This is a video everybody should see. It explains the essence of what it’s like to have Parkinson’s. You put into words exactly what I am experiencing. I want to been trying to write a book about but it’s too hard to put into words. I could watch this 10 times. It’s really awesome.
@kaystokes977 Жыл бұрын
27:30
@kaystokes977 Жыл бұрын
I have a lot of people(friends)that are uncomfortable around me.
@angelakindon9839 Жыл бұрын
I love you guys!
@irenemanning182 Жыл бұрын
Hi my name is Irene and I enjoy listening to everyone’s story. I love dogs we had one for 17 years, because of my age my husband doesn’t thing it is good thing, the dog would out live me and it’s not fair to the pet.
@kennethbuscher6667 Жыл бұрын
Thank you all honestly it help 🙏 😊
@sharonmaplethorpe9168 Жыл бұрын
Well said Robyn - totally agree👍
@kendrapatterson4629 Жыл бұрын
Thank you Mel ❤️ this panel saved especially during the pandemic
@erichouck9487 Жыл бұрын
I don't feel any shame but I do have quite a bit of fear. Like Davis I am a cyclist and ultra runner. I was diagnosed 11/21 but knowing the symptoms I believe I may have had it for close to 10 years. I am scared to death that what, and how long, my body will fail bad enough that I will not be able to compete. I also don't want to become a burden on my children.
@clausdnk5163 Жыл бұрын
I love you all! Thank you for your advices
@clmims100 Жыл бұрын
I really miss walking freely without aid or help from others. I get frustrated holding a fork. I get tired of people turning their eyes away.
@lili1740 Жыл бұрын
I was diagnosed last July, I started to watch/listen this meet up since last September, it gave me so much encouragements to face my fears. Thank you very much!
@davisphinneyfdn Жыл бұрын
You are so welcome
@kendrapatterson4629 Жыл бұрын
Thank you! I needed to hear this 💛🌈
@sharonmaplethorpe9168 Жыл бұрын
Likewise- thanks to all you guys, you help me so much with your honesty and openess❤❤ x
@davisphinneyfdn Жыл бұрын
So glad!
@kaystokes977 Жыл бұрын
How do you become one of you? I love the closeness y'all have. I feel i have nobody to communicate with.😊
@davisphinneyfdn Жыл бұрын
Know you're not alone! Please consider reaching out to one of our amazing Davis Phinney Foundation Ambassadors. davisphinneyfoundation.org/connect/ambassadors/ They are eager to talk with you.
@sharonmaplethorpe9168 Жыл бұрын
Not making light of a serious topic but I love the Shed comment 😂😂😂
@sharonmaplethorpe9168 Жыл бұрын
Oh no - is Mel leaving DPF? She is great at mediating and directing these webinars
@davisphinneyfdn Жыл бұрын
Thank you, Sharon. I appreciate your kind words so much! I am leaving, but I hope to remain connected. See you in July!
@irenemanning182 Жыл бұрын
Irene, forgot to tell you I m in Red Deer Albert Canada
@jrrosania4866 ай бұрын
How does a person become an ambassador?
@davisphinneyfdn6 ай бұрын
For more information about all aspects of the ambassador program contact communities@dpf.org. Note that not all members of this panel are ambassadors. We develop the panelist group based on a variety of factors.
@clmims100 Жыл бұрын
I have a genetic defect preventing me eating sugar in any form, my craving for carbs drives my blood sugar way up and I know that my doctor condemns me. It is like a slow suicide.
@rosanegurgel6665 Жыл бұрын
Helloooo
@christineallred9130 Жыл бұрын
Heather have you had dbs
@davisphinneyfdn Жыл бұрын
Yes. She has had DBS. She shares a lot about her experiences in these two interviews: kzbin.infoYrAAo8FCr48 kzbin.infoEDh6tV8wlHA