DEEPLY SAD TIME

IN THIS VIDEO:
Welcome to my channel...
Adapting. Thriving. Changing. Growing. Facing the unknown every waking day. This is my story, and I hope that you find encouragement, community, friendship here. A journey of life with a child who was born with severe disabilities, and how we are making our way through the ups and downs.
Daniel was born with a rare condition called Polymicrogyria. It was caused by the virus, CMV (cytomegalovirus). Daniel has extensive medical problems and disabilities, but we have created a loving support structure for him, and the 5 of us, and our pets, find lots of joy and love. A very unique family dynamic for sure!
The Adapted Life Podcast, by Julie Hasselberger. listen !
theadaptedlife.buzzsprout.com
Write to us!
Julie Hasselberger
PO Box 3611
Newtown, CT 06470
Music licensed by Epidemic sound and Premium Beat
filmed with Canon G7X Mark II
#caregiver #specialneedsmom #medicalcare #inspire #juliehasselberger
#cerebralpalsy#disabledchild

[@stacymanning5560]

❤❤❤

[@PiebirdFilms]

Thank You for the honest vlog. You are not alone.

[@paulaylward5565]

I have a van like that if the chair is in the middle then you can easily reach the shape to huck the chair you just use the back seat to reach the back of the chair and the front steps can be easily reach just open the side doors on both sides and you can reach it easily I have one so I know

[@lynns4426]

I'm in the do nothing but wait on my son phase. His most recent aide had to have brain surgery. She's a caregiver for her mother too. I had planned on going to my high-school reunion in August but idk lol. I am keeping you in my thoughts. Thank you for sharing.❤🙏🏽

[@carriebowlen3785]

YOU GUYS ARE THE BEST! ❣❣GOD bless you all!! 💜💜I always pray for you all! Sorry I am so late! Been busy this summer! I AM SO SORRY JULIE! I AM HERE IF YOU EVER NEED ME! YOU'RE IMPORTANT TO ME! Is John ok?

[@Catfluff521]

So sorry. I know if too well as most do at our age.

[@paulaylward5565]

How is everything going with everyone and your pets

[@CR-xt2jj]

There is so much going on. Sorry to hear of the passing of your father in law.

[@jenng3649]

❤

[@mjtgangellove5441]

Praying for you all Julie as well as the other meditation you do take time and meditate on Gods word read the Bible

[@mackenziehacker7787]

Who passed away?

[@SuperMissblueeyes]

I'm so sorry for your loss. Please get a lawyer to help you fight for the help you & Daniel deserve.

[@mjcompas]

I have been there where I have gotten iñ fights with my caregivers walk out on me how many nurses do you have right now 😊

[@SuperMissblueeyes]

I'm so sorry they put you through that. It's totally unacceptable.

[@amberwoodworth4549]

Who passed?

[@Catfluff521]

Her FIL, I believe. 😢

[@shawnafsworld7431]

Can You Report it to their State Run Agency Bad Absent Caregivers who Fail to Show up ? their is A Autism Mom Kim Who Has A Severely Autistic Son She Fought The State Of California For Her Son to Get the Help and legal Services Their Family desperately Needed 2 sometimes 3 Nurses to help Care for her son James and Get him the Core in home health and Nursing Care For their home Health Care She And their Family Eventually Won Jamey now has the Services now For their Son . His mom had To Legally Fight the State of California She had to Learn about The State Laws for Service and For People who Are Entitled to Care No matter their Age or Disability Status , and she And their Family Won To get the Service. I Hope you guys can Get Great Caring nurses Who Are Reliable and Who Will Help You With Daniels Care that he needs ❤. I Finally got a Health Diagnosis Back in ( Sept 2022 ) For My Many conditions Turns out I was born with a Condition Called : ( HyperMobile Ehlers Danlos Syndrome ) it’s 1 of 13 Sub-types of These ( Eds ) Conditions Bless You Guys for all your Hard work To Help Daniel Get The Care he needs. And I’m So Sorry about your Father in law , Johns dad Passing away 😢 God please Bless Your Family through this Difficult time ❤. And Know that He is at now at Peace not in Pain bless you all guys.