COPD, PAH Life Bumps In The Road Living Well Video 142

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Barbra My PH/COPD Life

Barbra My PH/COPD Life

Күн бұрын

Пікірлер: 10
@phoenixflying2191
@phoenixflying2191 Жыл бұрын
Hi Barbara, I hope you’re doing well. You’ve always inspired me. I’ve been watching your videos for years now. I found you after my diagnosis and you helped me learn things and not feel alone in this. Thank you for sharing your journey with others. It really does mean so much 🩵
@BarbraMyPHCOPDLife
@BarbraMyPHCOPDLife Жыл бұрын
Thank you so much! I love hearing that the videos help, that's exactly what I wanted them to do - help others. I hope you are doing well. I will be working on getting another video posted soon to update everyone on how things are going. Take care and thanks for writing 🙂
@Peggy-pl6jn
@Peggy-pl6jn Жыл бұрын
Hi. I've been following your journey from the beginning. So glad you are doing well and sharing the ups and downs. I was listed Feb 14, 2023 and waiting patiently for the call. Your journey is what inspired me to go through the evaluaton process. You are right it is a long and often difficult process often with doubt and wondering if its "worth" it. Your videos are what kept me going forward. Thank you for that. Peggy
@BarbraMyPHCOPDLife
@BarbraMyPHCOPDLife Жыл бұрын
Hi Peggy, I just wanted to check in with you and see how your journey is going. Hoping all is well with you. It's been a couple of months now, any progress or encouraging news?
@Peggy-pl6jn
@Peggy-pl6jn Жыл бұрын
Hi. Still waiting patiently for my “call.” Learning a lot from you so appreciate you sharing and letting us know about the ups and downs. Thank you for checking in. Peggy
@pandemicpat8382
@pandemicpat8382 Жыл бұрын
So good to hear from you. This is a great update and good information for others. I'm still working on getting zephyr valves but since I started pulmonary rehab last November I feel like I may not qualify as I'm doing so well. I'm not sure what they are thinking. My lung fev1 is still 38 and I'm still very hyperinflated. I'll know soon though. They may want me to wait for awhile. 😊
@BarbraMyPHCOPDLife
@BarbraMyPHCOPDLife Жыл бұрын
PandemicPat it is good to hear from you too! I'm glad to hear that you are doing better, and sounds like rehab is getting you a little stronger! That's great ... not qualifying because you're doing to well is a good thing! Exercise can really make a difference even if it's only a little bit. Take care and keep in touch!
@johnmichaeltracy9050
@johnmichaeltracy9050 Жыл бұрын
barbra, im glad to see you doing well, im three months out of my double lung transplant and wow, what a difference. loving and living life again. keep enjoying your gift.
@BarbraMyPHCOPDLife
@BarbraMyPHCOPDLife Жыл бұрын
Oh My Gosh John!!! That's Amazing!!! So happy for you, wow! And it an incredible gift isn't it - to actually really be able to live again, I am thankful beyond words everyday. I would love to hear more about your journey ... how your evaluation process went, how your surgery went, and how your recovery is going. Congratulations and stay well, also keep in touch please 🥰
@TamaraJohnBlue
@TamaraJohnBlue Жыл бұрын
So glad to see you! I needed a smile.
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