Do I have the WRONG DIAGNOSIS?! | Trip to LONDON

It felt so amazing to finally be listened to and validated by a doctor. I wish all doctors could spend this much time with their patients. So many people are misdiagnosed every year and this can have a massive impact on their treatment and quality of life. I am so grateful and hopeful that I am now on the right path, it's taken almost 5 years but it now feels like things are actually beginning to make so much more sense now. It's going to be a long journey but your support means everything to me ❤️🥰
Also thanks so much to Bob for coming on her day off and my amazing mum, who is battling her own health struggles at the moment ❤️❤️❤️
xoxo
BUY MY MERCH: www.fightwithamy.shop
THESE ARE MY ONLY ACCOUNTS:
TikTok: @amyepohl www.tiktok.com...
Instagram: @amy_pohl www.instagram....
Facebook: @amyepohl1 / amyepohl1
Fan Mail:
Amy Pohl,
61 Bridge Street,
Kington,
HR5 3DJ,
United Kingdom
More links:
beacons.ai/amy...
Music- royalty free from Epidemic Sound
#fightwithamy #chronicillness #diagnosis #london #doctor

[@TheWheelBry]

I've been diagnosed with FND (my symptoms are like paralysis from my waist down but it changes hour to hour/day to day(I'm a wheelchairuser)) but I'm sure there's something else going on too. The symptoms really make me feel like I'm losing it! I'm so glad you've managed to get some validation and some more information🙂 hope you're recovering well from your surgery ❤

[@catrionabain1663]

I refer to that kind of drunken tiredness as my overtired toddler stage. I have the zoomies but brain, mouth and limbs don’t talk to each other so I slur my words and walk into things. Constantly covered in bruising because of it!

[@TheGothicMother]

I suffer from this about twice a week lol. Especially in the heat we've had!

[@kattaylor5297]

I love the relationship between bob and your mom. Love you!! You make me keep going some days. Thank you

[@madsxx4643]

amy thank you so much youve boosted my confidence so much being in a wheelchair just like yours!!!

[@madsxx4643]

omg i cant beleive you actually saw this!!!

[@eleanorredfern4433]

Absolutely howling laughing😂 i thought you looked drunk before you said “im not drunk btw i’ve not even had a drink” and then I hear your mum shout “we have”😂 im sat drinking my wine thinking its funny😂🙄 “here’s to my two brain cells Denise” *clink*😂😭😂 Glad you had a successful day🎉 and I really hope your op goes well in the morning!!x

[@itsjessbrophy3113]

I am so glad ur getting Awnser Amy London is so busy as well I was misdiagnosed with fnd 3 years again akd I think the thing is that disturbs don’t know enough about fnd so they just give out the diagnoses without doing proper test but it looks like your future is beginning to make a lot more sense now I love your makeup and dress btw love your KZbin videos ❤️❤️🧡🧡🧡🧡🧡

[@bikerjax1933]

I have ms and fnd. I really don’t think I have fnd too it’s nice to see you’re journey get more answers. Good luck!

[@lizhyink5636]

Spoon Theory, ( a way of describing chronic fatigue/ pain, often connected to neurological and autoimmune conditions). Best wishes in the search for information and strategies to function and fashion a life that includes comfort when you have low energy. Safe travels along the way, including luck at avoidance of long covid, another form of acquired autoimmune/ neurological illness.

[@byebyeoldusername]

This is literally a mood

[@TheGothicMother]

So glad Bob could come xx

[@teilalethbridge2318]

I call this stage of tired my “Drunk Tired” stage and people don’t usually have any clue what I mean!😂

[@clareclark6535]

punch drunk I call it

[@ginamariewood3101]

You are so beautiful 🥰 thank you for taking us on this journey with you sending you so much love and prayers 💕🥰🥰💕

[@MzMontana]

Man this is strange I was watchi g your vids thinking I actually think this isn't FND. I'm just a RN though... I can't wait to see the end of this vid...

[@MrsMnM79]

Idk if it's Mom or Bob that has the pink blue & green patchwork dress. I'm in love with it! Where did she get?

[@autumnk4860]

Out of curiosity, why does New Doc say you "can't" have FND? (As I write this, you are recovering from surgery...take your time) . Lots of love and wishes for a quick recovery. And thanks for sharing your incredible story with us all. ❤

[@amyepohl]

a lot of my symptoms can't come under fnd and the tests he did on my legs showed that there's definitely something else going on

[@byebyeoldusername]

Watching this on like 2 times speed is wild

[@amyepohl]

😂

[@itsjessbrophy3113]

Does he think they can be both treated and hopefully you can walk again in the future 💙💙💙❤️❤️🧡🧡😊😊

[@kylanibowman7540]

Good luck Amy

[@beatrixrolinson9706]

Good luck with ur surgery xx

[@cupcakelover]

♥️♥️♥️ love your videos

[@fioregiallo]

Omg I had no idea we were so close in age!!! That's so cool. I can't drink either. Caffeine fam lol 💚

[@Deafjustin]

I am care of you I do

[@mais00]

I’ve got fnd and rn I have no control over my legs 😭

[@missbetty4738]

I can't walk

[@mais00]

@@missbetty4738 I’ve been in the same situation, have u got fnd as well? When I 1st started getting symptoms I could barely walk and then I collapsed and couldn’t walk without having tremors in my legs, I still get them all the time tho so it’s not fully gone away, rn my legs just keep collapsing so I can’t walk properly and it’s hard to breathe when I’m waking

[@A_bunch_of_homos]

@@mais00 I have FND and I had a period of nearly a year, when my legs kept giving out. Now I have a lot of leg issues, but I don't fall as much which is good. But you never know when a new symptom is gonna pop up, or an old one will come back

[@mais00]

@@A_bunch_of_homos yeah I’ve had a few symptoms, when I didn’t know I had it I started to get really dizzy but when doctors done tests they couldn’t find anything, a few days later they diagnosed me with a stomach problem (which is fine now) and then after a few weeks I started to not be able to walk properly, after 3 months of all of this I got diagnosed with fnd after I collapsed at the top of my stairs and couldn’t move from the neck down for a week, I was 9 then, Ik that I’ll probably always get symptoms but it’s rlly hard for me cause I had a dream of being a gymnast and I was quite good at gymnastics but now I can barley walk, I’ve got depression bc of all of the stuff that happened to me in the last few years, I’ve also got diagnosed with 6 medical conditions and quite a few family members have died since I was 9. I’m wishing you all the best and I hope your fnd gets better.

[@A_bunch_of_homos]

@@mais00 I definitely have quite a few symptoms, and I was actually diagnosed with FND because of my tics (and how they presented) but that also explained some other symptoms like pain, atonic seizures and legs giving out (which I originally thought were both tics) I currently haven't experienced paralysis, but considering how my FND has been mainly targeting my legs, I won't be surprised if I do sometime in the close(ish) future

[@lilyj7436]

I am in Lodon

[@lozzywatson0351]

I genuinely thought you were drunk till you said it was your last 2 brain cells😂😂😂also hope you guys had fun in London I’m going for the first time in October I’m scared but excited🥰

[@amyepohl]

it’s an amazing city 🌆

[@madsxx4643]

i went for my first time over easter and im going again this summer it is sooo amazing i was so scared the first time i went because it was so busy but i loved it so much!

[@mais00]

@@madsxx4643 I live quite near London and I sometimes go there for hospital appointments and to go to a musical but yeah it gets quite busy near the main landmark areas but that kinda depends on what day it is, if it’s rush hour on a weekday then it’s packed with everyone going to work/coming home, at the weekends it’s obviously busy as well cause there’s loads of people shopping and everything, if u ever go there again depending on how far away u live I suggest to go in the time between rush hour otherwise there’s loads of traffic

[@madsxx4643]

@@mais00 thanks for the advice :)

[@mais00]

@@madsxx4643 np

[@michaeldodds3321]

hi

[@kayleighthomas9702]

Bob look different then tik tok

[@pamesposito9070]

🥰🥰🥰🥰🥰🥰

[@rorohdaib3129]

😍😍

[@clareclark6535]

Aren't horse shoes supposed to be lucky? I call that punch drunk its a weird feeling

[@Me-th1nv]

I'm early!! Yay ❤️

[@HelloThereImLynn]

[@AnneMaritM]

👍🙂❤️

[@markrutledge564]

why not just put the spare tire on the car?

[@amyepohl]

We don’t have one with our car as it’s an adapted vehicle and most cars in the uk don’t carry them anymore

[@Issa2cool4u.]

Early!!💗

[@your_girl_lailah245]

I'm sooo early rn

[@vibingjulia7317]

First

[@alisimau1325]

do u walk??😳😳