Doctors Can't Explain Our Rare Conditions | BORN DIFFERENT

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truly

truly

Күн бұрын

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In this Born Different special, we meet individuals with incredibly rare medical conditions that have left doctors baffled and unable to diagnose.
Producer: Tom Buckman
Editor: Olivia White
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Пікірлер: 524
@lala_lakeypoo
@lala_lakeypoo Жыл бұрын
Jay (the girl who went blind) is absolutely hilarious and I love her outlook on life and how she's handling what happened. ❤ Her Momma is also an absolute angel for being there to help her baby in her biggest time of need.
@rachaelurey8983
@rachaelurey8983 7 ай бұрын
Love her!!!!!
@kookootrix1978
@kookootrix1978 7 ай бұрын
What's the name of her channel?
@mamaduck5981
@mamaduck5981 7 ай бұрын
Only very special parents get to care for such a special little angel. She is so beautiful.
@rebeccapaul6455
@rebeccapaul6455 9 ай бұрын
I cannot imagine being a teenager and losing vision. Jay is a different kind of strong. Must be so frustrating to suffer from an array of conditions that can't be diagnosed.
@malloryknox1637
@malloryknox1637 Жыл бұрын
Nova reminds me of a tiny little fairy just minus the wings. What a beautiful child.
@reality_is_the_key
@reality_is_the_key 8 ай бұрын
I was thinking the very same. She's almost sprite-like.
@iwantmy_sk844
@iwantmy_sk844 7 ай бұрын
@@reality_is_the_key Yes (better)! ..."Sprite-like"!
@GUISTY-MILEIDY
@GUISTY-MILEIDY 6 ай бұрын
Quando vi também me pareceu uma fadinha linda
@אדווהבירן
@אדווהבירן 2 ай бұрын
😀 בדיוק מה שחשבתי מהרגע הראשון!!🧚‍♂️🧚🏻‍♀️🧚
@sallybourque3591
@sallybourque3591 9 күн бұрын
Shes the sweetest
@pamelaharris9318
@pamelaharris9318 9 ай бұрын
I have been diagnosed with pulmonary hypertension interstitial, lung fibrous and right heart failure. I've out lived what they originally told me.❤
@KassieDavid
@KassieDavid Ай бұрын
Amazing! ❤
@sarahanngreenwell
@sarahanngreenwell Жыл бұрын
That precious little girl is absolutely beautiful! Every single one of us in beautiful. No matter how our bodies are shaped or the color of our skin. EVERY SINGLE ONE OF US IS BEAUTIFUL!!
@SomeBuddy777
@SomeBuddy777 Жыл бұрын
AMEN ✝️
@cathykrueger4899
@cathykrueger4899 Жыл бұрын
There is a perfect soul inside all of us.
@sarahanngreenwell
@sarahanngreenwell Жыл бұрын
My baby was in Nicu for 10 days. I cannot imagine 101 days. Nova and her parents are so strong. Thank you for this video. It was absolutely wonderful ❤️
@khonkhosilelihle7414
@khonkhosilelihle7414 Жыл бұрын
True ey.
@erikaalmeidavega78
@erikaalmeidavega78 Жыл бұрын
My little lady was 8 weeks premature, & spent a combined total of 11 weeks in the NICU/SCBU, & every single day I wake up & thank the world that she's a relatively healthy, happy 'typical' 12 year old!! She has been diagnosed with GDD, Dyspraxia & severe anxiety, she didn't speak till she turned 4, but she's definitely made up for it in the past few years, lol! We really are super blessed. I hope all is well with your precious one too @SarahAnn Greenwell? Sending you love! xx 😃❤️🙏
@herne4504
@herne4504 Жыл бұрын
aw hope ur baby is doing better now D:
@lynetteking3062
@lynetteking3062 Жыл бұрын
She looks like a doll baby 🤗💜💜💜
@ragevsraid7703
@ragevsraid7703 Жыл бұрын
she is so beautiful 🥰
@sarahgarrison9006
@sarahgarrison9006 Жыл бұрын
I agree, she's beyond cute
@jennierose1224
@jennierose1224 Жыл бұрын
That's exactly what I thought. 🥰 She's adorable
@denisesantos-cucalon4293
@denisesantos-cucalon4293 Жыл бұрын
One of the cutest humans I've ever seen ❤️
@plan4life
@plan4life Жыл бұрын
Or even a baby doll. She is ever so sweet.
@asiaj1
@asiaj1 Жыл бұрын
Nova is precious and such an inspiration thank you to her parents for loving her the way you do and sharing her with the world ❤
@plan4life
@plan4life Жыл бұрын
Nova doesn’t look deformed, she looks beautiful, perfect. What a sweet little thing!
@mr_mack_indenver7807
@mr_mack_indenver7807 Жыл бұрын
She is a doll.
@ladylaois8184
@ladylaois8184 Жыл бұрын
I agree
@Lunayuna2229
@Lunayuna2229 Жыл бұрын
She looks so cute🥺🥺🥺🥺
@Lena.818
@Lena.818 Жыл бұрын
Yes
@herne4504
@herne4504 Жыл бұрын
yeah !! she’s soo cute:D
@lisacolledge7624
@lisacolledge7624 Жыл бұрын
Jay......girl, you are bloody amazing. I know you're at College, but you have a wicked sense of humour, an absolute mound of guts, determination, and bravery, and I can see you being a stand-up comic in Hollywood! I think you'd make a fortune. No matter what direction you choose to take, you take my admiration and love with you. ❤️
@anchorproductions121
@anchorproductions121 3 ай бұрын
Who's Jay
@lisacolledge7624
@lisacolledge7624 Жыл бұрын
🌹🌹🌹🌹🌹🌹🌹🌹🌹🌹🌹🌹 for Nova's mum. You, darling lady, are such a beaming advocate for your daughter. As she develops, she'll begin to understand what it feels like to have a deep source of pride in someone. I think you are a wonderful mum. The love is clearly in your heart and your eyes. Not at all implying dad doesn't, but you just have it all on another level. Nova is divine! I could squish and squash and love and cuddle her till those proverbial cows come home!. I wish you every single ounce of luck for every day ahead.❤️🥰
@cathykrueger4899
@cathykrueger4899 Жыл бұрын
It’s obvious that the dad loves the mom as well as Nova. This is empowering.
@mellieface1909
@mellieface1909 Жыл бұрын
She is so stupidly cute... like, it's ridiculous how adorable this sweet child is. I'm so glad her parents found a way to bridge communication with her and meet her where she is at- and look at her learning and thriving and being a total sponge to the environment and stimulus around her! Incredible. With her support needs met, she is going to have a happy and successful life; whatever success looks like for her.
@ninong7638
@ninong7638 Жыл бұрын
Jay is such an amazing, funny, strong, positive person! I am in awe of her!
@InvestigatorV
@InvestigatorV Жыл бұрын
The girl who’s blind has such a positive attitude towards life and she’s funny! bless all these people !
@leleprtk
@leleprtk Жыл бұрын
When she said she was ready to become Daredevil and fight crime 😂
@mjarboesdf
@mjarboesdf Жыл бұрын
Oh my goodness Nova is cuteness OVERLOAD! She's such a doll baby! There are so many amazing medical possibilities that we have now days and we will have even more as Nova gets older! Could doctors possibly make her a jaw? Iv seen tons of kids of all ages have jaw transplant surgeries, including a three yr old little girl that was born with out a lower jaw. She received facial reconstructive surgery making her a lower jaw out of ribs, stretched nerves and muscles. Her life has drastically improved and she looks amazing! There are tons and tons of stories of both kids and adults receiving amazing life changing reconstructive surgeries and alot of the kids look just like sweet Nova! 💟
@tamelakoboldyoder356
@tamelakoboldyoder356 Жыл бұрын
Nova is absolutely beautiful! She doesn't see her challenges, she loves being her and what we would view as a challenge she will take on like an adventure and continue to grow and thrive and conquer whatever is presented next. Go Nova Go!
@muddikissez22
@muddikissez22 Жыл бұрын
I was also diagnosed with POTS using a "poor man's tilt table test". I go in August for the real thing to confirm the POTS or an autonomic disorder. Thankfully, mine isn't constant and I'm able to do most things most days, but knowing I could drop at any moment, no matter where I am or what I do is hard. I lost my self-trained service dog, Riker, in April of 2022 to lymphoma. He was 13. I only took him out - in that capacity - on bad days, but knowing that I had him at home and on bad days when I needed to go out, was a huge comfort that I no longer have. I'm looking for another dog, but no one will ever be my Riker. It's tough, but ya keep going. Just keep swimming, ya know?
@malzimus
@malzimus Жыл бұрын
Please strongly consider watching videos by Dr. Ken Berry!! He has over 800 and you can search his name and medical topics and conditions. He addresses many and explains how they can be helped through metabolic and dietary changes. The comments sections are absolute gold for what people are helping their bodies heal from! All the best! 🙏
@LisaNelsonSnugglebunny
@LisaNelsonSnugglebunny 3 ай бұрын
I deal with pots Syndrome but I take a blood pressure pill and beta blocker, I didn't have to do a tilt table test, but I used to pass out a lot, I know the feeling of getting up from a sitting position and I used to get dizzy and feel faint, I also deal with svt, both medications help me manage it really good & life style change, I was in my late 50's when I was diagnosed
@MeganKugs
@MeganKugs 23 күн бұрын
I hope you’ve found a new buddy to love and live with who helps you. Riker will always be your baby but I’m glad you have an open heart for another pup. I hope your life has been well since you left this comment 💜.
@daisi4925
@daisi4925 Жыл бұрын
She’s beautiful. Look in her eyes they tell a story. You two are wonderful parents who have a tiny sprite. Bless you and yours
@hannakinn
@hannakinn Жыл бұрын
Nova truly is an adorably cute child. She looks like a darling little elf like child. I can't imagine that anyone wouldn't find her to be exceptionally cute. I doubt anyone would be afraid of her looks ever. I'm glad it's becoming easier for her to communicate. I hope at some point she will be able to speak and to hear better, but if not it will be fine. With ASL and all of the great tech devices available she'll be able to communicate well. I think people are drawn to Nova because she's so cute and personable, looks like she has that special something that some people have.
@cindy8031
@cindy8031 Жыл бұрын
Her little face is so sweet with her big brown eyes.I just want to hug her
@alh2116
@alh2116 Жыл бұрын
Nova is beautiful !!! Sweet little girl!!! I can't imagine what you went though it breaks my heart. God bless you!!!!
@autrefemme
@autrefemme Жыл бұрын
She is literally one of the cutest little girls I've ever seen. She looks like a sweet little fairy like Tinkerbell! 🦋. She's amazing!
@ediitzz9741
@ediitzz9741 6 ай бұрын
I love how Nova went to the cameraman to sniff her flower, she is adorable.
@All5AJz
@All5AJz Жыл бұрын
I would never trust another soul to care for her if she were mine except these two people. God really test us for our capabilities in loving someone who comes with expensive issues along with the trauma of all that has for this priceless kinda human. Miracles are in front of you both daily so please remember that. Much love someone's ole Nanna 😘
@tamelakoboldyoder356
@tamelakoboldyoder356 Жыл бұрын
Jay you see more and recognize a lot and are more in tune than most who have 20/20...you are awesome and very inspirational
@heatherjjsmith9698
@heatherjjsmith9698 2 ай бұрын
Jay and her family are absolutely beautiful, Jay is so uplifting and strong. Her attitude is amazing and funny
@Dieppaloveplants
@Dieppaloveplants Жыл бұрын
As a mom of a special need son God send special angels to special mom And dad God bless your little family 💚💚💚💚
@lisachatham8690
@lisachatham8690 Жыл бұрын
Nova is wonderfully perfect. She is her own little perfect and that's AWESOME!!! All the people in this video are their own version of perfection and not one person can take that from them. Elenore Roosevelt said " No one can make you feel inferior, without your permission" Please don't ever give anyone permission because you are all perfect just the way you are.
@barbaraspieler1222
@barbaraspieler1222 Жыл бұрын
Your daughter NOVA IS ABSOLUTELY GORGEOUS JUST THE WAY SHE IS!!! the good lord above has put her here as she is for a reason..she will be the 1 PERSON WHO WILL BRING A CURE FOR WHAT SPECIAL SHE BROUGHT TO THIS WORLD!! she had also brought so many people together with LOVE.. AND EDUCATION.. and will not only turn minds but will turn people in every which way possible in this world... she is BEYOND SPECIAL..BEAUTIFUL.. AND LOVED IN EVERY WAY POSSIBLE...MAY YALL ALL BE BLESSED TODAY AND EVERY DAY 😘🙏❣️🌺❣️🙏😘
@animefairy3134
@animefairy3134 Жыл бұрын
Sweet little Nova 😍😍I think these have been reuploaded as a compilation. I remember watching the Nova section a couple of years ago. She's five now, they aren't as active on social media anymore but you can still see a more recent post. she's grown so much!
@ladylaois8184
@ladylaois8184 Жыл бұрын
Novas very beautiful! And she’s dressed beautifully. My Grandaughter had a cleft pallet. She’s just finished age 22 all the op’s. Last one was literally barbaric jaw broken I’m 9 places. She’s just finished uni And doing great. Nova is at the start of her journey, With wonderful parents the skies the limit.
@jkiely85
@jkiely85 Жыл бұрын
Jay I cried with your story happy and sad tears… you are beautiful inside and out… ❤❤ keep that positive energy
@maresha
@maresha Жыл бұрын
What an amazing family. And such a cute little girl. I wish you all the best and i think it’s very brave that you have shared this personal story.
@semoneh3331
@semoneh3331 Жыл бұрын
Nova is such a lovely little girl, very smart & so sweet, her fantastic parents who are doing an awesome job and they should feel so proud of themselves and their sweet little princess
@SissyDoesSims
@SissyDoesSims Жыл бұрын
nova is literally so cute eeeee my fav part was when she let the camera man smell the flower 4:19 almost like "here you gotta smell too"
@sonjam314
@sonjam314 Жыл бұрын
What a strong beautiful little girl you are Nova. God bless these parents and little Nova. I pray her pain will be minimal and surgeries as well❤️❤️❤️❤️
@sngray11
@sngray11 Жыл бұрын
Nova is so precious! 💗 All of the children and teens featured here are incredible. 💞
@terraalbritton6405
@terraalbritton6405 Жыл бұрын
She looks perfect, but watching your child struggling with breathing, hearing, speaking, and eating must be so hard. Her parents are so loving, kind, and confident.
@kookootrix1978
@kookootrix1978 7 ай бұрын
Yes, so many people in the comments are going on and on about how "cute" she is, without acknowledging her health problems. It comes off a bit patronizing.
@maureentuohy8672
@maureentuohy8672 Жыл бұрын
God bless this mother and father. They have a road ahead filled with hard work, heartbreak, as well as triumph.
@dawnmason9558
@dawnmason9558 8 ай бұрын
I suffer from severe postural hypotension I have a German Shepherd Dog called Loki that is my medical alert dog. We have trained him since puppyhood to “boop” my face & my husbands left knee to alert that my blood pressure is falling. Once on the floor or bed, he lies across my abdomen and use his weight to raise my blood pressure to my head so I come round quickly. If I do pass out, he is being taught to “ sing” for Dad. He barks a lot as GSDs do so we are teaching him to howl ( sing) so my husband knows I am out cold. He has alerted to me a LOT over the past 3 years plus my husband has COPD & heart problems so he alerts to my husband too without training to his problem. Loki has the run of the house at night but he sleeps under my bed exactly under my head. I can’t take him out with me as he is too bouncy and pulled me along the floor when he saw a Cat! He grew up with a cat so it was totally out of the blue. I rarely go out on my own anyway so he has that time to be a Dog not on duty.
@helencabell6298
@helencabell6298 Жыл бұрын
Jay is such an incredible young woman. She may be blind but she has more vision than a lot of people with 20/20 vision.
@rebeccapaul6455
@rebeccapaul6455 9 ай бұрын
Nicely said.
@JulianaYankee
@JulianaYankee 2 ай бұрын
Nova is BEAUTIFUL BEAUTIFUL lil fairy Thank you for not giving her to the state to care for her. were all born different and unique in some way or another please be patience with her shes just a baby. Believe it or not any other woman that cant have a child would love to have this beautiful lil girl
@ande100
@ande100 Жыл бұрын
Conquer your world by storm and firery joy, little Nova! We will gleefully adore and support You on your journey! Much love!
@africanawang2674
@africanawang2674 Жыл бұрын
This goes to show how a sense of humour can literally take you from a dark point to the point of light. Sorry didnt do dishes, cant see sorry, soo funny
@brandibergheimer9038
@brandibergheimer9038 Жыл бұрын
I know there so many health problems but she is the cutest little thing OH MY GOD. I want to just hug her!
@Angelofglass-yz5dq
@Angelofglass-yz5dq 2 ай бұрын
Sooooo cute!!!We are teaching our kids everyone is Different and saying hi is ok Also if you kids asks parent what is wrong you let them ask
@leleprtk
@leleprtk Жыл бұрын
She is lovely and her parents are just amazing 💖
@titansaint
@titansaint Жыл бұрын
nova's bangs are adorable!!! they add to the spirited character that she is!
@kathydishner7691
@kathydishner7691 9 ай бұрын
Jay, you are a true inspiration to all of us!🙏🙏 you were dealt a terrible thing in your life, but you are the most positive, gung ho, determined to not let this slow you down❤ you're an absolute love!
@pr1assist553
@pr1assist553 Жыл бұрын
She is beautiful. And like someone else already said, she's like a little doll. x
@alisonalibongo3177
@alisonalibongo3177 Жыл бұрын
What a beautiful girl.. I work with severely disabled children & i have so much respect for all the parents…
@shannongnazzio6844
@shannongnazzio6844 9 ай бұрын
All 3 are remarkable and inspiring in their own ways. Nova super adorable, Jay clever and inspiring as a young woman with so much gumption. The young lady with POTS never stop feeling 😉 lasty the young mom, may God give you many more years with your family. ❤🙏🏻 Thank you for sharing this video
@caraghlumpp1068
@caraghlumpp1068 Жыл бұрын
Nova is SUPER CUTE
@caraghlumpp1068
@caraghlumpp1068 Жыл бұрын
Thank you for your like be safe and God-bless
@helenawarsinnak
@helenawarsinnak Жыл бұрын
Nova is absolutely adorable & precious 💕 she looks just like a little babydoll!!💜
@gailbarrett9834
@gailbarrett9834 Жыл бұрын
These beautiful ppl are so amazing and strong! Best of everything to them all! They’re here for a reason! God bless ❤🙏❤️🙏
@butterflygirl3359
@butterflygirl3359 Жыл бұрын
Nova is so beautiful! Her sweet, intelligent personality shines so brightly!!!!!
@amandabrieharvey3436
@amandabrieharvey3436 Жыл бұрын
Oh I've missed seeing your faces!!! Nova is a DOLL!!! 🥰💗
@urfav_emma629
@urfav_emma629 Жыл бұрын
Nova seems so sweet and gentle 🥲🫶🏻
@evpalfy2464
@evpalfy2464 Жыл бұрын
She’s such a pretty little girl I hope good things come to her she gets older
@sharonironman4547
@sharonironman4547 Жыл бұрын
This child is amazing and friggin adorable 😍
@corinnehawkins8
@corinnehawkins8 Жыл бұрын
Even though she's born differently look at her still adorable
@teresepropeck4587
@teresepropeck4587 Жыл бұрын
Being in dental my thoughts are about care of Nova’s teeth. Please go to a specialist that can help you with dental care for her. ❤️💕😘🙏🏼
@ThegreekchickLouisiana
@ThegreekchickLouisiana Жыл бұрын
Yall are great! Thank you for sharing your story!
@butterfliesandsilkflorals3716
@butterfliesandsilkflorals3716 Жыл бұрын
This little girl is adorable. God bless you all. 🥰
@kathyouthere
@kathyouthere Жыл бұрын
What a beautiful little girl. Seems like she has the perfect parents. I wish her all the happiness in the world!
@bigdoggie1
@bigdoggie1 Жыл бұрын
she is so whimsical. a little doll. Put so wings on her. She looks like a beautiful little fairy.
@M30WL0R3
@M30WL0R3 Жыл бұрын
Her rare condition makes her adorable
@annagonzalez7573
@annagonzalez7573 Жыл бұрын
❤❤❤what a Blessing to have Her! Lil Nova is A princess! Love her
@carriejames7277
@carriejames7277 Жыл бұрын
Hopefully one day she get a diagnosis so she can get the right support etc etc
@mari-greciaodal2436
@mari-greciaodal2436 6 ай бұрын
Nora to me is the cutest, most lovable little girl, I've ever seen. If it is said there is a deformity to her, then I say that deformity is simply a Natural Beauty! Bless her!
@BeautySheIs
@BeautySheIs Жыл бұрын
She is beautiful and definitely has a huge personality! There is nothing wrong with this little angel ❤ wish her the happiest , longest and wonderful life 🎉❤
@BIGJILL100
@BIGJILL100 2 ай бұрын
She is the most beautiful little girl.
@lindalang1155
@lindalang1155 Жыл бұрын
Beautiful family and lovely little girl. With so much support nothing will hold this beautiful child from achieving her dreams.
@renae9365
@renae9365 10 ай бұрын
No a looks like a porcelain doll. She’s so pretty. Stay confident Nova girl!!! What is normal? It’s subjective, just like taste, fashion, hair styles….
@Finding457
@Finding457 5 ай бұрын
I love Nova’s sweet little kitten features! She is blessed with the best parents she could ever have. Enjoy your little family!
@marionsander3547
@marionsander3547 Жыл бұрын
Youre child is Not only human,she is a Special human,and she make,'s U both to Something Special.....U,as parents,makes the Family complete.....so much Respekt,4 and ure little Girl....Wish U only the best!! ✌️♥️♥️♥️♥️♥️
@spiritindasky1311
@spiritindasky1311 Жыл бұрын
Nova is a sweet little girl. She reminds me of children in Anime.❤️❤️❤️❤️❤️💕
@kathydishner7691
@kathydishner7691 9 ай бұрын
What an absolutely beautiful amazing little girl, inspite of her facial problems she's adorable and so full of love and life!🙏🙏💕 Her parents are very blessed with this precious child. 💗
@wendyhall7630
@wendyhall7630 Жыл бұрын
such a beautiful girl, beautiful parents. she is so lucky to hhave you. everyone is normal in their way
@LisaNelsonSnugglebunny
@LisaNelsonSnugglebunny 3 ай бұрын
I deal with POTS Syndrome myself but I take a blood pressure pill and a beta blocker but no need of a wheelchair. Never knew that there was a form of POTS Syndrome where you are in a wheelchair!
@kookootrix1978
@kookootrix1978 7 ай бұрын
She's an adorable girl. But let's also appreciate the doctors who are improving her quality of life. Without the surgeries and treatments, she wouldn't be where she is today.
@murielbaith5445
@murielbaith5445 Жыл бұрын
They are all strong, brave people.
@frogganna
@frogganna Жыл бұрын
OMG she is adorable!! How can you not spoil that baby girl?!
@I_Love_my_adblock4408
@I_Love_my_adblock4408 Жыл бұрын
🙋🏾‍♂️ WOW! She's adorable. I'll pray for her and good health.
@carolechenowith900
@carolechenowith900 Жыл бұрын
That's exactly what I was thinking. She is so precious. She looks like a beautiful little doll.
@KitCat426
@KitCat426 Жыл бұрын
She is the cutest little thing! Oh my goodness. Beautiful baby.
@cassandrahughes2897
@cassandrahughes2897 11 ай бұрын
She looks like a little fairy baby 👼🏼 so absolutely adorable. My favorite movie as a kid was dark crystal and she looks alot like kiara the little girl gelfling lol sorry for the nerd moment but shes truly a little doll baby ❤
@carolinelewis9615
@carolinelewis9615 5 ай бұрын
Jay's sense of humour is infectious, she has a genuine smile and her face and 'eyes' light up I have great hopes for her, with that humour and attitude, the worlds her oyster.
@the_5th_night
@the_5th_night Жыл бұрын
All of these girls/women have an amazing attitude to life, even with severe health issues, and with Jay being completely blind and Nova being severely hard of hearing. The thing is, if you have a permanent disability, you need to acquire that attitude to survive. Like Jerry, she found out that she had a terminal heart condition, but she still had to take care of her kids and be a good parent. Even if you have a disability or chronic illness, that doesn’t stop the world from expecting things of you. I was born blind, and when I was a young child, I had that attitude that it wasn’t a big deal, because this was my normal. Of course, I always knew that I was disabled, and that I had to do things differently, because there’s no way you could deny that or hide that part of you. Still, I don’t think I actually realized that I had a serious disability that affected every aspect of my daily life, until I was about 15 or 16 years old. I had the typical developmental delays that most blind children have. People around me told me my gross motor delays and my problems with understanding two dimensional pictures, were both related to blindness, but as a little girl I just told myself I was lazy and stupid. I thought the only disability I had was my blindness, and I could do everything except see. I had been clinically depressed for years, but when I was in my mid teens, and I realized the gravity of my disability, that stuff hit me like a ton of bricks. Now, trying to become a mature grown-up, I’m learning the balance between understanding that I have limitations, and still not giving up on life. When I got my diagnosis of ADHD, I started understanding that everything, even the most minor and mundane tasks, require motivation. If you don’t have the motivation to text your sister back, after she recommends you a new song, you’re not going to text your sister. If you don’t have the motivation to leave the couch and put your frozen meal in the microwave, you’re not going to eat. Now, imagine all of the motivation you need to complete a university degree, when you know that you’re going to have to hold a bunch of awkward conversations every semester about the accommodations you need, because you literally don’t have any functional vision! That stuff gets a lot harder when you have ADHD, and the way your brain regulates dopamine is all messed up. I really, really wish I had this go-getter attitude that all of these people seem to have! I have enough of it to be able to go to school and pay my bills. I have been told by another student at my university that I am brave and inspirational for even going to school despite the fact that I’m blind. This was just some random student. She didn’t know me, or the fact that I had ADHD, she just knew I was the woman with a white cane. I think it’s incredible how people find the strength, Despite our disabilities and health issues, but I also acknowledge that this strength is something we all need to be able to live a normal life. I just wish I had a little bit more of it.
@naturegirl2110
@naturegirl2110 Жыл бұрын
I don't think of disability. I think you all have different abilities.
@the_5th_night
@the_5th_night Жыл бұрын
@@naturegirl2110 Hello, and thanks for your reply. I know you mean well, but I actually disagree with you. I don’t have eyesight. Most people have eyesight. Therefore, I have a reduction in ability, a disability. Of course, there’s a lot of things I can do, I just have to do them differently, which I’m guessing is what you mean by different ability. However, life is a lot harder when you’re blind and neurodivergent like me. The world isn’t built for people like me, and a lot of places and activities are partially or fully inaccessible. Even if the world was fully accessible, seighted and Neurotypical people would still have an advantage over me, because they have abilities that I lack. I’m just starting to accept that some parts of life are a lot more difficult for me than it is for someone who doesn’t have a disability, but I still have to move on because life isn’t fair. That acceptance has been a key to me accepting myself as a person. Also, aren’t we all differently abled? I mean, I’m pretty alright at playing the piano, but I know pianists who are way better than me, as well as people who have never touched a piano. My dad is a chemistry teacher. He isn’t a qualified maths teacher, but when I was in high school, he taught me a lot more maths than my actual maths teacher. I stopped asking my mom for help with maths homework when I was maybe 9 years old, because she would just get upset when I didn’t understand, and her teaching methods just didn’t work for me. On the other hand, my mom actually has a good sense of direction, unlike my dad. My parents are two great people with different strengths and weaknesses, just like everybody. And if everybody have different abilities, saying I have a different ability instead of a disability, isn’t really saying anything. If you have a diagnosis yourself, and you feel empowered by the term different ability, that is OK, but if you don’t have a diagnosis, please don’t push terminology on people who actually have a medical condition! But as I mentioned, I know you mean well, and I really appreciate the effort to make me feel good.
@naturegirl2110
@naturegirl2110 Жыл бұрын
@Milla Cerne I don't have a disability but I do have something that put a full stop on my life for many years. That is epilepsy. There are many things I couldn't do like driving a car and sometimes needing to have someone around me at all times. I've learned to accept what I can't do and look at what I can.
@the_5th_night
@the_5th_night Жыл бұрын
@@naturegirl2110 I’m happy you focus on what you can do. If you’ve got a good attitude about your condition, that can be very powerful. My aunt has epilepsy and severe learning delays, and I know epilepsy can be really scary! Hope you have it well controlled! Take care!
@kathrynbroome5966
@kathrynbroome5966 10 ай бұрын
she is like a doll so cute if anyone says nastie or not nice things to your daughter just look at them and as how many people love you or just say my daughter is wonderful loving
@hatarismom
@hatarismom Жыл бұрын
Nova is adorable. Will there be surgeries to repair her jaw in the future in order to better allow her to breath and swallow, etc.? Good luck, I was recently diagnosed with MS, and sometimes disorders that are invisible is more difficult as people just don’t understand.
@debrasamaha3896
@debrasamaha3896 Жыл бұрын
God has gifted you with one of his special babies because he knows you are strong enough to be her parent and watch and love her before he calls her home ❤
@MeganKugs
@MeganKugs 23 күн бұрын
I love Jay so freaking much. She’s adorable and hilarious and I hope she’s doing the incredible things she wants to do. 💜
@theresahaines2647
@theresahaines2647 10 ай бұрын
She is so precious! She has the face of an angel. May God heal and bless this sweet angel. 🙏 ❤ 🫂 🕊️ 😊
@tinyTears
@tinyTears Жыл бұрын
Nova is so pretty and never let anyone tell her any different.❤
@ritaharvey3981
@ritaharvey3981 Жыл бұрын
She's absolutely adorable ❤️.. will they do surgery on her jaw later on?
@lipperoni2123
@lipperoni2123 Жыл бұрын
OMG NOVA!!!! She’s so much older now!
@DeniseSterling-pu5st
@DeniseSterling-pu5st 2 ай бұрын
Beautiful child and blessed and precious ❤❤,🙏🙏🙏😘😘.
@YipYip1310
@YipYip1310 9 ай бұрын
Shes so beautiful! Treacher Collins Syndrome comes to mind with this beauty. ❤
@jeanhealy3132
@jeanhealy3132 9 ай бұрын
It’s not treacher Collin’s at all!
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