Chronic Pain, Centralized Pain, Flares, & Fibromyalgia: Examination and Multidisciplinary Strategies

Rheumatologist & Pain Management Specialist Daniel Clauw, MD discusses Chronic Pain, Centralized Pain, Flares, and Fibromyalgia: Examination of, and Multidisciplinary Strategies for Pain at SAA's Fall 2021 Virtual Spondyloarthritis Educational Seminar
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[@kencarnes5120]

Fibromyalgia is like having the pain of a migraine headeache through out every joint in your body, especially in shoulders, neck n lower back, been living with it for 30 years now

[@youknowcrimedontpay9257]

Going on 41 since 1982. Fibromyalgia brutal life debilitating. No inflammation though I do believe they are wrong on this part.

[@ImaClownman]

@@youknowcrimedontpay9257 inflammation can happen by eating leafy greens. It wont be visible but leafs and seeds have a chemical defense mechanism and cause inflammation bc they want to live too. They just cant fight or run away.

[@jeniselamarbrown]

I often describe my fibro like this! Thanks for sharing

[@peopleplacesandperspective5564]

What do you do for the fibromyalgia pain? It’s brutal and so difficult to live with. Mine has only gotten worse, not better..

[@peopleplacesandperspective5564]

@@youknowcrimedontpay9257 so sorry, it is so brutal… what do you do to treat it?

[@scottishpensioner2447]

Thank you so much for this wonderful video ❗️WHY DON’T DOCTORS KNOW ANY OF THIS? I was diagnosed with RA in 1995 and Fybromyalgia in 1998. No one ever told me that Fybro causes sleep disorders and memory problems. I have been to sleep clinics for my terrible sleep, neurologists for my problems concentrating and remembering, psychologist for depression. I can’t drive at night because the headlights are blinding. I have a super sense of smell ( useful sometimes). I have been in constant pain since 1990. Opioids and NSAIDs only help a little. Now it all makes sense.

[@DocToks]

They also fail to disclose the correlation of IPS and the EBV. 98% of chronic pain patients who develop Intractable Pain Syndrome have positive Epstein-Barr Virus IGG and/or IGM titers. Rheumatologists, neuros, and radiologists commonly deny this all-too-common explanation. They'd be jobless if they admitted EBV is causing most of the issues of their rheumatoid arthritis and lupus cases. more info to come...

[@Saltandstarsxvanessa]

No one told you because no one knows. If you live with an invisible chronic illness and you don't get lucky enough to find a doctor who wants to do the digging and figure out what's wrong, you will spend years trying to find one that does or figure it out yourself.

[@BBradford1825]

FYI, the amplifier example is spot on! Bright light, aroma therapy, certain prescriptions, etc amplifies my almost immediately. Again great video! 👍🏾

[@susancole227]

This lecture is mind blowing! So much new information! I have fibromyalgia, and am also a Nurse Educator teaching student nurses. I love that I can expose them to new updated information about pain and management!

[@needles1975]

1st time in history females ⦁ should recognize pregnancy procreation is the only relevant dis-ease process so they can receive all of their birth rights to free room and board for eternity then peace will begin. ⦁ must recognize the value of midwives being able to deliver babies by hand 3 choices manually + poison - C-section. ⦁ Females should be recognize that crying newborn babies are starving asking to receive their birth rights to free breast-feeding on-call, around-the-clock breast milk naturally warmed 37°C by Chi life force energy, generated in muscles Thermo-HemoDynamic functioning hydrogen bombs, a.k.a. H-Bombs. ⦁ females should recognize the complexity of 9 months of pregnancy, labor and delivery, breast-feeding around-the-clock and the absolute need to receive rebuilding rejuvenating regenerating rehabilitating restorative from Grandma's helping healing hands delivering babies at home, home cooking spiced up herbal recipes and megadoses of tenderness loyalty and compassion TLCs, and the only all natural cure fatal PTSD. ⦁ males must recognize we are our 1st females as ovum's sparked into life within our mothers fallopian tubes. ⦁ We now know, (1 egg mothers soul + 1 sperm through grandmother's soul = 1 ovum, girl or boy) mathematically (1+1 = 1) the beginning of a new life for newborn new soul rebirth reincarnation.

[@katpassionate]

Thank you so much for all of your effort, research, and information sharing. As someone who suffers with fibromyalgia I found this video very informative and interesting.

[@rossy1704]

My deepest thanks for this. It was fascinating to listen to Dr. Clauw - I could have listened for an hour and a half more!

[@Saltandstarsxvanessa]

"Tender Points are stupid." That was hilarious! And I totally agree! The first doctor who "tested" me for fibro - i.e poked me in a bunch of spots with her finger, one of which I said felt good and asked if she could rub a knot out for me - said, "Well, no I guess it's not Fibromyalgia. Maybe it's time for you to accept this as your life and get a rocking chair." I was 32. My husband at the time wanted to punch her in the face. Some doctors don't realize, understand, or care that things that they say hold a lot of weight and can stick with you...there's a reason I still think about that. I was depressed for weeks after that appointment.

[@ishraqyasin]

I really liked the part where the the doctor said that we should take an active role in getting better! Thank you a million times for this golden lecture🌸

[@DocToks]

We believe this! We must healTH'care! Patients deserve better and, in this day and age, we are without excuse for the barbaric behavior of the CDC and DEA. Find out more on our channel about Intractable Pain Syndrome, Addiction, and Adhesive Arachnoiditis. 56+ years of experience says something!!!

[@dpiroch]

I disagree on one point. Heat such as heating pads help me a lot. Many with fibro have neck pain, for instance. I am having a flare right now and heat is helping as much as Tylenol. He likely doesn’t know how heat can take away horrible menstrual cramps… I used to immerse myself in hot baths!! It would help when I couldn’t take codeine for instance, the medication made me very sick.

[@miatrue98]

One symptom of Fibro is IBS which gets much worse when taking painkillers tablets, so tablets are not something that resolve the problem. And in a body where the dopamine levels are imbalanced the painkillers actually do not work, it is the same as taking a sugar pill - it doesn't work!

[@Lynniescorner]

Heat helps me personally. I do understand that it is a personal thing. Cold actually either triggers the pain or makes it worse. Heat, or even just putting a jacket or blanket on, can help immensely. At times, a heated blanket is my friend. But everyone's body is different. There are those, I would not doubt that neither heat or ice would help.

[@needles1975]

Pain is normal and natural logical reasonable function of life and living without pain experiences you are dead. So if you experiencing pain that pain is function of Americanism so the solution is to eradicate capitalism literally carnivore-ism Dr. Frankenstein-ism and cannibalism children at the bottom of the food chain. 4000 years ago Hippocrates left us literally “the cure for cancer” Janet G Travell MD also did to the 1950s already done sitting in the archives of medicine only I discovered because of serendipity Howard University College of medicine 1983 family Doctor 40 years self master acupuncture over 20 years I can teach you in one day! Simply Take 5 TLCs per day optimizing built-in healing repairing regenerating restoring rebuilding mechanisms so now you know 1.SLEEP; 8-10 plus 1 hour nap cure for deadly sleep deprivation. 2.NUTRITION; multivitamins, trace elements minerals, copper zinc magnesium lithium. 3.TRUST TRUTH Mother Nature replenishes depleted neurotransmitters; mindfulness clears out all fears, doubt, and drama. 4.MUSCLE maintenance and regenerative care; walking, stretching, flexing, range of motion, running, jumping, playing, getting down and up off the floor, yoga, dancing, and most importantly Acupuncture Needling! 5.TIME; Allowing Mother Nature cure-all’s to work her best, while you rest, wake-up refreshed! Smell the roses, watch clouds stars go by, watch leaves on trees way that you; saying Hi!

[@Saltandstarsxvanessa]

Water in any form is the most therapeutic thing I have found thus far. I crave being in water. Think about it - no gravitational pull on our joints. We can bob, float, sink, spin, swim fast...and it feels so good. I think of it like being surrounded by softness. Just softness.

[@margarettodd1074]

I’ve suffered with fibromyalgia for many years, doctors kept giving me opioids to no effect , increasing the dose to the alarming effect I was walking drugged to the moon but still in pain. New doctor has taken me off these drugs and given me duloxutine, 10 days on I’m like Wow, I cannot believe the difference. My pain has halved I’m mobile again and life is enjoyable again . Long May it continue

[@maryleavitt4795]

I have fibromyalgia and tried duloxutine and it didn't help. Although I'm glad it helped you.

[@margarettodd1074]

@@maryleavitt4795 Mary , sadly the duloxutine effect didn’t last ….1 year on I’m in agony head to toe ..😤 hope you have found some relief xxxxx

[@dianawalker1622]

K.B. Totally agree.

[@CrookedSteph]

This is wonderful information! Will have to try a different approach to my decades long problems!

[@cherrychan40]

Thank you.

[@gamaltaher9714]

Thanks

[@silviarubalcaba7264]

Hi my name is Silvia I have fibromalgia for 30 years I’m taking duloxotine and the paine doesn’t go away what do u recommend the pay is terrible I can’t standard anymore thank you

[@lilkennyz]

Dr Obinyan on KZbin is a life saver,I got amazing result after using herbal supplement I got from him,I'll advice any one suffering from any disease should recommended his assistance💯❤❤

[@helenspedding-lowe5469]

Thank you so much for this Dr Clauw. In the UK the GPs don't seem to give me any help for my fibromyalgia apart from medication. I'm hoping to try some of the other things you have suggested, but my problem is that last year I broke my leg in 4 places and had to have reconstructive surgery - which still hurts and has limited my mobility. Have you any suggestions for something that I can do with this limitation - I'm pretty disabled by this, and find that my mobility is very limited, as is my movement - my knee is still very painful over a year after the surgery and limits me so much and I have to use crutches to walk.. Can I have the address of the Pain Guide website you recommended? Many thanks for any help you can give.

[@Gpacharlie]

I have one question or perhaps it is observation. If opioids don’t help with fibromyalgia pain, then in your study where more opioids were needed post surgery for the fibromyalgia patients to control the post surgical nociceptive pain, then the outcome of the study is that fibromyalgia patients need “more” opioids to manage the nociceptive post surgical pain. The opioids don’t turn down the amplifier, they reduce the level of the nociceptive input to the amplifier. I don’t know how they do this, but in my 20 years of chronic pain this has been my experience. I have a severely arthritic cervico-thoracic spine. It gets inflamed often. Extra opioids at those times are a merciful option in my case. But now I am restricted by the VA to a ceiling Rx that means I will suffer if I “overdo” my neck motions. So then, please give adequate amounts of opioids to these post surgical patients instead of rationing them. And people who exacerbate their nociceptively painful tissues by overuse and have a turned up amplifier need these opioids available also. This can prevent a weeks long pain flare up in these type patients. And Yes! Walking is so very helpful. But pacing is crucial, and it takes time and setbacks happen. But the benefits are fantastic.

[@bencote2219]

First AS management video I have seen mention cannabinoids 🙌

[@DocToks]

See our videos...cannabaoid receptors are 1 of the 6 bioelectric neurochemical transmitters!

[@beverleycollins9208]

I like to listen to this

[@annarubaugeli6356]

Very interesting, but it would be nice if you could turn on the subtitles in other languages, and in this video you can't.

[@sriley53sr]

What are your thoughts on the use of Buproprion in fibro patients?

[@Fkyumean]

I wanto know if I should complete a second MRI for the neurologist to understand my lesions on brain and spine???

[@roshniuk6240]

Good

[@thurmettamurphy3046]

Very helpful. Is loud ringing in the ears a symptom? I have it as one of the many chronic pain conditions.

[@kencarnes5120]

Yes, I have ringing in ears once in awhile

[@thurmettamurphy3046]

@@kencarnes5120 thanks. I have it constantly along with fibo and other pains

[@sriley53sr]

@@kencarnes5120 Yes..So do I

[@Suzanhanson8478]

Absolutely!

[@youknowcrimedontpay9257]

Yes Fibromyalgia can cause tinnitus in one or both ears. FM can cause many strange symptoms other then pain and fatigue. Most FM patients have sleep disorders and not just insomnia but rather we cannot achieve Slow Wave Delta Sleep or Restorative Sleep as a result of Alpha Wave intrusions. Slow was delta is when the body falls into deep sleep or REM. This deep Delta is when your body heals and restores your energy for the next day. Our bodies cannot achieve this stage of sleep and this is where the vicious cycle of FM begins. We have severe fatigue and not just the feeling of being tired but complete exhaustion as if we have been sedated and become bedridden. Keep an open mind that CFS Chronic Fatigue Syndrome (a.k.a.) ME is not always a symptom of every patient with FM. Substance P in Central nervous system wreaks havoc on the body and can cause a multitude of symptoms but not everyone with FM suffers from all the same symptoms as the next person. The pain pathway in the sympathetic nervous system is disrupted by signals which originate from the neurotransmitters in the brain. It's as if our brain cannot shut down like the volume on music blasting when the concert is suppose to be over yet the band plays on.

[@BBradford1825]

Wow, finally, someone gets it! Great video! 👍🏾

[@needles1975]

Nope

[@markcoope4392]

I'm finding there's a lot of information but very little help that's actually works

[@beverleycollins9208]

I have social anxiety and fibromyalgia and chronic back pain

[@Pharphette]

My family doc, pain clinic doc, and neurologist obfuscate neuropathic pain and nociplastic pain so it’s frustrating as a patient to not get a diagnosis but a vague categorization. My pain doc rightfully seems most clues in as he said I likely have central sensitization which I now know ‘is’ nociplastic pain. No major acute pain even preceded my pain, except for a lifelong battle with anxiety disorders and depression. I’m assuming that having a genetic component (being female, having and aunt with fibro/widespread pain) means I likely have nociplastic pain. I just want to hear from my doctor a more succinct diagnosis than “neuropathic pain” as it doesn’t fit.

[@spasatasevski2597]

I have extremely pain all over my body for 30 years my muscle they are so sore lotta pain

[@ionicacorbet3561]

Can Diplopia (Strabismus) be a symptom of fibromyalgia? (Eye muscle involved!?) Otherwise all normal tests: multiple sclerosis, myasthenia gravis, thyroid, etc... Acquired in the last three years and worsening over time.

[@needles1975]

Double vision blurred vision all function of fibromyalgia thanks Janet G Travell MD the 1950s who resolve this conundrum 60 years ago only I can see because of serendipity Howard University College of medicine 1983 family Doctor old school

[@beverleycollins9208]

What should I take something for sleep

[@Bethechange766]

Possible cure of Ankylosing spondylitis/leaky gut? Food triggers flares which means gut is responsible for AS. If kidney, liver, heart can be transplanted then why not gut?

[@needles1975]

beware be aware be knowledgeable be well informed be warned behooves you to become your own doctors 1-2-3

[@beverleycollins9208]

I've been living with firbomylia from 1996

[@olivier5293]

Any links for the paper research?

[@needles1975]

Nerve pain, Diabetic Neuropathy. "2ndary" Neurosis Numbness hands feet mouth a.k.a. tingling Occipital neuralgia Psychosis -false Post-Traumatic Stress Syndromes Pornography obsession. Pelvic Pain and Painful periods Pain with intercourse Pain with urination Pain with bowel movement Pain in the mouth Pain in the face Pain in the chest Pain the neck Pain in the butt a.k.a. Sciatica. Pain in muscles Pain absence means no feeling in areas of the skin. Pain all over ie Fibromyalgia. Beware polymyalgia rheumatica Sciatica, pain in the buttock down leg Stiffness Swollen extremities, joint stiffness "2ndary" Rashes look like many different viral fungal bacterial parasitic syphilitic innocent childhood and adult rashes for example Lyme disease

[@olivier5293]

What's got to do with my question: any links for paper research?

[@needles1975]

@@olivier5293 PURE DNA TRUTH reveals, we are 1 Family, Animals, and Bags of Muscles/Meats, food, . This is animal planet only predators, prey, and protectors exist. We are live in a food chains. We are food. American Females have willfully United chosen to create an interspecies food chain goes like this: males kill and eat females, both parents after kill and eat children for sustenance. Q: Who's guilty of child abuse? A: We're all unified guilty of child abuse! Q: what makes a good doctor? A: any female male with full knowledge of these 3 basic biology facts of life: pregnancy, muscles, and acupuncture. Q: what makes a bad Doc? A: Any male or female without full knowledge of pregnancy muscles and acupuncture is by definition a Doctor Frankenstein!

[@Fkyumean]

I can say if I don't move my body bend twist carry Weight literally lay on couch all day I will be without pain. Once I do all those things here comes pain. To me that's my amplifier setting more of a work load placed on body it's so stressful on body to handle

[@Gpacharlie]

Try walking. Little by little increase your distance.

[@Fkyumean]

@Gpacharlie thanks for advice . After reading this back to myself. My daily pain starts from sleeping them waking up and continuing to use body in different motions under different loads. I know I have disc bulges and the nerve pain is horrible the inflammation in body never let's me feel like I can handle . I can walk up to 3miles can't be daily or I'm constantly on rest recovery

[@annierobin9158]

Thank you dr osuma on KZbin for showing me what it means to be confident and I'm happy I was able to get rid of lupus with your help and I would say much more about you.,

[@megsenergy]

How was your lupus cured?

[@sugarluv2]

Is the fm/a test real or is it wishful thinking?

[@Suzanhanson8478]

I'm 61. As a 6-7 yr old I'd scream some nights thinking a zoo animal was chewing on my hips and legs. By 10 I was at a Chiropractor who told my parents that I'd have GYN and gall l problems. Pt 2⬇️

[@Suzanhanson8478]

Pt2- By 12 -13 I was sneaking Doan's pills so I could get thru school. When menstruation began, all hell broke loose. Pt 3⬇️

[@Suzanhanson8478]

Pt 3- Almost 2 weeks of EVERY month was unbearable pain from head to toe, sleepiness, brain fog, no energy. And I am a "Type A" person who does NOT want to say something is wrong! Pt 4⬇️

[@Suzanhanson8478]

Pt 5- Painful tests done. Meds given. I married at a month before 18. He was 22. We r happily married almost 44 yrs later! Yes. I was young, but an old soul! Oldest of 5. If we had not married young, pg 6⬇️

[@Suzanhanson8478]

Pt 6- I absolutely feel I'd have had no children. A yr & 1/2 later we had a son, 363 days later another son, 4 yrs later-our 3rd son! Pregnancy 3 was excruciatingly pain filled. I knew I had cysts, endometriosis etc. But we wanted to try for 1 more. After this, my body seemed to nose dive. I've had 13 operations. There r meds that I hate taking. Pt 7⬇️

[@Suzanhanson8478]

Pt 7- bc they barely help. Trying to FIND a dr who wants to HELP, not just medicate, is difficult! We have 7 grandkids. I've missed out on so many events bc of FM and it's demons. Depression is my demon. I do have suicidal ideologies but have never attempted. My dad attempted and I know that stops me. I'm in FL. My hubs will bring me to MI if u take my Ins.

[@Burton3375]

Cannabis with THC makes my pain way worse!! CBD cream helps!

[@dirkkatz172]

culprit: microwaves, it can last a few years

[@needles1975]

This is wonderful news TRUTH has been revealed to me 40 year family doctor discover 1st time in history pregnancy classified as a sexually-transmitted disease only fatal to females whereas me Y chromosome testosterone built-in natural immunity I cannot get postpartum depression traumatization stress decompensation lose my mind because of deadly deprivations of TLC basic life supports air water nourishment comfortness joyfulness grandma's home cooking good nights of sleeping peace of mind running jumping playing exercising mandatory muscle maintenance and thanks to Hippocrates Janet G Travell acupuncture the most important therapy ever devised by humanity + the 7 categories of mental health medicines we concocted over the past hundred years no human worldwide has any idea how to use these drugs except for me serendipity.

[@j.mcconnell5260]

Make fibromyalgia pain free by treating the sacral Tarlov cyst doctors have little interest in.

[@DocToks]

yes!

[@Sapphire-idjits]

Hi I am very interested in helping him getting out the pamphlets and creating one for ankeling spondylosis. I have a son that was born with the A/S, J/R/A, and C/K/D. Hes 22 n his kidneys are same size n shape as when he was born. His L kidney is dead n the other worked only at 60% back when he was 12. We however did not know any of this till he was 12 yts old!! No he is not getting any kind of help. He was turned down for disability. They turned him down n yet he has only 1/2 of a kidney that is perfectly round n still the same size as the day he was born!!! Oh n it is only putting out at 50%. So if you could use help I'm here. I am knew to your channel I truly feel like FATHER lead me here. I am disabled with undifferentiated connective tissue disease, Mod /Sev RA, Fibromyalgia, DDD, DDJ, I've had 4/5 surgeries, plus more. I am still getting around pretty good but my RA doctor did not think I was going to b alive to next appointment back 23 yrs ago!!! All the above hit me at once. I lost my job which was nursing/radiology/lab tec. Over the years. I truly loved my work. Was the hardest thing for me to do! Anyways if I can help I'm here. Oh I do love in Florida.