Doctors Can't Explain Our Rare Conditions | BORN DIFFERENT

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In this Born Different special, we meet individuals with incredibly rare medical conditions that have left doctors baffled and unable to diagnose.
Producer: Tom Buckman
Editor: Olivia White
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[@lala_lakeypoo]

Jay (the girl who went blind) is absolutely hilarious and I love her outlook on life and how she's handling what happened. ❤ Her Momma is also an absolute angel for being there to help her baby in her biggest time of need.

[@rachaelurey8983]

Love her!!!!!

[@kookootrix1978]

What's the name of her channel?

[@malloryknox1637]

Nova reminds me of a tiny little fairy just minus the wings. What a beautiful child.

[@reality_is_the_key]

I was thinking the very same. She's almost sprite-like.

[@iwantmy_sk844]

@@reality_is_the_key Yes (better)! ..."Sprite-like"!

[@karinest.meneses7045]

Quando vi também me pareceu uma fadinha linda

[@plan4life]

Nova doesn’t look deformed, she looks beautiful, perfect. What a sweet little thing!

[@mr_mack_indenver7807]

She is a doll.

[@ladylaois8184]

I agree

[@Lunayuna2229]

She looks so cute🥺🥺🥺🥺

[@Lena.818]

Yes

[@herne4504]

yeah !! she’s soo cute:D

[@rebeccapaul6455]

I cannot imagine being a teenager and losing vision. Jay is a different kind of strong. Must be so frustrating to suffer from an array of conditions that can't be diagnosed.

[@ediitzz9741]

I love how Nova went to the cameraman to sniff her flower, she is adorable.

[@lisacolledge7624]

Jay......girl, you are bloody amazing. I know you're at College, but you have a wicked sense of humour, an absolute mound of guts, determination, and bravery, and I can see you being a stand-up comic in Hollywood! I think you'd make a fortune. No matter what direction you choose to take, you take my admiration and love with you. ❤️

[@sarahanngreenwell]

That precious little girl is absolutely beautiful! Every single one of us in beautiful. No matter how our bodies are shaped or the color of our skin. EVERY SINGLE ONE OF US IS BEAUTIFUL!!

[@SomeBuddy777]

AMEN ✝️

[@cathykrueger4899]

There is a perfect soul inside all of us.

[@lynetteking3062]

She looks like a doll baby 🤗💜💜💜

[@ragevsraid7703]

she is so beautiful 🥰

[@sarahgarrison9006]

I agree, she's beyond cute

[@jennierose1224]

That's exactly what I thought. 🥰 She's adorable

[@denisesantos-cucalon4293]

One of the cutest humans I've ever seen ❤️

[@plan4life]

Or even a baby doll. She is ever so sweet.

[@sarahanngreenwell]

My baby was in Nicu for 10 days. I cannot imagine 101 days. Nova and her parents are so strong. Thank you for this video. It was absolutely wonderful ❤️

[@khonkhosilelihle7414]

True ey.

[@erikaalmeidavega78]

My little lady was 8 weeks premature, & spent a combined total of 11 weeks in the NICU/SCBU, & every single day I wake up & thank the world that she's a relatively healthy, happy 'typical' 12 year old!! She has been diagnosed with GDD, Dyspraxia & severe anxiety, she didn't speak till she turned 4, but she's definitely made up for it in the past few years, lol! We really are super blessed. I hope all is well with your precious one too @SarahAnn Greenwell? Sending you love! xx 😃❤️🙏

[@herne4504]

aw hope ur baby is doing better now D:

[@InvestigatorV]

The girl who’s blind has such a positive attitude towards life and she’s funny! bless all these people !

[@leleprtk]

When she said she was ready to become Daredevil and fight crime 😂

[@asiaj1]

Nova is precious and such an inspiration thank you to her parents for loving her the way you do and sharing her with the world ❤

[@pamelaharris9318]

I have been diagnosed with pulmonary hypertension interstitial, lung fibrous and right heart failure. I've out lived what they originally told me.❤

[@lisacolledge7624]

🌹🌹🌹🌹🌹🌹🌹🌹🌹🌹🌹🌹 for Nova's mum. You, darling lady, are such a beaming advocate for your daughter. As she develops, she'll begin to understand what it feels like to have a deep source of pride in someone. I think you are a wonderful mum. The love is clearly in your heart and your eyes. Not at all implying dad doesn't, but you just have it all on another level. Nova is divine! I could squish and squash and love and cuddle her till those proverbial cows come home!. I wish you every single ounce of luck for every day ahead.❤️🥰

[@cathykrueger4899]

It’s obvious that the dad loves the mom as well as Nova. This is empowering.

[@mjarboesdf]

Oh my goodness Nova is cuteness OVERLOAD! She's such a doll baby! There are so many amazing medical possibilities that we have now days and we will have even more as Nova gets older! Could doctors possibly make her a jaw? Iv seen tons of kids of all ages have jaw transplant surgeries, including a three yr old little girl that was born with out a lower jaw. She received facial reconstructive surgery making her a lower jaw out of ribs, stretched nerves and muscles. Her life has drastically improved and she looks amazing! There are tons and tons of stories of both kids and adults receiving amazing life changing reconstructive surgeries and alot of the kids look just like sweet Nova! 💟

[@ninong7638]

Jay is such an amazing, funny, strong, positive person! I am in awe of her!

[@tamelakoboldyoder356]

Nova is absolutely beautiful! She doesn't see her challenges, she loves being her and what we would view as a challenge she will take on like an adventure and continue to grow and thrive and conquer whatever is presented next. Go Nova Go!

[@muddikissez22]

I was also diagnosed with POTS using a "poor man's tilt table test". I go in August for the real thing to confirm the POTS or an autonomic disorder. Thankfully, mine isn't constant and I'm able to do most things most days, but knowing I could drop at any moment, no matter where I am or what I do is hard. I lost my self-trained service dog, Riker, in April of 2022 to lymphoma. He was 13. I only took him out - in that capacity - on bad days, but knowing that I had him at home and on bad days when I needed to go out, was a huge comfort that I no longer have. I'm looking for another dog, but no one will ever be my Riker. It's tough, but ya keep going. Just keep swimming, ya know?

[@malzimus]

Please strongly consider watching videos by Dr. Ken Berry!! He has over 800 and you can search his name and medical topics and conditions. He addresses many and explains how they can be helped through metabolic and dietary changes. The comments sections are absolute gold for what people are helping their bodies heal from! All the best! 🙏

[@hannakinn]

Nova truly is an adorably cute child. She looks like a darling little elf like child. I can't imagine that anyone wouldn't find her to be exceptionally cute. I doubt anyone would be afraid of her looks ever. I'm glad it's becoming easier for her to communicate. I hope at some point she will be able to speak and to hear better, but if not it will be fine. With ASL and all of the great tech devices available she'll be able to communicate well. I think people are drawn to Nova because she's so cute and personable, looks like she has that special something that some people have.

[@mellieface1909]

She is so stupidly cute... like, it's ridiculous how adorable this sweet child is. I'm so glad her parents found a way to bridge communication with her and meet her where she is at- and look at her learning and thriving and being a total sponge to the environment and stimulus around her! Incredible. With her support needs met, she is going to have a happy and successful life; whatever success looks like for her.

[@alg2116]

Nova is beautiful !!! Sweet little girl!!! I can't imagine what you went though it breaks my heart. God bless you!!!!

[@daisi4925]

She’s beautiful. Look in her eyes they tell a story. You two are wonderful parents who have a tiny sprite. Bless you and yours

[@autrefemme]

She is literally one of the cutest little girls I've ever seen. She looks like a sweet little fairy like Tinkerbell! 🦋. She's amazing!

[@cindy8031]

Her little face is so sweet with her big brown eyes.I just want to hug her

[@maresha]

What an amazing family. And such a cute little girl. I wish you all the best and i think it’s very brave that you have shared this personal story.

[@Dieppaloveplants]

As a mom of a special need son God send special angels to special mom And dad God bless your little family 💚💚💚💚

[@tamelakoboldyoder356]

Jay you see more and recognize a lot and are more in tune than most who have 20/20...you are awesome and very inspirational

[@All5AJz]

I would never trust another soul to care for her if she were mine except these two people. God really test us for our capabilities in loving someone who comes with expensive issues along with the trauma of all that has for this priceless kinda human. Miracles are in front of you both daily so please remember that. Much love someone's ole Nanna 😘

[@lisachatham8690]

Nova is wonderfully perfect. She is her own little perfect and that's AWESOME!!! All the people in this video are their own version of perfection and not one person can take that from them. Elenore Roosevelt said " No one can make you feel inferior, without your permission" Please don't ever give anyone permission because you are all perfect just the way you are.

[@terraalbritton6405]

She looks perfect, but watching your child struggling with breathing, hearing, speaking, and eating must be so hard. Her parents are so loving, kind, and confident.

[@kookootrix1978]

Yes, so many people in the comments are going on and on about how "cute" she is, without acknowledging her health problems. It comes off a bit patronizing.

[@SissyDoesSims]

nova is literally so cute eeeee my fav part was when she let the camera man smell the flower 4:19 almost like "here you gotta smell too"

[@sonjam314]

What a strong beautiful little girl you are Nova. God bless these parents and little Nova. I pray her pain will be minimal and surgeries as well❤️❤️❤️❤️

[@leleprtk]

She is lovely and her parents are just amazing 💖

[@animefairy3134]

Sweet little Nova 😍😍I think these have been reuploaded as a compilation. I remember watching the Nova section a couple of years ago. She's five now, they aren't as active on social media anymore but you can still see a more recent post. she's grown so much!

[@jkiely85]

Jay I cried with your story happy and sad tears… you are beautiful inside and out… ❤❤ keep that positive energy

[@ladylaois8184]

Novas very beautiful! And she’s dressed beautifully. My Grandaughter had a cleft pallet. She’s just finished age 22 all the op’s. Last one was literally barbaric jaw broken I’m 9 places. She’s just finished uni And doing great. Nova is at the start of her journey, With wonderful parents the skies the limit.

[@sngray11]

Nova is so precious! 💗 All of the children and teens featured here are incredible. 💞

[@africanawang2674]

This goes to show how a sense of humour can literally take you from a dark point to the point of light. Sorry didnt do dishes, cant see sorry, soo funny

[@semoneh3331]

Nova is such a lovely little girl, very smart & so sweet, her fantastic parents who are doing an awesome job and they should feel so proud of themselves and their sweet little princess

[@barbaraspieler1222]

Your daughter NOVA IS ABSOLUTELY GORGEOUS JUST THE WAY SHE IS!!! the good lord above has put her here as she is for a reason..she will be the 1 PERSON WHO WILL BRING A CURE FOR WHAT SPECIAL SHE BROUGHT TO THIS WORLD!! she had also brought so many people together with LOVE.. AND EDUCATION.. and will not only turn minds but will turn people in every which way possible in this world... she is BEYOND SPECIAL..BEAUTIFUL.. AND LOVED IN EVERY WAY POSSIBLE...MAY YALL ALL BE BLESSED TODAY AND EVERY DAY 😘🙏❣️🌺❣️🙏😘

[@sharonironman4547]

This child is amazing and friggin adorable 😍

[@tiannahanastassiades3320]

Yall are great! Thank you for sharing your story!

[@caraghlumpp1068]

Nova is SUPER CUTE

[@caraghlumpp1068]

Thank you for your like be safe and God-bless

[@amandabrieharvey3436]

Oh I've missed seeing your faces!!! Nova is a DOLL!!! 🥰💗

[@maureentuohy8672]

God bless this mother and father. They have a road ahead filled with hard work, heartbreak, as well as triumph.

[@helenawarsinnak]

Nova is absolutely adorable & precious 💕 she looks just like a little babydoll!!💜

[@helencabell6298]

Jay is such an incredible young woman. She may be blind but she has more vision than a lot of people with 20/20 vision.

[@rebeccapaul6455]

Nicely said.

[@ande100]

Conquer your world by storm and firery joy, little Nova! We will gleefully adore and support You on your journey! Much love!

[@pr1assist553]

She is beautiful. And like someone else already said, she's like a little doll. x

[@dawnmason9558]

I suffer from severe postural hypotension I have a German Shepherd Dog called Loki that is my medical alert dog. We have trained him since puppyhood to “boop” my face & my husbands left knee to alert that my blood pressure is falling. Once on the floor or bed, he lies across my abdomen and use his weight to raise my blood pressure to my head so I come round quickly. If I do pass out, he is being taught to “ sing” for Dad. He barks a lot as GSDs do so we are teaching him to howl ( sing) so my husband knows I am out cold. He has alerted to me a LOT over the past 3 years plus my husband has COPD & heart problems so he alerts to my husband too without training to his problem. Loki has the run of the house at night but he sleeps under my bed exactly under my head. I can’t take him out with me as he is too bouncy and pulled me along the floor when he saw a Cat! He grew up with a cat so it was totally out of the blue. I rarely go out on my own anyway so he has that time to be a Dog not on duty.

[@corinnehawkins8]

Even though she's born differently look at her still adorable

[@titansaint]

nova's bangs are adorable!!! they add to the spirited character that she is!

[@NonExistence2507]

Her rare condition makes her adorable

[@butterfliesandsilkflorals3716]

This little girl is adorable. God bless you all. 🥰

[@annagonzalez7573]

❤❤❤what a Blessing to have Her! Lil Nova is A princess! Love her

[@brandibergheimer9038]

I know there so many health problems but she is the cutest little thing OH MY GOD. I want to just hug her!

[@urfav_emma629]

Nova seems so sweet and gentle 🥲🫶🏻

[@spiritindasky1311]

Nova is a sweet little girl. She reminds me of children in Anime.❤️❤️❤️❤️❤️💕

[@kathydishner7691]

Jay, you are a true inspiration to all of us!🙏🙏 you were dealt a terrible thing in your life, but you are the most positive, gung ho, determined to not let this slow you down❤ you're an absolute love!

[@teresepropeck4587]

Being in dental my thoughts are about care of Nova’s teeth. Please go to a specialist that can help you with dental care for her. ❤️💕😘🙏🏼

[@carriejames7277]

Hopefully one day she get a diagnosis so she can get the right support etc etc

[@gailbarrett9834]

These beautiful ppl are so amazing and strong! Best of everything to them all! They’re here for a reason! God bless ❤🙏❤️🙏

[@I_Love_my_adblock4408]

🙋🏾‍♂️ WOW! She's adorable. I'll pray for her and good health.

[@shannongnazzio6844]

All 3 are remarkable and inspiring in their own ways. Nova super adorable, Jay clever and inspiring as a young woman with so much gumption. The young lady with POTS never stop feeling 😉 lasty the young mom, may God give you many more years with your family. ❤🙏🏻 Thank you for sharing this video

[@butterflygirl3359]

Nova is so beautiful! Her sweet, intelligent personality shines so brightly!!!!!

[@mari-greciaodal2436]

Nora to me is the cutest, most lovable little girl, I've ever seen. If it is said there is a deformity to her, then I say that deformity is simply a Natural Beauty! Bless her!

[@millacernemusic]

All of these girls/women have an amazing attitude to life, even with severe health issues, and with Jay being completely blind and Nova being severely hard of hearing. The thing is, if you have a permanent disability, you need to acquire that attitude to survive. Like Jerry, she found out that she had a terminal heart condition, but she still had to take care of her kids and be a good parent. Even if you have a disability or chronic illness, that doesn’t stop the world from expecting things of you. I was born blind, and when I was a young child, I had that attitude that it wasn’t a big deal, because this was my normal. Of course, I always knew that I was disabled, and that I had to do things differently, because there’s no way you could deny that or hide that part of you. Still, I don’t think I actually realized that I had a serious disability that affected every aspect of my daily life, until I was about 15 or 16 years old. I had the typical developmental delays that most blind children have. People around me told me my gross motor delays and my problems with understanding two dimensional pictures, were both related to blindness, but as a little girl I just told myself I was lazy and stupid. I thought the only disability I had was my blindness, and I could do everything except see. I had been clinically depressed for years, but when I was in my mid teens, and I realized the gravity of my disability, that stuff hit me like a ton of bricks. Now, trying to become a mature grown-up, I’m learning the balance between understanding that I have limitations, and still not giving up on life. When I got my diagnosis of ADHD, I started understanding that everything, even the most minor and mundane tasks, require motivation. If you don’t have the motivation to text your sister back, after she recommends you a new song, you’re not going to text your sister. If you don’t have the motivation to leave the couch and put your frozen meal in the microwave, you’re not going to eat. Now, imagine all of the motivation you need to complete a university degree, when you know that you’re going to have to hold a bunch of awkward conversations every semester about the accommodations you need, because you literally don’t have any functional vision! That stuff gets a lot harder when you have ADHD, and the way your brain regulates dopamine is all messed up. I really, really wish I had this go-getter attitude that all of these people seem to have! I have enough of it to be able to go to school and pay my bills. I have been told by another student at my university that I am brave and inspirational for even going to school despite the fact that I’m blind. This was just some random student. She didn’t know me, or the fact that I had ADHD, she just knew I was the woman with a white cane. I think it’s incredible how people find the strength, Despite our disabilities and health issues, but I also acknowledge that this strength is something we all need to be able to live a normal life. I just wish I had a little bit more of it.

[@naturegirl2110]

I don't think of disability. I think you all have different abilities.

[@millacernemusic]

@@naturegirl2110 Hello, and thanks for your reply. I know you mean well, but I actually disagree with you. I don’t have eyesight. Most people have eyesight. Therefore, I have a reduction in ability, a disability. Of course, there’s a lot of things I can do, I just have to do them differently, which I’m guessing is what you mean by different ability. However, life is a lot harder when you’re blind and neurodivergent like me. The world isn’t built for people like me, and a lot of places and activities are partially or fully inaccessible. Even if the world was fully accessible, seighted and Neurotypical people would still have an advantage over me, because they have abilities that I lack. I’m just starting to accept that some parts of life are a lot more difficult for me than it is for someone who doesn’t have a disability, but I still have to move on because life isn’t fair. That acceptance has been a key to me accepting myself as a person. Also, aren’t we all differently abled? I mean, I’m pretty alright at playing the piano, but I know pianists who are way better than me, as well as people who have never touched a piano. My dad is a chemistry teacher. He isn’t a qualified maths teacher, but when I was in high school, he taught me a lot more maths than my actual maths teacher. I stopped asking my mom for help with maths homework when I was maybe 9 years old, because she would just get upset when I didn’t understand, and her teaching methods just didn’t work for me. On the other hand, my mom actually has a good sense of direction, unlike my dad. My parents are two great people with different strengths and weaknesses, just like everybody. And if everybody have different abilities, saying I have a different ability instead of a disability, isn’t really saying anything. If you have a diagnosis yourself, and you feel empowered by the term different ability, that is OK, but if you don’t have a diagnosis, please don’t push terminology on people who actually have a medical condition! But as I mentioned, I know you mean well, and I really appreciate the effort to make me feel good.

[@naturegirl2110]

@Milla Cerne I don't have a disability but I do have something that put a full stop on my life for many years. That is epilepsy. There are many things I couldn't do like driving a car and sometimes needing to have someone around me at all times. I've learned to accept what I can't do and look at what I can.

[@millacernemusic]

@@naturegirl2110 I’m happy you focus on what you can do. If you’ve got a good attitude about your condition, that can be very powerful. My aunt has epilepsy and severe learning delays, and I know epilepsy can be really scary! Hope you have it well controlled! Take care!

[@mamaduck5981]

Only very special parents get to care for such a special little angel. She is so beautiful.

[@evpalfy2464]

She’s such a pretty little girl I hope good things come to her she gets older

[@marionsander3547]

Youre child is Not only human,she is a Special human,and she make,'s U both to Something Special.....U,as parents,makes the Family complete.....so much Respekt,4 and ure little Girl....Wish U only the best!! ✌️♥️♥️♥️♥️♥️

[@alisonalibongo3177]

What a beautiful girl.. I work with severely disabled children & i have so much respect for all the parents…

[@murielbaith5445]

They are all strong, brave people.

[@BeautySheIs]

She is beautiful and definitely has a huge personality! There is nothing wrong with this little angel ❤ wish her the happiest , longest and wonderful life 🎉❤

[@ritaharvey3981]

She's absolutely adorable ❤️.. will they do surgery on her jaw later on?

[@frogganna]

OMG she is adorable!! How can you not spoil that baby girl?!

[@lipperoni2123]

OMG NOVA!!!! She’s so much older now!

[@kookootrix1978]

She's an adorable girl. But let's also appreciate the doctors who are improving her quality of life. Without the surgeries and treatments, she wouldn't be where she is today.

[@hatarismom]

Nova is adorable. Will there be surgeries to repair her jaw in the future in order to better allow her to breath and swallow, etc.? Good luck, I was recently diagnosed with MS, and sometimes disorders that are invisible is more difficult as people just don’t understand.

[@kathyouthere]

What a beautiful little girl. Seems like she has the perfect parents. I wish her all the happiness in the world!

[@bigdoggie1]

she is so whimsical. a little doll. Put so wings on her. She looks like a beautiful little fairy.

[@kierraadele]

Seriously this lil girl is adorable ❤

[@lindalang1155]

Beautiful family and lovely little girl. With so much support nothing will hold this beautiful child from achieving her dreams.

[@junedye4226]

Beautiful family ❤️

[@wendyhall7630]

such a beautiful girl, beautiful parents. she is so lucky to hhave you. everyone is normal in their way

[@tinyTears]

Nova is so pretty and never let anyone tell her any different.❤

[@carolechenowith900]

That's exactly what I was thinking. She is so precious. She looks like a beautiful little doll.

[@KitCat426]

She is the cutest little thing! Oh my goodness. Beautiful baby.

[@francesquaid738]

She is truly beautiful. Smart too. Kids are great!!!

[@sarahanngreenwell]

Nova is such a doll baby!

[@clareswinney1087]

Oh my goodness, she’s so precious! 💗💗

[@ippmoeproject8502]

Omg she reminds me of a precious moments doll.

[@lizzylou19]

It is hard living with a undiagnosed health condition. I have loads of small kidney cysts covering both my kidneys and I didn’t find out until was 16 as I was completely healthy before that. I’m now 25 stage 4 15% left

[@michaelawolfman9121]

You can tell that kid knows how to have a good time. 10/10 passes the vibe check

[@kathydishner7691]

What an absolutely beautiful amazing little girl, inspite of her facial problems she's adorable and so full of love and life!🙏🙏💕 Her parents are very blessed with this precious child. 💗

[@barbaraspieler1222]

MS. JAY...YOU GO GURL... YOU ARE SUCH AN INSPIRATION AND I COMPLETELY COMMEND YOU!! YOUR SO STRONG AND COMPLETELY GORGEOUS!! I TRULY WISH I HAD SOME OF YOU IN ME!!! GOD BLESS YOU DARLING AND MAY HE BLESS YOU EVERY DAY OF YOUR LIFE 🙏❣️🙏❣️🙏❣️🙏🌺

[@nitram4611]

Nova is the perfect name for her! She is absolutely adorable and so full of life!

[@judieahmed98]

God bless all of these patients ❤️🙏❤️🙏❤️🙏

[@sunshinem3958]

She is such a joy, such a beautiful little girl

[@RuthZeeck]

Nova is a just the prettiest little girl. While she is certainly remarkable, I think her parents are equally amazing. How fortunate for Nova that she was born to such a wonderful couple.

[@constancepentzer3017]

Nova is a beautiful little pixie. I’m envious of all her energy.

[@galaxydave3807]

One day, I think, there will be a beautiful adult, no matter which feature or not ♥️✨