Discussing Functional Neurological Disorder and Migraine

[@nicolerodriguez6416]

Ive been diagnosed with FND and complex migraine. Its rough! But after 4 years I'm finally figuring out how to accept it and adjust, rather than hoping I will just wake up one day and it will disappear, like how it started. Its so hard to explain FND to people because I barely understand myself. And then people think of migraine as only headaches, when mine look like mini strokes so no one understands that either.

[@mommerang]

I like the way Dr. Jon Stone, an FND expert in Edinburgh, Scotland, says that they are identifying risk factors, not causes, for FND. I have found that the best treatment is educating yourself and learning about FND. The second priority is to work on improving comorbid, pre-existing medical conditions. I have also found that FND is very similar to Mind Body Syndrome, aka Psychophysiological Disorder, and those practitioners are way ahead of FND practitioners in regard to already having effective treatments.

[@jaycollins329]

Can TMS be a therapy for FND? What about Hypnotherapy?

[@bobbyarmstrong788]

I had a nueroligigits that said Bob you don't want to work 3 months later I was admitted to mass general hospital 11 days in the nueroligy floor all kinds of diagnosed they finally said that I have functional neurological disorder in my opinion they don't know much about it 2017 to the present I have a bad days walking my brain rewired itself to the wrong nerves and more

[@Truerealism747]

Fnd is related to ocd to and most have autism albeit alot undiagnosed as myself😊

[@headtrips1]

Meaning OCD is a symptom of FND?

[@Truerealism747]

​@@headtrips1linked to amagagdalia

[@Truerealism747]

Yes tends to start first

[@headtrips1]

@Truerealism747 start first? In what context?

[@Truerealism747]

I mean I've had ocd from 3 then later chronic migraine fnd symptoms

[@Truerealism747]

I had constant headache or migraine in the head 24/7 1998 months then it moved then CFS now it's in my upper body muscles years ime told it's migraine CFS with elements of fnd main thing are you hypermobile? Now diagnosed autism ADHD causation father has cfs

[@jankreitler3935]

I have suffered from NDPH for almost two years, which have gotten progressively worse over time, on top of thst, I was diagnosed with Parkinson’s Disease almost a year ago. I was told that headaches are not a typical symptom of PD and to focus on headache relief, But neurologists focusing on using migraine meds and none have worked. I am intrigued about FND, as many of my symptoms seem to fit that classification. I am experiencing terrible balance and dizziness as well as blurred vision and think there is a relationship between my headaches and vestibular disorders. Need help on what my next steps should be.

[@Truerealism747]

@@jankreitler3935 do you have hypomobility? Are they sure it's Parkinson's not essential tremor etc or fnd pain is my worst symptom nowadays body wise

[@headtrips1]

What is CFS?

[@Truerealism747]

@@headtrips1 chronic fatigue syndrome?

[@jankreitler3935]

What about an association with New Daily Perdidtent Headaches ???!&I have had a constant daily headache for almost two years and the MD’s treat with migraine meds, no nevof which have done a thing to refuce no less LI llikinate my headaches.

[@Truerealism747]

Do you have any other symptoms prior

[@nanakwabena61]

Good afternoon 😊

[@Truerealism747]

Neurosthenia covers both

[@msms4659]

Mine feels more like a brain pain than a headache. Sharper and doesn't last long but happens more frequently when I overdo it physically and/or mentally.

[@Truerealism747]

Yes fnd migraine is higher in autism ADHD😊

[@John-y9b5b]

What a joke no doctor is interested in helping you when you get told you have FND You are left on your own I am fighting my diagnosis

[@Truerealism747]

It is do you have hypermobility