Aura: The Strange Feeling Before Seizures

[@DrOmarDanoun]

✅ Get evaluated by Dr. Omar Danoun directly, book your online appointment now (for age 16 years and older) appointment.dromardanoun.com/ In USA, please call the clinic

[@3xcancerwarrior980]

When I have an aura, I get hot, my heart starts pounding with anxiety, I feel scared, like I need to get somewhere safe asap, and it's hard to talk or stand. I get dizzy, and my vision gets blurry. Thank you for these videos they are very helpful!

[@Greencloud8]

I have the ptsd panic 😱 sometimes which is when I feel an aura coming on I’ve been asking myself ok whose in charge? Me and sometimes it stops

[@eeurr1306]

Thats literally everything I feel before I become unconcious. Even though I rather get cold and hot at the same time its weird.

[@BrettJames-f3r]

The racing heart with need to get somewhere safe . Like I'm gonna die, but if I get away I won't. But I never do. I always wake up somewhere, where I wasn't before. Very scary. I hate even thinking about the thought. It's like it can drag me into the sezure

[@angeliqueschamrel6253]

I don't just get poundings in my heart, I would first have a strong shock in my heart then only would my heart be pounding extremely fast. I also have the other feelings aswell, and it is a scary feeling. I wouldn't ever want anyone to have these feelings, not even my worst enemy. I have to say that even when I wake up from a seizure, I feel like I have gone back in time, like I have been sleeping for years and my body would feel numb, almost like I am awake but I'm still sleeping. Like I'm in a dream world, even though I do recognize the world I'm awake in. The worst feeling for me is when I get shocks in my heart and it starts pounding extremely fast. It's like a feeling that you are about to die, but over the time what I have learned to do to help my shocks in my heart go away, I say in my mind "No". That's all I say, and it goes away, it's actually amazing how that works for me, because if I don't say no, then I get the shock in my heart and my heart starts to pound extremely fast.

[@MarcymarcellaMia]

@@angeliqueschamrel6253 I am going through this 😪

[@MrAnimal1971]

Thank you for explaining this. NO neurologist in the 40+ years I've had has ever explained this to me!

[@DrOmarDanoun]

Glad it was helpful!

[@ethanrichards6979]

I get deja vu, I tell my self,I’ve seen this before, then I get worried, and my hearts starts pumping quickly. Sometimes I feel like I’m having a panic attack. Also, my vision when you walk towards a mountain, it looks like it goes further away from you, I close my eyes, relaxing and I start to see my vision getting longer and it’s SCARY

[@candicej6385]

Yesss exactly how mines be smh

[@SabrineDjibouti1606]

Hi,mine is pain in the chest and abdominal ,eyes twitching,and dizzy,no balance in the body ,heavy eyes open ot by force,and like having à panic.

[@3xcancerwarrior980]

I have a similar experience. It's very scary!

[@joneteldridge9125]

I get tingling all over, anxiety fear sets in, then the bells or ringing and dejavu my body goes in a sort of video game mode...I have to male the right choices always end up praying

[@ELCATRINMX]

@@joneteldridge9125 same brother

[@BaePlatinum]

I'm actually pretty grateful for my auras because I see them as warnings to get down and tell someone to call the number on my bracelet, NOT 911. They're generally around 10-15 seconds and feel like a pulsating dizziness.

[@nathanlaney1542]

It makes me feel good hearing someone say they are grateful and understand the benefit of these. My seizures come on instantly with no warning at all. I’ve injured myself so many times, even crashed a car once. A few weeks ago I woke up in a pool of blood on my bathroom floor with my front teeth broken. I’ve actually had to have my teeth repaired twice now due to falling and busting my face. I wish so badly I had some sort of aura so I could get down or warn somebody. I hope everything is going alright with you and you’re seizure free, this is a hard condition to deal with, we’re in this together ✊

[@kyliebarnes1651]

I get auras just before I get a migraine... So it gives me a warning to take meds too minamalise my migraine symptoms 😅

[@nickybaker1338]

@@nathanlaney1542 Oh I'm so sorry to hear of your dreadful seizures-tonic clonic I assume? Bless your dear heart. I wish you well & hope that you can find a med that works well for you & boots those seizures in the butt. 😥❤️‍🩹

[@mockingslur6945]

I have had this problem as well when I hit a nerve or something like that happen since I was a child to where I faint. This happened after I got a hip replacement and I my opening from the surgery was still healing. I got up and felt the familiar feeling happen as I let my dogs come in from outside. I instinctively knew to get to safety from my fall and half of my body got to the bed, and the bounce caused me to harmlessly get thrown off of my bed. I got up and my dogs were looking at me as if someone just died.

[@RalphDeshon9710]

I had a focal seizure at work and woke up in the hospital. All tests came back clear. I researched my situation and realized it wasn't my first seizure. I have had these auras for longer than I want to admit.At least I know now I am not going insane. It's very scary.

[@ocorley3124]

Have you had a CT scan or MRI? After I found out about my seizures, they found I had a brain tumor. I've had two brain surgeries

[@RalphDeshon9710]

@@ocorley3124 I had all tests performed and thankfully I was clear. I hope you get through this, never give up.

[@ocorley3124]

@ralphdeshon9710 that's great,vthx and good luck to you brother!

[@uniqueunique3836]

Friday at dialysis this happened they said I was stomping my feet and fighting I woke up in the hospital test came back clear my family think I’m reading to much into it I knew I wasn’t crazy

[@KRAFTPUNK]

Same bro

[@EmmyMusonda-w9c]

When I have an aura, my heart starts pounding fast, I start hearing voices and feel like I'm losing my mind. Thanks for the video.

[@j.a.fconstructionservices2661]

The same here

[@dazmindleon]

These have been helpful since getting diagnosed with epilepsy I thought I was just going crazy at times

[@RalphDeshon9710]

Thank you for saying that, before I had a major seizure I was having auras and I thought I was going insane.

[@soybeansareevil]

Thank you for this video. I have bipolar 1, PTSD, panic & anxiety disorder. I’ve been having horrible episodes lately of zoning out, flashes of lights, tingling, etc. my new dr is sending me for a MRI to rule out seizures. I feel so much better now getting a doctor that’s actually listening to me.

[@meditationpractioner5080]

Me too . Finally some answers that make sense

[@michaelquentin3782]

@@meditationpractioner5080mri only takes away a tumor potential

[@Lucas_Krantz.96]

I've dealt with a seizure disorder since around 2017 and when I get what's known as an aura, sometimes also known as an out of body experience or feeling of dejavu it makes me feel as if I'm out of my body but feel paused to reality. A feeling of zoning out but also feeling unattached from my physical form. About 30 seconds later is when I usually go down

[@phunkymind23]

For as long as I can remember, I've had what I would call deja vu attacks (intense feelings of deja vu with nausea), and I had to stop thinking and doing until it stopped. It wasn't until 2018 that it led to losing my awareness (which I wasn't aware of), and I was told I was drooling and appearing vacant. This led to my diagnosis. It's strange to look back on it now and realise they were seizures, and I always had epilepsy.

[@ellenwatts4809]

Ive had epilepsy for 25 years and im amazed how much the symptoms can change, i used to have deja-vu but it changed to ones of strong fear and now I've also started over the last 3 months to smell unbelievably strong smoke! Thanks for all the info you've provided its great to hear more details.

[@Psalm144verse1]

Give your life to Jesus and repent ✝️🙏

[@apinhmi]

Read Mark 9 siezures are curable. Jesus Christ is the key. It starts by giving your life To Jesus Christ.

[@ellenwatts4809]

@apinhmi I can't believe we have people like you, and they're allowed to vote! Tell Jesus to teach you how to spell seizure as he's not doing a very good job!

[@christianwatson2032]

What meds do u take.. 25 years is a long time you would know alot about epilepsy by now

[@ellenwatts4809]

​@@christianwatson2032I take 300mg of lamotrigine a day, 350mg of topiramate a day, 8mg of perampanel in the evening and I have an emergency medicine called buccolam

[@timmayer7248]

I have auras about once a week or so. Normally there's dizziness, a confused feeling, and my eyes go in and out of focus. But when it proceeds an actual tonic clonic seizure, the eyes going in and out of focus, as well as the confusion are much stronger. The last seizure I had (I don't refer to Auras as seizures), I was in the grocery store in the cheese section, trying to figure out which was the best deal, and first I realized I couldn't do the math to figure out which was the best deal. Normally I'm very good at math, so this was confusing. Almost immediately, my eye focus started going in and out very strongly. Once this happened, I knew it was coming, I knew that there were people around me, I thought to myself: Oh no, please not now. Next thing I remember, I was in the ambulance and these medics were asking me questions, that I couldn't answer. I must have had another seizure in the ambulance because I had more lost time, because the next thing I remember, I was in the emergency room. It's so disconcerting. I just wish there were reliable foods or herbs or whatever that could help control seizures. As it is, I'm on Aptiom and Briviact, but I would LOVE to get off those meds.

[@CarolynAitken-yp2rq]

It’s a low carb diet Tim stick to a low carb diet this was used to control seizures in children as far back as the 1920s and it really works! Look into it thanks for sharing and good luck 👍🏻👍🏻👍🏻

[@irme8930]

@opalescentmica Thank you for all this valuable advice! ​❤

[@Anony584]

Jesus healed people with epilepsy. He casted out their demons that were inside them.

[@dagmarvandoren9364]

So sad for you.....all we have is God . DA y by day..... 😮❤

[@FullmoonPhantom-dn2sr]

It doesn’t work for everyone and it was a very strict diet, but keto worked for me. Someone who the medicines didn’t help much. I had the medical resistant type of seizures. My seizures didn’t respond as well to medicine as others. Keto was the only thing that helped control my seizures until such a time I was lucky enough to become seizure free. It is a tough diet though and it’s usually only used on babies. I was one of the oldest kids on the diet when I was younger. I was on it from age 8 to age 11. 3 years. I did take medicine for like the first month. Afterwards, the rest of the 3 years was all diet. No medicines at all. I had a really bad grand mal seizure 6 months in, but that was the last seizure ever for me. I’m going on 20+ years seizure free.

[@Rceledonio]

Wow! Between the video and the comments I feel so validated. I’ve had some of these feelings not realizing they are an aura because I don’t usually have a seizure after them but I am Epileptic

[@pepperonni6506]

Exactly dude I always thought my epilepsy was gone now, but everything in this video is still going on. I thought they were normal until I saw that the people in the comments were just like me

[@celestialnymphx]

​@@pepperonni6506 same bro

[@austinhernandez2716]

I used to have it before every epilepsy seizure, and I caught on and used it to warn my parents and it worked sometimes. I was cured 14 years ago by brain surgery, but I still have the feeling sometimes, I did just now. But that's all that happens. It only lasts a few seconds. I've also noticed that it only happens if my sleep schedule is altered, like having to stay up too late, or even sleeping too much. So I have it under control for the most part.

[@maribatchelor2955]

My aura could be called deja vu, but it feels more like my mind is entering where dreams are made. I can make myself have a seizure if I focus on the dream I was having just after I wake. I just get it over with while I’m still safe in bed.

[@mariamkristesiashvili7028]

EXACTLY! I`ve been trying to explain this to my doctors.

[@msmith4767]

I also have deja vu's before my seizure as well and try to focus on something else but the seizure still happens. However, mine comes if I don't have a dream. So when I wake up and didn't have a dream, I get scared throughout the day.

[@carmenraad23]

You just described what I have been trying to say

[@lv4313]

Exactly and when I get a full deja vu it's fucking scary. Mine starts with hyper awareness, chills, then hot followed by deja vu feeling like in a dream like state, and when it gets to the point where i get disoriented and I'm deja vu mode+ the full ass the memory is affected and you can't remember who you are or what is happening and you go in and out of consciousness ❤❤

[@lashid4u371]

Closest explanation of my experience

[@andypoppey5243]

I live in Arizona, driving laws here allow you to drive as long as you have auras of sufficient timing which means that if you have an aura, you still have enough time to pull over and stop your vehicle before the big one hits. It's amazing how every state differs on driving laws

[@FoodNerds]

It’s just another form of discrimination because people on cell phones do the most damage. And heart patients or type 1 diabetes can cause accidents.

[@frankw3545]

I kinda get it. Arizona roads are 5 lanes with next to no pedestrians. NYC has pedestrians near you at all times

[@andypoppey5243]

@@frankw3545 I live in a very small town in central AZ with just a 2 lane highway unless you drive atleast 1 hour north or south to get to a bigger city. Unfortunately in 2019 I was driving in wickenburg az and had a grand mal behind the wheel. Thank God my family wasn't in the car and no one else but a brick wall got hurt.

[@Strawman333]

@@andypoppey5243I hope you’re doing well Frank.

[@bradleypollack5658]

You better be lucky you’re not in California. They’ll steal your license if you even pass out!! Arizona has good driving laws for people with epilepsy.

[@jillybeancadney6229]

I get covered in gooseflesh. Especially my face when it's happening. That how my family knows it's coming... Goosebumps on my cheeks. It's so terrifying. Feels like deja vu and then I feel it in my stomach and goes up to my head and it's like being injected with terror... It's scary.

[@Domenique89]

After my 4th tonic clonic seizure my memory has been in shambles. Very old memories feel like they just happened, other things i forget within seconds/minutes, asking partner same question, telling the same story etc. The auras you refer to, I feel like i have been having those multiple times a day since my last seizure. My neurologist has upped the medications a week ago after they saw on EEG that I have every 20-30 seconds epileptic activity. I am guessing these are the auras i am also having frequently? I have been feeling lost in the overload of information . Feel l dont know what to ask or share with the specialist to help me feel more safe and secure in the treatment. These videos have been helping tremendously though. This one in particular is at the best timing moment, gave me a sense of validation and probably more knowledge then my own neurologist gave me. Thank you Dr Danoun.

[@tjavendano]

I have auras where one side of my face gets cold and begins to go numb. It gives me just enough time to lie on the floor, couch, bed, etc. I always have a cushion closeby just in case to protect my head as I have tonic clonic seizures. Thank you so much for your enlightening videos and for bringing awareness. Blessings

[@Addy2023X]

Sometimes it can be hard to explain having auras to others who may not know much about epilpesy and auras themselves. These videos you are doing can teach those who may want to learn about it or if they have partners who have epilpesy themselves can teach them too know what he or she should do. To my own family at times it hard to explain the feeling they do see changes when I've had grand mal ( Tonic clonic ) fits/seizures to this day my family hate seeing me have seizures because they can't do anything while in one other than make sure nothing in your way by your mouth other things too. I first started to have epilepsy at six years old at first they didn't know what was going on with me after a number of tests I was diagnosed with were pulled out of mainstream school to go to a school who could deal with everything. One or two of the worst experiences I've had fighting for my own life my own fits nearly killed me.

[@kyliejacobs6817]

I have auras regularly , each month with my cycle . Since starting ketogenic diet my auras have been much less intense and I feel much better mentally and physically . I have gone from a size 20 to a now size 14 and my mental clarity is much better too.

[@aliceknight623]

what is the this diet ?

[@kyliejacobs6817]

@@aliceknight623 ketogenic diet . Check out Dr Eric Berg and Dr Steven Gundry

[@kyliejacobs6817]

Ketogenic

[@HidingSeaFoam]

Best explanation I have ever heard in my life, thank you so so much! Thank you for covering the vast array of symptoms, I have experienced every single one and it’s hard to explain to people that the symptoms are not the same with each aura, yes there are the common ones for me but there are also uncommon ones I’ve only had a handful of times. Your description of stomach pain is especially helpful, I wish doctors knew more about how bad stomach problems can be with epilepsy. Also very impressed with the way you described what feels like a movie flashing in front of you, that one was the most difficult for me to describe. It was like déjà vu but like all I could see was a flash of a memory I didn’t remember, but like my view was covered completely all of a sudden by this “movie”. This is so helpful and I wish every teacher and employer would watch this 💜

[@goddessvibes2345]

Thank you very much for talking about Epilepsy and explaining it so well. There are many doctors (including my own) who are not bothered about their patients. They just give you the diagnosis, some pills and send you home confused. I had no idea that an Aura is in fact a focal aware seizure.

[@gorgoniomendoza7648]

I will get a flash of heat and start profusely sweating. That’s when I need to find safety.

[@DrOmarDanoun]

Thank you for sharing your experience

[@mrnull682]

Get no aura for g-mal seizures just folcals & generalized

[@sarahjames1806]

Same here I can sweat through layers of clothes in minutes it's crazy!

[@tailzzzzz]

I have all sorts of auras, sometimes none at all. Actually, a car accident is what led to my diagnosis. Doctors were blaming it all on anxiety. Sometimes I'll start sweating profusely and feel jittery, can't think or focus. This usually leads up to a metallic taste/lightheaded spell. Other times I can actually feel the electrical current move from that taste to smelling that taste, following by nausea. The current is not painful, but I can feel the abnormal bursts of current travel. All brief. I had an unusual aura back in August 2022. I was walking down the stairs, about half way, and froze. I knew something was going to happen, and it's as if I was being instructed to make a decision. Do I want to try to run to the bottom and hope I make it or sit down? Neither was really safe. I was going to try running, but too many milliseconds had passed that I decided to sit down on the stairs. I can even remember sinking into the step. Some sleep seizures will wake me up, have me stumbling through the hallway to the bathroom. I'll feel disoriented. I often go downstairs for a bit, and if it continues, my head will drop. Medication reduced those episodes. My favorite ones are when it feels like the universe is honing in on me, almost hugging me. Everything looks crisp and warm. The greatest kind of aura. Only one of those.

[@kingrex593]

@@sarahjames1806 Does that turn into a tonic clonic or is that your focal seizure ?

[@cheeseburger8055]

May Allah reward you my dear brother, jazakh Allah Khair for your efforts!

[@milox875]

I have them lol it’s like auditory hallucinations or something.pretty scary yet helpful for me because i can tell people around me that i’m about to have seizure and lay myself to the ground or go to a safer place all within 15/30 seconds.

[@DrOmarDanoun]

Thank you for sharing your experience

[@ruthvikhindu8901]

Same bro

[@AVToth]

I ignored my warning aura. It kept getting stronger and I was afraid but still ignoring it. It took my first ever hallucination, Yoda, dressed in Ewok garb, really mad, telling me to take my med & get into bed, NOW! I did but it cracks me up the lengths my subconscious went to in order to make me listen.

[@KingFlintmore2000]

same here either I can tell them and get my self to the ground or yell

[@j.a.fconstructionservices2661]

Me too had auditory hallucinations due to CVST which happened to me in June 2023

[@Ceejay-q6v]

Gonna be honest. Just ignore my other comment made on one of your other vids... you have actually given some of the most useful info ive gotten yet

[@Eivind.A]

This is how I feel every time a seizure starts: I first notice a small red dot up in right part of my eyes. This red colour then spread all over, and I get a weird kinda good rush, but still a bit scary feeling. The best way of describing this feeling is listening to the background sounds in The Beatles's song "Tomorrow never knows" with the volume turned up to 11. This lasts about 30-40 sec, before "the real" seizures appears. Can take hours before I'm back.

[@hilmanrahadian27]

I'm from Indonesia, as long as I suffer from and was diagnosed with epilepsy, it turns out this is the answer I've been looking for, thank you, doctor 

[@stephenbrydon7496]

Thank you for this video, I haven’t had one in a long time, but in the shower last night I all of a sudden had intense Deja vu and started remembering an old dream from years ago (I don’t remember the dream itself now, just know that it was OLD). I remember hearing some repetitive song too and then when I stopped spacing out I was light headed and nauseous. This video helps me get a starting point when I speak to my doctor 😬

[@culturebreath369]

I don't know how to tell if I've had a full on seizure, but so many of peoples symptoms are so relatable. I'm working with specialists to figure out what is going on.

[@Rufus80]

Your information is very good. Thank you for taking the time to educate online. It's good to validate some information I have.

[@kf8575]

I get the feeling of my stomach turning over, a strange metallic taste in my mouth and a distorted view on reality causing me to not recognise where i am

[@nickybaker1338]

So sorry you're suffering in this way-I've been there, but since May 2021 tge neurologist prescribed me lamotrigine and I reached a level ( 200 mg bd) where so far it's kept the lid on my seizures. Nice not to be terrified & screaming & then waking up with a chunk out of my tongue & feeling as if I've had a fight with a rhinoceros. I hope that you can find a med that helps keep your seizures under control 😰❤️‍🩹

[@TLEawareness]

It’s called Jamais vu. It’s the opposite of deja vu. It’s scary as hell. I get the feeling I’m some place I shouldn’t be and there is someone or something that doesn’t want me there. Impending doom

[@Great-Beard-of-Zeus]

Thank you, Dr. Danoun for your videos. I've recently started having issues, and am being treated currently. This is all new to me, and your videos have been a great resource for comfort and understanding. It has kept me from being overwhelmed with it, and has also helped communication between my doctor and I. Thank you!

[@DrOmarDanoun]

Glad to hear that

[@heathervineyard4964]

I suspect having some type of seizures however, the doctor says otherwise, I just don't know if I actually believe it completely. Back in October 2020 I suddenly started to get dizzy and pass out several times a day, I could feel in my chest my blood pressure drops and my pulse raise, then I would start to taste it in my mouth at the roof of the month and smell it right before passing out, however, I don't always fall out on the floor, idk how I managed to do that 😳(we may be able to fall asleep standing but we can't sleep standing, without some type of assistance that would keep you from falling down,) I do know that when I would wake(idk how long I was out)back up I found my arms and legs shaking trembling and I had muscle jerks and it takes a few seconds or so to finally wake up enough get to the point of being aware of my surroundings, which is a little weird, and when I get up it's as if my legs want to give out from under me, makes it a bit hard to answer the door when that happens. I also will suddenly just stop talking completely and as I've been told I just stare😳 and they can see when I (come back) by my eyes), I'll also have times where I can be watching TV and realized that I somehow missed a part of the show and yet remain seated, now that's a weird feeling 😹, this is separate from the passing out thing which I've been diagnosed with orthostatic hypotension tacicardia syndrome where my blood pressure goes down to 76/51 and my pulse is usually at 120 at rest, however, I run low to begin with with an average BP between 90 to 100 as sistolic and 50 to 65 diastolic was once 49bpm🤷, I have to go into public if it were to happen in public, lucky for me and since I can feel them coming I just steaded myself and stood there until it passed holding on to the cart. Lol, One day at Walmart I saw this lady with a toy poodle who was wearing a 2020 mask😷🙀 and I went to see her and she couldn't get to me fast enough, not knowing why I just stood there and she climbed out of the cart and up on my chest, as I explained what stresses I was going through when suddenly I felt this huge release of stress it felt like a release in my chest and I could actually breathe. She told me that her dog is her seizure dog The whole thing kinda freaked me out some, I've NEVER felt anything like it before that or since, miss that😔. Did have a neurologist do one of those test with the wires on your head, lol, I can't think of the name of it, lol, yes, I have big memory issues, he said that I had narcolepsy and hypersomnia before I sleep too much, came home from working like 5 hours and went home a took a 19 hour nap, didn't even get up to pee, eat, or feed my furbies(kitties) which I felt bad for but they understand, of course I also have depression and anxiety and PTSD and SI. I wonder with all of the major stress(lost my home to fire in 2018, Lost the home I bought because the seller didn't pay the mortgage, and then I moved in this apartment building where the management harassed me constantly for things , and had actually bullied me into attempting suicide twice 3 weeks apart, and robbed me and I almost died, was intubated and on a ventilator and had liver failure both times, and they also stole like $15,000 worth of my belongings, including all of my toilet paper 💩 🧻 leaving me without any, and took my hygiene items out of my shower, it was a retaliatory eviction, they won because when I was to be in court on the 13th of January I had OD'd on pills for the 2nd time in 3 weeks, first time in December it was over 50 morphine 30mg tabs, narcan X's 2 with no response, and so since I was in ICU they decided to not tell the judge and I lost by default, should not be legal, just saying, took them 4 days to go through my stuff, they read everything they could including my dairy and poems that they never gave me back, then I stayed at my brother's house and that was a disaster because his wife Stole $500 from my debit card and then they decided since I pressed charges on her that they would just get rid of all of my all my belongings including my Ashley sleigh bed and now i have no bed just a mattress on the floor, 😳, Im 52 and have numerous medical issues that make it hard to get off of the floor, not as agile as I once was🤦, took so much of my life's items, he took about $75,000 of my items (5000 beanie babies, approx 20,000 sports cars, etc, too much to mention, and, I've not been able to get through what they have put me through, and they don't care either 🤷 so in that short of time and to make things even worse it's as if it's never going to end, or end well🤷, I now have grown to hate and not trust anyone from this experience 😮😮, I've never been this way or under this much stress, ever, my doctor and I are just waiting for me to have a heart attack or stroke from all of this stress that I've been going through for over this for almost 2 years now, could this also be an issue that can cause some type of seizures ? Can excessive stress cause seizures?. And what about the passing out issue? Thank you for your time and I do apologize for the long message, I tend to feel that I need to explain things more thoroughly to explain it so that I feel someone would get it, know what I mean? You can actually email me with your thoughts if you care to, if not, again thank you for your time and have a great day, stay safe.

[@Cjkidykid]

Has anyone here experienced getting trapped within your head? as in you start having intense thoughts, and all of your external focused is immediately pulled internally. To the point where you are nearly sleepwalking or driving you have to pull over til you can get back to reality. And head is cleared! Like you’re being pulled into your dreams or mind space only!! he didn’t quite mention what I just described anyone else notice this?

[@RaraRemi_312]

I think what you're describing is practically exactly what I go through during my big tonic-clonic seizures' auras/focal seizures. Quite a few of the other kinds of epileptic auras' feelings are also spot-on what i go through

[@Jeffery-k3q]

I think it takes us to the veil❤️🙏 and we see what reality hides 👀🤔

[@austineo.onyango9724]

Exactly. While in a group, I always walk out, with hands in my head. I at times struggle with my clothes or work out my hands, I walk towards one direction not knowing where to but usually in secluded areas. At time I can tell people around that I'm about to have a seizure but at times it just happens when I'm alone. The post seizure era is the worst. Bit tongue, broken left shoulder always, incontinence, severe headache and memory loss usually up to the start of the aura.

[@jontell726]

I get auras somewhat infrequently. Sometimes multiple times a week, other times once every few weeks or months. Usually deja vu, sometimes anxiety, sometimes it's a really really weird spacey feeling, and sometimes it's sudden stomach sickness that goes away after a few seconds, sometimes I'll be talking and stop and stare into space (this one more often with alcohol use) , if very excited I tend to stutter and its sometimes accompanied with repeated movement. I also will get sudden intense ringing in my ear that is not related to sitting up too quickly, I used to have that more when I was younger, especially when trying to sleep. Interesting, no?

[@BarbaraWhite-e6i]

Just lost my ex husband he was my rock,he had a seizure on 29th May,he was in bed,now I can understand why he was hearing voices,he was seizure free for about 3 years,he was also a bus driver si its just luck it was at night,can i add that im a migraine sufferer,i also get aura's deja vu,fast heartbeat,very similar ti epilepsy,R.I.P,Simon,love you always🇬🇧🦋🦋🦋🦋🦋

[@clockworkorange9465]

I want advice so badly but the docs here leave a lot to be desired. I wish i could go anywhere but here to get dealt with. Maddening tbh

[@tanjastrbac5954]

My auras are one of the most horrible feelings. I feel fear, hearing music or voices but can't repeat them, dizzyness and INSTANTLY I lose apetite! I would feel depressed the day after. They were diagnosed as depression and anxiety. Accidentally, I found out I have epilepsy auras showed on EEG, left temporal lobe.

[@alittlecrinkley232]

Mine are like this, music, deja vu and intense fear. Cannot speak, few seconds later I have a grand Mal.

[@soniczforever5470]

I had a few blackout suspected TCS. I take anti seizure meds for chronic migraine. Im now off road and on watch in case I pass out again. I have the same experience. I feel depressed after the migraine and have bad nausea. I'm 5 stone 9 because of it.

[@KRAFTPUNK]

Same brother

[@twl107]

I had my first seizure yesterday…felt confused, tingling feeling, nausea and hallucinated voices….almost smelled a weird smell. Got to work felt it again and then I woke up in hospital.

[@jessli369]

Oh my gosh whaaaaaat?!? How come other doctors don't know this?! Thanks for the info!

[@lorifoster4166]

Not only doctors but 911 operators and Fire fighters. They treated me like I was crazy the other day!

[@jessli369]

@@lorifoster4166 oh no! I'm sorry to hear that.

[@catfish__billy1712]

My neurologist doesn’t believe me or act like seizure auras are even a real thing. It’s so frustrating because she just took me off my seizure meds and they’re terrible now

[@aprilbanks2018]

@@catfish__billy1712I pray you've gone to another doctor. Going off of seizure meds can and usually make the seizures worst. Please go to the hospital or get another Neurologist. It has taken my daughter 8 years to be diagnosed with seizures. Doctors all over thought she was lying and making things up. It's not over until God says you're done! Keep fighting and proving western medicine wrong! I pray for a healing for all of us. Amen

[@OktawiaPawlik]

Perfectly explained ❤

[@melearina]

Thank you for your comprehensive explanations, Doc! We appreciate this a lot 😊❤! We look forward for your future videos 😊😊

[@RenaAmaro-cu8po]

My chest hurts it hurts when I breathe I was cold asf but my body was on burning and my dog won't take her eyes off me I'm not a 100% but I believe I'm going to have a seizure I really appreciate these videos I also appreciate all of your guys stories they help more than you know I don't feel so alone and broken so thank you

[@LadyAmarantia]

I have been having "episodes" like this since about a month ago after a bad flu and have gone to the ER all tests normal, when i came across focal seizures it is the closest thing that explains what i have been experiencing. I'm learning what seems to "trigger" it, usually after a long day or if i haven't eaten or drank enough.. I'm not sure what else it could be but what some of you have described is very similar to what I have felt.. The first time was really bad i felt this feeling inside my "center" abdomen getting bigger and bigger (when i couldnt find my words as it was happening i kept saying "it's going up"), my muscles went weak for a second like i got really heavy, covered in sandbags feeling, my throat went tight, the back of my neck went really tight (and does each time i feel it) strange sensation in my nose like it was full of smoke then i felt like an electrical storm in my head then it progressed to these strange sensations coarsing through one side of my body (then later as i had another it switched sides) i felt like liquid fire rush through all my nerves and like electricity flashing through my nerves after the head and i got really hot, shaky and clammy.. i got a rush of intense fear/anxiety go through my stomach like rush through me out of nowhere.. it faded away.. then later got another and the other side started up.. i had several of these over a few hours, i tried eating which seemed to help after a while, they eventually stopped... ever since then I'll be fine for a couple of days then start feeling this strange sensation in my stomach/throat before it would happen.. so since my sodium was low the first time and my sugar was low another time, i figured not having eaten as much and being tired after most of the day has been triggering this somehow.. i have an appt with a neurologist soon.. i don't know what or why this is happening but likeni said started after this bad flu, they had me on a couple meds while i was sick, a couple of them lower seizure threshold.. but interestingly enough one of my meds IS an anti-convulsant! when i called for help the first time i knew it was coming from my brain i kept saying it's in my brain. was hard for me to find my words properly until it would pass.. I'm really worried, have looked up so much on what this could be or why but reading some of the experiences on here seems so familiar to this... sometimes before it happens I'll get tingling, too.. i can always tell just before it happens..

[@aprilbanks2018]

Lord, have mercy! Yes, if that medicine states "convulsants." It's definitely pertaining to seizures. I've found that sleep deprived, low blood sugar and dehydration. Can and in fact does cause seizures. Every time I've mentioned dehydration to the doctors. They dismiss my claim because it's uncommon. My daughter was not born with seizures. She started having them at 10, out of the blue. But she's had every immunization. Plus she's been on psychiatric medications too. A lot of meds state if you stop this medication. It can cause, this side effect. Her seizures stared off as 1 every 2 years. Now most recently this year it's been 1 every two months. I always watch her behavior and ask questions to try and pin point what was the onset. While doing her most recent EEG test. The neurologist actually believe us. I said take her off her seizure meds and no water. The doctor suggested they also sleep deprive her. On the 4th day of inpatient hospital stay. I woke up to her having a seizure, she went on to have three more. She was diagnosed with focal awareness seizures. She too has had an aura. Most times it's ear ringing, anxiety and fear. It has taken 8 years for her seizures to finally get recorded on that old EEG test! I cried like a baby about witnessing the whole situation. She have not ever had more than 2 seizures in a day. Her first time having a seizure she had one back to back. I wish it would stop, I'm on a quest to get her cured of seizures. I've know two people that have died from them. The doctor increased her medication Keppra 750 mg. Once in the morning and once at night. To 2 in the morning and 2 at night. I also just found out a few months ago that Wellbutrin was an onset to seizures. The pharmacist that we started going to told us that. And it was prescribed by her psychiatrist. Her last seizure she had this Monday she woke up at close to 6 AM. I kept calling her, she didn't answer me. I watched her walk from her room to the kitchen. I seen her reach in the medicine cabinet for her seizure meds. I didn't hear the bottle rattle with pills. I then didn't see her, I jumped out of bed. And stood at the bathroom door and said, "hey you didn't hear me calling you?" She was looking straight ahead while on the toilet using the bathroom. She made a terrible moaning noise. I said oh Lord, you're having a seizure. I then wiped her up and placed my arms under her armpits. I begin to attempt to lift her off the toilet. She was dead weight! Her limbs and went weak. At that point she was non mobile and verbal. I flopped her to the bathroom floor. She was so heavy I couldn't drag her out of the bathroom. She was stuck between the door frame and cabinet. Her head begin to hit the door frame. I moved her over and her convulsions caused her feet to kick and jolt. At the bathroom cabinet door frame. I was so upset and scared. She begin to vomit and immediately after the episode I wiped her mouth. She went into this grizzly bear deep sleeping snoring sound. And she rattling the saliva and remaining vomit in her mouth. The episode started at like 6 o'clock and she came to at 6:12 AM. I took her to the hospital afterwards. But by that time her vitals were back to normal. She was back walking and talking. She did catch a cold from being caught in the rain a few days before. So the doctor summed it up to viral infection (cold). However I mentioned 14-16 days prior she received a required vaccine meningitis and tetanus shot. I read that the meningitis shot can cause seizures. But of course the ER Neurologist brushed off my claims. She said some people just have seizures for no reason. I'm like what?! I refuse to believe that! It's a reason! It's just not everyone knows why. Illnesses are not normal. This is no way to live. (I apologize if pieces of the story is all over the place. I'm typing this from my cell. It's giving me problems. Plus it's merely 4 AM eastern. Anywho, I would love to travel to a recommended Neurologist who specializes in seizures. And aims to find out why and how to heal the individual.)

[@ConsistencySimplicityPlatform]

Hello, really nice to find this channel, the 11th october i was rushed to hospital.. The last thing that I remember, was walking over the road, next minute im on my back with paramedic hand behind my head, felt like i just woke up from a very refreshing sleep, i was all banged up/cuts but i have a very high pain threshold (what i only just found out lol) both my legs are still aching and when i woke up they were so stiff and my hips... It is just really nice to come across your channel because being new to this experience it is really, reassuring, so i would just like to say thank you... i'm currently being investigated by NHS and just waiting on a call back.. i generally thought i was hit by a car and woke up but apparently i was having a seizure... idk what this would be classed as specifically though edit: OH YEAH ALSO ALMOST BIT MY TONGUE OFF TO ADD

[@memesGuru1]

Appreciative❤❤❤, very Informative Video Sir i have listen this video and cleared my complete confusion Jazak Allah ❤

[@DrOmarDanoun]

Glad to hear that.. Waiyakum

[@MyFriendRuth]

It made me so nervous when he talked about flashing lights and then said, “Let’s see the difference.” 😂 I’m glad he just explained it, and didn’t show us.

[@unbrandedindustriesincorpo1701]

Incredibly understandable explanations of possible causes for symptoms. I wish I had seen a doctor with your knowledge. If you don’t mind me asking, how much would a medical diagnosis cost out of pocket?

[@melissagallagherr]

When I have an aura, it’s a warning that I’m about to have a fit seizure, it’s helpful in a way as I know I have around 5 minutes to get to a safe place, time it and put something soft under my head, let someone know it’s about to happen if they’re home and make sure there’s nothing around me that can hurt me. I’ve now got used to it and know for sure that I’ll bite through my tongue 🤦🏻‍♀️😭 my partner has got used to it too and thankfully he’s very supportive and makes sure I’m always safe 🥰

[@mercyccc]

Try medications...my seizures improved and my neurologist told me he would consider me leaving them or reducing

[@melissagallagherr]

@mercyccc I've tried loads and been on the same one for around 2 years now, it works most of the time but unfortunately it's simply the one with the least side effects 😏

[@austineo.onyango9724]

Same thing with me in the previous months. I would always know it's coming. I would take myself to a safe place but still my tongue would suffer, severe headache and my left shoulder is always broken. An MRI lately found that I had Developmental Venous anomaly on my right temporal lobe which is the likely cause. Also had low blood sugar which is a typical trigger. My worry is that in October and November alone I have had like 5 seizures, one leading to a road accident and all of them didn't have the usual Auras. My new neurologist dropped Clobazam and Lacosamide and put me on Keppra 750mg (I have been on this) and Introduced Epilim 300 BD. Was also told to eat well, no alcohol and no driving.

[@mercyccc]

@@austineo.onyango9724 ..utakuwa sawa Kaka

[@mercyccc]

@@austineo.onyango9724 in Jesus name you will be healed..I've been trusting on God though on medication and I see improvement

[@ne4274]

For the past few years I can get sporatic auras like one in a few months randomly. Always in the morning. I feel that feeling coming on, familiar sensations, I go to sit down and close my eyes and it's like light's out, but I am still sitting, feeling very warm, and it lasts a minute or less.

[@thessalytorres4477]

Thank you so much for your videos, I really appreciate them. For me I have a feeling in my stomach

[@gregorycarlson6632]

I will remember some funny things from the past that I wouldn’t ordinarily think of. Also other things from my childhood. Light sensitivity is also a common thing for me.

[@PaytonNickle-rx8he]

Thank you for awensering my question of why I have deja Vu during my focal seizures

[@martinriley106]

This is so interesting. I was on levetiracetam and after a few years started to get auras in the mornings, but like with my seizures I was aware of what was happening so could get to a safe place, but eventually was put on to Briviacetam and now I’m stable and no more auras or seizures. My auras used to affect what I was seeing and often ot was shelves of bottles or shelves of cans😳 not quite sure I should see these visions but there you go!

[@sarahwilliams6323]

I have had auras as far as i can remember but only recently been diagnosed with temperal Lobe focal Epilepsy ,i have no memory of my seizures and takes few days for me to recover, i also had severe migrains as a teen and went away after my first child! I also have bad vertigo with my seizures

[@DC1983]

My auras are terrifying. Intellectually I understand that it's all in my head, and that this soon shall pass. But it doesn't make it any easier. I have deja vu and jamais vu, sadness, migraines, and a very upset stomach. It's debilitaltating. All I can do is wait it out. At 40, I've been dealing with this since I was 16. The migraines started at 8. The doctors can't pinpoint a certain reason it all started. But most likely it's genetics and childhood trauma that kind of twisted my brain I suppose. I can't drive or work outside of the home. I feel for anyone going through similar experiences, and know that you are not alone. ❤️

[@kyliejacobs6817]

I get auras every month before my menstrual cycle starts or I might get it at end of my menstrual period, they vary in many ways , I feel a warmth feeling from the forehead to the back of the head, I get dry mouth, I get nausea, I feel a sensation usually down the side of the body, I might smell something that I’ve smelt before or I might see a scene. In front of me that I’ve experienced before . I get these every month like I mentioned, and when these happen, I usually sit down and let it do its thing, because they cannot be stopped . I don’t get these every month of the year , I think it is when the menstrual bleeding is very heavy or the oestrogen is very strong. I am almost in menopause and I’ve been doing ketogenic for one year. Since doing ketogenic the auras have been less intense and less active, I’ve only had one major seizure but I felt the seizure happen so slowly that I was in control of it , I took my frisium to stop it going further . My dog sat on my Lap the whole time, my dog knows my epilepsy well and he sticks by me when these happen

[@Kedolman]

Mine are also monthly or every other month or so, closely associated with my menstrual cycle. It’s weird though because I’ve had these since I was a child before I started menstruating (also, I am not pre-menopausal). It’s pretty predictable though timing wise at this point in my life.

[@kyliejacobs6817]

@@Kedolmansame , i have scarring in my brain which could have been when I was dropped as a child and hit my head , I had these auras as a younger child before menstrual cycle, I didn’t know what was happening , i tried talking but nobody listened to me, I was scared etc and I tried to commit suicide which left me with short term memory loss and then the auras disappeared maybe because I forgot them but they returned around when I was 27 when I lost my father and brother and a lot of trauma happen to bring on the stress . So I’m told it’s either from scarring that could have happened either from being dropped or overdose . But they would have seen this scarring when I did overdose and they would have been more attentive ?

[@Kedolman]

@@kyliejacobs6817 WOW. What you’re saying is SO SIMILAR to my story. I was pushed off of a very tall slide when I was 3 years old- I broke my arm and was knocked unconscious. My auras started as a young child, and they seemed to stop during my teenage years. They started again in my early twenties and have been regularly happening around my cycle ever since. Maybe scarring has something to do with it.

[@kyliejacobs6817]

@@Kedolman correction, the overdose did not play a part in my diagnosis because all doctors said I would have had seizures very soon after . I didn’t start having seizures again until 3-4 yrs later

[@kyliejacobs6817]

I want my scarring to be removed to see if this will make a difference

[@mike_js2936]

lol I have a neurologist, but they don’t describe things in detail like you do. Thank you so much! Happy New Year Doctor!

[@mimisophisticateddiscussio741]

I get Dejavous but I also get a static tingling in my face and head that seems to take over my body then Boom! Seizure

[@friedrichnietzsche7805]

When I have an aura, the noise level in my ears rises drastically, to the point of distorting outside sound.

[@maryyoung1602]

My aura is an intensive feeling of fear- I am suddenly afraid 😱but I don’t know what I am afraid of. It’s also as though I am reliving these minutes from before. This sudden feeling of panic grabs without warning but after it’s over I can conclude I’ve had another “aura”😅 I wish they would stop but I have no control over them- the medicine does little to nothing.This started when I was 14-I am 70 now so go figure 🤷🏻‍♀️? This “feeling” starts in my stomach and progressively extends through my stomach until it reaches my entire system and this is frustrating and frightening.

[@MrTrowe123]

I get Deja vu and have migraine auras before my cluster headaches. My sister has epilepsy I always wondered if any type of correlation there

[@lraoux]

As an epileptic who experiences auras and has suffered many kinds of seizures, the way an aura feels is like a warning sign that a seizure is definitely about to happen. Imagine a soccer player being positioned perfectly in the box, wide open in front of the goal. Someone just passed him the ball, he’s on the other team, and there’s zero chance the goalie can save it. You know for 100% sure that the ball is going to go in the net; the announcer just hasn’t screamed GOAL yet. The aura is that moment. The hard part of the seizure is what happens right after (the announcer screams goal, the fans yell, the players run around in celebration, the actual score changes, etc.). And then it’s up to you to concentrate on the moment, stay under control, and not let fear take over. It’s not easy.

[@evasmrekar]

Thanks!

[@DrOmarDanoun]

Thank you!

[@AVToth]

I had my first seizure as a result of being prescribed Ludiomil. I injured my back in 1986 and before surgery was sugested, I did all the other noninvasive treatments. Along with pain meds I was given Prozac, then I think 3 or 4 others because I kept developing adverse reactions. Looking back with my now "retired nurse" knowledge, all the problems were all CNS involved, shaking, jerking, sudden inability to swallow or speak until I coughed and that relieved it. 4 weeks after Lower Lumbar Laminectomy I was allowed to go Christmas shopping for my small kids. My mother took me. I woke up in the hospital, three years of memory gone, my tongue chewed to hamburger meat. I'd had several prolonged grand mal seizures. I was told that I would now probably have seizures for life. I took several different meds but again, the same problems, which makes no sense but I was given phenobarb and then weaned off. For the next twenty years I had a seizure about every 6 to 8 years. Then I had three in a row. After the hospital, I was given a new med and after three months my WBC dropped to 3,000. Med change, continued to drop. At 1500 I stopped the meds.

[@rn5992]

How r u now

[@AVToth]

@@rn5992 You may be sorry you asked. I took nothing and continued my 6-8 year cycle until 2015 when I was very near status. I have vague bits of memory. In the EMS, twice during my ten minute ride, I heard a woman (assuming EMT) say 1st time "She's seizing again" 2nd "Oh, oh, here we go again". My husband told me later that the seizures were different. I had never before had a seizure with both tonic and clonic movements. I don't remember much until I got home. Dr said they were involving more of my brain. I get frustrated because it left me with a mild aphasia & I'm a talker! Gave me gabba but nope, not taking. My gp gave me alprazolam, valium makes me weep uncontrollably, I take 1mg at bedtime. Not going to jinx myself by saying more than doing well. Although I seem to have a different kind of seizure now. I never had an aura before. I live on a ranch in Texas. I was out one morning and had deja vu. No biggie, always had this. Ignored it. Over the next 30 min it kept getting stronger. When it was so strong I felt dizzy, I headed to the house. My husband was on the porch and as I got close to him, as real as he was, to my left was Yoda, wearing those Ewok fur clothes. I knew he wasn't real despite looking like I could touch him. He was angry/worried looking. He said "Go lay down, your going to have a seizure. I've been trying to tell you. Hurry" That has NEVER happened. I went in, took a whole alprazolam. Was fine. In 2021 during the storm that killed our power for a month, we bugged out after a week of 3° temp, no running water & only a fireplace. The next morning at the hotel, we were holding our breakfast from the buffet and I had deja vu, few minutes later I told my husband the Swiss Miss (from hot chocolate ad) was coming. She needed to tell me a seizure was coming. I didn't see her, I felt her coming. Sounds nuts I know. We left, went to room and I took med & went to sleep. It's happened twice since but I know now regular deja vu doesn't have sudden, intense anxiety with it. I take my med & sleep. I think my "visitors" were probably my subconscious telling me something's wrong. They aren't panic attacks because everytime they've happened I've been relaxed, not worried about anything. I'm not complaining. I'll take this type of seizure over the big ones where I chew my tongue into ground meat, any day and be grateful. I know this was more than you asked. The short version would've been I'm worse but better. More frequent but type, much better. Thank you for asking, that was very sweet. Aphasia, I once forgot the words to Mary had a little lamb. I knew them, felt them but couldn't sing them. Refused to google. Took 2 weeks to find them.

[@FullmoonPhantom-dn2sr]

For me, keto was the only thing to give me relief. I was able to go medicine free. Been seizure free for 20+ years now. No longer on keto. I was only on the diet for 3 years from the ages 8 to 11.

[@Orllandopaste]

Ohh thanks. I guess I have the aura seizures flashbacks like you said from a movie or show or even if someone say something to me like I heard it before or catches me off guard it brings it on also and yes I am emotional I can catch mines when it comes on at times it like my hands gets dry or whatever I then hold on to something it then makes my hands feel undry that when my seizures go away.

[@judithhetherington420]

my seizure aura is a crawly feeling that starts on the inside of my right hand. It is sometimes accompanied by an ache in the base of my head. This spreads to twitching of my right hand, then spasm of the hand, moving up my arm into my neck. My migraine aura is left facial nerve pain, buzzing & pain in my left ear & pain sometimes yellow spots left eye. Occasionally I’ve had a strong metallic taste in my mouth.

[@CarolynAitken-yp2rq]

My cat has seizures, about 1 every 2 months and he can’t tell me how he feels but I know it’s not good because before the last seizure he started swearing and before other seizures he will suddenly run through the house at top speed I never understand why until I read the comments written by people who also suffer them thanks everyone that shared their experiences.

[@AVToth]

After being seizure free, on no meds, for 8 years, I started seizing. Very short intervals between. My husband said these were different because I was having both tonic and clonic movement's. I vaguely remember in the ambulance hearing "she's seizing again" and later "we're pulling up to the hospital, your going to. She's starting another" This is where my aura story starts. Before, nothing. Then over a 2 year span the following; A horrible smell, 3 different times. Then one day I was working away from the house, on our ranch, and I had deja vu. Then as time passed it kept getting stronger. Every 5 to 15 minutes it would wash over me, getting more intense. I had the butterfly sensation and deja vu only now it was something bad coming. I started walking home ASAP. About the time I was near my porch, again only when I looked up, there was Yoda wearing Ewok clothes. I've never hallucinated before, I knew it wasn't real but it seemed as real as anything else! He told me I was having a seizure and it was going to get worse, I was to go take my valium, which I HATE, and go to sleep. I did it immediately. In 2020, we had no power due to winter storm, after day 7, went to hotel. The next morning, in line for breakfast, deja vu once and I just knew that the next time the "Swiss Miss", an ad character, would be there because she was coming. I went to my room, took my heard. Now I know the difference between deja vu and deja ohshit I'm going to have a siezure. I don't understand, and apparently neither do any of the docs I've seen, understand the changes. No head injury, negative scans etc. Why and how does this happen?

[@jessicahampton1991]

You sound almost identical to me! This past summer at 33 years old, for the first time ever in my life with no injuries, etc, randomly started having these exact seizures a few times a month but mainly when I’m coming off my cycle so I’m wondering if I even may have catamenial epilepsy but there has been couple times it was during other random days of my cycle. A couple months ago, I had my first ever tonic clonic seizure in my sleep which my 8 year old luckily felt since she was laying with me that night by the grace of God… even a few hours later right after getting home from hospital, it happened again. I have a video of my second one on my Tik Tok to spread more awareness on these things. I have appointment with neurology soon too. I was negative for Lupus and Addisons disease which I had possible symptoms of both. Glad I don’t have those! Guess we will see what happens. They offered to start my on seizure meds but I said no, not unless I continue having tonic clonic seizures or even too many of the partials! It’s miserable every time no matter what type it is! Just awful!!!! I’m so sorry to you and everyone else having to live this way not having solid answers can be so scary. Prayers! ❤

[@AVToth]

@@jessicahampton1991 Please be very careful. Read up on the side effects because side effects can cause additional problems. I hope you don't mind me asking but after your seizures do you feel a desperate need to sleep? The period after the seizure is called the post ictal state. Most people just fall into a deep sleep. However, there's a small percentage of people who wander around. Before we knew about this possibility, my husband would put me to bed. Next thing I'm wandering around the house the yard. He thought I was just being contrary. I tried to explain that I just felt compelled to walk. Now he gets it. The only thing that terrifies me is when it happens, if I'm alone. Only because for about 15 minutes I don't know "when I am" I know my kids are grown and I have grandkids but my brains ability to understand time is caput. I jcan look at a calendar, my phone but it means nothing until I hear someone tell me the day, date and time. Something about hearing it and my time "feature" pops on. Before I'm just lost in time. The neurologist, write down every med you take even occasionally or supplements because the interaction can be bizarre. I hope everything works out for you. If you can, let me know by adding another comment here. Good luck.

[@dawncarrasco8274]

You must live in Texas! Lol! My 22 year old son has strong auras with pre seizure migraines, metallic taste, impending doom, and random electric shock sensations several minutes prior to full blown status epilepticus episodes that a total of 3 have ended up with him being sedated and intubated in the neuro ICU and the EEG and all other tests were inconclusive for true epilepsy diagnosis. Next time we hope to get admission to a neuro research center like UT Southwestern Dallas tx.

[@AVToth]

The part that I hate isn't that I chew my tongue to bloody mush, it the feeling immediately after. I don't know WHEN I am. My husband knows to come if I call him and ask him "When am I ?" I can stare at a calendar til I'm blue in the face, it means nothing. I know I have kids, grandkids, I know how old they are but I don't know where in their life I am. I know that makes no sense, seeing real live, Yoda, I knew it wasn't real, maybe my subconscious just got tired of being ignored! The other thing is I'm not afraid of much, roaches make me embarrass myself, but that's about all. Before a seizure, I am filled with this sudden terror. It makes no sense because seizures don't frighten me but I guess it's part of the seizure. When I was 27, I injured my back. We were buildig a house. My husband would lay out the rebar, stell reinforcement and on my day off of 12 hr shifts in the OR, I would tie the steel and fill feed bags 2/3 full and use our backhoe to move the where he told me to put them. I was 2nd scrub on a TVH, total vaginal hysterctomy assisting Dr Methusela and his older brother. So there were 3 of us between this woman's legs. They were soooo slow. Over an hour without a break, holding two retractors, 1 up, 1 down and bent at my waist and hip to one side, a vessel started bleeding, the dr said "STITCH!" and when I straightened up there was a weird snapping so loud every one heard it and my uuugh. I powered on til the end when they helped me to the ER. This began my hell trip. Prozac had just come out and after all the seminars and pharma bullshit, aplan for back pain was begun. All pts had to go to a psychiatrist because other ydrs didn't prescribe antidepressants. And you HAD to take them. Prozac made me shake, they changed it over and over until I got one that would paralyze my throat then I had to cough to break it. They wouldn't stop. I shook so badly from amitriptyline I couldn't feed myself. Then came Ludiomil. After that things were better. I had surgery that was great. After 4 weeks it was Christmas and I hadn't shopped. The doc said I could go if I didn't drive. So my mother and I are at the mall. My mom sits to people watch while I went to return tennis shoes for my dad. Mama said it was taking a while but she was watching the EMS come into the mall. Then they got off the elevator, looking sise to side she saw nothing. It wasn't until they went right behind her that she turned and saw me on the floor. This seizure was over 15 minutes. Never had one before. A couple months later it was reved from other countries for this reason. They knew but gave it to me even though my brain didn't like them. Years later I had my 6-8 year seizure. Long story short, my white cell count dropped so klow they tested me for HIV. It was the black box warning. After it got lower with each med they tried, I refused. They did this to me because of big pharmas rule. I'm 64 now, my mega seizure was in 13. I was fine til 180ish when I bought 2 horses for my grandkids to ride, i always rode the fresh off them to be sure all was well. This horse wouldn't lope, would not and when I gave him a good kick, he went full on rodeo. Ive come off since childhood in every imaginal way but this. My grandkids said " Granny yoy flew up so high and then landed on your head. You then had a seizure. I refused hospital because they were gonna say what I already knew. I had a concussion, at least 2 broken, but not h displaced ribs, later confirmed at regular GP appointment. The story goes on but I won't waste time. Do your investigating about meds not on google and check other countries.

[@kareycagle492]

I had my very first grand mal seizure at 33 years old. I was sound asleep and woke my husband by making funny noises. He said he thought i was dying, eyes rolled to back of my head and blood pouring out of my mouth. I came to with my husband yelling and screaming at me, and to a bunch of people i didn't know.... paramedics. Because this was my very first seizure and it happened while i was asleep i did not know the warning signs. Now i do. I get that funny "sensation", da ja vue, i see and hear voices of thousands of people all talking at the same time and I lose consciousness. I usually wake up crying hysterically and scared to death. Because i now know how to recognize when one is coming, i try to alert someone before i completely black out. I truly admire those who know full well when one is about to happen and they just go with it and stay calm. I hope to be able to manage in that way. Its really horrifying though.

[@Erin____]

It is an unexplainable feeling, similar to deja vu but not really the same. And a few other things. I mostly get them on their own but very occasionally they turn into grand mals. I ask someone to get me a glass of cold water. And take small sips. It helps me stay calm while it’s happening.

[@Flagmafia]

I get this too. Deja vu on steroids. The Deja vu happens but then it’s like I’m having a vision or something. After that passes is when I get sweaty and flush and panicky. I’m now able to breathe slowly and control that panicky feeling. Takes a few minutes to get back to normal. Sometimes I’m tired for a couple hours after

[@ericroberttaylor1414]

I just had one 2 days ago. Very intense deja reve, followed by a hallucination of what felt like an old dream, that feeling of being in a dream lingered a long time, followed by complete confusion, blank pale face and a hard time speaking what I wanted to say. Spent 8 hours at the ER yesterday, all tests normal🤷‍♂️

[@reham8205]

يعطيك العافية دكتور

[@hiphopairconditioner]

don't have epilepsy, I went to the doctor, and he told me to walk 3 steps with my eyes closed and feet spread outwards. Everything was fine, but I redid it a week later at home and I got seizure aura, but no seizure afterwards. I felt a metallic taste in my mouth and a smoky chemical smell that started recently

[@SabrineDjibouti1606]

Ya so true,when I feel those aura I run take my médicaments and be in a safe place with my family not be alone.

[@stephaniegonzalez1036]

I am 41 and have been having grand Mal seizures since I was 12. I get auras and I get the seizures at bedtimes and now I get the partial seizures random times during the day. Not everyday but every month. I’ve had multiple brain surgeries and taken multiple different medications that have only made me get more seizures. No doctor has been able to help me. I have actually had less seizures now that I’m not on medication but still have them. I don’t drive or work. It’s not an easy life..

[@DeirdreLennon-vk5hc]

I have absent generalized seizures. My aura is when I feel like I'm looking at myself outside of my body. My heart will start beating fast. My legs will start jumping. My hands will shake. When I have a aura I go lay down and plug my ears and make sure it's dark in my room. I will go to sleep or lay there and few minutes. Then I feel fine I'll go about my business like I haven't even felt like I was going to have a seizure.

[@Itslizyall]

@DrOnarDanoun how are you? Great video! Question- long story short, I've done drugs my whole adult life, well I got arrested and my bond was 150, but they kept me for 8 days. Everything is blurry and the spots I do remember and remember them well, just defy logic. Things like so vivid I'm afraid of even fishing them outward from my mouth. Horrifying proof well atleast evidence to suggest what I'd be claiming as memory, to be true, are still preserved on my body but still it's so wild it's like looking into reality one so real and obvious.. it just doesn't seem it. I'm scared to sleep I'm confused. Now over whelmed so as soon as able I'll come back to try to articulate my Question further Please pray I'll pray too

[@nicolejohnson829]

I only have auras. This video makes me think that some other things I have may also be auras. I have a stabbing stomach pain that happens about once or twice a month and I just assumed it was a mild ulcer. My auras are ringing in my ear, sound changing in my ear, cold rushes in my head, a yellow patch in my vision, tingling on skin, loss of muscle tone that causes me to almost fall and drop some things.

[@RayaOfDragons]

Does your vision ever get very bright, then very dark repeatedly?

[@kyliejacobs6817]

Hi Nicole, do these happen around your menstrual cycle? I always get dejavu at beginning of my bleeding or the end of the bleeding ?

[@lizrunnion]

I get a sound of what might be called "ear fluttering " which is like the sound and feeling when you are yawning, only I'm not yawning. It happens slowly at first then escalates. I also get a weird feeling, like an amorphous blob that sits just behind my eyes and nose, and it's like brainfog to the max. It makes me feel I need to lay down and soon I've passed out.

[@nathanlaney1542]

People with auras before tonic-clonic seizures are definitely lucky. Mine come on instantly with no warning at all. I’ve fallen and dislocated my shoulder, chipped my teeth falling on my face (more than once), scraped my head on pavement, fallen off a bicycle, crashed a car, and many other injuries due to sudden loss of consciousness. I’ve several times been alone at home when they’ve happened with no one to help me. A few weeks ago I woke up in a pool of blood on my bathroom floor with my front teeth broken and cuts all over my lips. I wish so badly that I had some type of aura.

[@ArkanaXIII]

Thank you for this! My aura's have been getting worse and happen when I wake up from sleeping, which is when my seizures would usually occur. It's nice to get a little clarity on the matter.

[@carissadennery9854]

My stomach gets upset with dizziness and nausea, then heart starts beating fast and I can't concentrate.

[@KyraClark-j8j]

The cold breeze for sure. Feels like a weird coldness under my skin. I only started having seizures last year, I had to leave class all the time because of my Deja Vu and it made me panic. It’s like I’ve had a dream about whatever is going on. Being in my dream-like panic it’s so incredibly scary, can’t tell what’s real or not.

[@loretamelkumyan8712]

My Aura’s are like dejavu. It’s like I am living outside my body and can tell what is going to happen next. It feels like my brain and body are not working together and my brain is like a second behind. Its so weird and so hard to explain to anyone.

[@Lillymae-gq4oe]

In your opinion, can people have an aura prior to a non epileptic seizure. I get this sensation frequently, almost everyday. Majority of the time I feel warm/hot and get pins and needles throughout my body. I experience minor shakes that feels like my head is shaking but theirs hardly any movement. And my eyes flicker and I get twitches of the eye lids.

[@trncejnke]

I've been having Deja Vu quite frequently for the past few years. It's been becoming quite intense recently. Never really thought about it until my last seizure happened and the neurologist in ICU asked if I ever experience deja vu.

[@nickybaker1338]

Sometimes I get a strange smell - burnt toast - no one else can smell it & then I'll feel 'odd' for a while, but no further seizure activity.

[@melodymegginson7772]

I hear a noise I can only explain as a ping pong ball bouncing around my brain and smell and pepper bunt toast smell I swear I thought I was going crazy

[@nickybaker1338]

@@melodymegginson7772 I smell burnt toast....it's so horrid isn't it, bcs of the fear of the possibility that a seizure might be on the way 😥

[@dawncarrasco8274]

I have heard that it’s not unusual to smell bananas prior to having a seizure.

[@nickybaker1338]

Yes-exactly that 😥 Even if there actually is burnt toast, it reminds me of the pre seizure smell 😱 Sorry that you're also suffering 😥❤️‍🩹

[@nickybaker1338]

@@melodymegginson7772 Awful. Do you ever get a jolt if there actually is burnt toast bcs it reminds you of the pre-seizure smell?

[@esha9410]

When seizure was about to happen my body shivers like uncontrollable shivers then I used to tell my parents that something is about to happen. And I ended up blackout. 1st time I blackout for 3 to 4 hours and 2nd time about 1 to 2hrs and 3rd time I just get that I was about to have seizure so I took rapid relief medication it was a nostril pump.

[@lorafox1234]

I have them from a brain haemorrhage as well as sleep seizures and epilepsy

[@mfmatthew420]

Hey man, thanks for your videos I really appreciate the information you're giving out, I have started experiencing nocturnal seizures since November 2021 when I was 24 years old and I'm so happy to learn from your videos, what your saying about auras makes me curious - do you know if this de-ja-vu feeling can occur in dreams before a nocturnal seizure occurs? I often feel myself dreaming in a way only describable as how you've explained auras here!

[@taylorblackstock5329]

deja vu and burning smell. I had my first seizure frontal lobe this week. on meds.

[@HilaryMiller-tr5wj]

Thank you very much. Very enlightening.

[@kedeglow2743]

I've been having "episodes" for the past five months that do like this; I'm sitting down (except a couple of weeks ago when one happened while I was standing in line at WalMart), usually reading or watching KZbin, and I get a weird feeling. One second later the room seems to spin violently (which continues for a minute or so) and I lose control of my body, usually falling over to the left side. My heart pounds and I hyperventilate, which continues for several minutes. I'm completely terrified the entire time. I can't speak properly for 10-15 minutes during all this. Currently I'm wearing a heart monitor and have several tests scheduled for later this month. I'm scared.

[@gracekaraitiana7008]

My name is Grace Hustwick, I was in a really bad car accident in September 2020 a few days after I gave birth to twin girls. I had a seizure in the back of the ambulance on my way to the hospital, I had to have a blood transfusion as I was seriously injured, I broke my left ankle and it was cut open as I had my legs jammed underneath the dashboard, I also hit the windscreen and cut the middle of my forehead, I broke the last 4 vertabrae in my back (near the bottom of my back) (just above my tailbone), I also sustained a really bad concussion and whiplash. I required surgery as I had a really big bleed on my brain. I also required surgery to put a metal rod in my lower back (from where I broke my back down to my tailbone). I tried walking on crutches when I was allowed out of bed, unfortunately I face-planted so I ended up in a wheelchair for 2-3 months, I have had allot of seizures since I was diagnosed, I asked them to keep it out of my medical records, they agreed to keep it out of my medical records but because they agreed my doctor doesn't believe that I have epilepsy so he won't prescribe me any epilepsy medication to help with the epilepsy, I have been having allot of seizures over the past month. But I don't know if it's because of stress, high blood pressure or if it's because of how hot it has been

[@rockandrolldude22]

Mine is a feel of anxity and panic and numbness. I also hear an annoying ringing that drowns out everything.

[@MsOhaiinicole]

i’ve been trying to figure out my auras , the way i explain it , it’s like i know im here but i don’t feel here . im awake and aware but it just feels weird . im not sure if that’s deja vu . i also get super emotional , i want to cry out of nowhere

[@OrMon-r5f]

All i get are auras (rarely seizures) once a fortnight.. but the worst thing is that a day or two after that i feel quiet tired and disinterested in life and need to take complete rest which means a large part of my month is wasted doing nothing. Had affected my career and other aspirations.

[@brianschroeter2105]

I've experienced most of these seizure symptoms in the last 7 years since they first started I be having da weirdest feelings I can't even explain