Does He Really Love Me Chronic Issues Coffee & Conversation Podcast #14

[@hoperogers33]

Pat is adorable he keeps trying to look at the camera but catches himself looking over at Jackie.

[@3hearts1lifeyo-yo42]

Its so cute when he is on. You can see how much he loves Jackie.

[@GothicPop]

they are both adorable

[@Fatimahtak]

So glad you mentioned how the doctors simply wouldn't take you seriously and go in circles and ignore the actual issue. Statistics have shown this happens to women wayyyy too much. They're always dismissed as hysterical/dramatic when in reality they're far more high functioning than men are while ill/in pain. It horrifying and scary and my heart really goes out to all the women that lost their lives because of it. Thank you sooo much for bringing it up! You guys are both so sweet and it shows

[@emilymulcahy]

Pat saying you're still cute when you said you gained so much weight, he is a keeper, my husband is the same, we lucked out and got good ones! I also have some of the same conditions you do

[@freedomcat]

Men are wired to like curvy.

[@satlva2908]

@@freedomcat it's ignorant to speak for all men. Everyone is wired different. Not all girls like ballet and not all boys like football. It's okay.

[@freedomcat]

@@satlva2908 yes it is. I was referring to a study done. Society influences what is sexy.

[@golfwidow]

It doesn't matter how often my husband says cute things like "Don't you know it is my honor to take care of you? I'm literally being there in sickness and in health!" I still feel like my Hashimoto's (and ensuing weight gain), chronic fatigue, joint inflammation, pernicious anemia, fibromyalgia, etc etc etc makes me a burden to him. He's a good person and if I told you how much I love him every second for the next eternity, I still wouldn't be able to express it. PS My doctor cut me down to one cup of coffee per day, so I bought a 36-ounce cup. 😁

[@gerilynne1955]

Love that cup idea!

[@sundancesladytiffany3995]

Oh golfwidow, you are so very lucky to have found each other, ya’ll sound like the sweetest couple…..

[@romyhill3472]

Idk if anyone has said this yet, but the comment about the veggies in the fridge, it's called object permanence. I've heard that people with ADD have a harder time with object permanence. Meaning that if we can't see something, it doesn't exist, even though we know logically know it does exist.

[@jessicacisneros-zapen9750]

I can confirm this. It affects us in school, especially in math when we have to build on numbers during problem solving. I can’t do math work in my head because I can’t keep numbers in order or visualize then

[@Kalena0982]

I have PCOS as well… I was 138 at my “heaviest.” When I was diagnosed with PCOS, my weight skyrocketed! The most I ever weighed was 213 pounds, I’m only 5’2”. It’s extremely hard for me to lose weight also 😞

[@CSDreamer]

I am so glad you speak about these things, Jackie. I've been chronically ill my entire life, and I started gaining weight in primary school. Issues developed over the years. I know exactly what you mean when you said the doctors didn't listen. I've had a similar experience with a doctor telling me that no person can have such varied symptoms and that I should get psychiatric help. I've been to plenty of doctors, and most of them don't see me; they see my weight. I am at the point where I've given up trying to find out what's wrong with me, and I've settled for managing the symptoms. Some days I can do stuff, and some days I can barely move. I've recently started playing with clay, which was how I discovered your channel. It relaxes me and keeps my brain from fixating on things I can't change. And you are very intelligent.

[@ivykat9009]

I actually have a chronic illness called Addison’s disease and I’m also married. He’s so supportive, and is always around when I’m nit feeling well! It can be rough I don’t sweat at all, I usually do ok, but of course they’re days I feel rough. Glad you have such a supportive husband! Hope your back is healing up, and you’re feeling better! Love you tons!!

[@CraftyWitch1990]

I'll do you a swap for a day! One of my many illnesses/afflictions is hydrodenitis so i sweat way too much. 24 hour switch? 😂

[@winterbluwolf8232]

I’m glad you spoke of the manipulative prideful Karate Instructor. He probably did this to other students after and this can be scarring to many. Jackie I’m glad you realize it wasn’t your fault and put it out there ☺️👏🏻

[@thatvonchick]

I'm glad Pat is more comfortable to be on screen with you

[@Trekie386]

Watching you 2 interact makes me sooo happy. He truly loves you and would give you the moon and stars. Yes, we are going to swoon over Pat because who wouldn't want a fantastic guy like that in their life? Praying your 2nd surgery goes well. I laughed so hard at the "Next Avenger" comment. Jackie as "SuperSaltE" in a costume with a salt shaker on it, lol.

[@myrliegirl]

Your podcast has helped me in so many ways. I feel so less alone. I have brain fog from chemotherapy and it gets me so down on myself. Thank you ❤️

[@karenthomas2302]

Just watched this and wow the things your have been experiencing I seem to have the same crap going on, brain fog is the worst, I leave me sticky notes all the time to remind me that I need to call the bank or have a Dr appointment the next day, or that will be slipping my mind, and weight gain, 🤬🤬🤬🤬 I went from 140lbs to now 220lbs and that was in 6 months. I could gain 20 lbs in a month, it has been angering and causing my depression, I have pain in my hips, to my neck. And like you my dr don’t seem to hear me. My largest down fall is I have COPD, and I’m a old lady, so I feel defeated. I was the person that would work my job as a care giver, and my weekend help “my ex” build a porch. Now I hurt with ever step, and ppl around me don’t seem to believe me, is irritating for sure. Thanks for saying this is real. Hugs

[@danskrista]

I hear you and I believe as I too am going through it and I've discovered unless someone else has or is going through it they don't believe.

[@composing-chaos]

I have chronic hidden illnesses, as well. My husband is the most amazing support and partner. Others cannot understand like he can. He has seen my journey and frustrations and has stuck with me all the way. On another note, I’ve made gluten free pizza crust with shredded chicken. It’s amazing!

[@CraftyWitch1990]

Mushed up cauliflower works great and tastes pretty similar if that's a thing you can tolerate :)

[@CraftingwithEB]

Yes I have eczema as well I went on keto and it has help me but if I have cleaned more the chemicals can make it act up as well

[@virninjawilliams7251]

As someone who is newly gluten free, I feel so much about when you talked about that part. I'm trying right now to convince my husband we should both be tested for food sensitivities, as he has some issues too. It's a hard change to make.

[@bendietrees]

I have Hashimoto's too Jackie. It's been a really rough several years since my diagnosis. I was living in Australia when I was first diagnosed and none of the specialists took me seriously - very few will actually look beyond your lab result numbers - they tell you it's in your head if your numbers are "within range". Can't tell you how many times I cried trying to explain I still didn't feel right. Two doctors told me to see a counselor! I'm back in America now and am using a service called Paloma Health which has doctors who actually treat your symptoms rather than base everything on the numbers. We've been trying two types of medication and my latest lab results are so weird that I'm going to request trying a natural desiccated thyroid medication. Hashimotos sucks. Also I gained back over 100 lbs which I had worked so hard to lose. I was so fit and strong. Life right now feels like a bad nightmare 😔😣😩

[@lizzgage3523]

I wish I could find someone who loves me like Pat loves you. How wonderful.

[@valkyrie2443]

Every word of this is so true. I spent three years listening to old white men in white coats tell me that nothing was wrong with me, that I needed to lose weight, that I needed to be on anti-anxiety medication. Last year I finally got a specialist to run some tests and was diagnosed with Multiple Sclerosis. All I wanted to do when I heard the diagnosis was to call the dozens of doctors that had ignored my symptoms and show them the scans of my brain covered in lesions. The more that these types of situations are talked about, the better chance we have of improving it for future generations. Thank you Jackie and Pat, for sharing your stories and using your platform to bring light to a problem that has effected so many.

[@janegarrett8245]

I have hashimoto's and celiac (among other things) and a few doctors told me it was "stress" or my diet... the way we treat women in medicine is horrible.

[@FrailSerenity]

All sorts of this! The amount of times my pain was brushed off as post partum just because I'd just had a baby, but it was nothing even close 🙄

[@TheNadinucca]

As a teenager, I once fell and sprained my wrist... The doctor had the AUDACITY--THE AUDACITY!!!--to say it was some silly teen complaint and that I was making it all up. It's been like 20 years and I'm still sooooo pissed.

[@virginiafield1443]

I had my primary doctor ask me if my gallbladder issues were all in my head .... I had test results showing my gallbladder was bad... she didn't even look at them. Talk about a mind f*ck.

[@lokicooper4690]

@@virginiafield1443 That is when you find another doctor. And let her know why. That's so wrong, and she shouldn't be a doctor if she's going to assume things are in patient's heads when the actual proof is right in front of her.

[@winterbluwolf8232]

You guys been through a lot together through the ups and down ☺️👍🏻I can understand the “frustration cry” 🥺I’ve been through that myself when I ended up type 2 diabetes and my weight just went up regardless how healthy I ate. Before we met my husband was misdiagnosed to being lactose intolerant for many years. When we got married and moved to north California, we went to a good honest hearted Doctor who told him “try the glutton-free diet” and my husband began “deflating” 😂 he was so happy he can finally enjoy milk!

[@dianekane4084]

With all the horrible negative press on marriages, we need to remember they only expose the bad, never the good. Stories like yours and Pat are a welcomed treat. No marriage is perfect. What is so special about yours is how willing you are to serve each other. As you said, you are partners and obviously friends. Thank you for sharing.

[@HoneebunnySapphire]

The memory loss is one of my biggest pet peeves of my chronic pain disorder. I used to have a photographic memory as a kid, but nowadays, my memory for most things is awful. People just don't understand unless they've dealt with it, I find.

[@MandaPanda254]

I'm much the same, it's so frustrating and depressing to deal with. People don't realise how upsetting it is to constantly forget simple things

[@CraftyWitch1990]

Same. When i was a teenager, i would be able to remember a new phone number within 10 minutes of getting it. These days, I'm lucky if i can remember it after 6 months. There's a lot more but that's just a simple example

[@Wh4t0n34rth]

"This video is sponsored by Pat..... The man who tasted expired coca-cola, tried on the hot glue slipper, and the INTERNET FAMOUS husband...... More about that later on in this video".....

[@yooralla]

You mentioned Italy - they are very strict regarding gluten and you will find gluten-free restaurants and food in shops. My friend has celiac disease and uses a lot of products from Italy. I'm sure Pat will have a great time there. Just do some research. :) As for deodorants, I use rock mineral. Nothing added. Completely natural. Might help you.

[@Kreative_Rainbow]

Jackie you found a real gem there!! 🤗😍 He seems to be a real gentle man who loves you totally!! 💖💖 The chronic illness issues are so stressful and the medical system doesn't help. I'm glad you could keep going to find a doctor who listened to you! For Pat, I'm glad you found dietary changes that improved your help. Something we found with our 9 year old is that she reacts to soap products, which includes shaving cream. We have had to encourage her to use antibacterial soap substitutes instead. So like alcohol versions: germ-x, wet ones, baby wipes, etc. It seems to have dramatically reduced her breakouts. Unfortunately, since slime contains a lot of soap products, we had to remove that from her activities. That was so hard for her. 😢

[@EllieBeanz637]

He is 100% a keeper =D I feel you when you said you cry when frustrated. I'm the same....and when I'm angry. I've suffered from Chronic Pain since I had an operation on my back 13 years ago, my man is super supportive. Always available for hugs, understands when I just want to lay down and sleep and, when he realises I'm having a flare up, will do whatever he can to make me more comfortable. I'm a lucky girl ❤

[@urbangrandma1092]

What a great way to start the week, Mr. and Mrs. NerdeCrafter. Loving it. Love to see you guys together. I feel your topic my hubby loves me though my pain and sees the person behind it. It's rare, precious and you guys have it. Lots of couples don't make it. One or the other just doesn't adjust to their new normal . You are among the lucky ones. May God continue to bless you both and keep you on the healing path.

[@fyredance]

It is so important to be an advocate for your own health with doctors and find one who will know what the appointment is about, listen to the patient, and actually help find a solution. I had to go through that with both my endocrinologist (I adore my current one!) and Kidney doctor. When I was on dialysis, I kept gaining weight when I shouldn't have been, and my current doctor wasn't very proactive. She said I "just needed to poop some more" and when that wasn't working she just wanted to chalk it up as "it is what it is". I actually sought out tests and contacted the surgeon who did my PD Catheter. As it turned out, the tube of the catheter was too long and interfering with some scar tissue, so had to be cut shorter. If I would not have done that, I would be dead. I'm really glad you persisted and got the help you needed!

[@aezrii]

Oh goodness. I also have pcos and been doagnosed for years and I cannot emphasize enough how hard it is to lose weight. I also don't eat poorly, I love healthy foods and at best I can maybe maintain my weight. I feel you so hard it makes me want to cry. It's so so hard. I'm trying every single day to try and figure what I can do to balance my hormones because I know that's the key for getting back together.

[@Telenaus]

37:23 thats my adhd mixed with chronic pain,, flat out idont see it it doesnt exist even if i like make a mantra of its in the fridge when i get to where i need it poof i forget where it is, & with this years brain fog its gotten so bad sigh, but im glad you have some drs working with the you

[@Uselessbian7435]

I'd love to listen to a podcast about your guys' proposal/marriage story

[@3hearts1lifeyo-yo42]

YES! So glad I'm not the only one who wants to see/hear about that.

[@janiceperla5506]

When I went to Italy we ate a lot of food that was not pasta. They have a lot of Delicacies such as Quail pigeon, octopus, squid squab, chicken that they'll pluck right in front of you. Duck lamb and a whole bunch of veggies

[@ariannamolinari1473]

Hey Jackie! I’m Italian and my mum is celiac. Don’t worry about what you’ll in Italy, we are more than organised for gluten allergy or intolerance. You'll have A LOT to choose from. Also, normally in the same restaurant the I have 2 kitchens, one just for celiac plates and another one for normal customers, so you'll be able to eat whatever you like together!

[@ginabelanger995]

Jackie, I have worked for an allergist office and sometimes people come across either nightmares or becoming extremely anxious when they're ingesting items that they're allergic to it's your body's response telling you it's toxic to you. It can be a feeling of impending doom , anxiety, uneasiness and or nightmares. This could be the reason why Pat has nightmares or night terrors when he has milk. Just figured I would share this information since Pat had said he is not sure why this happens. Of course I'm not 100%, this is his issue but I have heard this a lot t from patients and the doctor used to explain this to them. Its nice to see how supportive you both are if each other. I enjoy your videos and podcasts . Thank you for doing what you do. 😊

[@MarinaAstraAngel]

I so glad you have a supportive husband who is there for you. I've had guys in the past break up with me over my disabilities or not believing that I had them in the first place. I have a supportive one now. But I also get how frustrating it is to go to a doctor and be told it's in my head. Took several doctors before I was diagnosed with epilepsy and fybromyalgia. I also have a hip injury from a car accident and my boyfriend has 5 slipped discs in his back that needs to be replaced. The doctors listened to him and got him treated and settled out with insurance within a year of the accident. I'm still struggling to be seen and heard and I swear it's because I'm a woman. Anywho I hope your second surgery goes well and that you are feeling better soon.

[@loopyfrog]

Jackie, it's called LOVE - that's why :) you silly wonderful goose hehe

[@loopyfrog]

officially a Patrick fan now hehe

[@SensLover19]

I am so glad and grateful to the both of you for making this podcast. As someone who suffers with depression and anxiety, I often wonder if someone could ever really love me with all of my issues. And the two of you have given me hope.

[@disneykidatheart8691]

Hi Jackie and Pat of course 😁 I wanted to reach out after watching this episode of coffee and conversation. I'm so glad you approached the subject of having chronic illnesses and relationships,...thank you ❤ I first experienced major health issues back in 2009 but it was constantly mis diagnosed, mostly blamed on my mental health or in my mind as i have also struggled with my mental health since I was young, at the time I was happily married with 3 boys and life was good 👍😁 Unfortunately, my health rapidly went downhill and due to copious amounts of medication prescribed by the doctor, I lost all sense of myself...resulting in my marriage failing within 2 years and my husband choosing to walk away 😥 A long few years and many more doctors opinions, I was finally diagnosed with chronic pain/fibromyalgia a couple of years ago, got the correct medication and got my life back on track, well as best I could being a single mum of three. I totally understand your frustration with doctors fobbing you off, I have had the same experience and it is incredibly frustrating when you know what is going on within yourself 😒 More recently I have also been diagnosed with early osteoporosis due to being mis treated earlier down the line and now have fragile bones on top of constant pain throughout my right side 😐 Main thing is...no matter what has happened or is happening, I stay strong and keep on going 💪 😁 I love to craft but my health limits me a lot, especially being right handed and the pain being my right side mainly but when I can, I do enjoy crafts ❤ I treat myself to your craft box for my birthday this month, can't wait and I just wanted to congratulate on such a good job 👍😁 Stay happy and strong 😁 Make sure you keep taking great care of each other ❤ Sending lots of love all the way from the UK 🇬🇧 been a fan for years now but I am guilty of being subscribed and just watching your videos but not liking or commenting 🙃

[@christaduggins4250]

🌞🌡🏖🌈Awesome video! You can see the love in both of your eyes when you look at each other! It just beams for both of you! I've been with my hubby almost 35 years we just celebrated our 30th wedding anniversary! We're so lucky to have each other! #Grateful lol TYSMFS

[@OhItsLiss]

I've always loved your crafting videos but these podcast make me realise you're truly a beautiful soul! Pat too.

[@Picklesboothe57]

Thankfully you two found each other. You have a great hubby. Love the pet name also, my hubby and I call each other Mama and Papa Bear. Our dog is Bear Bear too. 💞💞Hoping your surgery goes well too.

[@Cosmonitten]

And once again Pat gets bonus points :D I think you guys are made for each other and really bring out the best in each other. I have to say also, I really like these "Coffee & Conversation". Have an awesome day, both of you

[@missyb5255]

You both are just the cutest ... You are perfect for each other ... Good luck with the 2nd surgery ... Take care of yourself ... Just do what you can ❤❤❤

[@pennydreadfull]

You two are an adorable couple! Hope you both have the best life together!

[@mirjess100]

Always looking for your podcast every Sunday. You two are so cute, perfect mates.

[@sheepnhaystacks]

You are so inspirational! I had a bad bout of family stress hit me all at once in my early twenties, had the worst flu and developed a goiter. Found out right away that my thyroid levels had tanked. And 6 yrs later found that I had Hoshimotos. I felt better being on ashwaganda supplements for stress, my thyroid pills, earing gluten free and light exercise (anything too strenuous causes my thyroid to go high and plummet again). But life happens, and I've gone back to my normal eating and you addressing this today helped me see I got some work to do!! Take care, hope your recovering well from your second surgery. I live near Denver so hi from Colorado!! ❤

[@luckycharm3148]

I live in Italy and a friend of mine is also eating gluten free due to allergies so if you do some research you can find gluten free restaurants here as well💖

[@rehannaagrela8454]

Again I say your Pat is a sweetheart. Definitely a keeper. Big hugs all the way from South Africa.

[@FruityNutLoops]

Aww you guys are such a lovely couple 😍 You have a very similar situation to myself and my husband too, he's a type 1 diabetic and he also has to eat gluten and dairy free because his intolerance to them really mucks up his blood sugars, and I have PCOS, Psoriatic Arthritis and a litany of other autoimmune issues as well as being agoraphobic and severely anxious. I swear I don't know how or why he puts up with me sometimes, especially when I am bedbound, but we've been together for 20 years now, and got married 5 years ago, so I guess he's in it for the long haul 😉

[@Esther-rehtsE]

Great conversation, thank you for uploading. I think Pat's right; mostly the normal doctors work on the symptoms; they know so little about such a little piece of you. We are more than just a meatsuit, and everything has effect on eachother, they don't learn that in their education. As I discovered most things nowadays are a result of our "bad" mindset and indeed stress. I had also problems with a few things and what works the most for me is; getting the stress out of my body, and the dirt, and work on my mindset. Doing the innerwork. I had a lot of help with that from doing Qigong, drinking zeoliet (for getting the dirt and metals out of your system) and listen to podcasts/read books that are about taking back the power/control of your own life/mind/thoughts. That really changes my life for the better, maybe it will work for you too....much love💜

[@serenity5535]

Good morning Jackie and Pat. I can so relate to this podcast. I have pcos, RA, fibromyalgia, and diabetes. Other things, too, but these are the big ones. Sometimes I feel like such a burden to my hubby, but he is so wonderful. He never makes me feel like I am a burden to him. He just helps me when I need it, and never makes it seem like a big deal. Just like when he broke his back in a motorcycle wreck, I pushed myself to take care of him for three months. Yes, my health took a turn for the worse because of it, but it was worth it. I did what he needed me to do, things he wouldn't want anyone else to do. That's what marriage means. You two are a prime example of what marriage should be. Jackie, have you been checked to see if you have fibromyalgia? I ask because you were describing suffering from brain fog, a symtom of fibromyalgia. I hate brain fog! It makes it so hard to think, and my memory just goes out the window. Good luck on this procedure, I will keep you in my prayers. Tell Pat to keep up the good work in taking care of you!😉🥰😺🐼🐻

[@SammyCrysD]

A little late, but I completely understand everything. I went from like 140 to 201 in like a year and lost my cycle. I am lucky to get a doctor who sent me to a good gyno immediately, but the PCOS made things difficult... Which ended up revealing a tumor on my pituitary and another issue. However, I so understand the relief when you find people who will listen and actually getting the diagnosis.

[@jacqualinegodzinski2718]

I am 60 years old and between bipolar life that included 24 ECT treatments that took all my memories and finding the right doctor❣️and over 28 surgeries my whole lumbar spine and cervical spine and other s through out my body. I asked my husband to divorce me and he told me we took vows when we married for better or worse. This is our worse and I love you and the children need you to get better❤ we just ceIabrated 35 wonderful years. I can feel your journey strongly! God bless you both with love and courage!❤

[@TarotLadyLissa]

I have an autoimmune disorder too. It came on slow and all of a sudden, BAM! Full-blown chronic illnesses. And I've learned that autoimmune issues can cause a myriad of comorbidities (other diseases caused by another disease). I have rheumatoid arthritis, peripheral neuropathy, fibromyalgia, and complex regional pain syndrome (CRPS) that was caused by the neuropathy. The RA and Fibro are likely caused by the same autoimmune disorder. So they all link together, most likely due to the same autoimmune disorder. It's frustrating, confusing, and depressing at times. Especially since they are all "invisible" illnesses. My husband is so supportive, but I feel like a burden at times too. It's ok, we have good men!

[@Cthulhuhues]

My therapist and a teacher used this to explain neuroplasticity is your brain is a snowy plane where you tread and leave footsteps with your habits and treading in a different direction is hard because you fear getting lost but when you repeat the different habit the old path will fade away in other words you can always learn new things and better ways to grow

[@karrie7102]

My husband has the same eczema issues Pat has, we have been to so many doctors over the past decade trying to get answers. We have been given so many creams and done so many biopsies. No doctor ever mentioned his horrible, bloody, swollen eczema outbreaks could be linked to his digestive tract. Thank you SOOOO much. I feel like we have at least another avenue to try to address with his doctor.

[@brittanycampbell4381]

JUST POURED MY COFFEE !!! Couldn’t have been more perfect timing !

[@Niakoda]

I think you guys just solved something for my SO. He had been having horrible nightmares and I just realized he started drinking milk to go to bed again... Thank you!!!!

[@CaTiNtHeNiGhT]

I have something called HS, I have chronic migraines, and my eczema has been awful my whole life. It would get so bad (and still does), cause infections. It's awful. My hands get so bad and cracked I cant move them either. So I hear you guys! Wouldn't wish these illnesses on anyone. Not even my worst enemy.

[@Postwarinktrap]

Girrrrl, this video has me wanting to run back to my doctor's office and demand more testing. A year after I had my first kid, my body was functionally never the same. It was so bad and my levels were so off that my naturopathic PA sent me to a rheumatologist. That specialist could tell from my labs that something was wrong but couldn't definitively say what. Now I'm 21 months post-partum and SURPRISE knocked up with my 2nd baby, so I don't know if getting my thyroid checked out again now would yield anything. I'll probably have to wait until 2023 to get anything done about it even if they can name what's wrong with me. I hate doctors sometimes (T^T)

[@Happinosis]

Neuroplasticity is amazing. I treat people with PTSD and even little things like practicing gratitude change the neural pathways in your brain and make new connections. Meditation is also very helpful.

[@gayleearnest9075]

The struggle of brain fog is real! Forgetting things so normal for me as a migraine sufferer (on top of the pain); and running needed errands is always an interesting adventure every time I have brain fog.

[@blairsmith3434]

You both are so perfect for each other. I just love how you both lift each other up.

[@WillowRavenzMysticHealing]

Just take it easy my lovely crafter, don’t push yourself to be back doing all the things. It will bite you in the ass, trust me I tried after my discectomy at L5-S1. There are days I can not walk due to nerve pain. I had a job and after 8 weeks recovering they expected me to be back at full time, tried 2 hours for a day good, 4 hours the next few and I was down for days. Crying in pain unable to do anything not even cook for self. Going from completely physically abled to disabled has rocked my self image. I don’t look dented but I will straight fall/controlled drop at a touch of the nerves whim. I am 4 days shy of 1 (aug 5) year since surgery, and now I’m crying knowing I’m not where I want to be physically, unemployed and waiting on disability. Be easy on yourself hun it’s hard to be still but listen to your body when it says stop don’t push it.

[@peachescozynook9003]

I wish I had someone like Pat. I got married back in 2015, and since then I have been diagnosed with hypothyroidism, diabetes, psoriasis, and psoriatic arthritis. I've also had surgery on both of my feet to repair damage. My husband started treating me differently, and I don't like the way his attitude towards me changed. I went from feeling loved to feeling like I'm a burden because with all my stuff going on I am constantly tired, even with a CPAP. Now we are on the verge of splitting up because I just cannot handle the treatment.

[@Syrenverse]

My sister has back issues, pcos, and heart disease….. she went on keto and EVERYTHING is better. Her heart doctor cleared her to be on it and her pcos is gone, heart disease gone, her back pain gone. She looks great has more energy and even her mental status (memory and health) have improved sooooo much. I know a TON of ppl don’t like the very idea of keto but definitely talk to your doctor about if it’s safe for you!

[@sarahpierce1316]

Just sold out and bought Starbucks for this. Lol I wasn’t prepared at all😂 oh well I got my coffee and I got my Jackie so I’m good! Hi Jackie!!!

[@Happinosis]

PS I have Parkinson’s disease and feel like a burden to my husband, he told me recently that’s insulting to him. Worth a thought. ❤️

[@jocelyncharvet4585]

I think Pat is really onto something about the body imbalance. My friend and I both have hormonal imbalances (PCOS) and started seeing an OB/GYN who specializes in NaproTechnology. It's already done wonders for me. She at the beginning of her journey. I'm so happy you have each other to lean on through these hardships. ❤

[@lindawalker8239]

Today would have been my husband's 75th birthday. The two of you have the sweetest relationship, and make me remember what I miss.

[@itsonlymarcibratz1991]

#COUPLESGOALS Jackie & Pat you uplift & encourage one another& flirt adorably & I AM HERE FOR IT..

[@celesteamberbagley3996]

I’m the same with my doctors in the past. I had to get two other people to write what they saw in me. Then something was done about my PCOS. I hated being told it was in my head or told to lose weight. It was the same when I began telling them about the pains and extreme exhaustion. It was all done to my weight until I saw a totally different doctor who knows about Fibromyalgia and diagnosed me.

[@ranb_fann9436]

I have chronic issues, the doctors also and still say it's all in my head. The pain sometimes is unbearable. I have exhausted many medications bc I am allergic to it. My fiancee has been with me but sometimes it is very hard. He tries to understand and is supportive but its frustrating for us both. I too have eczema, I get it on my eye lids. It would crack bleed. It's awful! Sun helps too. Thank you for sharing your story ❤

[@munchie8485]

My partner is a keeper too! We've been together for 17 years. My nickname for him is Monkey and he calls me Munchie. 😍 I've got Crohn's (luckily mild) but he's seen me during flare ups and has supported me while adjusting to Fructose intolerance and even when I suffered a cardiac arrest in 2019. All the best with your back treatment!

[@jessi4894]

I just opened my Rockstar, I am so here and ready for this

[@danahuffman9539]

Yes some Jackie and Pat. Cannot wait to listen once I am done with all these errands.

[@haleylarsen1301]

Dealing with autoimmune disorders is very rough. I have elhers danlos syndrome, pots/Dysautonomia, mals, and nutcracker syndrome. I remember i used to complain about my health feeling tired no motivation and some symptoms of the issues but i was still "normal". I met my husband in 2013 so he has seen the whole medical process for me. To say it's been rough is such an understatement. After i got pregnant in 2016 had my daughter 2017 everything went down hill. All the symptoms hit so hard! But now 2021 i feel like i can't get myself back to before having my daughter. And i wish so much that i could.

[@maxinemann2490]

Marrying someone who is your best friend is a blessing. I'm sure having chronic illnesses that so totally disrupts who you are can put a strain on any relationship. The fact that Pat says he still loves you and finds you beautiful means that he is truly in love with WHO you are not WHAT you are. He loves your soul and that, my friend, will last an eternity. Prayers for all the healing that you need. Don't over do because you feel well right away. Take your time. You and Pat have a lifetime to go and do. I live in the US so I'm not sure how Canada health works but maybe seeing and endocrinologist would help find the root of your Hashimoto's and PCOS. Just a thought....

[@marissalovesart]

I swear you could be describing my chronic pain journey exactly. I once had a doctor tell me after 2 minutes with (after having me wait 3 hours after my appointment time and 1 hour after they closed) "I think you have IBS but this is my last day here so I didn't look at your chart very well." I do not have IBS. I have nerve damage. The only doctor to ever listen to me was a civilian pain specialist not any military doctor.

[@laurenhunter9214]

Sending love and light to you for your procedure. Hope everything goes well. Stay safe 🤘🏻💜🤘🏻

[@angelabohot7435]

He is the sweetest man. He loves you so much. Dont let him go.

[@noeleenbyrne5197]

See, I knew I was a panda 🐼 lol. You guys are so cute 😍, couple goals, x

[@gailburnette]

I hope the surgeries are helping! Also, I’m so excited for the craft kit!

[@pweinbergmay18]

I know this is an old video but I hope you see this. I've been watching you for years now and today watching this video and hearing you talk about your memory made me feel like I wasn't alone. I got really sick when I was a teenager and my memory has been a mess ever sense. To know there are people out there that find people to be with like you and Pat gives me hope to find someone so understanding some day. Also I hope you have a good day!

[@ladypseudo6096]

My old doctors did that to me, too..... They actually diagnosed me with some sort of psychological condition where I was making symptoms up in my head and as a result actually feeling them. Not hypochondria, some fancy medical mumbo jumbo name I can't recall. For a long time this fancy named illness was listed on my care plan, and one day I saw it, looked it up and was absolutely furious. Because I had switched doctors at this point, the new doctor was amazing and told me I was diabetic. And sent me to a specialist to look into my numbness/twitching/cramping of my legs and arms, the pain in my back that felt like I was constantly being stabbed by Freddy Kruegar.... The specialist diagnosed me with diabetic neuropathy. All the pain I was feeling was absolutely real, and for months they still had me listed as having this medical mumbo jumbo named psychological condition. I don't know if they've removed that condition from my list, I should check on that. But man did it make me mad, they were telling me I was making things up in my head even though they themselves had a specialist telling them I was actually suffering stuff.

[@CraftyWitch1990]

Psychosomatic?

[@ladypseudo6096]

@@CraftyWitch1990 No, it just hit me, Somatic Symptom Disorder. Somatic symptom disorder A somatic symptom disorder, formerly known as a somatoform disorder, is any mental disorder that manifests as physical symptoms that suggest illness or injury, but cannot be explained fully by a general medical condition or by the direct effect of a substance, and are not attributable to another mental disorder. It's what an old doctor tried to say I had. But a newer doctor said 'Oh hey, you're diabetic', and a specialist said 'Oh look you have diabetic neuropathy'. And then they looked at my chart with a 'WTF' expression. Edited to fix spelling and add the definition of SSD.

[@katej9934]

I was diagnosed with ibs-d and hashimoto's this year. Hashimoto's wasn't surprise for me, because my mother has it. I couldn't get any help with ibs-d (I pretend, it's in my head, it's something else etc). I was so frustrated that I went to the private doctor with prepared diary of my symptoms with dates and time and what I ate before (if I ate at that time). She diagnosed ibs-d, gerd and sibo. I stopped eating milk products and sweets and overall things that could cause pain. I took transcribed medications and probiotics. Now I'm eating 1 lactose-fermented cucumber (I'm from Poland) daily and for now I'm feeling better (that was my idea to improve my gut microbiota). There are researches that check if the imbalance of gut microbiota can influence various chronic diseases (such as hashimoto's and diabetes). Hope to have more knowledge and proves. If you have any problems, you can check your gut microbiota. Maybe that could help at least a little.

[@JillAC66]

I also have Hashimoto's. Didn't kick in for me until I was 24 - after my first child. This was in 1990 - they didn't call it Hashimoto's then - just "your thyroid quit working - for some reason - it happens to 1% of people" -- when my youngest (at 19) started to show the same symptoms I had, I took her to the doc right away - she was tested & diagnosed with Hashimoto's. THAT's when they finally tested me for it - surprise, surprise - I have Hashimoto's. I'm so sympathetic about the weight gain - the hardest part of this illness is being told that I have to get used to a 'new baseline'

[@silverdragondawn1683]

You both are so adorable. You guys have made my day. Hope your back gets better.😍

[@kurocyanide5781]

My gosh. You guys are super cute. The relationship between you two is super strong. Sanaol

[@christinahutchison3967]

I wish my husband had been that supportive your very blessed.

[@lilybdcsa]

I have a chronic skin condition. Eczema-like. I was told it’s allergy related. I am going to get allergy tests soon. My doctor has me take bleach baths which really helps. I will try eliminating dairy and gluten like Patrick did.

[@JenWith1N]

Hashimotos club too. And trigeminal neuralgia. And arthritis. And degenerative disc disease. And idiopathic hives and angioadema. My WONDERFUL husband has taken up the reigns for laundry and dishes 🥰 I feel spoiled But cared for.

[@mijskes1803]

Love your podcasts, don't worry to go to europe! Glutenfree pizza's and other foods are more and more made (and taste good) lots of love from the Netherlands!! ❤❤

[@Elentarien]

So sorry to hear you're dealing with this garbage too, Jackie. It's not fun. But I am glad your husband is supportive and understanding, that alone can go a long way. I also deal with many of the same issues you are and - yes, it was triggered by some emotional trauma and extremely high stress over a long period of time. (Stress, that, unfortunately, I have been unable to escape 25 years later) It set something off and the problems seem to keep stacking up. Unfortunately I have not been able to find any good medical help. I've received some diagnoseses (diagnosisies? diagnosisis? lol Whatever.), but yeah, the doctors seem unable/unwilling to actually HELP and I sort of gave up. It's become literally more of a control it issue than anything. For me, my mom got me a dog and that's helped with the depression and gives me a motivation outside myself to get out and walk every day (as weather permits anyway). And yeah, I try to eat healthy - mostly - and at least do what I can. Since the doctors can't really help, I've dug around for more natural 'helps' and . . .it mostly keeps the pain under control. Unfortunately so far nothing has 'fixed' it either, but it's better than nothing. In some ways, I'm glad to hear others are in similar plights. Not that I wish this on anyone, but it is nice to know we are not alone. It helps if you have someone to support you, but we do have to keep in mind this is NOT our fault or our choice. I'd say the hardest part? Being labelled 'lazy' and 'useless' because we can't do what is 'normal' for people to do. But we simply cannot do some of this stuff. As you mentioned in another video, got to guard our few teaspoons of energy and decide whats necessary. I hope things improve for you. Good luck with the back treatments.

[@samanthajohnston9269]

So funny when Jackie tells Pat, " your chronic" lol too cute!!

[@xFaylinnx]

Hey Jackie! My mom has celiac disease so everything she eats has to be gluten free too. Have you tried egg based pizza for breakfast or cauliflower based pizza for lunch? Those are definitely gluten free, super healthy bases and can be home-made! :D

[@gail8834]

I was misdiagnosed for years myself, and it was horrible. When I finally was diagnosed with multiple endocrine Neoplasia type 2A (MEN2A), I already had stage three medullary thyroid cancer and bilateral pheochromocytoma. But all the things that happened to me before I was diagnosed were horrible. I have these headaches that made it feel like a Mack truck was running over my head for three weeks and then that three weeks I lost 30 pounds. Still they just diagnosed me with sinusitis even though my sinuses weren’t clogged up.Doctors sometimes just give a diagnosis when they can’t figure something out even though it’s the wrong one.

[@volcanicprincess]

I can't wait to get your kit. It's the first kit I've gotten from one of my favourite youtubers. Hope you're well. ❤

[@SoCalJellybean]

I agree!! As someone with a veritable laundry list of chronic illnesses, most doctors DON’T HAVE A DAMN CLUE! 🙄

[@Oxymoroness]

I'm listening to this and my husband is in the background laughing at me... apparently we are similar in your reaction to cortisone and "over-driving the headlights."