Dr. Paolo Bolognese presents Chiari I Malformation, EDS, and Craniocervical Instability

Dr. Paolo A Bolognese is the Surgical Director at the Chiari Neurosurgical Center at NSPC in Lake Success, NY - Learn more at: www.chronicpainpartners.com/w...

[@fl3693]

We need our own hospitals with comprehensive holistic and medical care. We are LOST in the "regular" medical system. The systemic issues overwhelm the undereducated and this allows for medical abuse and gaslighting re "conversion/hysteria/psychogenic" bullshit diagnosis. This guy is decades ahead of the normative conclusions

[@tbbrink2329]

Excellent. As good an explanation of the current state of the art of understanding complex Chiari/EDS and CCI you could possibly get. It is a scientific pursuit in progress, therefore the choice of the word 'art'. Thank you Dr B.

[@KimKozak]

Noting this for reference. Dr. Bolognese is doing great work.

[@turnbullbuggs]

Brilliant

[@amgnico]

I'd love to live in the USA with a lot of money because there are such great Tethered Cord and CCI docs!

[@tiffanyspeer4661]

What are your thoughts on PRP injections prior to surgery for AAI or CCI?

[@maryr7593]

Has anyone researched Thoracic Outlet Syndrome (blood vessel being compressed in thoracic region, by various causes). YT channel, TOS MRI has many educational videos about TOS which has been a controversial diagnosis for last 10 yrs. It has lots of symptoms similar to orthostatic intolerance, headaches, painful use of arms and legs. I just discovered the syndrome which does have treatment. They say after treatment, far less pain and many ppl regain function of their limbs again. Please see if it fits anything with you or anyone you know. There is no research literature linking EDS and TOS...I assume because everyone has a hellish time getting diagnosis of either disease.

[@dancingpianofairy]

27:22 seems to be the start of the CCI section.

[@sandywhat2429]

I am going to die here in Canada here very soon if I don't get help. God help me.

[@bonniegallant6256]

I feel the same way. Nobody wants to help me. I don't know if I can live this way anymore.

[@sandywhat2429]

There aren't even health care advocates here Dr Bolognese will look at my case but I can't even find someone to help me fill out all the paperwork he needs I don't have the computer skills I'm going to die soon

[@sandywhat2429]

@@bonniegallant6256 Neither. Bless you. Bless the both of us.

[@bonniegallant6256]

I can try to help you with the paperwork if you would like me to.

[@sandywhat2429]

@@bonniegallant6256 Thank you, I need someone here in person with an updated computer and Word perfect skills etc. But thanks anyways.

[@sandywhat2429]

I wonder if any of these Chiari specialist NS's have seen patients who've stopped sleeping? I am dying here in Canada. God help me.

[@WildKatatHeart65]

"Eds people are mutants" lol

[@sandywhat2429]

Dr B has my mri's. I can't get the money to talk to him. I'm in Canada with Chiari and EDS I no longer sleep I'm going to die soon if I don't get help God have mercy on me

[@fl3693]

hugs. so sorry xx

[@charleneburgarello3618]

Do you have a gofundme or similar people can contribute to?

[@sandywhat2429]

@@charleneburgarello3618 Thank you so much. ❤️❤️❤️🙏

[@breezelight3357]

What do you mean by you no longer can sleep? is it because the pain or do you have sleep apnea caused by the EDS & chiari?

[@sandywhat2429]

@@charleneburgarello3618 no, only my paypal

[@andreaphillips7595]

Run, don’t walk, away from this guy.

[@TheGlitzandglitter]

why

[@andreaphillips7595]

Service Angel Luna long history of doing unnecessary surgical procedures... long history of settling medical malpractice suits out of court

[@dianamorris5726]

He saved my daughter's life! I will be forever grateful for Dr. Bolognese!

[@dianamorris5726]

The problem with Chiari is there is NO CURE!! Dr. Bolognese is saving the life of people that most doctors would not even try to help!! I am grateful for his courage to help and for all his research!!

[@sandywhat2429]

You could say that about any surgeon. But not necessarily true. I'm in Canada, I cannot get surgery, not really even a proper assessment