Cure SMA - An interview spreading awareness about Spinal Muscular Atrophy

[@free4use]

Thank you Troy, congratulations for this video. Great work. I'm also a SMA patient and your video it's a positive contribution for a better world.

[@troy-reeves]

Thank you for the comment Alexandre! I hope this video was able to do the slightest amount of good and spread the word for SMA awareness!

[@VickiBowers]

00:00 introduction, disclaimer, etc 06:48: Beginning interviews I have a niece with SMA. I am fully confident that she would not be alive today but for the treatments that are currently available for SMA patients. I honestly didn't think she would have survived her first 6 months, but she's made it to a year and a half, is making incredible progress, and does all of this in good cheer. I am hugely gratified to see Mr. Suarez at age 39 as I feel this bodes well for my niece's potential for long-term survival. I very much appreciate Mr. Suarez' intelligence and how well he speaks on the issues of ADA accessibility. Good Job Mr. Suarez for providing light as the sun went down! Also, when Maryliz talks about risking the specialized chairs that SMA patients use, those special wheel chairs are unbelievably expensive, so not something one wishes to have treated haphazardly, and possibly damaged.

[@troy-reeves]

Thank you for adding time stamps! And Thank you for sharing this story Vicki! I appreciate the positive comment!

[@ethanschoenborn6923]

Good intention; however, your presentation of the subject matter is poor and distasteful. Editing is a magical tool! You would have a much stronger video if you left out 20 minutes of you explaining how you don’t do interviews and you realizing on the spot what the foundation you’re interviewing is. Cut the fat and get to the point! Show passion not a weird fact to get views and likes

[@troy-reeves]

Appreciate your comment and opinions! I am aware I have a lot of areas I can improve on! Thanks for the feedback