She is the strongest girl ever, seeing her fate directly in front of her and still pushing through to report on it
@JustinP7 жыл бұрын
they spent money on synthetic drugs when they know cannabis works... fuck sakes WAKE UP PEOPLE
@Nicole-em7iv7 жыл бұрын
in a way, this is how she is fighting for survival. she's raising awareness to ALS, getting people to talk about it, which will increase funding and find a cure faster.
@TheIllegalalienfool5 жыл бұрын
That is very true I could never be as brave as her!
@MA-zg2pz4 жыл бұрын
@@JustinP ? going to need some details, some data, some explanation of why you think weed is going to stop the ALS process.
@beckymichelle754 жыл бұрын
Does anyone still doubt natural herbs? I have seen the great importance of natural herbs and the wonderful work they have done in people's lives. I wonder why people still spend their money on surgeries, injections, and medications every time they get sick. Natural herbs can cure all kinds of diseases, including, prostatitis, herpes, als diabetics, asthma, cancer, hepatitis, etc. I have seen it with my own eyes. I was cured of irritable bowel syndrome and my sister and her husband were cured of herpes by Hopkins who uses natural herbs to cure different types of illnesses. Even Hopkins proved to the whole world that natural herbs can cure all diseases and he healed countless people using natural herbs. I know it's hard to believe, but I am a living testimony. There is nothing wrong with trying herbs. Contact Dr. (email). dr.hopkinsherbalcure00@gmail.com Come and thank me later ✌️✌️ ..
@RichHomieQuanChi7 жыл бұрын
"They're protecting me to death" that's gotta be the most depressing thing I've ever heard of.
@bcchiriac45127 жыл бұрын
You are more certainly right about that! I could imagine going through that experience and I see that a lot with special students in my school (not all my schools) and not that I am a special student.
@AliciaGuitar6 жыл бұрын
They are "protecting" ALL of us to death, especially the chronically ill
@peerless30795 жыл бұрын
Sorry to say but this disease is not cureable ... dont live with false hope. Just start prepare for the end of life. Fulfil all your dream . Complete all your conversation because one day your heart cries hopelessly when you see your daughter on the ventilator that she cannot talk or write and you found yourself giving false hope to your daughter that its only a chest infection and you will be good in some days ..... Just like I gave hope to my mom. 😔
@lobo39285 жыл бұрын
Rich Homie Quan Chi while also one of the most accurate
@jenniferbeck49365 жыл бұрын
Welcome to the USA. I have lost 2 friends to ALS and I'm losing another one. She asked me how to breathe yesterday and it broke my heart
@deepbloo5807 жыл бұрын
"I didn't want just a boring old chair" That's the words of someone who is drowning in fear. Someone who knows that she'll eventually lose. But also someone who is strong enough to laugh and keep standing until the bitter end. I hope she never reaches that bitter end. I hope that a cure reaches you in time. Cheers to you.
@spikedwish6 жыл бұрын
You're comment has me in tears... I feel so bad for these people.
@sixstep1016 жыл бұрын
So true. I feel for Beth and hope she's around for a long time. She has a beautiful smile that makes you want to smile and she seems upbeat and positive despite knowing what's down the road. She's gorgeous too
@niocatate29896 жыл бұрын
I went through breast cancer but when I watch these videos I look at what I went through as nothing compared to the suffering these people went through I broke down in tears my heart and prayers go out to all the families who have lost love one and who are watching someone go through this I pray that some day soon some sort of effective treatment can be found to fight this disease or even a cure RIP all those this disease have taken
@robinsmith39875 жыл бұрын
What a beautiful chair. She made a christmas tree out of a chair.
@dazeldibujosfeos84354 жыл бұрын
Thanks for the spychoanalysis you clever piece of shit
@thereeldeelsteel7 жыл бұрын
I've lost 3 family members to ALS, including my Mum this June. My heart goes out to everyone in this video. The bravery of this reporter is exemplary.
@pinkrainclouds21907 жыл бұрын
Stainless One I'm so sorry. This is a devastating disease. I pray you are immune from it.
@shanejohnson54467 жыл бұрын
Sorry to hear about this tragedy. Read my post on this page and you'll see that there is a cure, and you need to have your free copper level tested and lowered if it's elevated, because if 3 family members had ALS, you most likely have a defective ATP7B which causes free copper to build up in the bloodstream. You can get your free copper level down and prevent this from happening to you.
@AmbiientDerp7 жыл бұрын
hope you are doing well. I lost my father 8 years ago to ALS as well its a hard cruel disease.
@chemalcolmx7 жыл бұрын
I'm sorry for your loss. I have a friend that was diagnosed with it last month and he is trying all possible forms of treatment
@RealBigNope7 жыл бұрын
I can't even image losing 3 close family member to ALS. MY father passed away from it but if my mother would've had it as well I would've killed myself.
@MrMexijorge6 жыл бұрын
I have 25 years and after watching this i think i'm gonna get up of my bed every morning and be thankful with my health and hoping i will never suffer something like this at least until i grow old. Be strong people.
@lenosorio67106 жыл бұрын
Same.
@retromixel5 жыл бұрын
Same
@krypto5755 жыл бұрын
I am thankful for my health, but i have constant health anxiety so its very hard
@ralphfurley4045 жыл бұрын
Growing olds not all it's cracked up to be
@dazeldibujosfeos84354 жыл бұрын
same
@stevecash835 жыл бұрын
If only we could spend as much money on curing neurological diseases as we do political campaigns.. . . .
@ken_in_atx96194 жыл бұрын
Also “defense”. We spend $600B more than the 2nd place country does. Imagine if we spent $600B on finding cures for things.
@rogueveteran774 жыл бұрын
This
@michaeledwards16444 жыл бұрын
@@ken_in_atx9619 yes
@ChadDidNothingWrong3 жыл бұрын
@@ken_in_atx9619 I have always agreed with you. From this point forward, I question it, however (although I still agree it has been a waste of money the past 30 years). Watching Hong Kong get taken, and now knowing Taiwan is next sucks, honestly. Makes me wonder who's next. Will they stop at SE Asia? I wonder how safe South Korea and Japan are from occupation in the long run. I hate to imagine what I might see in my lifetime just because we wasted our wealth on defense precisely when we didn't need it.
@martinemikita92812 жыл бұрын
There is a cure... the Government just wants us to spend BILLIONS.
@cagetj6 жыл бұрын
My dad passed away this year after 6 years old ALS. He went 4 years continuing to talk and eat properly, the last 2 years. Spent with a feeding tube, lost his voice completely, the ability to move his right arm, and in the last 2 months of his life, began losing the ability to walk and lift his head. Both arms became immobile. He decided to die through medical assistance in dying. It was the most difficult thing I've ever had to deal with in my life, and of course in my fathers life. This disease takes absolutely everything from the person. I commend any person who has been diagnosed with any type of disease, but with ALS it is a countdown clock. My biggest hope in life is that someone can find a cure for this disease so that no man or woman or family will have to deal with this anymore.
@dodge10P1N7 жыл бұрын
Its just so ridiculous. These people are dying anyway. Theyre basically saying i want to donate my body to science. If not to cure myself, but to progress the cure and save others. What better gift can you have for science? My heart goes out to all of you suffering.
@maybona7 жыл бұрын
Yeah better than dying in their beds, they could you know, go out progressing science and the cure. Fucking govs man...
@donnieraveling1887 жыл бұрын
are you judging those with ALS?
@AngelicaRodriguez-mb2ld6 жыл бұрын
Lol, what? They literally said it's ridiculous that the government is refusing to allow these people to consent to being given an experimental drug, regardless of the risks.
@htbode286 жыл бұрын
dodge10P1N by
@lilfoxy11926 жыл бұрын
I also have a lot rare immunodeficiency disorders. My body will also be donated for research to help those like myself who because there are so few with my illnesses hopefully medical treatments and medications will one day be covered. I participate in as many research studies as possible. Although there won't be a cure for my illness in my lifetime, I pray that I can help others in the future. Just because you have an illness doesn't mean we don't deserve the same respect, dignity, and treated like those 'normal' healthy people!
@Lyzi.B6 жыл бұрын
I watched a close friend pass away from ALS. it was devastating. The paralysis, the steady decline, the pain. He was a prisoner in his own body. Diagnosed at 28, gone by age 30. That was so difficult for everyone that cared about him. In loving memory of Marc Riffice. A true warrior that fought to the end. A man that never lost his sense of humor. Our last conversation was about how he just wanted to get laid ONE MORE TIME before he passed away, lol. Our boy got his wish too. Man, do i miss him. My heart & sympathy are with the families suffering through this terrible disease. There will be a cure/treatment one day. Something that will give ALS sufferers the chance to live longer, more fulfilling lives. I feel it in my bones y'all. So keep faith. It's all we've got.
@dawndellarocco2362 Жыл бұрын
Keep the faith and my heart goes out to the families who have loved ones suffering from this robbing disease.
@lilmzruss Жыл бұрын
My family is dealing with ALS, my sister in-law was diagnosed in 2020, she was 22 years old then. She is unable to walk on her own now. It is truly heartbreaking to watch her life change so drastically right before our eyes. We’re praying for some healing, cure and/or treatments to help her and so many others fighting this horrific disease🙏🏽God bless all that are fighting and bless those that have transitioned on🙏🏽
@logo9607 жыл бұрын
Seeing the man lose his step and his father holding on to him broke my heart at 16:38
@darthspade6 жыл бұрын
Matt Bed me too :(
@soonny0027 жыл бұрын
What a brave reporter... I feel for you and every one else going through the same. Let's hope we find a cure soon. Good luck.
@timstadlmueller587 жыл бұрын
soonny002 seriously, as an unaffected person, thanks for bringing this to public attention. This is horrific, I hope things get better. All the people who are willing to come forward about their experience are incredibly brave, and I thank them for that.
@JustinP7 жыл бұрын
they spent money on synthetic drugs when they know cannabis works... fuck sakes WAKE UP PEOPLE
@RealBigNope7 жыл бұрын
My father passed away from ALS and I can tell you that our greedy world won't accept a cure. It's never coming and as someone who fear getting ALS because I just been found out that it can all be genetic and it just has to start with one person and the rest of the offspring are affected after that. I'm terrified for my future.
@RealBigNope7 жыл бұрын
Pickett710 my father was a huge pot head years before he got ALS. Cannabis doesn't help to prevent ALS. The one thing it can really do is take your mind off dying.
@marcgiardina40436 жыл бұрын
Absolutely Circe,
@xfire1147 жыл бұрын
To be able to sit there with these people knowing that one day that will be you is heart breaking.
@happy18316 жыл бұрын
xCROSSFINGERSx it shows how strong and courageous she is. 💞
@Nathan.Nevada7 жыл бұрын
My mom had ALS. It started in her mouth, and everyone thought she was drunk for a few months because her speech was strange and slurred. Once it was diagnosed, she only had two years to live. It was a nightmare. She died in the living room through assisted suicide. It changed me forever. ALS is the worst thing.
@mollyram29977 жыл бұрын
I'm so sorry Nathan
@rastafariantargaryen74887 жыл бұрын
Sorry to hear that man...
@xcamm17257 жыл бұрын
Nathan Lachner 🙏
@ddubfan6 жыл бұрын
Nathan Lachner I'm so sorry, Nathan. I'm thankful that she had the option of assisted suicide. "Thankful" might not be the right word but you know what I mean.
@thomasmehlbrech55126 жыл бұрын
Nathan Lachner Same exact thing is happening to me right now. It all started with my speech & I'm a recovering alcoholic,most people think I still drink or that I'm drunk.
@AdventureDaksExplores5 жыл бұрын
My mom have this ALS since 2007 to present. the doctor said before she's only got 3years and luckily she's with us until now. 12years since then and i hope more and more years to come for my mother :'(
Vice really stepped up their game with this one, not to belittle the story of course but it's almost beautiful to have seen their development in news stories over the time.
@JustinP7 жыл бұрын
they spent money on synthetic drugs when they know cannabis works... fuck sakes WAKE UP PEOPLE
@chownful7 жыл бұрын
smoke a blunt n get cured
@sandraquintal48606 жыл бұрын
There is a lot of information too consider drug triles, beacause the more money they can raise they have been getting close, it is so scary I pray for a cure !!!!!
@Caliebird6 жыл бұрын
Pickett 710 she actually has CBD oils in her cabinet in the beginning I noticed lol
@mayadelaneys7 жыл бұрын
My mom died of ALS. When she died in 2008, ALS was a hidden horror. Thank you for this documentary VICE. The more awareness the better chances of a cure.
@sandradow63156 жыл бұрын
Maya S 922
@longdongsilber5 жыл бұрын
Maya S you are next! 😃
@cameronhowe11104 жыл бұрын
grizzly bear wtf man
@voxelmetric11227 жыл бұрын
I'm so grateful to all the doctors and scientists that pulled all those all nighters at Med school and sacrificed a lot of social life to gain enough knowledge to even begin to tackle this problem. They are the best almost us. Hope they find the cure
@wallemai7 жыл бұрын
Boris Yu i know right. doctors are god dont you see?
@RenegadeTimes6 жыл бұрын
Boris ! ALS was first found in 1869 by French neurologist Jean-Martin Charcot, but it wasn't until 1939 that Lou Gehrig brought national and international attention to the disease. ((((( 79 )))))) years and people are still dying. What was that you said about doctors pulling all nighters bla bla bla ....
@nowrec56926 жыл бұрын
this. ALS has humanity beat just like the 50 million "possible cures" we've been trying to throw at cancer since we figured out it existed.
@mook_butt80375 жыл бұрын
Oscar Buckwild ...what a toxic attitude. You really should rethink how you feel about doctors. There are plenty who are nowhere near rich, and many who save lives on a daily basis.
@Turbopasta7 жыл бұрын
I've had leukemia, multiple seizures and a brain hemorrhage, and ALS still scares the shit out of me more than all those things combined
@ykMMD4 жыл бұрын
@@kunalpatil4157 Could say the same about you. Now, careful not to cut yourself on that edge boi.
@lpt987 жыл бұрын
this breaks my heart.. my father had ALS and it was the most unforgiving sickness ever. it's so sudden and there isn't shit you can do but wait for your body to slow down, suddenly you can't even piss by yourself or walk up the stairs or anything. i really feel for anybody that has to go through this hell, and it really puts perspective into mind about how much we take for granted.
@texastea56866 жыл бұрын
My dad had it too and passes away in 2007 at age 58. Rhe worst part of him having this disease? That he was the kindest and most gentle father and husband. It sucks that assholes get to live long lives
@maryem82636 жыл бұрын
LPT 98 it is awful, im sorry
@eviandaj5 жыл бұрын
so sorry for your loss may your father rest in peace :(
@torres38003 жыл бұрын
This was 3 years ago, Angelina (the reporter) is now in a wheelchair and at 88lbs. She's keeping a positive attidude dispite her situation on twitter. Scary disease. Praying for a cure. Crazy that $25million was raised but only $4million actually went to the cause.
@MamaTriedSolo Жыл бұрын
I misunderstood as well, I backed it up to hear it again...only 4 million went to that particular research center. There are many more throughout the research community.
@Red-Robin4 Жыл бұрын
THATS HORRIBLE!! WHY WAS SO LITTLE OF THE MONEY ACTUALLY GIVEN TO THE CAUSE?!!
@Br0th3r74 жыл бұрын
This is the fucking worst disease on Earth. She is SO brave for doing this
@RWJ02147 жыл бұрын
“ALS is a very fascinating disease” that’s what my grandpa tells people. He was diagnosed in June 2016, at that time he had muscle spasms and trouble walking up stairs and getting in and out of his car. Now he can barely move the joystick for his wheelchair. It all started when he couldn’t do something that he use to do, something as simple as moving his arms or putting his shoes on. Just the other day I helped him push a button on his remote so he could adjust his bed and he looks at me and says “well that’s just another thing I can’t do”. I remember doing the ALS Ice Bucket Challenge myself and had no idea what it was for and it hurts me now knowing that I did the challenge to impress friends and put it on social media when I had no idea what ALS was. ALS has been really hard on my family and it’s taking someone I love away so fast! I hope others learn more about ALS and I hope it gets cured because no one needs to watch their loved one go through this disease.
@tamfx21386 жыл бұрын
Ryan Jones wow he sounds so strong how is he doing?
@dawndellarocco2362 Жыл бұрын
I had a friend and former neighbor go through it and she died in her 70s Such a beautiful soul. It was hard and sad seeing her suffer.
@mrescu17 жыл бұрын
This needs to be on YT's trending front page. I know this can be hard to stomach for most viewers, but this needs more awareness.
@SonicVR19917 жыл бұрын
I don't get emotional at all.....ever. But this really has me pretty bummed.
@mandu95207 жыл бұрын
Hard to watch. The strength of those suffering with this is incredible. I consider myself a pretty tough guy and even I got a little wet around the eyes. I'm nowhere near as tough as those involved in these stories though. I can't even imagine dealing with this. I hope something can be done. Makes me pretty mad that out of 200 and some million they only got 4. Wonder where the rest went.
@jquest437 жыл бұрын
+Mandu chlorine dioxide beats als. and hypochlorous acid too. stop being a victim
@JustinP7 жыл бұрын
they spent money on synthetic drugs when they know cannabis works... fuck sakes WAKE UP PEOPLE
@tylerjohn74977 жыл бұрын
Pickett 710 wake up you idiot, just like smoking it
@mook_butt80375 жыл бұрын
jquest43 [credible citation needed]
@gianettie50156 жыл бұрын
This narrator is so strong to do this documentary. I pray for her and all those suffering with this horrible disease. :(
@jessicaeaton31836 жыл бұрын
WOW! This reporter is amazing. I cant imagine the feeling she had knowing if there is no cure she is literally looking at her future. Heartbreaking :(
@cristabenaomar6 жыл бұрын
How terrifying. I’m so scared of this disease and my heart goes out to all of the people who have to live with it. God Bless you all.
@generationfallout51897 жыл бұрын
Maan this is tragic... so very sad. It slowly tortures its victims.
@Rust_Rust_Rust7 жыл бұрын
Generation Fallout The worst part is that the government won't let patients take a risk knowing that they will die. I mean the patients know the risks involved..
@JustinP7 жыл бұрын
they spent money on synthetic drugs when they know cannabis works... fuck sakes WAKE UP PEOPLE
@hartage47 жыл бұрын
Generation Fallout new
@texastea56866 жыл бұрын
Yes, my father had ot for 7 tears. The last 4 he was completely immobile
@homthipaseuth16157 жыл бұрын
I know first hand how horrific this disease is. My mom is dealing with this now. I pray that someday we will have a cure. God bless to all that’s affected.
@WesternBache7 жыл бұрын
I was diagnosed with ALS On my 20th birthday in January 2013. I'm lucky to have lived so long after onset in March 2012. I am hopeful that there will be a breakthrough soon.
@d00mpirate7 жыл бұрын
I wish you continued luck! I hope there is a breakthrough soon too.
@PeterGriffinANIMALCRACKERS7 жыл бұрын
C Morr good :) stay fighting.
@xcamm17257 жыл бұрын
Alexis Crow stay strong
@mariolee94493 жыл бұрын
I feel like a breakthrough is really really close...I was diagnosed last week
@MrJaxonyang2 жыл бұрын
Strength and courage to you. You got this!
@igot5onit4237 жыл бұрын
I have a lot of issues in my life but this makes me realize how lucky I am
@igot5onit4236 жыл бұрын
Hello past me .. I look forward to speaking with you in the future
@idrather.goblind5 жыл бұрын
Very lucky!
@ryancarson84617 жыл бұрын
It must he terrible knowing you'll end up not being able to function without help and there's no way to stop it
@HabeKeinMitleid7 жыл бұрын
The worst punishment for just living life. Just shows how objective nature is.
@vilecrocodile91717 жыл бұрын
Sounds like a parasite to me.
@GabrielaGarcia-ov4xg7 жыл бұрын
It makes it so much harder knowing most patients are completely mentally aware, it's like being trapped in your own body.
@k0smon5 жыл бұрын
Ryan//// Death is the ultimate cure. Cut the misery short.
@adarcus40536 жыл бұрын
For those interested Angelina Fanous is still alive about 4 years on from her diagnosis of ALS
@amazingabby255 жыл бұрын
She just hiked Patagonia, with the help of guides
@MA-zg2pz4 жыл бұрын
@@amazingabby25 does she have an instagram or youtube or something?
@amazingabby254 жыл бұрын
M A she’s on twitter, just type her name
@bigrooster68934 жыл бұрын
Younger people usually live longer with ALS than people who get ALS in their late 40’s.
@theywasworkingonthetires.51107 жыл бұрын
Out of all of the stories, Beth Hebron's breaks my heart the most. She seems like such a beautiful soul. So full of life. She had the world at her feet, with a future filled with endless possibilities. I Just want to hug her and comfort her.
@dawndellarocco2362 Жыл бұрын
Me too. I wonder how she's doing
@tinytealeaves6 жыл бұрын
I lost my dad in 2004 to this terrible disease. He was 37 years old. Thank you so much, to all who took part in the ice bucket challenge, who took part in research, and in the development and publication of this episode. I will never get my dad back, but the hope that some day someone else may not lose their friend or family member to this disease, that no one else may have to suffer in this way, or that a breakthrough with ALS may help then many other people who suffer from other nurodegenerative diseases makes me incredibly happy.
@b3dubbs722 жыл бұрын
My mom was just diagnosed with ALS and I watch this video to steel myself and be prepared for her progression.
@SOLOIIguru7 жыл бұрын
Ugh, Beth's story is so incredibly heart-breaking. You can hear the pain/suffering in her voice. I can't even imagine how I would take losing all of my physical functioning capacity so early in life.
@dawndellarocco2362 Жыл бұрын
That poor girl had a promising career and was athletic and in her 20s suffering from this disease. Too sad and her poor family. Shes too young but it doesn't matter how young or old, a cure should be found or to find a way to slow down the disease and stop it progression. Very heartbreaking.
@AskMeABee7 жыл бұрын
This is gut wrenching, but so important for people to understand the pharmaceutical issues plaguing us. I work in the medical field and I didn't realize so many young people were impacted by this terrible disease. I wish there was something, anything to do to take away this tragedy away!
@d00mpirate7 жыл бұрын
My mom recently was diagnosed with ALS. This hit so close to home I couldn't help but start crying. I'm glad you made this, even though it was hard for me to watch. Thank you.
@nutellaeatingpanda6 жыл бұрын
I just found out that my favourite teacher has ALS. I'm going to see her tomorrow. She can't walk or talk anymore. She cant move. Im going to cry when I see her honestly.
@stevenseagal49877 жыл бұрын
This sort of stuff makes you realize how much just plain old health is taken for granted.
@MEGAFAIL6666 жыл бұрын
Was fighting back tears the entire time I was watching this. The reporter is so brave to go through this. I pray for a solution to the horrible disease. These poor people :(
@dawndellarocco2362 Жыл бұрын
I cried because the video is so sad, devastating and heartbreaking.
@claudiawatenpuhl81706 жыл бұрын
I lost my Aunt to ALS 5 years ago. I watched a beautiful woman so full of life, love of dance, cooking and a heart that gave us all so much unconditional love slowly, very slowly, be taken over by this horrible disease. This monster illness hijacked her body taking her ability to do the things she loved. It took her from us slowly. From being able to walk, to being in a wheelchair, from loving to dance to wishing she could just have one more dance with my uncle, from loving to cook to being unable to feed herself and eventually being unable to eat at all and have a feeding tube, from singing to silence, from laughing til she couldnt breathe to being unable to breathe at all and being on a ventilator. It took every part of her world she loved and left her watching motionless and silent with just the sound of the ventilator. In the end, after being trapped in this now body that was now so foreign to her, she chose to be removed from the ventilator, feeding tube and have our family and an amazing hospice nurse with her as she said goodbye to go on to a place where she could not only dance or walk but soar. I pray every day for a cure. No one should have to go thru this or watch someone they love go thru this. Praying for a cure.
@eurekamreum54582 жыл бұрын
Your aunt's story brought tears to my eyes, thank you so much for sharing. May she rest in peace.
@yougotaluvme2 жыл бұрын
Wow so sad, yet beautifully told. I can tell your aunt loved and was and still is loved. ❤️😇
@amyt4778 Жыл бұрын
Wow everything you spoke about is almost exactly what I’m facing. I used to be such a happy woman with my 3 beautiful daughters and now I don’t even recognize myself. I’m just a trapped soul in a body that is deteriorating while my daughters have to live in misery and watch me suffer! This disease is no joke. I don’t care how many people say oh I’m gonna fight this disease because in the end you will eventually lose. There’s no fighting ALS, it literally takes every bit of you little by little and you have a front row seat to your own death. I can’t wait for the day of eternal joy. Where I’m finally in a place where sickness doesn’t exist. Stay strong to whoever has ALS, Jesus will free us one day. Be ready ❤
@michaelburry83326 жыл бұрын
HOLY COW. At 8:29 they said that ALS TDI was the only lab soley dedicated to ALS, and they only got 4 million of the 200 million raised by the Ice Bucket Challenge?!? THIS IS INSANE! THAT is a story in itself. 🔴
@ashleelalasmith27925 жыл бұрын
Michael Burry yup that’s why I always donate to places like this
@josephfilm735 жыл бұрын
I believe most of the money went to providing PALS with supportive assistance, chairs, financial help. In general, 1 billion USD is not enough to get a single drug to market. What is really needed is the US Govt to fund those programs like they do for other large endeavor projects. ALS dis-proportionally affects military veterans who served in combat.
@kimwolkerstorfer9964 жыл бұрын
ALS should of gotten the full amount, that is why people donated!!!!!!!
@frankjamesbonarrigo7162 Жыл бұрын
@@josephfilm73 I wonder why vets get it, could be a big clue to a cure
@Angela-nr7jx Жыл бұрын
Watching this in 2023. My grandmother, whom I loved dearly, lost her battle with ALS in 2020. This disease is heartbreaking to watch. I pray for a cure.
@CpttCanada7 жыл бұрын
What the fuck? Her doctor wouldn't tell her that she had ALS or suspected that she did? He just gave her a surprise phone number to call?
@zachosteen31197 жыл бұрын
CptCanada Yeah these doctors are assholes and they honestly don't give two shits. They just want your money trust me. The medical world is so rich for "not knowing" what to do
@OGmrjam07 жыл бұрын
CptCanada Right? What a coward.
@emyemyemyyyy7 жыл бұрын
Doctors pull that shit all the time
@donnieraveling1887 жыл бұрын
same thing happened to me. It is a shock. I was told finally by a Doctor but I knew by then.
@ohmeowzer17 жыл бұрын
CptCanada that was cruel of that doctor..
@applejellypucci6 жыл бұрын
Angelina Fanous the reporter on this story is still here, she's amazing. Heart goes out to everyone featured in this piece.
@IJKTV6 жыл бұрын
My mom was diagnosed with ALS almost 2 years ago. Now I'm here beside her in an ICU bed. I really hope they find the cure very soon. I just don't wanna lose my mama.
@Seekyourtruth7773 жыл бұрын
i’m sorry for your loss , I hope you are doing ok since it’s been 2 years since you left this comment .
@MrJaxonyang2 жыл бұрын
I hope progression has slowed and still keeping hope that there is a breakthrough
@lynkuze68476 жыл бұрын
That reporter is strong af. I can't imagine being in her place. I wish that they find cure for this and many other diseases in a not so distant future... The human body is amazing but sometimes it seems so fragile.
@poppysilk3657 жыл бұрын
This documentary made me cry so much. I just remember staring at my grandma, she stood still in the bed, she couldn't even open her eyes. Her fingers and toes were curled. She used to be full of energy and now she looks like she's deteriorating. It's the saddest thing in the world.
@torigray40646 жыл бұрын
I am a caregiver and I have cared for a man who had ALS Lou Garret's desceas and he was the most caring man I have met. He passed couple years ago and he was a strong man until his last breathe. What a horrible desceas and what's more horrifying is to be trapped in ur own body knowing full aware of what's going on but u can't do a damn thing to stop it. I pray to God that that day comes when no one else has suffers to from this desceas. 😥
@MagnesiumEnterprise7 жыл бұрын
Absolutely deplorable that Americans live in a country where needless war and corporate greed take precedence over human welfare.
@BerzerkMaggot7777 жыл бұрын
Thank you for making this video and good luck to you all, my mother-in-law was diagnosed 4 years ago and was just moved 2 days ago to hospice and is now unresponsive. This is such a horrible disease I've seen what it does first hand and I can't even begin to imagine what it is like to live with this disease. I wish you all that are battling this disease the best and I pray we find a cure before more people suffer at the cruel hands of ALS.
@emilywaddington4696 жыл бұрын
Wow. This was a hard to watch, but I'm so glad I did. I am a speech-language pathologist in training, and it is super important for me to understand this disease. I can't get over how brave this reporter is. It is amazing that although I'm sure it was hard for her to hear and see a lot of this, she put aside that fear in order to teach and raise awareness about ALS. Much respect.
@bravevision80695 жыл бұрын
Brings back memories of my loving brother. He was diagnosed with Muscular dystrophy LG. Doctor's said he only has 3 months to live. In 3 months he was in life support fighting to live. We strongly believed in God's love and mercy. He survived and end up living 11 years more until his day came and he passed away this month of April 10 years ago. 😢 God bless you all my prayers go out to you.
@themist123457 жыл бұрын
This made me really sad actually.... Couldn't imagine living like that.. Shout out to the people in the video, stronger then I could be.
@yaboi36977 жыл бұрын
I had no idea what ALS really was, but now I couldn't be more supportive towards it. This was one of the best videos VICE has released and Angelina, and all these victims are so brave for letting the world see them in this emotional state. Thank you
@925rican7 жыл бұрын
Damn, sad! 😭😭😭 Makes you appreciate your life and the small things!
@tanveechoudhary4176 жыл бұрын
The reporter really can’t be commended enough, life really is too brutal. PS: a great piece by vice after ages, this is what I signed up for.
@chigasaki067 жыл бұрын
Powerful. I pray for a cure and for everyone affected by ALS.
@chigasaki067 жыл бұрын
Read a Bible and you'll see that God doesn't "give" people illnesses. I'm not going to write a novel to explain....read it for yourself.
@mike22076 жыл бұрын
Nigel Henry just stop, this guy just typed an innocent comment showing he hopes we someday find a cure but you had to ruin it.
@nimishamukerji18734 жыл бұрын
Heartbreaking to watch, but many thanks to everyone who participated in this piece. It's opened my eyes to how many young people are effected by ALS.
@destinyranee83004 жыл бұрын
My uncle was diagnosed with this disease and I’m trying to learn more information and brace myself for this... I’m devastated he’s like a father figure to me. I just want to say this lady is so strong for making this documentary knowing that she will to be in there shoes later on down the road 🙏🏼😢 my heart goes out to everyone struggling thru this disease. They told my uncle he has 2 years or less to live 💔😢 I’m not ready to let go nor will I ever.
@cristinadinger5115 Жыл бұрын
Wow, this video really opens your eyes to the suffering people with ALS go through and to the bigger problem of experimental drugs not being available to people who only have a short time left. Such a horrible disease 😢
@kixck_you29575 жыл бұрын
My dad just passed away from als 7-19-19. RIP Pops, Love you. See you in heaven
@falcro10715 жыл бұрын
RIP
@debrakleid57523 жыл бұрын
I’ve met several patients with ALS and one I got connected to when she was one of my patients. She had finally got to go home and died shortly after due to a mucus plug which is a huge danger as well with trachs. It was awful to watch her go through this but she was always happy and she was a huge inspiration
@amadeus50816 жыл бұрын
This poor reporter watching what is in her future...... and of course the poor people she interviews. i hope they find a cure.
@sonkakaroto90007 жыл бұрын
this is one of the hardest things iv ever had to watch. i forced my self to finish it. omg beth was so nice im so sad for her. how view people with ALS has changed forever. god bless
@kas54076 жыл бұрын
My mom passed away two years ago yesterday from ALS, and everyday I pray it would of been me then her
@briand46357 жыл бұрын
227 million raised with the ice water challenge and only 4 million went to research. Nobody else see's an issue with this! Wtf!!! I dont wish anyone to have to watch or go through this.
@justblaze34177 жыл бұрын
Only $4 million went to that specific organization.
@zachosteen31197 жыл бұрын
Joe Mama This world is revolved around money hahaha You honestly shouldn't be surprised. This is the world we live in. These doctors already know these cures they're just waiting for the right moments to release them because they want a bigger check. It's so and fucked up.
@delasaucey75067 жыл бұрын
I was thinking the same thing. Only 4 for research? Lord this is a sad world.
@kuroitami20177 жыл бұрын
Exactly what I was thinking that's exactly 1% wtf man smh
@johnmadara12527 жыл бұрын
4 million to that one company...
@BrandonAngelDragon7 жыл бұрын
This has to be the most heartbreaking videos I've seen. The end had me teary eyed. Cannot even imagine what it's like. Also, respect for the very brave reporter going to see what might eventually be her. That must have been very difficult to face... Hope they find a cure soon.
@dawndellarocco2362 Жыл бұрын
I hope so too.
@IntenseVisuals7 жыл бұрын
This was so difficult to watch. Thank you for shedding a light on this terrible disease and on those who's lives it affects.
@amberburgess55375 жыл бұрын
My mom and uncle passed from ALS!! I lost my best friend that I was lucky and blessed to call her my mother!! It's a suffering death sentence and I took care of my mom from day 1 until she passed in 2014! I no I miss and love her so much! What killed me was the fact I couldn't do anything to help and take her pain away
@eviandaj4 жыл бұрын
so sorry for your loss :( rest in peace to your mom and uncle
@jeffvcut48136 жыл бұрын
This is the first Vice episode that actually made me cry
@scottmichael78597 жыл бұрын
I've seen the horrors of this disease first hand and pray that we one day find a cure. No one should have to go through this..
@margaretgill31274 жыл бұрын
My mother in law was diagnosed with ALS on April 9,2020 it’s so hard thank you for doing this you are a very brave woman sending my prayers for all who has this and all who loves someone with it
@adarcus40533 жыл бұрын
How is your mum doing?
@Allebasiru7 жыл бұрын
My grandpa died of ALS just two days ago. So extremely sad this horrible, horrible disease.
@SoCalJellybean5 жыл бұрын
These people are so amazingly brave. I know for a fact that if I was diagnosed with something like this, I would take my life immediately. I just can’t imagine living, knowing the road you’re going to go down, rapidly losing abilities and your autonomy. People like this have my eternal respect.
@frankjamesbonarrigo7162 Жыл бұрын
They might find a cure but you killed yourself
@justinwaugh43777 жыл бұрын
This goes for Mitochondrial disease patients too. Both diseases are related to each other, and share lots of symptoms. Just because one drug might not benefit one client, doesn't mean it won't for another. There''s thousands of different mito strains. I'm living proof... I too have a strain of mitochondrial disease. Sad thing is, there's not even a test that can find the kind I personally have since my tests came back negative for all testable strains. They know I have it, but they still don't know what kind. And it's not like they can administer an experimental drug on me since they don't specifically know my kind.. My doctors guess at my lifespan every time I stop in for a follow up because they have to judge by my side effects and slowly on coming paralysis. First time i was diagnosed, they gave me 6 to 8 months... That was 12 years ago. Some how, some way, I actually made a comeback. My body was able to improve better than the state I once was. But the parts of my body that first hit with it still have conditions. it's just not so severe, and not increasing in damage. Basically I'm in purgatory. Don't know if they find the strain, don't know if I'll be the same as yesterday, don't know if I'll die typing this.... Like ALS, Mitochondrial disease lacks funding and resources. The fact that to this day, doctors have to throw darts on a board to guess the day that I DIE is a fucking disgrace.. waking up every morning knowing I could die that very day at any given time scares the living shit out of me.... But all I can do is stand here and wait for a cure..
@isslamdia67542 жыл бұрын
Wissam passed away this week. Praying for everyone fighting this terrible disease. I hope your struggles end with a cure.
@cwatson427852 жыл бұрын
So sad, and to see how good him and Beth were doing before the disease is really scary. A gun youtuber named James Yeager brought my attention to als as he recently passed from it and it was so sad as it all started 8 months ago when his tongue became numb and it sadly took him within a year. It's really scary how it just seems to happen out of nowhere.
@isslamdia67542 жыл бұрын
@@cwatson42785 That's terrible 😞 Yeah, it is scary to think it could happen to anyone out of nowhere.
@shelleyklapwyk76872 жыл бұрын
Any idea how Beth is doing? She use to be active on social media but haven't seen or heard about her in years :(
@DisasterMaggot7 жыл бұрын
ALS took my grandfather from me, he passed on my 21st. This disese is by far the most brutal ive ever seen. It is not fair for the FDA to do this, in my eyes i hold them responsible
@xcamm17257 жыл бұрын
Chase Carothers sad thing to hear stay strong
@DisasterMaggot7 жыл бұрын
C A M thank you very much!
@alfredthegh0st7 жыл бұрын
I just lost my aunt to this disease last month. this was hard to watch as it hit close to home. I wish everyone the best health and lives and hope nobody goes through this.
@imnfire00007 жыл бұрын
My father was diagnosed with ALS 15 years ago. He was given 4 years and he's still alive. he lost his ability to talk on the 3rd year and to walk on the 6th year. Lucky for us, stem cell procedures are allowed in my country. Throughout the years he's received 4 stem cell treatments. The first one was pretty basic, but as time passed, treatments became more complex, targeting specific parts of his nervous system. We never noticed any positive changes after treatment. But I'm pretty sure that they have helped by slowing down the progression. He still breaths on his own, has the ability to cough and burp. He refuses to use any breathing or speech device. We drive him to work 3 times a week, he no longer has an active role on his business but he loves to supervise and share his 40 years of work experience, I'm convinced that work has played a key role in his fight against ALS, keeping him motivated with a purpose to keep living. I hope this serves as motivation for families that have recently joined the fight against ALS. Stay strong and enjoy the little things in life, they are the most rewarding.
@jackyeferreira7 ай бұрын
Which country? How is he doing??. Thanks
@teodorppetrov7 жыл бұрын
Damn, this was the hardest documentary to watch. I am left in complete disbelief and tears. :(
@drowningin7 жыл бұрын
Beth is such a beautiful young girl, and I love how positive she remains. I have no true idea the challenges she faces, but I know with a certainty that she is stronger than me. I love your demeanor beth!
@connorjohnson73757 жыл бұрын
I wish my dad had access to these chances. My dad had ALS and past away in 2013. I'm praying for you I love you!!
@oakley27827 жыл бұрын
I bet if the FDA director Janet had ALS or someone close to her did she wouldn't be so callous about it. I could here the frustration in Angelina's voice.
@karenmaloney35246 жыл бұрын
Janet Woodcock is a hero and doing her best in a very complex situation. There are many things to consider here.
@mariehip1236 жыл бұрын
C OAKLEY vvcccds this is so sad
@jussa1016 жыл бұрын
C OAKLEY not really the FDA operates on a regulatory principle. Meaning a drug once found, must show that it works, and also not be harmful (meaning you're finding the toxicities if they exist). Once it does both they work through the approval process. There's a strong reason why the United States didn't suffer from thalidomide. It's not the best way to do it and I think they were right about how they approach the problem based on disease state. For something like this a drug that has some effects might be worth a trade off at some point. Vs a drug that causes massive side effects for something that is self resolving (ie a decongestant for sinuses that causes massive strokes).
@rossw17296 жыл бұрын
@Karen Maloney A hero? Who paid you to say that??
@greekvvedge3 жыл бұрын
She’s still kicking ass. Another agnostic-ex-Orthodox Northeast Ohioan praying for you, Angelina.
@Lyzi.B7 жыл бұрын
I've actually seen the devastation first hand. Having to bury a friend before 30 just isn't right. RIP to my pal Marc.
@jessicapreston98087 жыл бұрын
I cried through most of this video. It rocked me to the core. This shit is no joke. Angelina..sending all the love and good vibes. You are incredible for taking on this piece.
@MamaTriedSolo Жыл бұрын
I'm watching this 5 years out...what progress has been made since?
@catklyst7 жыл бұрын
This is heartbreaking, though my Mom had MS, her body just shut down. Her suffering and decline was horrible to watch growing up. I can only imagine how these people must feel and the struggle that they and their loved ones go through. It's great your showing this, and I hope it opens some eyes.
@slotigy5 жыл бұрын
At the end of the day it’s all about money. What a sickening world we live in. People should be working tirelessly to find cures for all diseases. There should be an unlimited budget. Life is priceless.
@EmM-9634 жыл бұрын
Exactly! Imagine if all the money spent on senseless wars and worthless walls was channeled into research!
@AlexanderCheong6 жыл бұрын
The first video that made me cry for this first time in 2019. I pray that may 2019 be the year that doctors will finally find a treatment/cure for ALS patients.
@Philathai7 жыл бұрын
I never knew ALS was till my best friend was diagnosed. She put up a fight till the bitter end of 5 years. She never gave up..God brought her home. God bless each one with this terrible disease.
@garbageday5872 жыл бұрын
You do realize that God is an imaginary friend right ?
@hamzasr65016 жыл бұрын
i wanted to hug all of the als patients in this docu... especially the journalist : (. i hope they're all ok, wherever they are...
@fatguyscansurf2thomas2666 жыл бұрын
I get bummed about having severe Asthma which limits my entire life. WTF am I complaining about Im very lucky to have a treatable condition. This opened my eyes
@Reese8426 жыл бұрын
Absolutely brave of this reporter to share her life with the world.
@raeperonneau49417 жыл бұрын
Bravo! Thank you for sharing your struggles. You are all heroic! Obviously, the general public wants to be of service. What do we need to do next? May I ask why ALS research only got 4 or the 20 million dollars raised?
@GabrielaGarcia-ov4xg7 жыл бұрын
That specific study received that amount, however there are many other studies taking place. They have studies to find treatments and also to find out why people get it and understand better how it develops and why. If you want to help look up the website for the ALS association and there are ways to help. I know part of the funding has also gone to the ALS association directly to their supply closets where patients are able to borrow wheelchairs, hospital beds, breathing machines and lots of things that are so helpful to keep patients safe and comfortable, my dad is using one of their transport chairs since he is still mobil but they have instructed us to check with them before we buy him any equipment and if they have it we can borrow it while we figure out if insurance will cover his own or till he no loner needs it. They have really been amazing to the whole family.
@koibutsu7 жыл бұрын
Rae Peronneau its how a lot of programs are lies. You need to check the percent of the money that goes into the actual cause before its gobbled up by workers, ad companies, company cars, travel and anything else they can use.
@shammydammy26106 жыл бұрын
That was only one lab out of a few that do research that got 4 million dollars. So it's not that all the research only got a quarter of the money, just that this particular lab did.
@ayanotamashi32855 жыл бұрын
my grandma is currently on her deathbed because of als it had gotten so bad that she didnt want to continue the treatment and i know im going to miss her so much. i only got 12 years with her and now shes gone