Ask Kate! Answers for Sarah, the mom of a boy with NF1

In this "Ask Kate!" video, Kate responds to questions from Sarah, the mom of an eight year old with NF1. She discusses precocious puberty, cafe au lait spots, autism, MRIs and more.
If you have a question or comment for an upcoming "Ask Kate" video, please include it in the comments below, or email Kate at [e-mail]
Kate Kelts, RN, is the Patient Support Coordinator at the Children's Tumor Foundation.
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What is the Children's Tumor Foundation?
Children’s Tumor Foundation (CTF) began as the first grassroots organization solely dedicated to finding treatments for NF. Today, CTF is a highly recognized global nonprofit foundation, the leading force in the fight to end NF, and a model for other innovative research endeavors.
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[@071949]

As always, very informative! I wish Sarah and her son well.

[@Briana5199]

Hola! Mi hija tiene NF. Este año entró a preparatoria tiene 4 años de edad, y a ella le es difícil poner atención y realizar sus tareas!

[@childrenstumor]

Hola Kenia, Gracias por su communicación. Aquí te envio recursos en español. Espero que sea de ayuda. www.ctf.org/images/uploads/documents/CTF-NF1_SPAN_5.17web.pdf www.ctf.org/images/uploads/documents/NF1_Learn_SPANbroch-fnl.pdf www.ctf.org/images/uploads/documents/CTF-NF1_for_Educators-dgt.pdf

[@nidatariq7741]

My son is first one in family who have NF 1 and he is 4 years and 3 months old. Diagnosed when he was almost 3 years old. We had one MRI in August 2017 when we come to know about his NF1 due to his lots of Café Au Lait Spots. He have lisch nodules in his eyes. Freckles in underarms. He is very different in behavioral issues. I am unable to deal with his behaviors and how to cope his behavior issues through patience and control. I am in Pakistan and here doctors don't even know much about NF1 so consulting a psychologist is of no help. Kindly help me and suggest when I should have next MRI now? Looking forward to hear from you very soon.

[@katekeltsctf9274]

Hi Nida, thank you for tuning in to Ask Kate. I cannot give medical advice, but if you'd like to reach out to me directly at my email: [e-mail] I'd be happy to see if there is any other way in which I can help. Please also visit the Resource Library at our website, there is a lot of information there that you could print for your son's doctors that might help them understand NF and how to best care for him. www.ctf.org/resources/resource-library

[@nidatariq7741]

@@katekeltsctf9274 thank you so much dear Kate. I will surely check that resource library. And in case I need any assistance will surely ask you.

[@huma6434]

Hi Nida, how is your son doing now?? Can we talk please. My son also have NF.

[@nidatariq7741]

@@huma6434 hi my son is doing great. He have ADHD and learning disabilities no other issues regarding fibroma and I pray that the NF thing remains silent forever.