How to deal with autoimmune disease flares- A Rheumatologist POV

[@sweetnezz7781]

Honestly. Autoimmune disease has me to my breaking point. I feel like I'm getting closer and closer to giving up. I'm tired of hurting. I'm tired of being tired. Not being able to keep my house clean. Not being able to shower consistently. Not being able to function like a normal human being. My kids are suffering for it too. I'm so over it 😞

[@jonnyboi068]

You can do it. I totally understand your feelings. This is terrible to go through. I’ve been struggling with this for 2 years . The pain is frustrating and so is not being able to take care of your day to day duties. I look forward to the few days out of the month that I don’t hurt. I’m sure someday you will find your peace

[@carolynvitolo304]

Everything you said describes me, too. Most days it is so hard to keep plugging along. The other thing that is difficult is that most people don't understand what we're going through, and they still have the same expectations of us as they did 30 years ago. I just cant keep up with that anymore.

[@cherriceann11]

@@carolynvitolo304 agreed

[@suzyq3225]

I feel for you! I struggke the same with Sjogren's Syndrome since '94 & R.A. since 2015. I am guessing you have discussed this with your Rheumatologist.? Perhaps you would feel better with a different biologic med. or an addl one? As for me, when I switched to a different biologic that worked for me, I felt so much better after about 4-6 weeks, I couldn't believe it. Everyone is different for what works for them, but I hope you can find something that genuinely helps. I also feel that no one understands except fellow RA patients because of the overwhelming fatigue & pain. It is like a giant roller-coaster ride. (for me) Once is fine , but not over and over for months or years! (let me off!) The unpredictability wears me down emotionally too! I've have thought "somebody just shoot me!" when I'd had it. Now, I'm far from suicidal, but, you KNOW what I mean! When life gets this hard, something's gotta give!!! Give your doctor an earfull or whoever in your life who could do anything....mow the lawn...babysit...anything that could help when in pain. You deserve it! 💕😰

[@lisaadkins6310]

I feel the same way how in the world 🌎 are we suppose to work and provide for our families. I am ready to just die at this point

[@swissms5808]

She is exactly correct about "Rest" Is Absolutely #1!

[@thomascieszenski239]

Flare is such an inappropriate name for this. My shoulders, elbows and wrists feel like I've been hit by a truck then on the way to the hospital the ambulance got hit by a train. Honestly feels like I'm going to break into pieces. Flare sells the experience so short.

[@Jess-cw6tf]

Agreed... flares also seem innocuous but I've had strokes during my "flares".

[@carolynvitolo304]

Exactly!

[@hardeepkogar]

Then coma.loss of memory

[@tracyriordan7011]

Yesss! I just am getting over my latest! The worst I ever had from head to toe and it lasted over a week and a half! ) : It was the worst pain I have ever suffered head to toe and I also felt like a truck hit me! ) :

[@suew4609]

@@tracyriordan7011 What do you do when you have pain like that? I’m having terrible pain right now and have been for a couple of months..

[@justicewarrior8061]

I am thankful for the people expressing their issues in the comments, knowing that you're not alone in this battle somehow helps, there is no way to explain to others this invisible illness

[@tracysmith-yv5lt]

i gave up now after 20 years of telling everyone i was sick autoimmune is a chronic illness mine is direct sunlight lupus

[@gone474]

Finally, at last, after struggling for years with a disease that people and doctors don't understand, I find voices on my side of the fence, people who also get fed up at times with this battle, who knows what it's about. Such a relief, listening to someone who understands what you're battling with, and reading the comments and realise: my symptoms are real, my battles are real, my fatigue and pains are not my fault. Thank you, all.

[@janicenewton1989]

I think much is still yet to be discovered about autoimmune illness. I actually think this illness affects how I think and make decisions.

[@suew4609]

It’s all real. The pain is real. The fatigue is real. It’s hard to convince friends and family of that fact because they can’t fathom the pain that we are in or the fatigue. It sucks!

[@juliecalderon4679]

i am so glad to find out that other feel tge same. my family always look at me like mom getting old and she can’t do thus ior that so i just get left out of everything.

[@dmariewalker6880]

My triggers is the weather, cold. Also over working, I try to get as much done when I feel great, which throws me into a full body flare where I’m‘dead meat’. For 3 days.

[@shellbellhealing]

I've had multiple severe flares (systematic) and was never treated like an urgent patient even when going to the emergency room with all of those symptoms. I spent 2weeks In extreme pain in 2020 and could not get any help despite calling repeatedly. My neck was so stiff I couldn't move. I eventually developed psychosis. I now have PTSD. I am a patient advocate and passionate about raising awareness

[@corinneobrien6196]

I get how some flares can be traumatizing enough to cause PTSD. I feel like I've potentially gotten there myself, if not gotten close, It's also a traumatic experience to be belittled when you're seeking help for this suffering, especially when it leads to a worse medical outcome. So sorry this happened to you...

[@shellbellhealing]

@corinneobrien6196 I'm sorry too it can be an invisible battle. Some auto immune patients have v extreme symptoms sending love ❤️

[@latoyapettiford871]

I am newly diagnosed with and autoimmune disease. And I've been in severe pain for well over 2 months. I originally wasn't properly diagnosed and had to get a second opinion. I'm now having repeated extreme flares and no one will do anything about it. It is very discouraging. I feel like no one is listening or cares about my suffering and pain. I have already been to the point were I was bedridden for days. Go to the ER, reach out to the dr and nothing. I really want to raise awareness about this too.

[@shellbellhealing]

@latoyapettiford871 it is coming from within. Trauma. Your nervous system is dysregulated, severe stress response. Cptsd. Possibly some narcissists around you draining your energy too and causing attacks. I overcame mine by healing internally. It took me about 3 years and I'm now a Spiritual Healer. Each flare you you need to tune in to your emotions and ask what am I feeling, why am I feeling this way and what is the root? ♥️

[@latoyapettiford871]

@shellbellhealing There definitely may be a lot of truth to this. I've been trying to work through Ptsd and a lot trauma for a couple years now. Couseling etc but dealing with these chronic illnesses has definitely started to take a mental toll on me.

[@lostippe]

Thank you so much for this video! I was diagnosed with Sjögren’s almost 20 years ago and still feel guilty whenever I flare. I struggle a lot with trying to figure out what caused it and go down the rabbit hole of ‘what did I do to cause this’ even questioning if it’s really for real (even though I can’t keep my eyes open from the grittiness or stand the respiratory dryness. I’m going to play this when I start to ruminate, doubt or get too frustrated. What a wonderful thing to have a very busy doctor take time to help us all. ❤️. Thanks so much!!!

[@cujet]

I know exactly! Try B1 in very high doses 3x/day, Benfotamine and Thiamine (both B1, just different types) as the combo works better for me. It's helped, not right away, but there is no question of an improvement in the otherwise ever worsening symptoms.

[@suew4609]

What is a “high dose”? I’m taking a Super B Complex and an extra 100mg supplement of B1, but haven’t noticed any improvements.

[@gracejustus2588]

@@suew4609 Taking Benfotamine with thiamine is very important to take with magnesium. Look up Dr. Berg you tube video

[@EvilVon777]

I was diagnosed with sjogrens a few months ago. It's a complete 180 to my entire life. Thanks for this video

[@aikibudoMT]

Excellent!!!! After 30 years with ankylosising spondolytis, this was some of the most helpful, reassuring information I have encountered! Thank you! Thank you! Thank you. And yes, I just subscribed.

[@karennotAkaren1]

My 18yr old has been dealing with these symptoms for years and FINALLY we got a dr to really listen and refer her to a rheumatologist. She is so young but really often in so much pain she sees no hope some days she cries just having to get ready for school I really pray there is some hope for her

[@wychoo4889]

KZbin dr Brooke goldner

[@erikat5678]

Talk to the school and get an Americans with Disabilities exception for your daughter, so she has more time to get to school, take tests, etc. this extra time will allow her to move at a pace that hopefully will not stress her, hence causing flares.

[@karennotAkaren1]

@@erikat5678her college immediately gave her accommodations she can be late. And sit during labs when she needs she doesn’t do it often but it really does help

[@cheryltolbert6014]

I cried like a bay when you said it's not our fault. I was trying to do everything right. My anti inflammatory diet was perfect but I couldn't stop the stress. It had already happened!

[@Ydce1891]

It’s been really challenging for me to not blame myself on flare days. I get so hard on myself but I’m trying so hard

[@suew4609]

My husband is stress incarnate! After almost 40 years of this he still doesn’t understand that I just can’t do everything, or anything most of the time. If he doesn’t like it, how does he think I feel? He’s just not compassionate.

[@FortheBudgies]

There is no such thing as anti-inflammatory diet. This is so individual that no one diet will work for everyone. Following restrictive diets is incredibly STRESSFUL. It is literally a way to torture people. Of course there will be foods that are unique to us that cause problems. Noticable problems. Avoid those and trust yourself more than someone making money selling a book.

[@SimpleCleanWellness]

This is a great video Dr. Ortiz! Living with an autoimmune disease is no easy task.

[@ar2397]

You should do a video on Relapsing Polychondritis. I was diagnosed about a year ago. After 9 years of symptoms, most of which were severe pain. Very rare, so I’m blessed my rheum knew about it…can overlap symptoms seen in lupus, MS, and dermatological diseases…among many others. Hard to narrow down. Trying to spread awareness!

[@gayledillon9395]

Yes I have it also.Need more info.

[@patriciap.9034]

Great video, Doctor. It’s so important to eat right and sleep well. Deep breathing was taught to me by my Dr. many years ago. Getting fresh air and reducing stress are necessary to keeping flares at bay. I wish there were nutritionists who taught all about vitamins, herbs, and amino acids. I’ve had to look up everything to help myself but my doctors did give me advice on supplements, which I take faithfully plus my own additions. I love your presentation on all topics because you are so true and honest. How I wish you were in my area. God’s blessings to you.

[@kristacrowder4144]

Dr Peter Osborne does very informative well-researched videos on KZbin that cover all the supplements and natural remedies for conditions he has experience. Dr. Ken Berry also has reliable presentations. Just Google the name with a topic.

[@patriciap.9034]

@@kristacrowder4144 thanks 😊

[@Beverly-e4z]

I got some chickens and started a garden to keep me active. I also have two dogs and a cat. So, even if I'm flaring, I go and take care of them. Good information.

[@mimimfp8685]

Thank you for the clear explanation and the compassion. Often people who have not suffered personally from a debilitating condition cannot understand what we are going through. I am fortunate that my husband helps with the chores and encourages me to rest. My son, on the other hand, is distancing himself and tells me I’m just looking for pity. That in itself is causing me grief and emotional stress, that I need to let go. Easier said than done. Thanks again!

[@calimom2518]

My ANA came back positive but my complements serum tests are normal. My rheumatologist said I don’t need to see her for now. I ate healthy, whole food, does yoga and intermittent fasting. Dedication, change of lifestyle and prayers. No flare ups. It works wonders.

[@foxywhitetip7387]

Toxic superfoods is a great book. Look up Sally k Norton

[@suew4609]

It’s not a cure-all. We are all different and I have never found a diet that works for me. Not all foods are healthy for everyone. There are toxins in plants, too.

[@beweslee]

I am an EM physician with an autoimmune issue or two. This is exactly what I was looking for and brilliant. Thanks.

[@jenchristeson2796]

Thank you for putting into simple terms what I've been going through and don't know how to explain to Drs what's going on!! Relaxing and remitting symptomatic condition stress has a huge part in and not getting Drs to understand in a single visit is stressful in itself!!!

[@itsmemckee2110]

I found out I have an autoimmune disease a few months ago. They aren't sure which one but still trying to figure it out. I'm in a flare right now and it's tough. It seems to go to different places in my body every day. I have a physical job so some days it's really hard to stay positive. This video made me realize a lot. If anyone has any tips or anything that helps yourself feel better please feel free to let me know or Thank you!

[@94DanielJ]

Sounds just like me iv had no diagnosis yet though

[@itsmemckee2110]

@@94DanielJ my last rheumatologist appt was in September. He did nothing, he asked a few questions and sent me on my way. My flare seems to ve over, but it lasted for 2 and a half months. I'm changing a lot of things including diet, exercise and trying not to stress. I hope you get more help on yours too.

[@khadifaali6393]

Me too, I've been taking the Imuran for two years but it doesn't help and I have a physical job too 😢

[@itsmemckee2110]

@@khadifaali6393 hang in there. It's horrible, try to stay hydrated and eat the right foods.

[@tracyriordan7011]

​@@itsmemckee2110 definitely find a new rheumatologist asap! That is not approp5 for you to have a flare that long. Your rheumatologist is not attending to you or your symptoms! ) : I am so sorry! I went through many rheumatologists, until I found my present, wonderful doctor I have now! He is the most caring Dr I have ever had, period! Sooo blessed to have found him! ( :

[@evaaa11198]

Finally just diagnosed with SLE and sjogrens. Love learning from all of your content!!

[@djtricks1]

Thanks Dr, meditation / yoga can help too! 💚 your video's & positive, beautiful nature! Bless! Good health! ✨

[@ElainesAutoimmuneAdventure]

This is such an awesome video! Thank you. This is a much needed topic (from a Rheumatologist’s perspective) in our community. About 6 months ago I was sharing with my healthy friends that I was going through a flare and realized they had no idea what I was talking about. I made a video to share with them. But, I am excited to have this video to share with them now. Thank you Dr. Ortiz for your continued help here on KZbin.

[@BoudicasMom]

I've recently learned that I have several autoimmune diagnoses. I explore all avenues to understand & better deal with my various conditions. I so appreciate the info I find here.

[@KathysFlog]

Thank you. I was good to hear that I am not wholly responsible for my flare.

[@ginnymartinez]

Dr Ortiz. Thank You so much for the important inf❤ this week I've had a flare-up d/t testing pos Covid I also work in medical practice as RMA for PCP. I have always made my job a priority in this stressful work environment I love my job, helping others, especially the elders. Thank you for all your time in helping us see that it's not a one problem and that meds solve it. I've been 28 yrs in the medical field, never thought I'd be that pt. Like many, I suffered a lot of sadness, anxiety, mental blocks, and fatigue. My worst flares are not only joint swelling, my gut is comprised. IBS, DDs, and osteoporosis 17:22 all before age 45 I'm 50 now and I'm not being treated for osteoporosis mainly bc I'm afraid of taking Alendronate. My RA Dr. Seemed unconcerned w/it. So I've been avoiding for the past 3 yrs since dx w/Sjogren's primary and RA. Any advice? I do take supplements, VSL 3 pre-probiotics rxd by GI. Expensive but it works. I've done 3 PT rounds, I don't exercise much after all day running at work. Cut out gluten as much as possible, I saw a huge change in gut health. My stomach will get big looking like I'm 7 months prego when I stress also. My boss Dr. and staff all noticed it bc I'm not a big girl. Although prednisone and SSRi have not helped w: new found wt/gain. I'm struggling. Oh top of it all I'm in full-on menopause

[@ibdandme]

Thank you so much for this information and the calm way you discuss this. I am in a flare right now and as always trying to figure out what I have done wrong, so to hear you say that it is not my fault is so reassuring. Thank you.

[@fighttheevilrobots3417]

I agree. It's so mean and unhelpful when people try to blame us for our flare.

[@misskellymac]

So good to find this channel. I have a home fragrance channel, but sometimes chit chat about my autoimmune issues( lupus, and Rheumatoid Arthritis) so glad. To have found this channel

[@magentamagenta1274]

Thanks for your very insightful and thoughtful videos. I’ve lived with thyroid disease and fibromyalgia for over 40 years both Graves’ disease, Hashimoto thyroiditis and added to the bag un diagnosed fibromyalgia. Not one doctor has helped me other than to refer me to specialists or hand me a prescription. My research and lifestyle changes have been my only sources of comfort and go to and I practice these as a daily ritual sometimes more than once. I have to take thyroid medication but mostly I try to ease my flares without drugs occasionally I take an anti inflammatory. I wish more doctors would educate themselves to understand there’s more to a human body’s needs to ease dis ease, popping pills are just a band aid, work on beneficial wellness and lifestyle change as a prescription. It’s not a cure but it’s definitely a huge management tool to introduce and also free. I’m happy to advise anyone of my daily program and lifestyle changes.

[@94DanielJ]

I'd love to know whgst changes you made thanks

[@ginnyrabb5508]

Thank you for your videos! I love your positive attitude about autoimmune conditions. You break it down and make it less scary

[@trafficjon400]

Replys are not going to get out.

[@CourtneyRobinson]

Thank you for this. I have had AI diagnosis (RA, Fibro, Sjogren’s syndrome) for over thirty years with little to no education like this. I am in the midst of a severe flare. I did think it was my fault for exercising to hard, which honestly I don’t think helped. I am learning to slow down before I want to. This made me feel so much better. I’m never sure what to do when these happen.

[@patriciap.9034]

The Doctor said to rest. So important and I get a DepoMedrol pack. I’ve even had to take my vacation to stay in bed for a week, my boss would tell me to go home and rest. Fevers 101.6, pain everywhere. Rest and the right foods help but so does prayer.

[@wslee0727]

Thank you for providing the viewers with such a invaluable and comprehensive advises to tackle with TA.

[@yvonne3903]

Thank you that has given me the language to understand the dynamics of flares and when it is necessary to see my GP.

[@tiffanymorman]

I just stopped a major flare brought on by covid by starting bromelain. I'm super new to this and still learning

[@trafficjon400]

You better have that blood cells dna hormones that except and if they reject tearing at other organs blood vessel and you'll know it. i many others were not so lucky.

[@caseay2761]

How is the bromelain going? I’m looking to try something new.

[@tiffanymorman]

@@caseay2761 it's amazing, I've started ginger now and switch back and forth. Bromelain for flares and ginger to keep my inflammation low.

[@suew4609]

@@trafficjon400Huh?

[@suew4609]

@@caseay2761Did you try it? Did it help?

[@jackg.3187]

When you do ask for help but none is available, what do people do during a serious flare? Do you continue to go to work and clean the house and care for the children while the flare gets worse? Or do you just stop everything and rest? It seems like such a tough decision because both outcomes are bad.

[@sungspatta6123]

My heart aches for you. I am terribly sorry for what you are going through

[@jonnyboi068]

I feel you 100%. I do as much as I can before I can’t . I work I take care of the house until I physically just can’t. I have a family to care for I struggle through and hope and pray it goes away soon

[@tracyriordan7011]

​@@jonnyboi068 I do the same. I just came out of a huge flare up...from my ear/jaw bones/joints down to my horribly arthritic feet and every joint in between including arthritis in my spine, L3-L5 in my back now too (already had my cervical spine C5-C6 disc removed and replaced with a cadaver disc, plus vertebral repairs and a titanium plate added with screws to hold everything in place over 7 years ago). I felt like I got hit by a truck! I have Sjogren's too, plus RA and Psa, as well as Celiacs, and hypothyroidism. ) : Have suffered for years, since about 7 years old, with arthritis (undiagnosed until late 30's! ) :

[@DB-pm2vy]

@@tracyriordan7011 Are you on the best anti inflammatory drugs possible such as biologics? Do they cost too much in the States? I’m in UK and these are available on NHS if your rheumatologist prescribes them. I’ve just had a rare side effect from one and had to drop it and I can tell the difference. My hands and feet are in pain but just steroids now until it’s all out of my system and then maybe methotrexate. When you live on your own and want to do stuff it can be hard to rest. Even typing this hurts my wrist. Search a decent rheumatologist even if you have to travel Regards from UK

[@suew4609]

⁠​⁠@@tracyriordan7011Oh my goodness, and I thought I had it bad! I’m sorry you suffer so much. I have fibromyalgia, arthritis, UCTD, PCOS, chronic migraine, carpal tunnel, degenerative disc disease, possible Sjogren’s, Hashimoto’s, and small and large fiber neuropathy, and I’ve probably forgotten something. I am in pain 24/7. Now I seem to be having an issue with the veins in my legs not pumping the blood back up to my heart. I swell up after just 30 minutes or less on my feet. I think it’s aggravating my neuropathy because it’s causing a burning sensation, with pins and needles and tingling. I’m so sick of being sick and tired. I pray you see better days.🙏🏻❤🙏🏻

[@jaiyabyrd4177]

🔥 Please do a video on how foods and weather can contribute to flare ups ❓ Can these flare ups affect your heart ❓ Also can muscle relaxers help❓ Thank you

[@sreecharan4300]

your content is absolute gem but please lower volume on intro .. we dont have proper treatment for RA is so disheartening as many females are affected by it..TQ for free consultation and telling its ok

[@googleuser8211]

I have autoimmune issues and have (depending on which doctor you ask) recently tested positive for connective tissue disease. I had another issue (an accident) over a decade ago and never healed from it - massive pain for over a decade every day. I lost my home and life's savings... inability to keep a job. The recent diagnosis gave me hope - until I saw the doctor after waiting for months. He spent 10 minutes with me, told me IF I do have MCTD, it's 'weak' and sent me away with an anti-inflammatory (which I tired with another doctor and know doesn't help). He did not say I need to see him again. I'm not seeing doctors unless I am dying from this day on and will 'treat myself' at this point... that's all I have left. I don't even know what he meant by weak - I have missed work for a month (I like my job! It's the majority of my social contact) and am not paying bills. I would have been retiring in 6 years, instead I will never retire. The irony is I hurt too much to work now and am only in my 50s... so scary.

[@suew4609]

Can you get disability? Can you find another doctor? Some doctors are terrible, there may be some other doctor out there that will treat you better.🙏🏻

[@youngheekim5999]

Hi, I enjoy listening to you and I learn something new each time. Thank you! One thing I want to mention is that your video is hard to hear because the volume is low even when I set my device to a maximum level. Compared to other KZbin video, your volume is low. Please check into your microphone or something...

[@silviarollano1285]

Thank you for your explanation. I have been having a lot of flares. This helps!!!

[@RosalieGonzales-s9i]

I had Guillian Barre in 1984 was parlayed in a wheelchair for 6 months recovery with side effects but managed! In November 2021 I got Covd19 no took me serious when I kept saying to the Doctors my symptoms felt like when I had Guillian Barre! Finally I went toan other Dr.she Referd me to a Neurologist! I have lots of nerve and muscle damage! The Neurologist wanted infusions Therapy but I have Liver problems! So I don't know why to do! When I have the flare up I feel lousy! Wish there's something I could do! Thank you!

[@stephy4533]

Could you please do a video on diet. My 8 year old has positive ANA and waiting for rheumatologist appointed. I m scared about her future and want to start a healthy lifestyle now onwards

[@karenboudriault5958]

There are 3 things I wish a doc had done for me long long ago. I didnt get these until I was 55 yo. 1 - test all vits and minerals. Check for deficiencies 2 - hair tissue mineral analysis to check for toxicities 3 - food intolerance testing. I have hashimotos. Patients are lucky to get the TPO and TG labs at least once. But why not continue to do them on an annual basis or when there is a flair. When TPO is elevated, it's not a good feeling. I've only met one doc who could drive hashimotos into remission. When an endo only orders TSH, then wants you to adjust dose without looking at T4 or T3, I think my hair is going to catch on fire with frustration. Docs will tell you that there is no cure for Hashimotos. They should at least be trying to figure out how to put it into remission.

[@noneofurbusiness5223]

@ Karen Boudriault How do you get out of flare for Hashimoto?

[@karenboudriault5958]

@@noneofurbusiness5223 there r a few experts in hashimotos out there. start with these 3 tests ad go from there. get TPO tested periodically and see if youve driven it into remission. eat gluten free. heal your gut. get t3 tested. Ive had several endos refuse to test T3

[@donna25871]

I’m in a flare from having Covid four months ago. I’ve had to stop working due to quite bad fatigue (also had mono last year which was my underlying cause). My eyes and fatigue are my guide because they were my first symptoms. And my right knee clicks in the morning.

[@babybaby5893]

You can always explains things so clearly . Thank you 🙏

[@cashusevans6435]

Thank you for explaining all of that information you help me out a lot to answer stand what am going through because so sometimes when people go to the doctor and tell them the way they feel or what's going on they are being ignored I learn a lot from listening to you thank you.

[@trafficjon400]

Ya isen't it fun going to your Doctor whos practically an idiot and still gets paid off your acount. makes me burst and ready to give mine a peace of his unknown mind.

[@melbasalcido4708]

Yep that sounds like my doctor. If it wasn’t for these videos I wouldn’t understand my disease.

[@meteormedia7021]

The autoimmune disease I'm suffering from has at times pushed me close to the breaking point. If feels like my entire life has been taken away from me.

[@sharonvaldez9059]

Love these videos! Do you have any to explain to my family what Fibromyalgia, RA, and, per my Spine & Pain Dr today, Lupus. I see RA Dr on the 9th. Am in a horrible flare. It’s hard to feel like you’re begging for them to understand or watch a short video…but I’m worth it. I look fine on the outside but it’s been literal hell in every way being the only one advocating for me or supporting myself. I know he hasn’t experienced this. I have. My mother had RA and I was her voice to explain her pain to them when she couldn’t find her words or simply forgot about it. I’m 48, female, and finally got the name of my invisible enemy one year ago starting with fibromyalgia, RA 6 months later, and now Lupus. Husband says I should get a 2nd opinion:/ I said…I will, on Feb 9 when I see my RA Dr. I’m thankful for the diagnosis…now I can battle it correctly and stop beating my self up for fatigue and migraines since 13. It wasn’t my fault. RA said I’ve probably always had RA from my history. Anyway…THANK YOU FOR DOING THIS!!! You are my voice❤️‍🩹

[@trafficjon400]

Suicides are the best alternative after being turned in to a steroid raging lunatic. millions suffered all ready dead and forgoten. reasl nice all deservee the same just for knowing thier blocked away.

[@FlashOfFireflies]

Well explained. Thank you so much. Do you have a video on myositis?

[@heatheredwards2982]

Weather makes my fibromyalgia freak out big time. Pain, fog, and fatigue are off the charts for the 2 days before and during a weather system coming in and passing. A windy day makes me want to sleep, and I can't focus at all

[@corinneobrien6196]

You're doing gods work. Thanks

[@bridgetkavanagh3173]

do you what vitamin supplements herbs would help please

[@lela8051]

TUMERIC WITH BLACK PEPPER!

[@ALDOGG1015]

I'm 42 and having severe flares from R.A every weekend been on methotrexate for over a year and now starting humira tomorrow I still work for now and walk a concrete floor all day so constant leg and every joint problems. Hoping with the lifestyle changes I've made and this humira I can get back to being me we'll see cause some days the fever and pain just make me wanna die and I hate saying that just being real.

[@suew4609]

That’s how I feel too. You’re just being real. Did Humira work for you? I’ve been avoiding taking any of these kinds of drugs for years, as I’m afraid of the side effects. But, I’m getting so bad, in so much pain, I’m now thinking about it. Did the methotrexate help any?

[@Colleen-kw3lf]

Does hormonal changes from menopause affect flares for Rheumatoid Arthritis?

[@foxywhitetip7387]

That’s when all my main symptoms started

[@HouseKatArmy]

I had covid a year ago, and it caused a massive flare of my ankylosing spondylitis and psoriatic arthritis, it has still not gotten back into control and I have had so much additional destruction of my spine since then. Before covid I could mostly get through a day without needing to use a wheelchair, but now I would never be able to get through a day at work without my power chair. I am glad I have the chair, but yeah, covid really activated my disease. Biologics and celebrex are starting to get it back down to a dull roar, but it caused some irreversible damage to my spine.

[@BoudicasMom]

I was diagnosed with Fibromyalgia & osteoarthritis about 10 yrs ago. This year, I was in hospital 3 times & had 2 surgeries related to my colon & 1 heart procedure this year. This last time was when I learned that I have dermatomyositis. Your videos have really help me understand do much about these issues.

[@scores718]

Dr Ortiz. Visoting from my frequent ms talks ( ppms 33 yrs) can't walk, incontinent. Also have thyroid hashimoto. Wish all I had was lupus bug that's just my initial impression. Enjoying your videos!!

[@lifeasitis2020]

Thank you so much doctor! I really appreciate finding this channel! New subscriber! Can you please talk about Methrotrexate.. and when is necessary to switch to biological treatment. Thank you so muchhh

[@peggymetcalf2909]

I have 12 of the 15 symptoms for lupus. My illness is not showing up in my bloodwork. Do you know a good Doctor in Houston?

[@YaGotdamBoi]

Thank you for the video! I have AS and a couple others (PsA and Sjogren’s diagnosed with the AS), and it seems like I’ve been in an intense and gradually worsening “flare” since 2019. I’ve had symptoms for 10 years, but the past 3 have been awful. Idk if it’s actually a prolonged flare or just that my disease activity is just amped up, or what it could be called. Im taking a biologic, plus Hydroxychloroquine and prednisone daily and still it just keeps getting worse. I’m communicating with my rheumatologist about this, so we’re working on it. I’m wondering whether to call this a “flare” or not, since nothing has really helped calm it down except for the first few days of a Medrol pack, with the higher doses. In any case, I enjoy how you break down these topics, your videos are very informative and helpful! Thank you for making them!

[@sharonvaldez9059]

I’m in the same boat! My tailbone is killing me…and just saw the chiropractor yesterday:( I saw video earlier for AS and thought wooooow! I have so many ah-ha’s. Now I wonder if that’s the rash on my face or maybe it’s Lupus SLE. I’m medicated for adhd and have been the last 3 years (47 now). It’s been off the charts the past 5 years with confusion, forgetting words, unable to process anything in my head. My Dr has been great to lower or increase or even change meds. Seems like every 4-6 months I start realizing how hard I’m struggling to focus, think, recall things, express things, etc. I also had Belle’s Palsy after the flu about 5 years ago as well. I think it activated and is causing the sympathetic nervous system issues I’ve been having for years…since around 12. Also had what I guess was a heat stroke when I was in my early 20’s…makes me think Lupus as well. Everything and everyone around me (Im from Texas and was at an outside car show in south Texas in the summer…) turned into blazing fire visually…the cars slowly driving in front of me were like 3-D fireballs floating down the road. I guess I passed out trying to get by the cold river to cool down. People gave me water, wet rags, and stayed with me until I could walk ok and find my fiancé somewhere on a 15 acre area. No cell phones in 1995.

[@cautiouslyoptimistic1962]

As time marched on, and I went undiagnosed for years, my heart took the brunt of Lupus SLE. I was sent to pain management for RA, after I'd been in the hospital from what THEY said was a TIA, and the Doctor stepped into the room where my late husband and I waited. He put out his hand and introduced himself and the very next thing he said was, you don't have RA, you have Lupus. He asked about my recent hospital stay and asked did you look like this in the hospital? To which I replied I always look like this. He was incensed! And they didn't do one test? He called a good friend and Rheumatologist and got me in there ASAP. I was put on Plaquenil, but the damage to my heart was done. The next year almost to the day, I had to have open heart surgery. The reason my symptoms were ignored was 2 fold. One, I was only in my late 40's and two, I was trying to get early retirement and I had no income to afford Obamacare. I was uninsured when I had the really bad 3rd heart attack leaving me with 2 more stents That one was a close call, thank God I knew to chew an aspirin, and it was Thanksgiving night 2010. (My late hubby had cooked a fabulous dinner, we called our kitchen the Brain's and Brawn Diner, I gave him the how tos and he did the labor part.) 2 days after Thanksgiving the next year 2011 I woke up completely paralyzed. They said it was a TIA no damage. That Jan I found out I had Lupus. In 2013 I had a 3X bypass at 50 years old. (Again uninsured because Medicare had 6 months to go, but it did retro pay for that one) The Summer of 2013 is when it was available, and I told my PC something is wrong. Has been since the TIA, I couldn't carry plates, coffee cups and Mike had to cut my food and bring it to me.. Brain MRI 2 years afterward showed I'd had not one, but 2 strokes, with brain damage in 2 places on my left frontal lobe. I KNEW it. Zero rehab, my body and mind just found a different way to do things. I guess it is rare Lupus attacks the heart, but it sure played hell with mine. My hubby of 34 years was sick with pain, depression and alcohol abuse as well, and I lost him to self inflicted harm in 2016. There was just too much for him I guess.

[@ladyjayne77]

Wow you had a lot of rough times. This life is really difficult for those of us who deal with autoimmune disorders. The depression and anxiety yoyo and setbacks are not fun. You must be a strong and capable woman to have such optimism and you sound really nice. I hope your insurance issues get sorted out easily and quickly. There's always a bright side; if we just look for it... keep your chin up.

[@cautiouslyoptimistic1962]

@@ladyjayne77 Thank you so much! As all of the above things were being unfolded, It didn't get better. I am strong and blessed. God holds me up.

[@ladyjayne77]

@@cautiouslyoptimistic1962 Blessings. Peace.

[@jonnyboi068]

Did you notice anything going on with your heart before your lupus diagnosis

[@cautiouslyoptimistic1962]

@@jonnyboi068 Yes. multiple times starting in 2003.That time they said I was having an anxiety attack since my stats weren't showing anything. In 2005 I had an 85% blockage and was having chest pain. They put in a stent. And it went from there. Hand patters everytime I complained of chest pain. There, there Mrs. D. UGH!

[@hoosier2003]

This was spot on and so good! Thanks 🥰

[@dustinsegers4534]

A very helpful video. Thank you!

[@bridgetkavanagh3173]

thank you great video very grateful for all your advice

[@Gardenwithmarlene]

Thank you for all this information,but you keep saying talk with your Dr , I tried talking with my Dr. and she informed me that she couldn’t discuss my condition with me because she didn’t know me, so please tell me who can I turn too

[@lynnlegault9297]

Question*****Will blood work still reflect autoimmune disease after a flare up. I only get to see my doctor after a flare passes she then tells me my blood work is normal other than mildly elevate liver panel and triglycerides.

[@lisalee7768]

i have a question can you have flare ups in your back i have sojrens and fibromyalgia and sometimes the pain can be unbearable but i am on medications and sometimes all i want to do is to sleep

[@lindakelley2676]

I’ve heard that moringa helps RA?

[@kateparsons3618]

which autoimmune flares up during the luteal phase of the cycle ? thank you!

[@kateskeys]

Please fix your audio. I can’t watch many of you great videos. Thanks!

[@claudemiemondesir3997]

But the sun is not good for lupus. My issue this time is the fluorescent lights at the office causing me more flares. UV rays make things worse

[@karenboudriault5958]

62 female here. combat vet. hashimotos. palmoplantar pustullar psoriais. now GCA. Actemra gave me blood clots. Now on methotrexate. Prednisone since Oct when I went blind in 1 eye.

[@danab4337]

Flares for a Lyme Disease sufferer is also called Herxheimer reactions (Herx/ing).

[@neelaprakaashd9436]

Thank you 😊

[@jamiebridges8114]

I have a rash flares on my upper back. A flaky mark surrounding discolored skin. It’s getting bigger by the day. It’s started as a dime. Now, it’s the size of newborn baby hand or foot. I got steroids cream that don’t work. I tested positive for anti-rnp interpretation. I tested negative for ANA disease. I don’t know what that means and my doctor not saying anything. I just keep going to doctor appointment but leave with no answer. I see a Dermatologist and rheumatology

[@musikkfamilien]

First of all: you have such a calm and agreeable personality 😊 you seem to be a really nice doctor. I have a lot of inflammation throughout my body. I am now 60 years old. Had surgery and got the diagnosis Crohn’s after that. That was 41 years ago. 8-9 years later I had so much joint and muscle pain. The reumathologist said Crohn’s had got to my joints. And I had to recon for a life with as much pain as one with arthritis, but not getting de deformed joints. He took som ANA and other blood work. He said I had also to prepare for maybe later on getting Lupus. I have a hard time breathing, when standing or walking just some steps. I have been to cardiologist and a lung doctor. All is well. It really disables me. I have a lot of other diagnosis also. Life is not for pussies. 😅 Thank you.

[@foxywhitetip7387]

Crohns you would really benefits from dr Ken berry looks him up on here. Sally k Norton too

[@Faithful1]

I have Crohn’s disease and I’ve decided to tackle it without Crohn’s medication it’s been difficult but I’ve had help along the way I do take Mebeverine hydrochloride but it’s not strong like the medication so no terrible side effects. I want to see if I can cure the disease with diet and exercise but that’ll take a while until I truly know where that’s possible

[@зайд-ч8ш]

How You now?Your diet?

[@Faithful1]

@@зайд-ч8ш strict vegetarian no meat or fish or dairy and at the moment I’m doing well being strict vegetarian the medication that i mentioned in my previous comment (Mebeverine hydrochloride) I still take and is still helpful I still have ileitis (my ilium is swollen) so food sometimes takes time to go through But it goes through without causing a blockage. So to sum up I think I’m doing well sir, thank you for asking buddy

[@Sbannmarie]

Where is the link?

[@dgsmith9969]

My biggest stressor is family who don't believe, or believe but won't learn anything and so think I'm a bum.

[@babs3343]

What about thyroid, fibromyalgia,chronic fatigue. Migraines? Help

[@delawarevalley7496]

Hello, truly loving your channel that I found this morning. Do you have any information about Sjogren Syndrome?

[@Chillski]

Why is there no conversations about our diet, I have been looking into our microbiology. Do you have any input on food triggers.

[@robintatroe3473]

My hands wrist elbows shoulders are under pressure and feel like their going to pop off.both hands burn like in a roaring fire...my elbows kill....my left elbow I can not bend to painful ..my back and neck ..my legs and feet.my body hates me and I am EXHAUSTED 😢IM AM TIRED OF THIS PAIN EVERYDAY THEN THE Flare DARN NEAR TAKES ME OUT.

[@ketikatz]

So my dad has lupus and since I was 18 (I'm 25) I started getting all kinds of random symptoms Started with a full body rash with no explanation as to how it happened. Then I started getting back, shoulder, neck, hips, hands toes, and knee pain in the joints Then my ankles would randomly swell up, started getting kidney stones and now sometimes it'll just randomly hurt for a little bit for no real reason I have brain fog so bad I can't stay focused much at all My toes turn white when cold, pins and needle feeling in my fingers and toes, ect. I'm gonna be talking with my doctor qbout it next week and see about getting tests done specifically for lupus, so I'm not diagnosed yet, but I'm pretty sure I got it from my dad And I also wanna know just in case my son might have it, or develop it. He tested positive at birth with an autoimmune disorder but it was negative the second time a few weeks later And if he could I Wana make sure I I'm prepared

[@doeidaho2101]

Not contagious.

[@jeannehart2005]

What are some non-NSAID options other than prednisone for treating flares? I am a II diabetic AND unable to take NSAIDs!

[@deecee901]

Prednisone is my go to.

[@anamariastoica8261]

Hello. I would appreciate learning more about enteroarthritis. I keep finding information about AS but not enteroarthritis with an underlaying ulcerative colitis diagnosis. I wonder how AS and enteroarthritis are different. Who should be the primary care physician in a case like this? The gastroenterologist or reumatologist? How do I get them to talk to each other and agree on a common treatment? Are there doctors that know about both and can take a holistic approach? I haven't been able to sleep lying down in bed for more than a year now. I get sore hips and lower spine 30 minutes after lying down. Should I expect this to get better with time or is this pain going to be there forever? It would be really helpful to understand better how to advocate for myself when dealing with two different teams of doctors that do not work together

[@echase416]

I’m in remission from UC now because I have had my colon removed (proactively). Wish I did it years sooner!

[@savannah138]

How would i get out of a flare from intravenous iodine contrast dye after ct scan. It dried my eyes so badly and mouth for over a month

[@carolynbuckton6004]

Fantastic information.

[@beckyott1390]

I would just like to know how to get an appointment with a rheumatologist if you have no insurance. None in my area will take cash pay patients. I understand now why people with chronic conditions take themselves out.

[@ward5821]

My mother had myofascial pain syndrome autoimmune disease. My worsened after my knee replacement. Avoid major surgery if possible, ?.

[@ConnectedRheumatology]

Big surgeries are known stressors which can, for some, lead to increased symptoms/flares. This doesn’t necessarily mean surgeries should be avoided (sometimes emergencies happen!) but can be planned for.

[@ShannonKauffman-g8h]

Thank you!!!

[@homecareful]

Your audio quality is poor. You need to be much closer to your mic. Suggest a good lavalier mic, like a Sony or Shure.

[@jsunit5354]

Sounds like she's using an omnidirectional mic....Should use a cardioid mic. Also, when the mic is too far away, the direct-field level (person speaking to mic) and the reverberant-field (room-level) become equal, or worse, causing this problem. Using a cardoid-pattern mic closer to the source will keep the reverberant-field attributes from causing poor audio. It looks like the mic is too far away from her. Also, if using a laptop computer, it's important to check the [Audio Input] configuration and select the external microphone. The computer may still be set on the "default" internal mic. Takes practice and testing. I do like her presentation...very good🙂🙂

[@DARKhorses73]

I get horrible flares filled with unending pain. I cannot move and I throw up all over . It's horrible !!! I go to doctors and more doctors, allergist and my ANA shows then doesn't show. Makes no sense. I know I have some type of auto immune 😒 condition

[@foxywhitetip7387]

Cbd tincture

[@thomaspitcher2335]

Thank you.

[@katehenderson7792]

Thank you. This was very helpful.

[@bishfam1]

All my bloodwork is 'normal' and they won't even refer me to specialist... Even though this happens to me. 😢 What do I do??

[@dorabeltran5086]

Doctora quiero darle las gracias por ser tan explícita en decirnos los vídeos bien explicado yo tengo Crest síndrome .. podría ser tan amable de decirme si esto es Esclerodema! Y que clase es....lo que más me ha afectado es el S'orgen .y Reynulds.y esófago se me atora la comida seca. También si es normal tomar Methotrexate. Le agradecería mucho mucho.gracias.