Avoid overwhelm when facing more than one autoimmune disease

Рет қаралды 4,193

Күн бұрын

Пікірлер: 24

@botodeov57 3 ай бұрын

Usually this is very common...i have several..YES!! i won the autoimmune lottery more than once....it's a constant struggle but not impossible...the only thing that irritates me more than the actual diseases is people tell me to remain positive....???????....OK....i really don't think there's much of a choice here. That being said, you have mitigate what you can and do your best...no one can expect more than that.

@jdakat88 3 ай бұрын

Thank you for sharing this. I’ve been dealing with ovarian cancer for the last 3 years thinking I’ve had sjögrens for decades…annoying but manageable … only to have recent bloodwork indicate that I have lupus. Needless to say, I had a pity party and then realized that I’ve been dealing with these symptoms for decades, now I just have a name for them. Some days I still have a good sulk, but it’s nice to know that I’m not alone.

@yvonne3903 3 ай бұрын

And hopefully now you will also have appropriate treatment, but sadly not a cure. Get enough sleep and avoid stress, learn about the nervous system x

@JPinthe719 16 күн бұрын

I have PMR, Colitis, Centremere antibodies and NXP2 antibodies. My doc also did a workup and multiple CT's to look for cancer because of the NXP2 - my symptoms are kind of all over the place. CT scans accidentally found coronary artery disease and pulmonary hypertension. They also showed a lung nodule and a gallstone I didn't know I had. Now, due to headaches, scalp tenderness and tinnitus, there is fear of GCA. She wants to have a temporal artery biopsy done. Yes, it is starting to get a little overwhelming. I was blessed with a very knowledgeable and thorough rheumatologist.

@karennelsen7211 3 ай бұрын

I have MCTD ( Lupus primary, sjogrens, myositis) Raynauds and inflammatory arthritis. Diagnosed 4 years ago. It's a battle but I try to take it one day at a time.

@CWood-bn4kr 3 ай бұрын

Your videos have been so helpful, thank you for taking the time to help us understand this complicated condition.

@debmurray2734 3 ай бұрын

As the slogan goes "Buy one, collect them all" My particular combo is Hashimotos and Celiac. I have ongoing inflammation in my joints and rosacea that has not yet been dx as autoimmune. I have attempted to reduce my symptoms with diet (abstinence from certain foods and beverages) but I anticipate there will come a day when i will be dx with whatever is going on.

@rowanmayfair9249 3 ай бұрын

Autoimmune diseases are like Pokémon cards. Gotta catch 'em all.

@marlenesmith8734 3 ай бұрын

I love your delivery style.👍🏻RA + Sjogren's

@melaniehirschler5651 3 ай бұрын

Psoriatic arthritis and Lupus

@bjohnson1149 3 ай бұрын

I have PMR, GCA, and RA. I get very overwhelmed at times. Presently I'm on Actemra infusions.

@cherielilly2582 Ай бұрын

I have scleroderma rheumatoid arthritis lupus

@diannekelly3319 Ай бұрын

I have more and more every few years it started after 2nd pre term pregnancy septic infection and it has been hell. Hashimoto /RA /small fiber neuropathy /Hidradenitis suppurativa/ Sjögren's/ IBD/ ulcerative colitis. Sensitive to light sun heat foods stress pretty much life

@suewatkins8033 3 ай бұрын

What advice is there about vaccinations (Covid, flu, etc) for people with RA and other autoimmune diseases? Is it beneficial or will it cause flares?

@EllenDaly-ns2uv Ай бұрын

I’ve been told I have RA, Sjogren’s, Lupus, and Rhupus. No certainty of which of these. I also have Hashimoto’s and oral lichen planus. I had an episode of uveitis in 2021. This has been the one that has most affected my life. I don’t currently have a rheumatologist. I see a new rheumatologist in January. MTX 20mg a week control my symptoms. Does it matter what I have?