Keeping Up With The Changes of My Chronic Illnesses (7/5/17)

[@GlenHunt]

The public does tend to believe that chronic illness diagnoses are static, unchanging things. That is *very much* not the case. It's difficult enough dealing with what is constant, but the guesswork in managing changing symptoms drives us just as crazy.

[@kellalafaire8534]

I laughed so hard when you tried to grab more than one Oreo-Os box. I got three when I found them 😂 #worth

[@ChronicallyJaquie]

Lol that is how many I wanted!

[@win-rawr1096]

I've been watching this channel since I was twelve. Jacquie was such an amazing person, and her videos are helping me through my journey, recently my symptoms have progressed sharply and all the resources and information she put out help so much.

[@mommamay01]

My husband broke his tungsten carbide ring almost the exact same way! He had just washed his hands and he was waving then back and forth, it slid off his hand and it chipped off and cracked all the way through. The jeweler said he hadn't ever seen someone break one so glad to see its not just my hubby.

[@ChronicallyJaquie]

That is exactly what Judd did!

[@mommamay01]

Chronically Jaquie What a weird coincidence!!

[@TheTandumbs]

That's the point of them. They shatter instead of bending so if one gets their finger smashed at the ring it it should right come off. Kim

[@allfortheebchildren6561]

TheTandumbs perhaps a titanium ring or one made from a durable metal may work better?

[@angelxngg]

Is it just me, or I really like her eyebrow shape ?😂❤️

[@leighholmes2419]

summer and angel 12 I love her eyebrows 😍😊

[@ChronicallyJaquie]

Lol thank you! I do not do anything to them, Janiece says I need to pluck them haha ;D

[@JustCuzs]

They definitely have a very nice natural shape to them. Janiece probably thinks that they would just look cleaner if you plucked them! However you are very lucky to have that natural arch shape! I have it too!

[@lena2023.]

dont listen to her lol her eyebrows look scary lol yours look great.

[@alexaadams4948]

Eyebrows are more of a personal preference. Different styles will work for different people depending on what they like.

[@Maouie]

I just got out of the hospital yesterday. I feel really crappy because of all the drugs that were given to me. But your video made me smile today, my Chronic Illnesses have been changing on me lately and I've been doing my best to keep up with them. Watch your videos and other youtubers with chronic illnesses and seeing the support you guys have in your lives. Make me happy and smile, because I know that I'm not weird and I'm not the only one with a chronic illness

[@Potterhead34]

Judd's Harry Potter reference made me so happy! I hope you get the ankle pain under control ❤️

[@lionessprowess3581]

You guys are one of the strongest people I've met and a great model to everyone: with or without chronic illness.

[@noraallen4356]

I just want to day thank you Jaquie for making me smile. We have to put my dog down tomorrow and I'm tiring to take my mind off of my sadness. You make me so so happy and I want to thank for your continuous positive attitude! Keep smiling and don't let the chronic illnesses get you down!💕

[@Pretendkid]

Thank you, Judd, for your service, and for working on July 4th!

[@lynnrose7562]

Your mother has beautiful hair. It was really nice to see you and Judd sitting on the floor talking about your chronic illnesses and how you have tools.

[@ChronicallyJaquie]

I am glad you liked that part (:

[@SpoonieEtte]

I just had a thought come to me; an added benefit of vlogging when you're chronically ill, a chronic illness warrior can show their vlogs to their doctors possibly for a visual of how they are doing, which could help in doctor's appts etc.

[@bmwpcr]

you are SOOOO right. I can be having an okay day with my Crohn' s disease and POTS and Fybro the next day not so much... We are lucky to live in an age where we do have to tools available to try and help us function day to day. hugs to you both....

[@jjkkvicfan]

I wish we had the Oreo cereal here in Canada too! Also, for pulled pork, the simplest way to make it is... put pulled pork in the slow cooker submerged in root beer. Cook for 6-8 hours in slow cooker. Drain, shred, and mix with BBQ sauce. If you want it extra flavourful, put it back in the slow cooker for 1-2hrs on low.

[@lkctlovesaf]

I'm always so happy to see your positive vlogs!!!! Life is all about adapting, and of course with your chronic illnesses, adapting to your changes is a necessity and I'm so glad that you're addressing those changes so positively. 😊💓

[@CirillaFiona]

OH YEAH GOT HERE IN LESS THAN A MINUTE! Love you Jaquie💗💗💗

[@ranchugoldfish3822]

I hate to see you suffer but I am allowed to feel normal when I can not complete what seems like simple tasks. I to have completely depleted all my energy in the grocery store. I feel so self conscious when I can barely walk to car. I have had to nap just to drive the 3 miles to my house. Thank you for sharing your life with us. I get so much emotional support from you and other KZbin chronically ill family. Bill

[@stephanieandsophia]

Custard in the U.K. Is yellow typically and it's served hot usually with a lot of desserts!

[@jodiesaunders88]

Steph Berry I prefer cold custard though and in asda the other day I saw frozen custard, custard is under rated I love it.

[@lifewithoutspoons8486]

I was so confused, not sure I've ever even seen frozen custard!

[@dangel9511]

Steph Berry - Where I'm from (Washington, USA) I've also only had and heard of hot custard. I was confused when she was saying frozen custard lol.

[@mollyapteros]

Custard is basically just ice cream with more egg yolk, which makes it thicker and creamier! It's not very common in the US but the chain fast food place they mention, Culver's, is known for it.

[@stephanieandsophia]

motley sun ah I see! It's definitely not that in the U.K.!

[@annaliseabbott9388]

I only starting watching you a couple months ago but you are such an amazing human being I have never seen someone with so much resilience and is also so humble and beautiful. Keep up your incredible work!!!

[@cpolinsky13]

Jaquie I can completely relate with Oreos. They made a s'more cookie for the summer time and my family gives me a hard time since I get just as excited when I see them. However can't find them his year :( wishing you Judd and Harlow all the best. Thanks for making these videos one of the best parts of my day .

[@Nat77ification]

She’s so cute with her Oreo cereal thing lol 💕 Jaquie, I found you after you’d passed, and I’m working my way through all of your vlogs... when I get to the end I know I’m going to miss you for ever. Love you Jaq xxx

[@howlintherain]

There's a local/family owned ice cream place near my house that's on a farm, and they make all their ice cream from scratch (starting all the way down at their own cows) and it is sooooo good. They also make sandwiches and make all their bread and cheese from scratch, and I'm pretty sure they get their meat from another local farm. It's seriously the best though I wish I could send you guys some

[@ChronicallyJaquie]

I love cheese, that sounds amazing!

[@OGBatty]

You should try going to a store that specializes in running shoes. They can look at your arches, which side of your feet you put more weight on, how you walk, etc. and find you shoes that might help with your ankle pain.

[@kattieanderson5809]

Grabbing the cereal boxes was cute :) lol..baking for a new neighbor is so nice to see..not everybody does that still these days! nice :)

[@wendy-8560]

i'm a new subscriber and i have some illnesses also that keeps me from doing a lot of things i would love to do. watching your videos made me realize i'm not the only one struggling with my chronic illness. thank you so much for being honest and up front with everything.

[@moniquepeyre3038]

You're so inspirational! I enjoy watching your videos. I've dealt with major GI issues for a few years now and it's easy for me to feel sorry for myself. It makes Me depressed sometimes to never feel good, but you've inspired me for sure... to always see the positives. I was recently diagnosed with gastroparesis. If you have any advice for me on that id really appreciate it. Especially on what to eat. Xo

[@mjturner6291]

That Harry Potter reference though 👌

[@ChronicallyJaquie]

Lol I didn't know he was referencing HP

[@jroostah]

Chronically Jaquie I missed it myself... maybe it just went over my head...? what was the reference?

[@EmmaSteelhand]

jroostah I know I'm a month late but, to answer your question, the reference was: I've done my waiting 10 years of it!! (Sirius Black says that in hp 3 but he says '12 years of it! In azkaban!!!')

[@jroostah]

Emma Stålhand thanks!

[@samanthajones7114]

Yay I am glad to see you had a good day! 😊 I love seeing you and Judd spend the day together. You two are adorable ❤

[@MP-mj3rj]

I do the same recipe for the pork. However it won't shred if it isn't in there long enough. 6-8 hours at least. The longer it's in there the more tender and easier to chew and digest, it will get. After shredding let it sit in the sauce a little longer and absorb it. I think I know what I'm making for dinner now 😋

[@paulsgirl28r80]

Hi jaquie I have neurofibromatosis and three inoperable brain tumours and stage four liver disease! I may be in pain but I don't show it but I love watching your videos you and Harlow make my day

[@ChronicallyJaquie]

Happy to know Har and I can bring a smile to your face! (: I understand the pain situation. Most of the time, people cannot tell when I am in pain.

[@lucyrogers7196]

I loved Judd's Harry Potter quote about the waiting😂❤️

[@laurenatorness]

Jaquie, I thought you were going insane these past few weeks about the cereal. I knew it was discontinued, but I never heard it was coming back. I was sure your search was futile. Glad to see you got your cereal though!

[@amandas7361]

You deserve 100000000000 subscribers for how tuff you are and how much effort you put into KZbin to educate us and bring us into your life :)

[@ChronicallyJaquie]

Awe thank you! I am so happy you like my videos. I do work hard to show the honest truth and educate as much as possible (:

[@karenratcliff6028]

OMG your face with the custard was hysterical!!!! When Dairy Queen opened in our town they had to close a lane of traffic for a week because the line went so far down our main street!!!

[@jessicagibson6011]

That is the best analogy ever. It's like using a drill over a screw driver. Gets the same job done except one is way easier to use.

[@christinereinelt5172]

Watching you enjoy your cereal was the best part!!! glad something so simple that brought back memories made you feel better :)

[@kimberlyhayes6006]

every time I read "chronic illness", I read it in jaquies voice lol. the Frey life had "chronic illness" in her vlog title yesterday and I read it in your voice. riveting! lol

[@nattalieymurphy5960]

I'm glad you found your Oreo O's. they aren't here in Illinois yet but I hope they get here soon. Harlow is so adorable!

[@hershythechocolate]

Nattaliey Murphy yes they are... well here in Chicago yea

[@karilyn1094]

I really like your videos and have watched many of them! Especially the ones about Harlow! I have a service dog myself to help me with my deafness. And if you wonder how I can hear what you say in your videos, it is because I partially read your lips but also use my Cochlear implants. I don't pick up on everything but I can understand and figure out most of it. And I admire you for your strength with handling the extra challenges presented to you in life. I also admire you for your openness about your chronic illnesses.

[@ChronicallyJaquie]

My dad is nearly 100% deaf and also lip reads. I am trying to get all my videos professionally captioned for the deaf and HOH community (: The KZbin auto captions are not very accurate, as I am sure you know lol!

[@karilyn1094]

Auto captions can be really hilarious, especially when KZbin tries to auto generate the British English accent. You are American so I think KZbin has an easier time auto generating subtitles for your videos. Either way, I like that you face your camera as often as you can. It makes it a lot easier to read your lips. :D... And it makes it a bit more personal too. I have to read lips because as awesome as Cochlear implants can be, they are not perfect. And the same can be said for auto generated captions!!! Do you use sign language with your father or is his deafness the result of age?

[@cathrenriddler45]

You and your Oreo cereal is like me and French toast crunch... ten years of my childhood being discontinued... it has returned!!! Glad it made you feel better

[@ds93]

Tell Judd I appreciate that Harry Potter reference towards the oreos 😂😂😂

[@unholytrinityx]

Hot Devon custard is the best! I can never tell the difference when I get frozen custard to ice cream lol. I've found Skechers memory foam trainers and Tevas have been very good with my ankle, knee, hip pain but they're starting to not be enough and I'm having to rely on my crutch (or rollator more), just waiting for my knee supports! Good luck with the doctor, hope they can help with the pain and get a plan in place! Another great blog ☺️

[@ChronicallyJaquie]

Laura B. I'm glad you liked the Vlog! I'm wondering if the doctor will suggest PT or ankle supports. Hopefully just rest and ice (:

[@clayrebarkema320]

If you ever try that pulled pork recipe again, I would use pork butt as your cut of meat. It usually has more flavor and it pulls apart like pulled pork should. Also, even though you have all these illnesses, whenever I watch you, you never seem to stop smiling. You always look on the bright side and Judd is right there with you as well. You encourage me so much. Thank you Jaquie.

[@ChronicallyJaquie]

We used pork butt but it was still so tough, I think I needed to put it on low for 8 hours, not high for 4. And thank you! I think smiling is a great thing to do through tough times (:

[@heyhailss]

I think it's so sweet that you got the silicone ring personalized! :)

[@ChronicallyJaquie]

Thank you! :D

[@libertyguest8965]

Bless your heart:( I could tell you were fading, you started looking very pale. I pray for you daily Hun. God bless you.

[@ChronicallyJaquie]

People have said that I go pale or greyish when I start not feeling well, I never notice but I guess others do!

[@laurettamackie7991]

I have acid reflex I know how you feel not being able to digest foods properly. I have loved watching your videos lately and having someone who understand digestive problems

[@dragonfly99]

Hey Jaquie, love your channel. I'm sick with EDS, POTS, and many more. I just wanted to say the way to make shredded meats is to basically overcook them. So it looked like it just needed to cook longer. I love slow cooker meals, makes my life much easier. Thank you for all your positivity and informative videos. I wish you well.

[@Dunn.a1]

So happy you found your cereal!! I might have to just go buy a box 😉 The other day I was able to go to downtown Chicago for some of my appointments. (I live In the city) I found out I have a terminal blood disorder, I'm only 16. I determined to live life to the fullest! 💜 I'm hoping to when school starts I'll be able to attend. 💜💜

[@sarahp6554]

It makes me happy to see you eating different foods and taking joy in the taste even though your illnesses make it hard to eat much. I've had many digestive issues since I was a kid. In fourth grade I think I was absent at least one day a week because I felt so ill. So over the years I've tried cutting out various foods that I thought might be part of the problem (like pork) and tried introducing foods I thought might help (like yogurt). I was also on daily medications for two years. Some of it has helped, others not so much. But I still love food. I hope you keep enjoying food and life in general. Also Harlow is so pretty and smart.

[@ranmaostea4744]

:( awww I hope you feel better! I love this channel so much! Keep moving on girl! 😋❤️#Oreosforlife!

[@ChronicallyJaquie]

Thank you!

[@jaydamclaren7257]

lmao when Jaq starts picking up a million boxes of cereal. so funny!

[@valenziajones353]

Love your videos!

[@averysvlogs8398]

Hi

[@valenziajones353]

Avery vlogs Mcgill Hi!

[@averysvlogs8398]

Valenzia Jones I subscribe to your KZbin channel

[@valenziajones353]

Avery vlogs Mcgill Thanks so did I

[@ChronicallyJaquie]

Thank you :D

[@allierich4664]

frozen custard is different from ice cream because it has more egg and less air in it! It is spun at crazy high speeds and frozen very quickly to make sure it's nice and creamy. It's much more dense

[@ds93]

I live in Wisconsin where Culver's are EVERYWHERE lmao. (I agree though DQ is still the best) custard is definitely creamier than normal ice cream. It's cooked more and is good for people like my mom who are lactose intolerant :3

[@allfortheebchildren6561]

Danyell Stoerger I don't know what they put in the custard your mother is eating, but my mom (who is also lactose intolerant) cannot eat custard because it contains milk and cream. :)

[@ds93]

AllfortheEBchildren my mom says she doesn't get bothered by custard! However, She can't have ice cream, especially from Dairy Queen Or McDonald's so idk man. Everybody's different :)

[@craftingemily]

Danyell Stoerger when I was younger I was lactose intolerant and I was so sad when I couldn't have Culver's or Kopps when we traveled about twice a year to Wisconsin.

[@yasmineisaola2050]

Your honestly so pretty and you inspire me in life to be always positive and push through my bad days ♥️

[@Krista2882]

You need to try Rita's frozen custard! It's so good! They might not have any locations in Florida, though.

[@sarakoponen7537]

I can relate, I have all kinds of tendonitis. You might fight that walking on softer surfaces (e.g wood) is easier on your achilles. Running shoes with a good cushion might help

[@syriansugar1010]

I have tendinitis in my ankles and feet too. It sucks but you can fight through it!

[@kendrabillings1418]

I had to laugh about Hippo when y'all was eating the custard. I know it a big no no, my SD's do the same thing. one of my SD's try to act like not looking or begging it's cute. she's a total different dog with her vest on. lol

[@ChronicallyJaquie]

She made us laugh because she licked Judd's ear ;D Trying to be inconspicuous

[@Shelbz92]

The vanilla mault from Culver's is the best and the pumpkin pie one omg but that's a seasonal one 😫. And I'm hoping they come out with the variety of Oreos cereal cause I loved it with the marshmallows too

[@izzydelira7859]

it may sound weird, but i have ankle tendinitis and the best way to stop the pain is to stick your feet in a bucket of ice water for about 5-10 minutes (or however long you can tolerate 😂) and it really does help, i try to do it once a day but it helps for about a half and hour to an hour and a half!! it's pretty amazing and much better then ice, i try to ice my feet right before i head off to bed! hope this helps 💕

[@aimeejenkins9697]

Omg I've never been so early Harlow is sooo pretty 😍

[@emmy3561]

It makes me so happy to watch you and your family ❤️❤️☺️😘🐾 I am a newer subscriber of yours but you're definitely a cool and tough chick! I live in the panhandle but if I'm ever in Tampa, let's grab Menchies😂😉 you are a strong lady! And thank you SO SO much for notifying me Oreo's cereal is back; That's my childhood in a cardboard box ❤️❤️

[@PattyNieto]

thank you for all your vlogs. I have learned a lot when it comes to training my service dog. Well she is trained but as you said it yourself they are always learning.

[@sunburntsilverado7665]

I hope that your pain can be relifed and that the doctors can find was to help with your illness

[@allistrata]

How was the pork? It probably could have used a little more time but it still looked tasty. If you don't feel like shredding it by hand next time, use an electric hand mixer to shred it in the slow cooker. It takes literally seconds. Anyway, good to see you had a better day yesterday 😀 those rare days are such a relief when we get em.

[@emma_in_mn]

CULVERS ICE CREAM IS SO GOOD !!! It's like soft serve but creamier ! You have to try one of their concrete mixers! It's like a DQ blizzard !!

[@lacylovechannel7325]

I watch your videos because I have gastro paresis and asthma and migraines also severe anxiety . My sister has Austio Genesis imperfecta and asspburgers sensory processing disorder. My mom has lupus immune disorder and diabetes. A lot of times my dad calls me a hypochondriac but not my mom or sister idk why. Everyone says I'm too young to be sick I'm almost 12 you are great youtuber I watch you every day love your vids so so so so so much you are a great inspiration and you educate everyone who watches you and I respect that thank you. Also Judd is so awesome thank him to for supporting you. :)

[@sarahegan7521]

hi! your channel is great! keep making videos to your ability!

[@Sara-sk7jj]

Judd mad a Harry Potter reference!!! I don't know why that made me so happy 😂

[@callieking5202]

For the pork, if you get a pork butt, place it in the crock pot with a can of dr pepper or diet coke and cook almost all day on low. Pull it out, and it should shred well. Then place back into the crockpot and stir in the BBQ sauce. It works wonderfully

[@kimberlyhayes6006]

that was soooooo cute, you trying to take all the cereal.

[@withlovetayla]

In New Zealand 🇳🇿 we don't have any cereals like that I wish I could try them also you make me so happy

[@andreahorner421]

I need Oreos cereal now. It was so funny watching you grab the boxes. Made me smile seeing how that made your day. Hey when you have been waiting this long you got to stock up!

[@Tris0728]

DUDE CULVERS IS MY FAVORITE PLACE I've only found one in Indy but I'm obsessed with it-

[@GombasGirl]

Hi Jacquie! The restaurant I work at has custard instead of ice cream and I didn't understand why it was different either. Custard is just more egg based than ice cream is

[@kendallhomie3389]

Omg I am eating Oreo cereal right now while watching you eat Oreo cereal😂❤️

[@savannahballard5786]

love your headband!!!!

[@13meli55a]

I started having problems with tendonitis in my ankles even with custom orthotics for my flat feet from eds. My orthotist recommended stiff sole shoes because regular soles plus my floppy ankles made my leg muscles have to work extra hard. Of course, listen to your body and your doctors, and don't put too much faith in the advice of a random commenter, but it might be something to consider until you have a chance to see a doctor.

[@nancywilliams6777]

Frozen custard has less air mixed in than ice cream. I love it‼️

[@KeyWookTop]

sending love from singapore! 💓🇸🇬

[@catiemickey7027]

You're videos inspire me so much . Thank you❤️

[@kokopuppy57342]

Tungsten carbide is extremely scratch resistant but is prone to shatter because the material does not flex to absorb shock. The exact same thing happened to my guys ring. He washed his hands and while shaking them off the ring slipped and broke into 16 pieces. Hopefully you are able to get a new one :)

[@skilled_cabinet7528]

I love this channel she is my favorite KZbin channel

[@ChronicallyJaquie]

Awe thanks! (:

[@skilled_cabinet7528]

Chronically Jaquie I love how positive you are and you have inspired me so much . can you give Harlow a hug from me ?

[@donnasparkes9579]

Beautiful job on your mums hair she looked great 👑 and I love the headbands you have been wearing too they look awesome Jaquie. You had been waiting for that cereal for so long think I would have filled the trolley up with it 😂 ! So nice to see more of Judd in the vlogs he has a wicked sense of humour .... I have 3 boys ... 20, 16 and Hubby .... Lol .... they all have a sense of humour that is wicked too so never a dull moment here .. always nice to have a good laugh... Take Care and Hugs from Australia ... 1.16 am here but have been staying up late to watch you 😴😴😴😴Nite....

[@miss-megative2683]

Jaq! Get the Oreo cookies and creme mixer from Culvers! It's to die for.

[@savannahpennington2346]

Your brownies always look so good!! And wow I've never heard of custard in Canada that's a peculiar dessert 🍨 ! Lmao

[@EJRB22]

Love your videos. ❤️ you are so strong and brave. ❤️ I love you all stay strong ❤️❤️

[@taylorwright958]

spot on with the motorized cart.

[@kaitlynbradley1307]

you should use something carbonated such as Sprite next time with the pulled pork! :)

[@amya4680]

Please see a physical therapist! I think I have hypermobile ankles and I did strengthening exercises after spraining one for like the third time and it helped so much. Super easy band exercises. You can do them sitting down.

[@CharleneWoelk]

She's like a kid in the candy store with those Oreo cereal.

[@melissaguzman7485]

i love your videos so much,im sick too and your videos with you and harlow make me smile keep up the good work❤❤❤❤

[@utoobcandy]

I like them both! Try the Red Raspberry custard when it is the flavor of the day at Culvers, it has fresh raspberries in it!

[@tanyasanchez1225]

STAY STRong jaquie

[@allfortheebchildren6561]

Here in Cali, custard is make with milk, eggs, and cream without the use of ice, whereas ice cream uses ice along with salt and other ingredients. P.s. I tried Culver's ice cream when I took a trip to Colorado and so far it's my most favorite ice cream place! They don't have it where I live though 🙁

[@wt0416]

if Judd massage your ankle, does it help with your ankle pain? just a suggestion. or some kind of accutuncture? or heating pad? lucky!! you found the Oreo cereal!! childhood memories are the best!! I can't find it here yet!!

[@ChronicallyJaquie]

I think it will get to wherever you are soon! If it is tendonitis like my doctor suspects I just need to use ice. (:

[@GenreJordan]

"Custard" it sounds like a dirty word plus mustard. LMAO Judd is so funny

[@mostwantedchocolatebar2108]

Did your mom say "despacito" At 7:33 😂Lol She's Funny That's Me All Day 👌

[@brigettesam2214]

Thanks for sharing about the leg rest pillow. I think it would be great for me. I'm going to look into getting one