Doctor Explains Glioma Brain Tumor

[@corrinecoxwanderingartisan5961]

I was diagnosed with stage four Glioblastoma Muliforme on September 28 2021. Five days later the tumor was removed and I am cancer free and doing better than everyone expected. I pray that you have a neurologist as dedicated and talented as I. Bless you.

[@braveheart_1027]

How old are you

[@tariqsami1223]

I am amazed that you are still alive to this day, sorry if it sounds harsh, but not so many are lucky. My mother left us due to glioblastoma 2 years ago. May God almighty have mercy on her soul 😔

[@gurbaxsingh6314]

@@tariqsami1223 sorry for your loss.. can you tell me what symptoms did she have?

[@sahanprabath451]

I want to contact you. Can you help me? Plzz..

[@RisingPhoenixNK]

They were able to remove all of the tumor ?

[@megans.5729]

My husband was diagnosed with a grade 4 glioblastoma at the age of 30 this year. Said he only had 6 months to a year to live. They said his tumor would grow back during radiation, or 6 to 9 months during the chemotherapy. His tumor was the size of a walnut, and they got everything out. He has just undergone 11 cycles of chemotherapy. We are on month 9 since this journey first started and so far, every brain scan no signs of tumor or regrowth has been shown. The doctors are even using the big "R" word which is never hardly used with this cancer. This is an extremely scary time in our lives where we feel like we can't take a breath. But God has been with us and he continues to work miracles through all of this. I thank him everyday for another day with my husband. I've experienced the grieving process while my husband sat right there with me alive and well. This is no joke and I wouldn't wish this apon any other human being. This is a cancer that I feel is swept under the rug and really does need more attention and research.

[@mamtagupta9734]

Aapse bat ho sakti hai

[@mikebakke1490]

I was diagnosed Apr 1, 2023 with a grade 4 GBM. My tumor is diffuse in the right frontal lobe so no surgery or radiation could happen without affecting my quality of life. Temezolomide, an oral chemo was used for 12 months. Good and bad from that. I also have had 34 Avastin infusions along with anti seizure meds (Keppra). Just over 17 months survival and other than fatigue, I feel really good now. No changes in any MRI since original diagnosis. Both my oncologists (neuro and medical) say I am a walking freak of nature. 😊 I'll take what I can with no formal prognosis. I also wear the Optune device on my head most of the time. To all my brain tumor warriors still fighting, stay strong my friends. 🙏 God bless.

[@Littlejohnny-marston]

I shouldn’t be worrying this much for my own good. For 3 months I been having head pressure, sometimes pain, mild bloodshot eyes sometimes and hairloss? 90 percent of my family genes have hairloss. But I’m only 14 I have some slight change vision two I’m seeing a doctor I’m very afraid.

[@krisyalareta901]

Hello, my brother has just been diagnosed with Brainstem Cancer grade 4 and I suppose it’s Glioblastoma. Will it be okay to connect with you in other platforms to discuss more? Thanks!

[@Littlejohnny-marston]

@@krisyalareta901 I’m so sorry to here that. And of course. I have instagram, snap chat, discord and telegram

[@Rameshwar.P.Meghwal]

Can we connect? My mom has low grade glioma in left temporal lope, some doctors are not advising surgery and few are. So it is so confusions state

[@LuthienAlexandra]

My grandpa was diagnosed with glioblastoma in November. He died this January, on the 23rd. Unfortunately, he could not undergo surgery due to his age, the risk was too high. We tried radiation, but he only did 5 sessions before his overall condition worsened. The tumor grew extremely fast and it got to frightening proportions. I am completely heartbroken writing this. I am only comforted by the fact that even though he was weakened, unable to walk or speak, he was perfectly aware of everything around him. We shared beautiful moments. Up until a day before he passes he even had a huge appetite, ate everything on his plate by himself. And when he left, he did so peacefully, surrounded by the people he loved and who loved him back. He touched so many hearts and left so many people in tears... To everybody battling this, from the bottom of my heart I wish you all the best! May God bless you with strength and courage! May you be surrounded by kind and supportive people! May you be blessed with the healing you need and deserve!

[@xunak0o9]

😔😔😔 My Father RN 😞

[@LuthienAlexandra]

@mariel cabusas I'm so sorry. Perhaps my story will help you cope. When I think of my granpa, I try to tell myself that perhaps this is the way things were meant to happen. He worked all his life, and in his final 10 years or so, he was also struggling with anxiety and insomnia because he was too focused on all the work he wanted to do. After he got sick, his anxiety went away because work didn't matter anymore. So I got to watch as he became more and more detached from all wordly things. He didn't care about the farm or about money, none of it. In the end, love was all that mattered. He went in peace. It was almost like he chose to go. The only regret he had was knowing how sad and heartbroken we all were. I know he is in a better place now.

[@LuthienAlexandra]

@Jhgfj Hhffg he was on medication for anxiety, and recently, his doctor had put him on a different treatment. At first, we assumed he was experiencing some side effects from that. He was often confused and stumbled upon his words, couldn't find the word he was looking for... later on, he began to have trouble recognizing people (he would need a few seconds before he recognized some people, but this never happened with those who were close to him. He always knew us). He lost his ability to read (he used to be an avid reader). It was like he couldn't focus. Later on, he began having difficulties walking. But until his last day, he was perfectly sane. He kept inquiring about how much firewood we had left and how much money we were spending on him (he was concerned we were spending too much on his behalf). We looked at my wedding album and he knew everyone in the pictures, even expressed sadness when he saw a picture of my cousin's boyfriend (they had broken up after my wedding and granpa was sad because he liked him). But please know that these symptoms may vary according to where the tumor is located. I know of another man who died of glioblastoma, and his symptoms were completely different. He retained all his body functions, and instead, it was like he had lost his mind. He walked around naked and, on one occasion, even ran away from the hospital because he believed he needed to take his car to the mechanics.

[@LuthienAlexandra]

@Jhgfj Hhffg I don't think the blow to the head worsened the tumor, but it could have caused additional damage that, coupled with the tumor, ended up killing him.

[@LuthienAlexandra]

@Jhgfj Hhffg I don't know. I'm not a doctor and I don't know his medical history. Perhaps it was too late for any treatment, maybe you discovered the tumor too late. My granpa was diagnosed in November and the doctors said he'll live until February if he's lucky. They were very skeptical about his survival chances. They did give him medication and he also did radiation therapy, but in the end it was all for nothing. He ended up dying even sooner than the doctors had predicted. So, in his case, even if he did have treatment, it didn't help

[@jimpalmeri5428]

My father passed away January 4 23 from grade 4 . He was 80 and had surgery 4 months prior to his passing. To all battling this may you have strength and courage to fight. Stay well and my god bless you.

[@gurbaxsingh6314]

Sorry for your loss.. can you tell me what symptoms did your father have??

[@FirstnameLastname-tp4zw]

Our Mom lived 68 years with no doctors! I watched in a month as her health declined. An MRI revealed we needed 15 miracles. She went out on Morphine Feb 8th 2024 She started by vomiting in the mornings, lower body weight loss, (legs like skeleton skinny), dizziness when trying to stand. it's like it just sucked her up. Headaches, I helped her restroom, sponge bath her and she loved me all the way to the end. She never needed help doing anything in life. It's up to you, but I think everyone has these and treating cancer is like throwing fuel on some fires. I think she knew something was wrong but did not go to doctors. Mom was a trip, just grew and smoked a bunch of weed too. Prob slowed it down. ❤🎉

[@Jason_556]

@@FirstnameLastname-tp4zwsorry for your loss. Cancer is so evil! Your mom sounded like a cool lady. 😊

[@FirstnameLastname-tp4zw]

@@Jason_556 THANKS dood.. The time I spent really does not feel like a loss. So whatever family you have. Get off the phone and squeeze them and hug them. Let them know how much you love and pay attention to them. When they go they will be with you forever cause whatever your mind can come up with...you can hear them answer you. In your sorrows you can hear them answer you. You can feel them comfort you because you talk and spend the time speaking about all the things in life. We only gain in death. No more pain, sorrow or suffering. We're shooting for heaven no later than the next life!!! We spoke about what Galaxy's we could possibly meet up at as well. So build a worthy ship like the teacher Jesus ment. No that he will save us but we will save our selves. We sure shot our arrows to not miss the mark and hope you do too. Death is the great equalizer 👍

[@Renot911]

My brother had a brain stem glioma when he was 12 in 1992 before they could operate on it...or at least successfully. He passed away Nov. 1 1993. He was in one of the first stem cell trials. Im So glad they have come so far with the surgeries and are able to remove them now ❤

[@chrissy9153]

Currently waiting on pathology results for a loved one who has glioma

[@mattmurdock7444]

My mom recently passed from a grade 4 rt thalamic glioblastoma. She fought for 20 months w rad/ chemo/ no surgery. The end was extremely peaceful , just slept and slept and then…. took her last few breaths and it was over. No pain at the end whatsoever is my impression.

[@avijitsengupta4857]

May she rest in peace, my brother.😭

[@Paladin-mt1hl]

My mother died 3 weeks ago from this cancer too. She didn't last 20 months tho. Only 1 week after discovery.

[@mattmurdock7444]

@@Paladin-mt1hl yeah mine passed on sept 13. We had 20 months to talk about anything and everything, it was great!! We laughed a lot throughout that time and lucky us we could say goodbye also!!! So sorry for only one week!!!

[@Paladin-mt1hl]

@@mattmurdock7444 lucky you. way to rub it in

[@mattmurdock7444]

@@Paladin-mt1hl sorry sorry, I did not mean it that way.

[@veronicafleitas412]

A friend just died of glioblastoma, she was just 47, thsnk you for your explanation of types of glioma

[@_Babu_TD]

My father diagnosted GBM Grade 4 at the age of 70, two weeks back. On 22- Oct-2023. Underwent surgery on 2nd Nov removed 3 tumer from the right temp lob. Waiting for radiation on next week, by Nov 20th onwards. Please pray for us.

[@doctorgrewexplainscancer1251]

All the best to him!

[@VirtualCave]

Best wishes !

[@sureshreddy0001]

How is your father now ?

[@_Babu_TD]

@@sureshreddy0001 expired on 4-Feb-2024.

[@Morningside-ik4jc]

My father also has a brain tumor, we don’t know what grade it is but I’m hoping and praying it isn’t serious. Praying for your father and your family during this difficult time. God is great 🙏

[@Paladin-mt1hl]

My mother died from grade 4 after 1 week of diagnosis 3 weeks ago. Went for a biopsy and had a seizure afterward and was in a coma for 5 days until she passed away. Whenever I read the word Glioblastoma my heart sinks with sorrow. It was so sudden and unexpected.

[@oneman7638]

My dad got diagnosed with this about a week ago. We're not sure if he will live 1 more month or pass away and they delayed his chemo because they don't have space for him (hes on medicaid)

[@Paladin-mt1hl]

@@oneman7638 If he can have treatment then there is hope that he will live some time longer. In my mother's case, once diagnosed had already spread over her entire brain and at it's last stage so they couldn't do any treatment. Usually with treatment they target the specific site and shrink it down to by some time, but when it has spread there is nothing they can do. This cancer is just awful, it is a silent killer. I hope you get to spend time with your father and talk to him before he does pass away, I was not able to say goodbye to my mother because she went into a coma and died 5 days later.

[@SR_392]

My dad had it, he did surgery after one year fighting it. It grew again. The people that are struggling keep ur head up

[@akshaypawar9248]

may all live a healthy life.

[@markgriffith2473]

My brother got diagnosed with glioblastoma acre having seizure ( the seizure also broke his toe broke through the skin I didn’t see my sister did ). She call 911 and he got diagnosed sometime that night and was too sick even to doe a biopsy ,stay a couple days in hospital took him home.to hospice care and died 4 days later. .

[@stefanosvirzi]

thx for explanation , since i got a type3 removed one week ago, i feel like i have to know more

[@sravanik2603]

My husband diagnosed with glioblastoma in August 2022. Underwent surgery, radiation and chemotherapy. Now he is on adjuvant temozolomide therapy

[@UPTKRISHNABalaji]

In which hospital?

[@madzia4587]

How is he doing now? I hope he is doing better. My bf also had it and underwent surgery. It's been 10 days after surgery and I can't stop worrying. I need a positive news I think. That somebody had same situation and after surgery it's okay.

[@shrustiacharya4014]

Hi, can you pls tell which doctor u consulted and hwz ur husband?

[@nola694]

Subscribed thank you for getting straight to the point

[@lichanikhum748]

My father is suffering from glioblastoma grade 4 everyone pls pray for him 😢

[@Mairamudasir2801]

How is your father now

[@promisemadepromisekept.7575]

Hey, how is he doing now?

[@DannyUnchained]

my dad has it , surgery done in october 2023 and it just came back.

[@kalpaniwikramarachchi2223]

🙏🌷

[@Cave_man_Cave]

My father age 70 was diagnosed with glioblastoma 1 month ago. Removal not an option due to its position, conditions aggravated very rapidly. Biopsy confirmed stage IV, not even time for any radiation therapy as my father already laying in bed unconscious for the last 5 days now. These I believe are the last days.

[@Ocean1688]

Glioblastoma stage 4 - for a 74 year old woman - she had 95% removed and is currently on her second week of Chemo and radiation. Not sure what will happen but are there any stories out there regarding the elderly? Thank you.

[@doctorgrewexplainscancer1251]

The average age at diagnosis is 64. But many patients are in their 70s. More important than the age is how functional patients are. Some in their 60s are mostly sedentary and minimally active - they do not tolerate treatment well. While some in their 80s are in excellent shape and tolerate treatment really well. I hope that helps. All the best to her.

[@iamsunflower-fu3lk]

My sister was diagnosed with low grade Glial Neoplasm. The doctor wants to start her on chemo

[@MarkBrennan]

My 56 year old partner has a Butterfly Glioma. Only diagnosed just over 3 weeks ago, but the oncology/neuro team have said that due to its size, they are unable to operate or give him radiotherapy/immunotherapy. He is in hospital waiting for the care team to find a nursing hom. They have given him 'weeks to short months' I don;t know why I watched this. They haven't even given it a grading, but assure me that if there was something they could have done, they would have. The Dex has reduced the inflammation so is more comfortable. They were going to do a bioppsy on Monday, but I was called into the hospital last Wednesday to say it wouldn't be going ahead as he is too unwell and that it was pointless putting him through it. In the lead up to all this, we thought he had severe depression. The doctor assured me that had I pushed him to seek treatment a couple of month earlier wouldn't have made any difference.

[@alphaarsenic8323]

I'm sorry to hear that. May he find peace and I wish you and the rest of your family well

[@Dravasky]

🤗🫂🤗🫂❤❤

[@crystalzhou2166]

my good friend's daughter, who is also my daughter's best friend, 15 yr old girl was diagnosed with stage 4 on brainsterm. it has been 6 months. I don't understand why doctor keep saying 'no more than 1 or 2 months' every time seeing family while the test result every time shown neither Metastasis nor enlargement. the girl had proton radiation treatment but the size of the tumor has no change. they even found the 6cm tumor is turning to be hollow. last time she was sent to ICU was because the the side effect of the lunge virus treatment. they found a shade on MIR thought it's a Metastasis but turned out to be a 'super rare' case of treatment side effect. Again, no organ's failure and no sign of Metastasis. the girl was in pain of the side effect of Hormonal drugs used for brain pressure control. I start loosing trust on this doctor. He is suppose to be the best in Texas Children Hospital.

[@TLR1219]

My husband was diagnosed with GBM at 40. Lasted 2 years. A nightmare

[@atiqussaleheen]

my father died at glioblastoma stage for last February 17,after surgury he died. mitotic rate was 12/10 .i am blaming the doctor .kindly reply i want to mail you my fathers medication. I know he wont be back but i want to know as a son if i could do anything.

[@NafeesaWaqas-vd6ym]

Doctor can surgery for 4 stage ?

[@michaelarkalis6172]

I have a brain stem JPA which has been removed multiple times and reoccurred 5 times I’ve u dergone 3 craniotomy’s 63 rounds of radiotherapy and 6 different cycles of chemotherapy with little to no help. I also have 3x VP shunts institute

[@vincentkingsdale8334]

Being in the brainstem, has it affected your breathing? Hope it gets cured

[@RejsMedOs]

Is there ever examples of grade 2 gliomas being removed and not recuring?

[@kusumkhandelwal7027]

Same question

[@oneman7638]

I think no.

[@lindaanderson1921]

To anyone who has Glioblastoma or known someone that had it. What Blood Group were they? I am trying to see if their is a link between blood group and developing Glioblastoma.

[@wintersnow]

This might be a dumb question but is every brain tumor reffered to as a glioma?

[@ooaaveehoo]

Glioma refers to tumours arising from glial cells, which are a type of cell that form the support network for the actual nerve cells in the brain. Other types of brain tumours include meningeomas arising from arachnoid cap cells and medulloblastomas arising from embryonal cells. Most of the malignant brain tumours in adults are gliomas.

[@zekaay]

This categorization was charged in 2021 and everything starting from Garde 2 that does not have the IDH mutation now counts as glioblastoma.

[@cjm38]

Will a head CT scan see a glioblastoma or do you need an MRI?

[@-spinel-7257]

CT scanning may cause small tumors to be missed. A small low-grade glioma that is missed with a screening study may eventually progress to glioblastoma.

[@chandrikazion6233]

How long can a grade 4 patient survive.. Whether any chance to give any advance treatment to survive.

[@doctorgrewexplainscancer1251]

The best available clinical trial data suggest grade IV patients typically survive 14 months. However some portion (10% or so) can survive much longer.

[@chandrikazion6233]

@@doctorgrewexplainscancer1251 thank you

[@rhenalyndonayre1625]

@@doctorgrewexplainscancer1251 helo doc, may i know what are these symptoms.of gliomas? thankyou

[@joselara371]

@@doctorgrewexplainscancer1251 tbh u answered so many of my questions thank u so much

[@trashmancesar9891]

@@chandrikazion6233how are u

[@harikrishna8889]

How long can a grade 4 patient survive

[@shiney94]

Generally less than a month

[@simontrucker3624]

@@shiney94 Well, I should have been dead 11months ago then! And if I hadn't been sent to Hospital for a scan, which then resulted in a succesfull resection 2 days later (9 December 2020), I very well might have been. But, after said surgery, followed by combined radiation/chemotherapy, then 6 more months of chemo. here I am, doing fine. And after my last 3 monthly MRI in late August, there is no regrowth, everything looks stable.

[@shiney94]

@@simontrucker3624 thats grt news :)

[@impressiimpressi1287]

@@simontrucker3624 my dad is also diagnosed with the same disease, what should I do Where did your treatment went?

[@maskedninja6883]

My mother fought Grade 4 for 3 years now, and finally passed

[@Shannu183]

Do grade 1 affected patients survive normally after surgery

[@Lisa_Marie938]

I had a stage 1 astrocytoma when I was 6. They also removed part of my temporal lobe. I had to learn how to read, write and talk again. I don’t have any neurological deficits but I do have epilepsy because of the surgery. I can live normally. I finished school, went to university, have a drivers licence and I am a nurse. At the end of last year, it has been 33 years since I had the brain tumour removed.

[@hashimbaba5599]

My cousin went through surgery in sep 21 and now the tumor has grown again...😢

[@georgevarghese5887]

How long can a grade 2 patient survive.. Is there any future technological advancement which can help to increase the survival chance ..

[@doctorgrewexplainscancer1251]

Some grade 2 patients are long term survivors (well over 10 years). Most research in to new therapies now are focusing on specific molecular markers within the tumor that can be targeted by highly specialized drugs. There are many clinical trials in a searchable database here: clinicaltrials.gov/ct2/results?cond=Glioma&term=&type=&rslt=&age_v=&gndr=&intr=&titles=&outc=&spons=&lead=&id=&cntry=&state=&city=&dist=&locn=&rsub=&strd_s=&strd_e=&prcd_s=&prcd_e=&sfpd_s=&sfpd_e=&rfpd_s=&rfpd_e=&lupd_s=&lupd_e=&sort=

[@georgevarghese5887]

@@doctorgrewexplainscancer1251 thank you

[@waynekross72]

Hey friend i am happy today as i get cured from this disease with natural medicine you can also have a try if you are in this same situation

[@nimishakumari3704]

@@waynekross72 please suggest that medicene

[@waynekross72]

Is an herbal medicine which cured me he can also cure you

[@maxgainey3116]

I am 24 years old. May have low grade glioma or autoimmune disease. .8 cm right mid brain. I am terrified. Can I expect to live a long time after this?

[@kameshwarmishra9268]

Yes bro

[@trashmancesar9891]

How are u bro

[@judycn2101]

i was just informed that one of my friend's child who is 14 yrs old has a Glioma, in China. There's no treatment in china! they suggest to go US or Germany! I have no idea about this disease, it's my first time hearing this name. So i quickly check in youtube and saw you talking about Glioma. what should they do?

[@alexgonzalez7395]

Go to India and they have the best surgeon there. Get mri first and take it out. Most likely is a jpa since he is young. My son got jpa and got surgery. He fine right now. He will be ok but do it ASAP. I will pray for him.

[@dr.jayasreesknowledgeshari535]

@@alexgonzalez7395 can you please give me the doctor's address in India to treat glioma

[@dr.jayasreesknowledgeshari535]

@@alexgonzalez7395 Thank you so much

[@sunderdreams]

I am also facing this problem with my 5years old son.

[@toufiqueahmed5753]

Artemis hospital gurgaon or max hospital saket Delhi

[@humansolarian]

I have a friend i met at hospital who was there for seizures induced by stressors... they told me now that this thing has been detected. They havent told anyone not their mother, and their really scared to even go to the doctor and hear the options and stuff. Im doing research on it, and they absolutely NEED to go and get that surgery... i need to be with them at the doctor so i can ask all the scary questions. My fear tho is for a low grade glioma is it treatable? Because i dont want to give false hope, rather to embrace and live it up if the answer is tragic... but of course we must first fight!

[@humansolarian]

We haven't even started "life" were so young.

[@doctorgrewexplainscancer1251]

Yes, low grade gliomas are treatable. Typically the first treatment is surgery to remove the tumor. Additional treatments like chemotherapy or radiation may be added after surgery depending on the results of surgery.

[@tiaraluhn1745]

My son was diagnosed in 2019 with a Diffuse Glioma in the thalamus with a BRAF V600E mutation. It is not able to be removed due to its location. He underwent 30 days of proton radiation and has since just been repeating scans every 3-4 months. I feel like everytime we ask the doctors what his life will look like they ignore us and never answer the question. He is now 17 and we are just wondering what he has ahead of him. Can you help us have a better understanding?

[@tiaraluhn1745]

It's a grade 2 glioma. Forgot to mention that.

[@Paladin-mt1hl]

They probably don't want to upset you as they are uncertain.

[@macgyver03ga]

Our 5 year old son was just diagnosed with a diffuse Astrocytic Glioma Grade II in his right thalamus. He is suffering from Ataxia (speech, and balance). He's also gone cross-eye in his left eye (6th nerve sensitivity according to the ophthalmologist) They too said it likely can't be surgically removed due to potential "collateral damage" because of where it's located. He starts his journey of 84 weeks of Chemo tomorrow. They're doing 10 weeks of Vincristine & Carboplatin then, he goes on 4 week maintenance doses with 2 week breaks between. We're hoping for the best. I hope your son recovers! Prayers and Best wishes.

[@leonardsdiary3258]

hi Sir/Mam, i am very tired with this desease,, can anyone help me to this..... everyday headache

[@Fredcat123]

I pray for you for healing, recovery, and good health. Amen.

[@Eshieshusband]

Hey are u alive

[@sushantkhanal6168]

Can u plz tell me difference between glioma And glioblastoma

[@Ocean1688]

From what I understand, glioblastoma is always stage 4 - the cancer tumor has grown out many tentacles that reach into the healthy cells of the brain. In this case, surgeons can only take out about 95% of the tumor in surgery. Meanwhile the tumor still grows in the brain on average about 1.5% a day.

[@Jason-hz5zc]

My 12 year old niece got this. In the back of head in brain stem. Waiting for treatment. Not sure which grade. Is this very serious? And can it get better? Her eyes are not fully straight and sometimes feels weak etc.

[@jarey9222]

My brother had dipg I’m praying for your niece and your family during these times

[@anilgowda8158]

One of my relative accidentally diagnosed with Glioma with no symptoms(Biopsy is not done and Doctor said grade is not identified without biopsy) suggested us to wait and watch, whether it's grow or not?? Is there any possibility cure on its own??

[@doctorgrewexplainscancer1251]

No - gliomas are not cured on their own without treatment. I recommend following up with the doctor. Sometimes watch and wait is the most appropriate path.

[@duniyadaribyaj7083]

@@doctorgrewexplainscancer1251 My 10 Years Daughter Also found tumor in brainstem incidentally with very negligble symptomps. She is stable for last 6 months and We are doing MRI at evry two months to evalute weather tumor progress or not. and even tumor is also stable. we are also advised for wait and watch stretagy as surgery to brainstem is very risky. Is it right thing ?

[@rupunzelmorningstar2536]

@@doctorgrewexplainscancer1251 can operation be a wrong step in GBM grade 4

[@Teachbench]

Is low grade glioma, WHO grade 1(Dysplastic gangliocytoma, Lhermitte duclose disease) are cancerous or non cancerous ? plz reply

[@vincentkingsdale8334]

Best bet is to ask a neuro-oncologist

[@Myakica160]

Hi. Mother is diagnosed with glioma in pons. The 1st MRI in 12/20 showed lesion in pons but then dr forgot to follow her. Yesterday she went on MRI for check up since she became weaker in legs and arms. Shower 1x1 tumor in pons central. What are the options? Neurosurgeon said no operation is possible because of the place of the tumor. Okay. But what about treatment? Dr said that even biopsy is critical. WHAT CAN I DO FOR MY MOTHER? We are in Croatia. Dr made a mistake for not following you from 12/20. Please help us. Where we can go and where we can send our tests and mri scan! Thank you very much

[@dandum302]

Hi,I hope your mom is better now,my mom has also been diagnosed same as your mom,the same symptoms and the doctors said they can only do chemotherapy,some say they were cured only by chemotherapy,I hope that helps..I hope you answer and tell us how is your mom now

[@Urvashi618]

My mother was diagnosed with brain tumor on her left frontal and she got operated nicely she is absolutely fine but after biopsy we came to know that she has astrocytroma, grade3, idh1 mutant.. so what's her survival rate?? And doctor has suggested for radiation/ chemo so I am scared whether it's safe or not as she is fine now she is looking like she is back to her normal life and but but biopsy is showing grade 3, idh 1 mutant

[@Urvashi618]

@Arjun Singh what's your brother case

[@sergeybelov1136]

My auntie had operation,they did biopsy Grade 4,IDH-1 wild type,GFAP-Positive,ki67-25%,P53-Mutant, 1.Can diagnosis be wrong or any mistake can be from biopsy?she feels fine(no symptoms) 2.How long she can live? Thank you

[@rupunzelmorningstar2536]

Yeah .. go for re biopsy.. to some better place

[@sunderdreams]

Yes.take review

[@PVDofc]

Ki67 25% for grade 4?

[@Urvashi618]

My mother was diagnosed with grade 3 idh-1 mutant what's her survival rate ??

[@deansmyth7646]

Anyone a Neurologist here, can answer; Do all Gliomas eventually grow and kill? (Especially if untreated.)

[@laraoosterom1823]

Not a neurologist but I study medicine. We have learnt that basically all braintumors cannot be cured. However, grade one gliomas can be cured, the other grades of gliomas are eventually lethal.

[@rpor2389]

برادرم تومور گرید ۴ عمل کرد وبعد از ۱۵روز فقط روی تخت افتاد بینایی وشنوایی را از دست داده وبا شلنگ در معده به او غذا میدهیم زخم بستر هم گرفته چکار کنیم ۳۸ ساله است

[@bertiebassett7024]

anyone tried thc oil

[@gloriareyes4520]

My husband died last December 😢

[@maskedninja6883]

My mother passed away from Stage 4 Glioblastoma February 22nd 2022

[@rupunzelmorningstar2536]

Sad my mother is suffuring the same ,

[@maheshare1567]

My father passed away from stage 3 (high grade glioma) march20,2022

[@joannafreedom7111]

I'm so sorry to hear that you lost your mom, my father has stage 3.

[@lovenishudhwani5681]

How much time survived

[@braveheart_1027]

I lost my mom b coz of GBM .....july

[@mulusewsh.1516]

A month ago i am informed that my mom diagnosed with likely high-grade level Glioma after she have checked brain MRI scan...some of the symptom was unable to speak and then now she is experiencing confusion, weak muscle, slight loss of vision. Is there any Herbal foods that could boost her up from current condition...Any other medication tips are also welcomed. Thank you in advance

[@marijavckova2526]

I hope your mom is doing well. I would recommend to her to eat more leafy vegetables like broccoli and lettuce.Also very much beetroot and fresh juices for example (beetroot with carrot and apple).Also fruits like lemons , oranges, green apples and many more.Actually fruits that don’t contain high level of sugar(typically glucose) and fruits that are sour.She should avoid ANYTHING THAT CONTAINS GLUCOSE like banana , honey , grapes , chocolate , dry fruits ,black-eyed pea , chervil . Also food that does not contain white flour such as bread .She should also drink much yogurt and dairy products.

[@mulusewsh.1516]

@@marijavckova2526 Thank you for your priceless advise!, it is my pleasure and i will do it accordingly.

[@Livehappy199]

My love was diagnosed with brain tumor, she was told that tumor is between grade 2 and 3. What does that mean

[@doctorgrewexplainscancer1251]

Sometimes it is difficult to categorize gliomas into a single group because they have some features of 2 different groups. It will be up to the doctor to asses and make treatment recommendations accordingly.

[@calebhollen5316]

@@doctorgrewexplainscancer1251 I'm confused on the classification. I was told that all GBMs are IV. I'm still here after 50 months with stage IV. Could I have had a miss diagnosis?

[@dionneo6305]

@@calebhollen5316 ❤❤❤that’s awesome that you’re still here

[@calebhollen5316]

@@dionneo6305 ty... 52 months but who's counting

[@weemaz00]

​@@calebhollen5316how are you still alive?

[@evanz5984]

Ganglioglioma and gliomas are same

[@Ayush21471]

My father was 1 year fight with gliobastoma but he never fails he was died 30jun 2024

[@jeanettecollazo9616]

It's a death sentence

[@IbrahemMangulamas]

@mary ann

[@7grhpsyfuck272]

i think i have stage 9 brain cancer. 91'

[@rishiprasadm3931]

From india, my father 64 with gliobllastoma 75% removed any chance of recover after radiation? Can we cure it completely with radiation?