I'm sorry to hear that. Hopefully they will get everything figured out. He will be in my thoughts. Please keep me posted & I wish him well.

Hi Amy! First congrats to your friend on his new lung transplant. For him I would say that it is a very serious surgery that does affect many nerves in the body. The Doctors usually will keep new transplant patients on Gabapentin (a nerve Pain drug) until the pain finally resolves. I should also note that it may take a year or even two years for your body to recover from all the feelings that go with this surgery and it's only been a couple of days so he's got a ways to go. If he's already walking after only a couple of days, he's doing great. Tell him to hang in there, and that movement is his friend. As for your hubby, I think that Pleurisy may be at least somewhat common in late stage COPD. The reason I say that is because Pleurisy itself is caused by inflammation in the lung tissue which would be quite possible with late or end stage COPD. As a precaution though, I would always check with his Doctor and ask for tests to be done to be sure that it is not an infection or virus that is causing it as these are the most common causes of Pleurisy and you want to be sure it is not one of the later. Good luck with your Hubby and let me know friend progresses.

Hi Peggy! My favorite comes from Amazon and is the ''XL Pill Organizer 4 Times a Day, BUG HULL" and they are $15.99 each.

Hi … I am almost 60 (not quite there yet) so I guess that could be considered young for COPD, but I also had PAH which with both of them together was very taxing on my lungs. And yes I am an ex smoker. I no longer have COPD or PAH as I had a lung transplant which eliminated both of those issues and at this point I am doing very well. My videos start with number 1 and you can learn about my entire story and get more info by starting from the beginning … that would probably answer all of your questions ☺️

I counted after you asked and it is 20 transplant related meds per day and 9 vitamins per day, I should also note that that is the number of pills total - but that does not mean 29 different kinds ... some pills I may take 4 of the same per day so I was counting each individual pill, not each kind. I hope that answers your question :)

Hi Peggy … yes that’s exactly what I do except my times are 10 and 10, I wanted to be able to sleep in sometimes if I wanted lol. Hopefully you get your call soon 😊

Keep going, keep trying ... you just never know what may happen next ;)

@@BarbraMyPHCOPDLife. Please post an update. Ok?

Hi Amy ... the doctors have informed me of Valley Fever, however it is not found in the Midwest which is where I am. It is a fungus that grows in the Southwestern states. Definitely would be a concern if I was in those areas.

Pretty common virus that is carried by a high percentage of the population (similar to the chicken pox virus). For this many people acquire it in preschools or daycares and then carry. it throughout their life. For most people it does not affect them, but it is opportunistic and can cause problems in newly pregnant woman or people with compromised immune systems.

Yes I definitely understand, not being able to breathe normally affects every area of life. Stay as active as you can even if it is difficult, activity is so very important. I wish you well.

Hi Michael. Thank you for watching and commenting. I always love to hear that a video or videos have helped someone. Be sure to check out my most recent videos from after transplant, or even watch from beginning to current starting with video 1 to ???. I believe there's a lot of good info to be found, along with some ups and downs.

Thank you so much! I love hearing that the videos help, that's exactly what I wanted them to do - help others. I hope you are doing well. I will be working on getting another video posted soon to update everyone on how things are going. Take care and thanks for writing 🙂

Hi Peggy, I just wanted to check in with you and see how your journey is going. Hoping all is well with you. It's been a couple of months now, any progress or encouraging news?

Hi. Still waiting patiently for my “call.” Learning a lot from you so appreciate you sharing and letting us know about the ups and downs. Thank you for checking in. Peggy

Oh My Gosh John!!! That's Amazing!!! So happy for you, wow! And it an incredible gift isn't it - to actually really be able to live again, I am thankful beyond words everyday. I would love to hear more about your journey ... how your evaluation process went, how your surgery went, and how your recovery is going. Congratulations and stay well, also keep in touch please 🥰

So glad to see you! I needed a smile.

PandemicPat it is good to hear from you too! I'm glad to hear that you are doing better, and sounds like rehab is getting you a little stronger! That's great ... not qualifying because you're doing to well is a good thing! Exercise can really make a difference even if it's only a little bit. Take care and keep in touch!

Hi Mary, I see from your response that you have only watched maybe one of my 140 something videos lol. I have never been and never will be the type of person to "sit and dwell" ... in addition just for informational purposes copd and ph are 2 very different diagnosis. I thrived for approximately 9 years even after my diagnosis because I ate healthy, stayed active, and quite smoking long before that. 7 of those 9 years was active on oxygen, and I stayed that way until my lung function was at 17% ... most people by 17% are not even moving around anymore. My determination kept me going and happy for the majority of that time, also helping others to stay active and moving and to never give up because amazing things can & do happen. I am now in my 2 year after a double lung transplant and am doing amazingly. I average 15,000 - 20,000 steps minimum every day wiith ease. My condition before transplant allowed me a fast and easy recovery after getting over a few bumps. Thanks for the advice ... I hope you will tune in to a few more vids so can get to know the real me, and catch some of tips I learned while on oxygen that make life so much easier. Also maybe tune in to the last few vids to see life as it is now. Good luck on your journey.

Have you watched my beginning videos? I think they may help a lot. I was where you are at and my videos go through a lot of what you are feeling. The videos start with number 1 and go from there in order. My email is [email protected]

I definitely understand everyones' situation is different and that we are not all wired the same. It does also sound like you have been through a lot, and of course this whole covid thing hasn't made life easier for anyone ... has def changed life for sure and not in a good way. Also 19% is tough ... I was at 17% when I got my lung transplant. Hopefully he's doing better now with the oxygen. I wish you the best on your journey.