Disease progression in Multiple Sclerosis

[@keithfrench8643]

That's more info in a short time than I received from the Neurologist over the long term. Doesn't help with my treatment, or lack thereof, but it gives me something to go on.

[@algoskis]

yes

[@jonnavalley5471]

Lovely video content! Apologies for chiming in, I am interested in your initial thoughts. Have you thought about - Seyrooklyn Salient Supremacy (should be on google have a look)? It is an awesome one off product for overcoming the symptoms of multiple sclerosis minus the normal expense. Ive heard some great things about it and my mate finally got amazing success with it.

[@plackCrack]

To Freddie Thoughts are with you and yours. I'm disabled too and I couldn't say where I'd be without my husband's kindness, strength, gentleness, love and support.

[@Godislove2066]

The questions and answers are so clear, so well explained in such short period of time that not only encouraged me to decide to talk to my doctor but kept me calm and attentive to the video..thank you so much.🙏

[@reginacarroll8306]

Another great video. I was told exactly this 35 yrs ago when I was diagnosed. Good optimistic information for the newly diagnosed.

[@deniseford9081]

This doctor is very , very good . I like the way he answered all the question the doctor in the yellow shirt asked. He also asked some really great and important questions. My husband is suffering with the disease which I believed he hid from me for 22 years. I am constantly crying day and night. He has reach the stage where he is losing his balance , can't drive any more and losing his memory . He has also lost his appetite completely . I am 40 years old and he is 51 years old. We have a 4 year old son. Can you please give me any info on what to expect at this stage ? Any small advice will be greatly appreaciated. I am terrified and extremely devastated. Thanks in Advance.

[@chinwendutony3326]

Hey Denise Ford how is your husband doing?

[@reginacarroll8306]

I have had MS likely since I was a teenager. I am now 70 and still doing well. Yes, there are adjustments that need to be made to live around MS. You must stop crying and wringing your hands. That upset affects your husband ie he's not eating and your child is no doubt sensitive to your home environment. I was relieved when I was diagnosed. MS I could work with.....an inoperable brain tumour not so much. It's little comfort to say it could be worse but it could be worse. I had three small children 6, 5 and 1 when I was diagnosed. That's what I mean that you have to focus on living around it. Organize your life around what your husband can do and find a way to cover the gaps. I put my 1 yr old in daycare so that I had time to rest and be there for my kids for school pickup, supper and homework. Life really will get better when you get a grip.

[@sallysmith9931]

I have a family member who did MS treatment in belgrade recently with stem cells and i am amazed at how well he is doing and i would recommend it to anyone.

[@serbiang1406]

sally smith belgrade, serbia? Please give me more info.

[@sarahelsharwy219]

Would u kindly send me the hospital link or name ? Thanks

[@lozmurphy7961]

Guys if you look up HSCT not stem cell therapy The treatment MUST involve chemo therapy for it to be a success. No chemo - no cure. Mexico & Moscow are the 2 leading facilities at the min. U.K. does preform on the NHS & private and USA have a few trials ongoing at the min. Here is the Facebook link to the worlds HSCT group where you will find all the accurate information you need. 20 mths post now & one regret - I didn’t get it done sooner. It’s the only know proven medical treatment to halt the progression of MS. I can’t state enough stem cells on their own, you may as well just plug yourself into the mains and give yourself a temporary jumpstart, it honestly 10000% will NOT last. I know - to many have wasted 1000’s for a temp fix. facebook.com/groups/hsctworldwide/?ref=share

[@emilyflores9844]

@@lozmurphy7961 chemo harms the body though. Unless hsct is 100 percent for everyone..which I have heard its not...then its very tempting to never address root causes or dysfunctional thinking, neurosis , etc not to mention most of us don't have 60,000 or more money and months worth of time and do not want the after effects of chemo.

[@amydascalos3964]

chemo effects are temporary...ms is forever.

[@smmcb647]

Listening to these comments is scary! I was diagnosed 5 months ago and moving on to Ocrevus next year. I’m hoping to get onto a plateau and stop deteriorating - please God!

[@freddievaneyk4241]

Hope for the best , prepare for the worst. 13 years ago my wife was diagnosed ,we were hopeful, tried numerous medications, today she has no use of legs , little use in one arm , cannot speak, swallow , control bowels , chronic severe pain for 10 yrs. It might not be a quick killer , but in the end you wish it were .

[@ponynose]

You have my sympathies. But people search these videos to look for positives, to help come to terms with what cards they have been dealt. Reading about the worst case scenarios does nothing to help anyone. Your poor wife's decline, is I would imagine everyone's worst fear so they probably don't want to read about it.

[@brobafett9151]

My wife was just diagnosed yesterday and your negative comment does nothing but scare people. I'm so sorry for your wife's situation but your comment is not needed.

[@jamesemerson4102]

Go away.

[@moonlookingforthesun1866]

Ultimately it's our fault for paying attention to angry comments like this :/ I admit it hurt me too

[@mr.makedonija2627]

@@moonlookingforthesun1866 the truth is angry?

[@wendychan6679]

There is a 3rd form of MS called PIRA (progression independent of relapse activity). This is said to be common among RRMS people. It is a new discovery. At the time you first get MS the progressive part is probably so minor that it is easily missed and the neurologist will be focused on the relapses. Also, there have been a number of posts by neurologists saying PPMS and SPMS are the same disease.

[@sandraclark7771]

I was in a wheelchair within a year of being diagnosed with PPMS..... before that I was a very fit and active person with no symptoms except a very slight twitch in my right foot for about a year. So minor that I didn't even go to a doctor. Then I started stumbling when running, I used to run and powerwalk for exercise and loved it. Im lost without being able to work, run, exercise, Im so fatigued I cant get through the day. I miss driving. I miss MY life. You smug doctors are right, YOU DONT KNOW A DAMN THING ABOUT MS ESPECIALLY PPMS AND NO IT DOESNT KILL YOU, BUT AFTER A FEW YEARSOF BEING IN A WHEELCHAIR, LOSING INDEPENDENCE AND DIGNITY BECAUSE YOUR BOWELS AND BLADDER DONT FUNCTION..... YOU JUST WISH YOU WERE DEAD!!!!!!!!!

[@cherylvl1036]

Sandra Clark I thought my progression was aggressive😢. My first symptom was foot drop, diagnosed 6 months later and within 3 years from diagnosis I was in a scooter. I’m still using the scooter full time and have been for 3 years now. It’s hard when your MS doesn’t fit into the normal boxes and the feeling is that nobody is like you. I’m sorry yours is aggressive too.

[@levitd]

Sandra, I'm so sorry you have to deal with this. Is there anything you need that I could help out with?

[@galacticg0at653]

My mom who has recently passed has progressive MS. It was fucking awful, the last ten years of her life were lived in a fog and she was completely disabled, bed ridden, and her cognition was awful. Many brain lesions. I am of the opinion that my mom might have had the worst case of ms ever. It ruined her quality of life and eventually it took her life. She was 57

[@frankgradus9474]

What you've written in capitals is sadly so true ...

[@reginacarroll8306]

I'm sorry. Really is different for each of us but you really got the sh** end of the stick. Again, I'm sorry 😢

[@lilbolilbo1923]

I've had ms at least 11 years. Diagnosis in 2013. I notice this year... covid, isolation, leaving my lifetime abuser after 19 years, my 4year old having cancer, I have been having a LOT of uncontrollable nerve spasms lately. It is sonfristrating and humiliating when I cant control it in front of others. I worry I'm getting worse or maybe im.just being paranoid and I'm fine and it's just from the stress.

[@dabzprincess92]

They can expect horrible horrible things and losing everything a long the way including but not limited to family home ENERGY strength and TIME!!! It steals your time!!! The pain is the worst. I have PPMS and it has taken everything from me my muscles my limbs my teeth the list is never ending. Driving going out making plans that goes away to. Cooking showering coordination speech and I just am not using comas. Find a doctor that actually listens to YOU. Not their other patients that aren't you! It should be individual care not factory care. Amd because we don't look sick my response is You don't look stupid my mistake. Lol when it progresses you can expect to be bed ridden. They hardly know because we all suffer differently yet the same in so many ways. The day they get big pharma out of their back pockets is the day MS suffer's will see REAL progress. #Freetheweed #wewantchoices #Wewantacure not bandaids

[@sandramontague4053]

Please help me My son found out he had ms while studying for the bar He finished and was hired by a nice firm But now he’s quitting bc this ms is causing him exhausted days nights no sleeping depression and muscle pain !!! What about the dizziness it’s scary and he won’t get a cane !!! He’s 29 How can I help him

[@lozmurphy7961]

Look up HSCT if you haven’t....it’s the only medically proven treatment to halt the progression of MS.

[@sandramontague4053]

Jason Christodoro ty I think so too but he is not willing to try it yet but he does use cbd

[@spankg888]

Lady i hope things got better for you and your son

[@sandramontague4053]

@@spankg888 thank you, he is taking Ocravis and cbd s . I’m learning how to accept this and I think he is too

[@MCL198027]

Stem Cells, Nootropics like Selank, P21, Semax?

[@SimpleEnglishHub-]

I am on Gilenya - 6th year. No dusability yet- but too many plaques in brain, neck, dorsal. No active lesion now. Doc asks me if i should now switch to Ocrevus. I am afaid which is better for me. Follow with Gilenya or NOW switch OCREVUS before too late? On Gilenya, i never had attack- earlier roughly every 6 yrs.

[@nonyabeezwax8693]

I feel like ive been hard labor for over a week now. Its very painful it's Christmas Day. Wishing i were dead because the pain is so bad

[@bellatopiaaa8397]

Debra Trawick Have you tried CBD Hemp Oil? This has helped relieve my MS aches and pains! I had my first major attack a few months ago and diagnosed with MS. I refuse to go the pharmacy route and self healing with the right anti-inflammatory foods, vitamins and CBD Oil. Pls try that, I’m sure you’ll feel better hun 🙏🏼

[@jenniferbodurtha5852]

I have had MS for 33 years and am now 59. There were no drugs back then so I researched low fat diet and vitamins and supplements. Need D and flaxseed oil B12 and others. Research - BTW use a walker and can no longer drive. But had and raised, now 28 yrs old boy/girl twins . Stressed the importance of D each day.

[@vinceomahoney1651]

Annoys me because it's never if it's always when. Why can't neuros just be up front about it. They won't commit for fear of being sued.

[@reginacarroll8306]

Not always when. Neurologists can't tell you what they don't know. MS is unpredictable and different for everyone. Only time will tell what the course of your illness will be.

[@darrelmorgan6266]

I keep reading that MS is not fatal. That said, just in August of this year a close friend and coworker died in her sleep. It took until just a few weeks ago for the final coroners report and toxicology tests to come out and the primary cause of death listed was Multiple Sclerosis. She did not fall, did not have pneumonia or any of the other things I have seen listed as possibilities when someone actually dies from MS. She died in her sleep and her husband only realized something was wrong when she would not get up that morning and he turned her over and her lips were blue. The only thing that I do know for certain is that she never ever had treatment or took medication for her MS and I assume she likely had it for years. Just don't understand what actually physically took place within her body that killed her as relates to MS and I have yet to read anywhere that describes anyone dying from it other than from ancillary causes. Something about her MS very definitely caused her death but what(?)

[@jobrownsmith116]

i'm thinking she had bilateral brainstem lesions. Certain parts of the brainstem controls breathing. It does happen on the brainstem. But hard to say.

[@darrelmorgan6266]

@@jobrownsmith116 Thank you for your reply. It's been tough to deal with because she was someone I and others of course cared a lot about. But it was even more of a shock considering the coroner declared her death as a result of "demylenating(sp?) disease, likely Multiple Sclerosis" when we were all lead to believe MS was not a fatal disease. Just left us in a state of shock.

[@DoorDashers791]

I got diagnosed with sinus tachycardia Cardiologist said its multiple sclerosis related..neurologist said I don't think so Unbelievable.

[@erenjaeger2191]

I think I have the same what’s the treatment, are those fast hard eat comes and go?

[@DoorDashers791]

@@erenjaeger2191 beta blocker medication 💊 I'm on metropal 25 mg low dose 2 x a day

[@sanjaykumar6599]

How are u now

[@DoorDashers791]

@@sanjaykumar6599 ok so far the episides come and go

[@sanjaykumar6599]

@@DoorDashers791 are u diagnosed with ms what are ur symptoms

[@mohamedorayith4626]

I didn't quite figure the difference between primary and secondary progressive MS? Could someone explain please

[@yourdailydoseofsalt9021]

If I understand right. Progressive MS is more consistent symptoms. Whereas it's quite common with regular/primary MS for symptoms to dissipate and return over time with no particular pattern. For example, my Mum had her first flare of MS at 25 but it was ushered aside as something else, now in her 40s she had returns of the same symptoms but had been unbothered it for a good decade and a half. Progressive MS is also a more linear series of effects to coordination and movement. Im not definite but I imagine that happens in episodes of consistency where the immune system attacks a certain group of nerves. PS: I'm no expert, just educating myself for my Mum

[@rebekajah]

primary progressive is when you go down with the worst form of MS from the beginning. secondary progressive is when you develop that stage later, having previously had the relapsing-remitting form.

[@SimpleEnglishHub-]

@@rebekajah yes. that is correct.

[@markscott9622]

Thank you.

[@CampsThe]

Very much nice video

[@jasonc5289]

Do HSCT and be done with it.

[@marcusvincent4273]

Have been confirmed negative of MS, thank you Dr mason channel on KZbin..indeed your medications works wonders..keep saving lives

[@GetReady4LiftOff]

A man gradually worsens, weak muscles allow knees to bend both ways. later: falls, unable to get up. random loss of sight, hearing or can’t move. video said women do better then men.

[@georgecoasta6923]

Walking myself was difficult for me because of my parkinson health situation but am happy that Dr Madida medicine on youtube I was able to get cured. Now I can walk properly🙏🙏

[@flh5959]

It's clear that it's unclear

[@henp99]

Thanks for giving me a laugh going down this long Rabbit Hole of MS