Understanding Progression in Parkinson's disease

Parkinson Place - Understanding Progression in Parkinson's disease presented by Annie Killoran MD,

[@ParkysPlace]

Five year warrior here. (left side) I began Lock Sport to fight it. Engaging in physical and mental activity definitely helps. Diet is also important. Don't eat junk food. If you have Parkinson's, the way to deal with it is to fight each day one at a time and not give up. Parkinson's is it's own paradox. It degrades your movement, but the way to improve your condition is to be mentally and physically active. With proper medication (CL), my Parkinson's is about 1.8. Without medication, I would be in stage 4. Living with it is scary and frustrating. I cannot plan for things, because I have no idea how I will feel come that day. Proper sleep is rare, even with sleep meds, there is no guarantee. I could go on and on, but I think the message is clear: Parkinson's sucks, but you can fight it.

[@richardgonick931]

Very informative yet depressing. I’m 2 years in since diagnosed in Dec. 2021. With the luxury of hindsight I most likely had earlier onset of years ago.BTW I also was recently diagnosed with prostrate which complicates treatment and therapy decision s concerning Parkinson’s.

[@PondPlace-dc1fg]

Ivermectin for cancer

[@lenas5613]

I've been doing physical therapy for balance and strength ...it has helped!

[@nanelgonowon5448]

This is very informative but yết depressing im in a honeymoon stage by taking Levodopa + Carbidopa is a high felling a lot of enery i love doing housework cooking cleaning etc. i can do biking earobis exercise stay active. I hope and pray to God that my pd will slowly progress. Think Positive God is good all the time.

[@Peter-gu4zc]

Great presentation. Thank you! Question: for last 5 years my wife has hand tremor periodically L>R when holding a cup or plate with fingers of floppy/relaxed hand. The liquid in the cup or food on the plate end up on the floor from shaking. When she squezzes the handle of the cup with her fingers, the tremor decreases or goes away. She has poor sleep, but not other classical symptoms. Is it a sign of Parkinson's? Any hope for reversing it with the passage of time (fasting, organic whole food, sleep, exercise)? Thx.

[@angelakindon9839]

So clear! Thank you, thank you, thank you.

[@GaryBearTexanUSA]

Excellent presentation of a complex clinical study. Thank you.

[@sheilabostock6566]

So very helpful.

[@sannox01]

Really informative. My other half was diagnosed at 46 (in 2012) had DBS under 18 months ago and has since progressed to stage 4 and is currently showing sings of some pre DBS symptoms returning. Progression studies always seem to assume the onset of PD, or diagnosis if you like, as being in the later years of life, I wonder if there have been studies in early onset PD and progression when DBS is involved.

[@user-rl2se4bt1q]

I’ve had Parkinson’s since 2017 now I have the tremors that’s normal for Parkinson’s but stuttering. I lost my sense of smell and lately I find my balance and I’m falling backwards but I’m able to catch myself thank goodness for that and I have my eyelids don’t open all the way and I always had since I was a kid bad Eye coordination so when I have to look from one side to the other, I don’t move I can’t move my eyes. I move my head. I was wondering if this is part of Parkinson’s or if it’s the onset of something worse like PSP or something like that if you could send me back a comment or an answer greatly appreciated. Thank you very much.

[@holder868]

This was very nformative.

[@rossmiles7169]

Interesting but very Depressing...

[@carbonejack]

Terrific presentation, in common language I could understand. Scary for me because I have late onset non-tremor symptoms. Prognosis for me is no good.

[@RobGrant-cu5uy]

How about focused ultrasound to fix tremor

[@GoProGoalieUzi]

What can one do to increase comfort and mobility while sleeping? Can’t turn onto side, it’s very difficult and takes a lot of effort..

[@caraogg6230]

Constipation out of nowhere, then vitamin deficiency potassium significant drop in blood pressure while standing, drooling while be awake. Thought might be Sjögren's

[@PondPlace-dc1fg]

Friends wife is a CNA. Had to have all the vax. Now has pd symptoms. To the fall stage. Cant swallow food etc. Anger .. memory loss... Refuses to believe could be PD.