Courtney’s Addison’s Disease Journey - Hear the inspiring story of a young woman who experienced tremendous challenges after giving birth until finally diagnosed.
Пікірлер: 94
@IcelanderUSer2 жыл бұрын
I too have it. It took my doctors months to figure it out. It took an adrenal crisis on the operating table. I was having a muscle biopsy. Because of all the problems and weakness I was having. Like you said it’s very rare. Very few doctors will ever see it in their careers.
@beatingtype15 ай бұрын
Muscle biopsy for mitochondrial disease?
@M32_7229 ай бұрын
Thank you for this
@eavision13 жыл бұрын
thank you for sharing your story.
@patriciasuarez5807 Жыл бұрын
Wow thank you for sharing….
@tiffanybelavilas35442 жыл бұрын
Thank you for this ♥️♥️😭😭😭♥️♥️♥️
@billeldridge90173 жыл бұрын
Thanks for sharing.
@selinahernandez5119 Жыл бұрын
Thank u ☺️
@THEBEANLORD49 ай бұрын
Tanned skin is what got your dad to remember, but in some cases of addisons the hyperpigmentation does not occur. Scary thought
@cindyyearwood5738 Жыл бұрын
I was diagnosed in 2004 and I understand what each one goes through. I’ve had several crises and have been hospitalized. I’m so glad I ran across this because it shows we’re not alone.
@johnettamathews46712 жыл бұрын
So much like my own story I have be diagnosed since 2009 I was sick for three years and got down to 79 lbs and was so close to death before diagnosis grateful for every day with my family
@janetedens Жыл бұрын
Even though I wouldn't wish this disease on anyone, I have more courage knowing I am not alone. I am sorry your doctor thought the same as mine did. I often wonder how many people out there who have been diagnosed with depression actually have Addison's Disease. Thank you for your words. Take care of you. I am also thankful for the NADF. They helped give me courage to talk about Addisons with my then doctor.
@Artbot59810 ай бұрын
❤ thank you for sharing your story. I’ve been trying to figure out what is going on for years but this sounds Exactly like what I’m going through.
@jessicahampton19918 ай бұрын
Same!! To a T!!
@truthmatters95944 ай бұрын
I am getting Immunotherapy for Stomach Cancer and started having some major fatigue and bad headaches and several other symptom's thankfully after I passed out during a routine blood draw before cancer treatment my oncologist had me tested and found out that I had addisons, I started on low dose prednisone and immediately started feeling better, I wa only misdiagnosed for a month, my heart goes out for people that suffer for years before they are correctly diagnosed,
@manuelsanchez923611 ай бұрын
I was born with Addisons Disease in 1970 52 years on steroids its been tough. Great video good luck
@mahealpy6 ай бұрын
My new born son was diagnosed with the same. Can I contact you for a chat, if you don't mind.
@user-gg1vt9gk2m3 ай бұрын
So you have been taking steriods all that time and feeling good
@weebee6062 жыл бұрын
I tried anti-depressants and anti-anxiety meds for years, and had to drop out of college twice, before finally being diagnosed at 27. Now 36 and I was diagnosed with hashimoto's hypothyroidism last year too. Thank you for making this video. You're so lucky to have such a helpful support group!
@surlespasdondine7 ай бұрын
hashimoto is not that bad, hyperthyroidism is way worse @@NabilAkki77324
@WilyStankCoyote5 ай бұрын
Have you tried Low Dose Naltrexone therapy?
@weebee6065 ай бұрын
@@WilyStankCoyote i have not. Talk to your endochrinologist if you're thinking of switching medications
@WilyStankCoyote5 ай бұрын
@@weebee606 i take LDN. It adjusts my cortisol level. My prescription ran out and now I'm low again and can barely get out of bed. Ask your doctor to read the study to see if this therapy might fit. Never hurts to ask and try another therapy other than steroids. You might print some studied and take them in. My cardiologist prescribed. (I hate having to go out of the post and go back in to reply on the boards. I wish KZbin would fix this. 😵💫)
@KakashiHatake-do7ox5 ай бұрын
I got diagnosed with hashimoto this week. Going to get tested for addisons tomorrow. Pretty sure i have it. Can i connect with you to talk sometime please
@dinomyte19818 ай бұрын
Diagnosed this past year. This is a new to me. Haven't had a crisis yet and hope not to. Been taking my meds regularly. Thanks for sharing.
@nadf_adrenal8 ай бұрын
Glad to hear you have not had a crisis yet and hopefully you will not! NADF has an entire brochure dedicated to being newly diagnosed: www.nadf.us/newly-diagnosed.html Reach out to nadfsupport@nadf.us if you have any questions.
@BS-dq1kz4 ай бұрын
Did you have the tan everyone talks about? I have Graves already but I also have every symptom of Addisons except tan skin. Whatever is wrong with me is ruining my life.
@jadegirl51502 жыл бұрын
I have been having extreme fatigue and muscle and joint pain for months now. Just has a ACTH test and that was high but am cortisol levels were normal. I'm hoping for further testing because I know something is wrong. I'm craving salt and losing my hair. I also am either not hungry or if I do eat a lot losing weight. I was on prednisone because they thought I had Crohn's disease but weaned off and that's when my problems really started. I hope I can get some answers because I'm not sure how much longer I can last being like this.
@weebee6062 жыл бұрын
Check for hypothyroidism maybe? I hope you find some answers
@edtomorrow11 ай бұрын
May be look for an adrenal adenoma. Ct scan of the abdomen perhaps.
@edtomorrow11 ай бұрын
What were your cortisol levels atvthe time you got diagnosed?
@huskylover3328 Жыл бұрын
I jus got out of the hospital from having an addisonian crisis. It was scary n I have had both types of adrenal insufficiency all my life. This was the first time a crisis has ever happened.
@sidisrandomlife6786 Жыл бұрын
i have it too and i almost died at 12 and im 13 now❤❤❤❤
@lianagilbert411210 ай бұрын
I’ve been diagnosed with adrenal insufficiency years ago. When I started the hydrocortisone I had a massive dizzy spell so I stopped it. My calves hurt so bad after an average day at work. My joints, cartilage and muscles I wake up every day with pain. My worst problem is that I have these crashes that I call “alligator death roll” because it is just that disturbing. Had one during the day on Thursday, am still exhausted. It was followed by a bad migraine that lasted 24 hours. My siblings are diabetics. I feel like this is worse because there are no solutions.
@joannabond54079 ай бұрын
Sounds like your potassium level is high. Mine got so high the ER staff had never seen one that high (7.8). Autoimmune diseases usually don't stop at one. I have 8 now ughh!
@surlespasdondine7 ай бұрын
but there is a solution-taking cortisone. You cannot live without it.
@adibaparveen29632 жыл бұрын
Hello I have maximum all the symptoms, skin tanning, lost approx 9 kgs of weight, extreme fatigue and pain in body, heart pounding,and irritability I had my am cortisol test but that turn out to be normal, could it still be Addison? or its ruled out? Plz guide so that I can ask my endo for further testing
@adamdavis53832 жыл бұрын
How u feeling now
@missyolyz6713 жыл бұрын
Any recommendations for the anxiety and stress ?? Is been a month I had all this :( is part of the adisson? 😥
@jlemmink Жыл бұрын
Did you find any relief? My sister is having anxiety with Addison's right now. Care to discuss? I think all the stress of covid has gotten to her and that is where here acute symptoms are coming from.
@edtomorrow11 ай бұрын
I had Cushings and had the pituitary surgery to cure it. In turn I got Addisons but also diabetes insipidus. I have crazy anxiety right now mostly at night. That’s the time I take my DI nasal spray meds. That’s when my anxiety peaks. It might be the meds but is anxiety common with addisons?
@jaynewhite942810 ай бұрын
Both myself and my daughter suffer from addisons. Quite usual so I believe
@jlemmink Жыл бұрын
My sister has addison's. She is afraid and she needs a positive support group. Any ideas?
@rupadooo9895 Жыл бұрын
try omnacortil 5 mg(half morning and half at night) and floricot 100 mg (at night half only)
@JacobCricket6 ай бұрын
What about pain? My wife anguished in pain daily. Muscle and joint pain, doctor won't give her anything except a neurological medication for pain that doest work
@Mr_IBen5 ай бұрын
My Dad was diagnosed with Addison case and it's difficult to find the medication here in Nigeria. We need Help!!!❤
@piyush61033 ай бұрын
Just pray to God bro and take care of your dad
@Mr_IBen3 ай бұрын
@@piyush6103 Thank You So Much 🙏🏽 MY Dad is Recovering very well is just that we still find some difficulty in some other area but Prayers indeed has been very helpful. Please if you'll pray for us too we'd Appreciate it More Prayer More Advantage Thank You Again🙂🙏🏽
@Themozartthug3 жыл бұрын
Hi I have just had a coristol test and came back low, doctors rung and said they expect Addison's but I have no sickness or tanning ect......could it still be Addison's
@lorienglerginsburg19203 жыл бұрын
Yes, it could still be adrenal insufficiency. Be sure to continue the testing as soon as possible and use the NADF website for resources and documents, including the 'Facts you Need to Know'. You can also contact NADF if you have any questions using the contact form.
@nadf_adrenal3 жыл бұрын
Similar to many conditions, Addison's disease can present itself a little differently in each individual. Depending upon how far along the adrenal glands are damaged could reflect upon symptoms. What has your Doctor done as a follow up since the initial testing?
@Themozartthug3 жыл бұрын
@@nadf_adrenal they tested for Addison's and it wasn't so......even though my cortisol is below 3.....nothing now, in England that's it, they just leave u to it
@Themozartthug3 жыл бұрын
@@nadf_adrenal they rung me today and said my cortisol was even lower this time before the storm test, but it's not my kidneys They now need to test my brain
@imanmasood30333 жыл бұрын
@@Themozartthug the same thing has happened to me a few months back my cortisol levels were very low too. But when they did the baseline test they went up though they were still not high enough they still went up. I also don’t have that much skin changes but I do deal with a lot of the other symptoms, just letting you know you aren’t alone and I hope u find some certainty ! :)
@missyolyz6713 жыл бұрын
Omg I'm scary and this new body I have😭😭😭
@nadf_adrenal3 жыл бұрын
Please know you are not alone and that there is a very large community of individuals living with Adrenal Disease here to support you. Feel free to reach out to nadfsupport@nadf.us at any time
@sherridarrenkamp3303Ай бұрын
The pharmacist was correct about the dangers of long term steroid use, but unfortunately with addison's it has now become necessary. And big pharma rejoices!
@nadf_adrenalАй бұрын
People with adrenal insufficiency need the replacement dosage, for what their body is not producing. www.nadf.us/uploads/1/3/0/1/130191972/adrenal_hormone_replacement_protocol_and_quick_guide_9-30-21.pdf www.nadf.us/primary-adrenal-insufficiency-addisonrsquos-disease.html
@beatingtype15 ай бұрын
Never ever advocate for yourself all that gets she was a script for an antidepressant in a psych diagnosis in your chart. Always have an advocate on the phone or with you never speak for yourself always have someone else speak for you. It’s OK to speak a little bit but you’re not gonna get taken serious if you self advocate. As you say in your story, you’re stupid doctor just gave her antidepressant. Didn’t give a crap about what you were saying. nobody should ever be taking psych pills until all physical illnesses are tested and ruled out.