Demystifying Mast Cells: How To Get The Right Diagnosis

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In this riveting episode, host Haylie Pomroy of the Institute for Neuro-Immune Medicine’s Integrative Medicine Program is joined by Dr. Theoharis C. Theoharides. Watch as Dr. Theoharides decodes the mysteries behind mast cells and mast cell activation syndrome (MCAS). He also shares actionable advice on how to receive proper diagnosis and treatment for your chronic illness: by taking charge in closing the patient-doctor communication gap.
Clinical researchers are working to find answers and the right solutions for complex illnesses like MCAS. If you’re someone experiencing unexplainable symptoms and are having difficulty getting the right diagnosis, tune in to this episode and get in contact with us.
Key Points:
00:00 Introduction
01:34 Why pursue clinical research for chronic illness?
04:54 The patient’s diagnosis dilemma
06:56 How to be heard by your doctor: 2 practical tips
10:34 Mast cells: history and their effects on the body
13:40 Can mast cell activation syndrome be cured?
14:34 The four types of mast cell reactions
16:35 Getting a mast cell diagnosis: ask these questions!
19:16 Signs to watch out for mast cell syndrome
21:03 Patients, don’t minimize your experience
23:31 Communication ignites hope in your health
28:27 The future of neuro-inflammatory research and what it means for you
Dr. Theoharis C. Theoharides joined Nova Southeastern University (NSU) on July 1, 2022 as Professor at the Institute for Neuro-Immune Medicine, and Director of a new Center of Excellence on Neuroinflammation Research at the Clearwater campus. He has been Professor of Pharmacology and Internal Medicine and Director of Molecular Immunopharmacology & Drug Discovery, Tufts School of Medicine (1983-2022) and will remain as Adjunct Professor there.
Dr. Theoharides’ website www.mastcellmaster.com/
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[@NSU_INIM]

Sign up today for our newsletter. 👉 nova.us4.list-manage.com/subscribe?u=419072c88a85f355f15ab1257&id=5e03a4de7d

[@NSU_INIM]

Your support goes a long way toward the advancement of clinical research. Donate here. 👉 www.nova.edu/nim/donations.html

[@peggymoffatt1651]

I always enjoy Dr. Theoharides. What a gem of a human being! So intelligent and compassionate!

[@NSU_INIM]

We agree!

[@janemerrittmckenna2386]

I wish she would have let him finish his connection of hypothalamus, to amgdala to micro glial. She needs to shut up and let him finish!

[@JuliePeterson-12345]

He is brilliant but this was difficult to listen to bc she kept interrupting

[@SG45260]

I have had Mcas for at least 20 years, have seen multiple specialists. Taking histamine meds since 2016 but they no longer work and I cannot find a dr that knows what to do for my constant itching skinand inflammation.. Clinics and hospitals are all chaotic so finding help is almost impossible. Even my pcp is not available most times. Too busy

[@maryr7593]

Wish the dr's mic was turned up a bit...he speaks softly. But lady speaks quite loudly so her mic could be turned down.

[@ilovehistoryn.a.h9446]

The interviewer was soooo disruptive! She didn't allow the doctor to finish his thoughts, and she continuously interrupted him with her "empty" interjections of "ok", "ah" "uh-huh" and laughter. With all due respect, it was annoying! 😤 Let the guest talk! In an interview with a lot of technical information, the ongoing interruption is not conducive to the flow and impacts the transmission of the information to the audience.

[@viridianduchess]

Yes, yes, YES! 😁

[@magicalpatterns]

Dear you are interviewing the master in MCAS pleaseeeee let him talk.

[@lizmcewen-cq1zp]

Great doctor, just wish the interviewer would have allowed him to speak more. Too many interruptions, making it difficult to follow him.

[@lizarosa156]

I love her passion and love for this genius. Please keep important interviews coming. I really think spike proteins correlates with other viruses and germs for long COVID. Also harmed and caused inflamed blood vessels.

[@irisvandijk570]

Pretty sure this is what I have, yet I get told I only have edema and uticaria. So sick of the terrible system. Also had exacxtly that, a car accident and after that have come down with all different reactions, and mostly after eating. Yet they tell me it has nothing to do with food even though ive got my IGG tested and turns out i am intolerant to diary, gluten and eggs and few other things. However I also get reactions when its not any of those 3, especially sulphites but the rest I don't know. Can't handle most perfume smell, smoke etc. So tired most of the time, and already have chronic pain. This whole thing is awful and not getting anywhere with the doctors is extremely tough.

[@jeanm7755]

A truly amazing and enlightening talk! Thanks very much for providing this very relevant information to patients and providers‼️

[@patsonnett9387]

Thank you for hope!

[@shelcoller7893]

Beautiful explanation! I appreciate your knowledge. God bless!

[@NSU_INIM]

Glad it was helpful!

[@MrsSenichka]

You are amazing ❤😊 you saved my life sir

[@MrsSenichka]

Brilliant ❤😮

[@throtm4619]

Thank you.

[@miriamb1904]

Hi Doc. Where in London or UK I can visit a specialist for mast cells please?! I’ve been in very bad condition for years, and having many symptoms of MCAS. No any docs.know what to do with me anymore or how to treat me😞 and I’m getting worse year by year.

[@lauracaponegro6811]

covid triggers/reactivates EBV, e.g...has this to do -somehow -with mast cells?

[@mariamartamossi6512]

How are IgG reactions related to MC activity? My daughter had 5 anaphylactic shocks last year and then we have been in and out of the ER many times. Avoiding triggers on IgG has stopped her from going to the ER. Also she’s taking H1, H2 and leukotrine inhibitors. Symptoms are respiratory, gastric, neurological and skin related. Where can we get in Florida someone who can help us with diagnosis? Thank you.

[@rickshawley7683]

I had testing and showed extremely high prostaglandin d2 at 550. I experience severe stomach pain and bloating when eating, then severe nervousness and anxiety with racing thoughts. All triggered by eating. Also have eosinophilic esophogitius. Does this qualify as mcas. And can the high prostaglandin explain my symptoms.

[@Orozco3721]

24:34 😳🤯🧐💯

[@elizabethwindstein8673]

Let him talk she interrupts.. annoying

[@StevenBrown-zz8ee]

maybe low copper too much zinc

[@MN_K90]

I would like to know if there is a food or a diet that is beneficial for long term treatment of MCAS. I have been diagnosed with MCAS. My immunologist put me on the low histamine diet. I did not find it sustainable and it even caused me to have issues with my nails and hair. I decided to come off it while still avoiding my food triggers. I would like to know if the whole food diet would be better at treating MCAS?

[@brookeb7994]

I have had the most benefits from the autoimmune protocol. It focuses on nutrient density while removing common triggers.

[@maryr7593]

Far too many times, the interviewer seems to get in the way of the presentation. They do not give added value to the interview...just let the guy talk...he usually has a specific talk about all his research.

[@hansi7777]

he is great! she is obnoxious. my god lady, it's not about you!

[@MichaelMerritt]

Yes! Yes! Yes! Ok! GO ON YESSS YEAH RIGHT? YES!

[@MichaelMerritt]

Her mic being 10x louder than his doesn’t help the situation. Can barely hear the poor guy

[@Kremene-jm6ps]

Agree the interviewer was disruptive- talks way too much and over the doc- please get another interviewer

[@JEBBY123IFY]

She talks too much

[@ruthgoldflam-un4cw]

She said herself she was excited 😆

[@marie8872]

She was a not relevant disruption@@ruthgoldflam-un4cw

[@Adverse.Camber24]

Too annoying to watch 😢

[@dietriche6798]

My goodness, the interviewer is irritating. Just can't stop interrupting. We are an intelligent audience, we don't need her to rephrase, or hype and highlight. How did the Doctor even regain his train of thought after all of her interruptions every few seconds. I unfortunately had to pass up finishing listening.

[@karenwindchild6552]

Can’t stand that women disrupting the doctor! This isn’t about her!