She shows compassion! ❤❤❤ I want someone who will treat me independently and not lump me in with everyone else, giving all of us the exact same treatment.
@laurenceshone66526 ай бұрын
I think the way the NHS has been forced down the route of minimum time per patient has killed the possibility of the patient being able to discuss a holistic discussion. Most treat symptoms whether they started out wanting to help fully or not, that enthusiasm is suffocated by government funding cuts. It was good to hear the discussion in this video which gave me so much helpful information without feeling like I was needing to avoid identifying wrongly. Its a shame that many will have to find their own way through and that some might not be that lucky. I know I've considered that after a lifetime of being super fit and athletic and a musician, that that was now gone and life was perhaps over. Very dark places. A simple discussion and being able to listen to Dr Olivia has lifted some of that because she echoes the lighter side of my thinking. How I go about that recovery without crashing when you start to despair and its easier to give up is the hard road to identify on your own. Sadly most of the people around you will discuss and arrive at the conclusion all you need is to get your finger out that you are making yourself ill by inactivity. Yes there is an element that when you lose the will to live its a downward self fulfilling spiral.
@Truerealism7475 ай бұрын
Is the implant problem at the site of the implant I've had CFS 27 years fybromyalgia 7 so I had it ore implant tibeapin but wonder if made things worse
@Milliemollym5 ай бұрын
I've not heard anything new from the doctor here..I guess as I'm 46 years in I've learnt so much....but it's good to listen to a doctor who knows her stuff...she sees how things are connected. Hearing Toby's observations/ learnings as someone who has recovered...I'm finding very exciting. It's made me want to get serious again about getting well. I'm usually a motivated person but at times I just give up and pretend it's normal...I'm so used to it...
@sheilachurch31676 ай бұрын
One of your first comments was to have a compassionate doctor. I suffer with diagnosed Fibromyalgia, not by a GP but I had to travel to a different area to get this diagnosis. GPS know nothing about Fibromyalgia. All the GPS in my area rarely see patients , getting an appointment to see a doctor is rare , my surgery continues with the rules imposed during what they called covid .
@11kwright6 ай бұрын
So agree with you. The average GP are not compassionate or understanding. They are very arogant and just treat people like the next in line on a vending machine. Some even zone out half the time because of their arogance and always think they know better and always apply the standard protocol not taking onboard the commense how many people have this protocol worked for!!! This is why a huge proportion of society has turned to KZbin to get answers for themself and help themself. However, eventully what we are going to start seeing is healthy and medicine conspiracies and scare mongering about things that really help inorder to scare people and get them to trust the Big Pharma through their GP and right back to a rock and a hard place where they have no choice but to take the medicine prescribed by their GPs yet in the back of their minds they know it's not helping and with a good few even causing worse side effect and death. Like the "niacin" scare mongering that it causes heart attacks. Well the study apparently was don on people that take statins and it's not effective with statine or on people that are perfectly healthy. Yet statins is a standard protocol and it has come to light that it doesn't protect the heart and a high percentage of people on it still die within 5 years and people with stents. You will find FDA or whatever will pull meds back for very trivial side effects and yet don't do anything about the meds they prescribe as standard protocol with huge side effects. It's all in the details, have to research, research, research and don't trust until you have the full picture.
@Truerealism7475 ай бұрын
I have diagnosis CFS fybromyalgia elements fnd found out causation genes autism ADHD heds.
@paulinehughes85485 ай бұрын
This fairly short podcast shoulbe sent to every Dr/GP in the UK if not the world. Obviously this is a mammoth job, but this is a life saver ..Thank you so much, no words to express your information about the syndrome we are struggling with..
@janmartell9792Ай бұрын
I live in an area with several teaching and university hospitals and cannot find a Dr who will diagnose CFS.
@james.sirois5 ай бұрын
This is so empowering-
@11kwright6 ай бұрын
Finally, someone talking about CFS and the fact that all diseases and symptoms as a result of diseases are being driven by inflammation. Although getting the gut terrain right can sometimes not be enough. You will always need to incorporate fasting or dry fasting for certain diseases like systemic sclerosis, CKD, heart disease etc and then what about those disease like parkinson's, ME, alzheimers - can any protocol really fix them unless you catch it early!!!!!! Need to start talking real not just about food because that alone may not help those with hardcore diseases. Some diseases it's like you got to save your life and therefore are you ready for what needs to be done - go hardcore.
@Jane-pg8jv6 ай бұрын
Thank you for explanation ❤
@CFSHealth6 ай бұрын
You're welcome 😊
@jaynesierakowska31205 ай бұрын
My surgery has mostly only phone consultations for ten minutes and you are only allowed to talk about one symptom, so no use at all for a syndrome!
@MaryCunningham-p2q5 ай бұрын
People chase because they need the diagnosis for med certificates, social services and insurances etc
@iamthefiremanjj6 ай бұрын
People dont realize how much lifestyle and stress influences this. With inflammation you can address this with an anti inflammatory diet
@Truerealism7472 ай бұрын
Especially it's linked to autism ADHD for which ime now diagnosed after 27 years CFS fybromyalgia
@shanecook32106 ай бұрын
Is cfs also a result of implant reactions? If so could you please do a segment on the connection of implant illness and cfs?
@laurenceshone66526 ай бұрын
I believe if I understand the Dr correctly that it can be triggered by any type of trauma physical or mental. Just as you do not have to be in the armed forces and battle weary to suffer from PTSD. Common misconceptions tend to belittle how people react to things that have upset their body and or mind balance. If you are suffering from implant reactions I would also suggest that that is something you need to address. Then either at the same time ask about getting help for what ever else is troubling you. Let the professional diagnose and don't be scared of speaking up.
@iddir865 ай бұрын
I don’t agree that symptoms vary like this and that the chances of people having the same symptoms are rare. It can vary dued to differences in how long the illness has been there and the severity, but symptoms don’t vary like described in this video. It might seem like it maybe because the list of symptoms is so long. But usually symptoms match. Also I don’t agree on the syndrom vs. real illness. Just because there is a lack of knowledge, understanding and probably technology, doesn’t justify calling it ‘not a real illness’ but only a syndrom. ✌️
@Milliemollym5 ай бұрын
I kind of agree ... everyone I've met has Brain Fog, Poor Digestion, Loose Stools and Fatigue but not all have muscle pain, glands painful and throbbing, sore throats and dreadful head pains etc etc I was in terrible pain for 30 plus years but my dad never had any pain at all ..but he got it age 40 and went to bed for 5 years waited on hand and foot by my mum...I got ill age 14 and just had to carry on, cope, put up and shut up until I was diagnosed and still had to suffer abuse/violence. I think had I been in a different family id have got well by now...lol I'm 60 now ... I don't bother with doctors anymore...I know more than they do! I haven't time nor the inclination to explain/try to educate them. Good luck on your healing journey
@blovethompson5 ай бұрын
Notice what she said. Imagine meeting someone on the street and you happen to find out that they have c. F s and that you both have all of the exact same symptoms. It can happen, but it's rare. I want someone who will treat me independently and not lump me in with everyone else, giving all of us the exact same treatment. She shows compassion! ❤❤❤
@iddir865 ай бұрын
@@blovethompsonI definitely think she shows compassion, and maybe what you describe is what she actually means down to that exact detail. But in that case I would think this is true for any illness with any symptom because we are different people. I got the sense that she agues that the differences in symptoms varies to the point where you can’t tell if it’s the same illness. And this is what I don’t agree on, but maybe I got the message wrong.🤷♀️
@iddir865 ай бұрын
@@Milliemollymand good luck to you🍀 Hope you find your way out of it. I did myself.💜
@Truerealism7475 ай бұрын
@@MilliemollymI've had CFS 27 years fybromyalgia symptoms 7 pots in the middle not now.started after a fall had pelvic pain then CFS my father had CFS 1989 1993 still has some fatigue at 74 found out last year I have autism ADHD heds causation do you list my mum last year to severe ms rccx gene theory so true my father surely as adhd.
@deelicious16102 ай бұрын
I just want to sleep. 🙏 Now I say THE body, THE anxiety, etc.
@user-qw5nr4nm7x5 ай бұрын
Some good info. A lot of pr for the program. Too much.