Childhood 'kissing disease' linked to adult chronic illnesses

Mystery illnesses plague millions of people. Researchers found a link between the childhood kissing disease mono and these unexplained illnesses.
More on the research: on.11alive.com/...

[@shannonscheffel7366]

I became sick with mono at the end of my 7th grade. I've never been so sick in my entire life. I spent the entire summer sleeping and wasted away to nothing. I couldn't even look at food without vomiting. I was incredibly weak and remember panicking about starting 8th grade and wondering how I was going to get through. I weighed 63 lb the first day of 8th grade. It wasn't until many years later that my parents told me the doctor thought I had lymphoma, at first. My lymph nodes remained swollen for many years. I went on an elimination diet in my thirties and for the first time the swollen nodes went down. Although I'm active and basically healthy I have never felt as healthy as i wish i could. I truly believe it has affected my health my whole life. I'm 55 now.

[@lizkel]

what was the diet?

[@matchpoint14]

shannon, I am 55 also, what did you do to help, what diet? I am 55 also with lifelong chronic fatigue

[@RayofSunshineeeee]

Finally something about mono!! My personality, severe depression, fatigue, brain fog started directly with mono & I was never the same! Yet no one talks about it

[@OneUnderground]

Same here! I’ve struggled most my life (since childhood) with all the symptoms you’ve mentioned. I now have lupus plus other autoimmune and mystery symptoms. I’ve always felt as if there’s this layer around me preventing me from truly being present. Always in a fog. This really needs to be researched and taken more seriously!

[@bluebird4805]

see rheumatologist & ask for Avise panel …plus ESR & CRP from PCP

[@CameronDude]

It's crazy how this virus is dismissed so much despite being chronic for some people. Just got back from the ER yesterday and was diagnosed with EBV antibodies for the third time in my life. I'm seeing a infectious disease specialist next week.

[@SharpPear]

I had a terrible time w infection disease Dr. High EBV loads no clue why, I ended up seeing a rhumatology Dr who was actually able to figure some things out. If infection disease Dr doesn't help seek out a Rhumatology Dr. Wishing you well....

[@Ayudado]

Please I beg you, could you be so kind to share some information on how it went... I've been affected for 10 years and only very recently I had IgG antibodies detected and I'm starting to see the whole picture of the problem now... Please, anything you could share, I would be forever grateful

[@plmms]

@@SharpPear rhumatologist? Yes, could you share more stories please? My brother is in a hospital and the doctors found EBV, mono virus disease. He has severe pain and the meds don't even work. The symptoms stays the same so the doctors are examining other possible causes.

[@diannehoman9094]

I pray your infectious disease doc does than my sons did. Just keeps saying he will feel better some day. John Hopkins won't see him or Cleavland clinic.

[@NowIKnowHowTo]

I was diagnosed with lupus, POTS, and celiacs in my 30s. But I always told people I've felt sick since I was 16. I just realized I had mono when I was 16. Thanks for this info I'm gonna have a talk with my doctors

[@KitKatToeBeans]

Drs don’t have a cure for EBV. Take Monolaurin.

[@Charlie-eq3dj]

Did you get tested? Is it mono or EBV?

[@lostinspace8521]

Me sitting here with mono 👁👄👁

[@magyarbluey8406]

Its a very common std, most people have it. Some ven get it without sex.

[@BrandMath-ns5yc]

@@magyarbluey8406 yep got it from my gf only from kissing

[@teelee4775]

How long does it last

[@tinawilliams3337]

Me too and I’m 61

[@_TISH_]

Seeing this is giving me hope. I used to be an extremely hyper active competitive athlete until I caught mono in 2018. I can’t remember a day without being in pain since then. I catch about 6 viruses a year, I’m in constant agony, and my bloods are always off. At 22 years old, my doctors tell me I’m young and will recover, and that my symptoms COULD be related but it’s “unlikely”. Fighting for justice because this is not a way to live.

[@gangstamum]

This is my story too, for the past 10 years. I want my life back

[@karlhungus5554]

*Epstein-Barr Virus: A Key Player in Chronic Illness* rawlsmd.com/health-articles/epstein-barr-virus-a-key-player-in-chronic-illness

[@matthewabhulimen9452]

Thank you so much Dr Abhulimen for curing me of heroes virus, I'm so happy my life is normal again I will forever grateful to you this that you have done for me...if you have a infected with herpes or any disease at all don't hesitate to contact him via:on Whatsapp[phone] or message him on email [e-mail]:

[@Lannie74]

Mine too!!!

[@brotherebenezer449]

Seek healthy eating and jogging Stay away from sugar and pop. Find joy in something that makes you smile!!!!!! 🙏

[@brcarter1111]

Most people are asymptomatic, but I wasn't so lucky. When I was infected, I woke up feeling like I had been hit by a truck. I couldn't eat a cracker without projectile vomiting. Eventually my tonsils and lymph nodes in my throat swelled up so badly I could barely breathe. After I was diagnosed, they told me to go home and get rest and cancel my plans. I shut off my alarm clock since I was still in school and went to bed. When I woke up, two and a half days had passed. I was so weakened I could barely stand and it took about 2 months to feel normal and 6 months to regain the weight I lost. Probably the only time in my life I thought I was going to die.

[@aayushigoel181]

How long your lymph nodes were swollen?

[@brendacurrie358]

i have long covid which has reactivated EBV- i feel like i’ve had mono for 5 years it’s brutal !!!

[@GloriaLoftus]

me too!! The fatique is unbearable.

[@AdrienneS1970]

I had mono in 1986. Was diagnosed with Fibromyalgia in 2008...although it hit me in 2007. I read somewhere antivirals wouldn't help EBV. Seemed to have helped this lady. Wish more doctors would jump on this. I lay in bed day in and day out in so much pain, exhausted from doing nothing and just watch the world go by.

[@magyarbluey8406]

It is a very common sti most people have it

[@Cat_festation]

Oh I agree! Fibromyalgia is such a junk diagnosis. I’m just starting to hear about the antiviral treatments and wonder WHY my doctors never suggested them. Hope you’re getting some relief 💕

[@AdrienneS1970]

@@Cat_festation I don’t know about a cure, but I just read about lidocaine and/or ketamine infusions. I don’t care for the side effects of ketamine but I’m looking into the lidocaine infusions.

[@ianmoffat4459]

@@AdrienneS1970 Fibromyagia is fake. Everyone knows that. NO like EVERYONE KNOWS THAT

[@AdrienneS1970]

@@ianmoffat4459 Dont know where you’re from and who you know with fibro, but it is very real. And debilitating. Sorry you’ve been led to believe different. So, NO, not EVERYONE knows that. 😒

[@ashcole54able]

So glad she shared her story. I was diagnosed with Epstein-Barr Virus syndrome in 2017. I went to every specialist you can think of before my neurologist diagnosed me. A hematologist confirmed. I suffered from seizures, severe fatigue, GI issues, GYN issues, severe migraines and anemia. I have been on meds since and have very few symptoms/flair ups. I was able to get my life back because someone finally took me seriously. I will never be cured but I can manage my symptoms. Don't lose hope for all the ones out there still searching for answers.

[@sebasc2712]

What med?

[@michelles8228]

@@sebasc2712 Hello, my doctor has me on Valacyclovir 1 gram for EBV. I take one a day if I'm feeling well and have been told when I have flare ups that I can take it up to 3x a day. I was told that there is no treatment for EBV but because its in the herpes family they prescribe this medication and it helps some people.

[@sebasc2712]

@@michelles8228 helpful!! Thanks

[@magyarbluey8406]

Its is a very common sti most people have it and don't even know it

[@yourfriendalwaysl6990]

@@michelles8228 how long are you supposed to be on the pill if you dont mind me asking

[@M_K_M_K_M_K]

Trying not to cry, watching this video. 33 years old and have had years of illness, pain, exhaustion and symptoms. EBV at 16. I’m lucky enough to have found a doctor to take me seriously, have had so many bloodwork done, so many diet plans, supplements. So much trying to explain myself to people around me. Careers ending prematurely, not strong enough to start a family yet. It’s not a joke, this is really serious. The one thing that has made a different is Low Dose Naltrexone, so I would advise anyone with a similar path to look into that.

[@higherlife3296]

Same here

[@zozansinde9610]

Wear u from

[@bluelovely1374]

@Punisher what is cfs?

[@tanman12]

Same story

[@selinak6684]

Just got tested and my levels were 691… I’ve been struggling with illness for soooo long I’m so happy I found this video 😭

[@danicrowell8824]

Thank you for this- I think this is a much bigger issue than has been understood. I’ve been exhausted my entire adult life and just thought I was over sensitive. Now I know it wasn’t really in my head- it was in my whole body.

[@bell4textu973]

Why did you think it was something wrong with your mind? Have you been gaslighted by your Medical doctor or people around you?

[@SharpPear]

Keep a close close eye on your thyroid. I too have suffered from high ebv loads. Just last week got Hashimotos diagnosis and see rhumatology tomorrow for another possible diagnosis. I literally have gone to drs for three yrs....all dismiss me. I've read Ebv and thyroid issues go hand in hand . If you are dealing with heavy fatigue like I am definitely get full panel on thyroid and keep testing and watching it..... I had thyroid test come back ook for years when indeed it wasn't! Wishing you good luck.

[@thekrayonkidsbookadventures]

@@SharpPear they totally do ....EBV is the root cause of my Hashimoto....My Gyno found my hashimotos when I was unable to have a second child . He ran tests..He was an amazing gynecologists....I just had an EBV test in came out over 600 ...Im going to try a natural supplement first if that doesn't work I. will go to something else..I want this virus gone..I am 60 I would love to live my last 30 years without being exhausted and sick every time Im around kids and things..( and I was a primary teacher for 30 years)

[@bugout6305]

Amen, I like your resolve. What natural supplement(s)?

[@09rainz]

Had my first diagnosis at 16. I had another confirmed diagnosis at 27. Ever since I was first diagnosed, I’ve had flare ups at least once a year where I feel HORRIBLE. The fatigue is unreal and the body aches/joint pain is AWFUL. Currently battling this once again at age 32. My kids brought a stomach bug home and it hit me like a ton of bricks. The pain in my bones is almost unbearable

[@missmoneypenny3303]

OMG, SAME! The pain is so bad in my legs, sometimes I can't walk.

[@KitKatToeBeans]

Monolaurin destroys EBV.

[@Charlie-eq3dj]

​@@KitKatToeBeansWhere did you get this information? Monolaurin as in coconut?

[@ivangospodinov8167]

@@Charlie-eq3dj Yes. It is not a magic but is antiviral and it helps.

[@sallybennett7869]

I'm almost 60 now, this started when I was about 5 with recurrent fevers and tonsillitis. My mother has it so I expect I was born with it. At it's worst it caused over 150 migrating symptoms.

[@rommellynmariano4271]

And now your 60 yrs old? Are than ebv do you have other diseases madam?

[@youaregoingtolovethis]

We need an update. This was 4 years ago. Still no vaccine.

[@davidaguillon69]

Thank you for sharing the knowledge and your experience you have impacted me in such a positive way . Thank you 11 alive news for sharing the story kudos to the reporting of accuracy

[@rivin3180]

Why does everyone in here say they don’t recover from it you guys are scaring me

[@benjaminbritt7862]

You can recover from the initial infection, but the virus never leaves your body. It goes into a period of latency, and can be reactivated in the future

[@daphnepebb3351]

This is my story too. I am 10 years in now an only 28y/o. I am willing to travel to the USA to get treatment.

[@karlhungus5554]

*Epstein-Barr Virus: A Key Player in Chronic Illness* rawlsmd.com/health-articles/epstein-barr-virus-a-key-player-in-chronic-illness

[@Deadtrees15]

I’m in the US and I don’t even have treatment

[@zozansinde9610]

@@Deadtrees15 Thiers no cure

[@Deadtrees15]

@@zozansinde9610 I found that out

[@zozansinde9610]

@@Deadtrees15 cuos I have this

[@yeastbeast157]

Hi everyone I figured I would share my story too and maybe get some answers. I am 31 years old and was diagnosed with mono when I was 9. Got really sick but recovered. When I was 18 in high school, I got really ill again, missed weeks of school, extremely fatigued, low platelets, enlarged spleen. 4 years ago in college, my liver enzymes went through the roof and I was jaundiced with nausea and vomiting, fatigue, and weight loss. They never found out what it was and it self resolved several months later. Two months ago, working as a firefighter and going through paramedic school, began experiencing nausea, vomiting, jaundice, and fatigue again. Low platelets, enlarged spleen, elevated AST, ALT, and bilirubin. Hospitalized for 8 days and two months later I still have severe fatigue, brain fog, and dizziness. The doctors still aren’t quite sure but they think it might have been an EBV induced liver injury. No drugs or alcohol. Based on what I’ve seen about flare ups, it can be due to lowered immune system or physiological or psychological stress. I hope someone can relate to this and we can all support one another.

[@bluebird4805]

see a Rheumatologist & ask for the Avise panel ….there’s also ESR & CRP labs too

[@alishanesbitt453]

I had the worst case of mono my family doctor had ever seen and this man was at least in his 50's back in the early 2000's... I have never been the same! This video makes me think that my health problems and many challenges could be from this! How do you talk to your new doctor about this?

[@floraszabo7557]

Just at the age of 4, I was diagnosed with mono...when I turned 17, another auto immune disease, namely GBS, developed in my body...Coincidence? I don’t think so

[@bell4textu973]

I am so sure EBV did play a major role in devoloping GBS. Need meds who can clean the body from this awful virus.

[@fabiolav3588]

:(

[@Amandavg]

I got mono when I was 18 right before I went to college. I ended up dropping out that semester because I just couldn’t cope with the illness or keep up. I am 27 now and still have flares and random illness symptoms. I’ve been diagnosed with chronic fatigue and fibromyalgia among other things. I can honestly say I have been exhausted these past 9 years since initially catching the illness.

[@KitKatToeBeans]

Take Monolaurin.

[@mrsrose8101]

I have been so unwell for So long with auto immune problems. For Months and months I have told the doctors I Not well, so now my bloods came Back , and I have mono!! Always trust your gut! You know your own body.

[@magyarbluey8406]

It's is a very common sti, you can even get it withoit sex most peo0le have it but its dormant

[@Cat_festation]

I’ve had this over 30 years. It’s morphed into neurological issues and (despite EBV test results) my doctor has NEVER recommended any treatments. 😡. It’s affected my life in so many ways.

[@M_K_M_K_M_K]

LDN! Look into it, it might help you!

[@ABc-nu6jb]

@@M_K_M_K_M_Kwhat is LDN ?

[@bugout6305]

​@@ABc-nu6jbIt's low dose naltrexone.

[@jenniferw1595]

@@ABc-nu6jb low dose naltrexone

[@ihuman7253]

This illness causes so many seemingly random symptoms that it takes years to diagnose if it ever is actually diagnosed that is. Sooo many ppl are never diagnosed that it’s sad to know they will just deal with MS or fibromyalgia like in my case. More doctors need to be aware of this chronic disease!

[@Kaptiv8edme]

I am 41 with mono and it’s changed everything. I’m exhausted beyond belief. I’ve lost my strength, stamina and almost hope.

[@dancingonhands]

I understand. Bless your heart. Look up Anthony William, Medical Medium. Also Dr. Kasia Kines, who specializes in Epstein Barr.❤

[@ToniaMaitland]

My story exactly..every year I get lymph nodes so inflamed and measuring around 4c.m they take them out thinking it's cancer. Well again another inflamed one causing me to be very sick, like the rest. Dr said after core needle biopsy came back as showing signs of something wrong, we could take it out. I told him no, I want to know why this keeps happening. Sent me to an oncologist (my 3rd one) who did bloodwork for EBV and found I have CAEBV. Finally some answers! Been living this nightmare for 11 years. I didn't get mono as a teen. I was around 42 when we figure what they thought was severe strep throat was probably actually mono.

[@SharpPear]

I have been struggling with high e b v loads for three years. Dr after Dr. Would run work and basically dismiss it. Turns out I have Hashimotos now and possibly something else. Saliva glands swelling and terrible hip joint pain. Going to Rhumatology Dr tomorrow. So upset more dr.s do not take patients seriously with high loads if EBV....yet are okay with Covid long haulers. Ebv/Mono does just as much damage if not more. Wishing you all healing......

[@salama1172]

Y’all need Medical Medium information. There are explanations and treatments the doctors don’t know.

[@ihuman7253]

This has been my story for ten years now and I’ve been finally diagnosed with chronic active Epstein-Barr virus and am about to have my stem cell transplant I’m sooo nervous but hopeful 😅

[@TaoHands77]

I've been struggling for over two years with this. I also have MS and fibromyalgia.

[@jefferadus8582]

Is a gut disbiosis check your gut MICROBES

[@Gikarin.Gamemaster]

Fibromygia and Narcolepsy developed after Mono for me in addition to always being sick and catching every cold and flu. *all of my symptoms* and suffering slowly went away after being prescribed Xyrem. It took a long time to adjust to the med, I and many react poorly for months to the med---but I stuck to it at my doctor's prompting and I am so so glad I did. It gave me my life back.

[@tanman12]

Which meds? I'm battling this too

[@Gikarin.Gamemaster]

​@@tanman12 xyrem. The generic is called Sodium Oxybate

[@astridanayalation4512]

EVERY ONE NEEDS TO READY MEDICAL MEDIUM BOOKS ITS ALL ABOUT EBV AND HOW IT AFFECTS THE ORGANS LIKE THE THYROID

[@loganzzrunn]

35% food grade peroxide turned my EBV life around. Medical medium and Kasia Kines are lifesavers as well.

[@autumngrace3135]

@@loganzzrunn where do you get 35 % food grade peroxide? How do you take it?

[@loganzzrunn]

@@autumngrace3135 read One Minute Cure. Get peroxide on amazon. Be careful. It is dangerous full strength

[@magyarbluey8406]

It is a very common STI just heat healthy etc

[@MOONSLIFE36]

I got mono when I was 11 12 and here my diagnosis pots, endometriosis, fibromyalgia, lupus, ehlers-danlos syndrome, had spine surgery and brain surgery for an aneurysm. The new diagnosis to the list is MCAS

[@wxnderlesss5994]

I just turned 19. Recently got mono in september and i've never been the same. Even a month later my antibody counts were extremely high and i haven't been tested since. But i've been constantly feeling fatigued, digestive issues, all kinds of troubles that i'm sure will all get dismissed with anxiety by my doctor. This needs to be studied more!

[@carriesmith1842]

Yes it's killing me

[@karlhungus5554]

*Epstein-Barr Virus: A Key Player in Chronic Illness* rawlsmd.com/health-articles/epstein-barr-virus-a-key-player-in-chronic-illness

[@suepalmer4726]

Thank you for Hope

[@austinzizzi1142]

6 years later and we’re all still waiting and he’s right cancer, chronic fatigue, MS all of these things are chronic ebv. We’ll be waiting another 60 years and still have nothing

[@salama1172]

You have the source of this information right now. Medical Medium. Comes with answers.

[@austinzizzi1142]

@@salama1172 no it doesn’t 😂 I just fell for that bullshit and did religiously for four years and wasted the rest of my 20s because of that for it do absolutely nothing. It’s a scam fear based cult that prays on peoples vulnerabilities. Wake up. The things he says about viruses make zero sense if you understand how viruses work. Explain to me how viruses “eat no foods” 😂 dumbest shit I ever heard. The fact that I actually fell for that just shows how desperate I was

[@austinzizzi1142]

@@salama1172 no it doesn’t I’ve just gotten out of doing the medical medium religiously for four years. It did absolutely nothing but waste the rest of my 20s. As soon as you start to understand how viruses work his protocols don’t make much sense

[@salama1172]

@@austinzizzi1142 I’m older, but it worked for me and many others. I don’t know what you have but good luck anyway.

[@mysteryjesus]

Had this since 1992. Doctors clueless.

[@mylesgray3470]

Dr. Burg recommended support to the immune system, in particular high doses of Vitamin D, supplemented and monitored. Have you tried that? I had my own struggles with mold. I thought I’d be dead before age 40 I felt so bad. I went to sauna 3x a week, supplemented vitamin D, switched to low carb Whole Foods, and eventually moved halfway across the country for a different climate to get my life back and it worked. Keep seeking and listen to your body on what works and what makes you worse.

[@bluebird4805]

see rheumatologist & ask for Avise panel …plus ESR & CRP from PCP

[@viriacssa2003]

​@@mylesgray3470how are you now and what supplements are you on? I've just watched Dr.. Berg

[@GloriaLoftus]

Mono left me with longstanding fatique and autoimmune disorders. This should be talked about more!

[@aayushigoel181]

Almost 6weeks ago, ER diagnosed me with past infection of mono due to which i have a reactive lymph node on my neck but now i have severe strep throat and swelling on my left shoulder. Internal medicine dr denied to see me anymore mentioning its gonna go away soon. My life is hell since last 4months. I dont know how long it takes to recover or if it is something else. No sign of improvement since last 4months.

[@jennyortega7018]

@@aayushigoel181 I just responded to the other comment you left for me in my original comment so read that. But you are describing a lot of what I also experienced!! I also had severe swollen throat, they thought it was strep but the tests came out negative. They tested me many many times and were very confused it was not strep throat. And then the pain and swollen arm I had too. If you can try to get on antivirals that would be important. This is antivirals they use for other forms of EBV virus. This is Acyclovir, Valtrex, etc. These are used for herpes virus which is a form of EBV. The antivirals may help to suppress the virus and give you some relief. Also natural supplements form of this is lysine and monolaurin. I was vegan 15 years and it is hard to get lysine from vegan or vegetarian diet so I found supplements for lysine can help. They raise your immune system. The monolaurin helps break down the virus so your body can fight and clear it.

[@aayushigoel181]

@@jennyortega7018oh thankyou so much. I am exactly facing this since march 2024. It just started with sore throat and swollen lymph node. But now its worse. I take tablet of vitamin C + D3 and calcium, magnesium and zinc and B12. Doctors are so in denial mode as if they don’t wanna see me again. I ll find lysine and monoalurin u mentioned but getting antiviral drug from a doctor is impossible. They just send me back with tylenol or advil. I am so depressed with my health. My basic things has became a challenge for me now. I cry everyday due to this experience of health i am having.

[@M_K_M_K_M_K]

I got the vaccine for Covid 3 weeks ago. Got EBV at 16, now 33. I was just starting to get my health stronger and the vaccine kicked my ass. Anyone else experience this? I really think my immune system is too weak or maybe it has caused a flare up.

[@katkerz70]

Anyone with history of EBV should avoid this new, rushed vaccine and use the antiviral, Ivermectin instead.

[@LauraBeeDannon]

I won't touch the vx cuz of my EBV.

[@katkerz70]

@@LauraBeeDannon same here. I have covid right now. I’m on day 4 following 3 day course of ivermectin. So far so good. Feels like mild cold now after a couple of days of headache and body aches

[@77D777]

@@katkerz70 you literally read my mind. I have ebv and genital herpes also and I'm not getting this vaccine. I take an antiviral daily and high doses of Vitamin c. How are you doing though?! You got covid? Hope you feel better.

[@katkerz70]

@@77D777 I am doing well. On day 7 and have no major effects to my lungs at all, possibly due to the ivermectin. Just some head congestion but every day slightly better. Follow AFLDS for info from doctors who are looking at the science, not the hype

[@teresaoshlo8257]

I know this video is old and no one will see it, but this could be me in 10 years plus. This is my exact story I cannot even believe it. I would very much like to get in touch with the lady in this video I spent my entire life feeling like a hypochondriac from catching every virus, and every sore throat imaginable from just looking at me. I used to joke, I found out I have Hashimoto’s about 10 years ago but I am also realizing that the Hashimoto’s hypothyroidism autoimmune disease is not enough itself I’m learning it was possibly caused by Epstein-Barr virus that I got through my mother at birth. It makes me so sick to feel like this doctor will be hushed, because big Pharma doesn’t make money off of all the myriad of so-called diseases and syndromes that they can sell pills for, their focus is never going to be on a vaccine for this. There’s not enough money to be made if they develop that.

[@TammiMorrison]

That’s how I feel, like every time I go in, they look at my like I’m a hypochondriac. Its terrible

[@LisaL-yl9zm]

Drs dismiss u if u say EBV

[@SunRiver2]

Yes I have been sick on and off but mostly on for 3 decades with the EBV attacking along the way

[@aliarmand3119]

Same thing happened to me. I feel like a hypochondriac.

[@michellemcgrath7728]

I was just finally diagnosed also.My level was 137.My homeopathic dr talked me into asking my dr to do a blood test.I’ve gotten on an immune booster,vitamin c,d…I feel so much better.I felt like I was walking through cement all the time.I believe Covid made it flare on me.

[@JulieB1111]

They still don't prescribe antiviral drugs. I am sick with it again. Got a new doctor. I'm hoping to get well.

[@oopsiedaisy1320]

I wonder what the antiviral medication was that they gave her.they keep telling me this will ride out but its not I had it as a kid and now as an adult I've never been the same since I initially got it.now symptoms get worse and worse like a spiral effect

[@Sanguinor_Energy]

oopsie daisy same with me i never had it as a kid and i got it at 28 a year ago. im doing valtrex three pills a days for 3 months. its supposed to take at least 3.5 months to start working. famcyclovir is similar too. there is a stronger but somewhat more dangerous antiviral called valgancyclovir which is supposed to be pretty effective but yea. from my research those are the most used ones with chronic ebv. also im doing a veggie oriented paleo diet. been getting some better days here and there but it takes many months for real progress so im committed.

[@user-my4ng1vh4f]

Valacyclovir is the antiviral Dr. Balfour recommends, I reached out to him several years ago and that’s what he recommended for me.

[@user-my4ng1vh4f]

jill kat + Hey there! For me, it did not help with my symptoms. Others though have recovered or gotten better after doing it though. I can’t remember exactly how long I did the treatment, I want to say I did it for like 6-8 months. It’s not harmful because it’s an antiviral, so I wanted to continue it just to see if hopefully it would help. If you have anymore questions, fire away!

[@user-my4ng1vh4f]

jill kat + Hey sorry for the delay! Umm if you want to give me your email, I’d be happy to email you!!

[@karlhungus5554]

@@Sanguinor_Energy Hey, how did teh Valtrex work for your Epstein-Barr Virus? I hope you're feeling better.

[@kgrfirdjy]

I await a pancreas transplant while having type 1 diabetes, celiac disease, and hypogammaglobulinemia. I have also had mononucleosis (epstein-barr virus) and cytomegalovirus, which makes me concerned about immunosuppression post-transplant.

[@aayushigoel181]

Is anybody here who experienced arms swelling in mono? I am having swelling in my arms and hands, near the inner elbow and i can see a pulse throbbing. I m worried. Its been 5months now. No improvement, dr says its just mono.

[@entertainmentdirecttoyou]

Glad a Doctor is taking this seriously. Unfortunately this video is 6 years old so still No Vaccine

[@myfightforair]

Omg this is incredible!!!!

[@mamaalaska433]

I still am having chronic symptoms of mono. Tired all the time Nassia and more. I’ve gone to see my doctors in the military. I have gone to see the doctors and the VA I’ve got a local doctors ask him if I could have mono symptoms and they said no you can only get mono once and when you’re healed from it, and it should never affect your life again on 45 and still suffering.

[@hi-vx4lk]

How about working on Herpies 1 vaccine

[@edzanjero353]

I had 3 major mono periods in my youth. In adulthood I've had recurrent bouts of seeming upper respiratory illness, always with debilitating fatigue. It began after contracting adult chicken pox, and since I've been prone to this susceptible glareup of symptoms. My doc just sits and stares.

[@brotherebenezer449]

Eat healthy, exercise, get a hobby to make you smile. Love everyone and be loved. Stress is the number one cause of your own body failing to fight these diseases. Stay away from sugar!

[@muhammed-jb6ns]

Recently i was positive tested for having EBV in the past. This video made me scared. How can I know if something like this will happen to me too? Or MS in the future? I am really scared.

[@zozansinde9610]

Me to wear u live

[@peanutthepoodle]

Please tell us what the meds were she is taking and what kind of dr to go to for help!

[@M_K_M_K_M_K]

Look into Low Dose Naltrexone! It might be what she was taking, maybe it was something else. But it’s what my doctor prescribed me and it has made a big difference for me. Finding a doctor to listen to you can be a big challenge…. I have found a gynaecologist who opened her own practice and has been a literal life saver. But you probably live in a different country than I do.

[@miriambochenek9083]

How can I get to this doctor My son is very sick and another relative for years...and I believe this is it. Please share with me . We need help. Thank you

[@swoopdog54]

What drugs was this lady taking to make her feel better? I have sever symptoms from this crud!

[@shellcshells2902]

Mine got reactivated....2 years it was at 750 (normal 0-21.9) .... just got checked again and its still 750 and I am debilitated by it. Don't know where to go from here. I'm 49.

[@jsjourney3295]

How can you get rid of it organically?

[@thekrayonkidsbookadventures]

I am going to a naturopath right now I am going to try what is called "Cats Claw " I will let you know .....I just was tested my EBV is over 600 ...600 is where they stop counting ..it could be so much higher than that ...I think I have had this since I was 20 I had mono ..then got strep and tonsillitis at least twice a year ...I get tonsil stones at least 6 times a year or more ..I was a second grade teacher for 30 years and I retired...and felt better but now I feel tired again ...I am 60 right now . I just cried and cried when I saw this ...all of these years I have been so tired...oh ...and I have hashimotos too,,,,If this doesn't work I am going to get that vaccine or talk to that dr . for his prescription .

[@crzycatladie]

I had mono at 14 here at 46 I have so many health issues I know they trace back to mono 😭

[@Deadtrees15]

This is meee!! I have had chronic ebv for two years!!! Since I was 19!!

[@ianmoffat4459]

How are you treating it? I have it too. And no one knows anything about it. It's been over a year for me and I have crazy bad pain in my liver lately. I'm going to go to the er tomorrow

[@Deadtrees15]

@@ianmoffat4459 add me on Instagram @deadtrees15 I haven’t been treating it I’m just now starting some medication but I’m gonna send you the photos and list of stuff that I have found and Doctor said I’m going to go to because I recently found out that I have it. I’ve now had it for two years and I thought I had cancer because of it I’ve also developed an auto immune disease and I’ve had crazy stuff happening to my body for the last two years I’ve been so sick and I swear everything gets me sick ! Like I’ve had hair loss nervous system problems inflammation in my blood

[@Deadtrees15]

They thought not me*

[@magyarbluey8406]

It is a very common sti, most people have it.

[@Deadtrees15]

@@magyarbluey8406 it’s not an Sti 😂😂💀 and no they don’t have chronic reactivated ebv You know nothing about this. I am sick chronically please don’t speak on things you’re not knowledgeable on

[@Patticake313]

I had Bev when I was 16. I am 70 now and having signs of fibromyalgia rheumatica. I’m taking prednisone. Rheumatologist are hard to come by here in Florida. Any ideas?

[@Nateraska]

But 80% of adults have Mono so this is a dumb link.

[@magyarbluey8406]

It is a very common sti, most people have it.

[@magyarbluey8406]

True there are about 3 or 4 viruses that about 90% of the population have. Ebv is one of them

[@M_K_M_K_M_K]

It’s not. Because many people get mono, doesn’t mean some people can’t get serious and chronic complications. I am one of them. Never had any health issues until EBV at 16. The last years have been the worst, and it wasn’t until my doctor started treating me that I have gotten slowly back on track. You don’t have to have issues from MONO, but EBV does not leave the system, and it cán cause serious health issues.

[@zozansinde9610]

@@M_K_M_K_M_K u right

[@tanman12]

Did you watch the videos. Her levels are higher than a normal person by 50x

[@katecollins2982]

How can I get in touch with this test and doctor

[@jamesprovencher1623]

I developed EBV in 2007 when my son was born. In April 2021 I developed Guillain Barre Syndrome {GBS} and Belles Palsy. Wonder if there is a correlation?

[@unstarsam5163]

Got Belles Palsy too last year, figured out that I was deficient in Vitamins, especially the fat soluble ones. So adding fats from animals and eating meat healed it for good. That was why I got it in my case.

[@ARI-wc6xd]

I did not understand what this woman is using that she is feeling well now? Can somebody tell me, please!

[@christinegratzoll2032]

This was my ques

[@A.RandomLattin]

I am 39, and have just gotten diagnosed with recurring mono.

[@stephanielee1261]

I always feel unwell, constant headaches etc. I had glandular fever when I was younger and it messed me up for months. Maybe I should get this checked out. 😕

[@bell4textu973]

Could it be ME/CFS you got? It is pretty much the same as long covid. (Those who got infected with Covid-19 but do not recover. It could be as many as 30 - 50 % of all Covid-19 cases which will create a pandemy of ME/CFS.

[@stephanielee1261]

@@bell4textu973 I never thought of this! I'll bring it up next time I see my doctor. Thank you for your comment!

[@thekrayonkidsbookadventures]

@@stephanielee1261 yes ..definetly it is called an EBV test in 60 years I have never had one ..and the first one I get ..I am off the charts ..I had a feeling it was the cause of my hashimotos thyroid. and it is the root cause...

[@B3l0v3d05]

What was the antiviral drug he gave her??

[@Gina-dn6xm]

Wonder what antibiotics she was on and for how long.

[@KoolT]

We need this

[@kbiondo8136]

Which antivirals???

[@eleonorakaminsky8408]

Exactly, which ones?

[@spinstercatlady]

Valcyclavir which is typically useful for herpes.

[@carriesmith1842]

This is me!!! I need serious help

[@karlhungus5554]

*Epstein-Barr Virus: A Key Player in Chronic Illness* rawlsmd.com/health-articles/epstein-barr-virus-a-key-player-in-chronic-illness

[@janetlovell3069]

So if I have like you have also had a recent mono infection that has resurfaced after having it in my 30’s but since developed sleep disorder and chronic joint pain like fibromyalgia but not diagnosed. What is opinion on taking the covid vaccine after a recent mono infection?

[@rcsisshit6356]

i’m no doctor but i have had recurring mono since 9th grade(now in 11th) and i got my covid vaccine with no complications. definitely still talk to your doctor about it though:)

[@magyarbluey8406]

It is a very common sti, most people have it.

[@M_K_M_K_M_K]

I took the Covid vaccine and it has definitely pushed me back healthwise. I still stand by taking the vaccine, because Covid could kick my butt even more. Focus on strengthening the body and immune system first, because you will need a strong system to make the vaccine do it’s job!

[@LauraBeeDannon]

@@magyarbluey8406 what is your point? You post this everywhere?

[@magyarbluey8406]

@@LauraBeeDannon it's just interesting to see if other people even realise how common this virus is. I find a fascinating that most people haven't even heard of ebv even though they probably have it yet they are talking about coronavirus instead and think that they don't have viruses themselves.

[@draggedout]

My levels are over 730 and things have been really tough...

[@tracymcgrath1192]

Omg this is me at 49. I had mono at 13. How do I ask for help.

[@bluebird4805]

see rheumatologist & ask for Avise panel …plus ESR & CRP from PCP

[@christinegratzoll2032]

What vital drugs have you taken ? I got COVID & just got my results back for this . >600 I had on my results .

[@sandi6818]

I had two sinus surgeries and chronic mono since childhood. It’s horrible

[@melrd4311]

Can I please talk to you? I have a child with high loads of evb

[@sandi6818]

@@melrd4311 Sure. How can I help?

[@whotelakecity2001]

Why did you have surgeries? Are you taking anything now?

[@mhashem089]

After 31 years !!!!

[@magyarbluey8406]

It is a very common std most people have it no big deal

[@sunshinerainbow2818]

God bless Dr Balfour 🙏

[@KoolT]

It's mononucleosis isn't it

[@Tearsofasilentheart]

Please hurry up and find something like a mono jab to help chronic conditions. I have lupus and fibromyalgia. Its hell living like this.....

[@M_K_M_K_M_K]

Look into LDN!!

[@thekrayonkidsbookadventures]

Im with you ...

[@joebream5526]

this is cool and all, but 98% of people contract EBV at some point in there lives. I think this is probably a deeper issue

[@bartekfrydryk4766]

I had mono, when I was 13 years old. 10 years after I got multiple sclerosis. EBV really can cause serious diseases

[@muhammed-jb6ns]

Did you have any immunsystem problems? Or was everything completely normal and suddenly it happened?

[@bartekfrydryk4766]

@@muhammed-jb6nseverything was normal. However I had an enlarged spleen for several months after that. Also I was ill less often. One day I woke up feeling dizzy and vomitting came. Everything stopped after steroids. I had optic neuritis two weeks after that

[@momtazjee]

same here 10 years after mono I developed multiple sclerosis @age 29 no siblings with it just me. how long more do we have to wait!?

[@user-ce4ru1vs2i]

@@bartekfrydryk4766 Do you have wife and children?

[@bartekfrydryk4766]

@@user-ce4ru1vs2i no, I don't have yet

[@ael6707]

Im going through weird EBV stuff too a few weeks ago i went to the ER with a lymphnode sticking out of my chest it didnt look cancerous but i had immature granulocytes in my blood and right after i got very sick and im the sickest ive ever been in my whole life i went to a pcp and she told me i have mono and getting more imaging tomorrow but my ana came back negative im so confused why everything is getting worse and worse and im so itchy

[@bluebird4805]

excess bile from liver can cause itching….try Zyrtec if you feel like your blood is racing & itchy all over ….wish i had more answers for you….have Dr check ESR & CRP?

[@ael6707]

@@bluebird4805 thank you she referred me to a rheumatologist and I will be going on the 5th I am starting to feel better with the EBV but definitely not back to myself and my lymph node is huge I'm glad I have an upcoming appointment

[@themadtripper]

This sounds so much like me before I found out I had chronic ebv due to Covid.

[@milagritosperu000]

I wouldn’t kiss that baby if I was her

[@MartiDavis]

Is there a mono vaccine now?

[@soaringsquid0.129]

Definately not going to date anytime soon! 😅

[@momtazjee]

me sitting here with multiple sclerosis!!

[@jewels3895]

This happened to me. The last thing we need is another dam vaccination.

[@pamheiser9655]

I think that may be my case

[@dorehoss5008]

My levels are 750.0 u/ml its awful!

[@thekrayonkidsbookadventures]

how did you find out your levels ..they told me it stopped a 600 ( just because they stop counting ..my dr said I could be at 1,000 and it wouldn't show ..mine came out like the lady in the video More than 600 ...I would like to know my exact number just to see if what I do would get my numbers down...thank you for letting me know....please take good care of yourself ....xooxoox

[@arjayfuentes2271]

what specific blood test was that? I wanted to request a blood test for ebv

[@shubhijha9078]

@@arjayfuentes2271 ebna igg and igm

[@Goomba_N64]

3:15 ummm okay old lady that gets sick from anything.

[@billyporter9869]

I got mine through a vaxxxine in the '80s