Invisible Symptoms in Multiple Sclerosis (Part 1) | National MS Society

[@jamidonges3071]

It was in 1978 and my parents primary care told my father that my mother was just drunk? With 5 of us kids at home to care for! It wasn't until she seen the optometrist that she first even heard of MS. Shortly after that was the neurologist and then after that she was in a wheel chair! I was 12 and terrified I can't imagine how she felt! All these years and she's never complained! She's the strongest woman I've ever known ! Love you mom!

[@skylark5789]

You are such a wonderful daughter. Thank you for sticking by your Mom, loving her and believing her. She needs you.

[@erica78ify]

💜💜

[@jessicarobarge8972]

😢

[@bensadeghipour2269]

My MS Disease healing testimony my mouth is short of words,I am so happy because Dr Emmanuel healed me from MS disease a herbalist from west Africa, I have been suffering from it for the past 2years, I have spent money on different medication but it the same, until some lady testify about this dr Emmanuel i decided to give a try, that's how i found my self healed, i can't keep this I got to testify too, chart him up through his WhatsApp [phone] He can also cured Herpes virus Alzheimer's Cold Brain tumor Etc Or E-mail: [e-mail] kzbin.info/door/pUsOO5kNWlqOYzaWgtQuHQ .

[@jazzyannaliesarose]

💕 thanks for telling her story.

[@Lucylovewalk]

When people say to me, “ You look fine, You don’t appear to be disabled .” I tell them,,, “ Well, you didn’t appear to be judgmental at first either . “ 😂

[@jacquelinesmith2242]

Don't you love those @#$% people?!! I get the same, theres so much more to MS than mobility alone! My main issues are cognitive and other 'invisible ' symptoms. I feel like I need to 'apologize ' to those who want to criticize for NOT being in a wheelchair!!

[@kaylahall1219]

"You don't *look* sick..." "Funny, I could tell right away you were stupid."

[@jacquelinesmith2242]

@@kaylahall1219 Lol , you gave me a chuckle first thing!! If only I had the nerve to say that!!

[@honorafox4709]

Thank you so much! I will remember that retort to rude people when they say things like that to me!

[@Tinyteacher1111]

Good call! I just got a handicapped sticker, and I’ll know what to say!

[@conorsmith2705]

I am 11 and doing a 30 mile bike ride to raise money for MS and after watching this i see how bad MS is

[@maryemmons8318]

Conor Smith Thank you, Conor, for doing that for those who suffer.

[@conorsmith2705]

Thank you

[@angiebear8727]

Ty

[@jacquelinesmith2242]

Thank you Conor!! Your parents should be very proud of you!!

[@karimhasn6295]

I go ueeud96te Sr4

[@doracamarena1532]

I've had MS for 14yrs. It's rough, You just have to keep going. It's truly one of those things MS can take you down, you just have to remember you have MS but MS doesn't have you!! Make it your friend because your with it everyday 24/7. I know this sounds crazy but it helps me get through my day. Remember YOUR IN CHARGE!! Not MS!! Positive Thinking. I thank God everyday,Knowing it could be worse.

[@katepope1333]

Dora Camarena

[@katepope1333]

Kate Pope I love your message. I've had MS for 24 years and I agree with everything you said I also say " I have MS, MS doesn't have me!"

[@LUckybones25]

God Bless you!

[@anahitgituni9315]

God bless all of us They just diagnosed me but I’m pretty sure I had this for a long time

[@angiebear8727]

I look at it as an annoying relative I just can’t seem to get away from. 😉

[@Tapiaaaaa]

My mother had MS my whole life. By the time she was finially diagnosed she was 27 and already in a wheelchair. Her scarring was worse that the model her nuerologist had in his office. She lost control of her hands, legs, eyes, and even forgot my name a few times. She passed at 42 and I miss her everyday. I hate MS. She did not deserve to suffer as she did. No one does.

[@kellypawspa]

Bless.you dear. So sorry for your families struggle.

[@bensadeghipour2269]

My MS Disease healing testimony my mouth is short of words,I am so happy because Dr Emmanuel healed me from MS disease a herbalist from west Africa, I have been suffering from it for the past 2years, I have spent money on different medication but it the same, until some lady testify about this dr Emmanuel i decided to give a try, that's how i found my self healed, i can't keep this I got to testify too, chart him up through his WhatsApp [phone] He can also cured Herpes virus Alzheimer's Cold Brain tumor Etc Or E-mail: [e-mail] kzbin.info/door/pUsOO5kNWlqOYzaWgtQuHQ .

[@annettemccoy4046]

So sorry life is unfair. ❤️

[@esheikafontenette6934]

OH WOW LIFE CHANGING INDEED❤

[@TeriMcPherson]

Sorry, I hate MS as well, I'm 60 got MS at 20yrs old, got fired from my job at the bank when I told them. I keep it to myself

[@cynthiaschaub9188]

This is a really good interview for family members. Invisible symptoms are so frustrating when you decide to tell family members what is happening and they say you look fine. Thank you!

[@JanetWark]

WHY DOESN'T THE MS SOCIETY SUPPORT OUR ONLY OPTION FOR REMISSION??? DR.RICHARD BURT THE PIONEER OF HSCT, HIS FIRST BOOK "EVERYDAY MIRACLES" IS A MUST READ.

[@KungFuMonkey1]

I was diagnosed earlier this year after about 2 years of fairly serious fatigue and a worsening limp. A case of 'bad news is you have MS. Good news...You haven't been going nuts !' Really helpful vid. Thank you

[@JanetWark]

WHY DOESN'T THE MS SOCIETY SUPPORT OUR ONLY OPTION FOR REMISSION??? DR.RICHARD BURT THE PIONEER OF HSCT, HIS FIRST BOOK "EVERYDAY MIRACLES" IS A MUST READ.

[@JAYSONGS]

My recent experience/reality. 😢

[@esheikafontenette6934]

RELATABLE

[@PMSAvenger1]

Thanks for posting. I was diagnosed with MS 2 years ago. The only symptoms I experience daily is the odd bodily sensations and some clumsiness. Two years ago it was much worse. I try to focus on the positive aspects - like I can still walk. I often don't disclose that I have MS, but yes, I have had people look at me like I was making it up when I have told them ... it's true, there are "invisible symptoms". I have learned that emotional stress greatly impacts the symptoms. Best to avoid.

[@JanetWark]

WHY DOESN'T THE MS SOCIETY SUPPORT OUR ONLY OPTION FOR REMISSION??? DR.RICHARD BURT THE PIONEER OF HSCT, HIS FIRST BOOK "EVERYDAY MIRACLES" IS A MUST READ.

[@d314159]

I'm in my early 60s and have had MS for about 40 years. As an athlete it has really impacted my whole life, to such an extent that I even needed a wheelchair about 20 years ago. However, I have never found anything that even comes remotely close to exercise for helping with the symptoms. Sure, it's very easy to overdo things and suffer terribly afterwards - I still do that all the time. But playing the long game, it's definitely a case of use it or lose it.

[@d314159]

Oh, I forgot to say that on very good days I can still do a 5k parkrun in 23mins (with a total hip replacement) and no-one would know there is anything wrong!

[@johngram1866]

contact doctor akhigbe for your cure with his herbal medication

[@johngram1866]

message him on whats app

[@amberarmstrong8174]

Thank u for posting this gave me a lot of hope 💓

[@derekrunsagain]

@@amberarmstrong8174 I wish they would recommend exercise more. Since I started doing the parkruns I've met other people with very serious health issues, including MS, at these events. So it's not only me! I started a youtube channel this year (youtube.com/@derekrunsagain) in the hope of encouraging others to do more exercise. I have noticed that those who rely on drugs seem not to do as well.

[@WOLFEAGLE]

I can have a full nights sleep and wake up then two hours later feel like I drove from Phoenix to Dallas non stop.. Dx MS 2000

[@301980sexynerd]

Yes!

[@Sofia-te4dp]

True

[@maryjanebrant]

Kate Mellikin and Rosalind Kalb, Ph.D. have done a marvelous presentation with this teaching video. Part II is also excellent. They have a wonderful style together, too. I have passed it on to many families and everyone is appreciative.

[@JanetWark]

WHY DOESN'T THE MS SOCIETY SUPPORT OUR ONLY OPTION FOR REMISSION??? DR.RICHARD BURT THE PIONEER OF HSCT, HIS FIRST BOOK "EVERYDAY MIRACLES" IS A MUST READ.

[@Rprayhard4u]

I was diagnnosed in 1990 and have been blessed in many ways by not having to use a wheelchair or other helps that many use. I recently sold my home and moved because I realized it was time for a one floor home after falling several times. The whole process of selling, packing and moving and now finding places for my things has been such a challenge with my cognitive abilities declining quickly. These videos have shown me to not be so hard on myself and that hope for learning a new way may be my answer. I am switching treatments because I dont think my copaxone is as effective; my neorologist agrees and it too is scary. Thank you all for your work in this area. sincerely~Robin

[@janetnord1200]

I found out that I have I am ass about 15 years. I have not hey can any prescription for it and my doctor told me that I might become more people as I get older. I think I have had MS most of my life when I realize I was always tired and always take a nap. I will be 80 years old next month and haven't fallen down. I have a walker to make sure I don't fall. Right now I'm speaking into my phone and writing a text. I can still drive and can put my walker in my car by myself.

[@JanetWark]

WHY DOESN'T THE MS SOCIETY SUPPORT OUR ONLY OPTION FOR REMISSION??? DR.RICHARD BURT THE PIONEER OF HSCT, HIS FIRST BOOK "EVERYDAY MIRACLES" IS A MUST READ.

[@margaretforrest5588]

Thank you. I am still trying to wrap my mind around this diagnoses. I thought at my age it was impossible , guess I was wrong, My care team is wonderful and I feel blessed to have so many people on my side.

[@RegiaManos]

I just got diagnosed at age 59 they told me it can’t be you’re too old but the legions in head and lumber puncture confirmed it

[@Ayat1432]

Owen tell me pleas , what kind of allergy. Is it food allergy or general allergy.

[@JanetWark]

WHY DOESN'T THE MS SOCIETY SUPPORT OUR ONLY OPTION FOR REMISSION??? DR.RICHARD BURT THE PIONEER OF HSCT, HIS FIRST BOOK "EVERYDAY MIRACLES" IS A MUST READ.

[@BrendaSloan-y3e]

You say you have a team of supporters for yourme .I've had fibromyalgia for over 30 years .my my team of help and support.doesanyone with fibromyalgia get support and if so what kind of support.?.😢

[@lottieew135]

Simple partial epilepsy :) tried for about half a year to be seen by a neurologist, because my GP thought I was depressed. Then, I had one where mum found I had held my breath, checked it on NHS symptom checker, which came back as a baby-stroke, off we go to A&E, and when a nurse did a pupil reaction I had a seizure right in front of her and my pupils didn't dilate. She got round my GP, to the Trust's neuro hospital, and the neurologist had to get me an MRI to diagnose me. I tell everyone how it became diagnosed, because I don't want others to be left on their own.

[@JanetWark]

WHY DOESN'T THE MS SOCIETY SUPPORT OUR ONLY OPTION FOR REMISSION??? DR.RICHARD BURT THE PIONEER OF HSCT, HIS FIRST BOOK "EVERYDAY MIRACLES" IS A MUST READ.

[@LainyOLainy]

i have been living with the brain fog, pain, fatigue........i can't keep up with my days....... and i worry people may think I am going on, but MS really does make life tough and we do try to work it so it doesnt affect too many people. But please give us a break......If you know someone who is a sufferer... be nice

[@monikafreidel7230]

I have lived with MS since I was 16 years old, it took another 24 years to get the diagnosis. But I knew. This is a brutal disease.

[@N1976DL]

I’m glad to hear I’m not the only one. I’ve been having symptoms since around 2011. I was referred to a neurologist in 2013, but cancelled the appointment, because I felt better…for a little while. I’ve refused to go again, because of fear of being dismissed or told its “just anxiety”. Well, for the last year I’ve journaled my symptoms, in addition to all the symptoms I can remember experiencing in the past. I’m determined to finally go to a neurologist as soon as I can in the new year (2023).

[@mongoosevacations]

I am glad I found this. I do have a symptom that is not MS related that I am fighting so hard to have corrected. Don't be afraid to expect regular considerations of your symptoms before hearing the "easy way out" without proper evaluation. And don't become dejected if your doctor feels you are not a doctor in considering it. If you have accepted the fact that you have MS, go with your gut and even a second opinion.

[@JanetWark]

WHY DOESN'T THE MS SOCIETY SUPPORT OUR ONLY OPTION FOR REMISSION??? DR.RICHARD BURT THE PIONEER OF HSCT, HIS FIRST BOOK "EVERYDAY MIRACLES" IS A MUST READ.

[@mgtow8490]

Telling someone with MS they look good is like telling someone who is hard of hearing,, You don't look deaf".

[@johngram1866]

contact doctor akhigbe for your cure with his herbal medication

[@johngram1866]

message him on whats appp

[@sandimoo]

I like that! I will use that in future…..

[@TaraConti]

Thank you for sharing this. I’m 44 and have been dealing with many of these symptoms for more than ten years now. I gave up trying to figure out what is going on. The medical system has been too hard to navigate for me. Especially considering I feel like crap! I’ve suspected MS for a long time now & if it’s MS or not I just can’t take it anymore! I HAVE to figure it out! I can’t keep existing like this anymore. I use the word exist because I don’t live anymore I just exist. 😔

[@CosmicCat3_0]

I am 40 and sounds like I'm in the same boat as you.just existing and not truly living anymore.i am in the process of being diagnosed and am quite sure it MS, originally my Dr.thought fibromialga but none of those treatments worked.i think it will be important for us to have our proper diagnosis not so much for the label,but to be able to understand ourselves better and have our issues validated.then hopfully can start to feel abit better after getting the right treatment.i have a 9 year old son who I was able to ride bikes with and Rollerblade just a couple of years ago and cannot anymore.that really hurts me.he is my reason for still existing bc otherwise I would have taken myself out for sure by now.but as he grows older and needs me less,I worry that it will be harder if I can't learn to find purpose or reason for MYSELF to get out of that bed each day.

[@sophiamia3742]

With natural supplements I was Cured totally from ( M.S ) within 17 days of taking DR RORPOPOR HERBAL on KZbin medications. Thank you for saving me.......

[@Lovescoffeeandtea]

Chronic pain makes us feel like we just exist. Everyday we get is a gift. I’m 48 yrs old. I almost couldn’t remember my own age just now.

[@JanetWark]

WHY DOESN'T THE MS SOCIETY SUPPORT OUR ONLY OPTION FOR REMISSION??? DR.RICHARD BURT THE PIONEER OF HSCT, HIS FIRST BOOK "EVERYDAY MIRACLES" IS A MUST READ.

[@linusesgirl]

​@epicaninals8713 @TaraConti I'm 47, I have found out that I am 100% predispositioned genetically to have MS and I have about 27 symptoms however I've had a cspine and brain MRI's doc said they were both clean (I had white matter in my brain but said it was "normal".) I was sent to the neuropsychologist and they said it was all in my head! I was a high functioning adult, running, climing, a football coach a cheer coach etc, now I do what I can to go pee and get coffee and food until my husband comes home to take care of me! Why in some places of this country, medical care is horrible and such a fight to get proper care! I don't use a walker, a cane and have a $60k service dog to help me when I fall just for attention! I barely go out cause I don't like to be alone (afraid of having an episode and no one knowing what to do) so I stay home. I'm losing faith in the military health care system! 😢

[@gachic74]

This video is so eye-opening to non-MSers. I can relate to all of these except for the double vision. I may not have every symptom at the moment, but I know what it is like to hear that phrase..."but you look so good"...UGH!!!! Oh the wonderful world of MS!!! I have it, I live with every day, & I refuse to let it get me!!!!

[@generalbomax]

My son (age 14) has just been diagnosed with MS and things that I've been seeing over a period of time are now making sense as to why. Thanks for sharing this video.

[@JanetWark]

WHY DOESN'T THE MS SOCIETY SUPPORT OUR ONLY OPTION FOR REMISSION??? DR.RICHARD BURT THE PIONEER OF HSCT, HIS FIRST BOOK "EVERYDAY MIRACLES" IS A MUST READ.

[@chinupduck4849]

Hello from 2023....hope you are all holding up.

[@8888-9]

This is very helpful to think on. Those invisible symptoms mean a quite private “ hell “ for the one going through all of these. This is very validating. Here in AU the Doctors & hospital neurologists are not aware. These in fact find other “ causes “. So the person is put in position where the best treatment is your own research and Diet changes, with Fasting . The lady sharing this information , mindful this was 11 years ago… offers realistic acceptance. My family member is educating me - where I do not get what they are experiencing - I slowly am getting what they go through. Finding - how Stress ( negative stimulus ) impacts noticeably .

[@JanetWark]

WHY DOESN'T THE MS SOCIETY SUPPORT OUR ONLY OPTION FOR REMISSION??? DR.RICHARD BURT THE PIONEER OF HSCT, HIS FIRST BOOK "EVERYDAY MIRACLES" IS A MUST READ.

[@teresavaccarinoperez9354]

I am so glad I watched this and came to the site . I have been struggling for years and no one will diagnose me but I have every symptom and am going crazy and depressed because no matter how I try to get help the drs and everyone around blows it off like I am just lazy or whatever.In the middle of my disibility case and can't get it because the dr won't diagnose me.Even though many things point to it .

[@MaryLynneChristman]

If I let myself get extremely fatigued then my invisible symptoms really kick in mood swings, brain fog, numbness and tingling, loss of balance then I get even more tired trying to keep them invisible to others. Meditation seems to help.

[@gabbiesmeemee]

Of my, my body goes the same way. I have yet to be diagnosed but have suffered many years. Some days I feel my body is a terrorist and invading my heart mind and especially my physical being. All of my symptoms over the years have gotten so much worse. Some days my body attacks me physically period my muscles atrophy and just start doing their own thing. If anybody has this please tell me , so that I can you be closer to finding out if I have MS or not period all of the symptoms have been treated singly. And none created as a group of symptoms of a certain disease. My physical pain actually make my emotional pain 10 times worse and my emotional pain makes my physical pain 10 times worse. God help me

[@esheikafontenette6934]

Continue to seek that dx and help…ADVOCATE FOR SELF

[@angelusa73]

I agree with that! I might look "so good" and I might not look terribly sick, but I am and the invisible symptoms of MS are invisible. Many are and I experience many of them so I know they exsist and they are not easy to live with. I have had a little bit of everything in only 6 years living with this disease and I can say that the emotional and invisible problems are the haardest for me more than not moving right. Everyone is very different and we all ecxperience different things, Angela:)

[@JanetWark]

WHY DOESN'T THE MS SOCIETY SUPPORT OUR ONLY OPTION FOR REMISSION??? DR.RICHARD BURT THE PIONEER OF HSCT, HIS FIRST BOOK "EVERYDAY MIRACLES" IS A MUST READ.

[@sherristevens3972]

Thanks for bringing this to people's attention. 🙌 amen 👏 👍

[@Theluckyonesss]

I want to thank you. I have gotten a better understand and learning of MS which has helped me with my wife.

[@michigandogman3060]

I just fired my neurologist and am currently waiting to be picked up by U of M, all my neurologist cared about was keeping me on meds and then sending me out the door to deal with my issues myself. Because of the lack of response and general caring by my neurologist I lost my long term disability I paid for through work, stating I don’t get involved in that stuff. I understand not wanting to be involved in insurance issues and all I asked for was a accurate reporting of my struggles, but he seemed not to want to hear about problems I was having and as long as I could walk and communicate well he just did the normal strength and coordination tests and sent me out the door. For many years I worked full time, ran my own tree business on the side (pretty much full time also, as well as racing bikes triathlon, and motorcycles. Now I struggle to even get started on the smallest projects, just knowing how much of a slog it may become and knowing I am incapable of even half of what I was, is very depressing. I am still trying to get Liberty Mutual to resume payments but the law is structured in their favor and they make it very difficult.

[@JanetWark]

WHY DOESN'T THE MS SOCIETY SUPPORT OUR ONLY OPTION FOR REMISSION??? DR.RICHARD BURT THE PIONEER OF HSCT, HIS FIRST BOOK "EVERYDAY MIRACLES" IS A MUST READ.

[@esheikafontenette6934]

U HAVE TI BE YOUR OWN BEST ADVOCATE……SADLY CONTINUE TO FIGHT

[@mollydion8311]

I wake up tired, take a shower then I need a 2 hour nap to get dressed. It's crushing fatigue & I have burning leg pain with the feeling of hundreds of bee stings all over my body. At 72 I'm depressed & can no longer fake a happy smile. I can just do what I can do.

[@carolemarra111162]

This is the best MS video I've seen by far! Very thorough. Maybe this will help some people "get it!"

[@Divine_Will_Be_Done]

I have all these symptoms and for 18 months. 5 months ago I was diagnosed with vitamin B12 ,B, D and iron deficiency (severe). My partner at the time was short of patience with my symptoms. Especially clumsiness, inability to walk as fast as him, unstable on my feet. Only when I left the UK in April and said something to my mom that she made an appointment for me. I was so used to the symptoms, and blamed my lockdown obesity. Especially the horrible pins and needles across my body. The symptoms have not gone away, but worsened. I can't afford extensive tests, so hope the vitamin shots will be all I need. Ideally I did have further tests. Her local doctor luckily did the blood tests.

[@JanetWark]

WHY DOESN'T THE MS SOCIETY SUPPORT OUR ONLY OPTION FOR REMISSION??? DR.RICHARD BURT THE PIONEER OF HSCT, HIS FIRST BOOK "EVERYDAY MIRACLES" IS A MUST READ.

[@חניבןעזרא-ס2ס]

sometimes I can sleep 17 hours a day, not les then 9 hours in a good day, because that fatigue.

[@pavithrashanmugavel8951]

Same

[@DMGood]

How well I know... Then, there are weeks that I can't get on a sleep schedule.

[@ellie698]

Yep 👍

[@user-lo9lc8sr4p]

Or waking up after an 8 hour sleep and feeling like you been up all night

[@gregoikonomakou136]

The same here

[@andrikos1988]

This video conveys my entire life...Ι have had MS since 2005......it's an eternal battle with the Hydra....When you cut one of its head then 2 more reappear.........My character has changed at all....I have forgotten what it means to feel relaxed...I wish the best to all of us...

[@sophiamia3742]

With natural supplements I was Cured totally from ( M.S ) within 17 days of taking DR RORPOPOR HERBAL on KZbin medications. Thank you for saving me.......

[@sophiamia3742]

Contact DR RORPOPOR with this link and get Cured totally 👇🌿 kzbin.info/door/kZwKW6qES4dXDWzb0YQErA

[@ChasityMorgan368]

I can’t imagine what some of you have had to go through to get a diagnosis. It took me 6 months just to get diagnosed with ovarian torsion. I suffered horribly and was treated so bad by an ER dr, I can honestly say I refuse to ever go to that hospital again. I’ve had some pretty bad symptoms pop up and I keep coming back to MS, thinking maybe I should ask to be checked out, but after what I just went through I’m actually scared to ask for help.

[@ecb1979]

I think it doesn't help that a lot of times womens health issues are chalked up to hormones. It's a complete joke.

[@JanetWark]

WHY DOESN'T THE MS SOCIETY SUPPORT OUR ONLY OPTION FOR REMISSION??? DR.RICHARD BURT THE PIONEER OF HSCT, HIS FIRST BOOK "EVERYDAY MIRACLES" IS A MUST READ.

[@dreameranik]

have tried to tell my doctor such things that I'm experiencing and he had suggested me to visit a psychiatrist :( persons you r closest with fails to understand. and the worst part is u become lonelier day by day. no way, get tortured but survive. just my experience.

[@Chimonger1]

+Nancy Turner It's amazing to what lengths a supposed "professional" might go, to protect their standing...even lie about patients/clients, even, as yours did, committing you--to avoid admitting they just don't know how to help someone! Or, threatening to report innocent parents to CPS, or doing that and have the children removed from the home, to protect the "professional's" own bullying tactics and inability to listen to clients, or use their training responsibly or accountably. Docs refusing to evaluate/test a child for ASD, only to instead accuse parents of abuse, could cause much harm, including death...those professionals stand on their accusations, certain of themselves in the face of public scrutiny; their main care is the survival of their income. It's up to all of us, to Report that kind of bullies, or otherwise get them to HEAR what we are telling them, properly. Yes, it can be dangerous to report them; understand that; put your ducks in a row to protect yourself first, as much as you can. They don't usually stop their behaviors without a fight. Sometimes, the best action is to 'do nothing' but let the system catch them, by making sure that your incident is "on the books": in your medical records [which you keep copies of!], and, in various venues of filing complaints----the BBB, Yelp, etc. Stick to just the facts, keep it short and on-point. Avoid allowing emotions into it, kinda like you did with your post here. I've learned that the Corporate game of "using the ladder" of responsibility, does NOT convey protection of the client. Clients are used to generate income to all those along the way, who have their fingers in the justice pie..all ya gotta do is look into the "DivorceCorp" [documentary available on Netflix] justice system, to learn that---it's a mind-bogglingly huge collection of profiteers milking the systems. Medicine is not much different.

[@thefaithchapter5646]

thats crazy no one believes me either.

[@laurasantiago2851]

So true I have experienced the same with doctors

[@lillyrocks2011]

The same. Or that I should learn to breath better. It's been awful that doctors don't believe you. Or they say I'm depressive yes of course because I haven't got the right diagnosis and they think I'm crazy or lazy. It's awful to see my life going to hell.

[@gregoikonomakou136]

I have visited many doctors who told me that it's so frequent unfortunately....

[@TheDetroitblack]

Everything she said is true,I have struggled with all of these things...

[@seandarke1892]

Yeah my whole past medical history is suspiciously looking like I might have a MS . I’ve been recently I having bladder issues where it doesn’t let me know that I have to go until it’s almost too late and recently I have been having some weird things going on with my left index finger and thumb and numbness in my arms and legs

[@alakranzitagalarza2157]

My Dr. Said my symptoms of pain and tingling umbness are due to neuropathy or fatigue.. foggy brain.. falling due to copd.. Or emotional issues like depression due to my bpd .. Left side weakness due to my stroke so his best thing was to put me in a wheelchair it did stopped me from falling but i can walk just my body doesn't respond sometimes causing me to fall not like syncope or vertigo but hey I'm alive 🙂 and that's what's important and not giving up. Ppl. With MS keep strong keep fighting ❤ I might not have that but I know the struggles

[@sandrajdavis1236]

This Great Info. I hope others will see & Listen to this...People Can be cruel. Be careful with others. You don’t know what they going through.

[@matthew404]

Another fantastically informative video, having been diagnosed with MS in December 2015, these video's have been an amazing source of information and listening to other peoples stories has really helped me cope.

[@JanetWark]

WHY DOESN'T THE MS SOCIETY SUPPORT OUR ONLY OPTION FOR REMISSION??? DR.RICHARD BURT THE PIONEER OF HSCT, HIS FIRST BOOK "EVERYDAY MIRACLES" IS A MUST READ.

[@mikedeegan9342]

I am newly diagnosed. This topic was very helpful.

[@keelybaby17]

I’m 24 I had knee pain to the point of crawling since age 8. Breathing problems since age 8 and my mother ignored me and thought I was trying to get attention. I have pain everywhere day and extreme exhaustion. Brain fog and my leg randomly gives out and I have convulsions and tremors in my legs. I was told by the rheumatologist I look fine. Waiting on my nerve conduction test for neurology in a few weeks. Almost positive it is a nervous system issue. Praying I get the answers and help I have waited almost my whole life to get. By MYSELF.

[@sophiamia3742]

With natural supplements I was Cured totally from ( M.S ) within 17 days of taking DR RORPOPOR HERBAL on KZbin medications. Thank you for saving me.......

[@sophiamia3742]

Contact DR RORPOPOR HERBAL with this link and get Cured totally 👇🌿 kzbin.info/door/kZwKW6qES4dXDWzb0YQErA

[@XxKiDCuDiFTWxX]

I've had the "you look good" thing happen too often. It's been hard for me because I only new my pathology as chronic fatigue and only now am I hearing MS being thrown around as a possible diagnosis. Invisible symptoms are so hard to describe.

[@jacquelinesmith2242]

So true!! If I had a dime for every time someone said that I'd be a millionaire!! Lol!

[@JanetWark]

WHY DOESN'T THE MS SOCIETY SUPPORT OUR ONLY OPTION FOR REMISSION??? DR.RICHARD BURT THE PIONEER OF HSCT, HIS FIRST BOOK "EVERYDAY MIRACLES" IS A MUST READ.

[@carolvedder3555]

Thank You! I have invisible symptoms and its frustrating because other people don't believe me. There was a character on the old Saturday Night Life who said "It is better to look good than to feel good". Its hard to explain why I can't do a lot of things. I feel so guilty. I have an aide that helps me, Some times I am good but other times I'm not. So it looks like I'm just lazy and could do things myself. I know what MS people would say but I get tired of having to explain and knowing that they'll forget. I always was a little slow about housework

[@Wysiwyg43]

My quality of life has changed because of MS and not for the better. I'm glad I watched this because I thought I was going mad!

[@sarahyates6055]

My husband and I think I maybe suffering with MS. In 2015 I was diagnosed with Fibromyalgia and many of the symptoms are similar or crossover. I have all the symptoms, fatigue, insomnia , I can get to sleep but staying asleep is incredibly difficult by 4 am most nights I’m awake and twitching/ muscles jerking uncontrollably and it’s very distressing. visual disturbances, highly overactive bladder it’s not unusual for me to pee every 10/15 minutes day and night( everything else been ruled out, diabetes kidney disease etc). Bowel problems put down to IBS. numbness and pins and needles in my arms, hands and legs. Very emotional I can cry at anything and nothing, I’m fine one minute then the next I’m just in tears. Swallowing I regularly choke on my food and drink. I have sleep apnoea, Gerd, my balance has been terrible for years and I know mobilise with crutches. I can’t seem to regulate my temperature, I feel warm to the touch but internally I’m so cold if I take my temperature ( to check for infection or fever) and it’s 35 ! Cognitive problems, I sometimes really struggle to find the words I want to use either in speech or written words. It’s frightening, you worry that you have dementia or you’re going crazy and when no one listens or takes notice of you it makes it even harder. Is it any wonder by Blood pressure has been sky high and despite tablets we can’t get it down…. I’m at my whits end right now, I’ve had an horrendous Christmas and New Year waking at 4 am every day and not being able to get back to sleep. It not only disturbs and distresses me but disturbs my husband. It’s getting me down I’m not quite at the point of being suicidal yet..nor do I want to get there, but it scares me feeling the only way out of this is….

[@nickiiyoungblood473]

Darling, you have MS, no matter what anyone else says. If there is such a thing as “classic “ symptoms, you have them. Take it from someone who knows.

[@h.t.2416]

Thank you for writing your symptoms in such detail. May God hold you in his arms.

[@MishMacky]

Those are all fibromyalgia symptoms as well. The difference is fibro doesn't get progressively worse over time.

[@missbee980]

I have this 4 am thing too. I shake uncontrollably. If anyone knows, what is this?

[@JanetWark]

WHY DOESN'T THE MS SOCIETY SUPPORT OUR ONLY OPTION FOR REMISSION??? DR.RICHARD BURT THE PIONEER OF HSCT, HIS FIRST BOOK "EVERYDAY MIRACLES" IS A MUST READ.

[@diddydee65]

Boy can I relate to these... esp the cognitive issues and vision...and then there is my drunken slur and drunken walk...

[@thefaithchapter5646]

wow.. that's crazy you guys. I went to the er two weeks ago due to double vision, he said there's nothing wrong and that I need to be in a mental institution.. however my symptoms has gotten worse day by day. I'm on my 6th neurologist since I've moved back from grad school in Savannah. all of my doctors have said that I'm crazy or stressed out, they don't care. until recently I went to see a chiropractic who first day found where I was being targeted from it's in my neck or cervical spine, holy crap he should that that part controls everything my symptoms are. he also mentioned that my brain isn't getting the right singles to do the things I use too. so basically I have to learn how to walk all over again. I strongly believe I have MS.. in my heart I know that's what it is. he said it looks like it is but he's willing to figure out whatever it is.. so why can't my neurologist figure this out instead of saying idk what's wrong with you, or are you stressed out.. if someone ask me that one more damn time I'm going to scream at the doctors office.. it's so crazy that I had to go see a chiropractic for him to figure the first step out

[@dissolutezza1142]

Did you ever get it resolved? Hoping to see an update from you...

[@Hannah-hq9xs]

Hi, Ik this is from a long time ago but my chiropractor also was one of the reasons I got digianose with MS! I had gotten blood work and everything for my symptoms by said nothing was wrong so he told me I should go to the hospital and get looked at he knew something was wrong. And sure enough my CT scans had a lot of lessons in my brain so they belive me at that point.. luckily I was able to see an amazing neurologist that same day who got me started on treatment the day after... my symptoms have gone away and now on a long term. I hope you've gotten help for it becuase scince this post

[@thefaithchapter5646]

@@Hannah-hq9xs yes!! I am fully healed.. praises all go to Jesus Christ

[@thefaithchapter5646]

@Sunset_Poison I am so glad that you were able to get diagnosed. That’s truly an blessing

[@Hannah-hq9xs]

@@thefaithchapter5646 oh I'm so glad 💞

[@elle5091]

This was a wonderful video explaining symptoms of MS. I'm going to share with family and friends so they can understand more clearly. Thank you

[@fran-gx3kf]

Kate asks very good questions like she did on "Less Common Symptoms".

[@pauldunne5230]

Sounds like long cov. I have sharp pains in my arms and hands, Tingling in fingers, fatigue, tinnitus and back pain in the thoracic area and left shoulder, all since five gee roll out in my area.

[@janetnyilas6385]

Thank you, I get tired of people telling me I look great and that I am better off than someone else who has MS.

[@marcayres8567]

So helpful many thanks💚🇬🇧🌱

[@patearl4036]

Excellent /First though, where can we find this elusive caring health care team?

[@sarahdixon6011]

In the UK. My neuro, set up a team of MS nurses who are fantastic. I'm lucky I have the NHS. I've had MS for 33 years 1st symptom at 17.

[@mewho1]

What I need to know is how to get so-called "health care" professionals to listen and respond at all when patients report their MS symptoms. Instead of being evaluated properly, I am mocked and psychologically abused by so-called neurologists and denied treatment every time I speak out. My suffering grows more severe with every passing day and whenever I reach out to the only neurologist I'm allowed to see, he deliberately blocks access to any medical intervention, delays or refuses MRI scans, and always claims his actions are a "misunderstanding." He always blames his underlings, like receptionists, for failing to be a physician. How can I possibly continue to live in this situation?????????

[@joannabanana702]

I'm going through the same thing

[@wingshooter1967]

Don't be afraid to file a complaint. Go on that Dr. Website and log a bad review. Tell everyone you can think of about your experience and tell them who you believe the problem is. Like they say the squeaky wheel gets the grease. I'm on my second neurologist most have bad bedside manners. Also let them know that you're going to complain.

[@thefaithchapter5646]

that's wow... what should I do you guys someone please help me. winter star

[@JessicaCannon]

mewho1 I've always living alone because my family loves to throw me under the psychological Vs my medical neglect

[@JessicaCannon]

Stephanie Weathers Does anyone live in nyc

[@Bob-Horse]

Very interesting. I was diagnosed with severe fibromyalgia a few years ago, following a horse riding accident. I broke part of my neck around c5 and c6, and it impacted on my spinal cord. I can no longer work and get chronic pain, chronic fatigue and cognitive dysfunction, brain fog. I spend about 2 or 3 days a week bed bound almost. I searched KZbin as I have been getting periods where I get shakes or tremors all over my body. These have become more frequent over the past years. This put me onto this MS video, and I am struck how similar my fibromyalgia symptoms are to MS. Maybe I should see my doctor about the shakes, in case it could be MS. What do people think?

[@annarehbinder7540]

It’s not uncommon to have both.

[@Bob-Horse]

Anna Rehbinder - really, that’s interesting, thank you.

[@annarehbinder7540]

Andrew Got both myself, my experience has led me to research on clemastine ( works and can be prescribed for allergies in high doses even before you have an actual diagnosis drawback and pro it reduces the plaques) also check out research on vitamins ( pluriel B) especially niacin, thiamin and be sure to get methylcobalamin and mythyl folate rather than ordinary b12 and ordinary b9 as well as omega 3 and magnesium as well as turmeric plus ginger. For the inflammation I’m taking 500 mg ginger and 500 mg turmeric x4 a day plus roughly 1000 mg x4 a day . Fibro has an inflammation in cns.

[@JanetWark]

WHY DOESN'T THE MS SOCIETY SUPPORT OUR ONLY OPTION FOR REMISSION??? DR.RICHARD BURT THE PIONEER OF HSCT, HIS FIRST BOOK "EVERYDAY MIRACLES" IS A MUST READ.

[@sheberry2895]

I had a spinal injury (t12) and some of the symptoms after surgery are similar as well.

[@gregoikonomakou136]

I have managed all motor symptoms I have had all these years, either vision problems like diplopia... except fatigue...I can t used with it...I have so much energy inside me and go to waste somedays.I feel like a machine with the button "off"...For me, that is the most horrible symptom and it is invisible really crap for the environment unfortunately...I hope to stay safe and strong all of you

[@louishoolaeff1088]

My battle with Multiple Sclerosis and Cancer... Christina refused chemo and radiation. She eliminated MS and cancer with natural methods. Her story is on our educational health site.

[@edenlaboy2238]

I have never been diagnosed but I have had all these symptoms for some years and they keep getting worse. My body hurts all the time. It started with my bowels. The doctors said I had gastritis. Then I would experience numbness. They didn’t give me a explanation Now it’s just pain. Stiffness .Sometimes it’s hard to even hold a pen to write. Moving around is so difficult. I literally have to come up with a game plan to get up. At times it’s hard to walk. Depression has took over because I’m not use to living like this. All I do is sleep and go to work. And I struggle with that daily .

[@Hannah-hq9xs]

I'm 22 I was just diagnosed with relapsing MS three days ago so many things were missed by other blood works and doctors. I had numb and tingles for a month on a constant this was my second time this year it had happened and also could barely hold a pencil and my knees were stiff. I've had server vertigo last year and double vision but it was never put together to be diagnosed. 3 days ago I went to the ER and they got blood work done and rushed me to get a CT scan where I was told 30mins later they believed I had MS, then was rushed to see a neurologist next door and he said it would be beneficial to start steroids to battle my MS attack, I'm on my 2nd dose and the numbness has started to go away, ill be getting more blood work done, Xrays and RMI scan soon. I try to be brave but it's been a lot of information and I feel like I'm a reality show.

[@edenlaboy2238]

@@Hannah-hq9xs May I ask what was abnormal about the bloodwork

[@Hannah-hq9xs]

@@edenlaboy2238 nothing wrong with the blood work that time but the CT scan showed up lesions in the brain, they are wanting to do a bunch more blood work and scans to make sure they haven't missed anything or nothing new shows up I guess 😅

[@Hannah-hq9xs]

Update, I've gotten treatment for my MS and a long term plan, I suggest you get a referral for an neurologist, MRI or CT scan prob be beneficial to you

[@JanetWark]

WHY DOESN'T THE MS SOCIETY SUPPORT OUR ONLY OPTION FOR REMISSION??? DR.RICHARD BURT THE PIONEER OF HSCT, HIS FIRST BOOK "EVERYDAY MIRACLES" IS A MUST READ.

[@talapeanutbutter4250]

I’m a 57 yr old female who’s been asking her primary care dr for 10 years and have been told I’m too old. I have chronic pain, potty problems, eye changes, foggy moments, fatigue but I’m an insomniac, swollen and hurting belly, etc. I’m type 2 diabetic on short active insulin twice daily, long active insulin, metformin, JARDIANCE, and now Trulicity. I’m going to be tested for Autonomic neuropathy once my insurance authorizes it. I had to stop working 10 years ago.

[@LydiaJohnson]

Having MS takes a toll on you even though you seem to be doing ok. Many things cn be going on that are not visible to others.

[@sarahdixon6011]

Doesn't it? I've had it 33 years YAWN isn't the word.

[@eleanorparks5055]

Love Roz! Heard her at a CANDO MS event in Atlanta! Thanx Roz!

[@iwnunn7999]

Don't know if I have it or not but have some strange things going on: a feeling of vibration down my spine that can't be seen, waking up in the middle of the night and not able to go back to sleep, and a crazy one that's not mentioned in anything I've view... crazy, vivid dreams that seem to go on throughout the night, every night without fail. I've had dreams where I wake up from and when I go back to sleep resume the same dream. Blurry vision in my left eye. Haven't experienced any pain yet.

[@sandyboehm8190]

I have these symptoms too and my doctor has sent me to various doctors with still no idea what is causing these symptoms. I think it’s MS. Do you have a diagnosis yet please?

[@iwnunn7999]

@@sandyboehm8190 not yet. Trying my best not to become a perpetual patient on perpetual drugs.

[@teramorera7349]

So well done! Thank you so much for your contribution. My personal case is unique - strictly upper body - and symptoms (of spasticity, eye rolling and oromandibular dystonia) are rapidly worsening. It is only now - with daily spasticity - that I am desperately searching for answers. I will keep educating myself on line and continue to pray for direction! One coping skill I use is biofeedback breathing. Worth doing! Search cardiac coherance.

[@abrahanchavez8352]

She's right the physical part is what changes I used to walk down 79 th almost daily till I found out I have MS & was unable cause there have been difficulty getting around it sucks But God put me on earth like this I'm 26 years old my Birthday coming up I'm turning 27 on tuesday march 22 it sucks cause people look at you different & Being so young MS doesnt control me

[@clairejohnson6522]

HAPPY BIRTHDAY to you.I hope you had,or are having, a good day ,depending on where in the world you are.Best wishes.

[@abrahanchavez8352]

@@clairejohnson6522 Thanks

[@jerseygrl5]

Do yourself a HUGE favor and try diet before getting the diagnosis. Once you get the diagnosis, should you lose your health insurance, you are uninsurable. I highly recommend "The MS Recovery Diet" by Sawyer and Bacharach and "Healing Multiple Sclerosis" by Boroch. These books changed my health and my life. The diet is not easy but it's better than being sick all the time. I was diagnosed 7 years ago and today I feel better than I have in decades and completely without pharmaceutical drugs.

[@bethany2nirvana]

Diane I know what you mean about the hard heart pounding. I can hear it in my ears too at various times of the day. I am not diagnosed but I have all the symptoms of MS and have been intoxicated feeling for 4 years now. Wish there was help for me. hope you are doing well.

[@larasmith5044]

Its so important to Rise Up and remember you are stronger then the disease, you were given this life because you are strong enough

[@sarahdixon6011]

Thanks Lara I agree. Have had MS for 33 years and am still very much alive and enjoy my life differently. It's part of lifes rich tapestry.

[@maryjs4878]

@@sarahdixon6011 are you taking medication for your MS?

[@sarahdixon6011]

@@maryjs4878 Yes for symptom amelioration (I love that word) I missed the boat for disease modifying stuff. I have had it so long , there was no reliable diagnosis or MRI when I had first symptoms.. I hope you're well Mary.

[@maryjs4878]

@@sarahdixon6011 sorry about that. Awww i am well thanks. I hope you're well.

[@maryjs4878]

@@sarahdixon6011 too

[@ahc1957]

Very good discussion. Thank you

[@oreocookie3185]

I was dx 13 yrs ago…I finally got an appt with a doc who specializes in MS…I have a lot of invisible symptoms, people just don’t get it…I just keep pressing in. I’m an RN, i retired early because of cognitive issues…..change of seasons seems to be worst for me…experiencing some extreme fatigue.

[@ellyzajuneliwa8705]

Im 19 and was diagnosed with MS. I badly need help. I was advised to stop from schooling and I need to be hospitalized but we don't have money yet so I stay at home, isolated from the family. And as days passed the symptoms i have been experiencing is getting worse.

[@jaredferguson2999]

isolated? Why?

[@ellyzajuneliwa8705]

@@jaredferguson2999 MS is an autoimmune disease in which the body's immune system attacks it's own tissues. In other words, the people with MS is more vulnerable in catching viruses than those with none. Anyway, I was misdiagnosed by my doctor. I just had stroke. Thankfully, I survived that.

[@jaredferguson2999]

@@ellyzajuneliwa8705 A stroke? That's awful. I hope you're in better health

[@heide-raquelfuss5580]

Look up The Coimbra Protocol. Written by a Brasilian neurologist called Dr. Coimbra in Brasil. You can contact him. Bless you girl.

[@ellyzajuneliwa8705]

@@heide-raquelfuss5580 thank you

[@mandischauffler]

Thank you! In regards to the pain my Dr says MS doesn't cause pain! WHAT? I just got diagnosed I've been misdiagnosed as having Crohns Disease even though my biopsies were negative. And the MSN hug was saidbtobbe asthma or GERD

[@MsSarab79]

My cousin was recently diagnosed with MS. I'm always worried and I feel as though educating myself does help to some degree.

[@townsendvictoria1853]

Dr Okolo herbal medicine formula can cure your cousin from MS My Dad was once diagnosed with MS with the help of Dr Okolo herbal medicine formula which we use to cure my Dad completely from MS

[@townsendvictoria1853]

Email ([e-mail])

[@auebetv]

Brain Fog...AGgghhhhh its the biggest pain of all.

[@Explorer0719]

What do you do when the doctor want Tate your symptoms serious? This is affecting my quality of life!

[@noo8160]

Change the doctor find better one

[@slegendary7719]

Very great interview, Thank you both.

[@Angel4217]

the first time my leg gave out I was 17. by 23 I had been diagnosed with CFIDS. By 33 Ive had numerous bouts with gait and back/hip problems, with urge incontinence & IBS. By 45, vision problems, Brain Lesions, vestibular migraines, vertigo, cognitive/executive/speech impairments, continued chronic fatigue/pain, pyschomotor agitation,& Fibromyalgia. MS was not ruled out. Have'nt needed to use cane in 2 years until recently. Think its time for a second opinion considering extensive history.

[@freedomfighter481]

No the very very first problem is getting drs with enough experience to diagnose ms. I'm on year 3 and about ready to call it

[@jackienoone5890]

i agree when i saw a neurologist i was belittled and my symptoms downplayed because of a history of depression,,, very demeaning,, i havent been diagnosed with MS but i have some symptoms which are concerning me,, i need to get a MRI

[@herncrowd7]

I'm kinda in the same boat, but I have seen two Neuros and two other Drs. and 4 trips to the hospital, I have 5 spots in my brain in the last 6 years, 3 MRIs I also have 90 percent of all symtoms of Ms, I've been told by one doc my spots are to small to dx me, it sucks. Feels like Drs don't give a rip, pain and many other things is a daily stuggle, haven't been able to work for a year now, live in a fith wheel, lost everything except my wonderful husband thank you Lord. Good luck to you Cindy

[@frederikmeire]

@@herncrowd7 get an LP that and your MRI can only conclude if you have MS or not

[@Fern_Yaz_Pets_Music]

Why not try maybe search on KZbin lifestyle and vitamins for MS. Lowering carbs and sugar and processed foods. Many videos.

[@jenneper]

I was diagnosed with lupus 8 years ago but over the years I've had several neurologic episodes that are getting progressively worse. Non stop neuropathy and numbness, loss of balance, eye issues and "starbursts" with night driving, nystagmus and headaches, but I also had meningitis. . But I'm being sent for an mri finally. So we'll see. It's been a long road. I'm so tired.

[@ella-enchanted66]

what did your diagnosis end up being?

[@jenneper]

@@ella-enchanted66 I'm still getting worked up! I just had a lumbar puncture last week. They're thinking either cns lupus or ms

[@ella-enchanted66]

@@jenneper wow i’m glad you’re getting help! how come they waited 3 years? i think i may have ms, mri next week but still unsure bc i don’t have some of the main symptoms like vision problems or falling and it all started in 2018. the doctor gave me a bunch of stuff it could be lol. fingers crossed for us!

[@jenneper]

@@ella-enchanted66 I got a new neurologist! Plus I had other medical issues that were more pressing.. had 2 surgeries, etc. My last neurologist wouldn't do the spinal tap. He began treating me for nothing more than a migraine with auras. Then I got covid and lyme after I went on a road trip so all treatment and testing stopped. Then I got really sick! Muscles non stop seized after I got over those viruses. Ugg..

[@jenneper]

@@ella-enchanted66 also, it takes so long sometimes! I'm so sorry you're going through it!

[@UncleGo67]

Thank you for this Channel , I just confirmed that I Do have MS. Hope to find out More From is Channel. So I may better Understand my new Diagnosis.

[@katharinelockhart3189]

It is really frustrating when a doctor says you look so good. You must manage it well!!!

[@sarahdixon6011]

Not a gigantic compliment?

[@barblee1733]

My friend took 12 years to be diagnosed. My daughter took 7 years to be diagnosed with lupus. I was originally diagnosed with fibromyalgia but more symptoms and my gp thinks I have ms. Interesting times ahead

[@johngram1866]

contact doctor akhigbe for your cure with herbal medication

[@johngram1866]

message him on whats app

[@mswarrior932]

I've had MS 40 years now!! I have bad tingling in my hands!! Don't know if it's the MS or osteoarthritis or carpal tunnel I've had 18 years or the disc protrusions pressing on my spine in my neck!!

[@danieltav3981]

People must get a lot of information about treatments for deal with the invisible symtoms, specially the fatigue.

[@olepetterjohansen1567]

Very informative video. Most people are not familiar with this. Thanks for sharing the video on the the You Tube.

[@adropofgoldensun46]

It would be beneficial for everyone with MS to get this book - The MS Solution" by Kathryn R Simpson. I did and went to a Naturopath and am getting better :)

[@yolanda423]

Thanks, excellent explanation, I will recommend this video for anyone that had MS like me.

[@annettemccoy4046]

I'm lost, my dad died in January, last month diagnosed with server rapidly evolving MS. I neve knew how bd this is. I'm waiting treatment. Getting worse everyday. Clearing my dad's house it's killing me. I need a holiday on a beach just for a couple days would do😊🏖️

[@openyourmind3763]

I am sorry. I hear how overwhelming that is. Have you considered hiring an estate sale company or people to help you clean and sort? It may be worth the cost. I am seeing a rhuematologist next month and a little scared of what my symptoms mean. There is always so much to do with working and family and the maintainence of life. But we are the only ones that can take care of ourselves. I hope you have good support and wish you healing and empowerment.

[@MinnyMann]

I’m so sorry. I hope you can take some time and take care of yourself and slowly get back stronger💪🏻

[@annettemccoy4046]

@@openyourmind3763 thank you, trying to come to terms with the illness. Have clerence coming fir the last of dad's things. That really helped. I hope you get through and we stay strong, give ourselves tlc xx

[@annettemccoy4046]

@@MinnyMann thank you. Coming to terms and improving my diet, getting medication soon. Never know should help xxx

[@suzs9939]

My worst symptoms lately are that I am losing my sight. I know that I am going blind and that scares me the most.

[@robynglover8186]

Suzanne Ambrose Me too prayers

[@Cory_Springer]

One eye? See an eye doctor, if it's optic neuritis your vision will come back for the most part. Pain behind the eye is also common with optic neuritis.

[@googleuser8341]

Suzanne Ambrose please tell me what your going through! my husband is losing has sight but have hoped it would come back.

[@staciketchum9110]

Suzanne Ambrose I sorry, Suzanne. your in my prayers.

[@beehappyalways]

Same here. Vision loss & massive fatigue have been the worst of my symptoms.

[@hotwaterintub1]

I don't have seizures anymore (I don't think I do anyway) but many times like this time I woke up feeling like I had one. Some days I get so very tired all the sudden. Couple of days ago I had like bursting light in my eyes over and over.

[@sbee985]

bursting light in eyes can be related to gel in eye coming free. It is normal part of aging my dr daughter told me mine was iPosterior Vitreous Detachment. It is being monitored. If I look to far left I see a white crescent. She said it is still there but the mind adjusts and vision is corrected. Hope yours is okay and you get checked out.

[@Miffny]

Helps to understand a bit more of what I along with so many others share with MS. x

[@YaYaPaBla]

Is light flashing in the eyes a symptom, I was diagnosed with Bells Palsy earlier this week. But I’ve noticed some other symptoms/issues before having this attack. I’m worried it’s more than what the ER dr diagnosed me with. I’ve been having trouble holding my bladder, but never had these issues before.

[@baierlvids]

Very informative video, but it's not captioned. I was just diagnosed and have deaf family members that I would like to show them this video, but I can't because it's not captioned :(. Also deaf people can get MS too!

[@giftboutiq]

I’ve been questioned when I park in a handicap spot all the time because they say I look so good. They have no idea how many hours it took me to prepare to go out. When I get that question now, I just say well, you don’t look ignorant. I know that’s shocking because on top of having MS, I have to deal with ignorance and uneducated people out there. It’s a double edge sword...if I look sickly to appease other people, then I’m not living my life to its fullest. Feeling good about myself is my medication.

[@songmakerdragon2393]

Where I lived before (in a large city) I would often take the bus, and sometimes transfer to a 2nd bus for a longer trip. sometimes it would take a couple of hours to get home. Normally, on a crowded bus I wouldn't have a problem standing the whole time, but one day I was feeling fatigued and *especially painful, so I was extremely relieved to find an empty seat. You should have seen the dirty looks I got as the bus filled up and people had to stand. Just because I'm younger and look healthy, doesn't mean I don't need the seat!

[@trishcovich1923]

Do you believe that ME is actually MS? It's incredibly word for word similar. I've been diagnosed for nine years with 'ME' Thanks for your time. Great talk

[@pamelaclark6603]

so I have the symtoms of ms my doc did a mri cause I have a spot on my brain and I have peripheral neuropathy in my arms do u think I should get a spinal tap cause he said the mri was negitive

[@WhatInTheSpaceTime]

+Pamela Clark Just curious -- What was the "spot"? I mean, why did they deem the MRI negative if they found a spot? And yes...get another opinion. Many people are misdiagnosed or undiagnosed for years.

[@princeofpurple]

+Pamela Clark have they mri'd your cervical spine? that is where my spots are. as i love to say-they scanned my brain and thye found NOTHING! lol better than an LP

[@janineborja1277]

The guilt experienced by us is also unreal. It's a viscious cycle.

[@livingthelifeiwant]

Very informative. Thank you for sharing.

[@hmmcinerney]

I have Fibromyalgia and ME. The symptoms sound almost identical except for bladder control. I can really relate to the invisibility and 'you look fine' . My latest hope is that I plan to visit Dr Marianne Teitelbaum in NJ. I found her during my usual net trawl and she has some videos here on KZbin. She has had success with MS. Her area is Ayurveda medicine (sp?) . I have no connection to this doctor and I am just throwing this out as this suffering needs to be addressed. Best to all.