Cone Dystrophy

[@craigholmes5316]

I lived in canada, i was 16 when they first started seeing issues, was initially diagnosed with macular degeneration, i was 24 when cone dystrophy was the conclusion( still getting “are you sure its not glaucoma?”) im now 34, i wear sunglasses clips for my glasses, i uses the zoom on my phone to look at restaurant menus. The light blindness sucks and i get the whole “your not blind” because they think legal blind is the same as total blindness. I hope you are doing well on your journey, personally im having issues with the anxiety on it but i appreciate you have such a positive addieude on the matter

[@danielreyes9241]

Thank you for this great video I also have cone dystrophy and I love how you put it life’s not about over coming as much as it is to manage a healthy life.

[@shamhuss460]

Thank you. I have the same condition. With two children that inherited this condition too. I totally relate to what you are saying. I was diagnosed at birth in the uk.

[@brbubdkangz1635]

Was it stationary? And how was it

[@daniehollen4183]

i am sorry to hear that. i was diagnosed at 72, 76 this month. as far as i know, no one in my family history had this. i have to have a live in to help me. i stay out of light of any type

[@ordinaryguy3633]

Thanks for the Post I was diagnosed with cone dystrophy about 12 years ago. I've been lucky I only have moderate vision loss. I have never met anybody else with their diagnosis.

[@alperenuygan2790]

hey what your bvca ?

[@ruffkoins2804]

Mine is 120/200, what about yours?​@@alperenuygan2790

[@ruffkoins2804]

Bcva 20/100

[@daniehollen4183]

i have rod/cone dystrophy. diagnosed at 72, now 76. it is getting worse. NO ONE, not even my friends, believes me. i have photophobia, color blindness, and use a white cane too. i cannot see white on white, anything clear, cannot see with a flashlight, outdoors during the day, and pretty much the same as you. i cannot drive, which has ruined my life. i have a live in to drive me around. i have an IPAD PRO, but cannot use my cell phone at all. i stay in my dark bedroom mostly with my two dogs and cat. People just dont understand. i do see certain colors and for some odd reason, Wheel of Fortune is very colorful as well as certain Cartoons and ads on TV. othernthannthat when i watch movies on my IPAD are all black and white. i grew up with black and white TV so i feel i went backwards in time. Now i have a large cataract on one eye and i do notice that the vision is a little worse innthat eye. i will try to access your website since it is late here. thank you for yournvideo.

[@nicolasrada1325]

I have a peripheral area of my vision that its like an scotoma in which inside Im pretty much see in black and white and during the day that area becomes completely black and I cannnot see through, did you experience something similar? my central vision and the rest of my vision is 100% perfect

[@pratapsenapati3264]

any treatment for right now

[@RajeshPn-rd4ik]

I have RCD 😢

[@sandhyav8131]

Have you got any treatment

[@Contemporarywise]

I have cone dystrophy🥺

[@sandhyav8131]

Have you got treatment

[@Contemporarywise]

@@sandhyav8131 there's no treatment for this.