it seems) to help explain what I have been going through. It’s hard to explain to my friends and family what’s happening now, but this video allows my support system to understand what’s going on. So thank you.

[@ShirleyDietz-v2f]

Thank you! You have explained my stroke, emotions, and recovery in a way that helped me more than you know. It’s hard to explain and understand myself, much less trying to explain to others. I am going to refer friends and family to this video!

[@icareforyourbrainwithdr.su7103]

@@ShirleyDietz-v2f you’ve made my day! Thank you for sharing your reaction :-)

[@t-boneproductions3108]

This is a wonderful and informative video. Like many of the posts here, I too suffered a cerebellar stroke. Was a young, healthy and fit guy but had a hole in my heart. Woke up with terrible headache and super dizzy. Left cerebellum was affected and I can relate to the cognitive difficulties. Neurologist said these issues are likely due to anxiety as the cerebellum isn't associated with cognition. Through videos like this and other research we understand much more now. Best wishes to all those recovering, anything is possible!! Tom, 36, Ireland

[@smca7271]

most docs are not a lot of help...I have left cerebellum problem , and I am surprised at the speech and cognitive problems vs coordination

[@franciscoballesteros2059]

Please drink and take 1 tsp. of moringa powder for 1 week then 2 tsp. after 2nd weeks for absorption of nutrients in your body and cleaned the arteries together with morning or noontime sunshine for at least 30 minutes of vitamin d3 and that is the only effective proven natural solution for stroke patient and and can cure 300 kinds of illness and it was already a scientific study since ancient times. IN THE OF JESUS CHRIST PLEASE HEAL US.

[@mvwildhoney]

Hello, I'm currently in the hospital in okinawa while in vacation visiting my daughter and fiance, surprisingly to me, I had a stroke in the cerebellum, and it happened as you mentioned thinking it was a mixture of Melatonin with rice wine ( I never drink) so I thought that was what it was happening to me finally the pain became unbelievable and I was transported to a military base hospital where I had the biggest scare of my life, talking about draining my brain after the scan and resuscitation permission, also the fact that I am a foreigner weather ir not they can help me there due to the limitations if the hospital, and also if any hospital in japan will take my case. There was even talked about transporting me to Hawaii in a helicopter to a better navy hospital there if they would not take me here in Okinawa. I finally was accepted in a hospital where they continue running test and determined that surgery is not necessary. Unable to communicate due to the barriers of language and uncertain of my future They say I can not flight back home I'm from California They say I need therapy......... I may not be able to walk properly, etc, etc.......... Still as I write this going through the whole process It's been scary, uncertain, but I am assuming grateful for being able to write this...... for being alive..... .Thank you, and I will write again.

[@alesca]

Checking in to see how you are. I hope you are doing well?

[@damescholar]

Thank you so much! Cerebellar strokes are so rarely discussed that this was a treat. I suffer from vestibular migraine that started 7 years ago (I am 65 now). Before I have had an aura migraine from my twenties on, no headache but 40 minutes of zigzag aura (both eyes) with a disoriented feeling 2-3 times a year. But these attacks of VM have been very bad. Terrible vertigo, nausea, vomiting, light and sound sensitivity, and after the vertigo/vomiting stops a crashing headache. Afterwards it feels as if my brain had been shaken in some kind of a centrifuge and I am completely exhausted. These attacks are surrounded by days with dizzy spells, bad sleep, funny feeling and pressure in my brain, headaches and auras. The trigger can be motion sickness which starts the dizzy spells, or stress, or irregular sleep, but the immediate trigger is the screen of the laptop which clicks on the main great attack lasting 6-8 hours. Luckily these 2-3 week periods come only once a year but the are bad. After a very bad period I went to see a neurologist who ordered a MRI. Some interesting finds there. A rare arterial anomaly in my cerebellum (persistent trigeminal artery = PTA) and a mark of a small stroke in the right posterior part of the cerebellum. I am otherwise healthy (a good heart, veins, lungs, blood panel) but this brain scan worried my doctor. What caused the stroke? The migraine or the PTA? Why it went unnoticed? There have not been any consequences - except some difficulty in finding the right word lately. This is strange because I am a writer, using words is my profession. There should be much more research on the cerebellar infarcts.

[@bettierusso5410]

Just had a Brain MRI that showed " multiple chronic cerebellar infarcts". I have been battling to get any medical professional to actually do something. I luckily have great insurance and finally got the MRI after the ENT told me "It is not your ears, it is your Brain!" I lost 58% of my hearing. Everything sounds like I am underwater and muffled. I have cervical stenosis in all vertebrae with cord compression. I have a history years ago of an MRI with MRA that showed an incomplete circle of wills, hypoplastic transverse sinus, and an avm behind one eye. I asked to have another study of the vessels done because of my insanely high BP and now the dizziness and vertigo. They did a regular MRI but refused to do the arteriogram with it while I was out. You mention a team approach? Right. In reality ( especially in the Northwest) that is not happening. As a pt that really DOES have something wrong, you have to PUSH and FIGHT to get them to do anything. Thank you for your informative video. God Bless You.

[@judithwake2757]

Fantastic ! I LOVE it when experts take charge and speak out about their expertise ! We average people seldom have access to science based detailed information relayed to us in basic english that doesn't have a political bent. It's very frustrating to GLEAN information from news agencies and other condescending sources !

[@vigaytan]

I had a cerebellum left stroke and had a craniotomy. I also a spinal cord injury. I am Working on it everyday. This was very informative. I'm glad I found something that helps me understand this better.

[@jacquelinereichenbach1647]

I learned more viewing this video today than I learned from my four neurologists & neuro surgeon. At age 55, I had a left anterior cerebellar stroke diagnosed in the ER in Nov 2020 after several weeks of sharing my concerns with PCP of ataxia, balance issues, falling, spatial concerns, gait abnormality, peripheral vision reactions, headaches, dizziness, vertigo, speech fragmentation, severe mood swings, memory and confusion, cognition concerns, & myotis. After months of appts with specialists was also diagnosed with anti phospholipid syndrome, C5&6 bulging disks & L3 compression fracture from falls, cervical hemangioblastoma, mild spinal stenosis, cerebellar cognitive affective syndrome, PTSD, & 2 additional cerebellar lesions, but not coagulation. It was scary, frustrating and life changing. Advocating for yourself when experiencing these limitations is not easy & the disability process is super frustrating. I’m grateful I found your videos. Thank you!

[@anafalcon1416]

Hi Jacqueline. My stepdad just had a cerebellar Stroke a few months ago. Was wondering how you or your doctors helped you with the Headaches , dizziness and vertigo ? That has been the worst part of his stroke. And is causing issues with his nutrition. Thank you Ana

[@davidmaeder651]

I had a cerebellar stroke on my vermis in March 2014. Then my Dr put a scopolamine patch on me for two years and went crazy. Iwas put in a medical coma for three weeks. I had to learn to walk and eat again. I was in a wheelchair for 6 months, but i started training and now can walk without assistance. Long road. Took me a few years to right my life but I still get uncontrollable mood swings Thanks for doing this.

[@BettyJC2010]

I've had a problem with denial, because I was bitten by a tick, and the neurologists couldn't find a stroke. but two years later I was told why it didn't show up. so im just now after two years accepting that I did have a stroke, and after watching many videos on the cerebellum stroke , I now remember having an extremely bad headline, so I think that's when it happened. I had speach therapy, and physical therapy several times. and have been recovering slowly, but still have a ways to go with speach and motor skills. but I have never completely lost hope, but have went through lots of emotions. I'm sure I would have never came this far without God, I've leaned on him and cried out too him more times THAN I CAN COUNT . I think the hardest part is speaking and communicating with family and friends, most never call me anymore and it makes me sad.

[@davechandradasa6130]

Hi great video. I had a cerebellar stroke on the 2nd Feb 2018. I had a headache (Not had one before) difficult to get my head up and limbs not in control. Ct scan did not show clot , but MRI showed clot on right side cerebellar. Right limbs had issues with movement . 27th March balance and running 95% back, learning to write and as you said right arm is jerky. Around mid March had sudden crying and sometimes laughing. I have labelled this emotion 2 (Uncontrollable emotion) . Normal emotion after a stroke I understand. By talking about emotion 2 , it helps. You video helped . Note the reason for the stroke is due to sticky blood (APS) . I am doing rehab for physical issues and trying problem solving which causes head to be tight. Thanks again , based in UK aged 53

[@deborahmccall873]

Hi Having a very hard time emotionally with all of this although very grateful for this site. Had cerebellar infarct July 2019. Did you feel that you let your love ones down? I've always been the rock..constantly apologizing is becoming a habit..your symptoms are similar..... the tightness was happening before...but the stroke is a nightmare that has left me like a lion ready to pounce...i am no longer submissive. It felt sooo hard to hang on from the magnetic force per se that was spinning and sucking out my very soul backwards forcing me to scream with frozen veins and nausea....treated for vertigo..missed out almost 6 hours for needle ..site inoperable. 53.yrs. no more visses 🍸hope you keep a journal 😇

[@erincarroll1137]

Great info! I had a left hemisphere cerebellar stroke 3 years ago. It left me with encephalomalacia. It’s been an interesting recovery process. Nice to finally see some information coming out.

[@brstarwarseua]

Thank you so much for this video. It’s been a month since I had a cerebellar stroke and it’s been a struggle to explain the symptoms I still have. The motion sensitivity, constant headaches (which I never had before), mood swings, sensitivity to noises and crowds, etc. I hope there’s a way to come back from this.

[@angelayan8712]

This has been the most educational video and info i have gotten since i was discharged from the hospital. I cried all day yesterday along with vertigo. Thought i was going crazy. Thanks for such a great lecture.

[@stpetie7686]

Thank you Dr. Sullivan. I had a cerebellar stroke 3 years ago and have had very few noticeable issues. However, your lecture made me realize that there were in fact problems I had just not attributed to the stroke. I learned more in the past hour than I have in the previous 3 years.

[@tonyaherbie]

Fxf dt

[@2ubester2]

I always feel better after having learned more about my condition. not much is known or taught to me about this. Thank you.

[@macbailey3307]

My wife of only 3 months suffered a cerebellar stroke almost a year ago, it was a dual stroke (both the left and right side impacted), she has accomplished so much since the stroke..I am so proud of her. She went to all her appointments (OT/PT, Vision, Stroke Doctor and therapy), she was determined to get back to the person she was before the stroke. My wife had the support of family and friends, myself, my sister and my mother took her to appointments so that she could focus on herself getting better. My wife at times will cry, get very upset for no reason, she takes a nap almost daily. She feels bad because of it, I know she needs to do a brain dump each day to allow herself to not be overloaded, I just want her to be herself and not worry about anything. She has been back to work for almost 2 months, she started part for a month, she struggles some days, most are good. She is amazing, never giving up, continuing the fight back and be herself again. Thank you for the sharing this video, her doctor said the same things you said, you confirmed so much in the video. We do not know what caused the stroke, A-fib is possible, she has a heat monitor in her chest now, only 1 A-fib has happened since the stroke. Thanks again for sharing.

[@user-oh7iv3ij5x]

Good man hope your wife continues to get back to normal good luck

[@rebecaatrian6262]

Was she in the icu ? Did she have surgery? My mother just had this stroke and now fighting for her life in the icu

[@user-oh7iv3ij5x]

@@rebecaatrian6262 Rebeca Hope you Mum improves I did, I was in ICU and had surgery 7 years ago. Mine was a brain haemorrhage she’s in the best hands take care X

[@keyryrodriguez6201]

Thank you so much for this video. My symptoms now make sense prior to my stroke. Very educational! Thank you for taking the time to share your knowledge with us!

[@gundulaperry8738]

Awesome. I had a Cerebellar Stroke due to side effect of prescribed medication. It is almost a year now. Luckily I was pretty fit and always had a good exercise routine. I have come a long way since and will keep doing my rehab and my exercises at home. You give me hope that I might recover fully. I also started to study Neuroplasticidy. I love your talks and share them. Regards from Namibia.

[@joecarter318]

God Bless you you dear woman. I have learned soo much from your lectures about my stroke and how to care for my brain health.

[@anomlee3863]

I just had a cerebellum stroke week and this is the best information I got.😊😂❤

[@PeterSmith-u4b]

Thank you so VERY much! Your presentation was very thorough, clearly explained and therefore so encouraging as I wonder how to improve my situation following a small cerebellar stroke.

[@oscargarcia6831]

❤I do love your presentation something that I never heard about it but explains to me my situation with vertigo and dizziness I have several years with the situation I am in physical therapist and waiting for my appointment of neurologist but my hair is unstable like a taxi but what you explain is the situation that I have the MRI shows parietal atrophy both sides but I feel my brain shaking like when you are in high speed I do not watch television I feel dizzy because the movements but thanks very much for your superlative work 😅😅😅😅😅😅

[@ohmeowzer1]

I had a cerebellar stroke 4 months ago when my mom died ...i became very dizzy and nauseated couldn’t walk and I just thought it was just a dizzy spell ...I was on dx last week ,,I’m a nurse I don’t go to the ER easily but it just never went away ...I’m a old lady of 56 ..and was just dx ,,,thank you for the video ,,,

[@MultiStats]

Hello, Dr. Sullivan! I appreciate the information and your bluntness about pharmaceuticals and brain supplements. I had an AVM on my cerebellum 12 years ago. Until hearing this, I had never connected the off-set vision with my stroke. My eye doctor was suggesting PRISM glasses, but I had never gotten them. I can certainly vouch for the emotion. I can make myself cry now, and movies and TV shows can make me cry. Thank you, and I will now subscribe.

[@chodeyscott7944]

I had a occipital lobe and cerebellar stroke. I’m 42. Had symptoms that were misdiagnosed for months by various doctors. I’m always becoming enraged quickly now.

[@Felix-g8e3o]

Thanks for excellent presentation. Terms anatomy help easy to understand, symptoms well differentiated as well as prognosis. Simplicity makes complicated seems simple and hopeful.

[@dayanaborja28]

Very educational video. Has helped me understand cerebellum strokes as a whole. Also, thank you to people sharing their personal stories about their injuries, it gives a very helpful insight. God bless!

[@melbel7891]

Thank you for this, yes very motivating for me and as a Rehab Nurse for my patients. Most of my patients are geriatric and stroke patients and I always want to give them the best care possible. I will share this with many of my colleagues.

[@BettyJC2010]

thank you for the hope that I found as I listened to you. you have helped me too understand more than anyone. I had IVIG INFUSIONS 5 times, that has helped greatly with energy. God bless you!

[@angelayan8712]

I am one month post cerebellum stroke. Any advice would be great. The vertigo is no joke. I can walk and talk but the dizziness is awful.

[@davidhamilton1124]

Patience and understanding from yourself and your family! I suffered 3 cerebellar strokes, the last 2, 14 years ago this month. They were multi-focal and effected the posterior region of both sides of my cerebellum. I had many symptoms that were mentioned by the doctor. I made vast improvements for the first 6 months, then improvements slowed down but continued for several years and either went away or I learned to adapt to them. Walking improved quickly within 6 months. I went from wheelchair to walker, then to rollator, next cane, and finally unaided most of the time. Uneven walking surfaces and when I am tired make my balance issues worse to this very day. My balance and dizziness issues went away within several months when seated while riding in a wheelchair or electric mobility cart, driving a car and even my motorcycle. I think the dizziness occurred do to my visual problems like tunnel vision and loss of peripheral vision that improved over time. My tunnel vision went away after about a month. I could only walk a few feet, with my legs wide spread wide apart at first. I had some Nordic type walking/hiking poles that I took out from my closet and practiced walking with. I quickly made a few hundred feet to the mailbox and back. Then around the block, eventually would walk for an hour every night. Sometimes past the hospital where I was treated. I would stop and look up at my old room reflecting upon, and thankful for how far I had come. I still walk using my "ski poles." The constant repetative movement seemed to improve my balance and confidence while walking! I am still amazed at how the average person walks here and there so smoothly and effortlessly! Swimming and walking in a swimming pool was also of great benefit to me! I felt like "normal" in the water and didn't have to worry about balance and the weakness that effected both sides of my body. As I improved, so did/does my happiness! My daughter turned 3 the month after my stroked. She taught me how to enjoy the simple things in life and how to laugh and act silly again! She taught me how to interact with people, with whom I wanted very little to do with initially! I learned to avoid people that acted like I only had something as simple as a cold and to "get over it already!" Surround yourself with positive people that love, understand, and support you. Find a hobby or activity that you enjoy doing. It will help with mental and depending on the activity, maybe even physical rehab! My strokes may have slowed me down for a while, but only temporarily! I am now stronger and better in many ways than ever! But I probably will never become a tightrope walker... good excuse, because I don't like heights! Good luck to you and the other stroke patients and family here! Stay healthy and strong!

[@davidhamilton1124]

You Will Get Better it just takes a little time, patience, and effort! Trust me, I know from my experience and that of some of my friends who also suffered strokes!

[@angelayan8712]

David Hamilton Thank you so much for sharing as I recently had a set back. It was 3 months ago since I had my stroke and I was seeing the silver lining because o moved on to 5th week without a cane. Then I had a long day, car ride, Dept stores and I was dizzy for a week and still not back to where I was at. This is the strangest thing. My doctors had such confidence that I can go back to work in 6 months since my stroke. I still can’t drive a car not alone work as a nurse saving lives. I was saddened to know if I could hike and walk for long periods again. Thanks for sharing the water experience, I do feel good in a pool and drove a wave runner when I was feeling really good a month ago. Now I am afraid to work my brain too much

[@saragauthier7429]

I am so sorry. You will get better. Make sure you’ve got some ondansetron. That did help me. Also, my dizziness was always worse when I was tired. I got tired from everything I did, so sleeping a lot and scheduling rest time is the way to go. I literally wasn’t even able to walk by myself and now I can go hiking. Give yourself time and be patient. Do your pt and only think pleasant thoughts if you can. Even stress made me dizzy

[@Grace.allovertheplace]

⁠ Hi, this is my story: I had a stroke in my left side cerebellum when I was 29y/o. & for whatever reasons it took 10 years before I was told about it. I was permitted to both the neurological team and the cardiologist team who both through a duration of 3 months conducted 4 tests each; for example ultrasound on my heart where they found a foramen ovale/an open hole in my heart, (it’s there to provide blood supply when we’re in our mothers womb , apparently it’s a rather common condition from what I was told and 1/4 adults in the whole world has this condition in various degrees, it’s the correlation between this and getting a stroke in the left (?) side cerebellum in my case this wasn’t the reason though.) I was also scanned with,- and without contrast to see how my blood vessels in my neck and in my brain was and the conclusion was that my vessels were as good as if I was still 25 y/o! So after they’d done all the tests they had a conference and they concluded my stroke in my left side cerebellum was due to severe trauma either during surgery or right before surgery (I had to do a hysterectomy, and a month after that I’d a severe rupture inside my stomach and the protective layer over the bowels departed and literally fell out from my “V”, it was terribly painful they had to do a recession, and then exactly one month after the first complications happened, the same thing happened again, i.e. I burst inside the abdomen, but this time nothing fell out, but I collapsed in our bathroom floor and my fiancé couldn’t find my pulse anywhere nor could he feel me breathing when the ambulance arrived it took me a +25 minutes before I came to, so to speak, and during this surgery the operating doctor missed that I had pus in my entire abdomen🤯 (ie peritonitis) so they just sewed me up without opening me up so to speak,and after I woke up and got to the ward I suddenly got high fever and the chills and I don’t have any memory of when I was rushed down to the urgent surgery again, but I was informed afterwards that they’d opened me up and "vacuumed” up all of the pus I’d in my abdomen.) = So back to the conference late 2022, this was the cardiologist and neurologist best guess for when I’d got my stroke in my left side cerebellum!! Respectfully, Grace 🩰🙏

[@smca7271]

excellent information...would have loved it 8mths ago when my problem started...great of you to share.

[@cherwonful]

thank I'm watching this now from Vancouver Canada . WALLENBERG SYNDROME STROKE JAN13TH 2018

[@sollanek]

I have to say I thought I had vertigo. It just got steadlily worse. My husband after a week dragged me to urgent care. Hillsboro Healthcare Center in Or. They performed 3 CT Scans with and without contrast. They also did an MRI an echo cardiogram and an ekg. Also an xray. They did narrow it down to a left cellebellum stroke. My heart is good so it didn't start there. They most likely think it was caused by chronic hypertension. I'm right handed so I'm very fortunate it wasn't worse. I don't have slurred speech just a bit woobly on my left side. Thank you for this video it explains a lot.

[@Grace.allovertheplace]

Hi, I had a stroke in my left side cerebellum when I was 29y/o. & for whatever reasons it took 10 years before I was told about it. I was permitted to both the neurological team and the cardiologist team who both through a duration of 3 months conducted 4 tests each; for example ultrasound on my heart where they found a foramen ovale/an open hole in my heart, (it’s there to provide blood supply when we’re in our mothers womb , apparently it’s a rather common condition from what I was told and 1/4 adults in the whole world has this condition in various degrees, it’s the correlation between this and getting a stroke in the left (?) side cerebellum in my case this wasn’t the reason though.) I was also scanned with,- and without contrast to see how my blood vessels in my neck and in my brain was and the conclusion was that my vessels were as good as if I was still 25 y/o! So after they’d done all the tests they had a conference and they concluded my stroke in my left side cerebellum was due to severe trauma either during surgery or right before surgery (I had to do a hysterectomy, and a month after that I’d a severe rupture inside my stomach and the protective layer over the bowels departed and literally fell out from my “V”, it was terribly painful they had to do a recession, and then exactly one month after the first complications happened, the same thing happened again, i.e. I burst inside the abdomen, but this time nothing fell out, but I collapsed in our bathroom floor and my fiancé couldn’t find my pulse anywhere nor could he feel me breathing when the ambulance arrived it took me a +25 minutes before I came to, so to speak, and during this surgery the operating doctor missed that I had pus in my entire abdomen🤯 (ie peritonitis) so they just sewed me up without opening me up so to speak,and after I woke up and got to the ward I suddenly got high fever and the chills and I don’t have any memory of when I was rushed down to the urgent surgery again, but I was informed afterwards that they’d opened me up and "vacuumed” up all of the pus I’d in my abdomen.) = So back to the conference late 2022, this was the cardiologist and neurologist best guess for when I’d got my stroke in my left side cerebellum!! Respectfully, Grace 🩰

[@icareforyourbrainwithdr.su7103]

You're welcome 😊

[@Grace.allovertheplace]

@@icareforyourbrainwithdr.su7103 Hi, this is my story: I had a stroke in my left side cerebellum when I was 29y/o. & for whatever reasons it took 10 years before I was told about it. I was permitted to both the neurological team and the cardiologist team who both through a duration of 3 months conducted 4 tests each; for example ultrasound on my heart where they found a foramen ovale/an open hole in my heart, (it’s there to provide blood supply when we’re in our mothers womb , apparently it’s a rather common condition from what I was told and 1/4 adults in the whole world has this condition in various degrees, it’s the correlation between this and getting a stroke in the left (?) side cerebellum in my case this wasn’t the reason though.) I was also scanned with,- and without contrast to see how my blood vessels in my neck and in my brain was and the conclusion was that my vessels were as good as if I was still 25 y/o! So after they’d done all the tests they had a conference and they concluded my stroke in my left side cerebellum was due to severe trauma either during surgery or right before surgery (I had to do a hysterectomy, and a month after that I’d a severe rupture inside my stomach and the protective layer over the bowels departed and literally fell out from my “V”, it was terribly painful they had to do a recession, and then exactly one month after the first complications happened, the same thing happened again, i.e. I burst inside the abdomen, but this time nothing fell out, but I collapsed in our bathroom floor and my fiancé couldn’t find my pulse anywhere nor could he feel me breathing when the ambulance arrived it took me a +25 minutes before I came to, so to speak, and during this surgery the operating doctor missed that I had pus in my entire abdomen🤯 (ie peritonitis) so they just sewed me up without opening me up so to speak,and after I woke up and got to the ward I suddenly got high fever and the chills and I don’t have any memory of when I was rushed down to the urgent surgery again, but I was informed afterwards that they’d opened me up and "vacuumed” up all of the pus I’d in my abdomen.) = So back to the conference late 2022, this was the cardiologist and neurologist best guess for when I’d got my stroke in my left side cerebellum!!

[@Grace.allovertheplace]

@@icareforyourbrainwithdr.su7103 4:43 Hi, I had a stroke in my left side cerebellum when I was 29y/o. & for whatever reasons it took 10 years before I was told about it. I was permitted to both the neurological team and the cardiologist team who both through a duration of 3 months conducted 4 tests each; for example ultrasound on my heart where they found a foramen ovale/an open hole in my heart, (it’s there to provide blood supply when we’re in our mothers womb , apparently it’s a rather common condition from what I was told and 1/4 adults in the whole world has this condition in various degrees, it’s the correlation between this and getting a stroke in the left (?) side cerebellum in my case this wasn’t the reason though.) I was also scanned with,- and without contrast to see how my blood vessels in my neck and in my brain was and the conclusion was that my vessels were as good as if I was still 25 y/o! So after they’d done all the tests they had a conference and they concluded my stroke in my left side cerebellum was due to severe trauma either during surgery or right before surgery (I had to do a hysterectomy, and a month after that I’d a severe rupture inside my stomach and the protective layer over the bowels departed and literally fell out from my “V”, it was terribly painful they had to do a recession, and then exactly one month after the first complications happened, the same thing happened again, i.e. I burst inside the abdomen, but this time nothing fell out, but I collapsed in our bathroom floor and my fiancé couldn’t find my pulse anywhere nor could he feel me breathing when the ambulance arrived it took me a +25 minutes before I came to, so to speak, and during this surgery the operating doctor missed that I had pus in my entire abdomen🤯 (ie peritonitis) so they just sewed me up without opening me up so to speak,and after I woke up and got to the ward I suddenly got high fever and the chills and I don’t have any memory of when I was rushed down to the urgent surgery again, but I was informed afterwards that they’d opened me up and "vacuumed” up all of the pus I’d in my abdomen.) = So back to the conference late 2022, this was the cardiologist and neurologist best guess for when I’d got my stroke in my left side cerebellum!! Respectfully, Grace 🩰🙏

[@Grace.allovertheplace]

@@icareforyourbrainwithdr.su7103can you see my story? I’ve posted it twice now beneath your comment (many thanks for answering me 🙏, I updated my comment and didn’t know you had already seen it and replied, I’m sorry but anyway if you don’t can’t see my reply beneath here, if you feel like please read my original comment and you will be able to read my story when I got a stroke in my left side cerebellum. Respectfully Grace 🩰

[@icareforyourbrainwithdr.su7103]

Dizziness is a common post-stroke complaint noted by as many as 80 percent of survivors after certain types of stroke. Learn what you can do for better coping with your episodes of dizziness. Check out Dr. Sullivan's article: Post-Stroke Dizziness: Why Is It Happening and What To Do About It www.icfyb.com/dizzy

[@valerieheginbotham5869]

0k

[@reneea6170]

Can you refer to a researcher in the Lexington, KY area, that are studying bilateral cerebellar strokes?

[@marylouvaldez4741]

This is the first time I see this video I want to share it with my sister since she doesn’t believe me how I feel. I had a PICA Cellebeller Stroke right side on 2019 and my 2nd Stroke was a left frontal lobe stroke. I get really bad pressure on my top of my right side of head or the front of my forehead down to the back of my right side neck kind of forming a 7 I get nauseated very often and dizzy also lose my balance if I’m walking with my cane now use to be in a wheelchair but really have to concentrate to walk but once someone happens to callls me and I happen to turn I lose my balance quickly the smell of the food at times makes me nauseated as well and I hear like bees squirming inside my brain or my head. I’m not sure if that’s the way you spell that word but I’m glad I found this video. I’m gonna start following you too so I can get some tips from you or from other people. And I used to be very healthy athletic I would lift weights was a bodybuilder I use to have a very muscular body would lift 190 pounds bench press would run every day. I’m 5’1 and I weigh 126 pounds and I’m 57 years old Now I lost all my muscle mass I’m lucky if I lift 2 pounds I’m able to sit straight before I use slide too the side my vision is so weird I see the cars in the road like if they coming towards me it’s so very hard to multitask. It’s so hard to spell words to add. I don’t even know how to give when they’re giving me my change when I’m buying something so I have to count it over and over I can’t. I cry and get depressed too much with any little thing. I just isolate myself in the house. I did therapy for the longest time. But if you see me, I look normal but if you see me walking, I look so different only wear sneakers. I used to wear a 6 inch heels all the time. I don’t even like to open my closet and see my shoes. I can’t wear them anymore I get so sad all the time I know that I do like I’m doing right now. I just do run on sentences on without any punctuation I don’t know how to spell I used to be very smart, especially mathematics I could easily do everything in my head now I can’t. I’m still learning how to read write walk drive . On this coming Friday 4/19/24 I will have a procedure done PFO closure because I have a positive bubble test. My cardiologist think that’s why I had the strokes. The doctor even said that might stop my headaches. My neurologist gave me medication for migraines. I don’t have migraines never have my sister does. I know how she gets . Many people misinterpret my situation.

[@icareforyourbrainwithdr.su7103]

Best of luck with everything you have going on. Im glad you are here and advocating for yourself!

[@cheripaterson7840]

GREAT SHOW!!! LOT'S INFORMATION DR, SULLIVAN.

[@sandraanderson4854]

I had a cerebellum stroke back in February. It effected my right side. I am 41 years old. Mine started with the vertigo. By the time my parents got there I wasn’t making any sense.

[@brittanychance639]

How is your recovery going?

[@MS79Canesfan]

I've had 5 cerebellar strokes.! And a few more TIA s. I have horrible PTSD and Anxiety. I am trying for disability but I have trouble. My 1st I was 19 and then 27 29 33 and 35. I'm kinda just wanting to see if others have my issues. I get bad migraine and neuro issues and cooling and horribleVertigo. I have other stuff too but. I got 0 help for my strokes such as rehab unfortunately 😕.

[@tarawagner9657]

One of the strokes I had was a basal ganglia stroke

[@vikinTexas]

I'm from Texas I had Trigeminal Neuralgia Brain Surgery in July 2022 & now I'm having pain on my Occipital Nerve & my neurosurgeon suggested to schedule an Occipital Neuralgia Nerve Block. I wonder why I'm having issues with my Nerves around my brain. I also have Brachial Plexitis after having spine surgery for ACDF for a bulging disk on my C6-C7 Im just frustrated as I'm stuck at home, riding in a vehicle or driving hurts my neck, Brachial plexus, & I get muscle spasms throughout those areas as well, so I never leave my house, unless I have a doctor's appointment otherwise I'm home all the time.

[@kunsttheorieatc5507]

Dank voor deze geweldig waardevolle informatie!

[@emps3546]

Thank you thank you thankyou🙏🏿🙏🏿🙏🏿🙏🏿🙏🏿🙏🏿🙏🏿🙏🏿🙏🏿🙏🏿

[@victoriahostnick1862]

I just stumbled across these videos. Thank you for all the great info. I'm wondering if you can help me with info about aftercare of a subdural hemorrhage. I had an emergency craniotomy a few years ago. Nobody knows why it happened. I've had a hard time finding a neurologist who will give me an MRI/MRA regularly. This is what the neurosurgeon suggested be part of my aftercare.

[@mdgraystone]

This is awesome information. Thanks!

[@patrickhull9231]

Very helpful. I have one symptom: dizziness.

[@mikemontoya2332]

So helpful! Thank you!

[@icareforyourbrainwithdr.su7103]

Glad it was helpful!

[@catherinemcnamara4875]

Thank you so much. Information very helpful!

[@tonchirango9012]

Thank you so much, it has been helpful. Suffered Celebellar stroke late Jan 2019. Can relate to most of the symptoms. From your video, could not get exactly what causes it, but looks like in my case it was triggered by high blood pressure (?). Would love to know what can be worst case outcome. I don't not have access to most of the therapy interventions you suggested. I'm 46.

[@LorHatcher-k2u]

Can you please help me find information about a bilateral stroke? My 32 year old nephew had one about a month ago.

[@أبنالعراق-ش6د4ض]

Doctor, I hope you can answer me. I have a blow to my head on the side of the cerebellum as a result of a fall since childhood, and a headache that does not leave me for a minute, suffocation, spasms in the muscles of the chest, back muscles, and feet, numbness and paresthesia in the entire body, stopping of blood in the feet or numbness, high systolic pressure 19 and diastolic 11, a drop in blood sugar, difficulty with balance, dizziness, tingling, numbness, and pain. I hope you answer me

[@jameskwa]

Thanks very much Dr

[@VernonRhem]

Mt report from the hospital said i had a basil gangel stroke it. Ben 1.5 still spinong easy becuase of eye and cant hear out of right 2.5

[@anamariafernandezpabon822]

Excellent info!!! I am Epileptic, taking Lamotrigine 75 mg a day and have Cerebellar Atrophy (Not develop/no simptoms) but loosing memory and had 2 times a very bad vértigo (for 2 days). To what Dr/specialist, neurologist l am suppose to go???? Is there any Cerebellum Society or something like that?? Thanks!!! (Sorry for my English l am from Puerto Rico)

[@PuritanDuaneLinn]

My wife Tracey had a right cerebellar stroke almost a year ago and has had no treatment. She came across this video yesterday. I'll keep you posted on what happens.

[@VernonRhem]

Can stroke affect your gums or is the blood presure meds i had a stroke of all things

[@eveaward5343]

I had a Cerebellum Stroke 9/25/23

[@icareforyourbrainwithdr.su7103]

I want to make sure that all of you have access to this information. No hype, no products, no supplements, just high-quality, science-based brain health information. There is only one diet with scientific support for reducing cognitive impairment. Please read about it to empower yourself! www.icfyb.com/strokediet

[@sagarbhingare3308]

What are the chances reoccurring this stroke?

[@icareforyourbrainwithdr.su7103]

Learn more with board certified neuropsychologist Dr. Karen D. Sullivan. Join us for our Virtual Stroke Recovery Group for 10 weekly webinars on Thursdays 4-5:30 p.m. ET Sept. 17-Nov. 19, 2020. Get all the details at www.icfyb.com/srg

[@patyoung5330]

Very helpful.

[@likeshecy1059]

I had left cerebellar stroke,i lost my left hearing,my left eye affected,my left nose,left face and left tongue can this be going back to normal???

[@invictus327]

Thank you.

[@Giancarlo80]

Thank you so much for your clear explanations and clarity. I just had a cerebellar stroke 2 and a half weeks ago. I was misdiagnosed in the first hospital and discharged with no care, although I couldn’t stand, speak or open my eyes for more than a few seconds. I went to a hospital near my house where they gave me an MRI and they were able to explain what I was going through. They still don’t know what caused it, but after such a short time, I am speaking and walking on my own. My emotions are all over the place, but I have a tremendous support system who help me get through the rough patches. I just want to get back to normal and avoid what caused it or implement the changes that are necessary to avoid it from happening again. It’s super frustrating doing the types of exercises my 4 year old is doing like practice writing my alphabet. Finding the right words to explain myself, or playing with my kids as I am used to is what I am striving for, and obviously getting back to work to support my family are my needs. Will I get there?

[@joharacademy1932]

Please medicine recommend me for cerebellum stroke recovery

[@letyarroyo4970]

I am 43. I just had a cerebellum stroke. I’m still dizzy. How long does it take for this to get better? I feel as if I’m walking on the boat.

[@JosamaBinBiden]

When I was 24 I had mine. I’m 37 now. I’d say I recovered from the constant dizziness pretty quick and was running miles in 9 months. However I was 24. So

[@areguapiri]

​@@JosamaBinBiden...Did the stroke affect your walking when you were 24?

[@cocojean-louis8673]

I have Moya Moya disease. Will you please speak on this subject please. I had 2 strokes in my mind 40s. I am now 55. I've had 3 cerebral bypasses.

[@deborahmccall873]

Thank you so much.....keeping this vid for my support 😇

[@lisasilva2556]

Hi I had a cerebellum stroke. Is it ever to late to recover?

[@icareforyourbrainwithdr.su7103]

I put all my knowledge about Stroke Recovery into this new Guide available NOW at www.icfyb.com/guide. Limited supply so get your copy today!

[@bobbyutube1965]

Wow!! Fantastic thank you

[@blushingkrystals3524]

I want to know how people with lesions in the cerebellum progress in recovery would be In speech? I didn't have a stroke I have a rare brain injury Acute Necrotising Encepathology ( ANE ) I have intention tremors from that.

[@lucy1234190]

Hi, thank you for the information!❤. I'm a bit confused as my doctor said I had this but now I have blood tissue as it's mature can you help me with this please 🙏

[@icareforyourbrainwithdr.su7103]

Learn three reasons for post-stroke fatigue in Dr. Sullivan's article: www.icfyb.com/psf

[@debsh6346]

what are prism glasses?

[@cherylkimble7526]

This is so fascinating! I'm having cerebellum issues; in the very beginning of my medical journey (had an MRI yesterday, ...). I greatly appreciate your time and knowledge, it certainly helps me to understand the cerebellum, accept my situation, as well as understanding the importance of the various therapeutic activities necessary to recovery. I will be meeting with my neurologist to learn more details... Thank you. Thank you. Thank you! 🧠🙏🏼🕊💖💯

[@chipispowdercoatingcharles8444]

I had a cerebellum stroke at 60 man I thought I was dying. I was dizzy with vertigo I was feeling mighty sick😫

[@jvillebil13]

Did you ever get over your dizziness. I had the same stroke 2 years ago and have had to learn to live with my dizziness

[@chipispowdercoatingcharles8444]

@jvillebil13 it comes and goes. If I'm doing alot of lying around it gets worse.

[@jvillebil13]

@@chipispowdercoatingcharles8444 I ride 5 miles every morning on my 3 wheel bike and do exercises every day but my dizziness never leaves.

[@jaydonabigailkyli]

63 for me. It's a day to day thing as to lightheadedness, etc.

[@debsh6346]

i was diagnosed with right basal ganglia stroke, but I definitely have some of the symptoms you describe. Do the two occur together? Since it wasn't diagnosed, I've received no rehab for it. Thanks for your rehab suggestions.

[@robertbolding4182]

Became impotent. Constipation as I cannot feel feces any longer nor can I increase the flow of urine by pushing. I'm lucky I'm not in a diaper I can go without laxatives it just takes effort. Suffered from vertigo and dizziness that would put me in bed for hours but that's resolving. I had hiccups for 30 hours out of the first 5 days I have in the hospital. My speech changes spontaneously varies from normal to slurred to a whisper with no rhyme or reason no pain no suffering it just changes

[@norminaembang9445]

I suffered left cerebbellar stroke last september 2018 is this illnes are curable ?

[@rainieday9474]

My husband was told he had covid and a bacterial infection same time even though he had covid a year prior ? We went to emergency with fever and sweating with a small rash on shin he couldn’t breath he called the nurse they didn’t come they turned the light off 3 times he hit mad went to bathroom trying to breathe he put the shower on hot to get steam i came to hospital next day and he was intubated!

[@areguapiri]

Stop the lunacy.