Documentary ‘Magnolia’s Hope’ Shows Family’s Struggle With Rett Syndrome | TODAY

AJ and Jenny Tesler open up about their daughter’s struggle with Rett syndrome and their fight for a cure in the documentary film “Magnolia’s Hope.” Watch as they sit down with NBC’s Richard Engel, whose son, Henry, has also been diagnosed with Rett syndrome.
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#MagnoliasHope #RettSyndrome #TodayShow
Documentary ‘Magnolia’s Hope’ Shows Family’s Struggle With Rett Syndrome | TODAY

[@vazquezfloreslawncareservi6155]

My name is Alejandra, my beautiful daughter was diagnosed with Rhett’s syndrome at the age of 5, was hard, she died when she was 13, and I miss her like crazy, I super happy that their us hope for that Childrens that are fitting with that syndrome!

[@visionvixxen]

🙏🙏🙏

[@riobrasilsambashowssambist1453]

I am so so sorry for such loss.

[@napturalgoddess6602]

Blessings to the babies that are suffering

[@donnathomson4048]

Blessed Mother please help these special children

[@RosaRivera-d4l]

My daughter will be 20 in 3 months and she has Rett syndrome and the first time a Dr told me we have to test for Rett, she was only 6 months old.

[@karensoohoo8848]

Thank you for sharing. We just received a diagnosis today of Rett syndrome in our 2 year old daughter after a genetic test revealed a mutation on the mecp2 gene.

[@rajeshnamburi4718]

Same here diagnosed for 2 year girl. Shall we form a watsapp group for all the parents for our children betterment

[@kamrankami1982]

I am from pakistan and have a daughter having this rett Syndrome mecp2 gene...... Add me to that goup too kindly.....may it help me to take care of my doll

[@Desaree1]

I hope you guys form that group in could be beneficial to your kids and yourself.

[@AsmaAbdi-d4z]

@@rajeshnamburi4718 yes did you guys make that group.

[@davidbush1852]

The love and care that both of these parents have for their children with rett is amazing and I hope that this break through opportunity for magnolia and her family will become a reality and for other children who are suffering from this condition but if not they're still beautiful and special just the way they are.

[@visionvixxen]

Bless this angel

[@reneepowers3019]

My grandbaby has Rett syndrome and it's heart breaking. It took years for the doctors to finally listen. My daughter kept telling her doctor something is not right. Finally a new doctor came in to the office and she listened and she started texting. Finally some answers but still waiting for Shriners to call. So we are calling daily weekly and sometimes multiple times a week to ask when will we get any news on what to do next. It's been a hard road. I've been looking for ever video I can just to find out what I can. My prayers go out to all our families.

[@emiliobello2538]

Babies are so cute. Hope all babies are born in good health

[@TyrekeCorrea]

You know what is the happiest movie in the world? These kids with the greatest of need give everything they have to be as involved in life and the world as possible, to seek out what brings them joy and immerse themselves in the joy of having it. It is truly a great thing when their efforts are rewarded and their countenances are raised. You can support and enjoy them and have a truly great journey. You can live that. Use your skill to preserve that, to preserve your memories of it, the impact of it and the potential to do good with it, and you'll have the record of the greatest movie ever.

[@drrtydan]

Condolences to the Richards.

[@DavidTlovesAbby]

God bless every family that has a child going through Rett’s. I believe some children are created with these problems so they can change the people around them in a powerful way.

[@cathr08]

Precious girl

[@gmoney113]

My daughter was diagnosed the other day. I’m so sad I can’t even….

[@adyn1826]

My mom met a woman who’s sister has Rett syndrome. She told me that her sister only communicates by patting her chest

[@TyrekeCorrea]

it's like it was thought it wasn't necessary for Henry to learn augmentative communication or even be able to, because he didn't have a movie to be a part of, he didn't have that kind of role to be prepared to play, didn't have to help provide the piece of the puzzle that fit the role a kid like him needed to play in the context of the production that was the movie being made and the role it stood to play in the wider world.

[@riobrasilsambashowssambist1453]

Prating for miracles. I can't imagine the pain for parents

[@katherineyoung6168]

My 2 year old is being tested for this and I'm absolutely terrified

[@aylool2257]

What is the test result? İ am praying for mine and your daughter too. When did you notice the symptoms starting and what were they?

[@vladimirrodionov5391]

Unfortunately Richard's son has not lived to see the cure.

[@Angelamarie0805]

What a name 😮

[@hixxyted1244]

Err your face 😮

[@Yasirkhan-yr9br]

My niece has rett syndrome, and i am trying to help her with any suggestions from you people.

[@MeherunNesa-s9b]

আমি আপনার সাথে কিছু কথা বলতে চাই ভাইয়া

[@Yasirkhan-yr9br]

​@@MeherunNesa-s9bsure

[@Yasirkhan-yr9br]

​@@MeherunNesa-s9bsure

[@ObamAmerican48]

Oh Richard, I didn't know this about your Henry 😢

[@meganfoley3471]

I’m Confused. Rett’s disorder is only in females correct? This is what I have been learning as a healthcare student.

[@arkvsi8142]

Also in males, but rarely and more severe that they could die pretty soon, to be honest, education nowadays is trash, utter trash, teacher try to make you quit or fail instead of teach you. Im also a health-care student

[@Nick--Spears0]

It's on the X chromosome

[@MatchaCocoaDog]

Same here. It's "almost exclusively" in females but not impossible in males.

[@evielknievel4972]

According to DSM4 299.80 it is a genetically mutated disease. And only has been reported in females.

[@nescymuring6463]

Hi in the Philipines I have daughter diagnose rett symdrum

[@wanidasinthu]

My daughter has Syndrome Rett too...she 5 year old

[@retalessa1991]

هل لديكي اطفال بعد ابنتك مصابة بريت. وهل هو مرض وراثي. ارجو مساعدة

[@TyrekeCorrea]

Don't tell me you got involved in this whole racket just because of Henry, Richard.

[@subashiniselvaraj5668]

Any body help me my daughter 4 years old also suffered with this. Please

[@TyrekeCorrea]

You could set up that house for you all to live in, but you couldn't give Magnolia the simplest things?

[@IrksomeSquid]

This might be morbid but notice how the only families that you see are noticable NOT extraordinarily poor, I don't think poor people can afford keeping them........here.

[@TyrekeCorrea]

It's not genetic at all; you were letting people get close enough to that kid to do harm to him.

[@juliapawlowska7315]

Wnuczka mojej siostry też ma zespół Retta ma 2 latka

[@visionvixxen]

Why can’t they test for genes in parents before they have children

[@katek6808]

Because it's a gene mutation that has nothing to do with the parents' genes. Just like many other syndromes. Also, you can't test for everything, too complex and costly.

[@ismailahmad9597]

Majority of cases aren't inherited. They call it a "sporadic" or "spontaneous" mutation

[@TyrekeCorrea]

Of course you wouldn't have seen anything wrong; she was a filmmaking opportunity!

[@TyrekeCorrea]

You manipulated this kid in your life for your own public gain!

[@Shruthijanya-ti3ls]

My baby having retsyndrom.. Pls any body help me.

[@YogiMDWanders]

I know I’m late for this but I just want to say Henry is a miracle and blessing! Only the female survive with this syndrome, while the male die in utero. If this syndrome is rare, a male survivor is very very rare! I hope the best for these families and their angels ❤️ 🙏

[@TyrekeCorrea]

Maggie...

[@Strawberrylve]

tho alr tgat sm ofc

[@beroyan]

Why Turkey did genocide in Anatolia and around?

[@AhmetYlmaz-ik6mb]

At yalanı

[@AhmetYlmaz-ik6mb]

Belge var mı

[@TyrekeCorrea]

Steel Magnolias a dull movie.

[@AlaaAli-qw7pc]

isn't it exclusively in females?

[@victorJ2050]

Almost exclusively. It is rare as it is but very rare in male child.

[@dionyoutube]

Omg 🥲❤️

[@tacitamorgan2134]

😮😊💗🔃

[@hellobot67]

first comment ever!

[@sj187]

I wonder if these regressions happened after getting any type of immunization vaccines

[@ariannamartello5198]

People are born with Rett’s, you can actually see the signs since the children were in the womb (they present odd movements sporadically, but they are not addressed because this disease is rare and doctors don’t usually notice them) so no, vaccines do not cause Rett’s. Genetic mutations do.

[@CharlestonChica]

OMFG. Vaccines don't affect a person's DNA. Rett's is a genetic disorder.

[@DannyD-lr5yg]

Look, I’m a believer in vaccine injuries, but Rett syndrome isn’t just simple “regression.” It’s a GENETIC disorder, inherited from the parent(s). It affects certain simple chemical processes in the brain, making it essentially a very tragic form of childhood dementia. It is almost invariably fatal.

[@katek6808]

No. It's GENETIC. Look it up. You might learn something after all. It really isn't that difficult.