Treatment and Research: Dementia with Lewy Bodies (DLB)

Footage of the 2012 Stanford & APDA Atypical Parkinsonism Symposium at the Crowne Plaza SFO in Burlingame, California on October 13, 2012. Video footage was made possible by CurePSP and is property of Stanford University School of Medicine and the American Parkinson Disease Association.

[@alisonhowells1780]

Thankyou for the talk.. everyday we learn so much more because of people like you...who never stop giving us your time thankyou so much.

[@tootsla1252]

Three years ago my cousin told me that her mother (deceased) visited her - she insisted she was wide awake - not dreaming, 100% her mother came to her, stood in her bedroom when she was wide awake. I brushed it off (clearly she was dreaming!) One year ago while we were camping, she had tremors, problems with her balance, and a slow plodding type of gait. She also was very paranoid - fearful and anxious about strangers (fellow campers) who came near our campsite. She was convinced that a woman at a highway rest stop was planning to murder her. 8 months ago she was diagnosed with Parkinson’s. She hasn’t said anything about Lewey Bodies, but this program made me take notice. I’m concerned. She lives by herself.

[@joecatalanotto2129]

Clarity of complex concepts so well presented

[@bevcoyne6632]

Dr Geoff, Your down to earth way of explaining a complex and heart breaking disease and it's treatment is refreshing. Thank you.

[@lincolnsmom5074]

This is a great video. My husband has Parkinson's and lewy body demensia and his doctor did not explain these diseases so we could understand it. Now I understand and cope. Thank you

[@martasperling8582]

Pop

[@mariatrotter6889]

Great speaker . Excellent content. Easy to follow. Thank you .

[@joecatalanotto2129]

Have to digest this in sections . So much info you must reflection needed. Has explained lots of my family 's behavior

[@eulogossusan]

In another video the speaker spoke of unexplained falls as an early sign of Lewey body dementia. Since I have had unexplained falls with a lack of self - protective reflexes, but my physical therapist says my strength and balance are ok, this really hit me. My mother’s brother died of Parkinson’s and he did have Parkinson dementia towards the end. So if there is a genetic factor…. Some symptoms listed, though, I have had for my whole life, including picking out a specific object from a busy field. Think of a nurse staring at the supply cart in the clean utility room and not able to find the surgical kit the doctor wants- that was I. Disorder of executive function; I was always the last one to get my things together to leave the lecture hall. In church, I stand up noticeably later than everyone else even though I know all the cues. I do get dizzy standing up, but I have since I was a teen, due to low blood pressure.; then I was told it was due to heart arrhythmia, PACs and an occasional PVC, so I am on metoprolol. Lately though, it is still happening to the point where I am afraid I will faint. I don’t have visual hallucinations such as you describe, but my mind creates scenes in the bathroom floor tiles, the ceiling. I do have auditory hallucinations. I hear music that isn’t there, not my preferred music either! The audiologist said it is just a form of tinnitus. I have had that a long time and it is still there even when I hear this music. So, what is the next step? Also- what about Wellbutrin as an antidepressant. SSRI’s all have that one side effect. I’d take them if I were not married. My father and his father had dementia, pretty much of the wandering, trying to find my mother’s house ( in another city on another continent.) type. I am 71. I have some word finding difficulties. All of my large vocabulary is not reliably accessible. Lately though, it has extended to common objects. I usually get them after a few seconds but the delay is obvious. Is there any point going to a neurologist now?

[@jwade3268]

Great presentation. Need more Doctors like this man!

[@andylane8815]

I've lived this life as long as I can remember. Brain injury. Recently, I forgot my address and quoted a old one. I had a mask incident recently too.

[@andylane8815]

Ding, ding, ding. I was on 3 antihistamines! Three day's ago I stopped taking the last one. Maybe my brain will come back. Already do feel more energy and am clearer.

[@lindastevenson6642]

Hello everyone

[@susansteinhardt8503]

Fabulous content. Thank you.

[@kkdoc7864]

Wow. That’s amazing to use a drug to make a differential diagnosis. I often tried that with NTG for chest pain (except that it’s not that great unfortunately for a number of reasons).

[@tracysmith245]

understandable good to know about the medication link what happens after taking meds my husbands mum has mixed so hard to find a good video

[@VenitaSheppard]

Thank you 😊 this was very informative. Can Lewy body be a cause from vascular disease? My sister had 3 heart attacks about 12 years ago. They just diagnosed her with middle stage dementia.. Thank you for this video 💕🤗🙏

[@jaquelinedemoraescunha1880]

Melotonina is helpful?

[@jameskarentrixie]

What about lack of sleep, my husband goes for 3 days sometimes without sleep, should I just let him be or get medicine prescribed

[@kkdoc7864]

If your husband is not sleeping at all for that length of time, and it’s not due to some sort of ingested substance (medications) he definitely needs evaluated. By sleep specialist and neurologist (hopefully one dr who does both). That history is disconcerting and very dangerous to his life.

[@jameskarentrixie]

@@kkdoc7864 thank you, he has been seeing a Neurologist, it seems like he changes daily

[@angelabaiers5055]

Have you tried melatonin? It works. Sleep is crucial for mental health & body recovery.

[@mariautsick4072]

Wow

[@jocelyninzana236]

Do ft

[@b.660]

46:15 anaesthesia