Cervical Cancer

Weve been back in the UK for a couple weeks now and Mandy has had her CT & MRI scans, all we need now are the results and a treatment plan
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[@plove523]

Practical advice today. Get you the UK equivalent of a 5 gallon bucket and some people poopie bags for it (Amazon). If you're tired and feeling poorly, the last thing you want to do is clean-up. My sister lived 3 hours away from a hospital and carried her bucket of supplies each trip. Wipes (unscented) for both ends, people poopie bags and toilet seat ring for bucket. Regular trash bag for putting people poopie bags after using them. A pee bottle with lady attacment. You should be able to get in and out of you van but might need an rv step platform to keep from stretching too much. A driver that doesn't mind you venting and is able to pay attention to the road while you emote. Gas up your vehicle the day before a treatment cuz some folks can't stand the fumes/smell. You will probably have more energy in the morning. Do your fun activity then. Save the washing cleaning etc for the afternoon or evening so you can sit and rest. Eat often when you can. You may or may not be able to tolerate certain smells or tastes. Have some plain comfort food on hand. Mashed or baked potato, white rice, cream based pasta like Mac n cheese, toast, etc. Be your own advocate. Medical personnel will take you at your word, no questions, ok then. Get a small notebook, write down every random question that pops up. If they see you are keeping a record they tend to be more forthcoming. Write down the answer, date/time and who gave it to you. Sometimes the nurse is the best resource but if they can't answer ask them to find out from the attending physician. Keep a record of your meds and reactions in this book. If the nurse takes your temp, oxygen and BP, ask them what it is and note it in the book. If you are unable, ask them to jot it down or John if he is allowed to be with you. Keep a list of all meds, Vitamins, supplements, herbal teas, etc, you are taking on you at all times. Every time you enter a medical center for treatment, they will ask you for this info, and sometimes you might forget an item. Yes, they may have the last list of meds but you may have stopped taking something because of adverse reactions and the admitting nurse may not be aware of the change. I don't know how they do it in the UK, but in the US you usually have a team that works with you for your treatment. There will be a team leader that you should be able to reach during work hours and an emergency contact. Post those clearly where anyone can see them. If you have an adverse reaction to a drug at home, you might not be able to make a call. Get a BP cuff, oxygen meter and thermometer and train you primary caregivers how to use them. Changes in BP, oxygen or temperature might need reporting right away or a call for an ambulance for transport. You may never need any of this, but being prepared can mean all the difference in an emergency. You are in my prayers for healing.

[@brutalenforcer7699]

Hi John and Mandy, I was so shocked to hear about your news, I hope this gives you both a bit of hope. I was diagnosed with stage 4 colon cancer in 2020. Now after 3 years of fight I got news I am now in remission and the hospital are signing me off.. Mandy staying positive helps it helped me and I feel that you will pull through. All my love guys.

[@juliadevlin7815]

Stage 4 colon cancer is not the same as 2a cervical cancer and can easily be cured

[@brutalenforcer7699]

@@juliadevlin7815 yes I know that they are completely different, but the experience of having cancer, chemotherapy for 6 months was a hard journey for myself and my family, I stayed positve throughout and I found this helped alot. I am sure Mandy and John will stay positive as this horrible illness can be beaten back and they can have a happy and fun filled life together.

[@karendyba5213]

Good luck with all your treatment Mandy thinking of you both xxx

[@susanyates4233]

Such a shock for both of you. Eighteen months after I lost my beloved huband to cancer in 2019, I was diagnosed with endometrial cancer. This was during covid. Following surgery, I had chemo, radiotherapy and brachytherapy. I am now on a six month check up. I was also treated at the Queens Centre, Castle Hill, Cottingham, a place giving great positivity and care. I trust that Mandy will have good care, and come through smiling. Best wishes from Susan.

[@jennyjenkins9485]

I am the same as you, endo cancer. Radio, chemo and brachytherapy. Treated in peter mac, Melbourne Australia

[@jusfernowmarchant263]

Hey guys x I was diagnosed with incurable brain cancer in November 2023. So I know the shock that you are going through. I think it’s great that you are sharing your journey on here, awareness is key! I am doing radiotherapy and chemo and plan on exceeding the prognosis the Drs have given me! Sending you positive thoughts, and healing energy. You got this!!! ❤

[@barbhenderson4867]

Happy anniversary guys, keep strong and focused, ask lots of questions, my mum was diagnosed with 2a at 50,she was treated at Christie’s and lived until 82, keep smiling ❤xxx

[@martinevanheijnsbergen8929]

My husband got his stage 4 lungcancer diagnoses now almost 4 years ago. We both liked to be in control, but this rollercoaster you are now in, can’t be controlled and it will be the most difficult thing you will have to cope with. One thing I have learned is that you can think of every possible scenario (good and bad) and the reality will allways be different. My husband still being here is a miracle on its own. We sherish every day now, knowing he will have to leave us soon. Lots of hugs, keep hugging eachother. ❤❤❤❤❤❤❤❤❤❤❤❤

[@199Paramedic]

The pair of you are, to coin a phrase, "ruddy Amazing!" Have been following you for a few years, but have literally seen every video, followed your journey, been inspired, laughed and cried. You got this!

[@satur9]

When I got breast cancer, I shared "my story" on my blog. Also for practical reasons, so I didn't have to tell the story again and again to family and friends and acquaintances. I do so vividly remember the support I got online, it was amazing. It was indeed a big virtual hug, a very warm feeling. When I had my surgery, I imagined all those people from that online community standing around me and giving me their warmth and strength. It may sound really silly, but it gave me a lot of comfort.

[@FionanDavidatNo12]

Just jumping in to say all the very best to you both. It doesn't matter how you get through it, just that you get through it x

[@Dogs-knob]

I know exactly how you feel John, my wife was diagnosed with stage 4 lung cancer at start of covid, I had been her protector for 44 years and suddenly couldn’t help, I couldn’t even sit with her during chemotherapy, when the oncologist told us the findings I asked wahat the prognosis was and he said do you really want to know 😮 I lost my temper and said of course, he said without chemotherapy 4 to six weeks, I looked at my poor wife’s face and will never forget, she started chemotherapy 2 days later and we got a further 2 years thankfully, she passed away 2 years ago on the 22nd, I say this to have faith in the hospital and treatment and Mandy with any luck at your staging you should have many, many years together, bless the pair of you ❤

[@DavidJohnston58]

❤

[@marcusoutdoors4999]

It was extremely moving to read your comment. I cared for my wife through her treatment, it was everything I could do. Take care you’re clearly wonderful

[@julie2756]

Hi Mandy and John I’ve been diagnosed with different cancers 4 times (and I’m still here😂) I’m under Grimsby hospital the same hospital group as you. I would say contact the nurse that was with you at the consultants and she can go through your records and explain things in English. In my experience it is just another day at the office for some but not all consultants. The macmillan specialist nurses are the ones who explain what’s what well. They’re understand how you feel and are there for you even on the days you’re just having a wobble. I had radiotherapy at Castle Hill but for breast cancer to me it was just like having an X-ray no big deal, not the same as your having but your nurse will explain what to typically expect. The staff are lovely in the radiotherapy. You will not have to pay toll fees for the bridge or parking fees so you might decide to stay where you are and just pay for fuel. I ended up having a hysterectomy and I instantly felt better. You may find some of the things that you’re putting down to the menopause are in fact caused by the cancer and may improve or disappear once you have treatment. I’m not medically trained I’m just telling you my experience things are much easier once you know what’s what you feel more in control. All the best you got this and your course treatment will be over before you know it. You can message me if you want to ask me anything. Take care x

[@sarahobes2758]

Warrior Woman! So relieved to hear your Cancer isn’t on the rampage Mandy, horrible as it is, that is good news. The thought spirals? Saw a chap on Insta recently, he had a neat trick… Close your eyes, take a slow breath in through your nose, out through your mouth, then, ask yourself “I wonder what my next thought is going to be?” Give it a go? Hope you’ve got a fab weekend planned, big warm hugs heading to you, John and your lovely daughter ❤️

[@ianbooth369]

One very brave lady and one very brave man 👍 my wife had bowel cancer 3 years ago just at the end of covid! So she spent three weeks in hospital and I couldn’t go and see her! I felt just like John! Useless ! I knew nothing, we hadn’t a clue! After three weeks in hospital when she came home we had no help and struggled, we didn’t know where to go what to do etc. Three years on, she has just had a scan as her annual check 🤞🤞🤞🤞 we think all is ok, but ! Still has a colostomy bag which she would dear,y like to ditch ! But! She is alive, and hope we can get away in our camper van this summer . I wish you both all the best, it’s hard fir the person going through the treatment, and I can’t imagine what it’s like, but!., as a partner I felt I was going through it as well, people kept ( and still keep) telling me to make time for myself, which is vital to support those receiving treatment.

[@caroleagar6790]

I had my radiotherapy at Castle Hill 5 years ago and can say you will be in good hands. The staff are wonderful. I used to have to get the transport each day as my partner was working which was tiring in itself so having John with you will help immensely. A funny story re the tattoo's, last year I was getting out the bath and my partner said what's that dot. I said it's a tattoo she said what you've had a dot tattoo. I said I've had 3. Then explained why. It only took 4 years to notice 😂 All the best Mandy, stay strong. ❤

[@christinewood8331]

John you can help and are helping by being by Mandy,s side supporting her and just talking about it, that's your best job ❤

[@nicholamontague1455]

Hey Mandy, I work at Castle Hill not in your specific cancer (Haematology). It's a great place but very busy!! The Chemo and Radiotherapy units are fab, we will look after you 💜

[@mikemitchem4846]

Prayers to you and family. My wife is fighting the battle of endometrial cancer. Chemo hasn't been totally unbearable

[@debramanley7859]

You’re both doing SO well, stay strong. So many people are behind you. X. 💐

[@rogertemple7193]

Take care and God Bless You both.💞🙏🙏💞

[@vanandcountry]

All the best both. After my visit to hospital towards the end I got more confident asking the doctors to write things down for me because it's like a blur when the consultants etc speak to you. They seem to just appear and then they are gone. Never be shy to say - I'm sorry I haven't understood what I heard please can you take me through it again a bit slower. Never a problem from any of the brilliant NHS teams. Take care.

[@LillianHenegar]

Telling your medical team to write things down and having someone with you for most if not all appointments are essentials!

[@Manos-de-Piedra]

My mum finished her last chemotherapy in December last year, Stay positive and keep smiling all will be ok!

[@Boudicca-England]

Mandy & John, firstly sorry to hear you are having to go through this. I have just been given all clear after 10 years. I was stage 3&4 cervical cancer. I had a fantastic consultant at Doncaster Royal Infirmary. I opted for surgery (radical hysterectomy) as if it came back as I understand once you had radiation you can’t have it again. I had extra parts removed as well as repair to bladder and bowel. Looking back I don’t regret my choice. I had a daughter that I wanted to see grow up and she is nearly 28 now. Going through a forced menopause was no biggie in comparison to what could have been. Don’t be talked down to by doctors, just remind them you are the patient and you have the final say…they have nothing without your consent. I wish you well, listen to your body, rest when it needs rest and sleep when it is tired. Much love from me and my family in Lincs

[@Rich-n-Cooper]

Guys stay positive, while not the news you hoped for its good to catch it early. Sending hugs from Cooper and me and hope to see you guys soon.

[@shirleylambden1561]

I think consultants sometimes forget they are actually talking to people who are probably struggling to deal with the worst news ever! Keep well, keep it together, take one day at a time.... Thank you for keeping us all up to date❤ xx

[@caravaningincarathevan467]

Bless you both xx

[@royedwards8713]

Hi John And Mandy hope all goes well with the treatment 👌👌👌

[@eileenfleet574]

Happy anniversary Big hug to you.both.❤think of you both

[@bringmeblueskies]

give her a hug from me. i spent spent 5 weeks in hospital after a massive pulmonary embolism the doctor told it could of killed me as it was one of the worst she had seen. been diagnosed Antiphospholipid Antibody Syndrome self injecting blood thinners twice a day. i am so thankful for the NHS and all the nurses doctors porter cleaners that helped me. and yes them make you like you wet your pants lol

[@RobandLynnontour]

Just wanted to add to everyone’s posts in sending you all our love and support to you both ❤

[@debbiedavis3686]

Its such a blessing believe me to have such a strong and loving husband who cares and supports you mine has literally saved my life. Happy Anniversary guy's and so much love to you both keep strong and your amazing 👏

[@julieswift7924]

Healing thoughts and big hugs xxx

[@bethparsons4151]

Thanks for the update.sending my prayers and love.x

[@chris77331]

So glad to hear it’s treatable , & happy anniversary x

[@Woodthrush]

Prayers and Blessings for both of you! 🙏 ❤

[@jj8526]

Sincere best wishes to you Mandy, and to you both. ..🙏☘

[@samanthafinch3438]

Wishing you both all the best; will be sending you lots of love x

[@anngreaves6994]

Sending more hugs to both of you. Xx. Stay strong.

[@PappysTravels]

Wishing you both all the best with everything, big hugs from us

[@gill8135]

Lots of love to you both . Sending hugs ❤

[@annettewornin7683]

Sending hugs, you’re both amazing people take care xx.

[@pamelarothwell1320]

Sending all my best wishes. Hugs and blessings to you both ❤❤❤

[@Suejavea]

Beautiful, strong, brave and kind lady. Praying 🙏 for you.❤

[@ExMAB4]

Wishing you and Mandy all the very best.

[@Richbbieslifesadventures]

Sending big hugs guys hope your both coping well.x

[@stephenproctor8143]

Wishing you both Love.

[@louiseroberts9553]

sending my best wishes to you Mandy You got this brave lady ! xxx

[@gillianspedding4910]

Bigs hugs to you both. Thank you for the updates we’re all rooting for you.❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤

[@brendalloyd1903]

Keep your chins up and think positive. bless you both xx

[@karenlund2703]

Sending love and prayers as always.Take care xx

[@janrobinson3128]

❤You have got this guys ❤❤ lovely to see you smiling ❤❤

[@jenwing3011]

Thinking of you both , sending much love take care. xx

[@truckiePat]

I’m sure we all will keep the virtual hugs coming to you both.

[@arthurhoare9597]

Big hugs, stay strong both of you. In my thoughts. X

[@Panzerman1951]

Thinking of you guys! Stay strong Mandy!!

[@dianegriffen2756]

Mandy - you've got this. Take it one day at a time. xx John - it's ok to cry. The one you love is going through a tough time...as are you. xx Both - congratulations on your wedding anniversary. Focus on the good stuff. xx Love and hugs to you both. xx

[@traceystickland-mottram8021]

Sending you lots of love and hugs. You are the dream team❤❤

[@ScouseAndy71]

All my best wishes to you both! 👍

[@1marynewton]

Sending you both good vibes.

[@nickgartland6242]

Wish you both all the best! thoughts and love with you both, take care of yourselves, xx

[@The_Breeze1]

Good luck both 🤗

[@michelleoconnor4085]

Good luck. I’m sure you’re in good hands. ❤

[@anthonyjohnwoodward]

Bless you both! You will beat this xx

[@LITTLEMANADVENTURSES]

Happy anniversary guys sending you lots of love sending Mandy healing energy and all the very best with the treatments ❤️

[@stereno23]

Happy Anniversary. Stay strong. And look after yourselves. Big hugs. Xx

[@beepythevellfire]

Sending so much love to you both. Have a lovely time with your grandson and the best, best of luck with the treatment. Massive hugs again, Nic. ❤

[@katewilliams4876]

More virtual hugs coming your way from across the pond. Always in my heart!

[@harwichlifethroughthelens4255]

Sending you all our love and best wishes xx Gill and tony xx

[@julieclay9886]

Thinking of you both. Stay strong xxx

[@denisecafferky2248]

Happy Anniversary 🎉. Mandy & John, you've got this 💪

[@victoriaplum999]

Thank you guys for taking the time to explain what's happening while you're having to deal with this. We love you and sending you the biggest hug. You've got this Mandy xxx

[@silvervandriver9940]

No words just big ❤❤❤❤❤❤❤ sending love

[@stephenmace8790]

You have got this mandy, stay strong xxx

[@Yorkies-Travel]

Sending prayers and positive thoughts x

[@elainehoward3883]

Happy Anniversary to an amazing couple, much love again Mandy x x

[@paulaholland9965]

I will keep everything crossed for you guys xx

[@suziemc5291]

Thinking of you and sending hugs. Stay positive ❤

[@geebutteree4755]

Much love to you both, thank you for the update , I really have been thinking of you, 🤗 enjoy the nurf battle 😊💙

[@ankiolebring8388]

So hoping for a good outcome and keeping my fingers crossed for you, Mandy ❤❤❤

[@craigpearson9975]

Sending positive thoughts and the very best wishes guys 🙏

[@Rob.1340]

Take care you two. All the very best. 👍🚐🚐😎❤️

[@philipsteel5024]

Lovely update and thoughts are with you both. Keep strong. Easy to say I know.

[@jillgreen9503]

Just watched your video and I just want to jump Into the screen and give you both such a big hug. You are both an inspiration to each other as well as to all of us watching you go through this . Stay strong and keep us all informed at your own leisure. We are all routing for you xxxx

[@helen9528]

Really toutched you are sharing your most testing times, will pray always🙏😘

[@gailwarnock2764]

Happy Anniversary John and Mandy lots of love from New Zealand 🌹❤️🌹

[@clearimages4120]

You can tell by these comments how much your videos are helping people, good on you both, very best wishes

[@debjukes5548]

Even though I am a fairly new viewer I have been watching old videos and catching up,my life has been directly affected by cancer,my son who is reach a cure date and has been clean for 27 years since,and my heart goes out to you. I wish for you another big hug and definitely look after yourselves and each other. Just remember you are loved and we are all pulling for you!❤️❤️❤️ Have happy anniversary and a nice evening celebrating it as well. One hint that might help is get a journal and write all these things down so you can use it the next time you talk to the docs or nurses…..I just know that it helped me.

[@bridgeteley1410]

We really feel for you and know the shock of getting such a diagnosis. My husband was diagnosed with stage 2b melanoma 10 years ago and had to have further scans to make sure there was no spread and is still on regular follow up. You had a bad experience with the doctor relaying the news to you but I hope when you meet with the oncologist you will get a much better discussion and they should be able to explain all side effects and answer your worries xx

[@Stefan1968_Swe]

Love you guys and I hope everything will work out great, and a speedy recovery for Mandy ❤

[@jackiesmithsmetaldetecting]

Best wishes with all your treatment. My dad was in Castle Hill they were all lovely there

[@ferdm9646]

So sorry to hear that mate. I hope everything will be all right and things will go better in the future. Please don't loose hope.

[@martinfield1484]

Thanks for sharing and keeping us all up to date guys also happy anniversary I’m sure you’ll get through this Mandy keep fighting hopefully this time next year you’ll both be spending time somewhere brighter and warmer xx

[@sheilajoseph9953]

John, you are a big support for Mandy. Can i say you both are showing great strength. Just laugh when you can, cry if you want, scream, shout just live each day and enjoy something in each day.💚

[@pamchurcher8833]

Good luck to you both Mandy is strong and she will get through this thank you John for taking care of her.❤❤❤❤❤❤

[@MotorhomeMums]

We are sending lots of best wishes and positive vibes. Good to see you are staying active before treatment starts. Hard slog ahead but you will get through it. 🤗

[@andrewsprason1223]

My Heart goes out to you both, Stay Strong it will all be good in the end.

[@allanjones9269]

Thanks to both of you for sharing these difficult times. There will no doubt be ups and downs, but I feel sure it’ll end in a massive UP!😊

[@sheiladavidson5389]

Best wishes to you both ,stay strong and positive

[@triciabuckling3385]

Sending love and best wishes to both of you.

[@WindsweptCanadian]

Bless you and your loved ones on this latest journey. 🎉 So lovely to see you both fighting this together ❤❤.

[@SaraBray1]

Wish you lots of love and a speedy recovery Mandy. We are thinking of you and praying that you overcome this next chapter. There will always be happier journeys ahead, so look forward to that. All the best to you both xxx