Desensitization for allodynia

[@joannechisholm4501]

I suffer from headaches but I experienced my first migraine a month ago and I had this allodynia where I could not touch the top of my head it was very sore even though my migraine has gone the effects are still there

[@GARTHBOOTS]

Iv been suffering for 17 year's I think I'm to far gone but still trying to live.

[@serinadelmar6012]

This is the worry I have, almost the same, started 1999. I hope you’re well as well as possible and that we are both wrong and heal/-even just any function/ improvement would be good. hope today is a “better“ day for you. 💕 Dr Katinka, is there any hope with this degree of damage/maladaptive neuroplasticity? Thank you.

[@Tlebeau421]

Same here Garth. Allodynia is hell.

[@serinadelmar6012]

Thierry Lebeau it is hell.

[@rgt2402]

Will it be periodic at different small patches in skin?

[@aminah761]

I have this from occipital neuralgia n brain injury it’s sooo painful I can barely brush my hair

[@kenny.m.olsen95]

I still am suffering with this. I may give it a try, thanks for this couple year old video.

[@GARTHBOOTS]

Cold is my biggest challenge and humidity I have been suffering with full-body rsd/crps. It's severe in nature. I don't think I could tolerate this . I do desensitize in the shower with a brush and I do get some relief from it. My head and face burn and it goes in to my eye's,nose,mouth, all the way down to my toes. It really suck's. I do everything I learn to see what work's. Maybe this treatment is for case's that aren't severe as mine.

[@serinadelmar6012]

I know I can’t even watch all of that bit, mirror neurons going crazy! Don’t forget she is five weeks into the treatment now, and could not tolerate it at the start. Wish you well, from one full body CRPS warrior to another. 💕

[@delinquense]

Why would you do this with all that noise in the background? Doesn't come across as a professional outfit.

[@suereutzel4663]

I agree. It’s very distracting, and at some points, hard to hear the information we seek.

[@GARTHBOOTS]

Updated still suffering bad and it's been 19 years and I'm still sick and suffering more as time goes by. I HATE RSD/CRPS. IT'S HELL!!

[@jesseasner7330]

Interesting, i'm an identical triplet and my brothers and I all have very strong symptoms of allodynia. Nothings helped that much so far.

[@serinadelmar6012]

From CRPS? all three of you have it? I knew it was genetic in some cases but my goodness, feel for you. 💕

[@LeTrashPanda]

It basically helps re-train nervous system response sort of like Feldenkrais method (which helped my nerve pain after a car accident) reduces trauma as a trigger.

[@baaghirocks9468]

Can't focus because of the croud... Can U please explain your therapy please🙏🏻; ?

[@DrKatinkavanderMerwe]

Baaghi Rocks our modalities is outlined on our website: www.thesperoclinic.com

[@serinadelmar6012]

Ikr impossible, ironic given it’s for CRPS patients.

[@matthewlake182]

My small nerve fibers are damaged from B12 deficiency. Although it has gotten a lot better, like 95% better since taking B12 in December... I have an infection and I am unable to treat my UTI with antibiotics because anything I try flares up the nerve pain massively. I've tried Trimethoprim, Doxycycline, Hiprex (non-antibiotic, antiseptic); and even some supplements like Uva Ursi, Horsetail. Interestingly, they all work, but ALL cause stinging, burning, in many areas of my body (arms, thighs, upper torso, neck and sometimes face). It seems my nerves are so sensitized and it's very hard to tolerate the long treatments (weeks to months) that I need.

[@SS-in1ts]

Have you tried cranberry prebiotic plus probiotics along side D mannose and stopping all food allergies? Also sea salt sitz baths 2-3x/ day.

[@matthewlake182]

@@SS-in1tsD mannos has worked for a previous infection but not this one. Cranberry (cysticlean) and Lactoferrin worked quite well for 3 months but then stopped working completely. I figured out how to tolerate antiboitics (trimethoprim) and that worked well for a month or so but bacteria seemed to get resistant. I just started phage therapy with my custom raoultella phages and so far I'm making good progress. :)

[@shiekahfan01]

i recently found out about this, my legs are hyper sensitive but its just to touch, when i can i'm talking to my dr. about this

[@amosmoses8402]

Same here. My leg and my head. Very bad migraines every day

[@twistedara]

How did things go?

[@shiekahfan01]

@@twistedara my dr told me to try vitamin b because she didn't think it was neurological or physiological in nature, even tho my legs are physically in pain anytime someone touches them

[@twistedara]

@@shiekahfan01 you need to go see a neurologist. Maybe it's Allodynia. What is the symptom of CRPS.

[@twistedara]

@@shiekahfan01 it's been 2 years and you haven't found an answer?

[@aryakeepsafe4142]

Hard to hear with all the talking in the background

[@Gpacharlie]

All that background noise is triggering my pain.

[@joannechisholm4501]

The Alloydina is getting worse

[@lovechild872]

She's saying light touch hurts but during conversation she is slamming her hands between her thighs

[@DrKatinkavanderMerwe]

She said LIGHT touch hurts. Entirely different sensory input Sherlock Holmes.

[@lovechild872]

@@DrKatinkavanderMerwe yeah I bet you just want someone to prescribe narcotics to

[@fromme93]

@@lovechild872 light touch and deep touch are different sensory receptors.

[@lovechild872]

@@fromme93 she lightly touches her underarm all the time when she puts arm down. No pain then

[@fromme93]

@@lovechild872 I work in the hospital and I ask every patient I work with what level of pain they are in. I see evidence everyday that one can be in moderate to high pain without actively grimacing/wincing, especially those who have lived with chronic pain for years. In summary, one can be in pain without outwardly showing it. I am done responding to you. Have a nice day.