😓 Guilt With Chronic Illness & My New Shower Chair! 🚿 (9/2/17)

[@tangalalynnbuchholz5479]

Little tip. Take a shower plastic shower curtain and cut it to fit in the slat of the chair and to water will not get all over. I did mine that way. Hugs

[@lynnrose7562]

Great idea!

[@bek9123]

I was just coming to say this! :D

[@tangalalynnbuchholz5479]

Great mind's think like y'all❤🙏😋 I am 49 yrs old country girl. Stay active as long as ya can. Think good thoughts. Judd is a wonderful man. I am glad he understands when you're sick. So glad for this page. Y'all can tell I don't get out much. LOL. Prayers for y'all💕❤🐶🙏🙏

[@tangalalynnbuchholz5479]

It really helped me. I have an inside shower curtain and a outside cloth water proof one. I also have magnetic on mine to help hold to the shower wall's and tub. Prayers and stay strong❤❤🙏🙏🙏

[@ashleykeen9215]

Tangalalynn Buchholz I agree!

[@xclumsyangelx]

thanks for posting. I don't have physical illnesses like you but i suffer from dyspraxia, depression and anxiety and also have a low energy budget as I struggle with fatigue. It's really nice to see you doing so well with your limited energy budget, i find your videos really comforting. Keep it up! xx

[@keldegnan0809]

I also follow the Frey Life on KZbin. And it's very ironic because you both posted videos today about guilt and chronic illness. Thank you so much for your transparency and spreading awareness.

[@georgiaskipper6057]

As someone who is studying to be an occupational therapist, I really enjoy watching your vlogs because it helps me see how much of a difference the equipment makes. Thank you so much for being so educational and also just an all round great person, your vlogs inspire me both as an OT and as a person xx

[@KentuckyRanger]

PLEASE! Don't feel guilty! That's the way of chronic pain, you have good days and bad. Enjoy the good days, and distract yourself on the bad days with a good movie, or play a video game. I use my PS4 and PS3 to play games and keep myself distracted. I also make goofy KZbin videos, and I just started streaming. You'd be an AWESOME streamer on youTube!!! I can see the Q&A sessions, just awesome to be able to swap good and bad stories. It's really been therapeutic for me because it keeps me distracted when streaming and watching all my KZbin friends, as well as random videos we stumble across. We've watched a couple of your videos because you really are an inspiration! It would be so exciting to see an alert that you're live on KZbin!

[@ChronicallyJaquie]

Feeling guilty is a natural human emotion, it is good to let in the negative emotions when you need to. The important part is to work through them and keep moving forward! (: And yes we did enjoy our relaxing day at home, Judd played games all night lol

[@xMariaAngelx]

Judd you are the most patient, kind , understanding person and have such empathy for Jaquie I think you are one of a kind and God broke that mold after he made you! You know you deserve some of the comments toward you for being a wonderful husband taking excellent care of Jaquie! 😀

[@flj7]

So excited for your new tool! I know if I'm having a rough day, at least a shower will feel good, so I'm glad you will have an easier time accessing your shower and showering independently.

[@katsch]

Jaq, I'm SO happy you like your new shower chair! It's an awesome tool and I'm so glad it's helped you out! We had a shower chair in our shower for my dad because he was chronically ill with VHL (Von-hippel Lindau disease) and I know how much it helped him, especially with his independence. We also attached a few rails on the outside of the shower to help him balance as he transferred in and out of the shower. Sending all my love. 💓

[@MelissaHillikerNPets]

Thank you for always being so open and honest with us! I think I can speak for everyone when I say we ALL Love you and appreciate all that you do even when you are not feeling too great.

[@ChronicallyJaquie]

Transparency is my goal, I think showing the good and bad is important

[@adventure_hannah3841]

Oh my goodness, this video helped me so much. :) Just four months ago I was in a really bad rock climbing accident and now I have a traumatic brain injury. Migraines, nausea, dizziness, fatigue, and sensory overload are parts of my daily life now, and I'm learning to cope and relearn my limits. I have been feeling guilty and upset that I can't go out with friends or do activities I love, but your positivity and resilience (I've been binge watching all day for the past few days) is inspiring and it feels very good to know that I'm not alone. I can also totally relate to the showers. Yes, showering takes a massive amount of energy when you constantly feel like you're going to fall or pass out. I'm very glad you enjoyed the new bench! I've only been using a step stool but I may look into a bench!

[@ChronicallyJaquie]

You will learn that a different life does not mean a worse life! I believe in you

[@CoreyAnneTeacher]

My mom actually has two shower liners in her shower. The liners go in front and on back of the chair on the inside of the tub and you can choose to have one or 2 shower curtains on the outside. It makes it a lot less wet and it is easier for her to maneuver. She has MS and the chair was a game changer for her also!!

[@laylas4300]

No one blames you Jaquie. Everyone with A chronic Illness has those kinda days, even people without. It's a part of life but Despite your illnesses, you still manage to be happy and put a smile on peoples faces and I find that very inspiring. So keep being you. Your winning in my book :)

[@debras2845]

Happy to hear you now have easy access and a safe shower. Love to see you smile.

[@joanmilano5302]

I have a shower bench, too - I love it. And you're right, things that seem so easy to everyone else can be very difficult when you're disabled.

[@savannahballard5786]

I used one of those chairs for a few months after my hip surgery. It allowed me to shower eaiser even though I required help. Was a life saver! So happy for you!

[@kiky.mp4]

i don't have chronic illnesses but this has inspired me to continue my life and be grateful afterall.. Thank you so much and i'm very happy for you!!

[@heatherd.9390]

Oh Jaquie, this vlog really hit home for me. I had a spine/spinal cord injury nearly 7 years ago now and have struggled with many things. One of my biggest issues is nerve damage (both numbness and hypersensitivity (aka radiculopathy) in my lower leg and foot. I have dropped toes on that foot and it is a huge tripping/falling risk. With the radiculopathy, I am in excruciating pain if even air blows on my foot/leg. I have not worn a proper shoe or sock on that foot for as long as the injury has been around. I sleep across my bed as opposed to sleeping head to foot of the bed, so my 'bad' leg can hang over and no sheets or mattress contact is made. I also really understood your comments about feeling guilt. I am a single mom, so the guilt is very, very real. My daughter is 17yo and it is easier now that she drives, etc. but I find she doesn't do things with me anymore, since she doesn't 'need' me to drive her around. On the other side of that is the fact that if she goes to do the things we'd normally do together with a friend, I don't feel the guilt for having to take rest days, or on the days when my stomach is acting up, or my meds have hit me especially hard. It is hard to stay positive all the time. Sometimes I just need some time to be miserable, have my pity party and get it out of my system. After I've had that time, I suck it up, put on my strong mom face and get on with as much as I can manage to do, without having to pay for it for the next few days. It's a juggling, balancing act that is ever changing. Just when you think you've got it figured out, a new issues arises. Oh well, I guess it keeps us on our toes!

[@MCWheelEasy]

Do what tangalalynn said and also place a towel under the chair, not on the leg but right at the edge of the tub so it absorbs the water that could still fall out. I'd also get a little water absorbent mat to put outside of the chair so you don't slip coming out of the water.

[@rennells]

I know the feeling. I wanted to go to church yesterday and pushed myself to go. Coughing all the way through. We went to Lowe's and wandered around having fun laughing between my coughing fits. I am paying for it today, but it was worth it!

[@disrael5199]

Glad the shower chair worked out. Yeah! Sending prayers!

[@ooXChrissieXoo]

I'm learning so much from your channel Jaquie. All these things I never know that some people are dealing with. Even my attitude toward chores changed a lot. Simply put you taught me how to make it enjoyable rather than looking at it like a chore. Great video and thanks for sharing!

[@jsomebody2289]

These vlogs make me feel not so guilty about having a chronic illness. I get frustrated with it being unpredictable and it doesn't fight fair. I have an amazing and understanding husband, but like your husband his work prevents him from being available. I'm having to learn how to stay safe and cope independently. It's hard and scary. You remind me when it's okay to rest and when to push through. And it's okay to cry in frustration and I can find joy in the little things, and some days I need to recognize that sometimes accomplishments like a shower aren't little, they are huge, and I need to celebrate them.

[@candycane-xn6uh]

I turned on the captions when Jaq was quiet and the had to start tracking all the different variants of 'Judd'....jug, Chad, Jonah, etc lol and Harlow turns up Carla.

[@ChronicallyJaquie]

Omg, Carla? Lol this is why I am trying to get professional captions on all my videos!

[@lenavlopes]

I could agree more with what you said about the difficulties with daily and basic activities. Back in April I've teared 3 ligaments on my knee and I couldn't walk for months. Everything was so difficult, and one of the worst parts of all of it was depending on my family for everything. It opened my eyes to a new reality. Not only I appreciate more my health, my knee which is getting better, but I also feel so much sympathetic towards people with disabilities or any kind of issue related to that. Everyday is a battle, and you are a truly inspiration. Keep spreading all this important information, you are doing a favor for humanity.

[@christyinthecarolinas]

I have crps and I can tell you..yes, showers are THAT difficult! Without a doubt, halfway through, if that, I get weak, dizzy, out of breath, my heart races etc and I've almost passed out so many times. It sucks, because I use to love to shower. Now I get baths, but it's hard to get out of the bath. Catch 22 for sure.

[@Kriszee4]

Christy In The Carolina's yes, it is so difficult getting up and out of the bath when the reason I took one in the 1st place is because I couldn't stand in the shower! Maybe I'll get this bench for myself 🤔

[@janibaldwin7109]

I think it's so freaking sweet that Judd is so sweet and he's so understanding to Jaquie. I hope to be that awesome of a husband when I get married.

[@Mindym16]

Jaquie - I love your vlogs! I have IBS, interstitial cystitis, and chronic pain in my lower back. I feel VERY guilty when I can't fulfill family plans. Luckily, my family is very understanding and we find other things to do where I can be comfortable or I just stay home. Family & friend understanding is what gets me through. I still have times where I get down but you have helped me keep a positive attitude. Another thing that helped is that I stopped calling it "my IBS" or "my back pain." Now, I just say the IBS is acting up. Somehow that simple word switch helped me mentally. Thank you for putting yourself out there & raising awareness for living with chronic conditions!

[@ChronicallyJaquie]

Melinda Musumeci I like that word switch!

[@soof9727]

I also feel bad when my body doesn't allow for my plans to happen... it can be really frustrating and I know how you feel💙💜💟💚🍀🖤💖❤💛

[@rae1957tn]

Little Mix Lover I'm laying here today feeling guilty because I don't feel like I can cook today. I'm sick of not being able to clean house or cook , my house is so dirty. Seeing Jacquie's house makes me feel worse

[@soof9727]

rae1957tn, Don't feel guilty, it's not your fault💙💜💟💚🍀🖤💖❤💛

[@ChronicallyJaquie]

It is really nice to know we are not alone in our battles! And it is 100% okay to feel bad when you need to, as long as we keep striving to keep moving forward

[@annaroseannadanna1]

Both my husband and I are disabled. Him from a birth defect & myself from various illness'. It's hard but we get by the best we can. I just don't allow company because with both of us sick so often, the house looks like crap. He doesnt help at all, it's not that he's unable to, he just doesn't, he's all thumbs anyway and i can only do so much before I have to stop and then I'm not good for a week and time to start over again. I don't know how you keep your house so clean Jaquie!

[@rae1957tn]

SuzyQue your husband sounds like mine. I never invite anyone over the house looks like we've been robbed and they tossed everything.

[@alyxfezer8926]

You guys are so amazing!! The way you stay positive with everything going on is awesome. I started watching you about 2 months ago and have loved you ever since. Harlow is so cute and very happy to help you. You have always inspired me to keep moving. You and Hippo are such a good team. How is Hippo so smart?? My dog would never be able to pay attention for that long!!

[@cynthiajohnson4329]

As usual, wonderful content! Thank you!!

[@2listening1]

1:59 Especially in our relationships with our cars! Constant compromise with the machine, haha! ;)

[@queen_of_neptune7309]

Hi Jacquie, I've discovered your channel recently and youre already a big inspiration for me, as someone I know also has a chronic disease. Your videos make me want to help her even more! Also there's no need to feel guilty for your disease as its not something that can be helped. I know the struggles of such a thing very well, and all you can do is stay positive, and don't let that disease get in the way of your life. Stay positive, and keep doing what youre doing, because its all appreciated!

[@ChronicallyJaquie]

Thank you for noticing that is cannot be helped. Saying "do not feel guilty" does not help in my case. The important part is to work through it!

[@queen_of_neptune7309]

Chronically Jaquie exactly. Its the best you can do. Just keep fighting!

[@TheRawLife1]

My hubby is the best with putting stuff together 😂😂! Now let's see if paul can assemble our house together 🤣

[@meganlovesdisneyandcrafts4780]

The Raw Life Paul's "Honey-Do list" now includes Building a Double family house!😂

[@edwardblakley6130]

I'm better at putting stuff together than my husband lol.

[@AtomicToaster33]

I LOVE THE INTRO!!! ❤️😍❤️ Great video!!!

[@ChronicallyJaquie]

Awe thanks! I worked hard on it (:

[@AtomicToaster33]

Chronically Jaquie 😁😊👌🏻👍🏻

[@snowaier]

keep moving forward, Warrior Jaquie! I hope you have a wonderful day coming real soon.

[@JustMe-xw8ns]

I can only shower once a week using my stool its so exhausting and hard I relate with the shower struggles its almost impossible for me.

[@jillybean6]

Same chair I use. Had to upgrade from a single seat. Mine came from a medical store we have nearby

[@chit-chat007]

I feel you on the whole guilt thing & it’s definitely an internal daily battle for me:( & of course I know it’s not my fault I am ill however, it doeS NOT make me feel better at all.

[@meganlovesdisneyandcrafts4780]

YAY! that smile and excitement you had demonstrating the shower chair says it all! It is hard when you have those days, but After Judd did the errands he just hung out ! I dont think he minded, He could have gone out so that helps, ya know?

[@claireelizabethblake8911]

Hey, you have no reason to be guilty for what you can't control. Things will be what they will. You can have fun and do things.

[@ChronicallyJaquie]

That is what I tell myself! But it is still a natural human emotion, it is healthy to feel what we need to feel. Both positive and negative

[@danielgartin6993]

Claire Elizabeth Blake I like her she is so sweet

[@mayaceasar55]

I'm looking into getting a shower bench. At this point in time I'm just sitting on the floor of the tub.

[@peonylavender]

Ooh, your new shower chair looks amazing! 😍 I had no idea they made bench ones like that, that would be so useful. Also, I can relate to the guilt, I hate when my disabilities interfere with plans, I feel terrible about it.

[@ChronicallyJaquie]

It is a natural feeling, the important part is to work through it!

[@peonylavender]

That's true! Watching your videos has helped me with that a lot, actually, and staying positive!

[@Aura_bills]

keep strong

[@danettehartsock5595]

I have a friend that fell trying to get out of the tub. She was on the floor for two days before her boyfriend got in and found her. She was dehydrated, had four broken ribs, and broken femur. If she had a transfer bench like yours, she wouldn't have suffered like she did.

[@phoenixmoon5580]

Everyday activities don't tend to happen every day! I used to 'hop' in a shower once or twice a day before I got ill. At risk of grossing everyone out, I consider myself to be 'miraculously super well' if I can shower once a week, and 'super well' if I can shower once a fortnight! (This is true even if I need to spend a day or two in 'crash/recovery' mode, although I usually need a less intense week or more to do that. Taking a bath is even harder work for me than showering, and I've already got lots of equipment round my current residence to make a lot of aspects of life easier for me by tiny tiny amounts per task!). What many people don't understand is that I want to have a shower, and I frequently worry myself into either several panic attacks, or one that loops for days, because I fear that I will stink out the building and other people dislike where they live because of it. I stress out about showers because 'I MUST' have one on a certain day, and that day then turns to be a day where for me to try would put me in danger. I have actually made myself ill with an additional illness (such as infection) through the stress and panic of just trying to not be a nuisance to others, and made other conditions become more symptomatic as well. My body tends to sweat profusely when 'over done' like if overstimulated, overexerted, overstressed, overtired, in pain, and if too hot or too cold, or both simultaneously. Showers overstimulate, overexert, overstress, tire me out, overheat me, and smaller details of my building means that I can't stop and start, or go slower with the shower. At times I also can't mentally logic the concept of 'I sweat therefore I smell, therefore I need to shower. However, showering makes me sweat. So how can a shower be cleansing of me?'.

[@ChronicallyJaquie]

That first sentence is on point! So true. I do not shower every day.

[@phoenixmoon5580]

Jacquie, I feel so embarrassed and like my action is super bad, like worst than anyone else on the planet. I have depression as one of many conditions that impact me, so I guess that adds to the reasons. However, it just means that I lack the energy that you seem to show in your vlogs, and obviously the positivity you have doesn't occur in my limbo existence. It would be a good day if I had overwhelmingly negative or bad emotions (simply just because I tend to not have any feelings what so ever, and so feeling negative feelings would ironically be a positive sign. I guess I don't have the self worth or want to do, and so it isn't as important. I am also very very scared because a newish symptom has been occurring, and occurring more often and more often on a more often basis like more often every day. My heart area of my chest hurts. I thought it was costochondritis, but when that went, and the pain was back, to the point I'd double up and would experience pain in other areas like my teeth and jawbone, and through from my chest through to my back. It would happen to the point that I'd feel nauseated/light headed when I go from fully reclined (on recliner) to slightly sitting, and the pain would return at the point when I laid down the first time. I also get like, overwhelmed but not, and then suddenly start profusely sweating like someone emptied a water bottle over my head suddenly, and it could soak through clothes and bedding when it happens at night whilst I'm asleep. Other than visit the doctor/ER/A&E etc and get checked out, what could you suggest it could be. It definitely feels like the inside of my ribcage not the outside of my sternum or the cartilage near it. It doesn't feel like it is heart burn, or anything "still under investigation Gastro related", or symptoms that are known or related to other conditions. It doesn't feel familiar to other issues/conditions, but it is familiar because I've had this sensation/symptom for several weeks that has been getting worse and on a more frequent basis, and a longer duration. Advice/ponderations/thoughts/suggestions? (I don't want to go see a doctor about it because they might stop meds I feel are super necessary to manage other issues!).

[@ianagirue]

I've been down for a week. The guilt is getting to me. I'm chronically ill, and I'm down a lot, but this week, the pain has kept me nearly bedridden. My husband handles it well, but I feel most guilty about my son. He only knows me as a sick person, so I think it's really my own issues making me feel guilty. It's SO hard. I love your videos, btw.

[@ChronicallyJaquie]

Hang in there, you are not alone!

[@TheRomanRuler]

I hope you feel better soon, you have such a cute laugh that i want to hear it as much as possible =)

[@mariaanniemand828]

So happy for you enoying your shower..

[@sarahveley3793]

I love you!!!! All your videos are helping me today and always. But days like today its nice to hear someone else share

[@daisykemi771]

The Frey life's video was titled "the feelings of guilt with chronic illness" lol

[@cellogirl11rw55]

Where do you get your intro song? It's so catchy! I can't stop dancing to it! 😂

[@joanpashinsky-greve8760]

I just got a shower chair I feel so weird but mostly sad that I am terminally ill and every thing had to change I don’t know what’s worse the illness or the guilt I feel for being sick with IPF

[@jessortega88]

I have the same chair from when I was unable to walk. Made things simpler

[@connormacleod7010]

Jessica Ortega you have a very beautiful KZbin channel

[@MsShutupndance]

have a huge smile on my face as i saw you on the shower stool and continue to increase your independence. I love it yay x💓

[@ChronicallyJaquie]

Me too! :D

[@carolconley7356]

Thank you for sharing about the guilt feeling. I understand completely and have same guilt feelings at times. Do you feel your phone/computer make you more independent? It does help me feel more independent and I feel I am participating in "life". Even though I am not actually leaving the house the majority of time. It does makes me feel "included" to be able to view/communicate with my family, friends, and the world through my phone/computer. I love watching your vlog❤️

[@ChronicallyJaquie]

Yes, I love my electronics! They help a lot and occupy me as well.

[@valerenta]

Showering is one of the hardest things for me. It actually really hurts me with my fibro, but my shower chair has really helped me. I know how you feel about the occasional guilt, too. I had lots of plans for this Labor Day weekend, but instead I've been sick in bed with a bad flare and haven't accomplished anything. Sigh.

[@picklesprogram5681]

I love her sooo much keep moving forward

[@sailorbrite]

People ask if a shower is really that difficult? Goodness! Having to take care of my mom when she had cancer I can say that her showers were like a workout for both of us! She fell one time and fortunately I caught her. I hurt myself in the process but thank goodness she wasn't hurt. After that we got her that same transfer bench. I have also fallen out of the shower. Showers are hard work and can be dangerous because of how slippery everything is.

[@ChronicallyJaquie]

Kat yes some people don't understand the full scope of chronic illness, that's why I work to spread awareness! I've also fallen, it's so dangerous.

[@Brynwyn123]

Kat Hell, I'm just very tired (sleep disorders) and autistic (sensory issues) and showers are hazardous for me, so i can't even imagine how much worse it is for someone who has mobility issues and/or other chronic illnesses. Walk-in baths should be more common.

[@katelynwhitaker9818]

Showers are the literal worst. After all my surgeries my mom had to help me shower. My hair was sooo long and beautiful but she needed me to cut it super short so she could wash it. Now whenever I get surgery I only dread bathing after

[@ecurls9]

The Frey Life posted a video about a very similar topic today!

[@ChronicallyJaquie]

I saw! It just goes to show that it is a human emotion we all go through every now and then (:

[@megshafer3961]

Everybody, hurts.....sometimes. U2!! Glad you got a shower seat, you will be safer, and be able to relax and enjoy your shower, good for your spirit! Everyone enjoy the Labor Day holiday !!!!

[@teriruiz8292]

You CAN pull the shower curtain over all the way, and just lump it on top of the extension part of your shower chair, I do mine that way and don't get any water on the floor and don't have to worry about getting water all over. If you're really super worried about it, just place some sticky backed velcro stickers onto the inside of the tub down near the bottom and then put a corresponding one on the outside of the shower curtain where it would hang down and meet the other velcro tab. That way it can go up and over and across the extension of the shower chair and be nice and tight fitting. You really wouldn't want to put a velcro piece onto the actual extension of the shower chair cuz you're going to have to rub over that when you transfer out of the tub. Wouldn't be hygenic or comfy

[@MzClementine]

I love my shower chair!!! Yay!!!

[@katrinajenkins8106]

Hi Jaquie & friends, I am reaching out to all of you on behalf of my dog Maxi who is recovering from shattering his left leg. I watch Jaquie's blogs everyday and see all the support everyone gives here and I'm hoping I can see some of this support for Maxi as well. I too have multiple invisible chronic illnesses, as well as some not too invisible; I recently had surgery to remove a tumor from my throat. Now I'm not asking for pity, but what I do ask is that you read Maxi's story on www.gofundme.com/maxis-surgery-rehab and please donate towards helping him recover. Thank you!

[@sarinafrohn6751]

Kat Jenks i hope evry thing whil be Oke whit Your fure baby

[@katrinajenkins8106]

Thank you!!

[@supernoodle704]

It's ok to ask for help. As long as you are not faking or trying to get money from lying than its ok. I Wish you and your doggo luck! I'm Sorry to hear this.

[@katrinajenkins8106]

Completely understand! I called the vet this morning and unfortunately they cannot take direct donations unless its at the time I have to pay for treatment. I don't expect you to donate, just hoping to spread the word and help Maxi as much as I can during this time! Thanks for showing your support though, I really appreciate it!!

[@katrinajenkins8106]

@CatOnAComputer Not at all faking, if you click on the link you can see my pups current condition. Thanks for the well wishes!

[@Ikimification]

I'm happy for you that Judd is loving and patient to you. I wish my husband was that way, he's just bitter angry and frustrated and he takes it out on me...

[@ChronicallyJaquie]

I am sorry your husband is like that :(

[@wt0416]

Safety is really important. I'm so happy for your new shower chair!! When are you getting the emergency button necklace thing? I'm so looking fwd to ur new custom chair. Can't wait!! Harlow loves that tugging.

[@ChronicallyJaquie]

Hopefully getting that this week or next! It is pricy sooo have to buy at the right time

[@wt0416]

Chronically Jaquie can't wait too see when it arrives!! We all worry about u when Judd and ur mom is working and your home alone.

[@momtoallboys]

Mary from the Frey Life made a video about guilt and chronic illness on the same day you posted this video..lol

[@ChronicallyJaquie]

Sarah Dunwald great minds think alike! ;D

[@betterwiththeirish]

I was looking at that shower chair to get yesterday! Showering is very difficult with my POTS. I'm still trying to come to terms with the fact that I need these things. I've always been immensely independent.

[@ChronicallyJaquie]

Nicole Kane there is a transition period, but in the end the tool will give you more independence. But having that feeling is totally normal!

[@mariatheresa6405]

Yes showers/baths can be difficult. I've gotten stuck in the tub so many times before 😂 I know now not to get in the tub if no one else is home. Glad your new tool is a success

[@chipsloer]

Thank you for this video I have MS and people don’t understand why I can’t just walk in and stand and the weakness is all in my head. I hate that my big sister have to help me at home

[@ErikaMayX]

Look for a detachable shower head handle that has a pause feature. It's a button that you press and the water will stop spraying until you press it again. It makes it so much easier for when you have to let the handle dangle down. A lot of the newer shower heads with the detachable sprayers now have this function just look at Home Depot or Lowes.

[@katielunsford]

I hate when safe food turns on you. I haven't had an appetite in forever, I'm trying force myself to eat and it's no good. I don't feel well either.

[@ChronicallyJaquie]

Sames, it is always a gamble with eating

[@Kriszee4]

Chronically Jaquie You remind me of myself...I get sick from a certain food then eat the leftovers as soon as I feel better lol.

[@sublimedoll4066]

I love your videos & id love to meet you guys at Disney one day :-) I bought annual passes recently 🙂

[@justn9124]

It is weird that Mary from Frey's life uploaded a video today as well about chronic illness and guilt! What a coincidence!

[@PurdueAlum01]

I saw the same...they r the first two videos on my KZbin home page...almost same title! I was expecting it to be a "national chronic pain day of guilt" but hello...no such thing! They just must have been channeling each other when vlog name time came. I have chronic pain too but had a good day...in pain but I got to hang out with my nephew so it worked out ok. No more guilt days ladies!

[@hanahc3525]

fighting blind I noticed that too!!

[@kokopuppy57342]

I personally use string to tie to the shower sprayer so it doesn't go out of reach. And I use a trash bag to sit on and position it so water stays in the tub

[@user-tp8kj2gq2z]

some/most of your subs are probably other chronic illness warriors, but even tho im not one of them, i love watching your videos! idk what it is but i love learning about new stuff and about new illnesses, and actually most of yours were not familiar to me. keep fighting xx

[@ChronicallyJaquie]

Venla Tasku thanks for joining us! Happy to have you (:

[@irishis79]

Hey, Jaquie! I think it's awesome you got the same shower bench as I have! I actually cut a slit, up the inside shower curtain, so that it goes down, around the bench, and that way the water doesn't go everywhere! I hope you got the hang of yours! I know this is really late, because it's December now, but I've been binge watching your everyday vlogs, for weeks, now!

[@imfreetobeme8]

so glad things are looking up for you

[@Basketlady1828]

I have a similar set-up, but have figured out an alternative to a hook for the shower head extension. It fits very well if you can just hang it over your shoulder. That way your back gets lots of water while you're scrubbing your front. It also keeps you warm--that's probably not as big a problem where you are as it is here!

[@maddieboucher5311]

I have a step stool because a few months ago I was stubborn and didn't want to listen to my OT telling me I needed a shower chair. I still consider getting one since I'm sort of in the same boat you were. I still struggle when I have to get new durable medical equipment, it just reminds me how different I am from my friends. But thank you for you positivity, sending you good vibes and hopes for better days ahead!❤️

[@forrestdorian1277]

You could cut a silt up the plastic inside shower curtain so that way you can pull it closed around your shower chair and water won't go everywhere.

[@robinphillips5208]

Great idea . You looked so happy... I'm happy for you

[@kimberlyhayes6006]

I always feel guilty when I end up in the er so I try not to go and end up sicker than initially was 😷😷

[@rhiannonmorgan1815]

I have baths instead of a shower because of my pots but I have ordered a shower bench and can't wait for it

[@ChronicallyJaquie]

Yay! Funny how illness effects everyone so differently, POTS makes it impossible for me to do baths

[@rhiannonmorgan1815]

Chronically Jaquie ye it's crazy however my pots has been getting worse so me and my bf decided to get the shower bench

[@hollybronwyn8176]

I believe Harlow was asking ... Mom, is there some reason I don't have a cookie in here? Have you put cookies in there for her? ... because if not, she's a genius, which, either way, I suspect to be true. :D

[@jengoldberg9560]

I am so glad we bought a shower chair. My husband used to help me out of the shower, off the chair, last week I started getting off it myself. Luckily we have a walk in shower, but we are soon moving in with my brother in law and he has a tub shower. Hopefully we can get a shower chair like yours when we move.

[@miss-megative2683]

Hey Jaq! Hope you're feeling well today. I had an idea watching Harlow pull your walker: what if you made a longer one and attached clips to both sides so it made more of a half circle? That way when she pulls it won't veer to one side and she can pull it straight. :) Just an idea.

[@ChronicallyJaquie]

miss-megative oh that's a good idea!

[@starsintwilight]

Just wanted to say that you truly inspire me greatly. I have a lot of medical problems such as EDS, gastroparesis, NLD (necrobiosis lipoidica diabeticorum though there's a nondiabetic form as well. I've also literally passed away twice from necrotizing fasciitis (flesh eating diseass). I am lost to where to turn. I watch you daily and you're such an inspiration to me. I'm 32 and Cleveland clinic gave me less than 10 years if I make it that long. I wish I could somehow speak to you directly. I would pay on patreon but my disability check is messed up. You're such an amazing person. I don't mean to ramble. I'm just starting to give up hope. I'm sure you don't have the time to see norrespomd to this which is fine since you have your own issues. ♡ I just sincerely look up to and have admired you and your positivity and courage. I'm alone with it all and I'm sinking. The only place I know for help is mayo clinic. I can't afford it. You're just am amazing person and someday I hope I can find someone to speak to about what's going on. You're just amazing and I feel like I can relate. Keep your head up. We love you.

[@savannahballard5786]

There is a way to close the curtain! I figured out that you just place the shower curtain in the Crack that let's water drain between the inside the tub and outside the tub part. Works great because it keeps the water draining inside the tub instead!

[@Ceh522]

You have the cutest elephant things, I love the gray and white elephant blanket with a little red 😂❤️

[@ChronicallyJaquie]

I love elephants!

[@Mytitus2journey]

Thanks for sharing about the shower bench! Please link to the hook when you find a good one. My daughters have needed one of these but the chairs I was finding wouldn't fit in the tub, the feet were just a bit too wide. This will be good for the times when their POTS is getting to them in the shower even when they can stand. Thanks for being willing to share your struggles and the ways that you overcome.

[@ChronicallyJaquie]

It is all in the description!

[@brandyhagler3138]

You shouldn't get embarrassed for something safe for yourself. Im glad you got the bath chair . my husband has one and i have use it some times cuz i get weak or dizzy or when i have my headaches i cant stand.

[@lilbritt4403]

Jac I started using a shower chair because of my balance being a safety problem when I was about 21. It took me a while to accept that it was a tool I needed, but wouldn’t go without now I’m in my mid 20’s.

[@Tubylitube]

Put the shower curtain under your leg and stick a Little piece of Velcro to the back support and curtain ore string through the hole tied to the curton. when In Wash met Hair i lay the shower head in my neck, over shoulder or in my lap. Hope it helps.

[@bumpybackroads1581]

Judd, you crack me up! my dad has the same problem with my SUV (we call it a Tonka Truck- Saturn Vue). if i’ve been driving and he has to get in the truck after me and one of us forgets to move the seat back before he gets in his knees are in his throat. 😂 and even after he moves the seat all the way back he is still pretty squished! poor tall guys!

[@jj4christ]

Yeah! I actually love getting new aids that help me. I had a shower chair with no back. Oh I have a nice one with a back rest and it is so helpful when we have the right equipment for our needs.

[@gthornton3]

You are amazing don't beat yourself up.

[@kimberlyhealy91]

There's shower curtains that curve out, it may help allow you to close the shower curtain around the transport shower bench. Best of luck :-]

[@snip_adip_tip_pip1526]

Love your vids 😘

[@ProceGivesLs]

Brenna Naughton who can not love them?

[@snip_adip_tip_pip1526]

Proce true

[@tewksbury1]

That chair rock's. My left leg was amputated, and that chair is a god send.

[@hanahc3525]

It's funny how you and marry uploaded really similar video titles on the same day