Cystic Fibrosis: Living With a Terminal Illness (With Claire Wineland)

[@KirbieJohnson]

This is my favorite interview. Claire, thank you for coming on the show! Guys, we had so much more footage of Claire that I think we need a second video! Thumbs up if you agree! x

[@IKY94Zac]

Kirbie Johnson Definitely to go for. Further thumbs up guys.

[@bellebone6878]

Kirbie Johnson Yes, please! Also--and I think it's worth mentioning--Claire has a new KZbin channel @clairewineland. She mentions she no longer has access to the The Clarity Project channel as the company wrongly took all rights and profit that came with it. You may find Claire's video explaining this here: kzbin.info/www/bejne/sJbKaWabnsxjeKc Perhaps you could pin her new KZbin channel where people can see so that you direct people the right way. The circumstance is unfortunate but we ought do what we can to help!

[@JeriahMiller]

Yes please

[@Jojo-oi5vi]

I can't believe she's actually gone, im glad she lived her life to the fullest she could even knowing her time was limited. R.i.p and hope you're at peace sweet angel. You're helping someone in need.

[@kalitheamare]

i keep thinking of her younger sister ellie / who adored her/

[@musaddiqshah698]

Mr,jojo one day we will all go remember that.

[@to819]

Claire always looks like she's dying of terminal cuteness.

[@barrymichlowitz1071]

I learned of Claire through a tweet that had a link to her documentary. My first impression was that an actress was hired to play her

[@barrymichlowitz1071]

If an actress was hired, why was it a documentary?

[@mistermomo2904]

@@barrymichlowitz1071 You mean that you realized what you initially thought was wrong right? Or are you saying someone actually played her in the documentary? Cuz that was actually her right??

[@JackieWyers]

Claire is so wonderful. Loved the interview!

[@christinegiadaae2008]

she is such a wonderful soul . and also love ya❤

[@marcelaescanilla6685]

I can't believe she's gone. There's no sunshine when she's gone.

[@elcapitan5306]

"Only darkness everyday'

[@de-vine2168]

Its not goodbye its see u later❤

[@crickparasite]

Yes

[@mistermomo2904]

indeed

[@megshafer3961]

Claire looks so gorgeous, she's exquisite. And, enlightened, very wise. Let us hope for a cure...we must keep her here...she could help save the world, with her motivation. Give generously to Claire's Place...

[@musically235]

My bestfriend Hannah has CF and we did the EXACT same thing hiding in the hospital. I used to only hide behind the chair when the RT came in because they wouldn't wake us up through the night, until one day I got caught and Hannah tried to say I was a doll. From then on I hid in the shower. The CF community is so so wonderful and I've got so many amazing memories, so glad Claire is bringing light to the cystic fibrosis world and community!

[@mischa2643]

juliamadeline I tried to tell my night nurse at CHP once that my sleeping best friend was an ultra realistic sex doll and that I was very, very lonely. He might have believed me if she had a better poker face......

[@azkahV9432]

"Paying rent thinking that I don't have enough money in my account to pay rent is a million times more terrifying than death"

[@crystalxoxox7691]

Az Viqar that was such a triply thing to hear for me... here I am for the last week trying to figure out what I need to cut out of my fortnightly budget so I can afford rent, which bills need to be paid first, and which ones can wait, then there's the food for my pets and then the very minimal food for me And it's going to be like that for another month or 2 yet and it's not even really stressing me out because I've grown up in a family who was always short on money, with low paying multiple jobs for MONTHS at a time Im only 19 in 6 months, too... (I've been living out of home since I was 17, though) And to hear that death seems less terrifying than not having enough money in your account to pay rent...it's such an odd concept lol

[@mr.cifuentes1779]

Crystal xoxox Thats capitalms for ya

[@dulapeep420]

@@crystalxoxox7691 exactly. You grew up with that problem so it's less effective. That's exactly what Claire talked about, when you grow up with a certain problem like she grew up, always being told she was gonna die, it took away the fear and she got used to it.

[@LucianFromEarth]

No, it's not. You can always live in a homeless shelter. There's always going to be someone to give you something to eat and to drink if you beg on the streets. Death is the end and it's infinitely terrifying.

[@Ollieannasworld]

@@LucianFromEarth you can't live in a homeless shelter if you have cystic fibrosis. i think you missed her point

[@LauraCoellar]

Finally! A video with Claire! We miss her so much on her channel!

[@Justthatgirlish]

Autumn Brown She's not died, you sicko. Do you find it funny to pretend people have died and that you know them?

[@autumnbrown9981]

Justthatgirlish, actually, my daughter was using my account. We had a friend named Claire and she passed away. My 8 year old got the two confused.

[@peachyki]

Elisa C. same

[@s731s]

I was just thinking about her the other day and this video pops up on my suggested yay

[@kassandrastrickland3404]

Elisa C. I miss her too

[@nondescriptbeing5944]

She's such a good person, so positive and beautiful inside & out.

[@lbeamer5782]

ADORE this woman! she's so inspiring and a light! can't say enough good things about her. love you Claire! keep kicking ass and inspiring the world to decrease life suck (too excited to be eloquent, big hugs!)

[@esmeevermeulen7244]

she is growing up sooo beautifully 😍😍

[@matildablomqvist7555]

Hey! I'm a twenty year old girl with CF, from Sweden. I think you are amazing in so many ways Claire. The only thing i miss when you talk about CF is that you say "CF is like this...". CF is very different from person to person and maybe you could say, "for me, CF is like this..." or "CF could be like this..." you know? All CF awareness is good, and I'm so happy you are doing this. But it's easy for people who is learning about the disease to think that it always looks the same.

[@sassygeorgiapeach]

Claire, you were such an amazing inspiration to me! You were truly wise beyond your years. You taught me so much about living life to the fullest & making the best out of every day I’m given. May you Rest In Peace, beautiful angel! You are dearly missed.❤️

[@kibou2357]

My aunt died of cystic fibrosis at a young age. I know there's a possibility that I'm a carrier so watching this reminds me I need to get tested to find if I have the gene.

[@alejandra-mv7lx]

You are born with cystic fibrosis, it doesn't hit you when you are older.

[@Ollieannasworld]

@@alejandra-mv7lx this is true that you are born with cystic fibrosis but there a lot of cases where people dont get diagnosed until later on in life. in my clinic my doctor was extremely excited to tell me about his new patient who had just been diagnosed at 50. it just means there are different genes and different bacteria cf'rs can catch so people who dont show symptoms until later on is still somewhat new and normal

[@lexilu1278]

I really enjoyed her channel before she was on here. I love how well spoken she is. I could probably hear her talk about anything for hours. She's so interesting.

[@bobthabuilda1525]

I love her out look and the positive spin she puts on everything, it's truly very inspiring. However, as someone who suffers from depression, it also makes me a little nervous, because I know how many ignorant family members or friends are going take her beautiful message and use it to shame their sick/depressed loved ones who aren't as sunny as her. That's obviously not her fault, but it will happen. "Look how much worse she has it than you, but you don't hear her complaining." As much as we would all love to be like Claire, the truth is that most of us don't have a choice in how we react to things like this. Someone like myself, who is prone to depression, has to deal with hormone and brain chemistry imbalances that will never let us be this optimistic, no matter how much we wish we could be. So please, if you take anything from her, don't let it be that everyone should be as sunny or accepting as her. We all deal with things differently, and we have no choice in it.

[@stardolphin783]

Thank you, you finally said that. I dont blame her, but this is why i dont talk about her to ceartain people. I wish i could without them saying that she has it worse than me so i should be like her, enthusiastic and sunny. I also know she has her days, or had, she has said that what she shows is not the full story on her insta, where she sometimes ranted about her own crisis moments

[@nikkid.3318]

Why does Claire not make videos anymore? I miss her so much. Once I saw this video I clicked on it right away. Make more videos Claire please!!!!! :D

[@Rayowag]

popularMMOs Fan 23 She made a new one with her normal name

[@mariavoss5915]

She is so beautiful, confident, and inspiring!

[@danielatapia5096]

Claire is so brave, I really admire her.

[@jcny11]

She was a bright light in the world. 💖

[@claudelombana3689]

So sad to know that she passed away. What a beautiful, sweet and smart girl she was.

[@riananderson7764]

Excuse me is that a pink oxygen cannula?!? Where can I find that? That's so much cooler than my boring clear one omg

[@thekawaiicripple]

www.breatheo2.com/oxerator.htm I love my medical stuff to be colored too, find some here :)

[@riananderson7764]

Thanks so much!

[@mischa2643]

It can match my other obnoxious equipments! The most boring thing I own is the IV pole because it only came in one colour.....

[@alexanderwelshons1364]

Madeleine you should decorate it with paint or tape! it’s always fun to personalize stuff like that.

[@douglaswilliamson1657]

Such a beautiful heart, can you imagine our world if Claire’s wish to help people spread? God bless you Claire, I’m inspired to actually see a real angel 🙏❤️

[@Hereismytwocents2011]

She kind of reminds me of Hilary Swank. I think it's awesome how she has such a positive outlook on life.

[@flingflong912]

so happy to see Claire's face again! miss her so much.

[@kovtundiana3743]

Claire is just wonderful!!!

[@harjotk9870]

She's so beautiful, and I love her voice!

[@ACCOUNTANTB]

I still do not believe shes gone.....such a wise and upper mindset girl and so beautiful....I trully think shes an angel..somehow left us some missing messages about whats real life

[@shanster234]

Claire your such an inspiration please go back to posting I miss watching your videos

[@neen42]

Shannon Magill Claire Wineland is the name of her new channel. The Clarity Project is not controlled by her and the people in charge of it screwed her over.

[@kimberlysclips880]

Her voice 😍

[@timmcrrobert8093]

Claire, oh ever , Claire you are an inspiration to illnesses I've had two heart attacks Tim from vegreville,Alberta.Canada rest in peace my inspiration, and angel

[@emcandescent]

I love Claire so much!

[@Dinordinow]

She’s such an amazing talker!

[@rochellenicoletta7353]

Soooo happy to see you again!

[@selenaalmaraz4387]

She has a new channel now that is just her name. Wanted to put that out there.

[@jsumrs1]

Selena Almaraz hey babe

[@attractivecracker]

I love her so much! Honestly stoked to see an update.

[@EdenDespina]

She had such a will to live... Videos and photos of her will always keep her personality alive.And of course her foundation. Claire was an amazing human being and I can't comprehend the fact that she will never post anything again... She will be missed and I am not just saying that as a cliche, I truly will miss seeing and listening to her, that's why I thank God for all the videos she had recorded. By the way,if any of you are interested in seeing more of her,she has a channel called Claire Wineland because she stopped working for the Clairity Project a while ago.

[@xYouthAttackx]

she's such a beautiful inspiration. saw her story on CNN.

[@shadyabrown-hall5955]

Aw... she was a beautiful person. So sad she's gone but she was definitely something special. I can't wait to see her movie.

[@Ellyseeee]

What a sharp, positive spirit! you go, girl!

[@daniiiakasha1436]

I'm so glad to see a recent video. You are awesome

[@mandydiaz1327]

I'm so sad she is gone😢 I was and am one of those people in and out of the hospital. Everything she said resonated with me. My prayers are with her family🙏🏽

[@kuelee9382]

She is so smart and talkative, she can become something special.

[@JamesMunyua]

Rest in Power Claire

[@rimshakhalid5037]

She's pretty

[@jeanneanne458]

I still think of you sweet little doll. RIP I will always watch your videos

[@sunnyb7816]

This was the best!! Can you guys do the Frey life next?!

[@TDSudduth]

Always enchanting and eloquent. Always still with us. What a beautiful spirit.

[@lilymurphy7628]

So glad to see her again!

[@ruutkoski1852]

thank you! im so happy youre okay💗 i was scared that you were not with us anymore. BUT I LOVE YOU UR SO INSPIRING!

[@gbangerlove]

I'm literally inlove with this girl

[@user-ri3oz1hi4k]

FryManAuty Vlogs-She’s dead, now.

[@rosewater94]

Clair is just one of those people who you want to have in your life even if it costs you millions. 😍

[@marylancelot]

I love her so much, I'm so happy to see her!😍

[@orlaithreichenberg445]

omg you don't know how happy I am to see her I thought she died. so Happy she is still here love her

[@roseswife]

How can miss someone you’re never met

[@GutsAndGall]

Great to see you again!

[@danithefiend6167]

I miss her so, so, SO MUCH. 😢😢😢

[@wildmansamurai3663]

Please start doing videos again Claire..We miss you!!

[@Mr-xy2cn]

I have this Same disease. I will probably try to make videos about my life and what I have gone through. I would LOVE to be able to get ahold of Claire and be able to work with her.

[@user-ri3oz1hi4k]

Mr CAPS 257-Sounds cool, hope you acheive your dreams. I support u sm. Love you. Love you so much. Good luck. Seen yoyr first vid. Its inspiring.

[@Myluxury1stHair]

Love your quote and story. Thank you Claire for sharing. Ily

[@blackeyedbutterfly]

love Claire! she is such a positive force!

[@JennyG.COW5]

That's so awesome to start a fund! Thanks for letting us get to know you more! :D

[@evelynsanchez2009]

I missed Claire so much

[@colleengillespie7843]

Your energy is healing Claire!!!

[@HurricanePatrick]

Even though she died, I'm glad that she didn't technically die from CF, in a way, she did beat the illness

[@junialstudios]

Claire, so great to see your face again!!!!

[@wonderlandisalanguage9646]

Rest In Peace Angel ❤❤❤❤

[@puchacanela]

She could live longer. The oldest person with cystic fibrosis lives in Ireland, that lady is 76 years old. Hope that this beautiful lady could live longer that what is expected

[@moogleish7652]

Unfortunately, she recently passed away.

[@horsegirly5]

Super cool! Claire, you should get connected with Mary Frey from The Frey Life. She is also has CF and posts daily vlogs to raise awareness.

[@felicityaeh]

horsegirly5 I love the Frey life!!

[@rebeccawright5987]

horsegirly5 Mary Frey is such an amazing person!

[@peachi3sweeti3]

unfortunately, C.F. patients can't meet in real life because it's super dangerous for their lungs:(

[@lizzieb1318]

horsegirly5 yes!!! but they would have to have safety gear :)

[@jasper5782]

Facetime is a thing

[@aasmalimbu384]

We will miss u Claire...I just can't tnk u enough how much u be impacted other life including myself...u taught us to be happy with wat we have n to live in a moment...😍😿😿😔🌹🌠🌞🌈rip ....now re in a better place ..cause there is no tears in heaven only happiness

[@nd2663]

she is so beautiful, love her

[@eugeniasantibanez7243]

i missed her, loving her

[@user-ri3oz1hi4k]

Eugenia Santibañez-She’s dead, now, sadly.

[@badbadbadguy3730]

She's alive yassss yehet

[@Moon-ve3cz]

She’s so smart and I love it

[@kristenholmes2987]

CLAIRE PLZ POST A VIDEO WE MISS YOU

[@rymb8046]

I love claire so much

[@laylenhope9327]

It’s sad she only had a year and a half left to live. 😢 such a inspiration

[@josephsandlin9767]

I have copd I'd like to here more from you claire

[@veritasgodess]

CLAIRE IS AMAZING watch her documentary

[@brianlamar223]

And we will see her again someday

[@rimini_wav]

You look so beautiful! Missed you on youtube ❤

[@im19ice3]

feeling grateful to her

[@JessicaThe93]

If you want to know why Claire was out of the picture, have a look at her new channel, since the clarity project isn't hers anymore. New channel: Claire Wineland :)

[@albertogonzalez1523]

ALL MY LOVE CLAIREEE...ALL THE WAY FROM MONTERREY MX!!! :D

[@imenedj4450]

God .watching this after i knew she passed away is just heardbreaking 💔💔💔😢 i love you so much Claire ❤ RIP

[@allysonestes]

she's so beautiful, inside and out ❤

[@sarahjanesalvan8202]

Soooo glad to see her :)

[@kingkay8326]

She is so stunning!!!!!!

[@alisaspear3382]

Hey guys just if you didnt know her channel got stolen out from under her. Her new channel is claire wineland

[@larissaflores1823]

Claire es un ejemplo para todos 💕

[@savannahhoward2547]

I love this girl sm

[@shortmashins4031]

Interesting video. I never knew I was a carrier of cystic fibrosis genes until i got genetic testing while pregnant with my kids. Im originally from the Philippines. But my husband is not a carrier. I was also researching alot about the conditions. It's predominantly a European disease. It mustve been passed down from either side of my parents who had European lineage.

[@hermanoestrada401]

Is N-Acetyl Cysteine useful in this case? I read that it "N-acetyl cysteine helps treat collapsed lungs caused by mucus blockage."

[@jimbrown9817]

Yes, but Pulmozyme (dornase alfa) is more effective and doesn't smell awful. Although much more expensive, it is the preferred mucolytic in CF. Mucomyst [n-acetyl cysteine] is used often in severe asthma and COPD exacerbations and pneumonia. The mucus load in most CF cases requires the best possible therapy.

[@Kaliavidya]

I freakin love her so much, thank God she exists

[@katireijonen]

My favourite: "Thinking…that I dont have enough money in my bank account to pay rent is a million times more terrifying than death." I totally got that. Thank you Claire! You are lovely

[@nikkymonbec3013]

she's soooo pretty ♡

[@Wargatron]

ITS NOT THE CLARITY PROJECT ANYMORE! Its just Claire Wineland now!

[@sarah.k7877]

You're an inspiration for each of us! Rest in Peace you beautiful Angel!💛 PS: Does anyone of you know which camera was used for this video? Or what type of camera? It's really important to me and you'd be a great help to me!💛

[@sophieroman4212]

Rest in heaven❤️