Cystic fibrosis patient: One kid's amazing story with this genetic lung disease

  Рет қаралды 18,883

Marshfield Clinic Health System

Marshfield Clinic Health System

7 жыл бұрын

The parents of 7-year-old Alec Scharenbroch know what it’s like to care for a child with Cystic Fibrosis (CF), a genetic lung disease found in one in 3,000 babies that causes persistent lung infections and limits the ability to breathe over time.

Пікірлер: 20
@markchasteen5521
@markchasteen5521 2 жыл бұрын
I lost my wonderful daughter Vanessa in 2010 and l can't seem to get past it. I don't want medication . I was wondering if possibly there was a parent out there l could talk to. I desperately want to be with her again and hear her laugh and say hey dad. Too all the kids and you g adults out there, take care , l love you all, surely modern defeat this disease. Thanks for listening, from K.C. MO.
@AlecScharenbroch
@AlecScharenbroch 3 күн бұрын
This is Alec from the vid 7 years later 15 now and doing fine great we could spread a message
@olliepeck4316
@olliepeck4316 2 жыл бұрын
My little brother has cf and it’s about 4:30 in the morning and I just finished crying for about 45 minutes over the fact that my brother has cf and so so so many different aspects of that. I really needed to hear some stories about other people with cf.
@amandapowers87
@amandapowers87 3 жыл бұрын
Omg she doesn't let him talk at all
@hottiegurl16c
@hottiegurl16c 2 жыл бұрын
Yesss I was just saying the same thing!
@ericaramos3698
@ericaramos3698 2 жыл бұрын
I was just thinking that LOL
@Robyn_0050
@Robyn_0050 2 жыл бұрын
I am 21 I have CF I only have a mild case though I love to see other peoples story
@hottiegurl16c
@hottiegurl16c 2 жыл бұрын
Omg stoppppp cutting him off
@hobiworld6052
@hobiworld6052 2 жыл бұрын
Yes lmao he looks so awkward
@noorkbaloch2849
@noorkbaloch2849 2 жыл бұрын
My baby also cystic but she is now fine
@laurajackman3432
@laurajackman3432 2 жыл бұрын
Keep your chin up sweetie. ❤️ I was told they did not know if my son would survive when he was 7 weeks old. He is a happy, and TOTALLY typical 15 year old now. The medical advances in the last 15 years have been amazing. I am certain the next 15 years will reap the same. XOXOXO God bless you and your sweet baby.
@noorkbaloch2849
@noorkbaloch2849 2 жыл бұрын
@@laurajackman3432 I pray for your baby thanks dear
@qrcboo
@qrcboo 4 жыл бұрын
I have this. I have CF. :(
@LinaLina-wk1py
@LinaLina-wk1py 2 жыл бұрын
How are you doing?
@CrystalPaw_1
@CrystalPaw_1 4 жыл бұрын
I LOVE how there's no dislikes 😄
@daniellesarver2738
@daniellesarver2738 3 жыл бұрын
Me too...its a nice change
@mostpalone4426
@mostpalone4426 3 жыл бұрын
There’s only 1 now. But yes usually there’s always a lot of dislikes.
@olliepeck4316
@olliepeck4316 2 жыл бұрын
My little brother has cf. is there any chance that anybody has some sort of a sibling support group
@itskitty9489
@itskitty9489 Жыл бұрын
ik this is serious but the mum rlly doesn't let the dad speak
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