This video featuring people affected by Charcot-Marie-Tooth disease (CMT) and specialist neuromuscular health professionals is an introduction to the main facets of CMT and the support that is available from Muscular Dystrophy UK.
Пікірлер: 21
@brianlawson363 Жыл бұрын
Just found out that I have CMT. THANK YOU FOR THIS GREAT VIDEO.
@barbeebirdee23896 жыл бұрын
Read "A Piece of the World" by Christina Baker Kline, which deals with a person who probably had this condition at a time in history when no one understood it. The character in the book is a real-life person who was often a main person included in Andrew Wyeth's paintings.
@dryoutube4 жыл бұрын
Great video. CMT is a hereditary (genetic condition) that causes motor (muscle weakness) and sensory (numbness) neuropathy.
@PIXELSURPRISE10 ай бұрын
And severe stabbing pains in a few of us
@gamergirl52316 жыл бұрын
Great video!
@rebekahbrown40524 жыл бұрын
No specialist I’ve ever been to including those at the MDA clinic in the US has ever done a damn thing for me. They have made my condition worse. The doctors are horrible in the US
@roycemcmahon69404 жыл бұрын
No kidding the MDA clinic is a joke, I refuse to go to another Neuro Specialist as I feel they know next to nothing about this disease. My Eye Dr knows more about this disease than all the other Dr's I have seen thru the years.
@poonamsvideoblogs4 жыл бұрын
The best info and help I have ever gotten is from other people. Facebook group too.
@martyrmessiah39034 жыл бұрын
It's caused by a "manipulated" and "modified" mutation of the POLG1 gene.
@munster63987 жыл бұрын
just told today I have it
@MuscularDystrophyUK7 жыл бұрын
Hi there, if the is any support that we can offer with information on the condition, healthcare, or getting in touch with others than please do get in touch with our freephone helpline on 0800 652 6352.
@brittoncromersr92804 жыл бұрын
I got cmt can u help me wit info
@KarenNewtonCanada4 жыл бұрын
I can't hear the second person. Why is she whispering?
@daleval21823 жыл бұрын
It effects your lunge function, so turn up yer device, or get a hearing aid
@Anna-tc6rz5 жыл бұрын
Tbh I kinda wish I had this reduced sensation. My feet hurt al the time. All. The. Time.