Communication was the key with F.N.D

[@johnmcbride1773]

My name is John McBride, and I have been living with fnd since 27th Feb 2021. I struggle so much with trying to understand this condition, and it always reminds every single day day in so many different ways it's soul destroying.

[@gratitude2054]

I have had this for 4 years now, so when I go back and forward or just keep moving my head, and realize I'm zoned out, are these seizures? I have also passed out and come to with cuts on my body ringing in my ears and a euphoric feeling I don't know I also get twitches in the muscles in my face or neck, I have so many symptoms that have changed over the last 4 years, my doctor has just started calling it FND after 4 visits to specialists, I just want to die now I pray to the universe to die every morning I am in bed 99% of the time because the pain is so bad, my memory is so bad I forget whole days and hours of time and I don't have a clue even when I see I have done something in a game that took me hours to do I'ts like someone else did it, I don't want sympathy I just need some answers to what is going on, cheers, Don 53yo from Australia.

[@anitagrainger429]

Palpitations are bad , they set of my nervous system which triggers my seizures and that is horrible feeling

[@julietyler7300]

I feel like ive got nothing left , because of the pain, the spasms the burning the stinging in my heart and lungs , hot and cold prickling pain, swallowing problems, , losing my hearing, my bladders dosent work sometimes and its week 13 of walking and eating again, my body is effectively effected by so many symptoms, getting worse and worse , ive made a appointment to see a private neurologist

[@julietyler7300]

I can't get anyone to believe me , ive been really unwell for just over a year and im on the nhs waiting list with a 50 + week wait, ive not had the help from my family, my partner left me , my family cant cope and everything is wrong because because no one understands why im so unwell, i am currently in a nursing home and ive got so many awful symptoms, , the gp of the care home home dosent hrlp me or even see me , ive lost everything i couldn't eat or walk for nearly 9 months, , im had 40 really frightening symptoms that rea cure on a daily basis, my social worker dosent believe im unwell

[@anadjuric5360]

How can you work with every day attacks?

[@lindasmith8771]

FND = Conversion Disorder and yes talking about your stresses clearly does help you. Good luck.

[@ruperthitchcox4657]

@@lindasmith8771 I’ve heard that theory and the doctors agreed with how I refuted that theory. With my experience.

[@lindasmith8771]

@@ruperthitchcox4657 Communication is the key so try researching centres of excellence where patients have shown great improvement in a short space of time and then understand that it is possible for symptoms to lessen, leave and never return. If medics tell a patient FND is a lifelong condition then it is likely that it will be. Have hope that recovery is possible.