This is how I deal with my epilepsy

[@shelbybeard1945]

i don’t even know this guy but i feel like it’s just him & i sitting and talking about our seizures. i truly love this video

[@heatherwanamaker7904]

So do i.

[@rob870170]

I too suffer from epilepsy and those auras can be pretty scary. Mine occur when I get that deja-vu feeling and my body just completely freezes and my brain starts racing with thoughts as if everything you're thinking are repeats of past auras, and that's exactly what they are. Every time, it's the same memories playing in my head of thoughts before going into a seizure. There's been plenty of times where I'm able to fight off going into full-blown seizure mode when the aura occurs depending on how severe the seizure is. It's very important to take your medication every single day. I am human and I do forget to take my medication even though I have an alarm on my phone to remind me. There's times when I'm super busy and before I know it, there's the aura followed by completely blanking out. My last one left my tongue chewed up and super numb where I couldn't even talk. The next day, the numbness would start going away only to get replaced by annoying pain that doesn't let me talk or eat comfortably.

[@Christi-bt5ef]

I have 4-5 a day, but I started several medications and it really helps.

[@kf8575]

Ive suffered with Temporal Lobe Epilepsy since i was 10yrs old, am now 38. Sometimes focal seizures, sometimes starting as focal seizures and spreading to become Tonic Clonic. Has had such an effect on my life. But, i am NOT giving up and letting it control my life

[@ColtfortyFivez]

I was diagnosed 20 years ago now

[@tomwk87]

This is the best description I’ve ever heard of how it feels. I was diagnosed when I was 22 and I’m 34 now so it’s been a few years, and some of that time was very unpleasant. Listening to him makes me feel sad and happy at the same time, it’s sad because it’s just such a horrible thing, but it’s nice to hear someone else who deals with the same things, and be able to understand exactly what he means. You do feel alone in a way, even though you know you’re not, when none of your friends have epilepsy it’s hard to try and explain it and in some ways it can be quite embarrassing. Waking up on the floor surrounded by people is not a nice experience. But it’s really good to hear him saying he doesn’t let it rule his life, it makes me realise I don’t have to let it rule mine either.

[@seanguzy9601]

Gabbapentin is saving my life

[@keifferdewitt4254]

I have this same grand mal seizure problem. Severity level, back and shoulder problem posture problem the auras and such. I just recently bit the right side little part of my tounge off as well. 😪 and yes the lonely feeling. I feel we should all just start reaching out more like they’re doing here. And try finding more of each other to be around. Environment understanding and such. Comfort just like others do for themselves, where we I believe tend to make the choice to spend more time on others before paying our own self attention.

[@ashijain5232]

God bless you

[@dominiquehendrickson5340]

I'm epileptic It feels like you're being electrocuted and feel like you're vomiting, gasping for breath When I wake, I feel like I have a hangover Literally like I'm learning to walk again

[@allisonmigneault6707]

At 3 months old I was diagnosed with epilepsy and attention dificit disorder and intellectual deficit disorder I'm 28 will be 29 on the 13 of October it's been hard with people bullying me about my seizures and them saying I'm faking it and I'm not so it's hard making friends and I understand him a lot

[@blu3m3ani3]

44 years old now and just had another one a couple weeks ago. Had it since a teen but they've spread out over time. The description in this video is pretty spot on. Deja vu and auras suck. Just commenting to say F*** Epilepsy. I know I'm not alone and the best thing I can suggest is don't live in fear. You can't. I have to tell myself that everyday. I'm blessed with so much because I continue to climb the mountain. I don't have them daily , thankfully and my heart goes out to people that have it worse then me. Hopefully my comment helps someone reading this. You're not alone 🤙

[@blackParrot9615]

Thanks 😊

[@miro9440]

@@blackParrot9615ditto!

[@ocorley3124]

Were you prescribed Keppra?

[@feveratemotive]

My brother getting seizures since more than two months 😢 pray for him

[@daddykipperflipper4600]

“Im not alone” this guy knows exactly how to put it to words. Thank you so much

[@craigusselman546]

He seems like a very nice man wish him good health.

[@savanna678]

Me too

[@travisgaye8003]

Such a wonderful and articulate way with words. I just had my first seizure 5 days ago and lost part of my tongue. Even if it doesn’t happen again, this was very comforting. Extremely bizarre and scary stuff - I have nothing but respect and empathy for those with epilepsy. Keep on trucking.

[@Michaellee-si3yx]

I started having Grand Mal seizures in my early 20's and the doctors could not determine what was causing them. I even ended up having brain surgery to remove a large cyst they had found on my temporal lobe, however, the seizures returned shortly after the surgery. Now I was in complete desperation mode, losing hope and tired of feeling like a zombie with all the sedative drugs I was being prescribed. I then realized that God was the only one who could help me and after praying for about 8 months or so, his answer came to me at a 711 convenience store early in morning. I had purchased a coffee and added a non-dairy creamer to it and after only a couple of sips it started to give me my usual pre-seizure warning signal, which was a weird deja vu feeling. I then realized that it had to be something in that creamer since coffee itself had never given me any problems. It was the preservatives in the creamer(since it was non-dairy it required something to preserve it). So, long story short, I no longer eat anything with food preservatives, take no medication of any kind and 30 years later I am still seizure free! I thank God every day for giving me this insight because when I told my medical doctors about my discovery all of them ridiculed me and said that the acids in my stomach would destroy the preservatives. This was apparently not the case and later through my research on food preservatives I also found out that most of them are even carcinogenic. I hope this can possibly help at least one person out there as I know the horrible situation it is to have seizures.

[@TB-53]

If you were having pre seizures every time you used the creamer why did you not stop sooner. That means you knew what caused your seizures.

[@ColtfortyFivez]

Study time

[@Valdemar-Perez-III]

Find it funny because I felt nauseous whenever I would drink coffee, thankfully nothing happened but I stopped drinking it completely.

[@Sydopath]

Bit of a red herring - that 8 months praying to your idol. What’s that all about?

[@benvicks]

@@Sydopathgo mind your business if you don’t like it bud. Nobody asked for your judgement

[@cieramcclure1]

I love this video because he makes me feel not alone. I got diagnosed with epilepsy when I was 13 years old and I'm 23 now. I have grand mal seizures as well. Today I had a seizure, experiencing the feeling of deja vu, pacing around my apartment, and feeling light headed a few minutes before. After my seizure I woke up in bed exhausted, bite on my tongue, and no memory of what happened or how I even got on my bed. How he doesn't let epilepsy define him is inspiring to me

[@jasmineholloman9088]

This channel is about to blow up

[@tk_capo]

….when?

[@Freyaaamira]

Sadly it didn't

[@edwardulikowski5306]

My sister had epilepsy all her life and sadly passed away in 2017 at the age of 47. Like you she motored on every single day living life despite all she was dealing with. I always admired her for that and I admire you for telling your story and not letting epilepsy define you. God Bless

[@marycarlisle6021]

I was born premature weighing 1 pound, and 10 ounces. Because of this I developed retinopathy of prematurity, causing me to lose all of my sight in my right eye, and most of my site in my left. I decided that blindness was not going to define me as an adult however, I developed epilepsy. I took medication that seemed to control it very well for several years until I got Covid two years ago. Now I have tried several medication‘s, the ketogenic diet, and have even considered surgery. I am trying to get to the place where like my blindness I refuse to let my epilepsy define me. Thank you so much for your words of encouragement.

[@SarahBearah2023]

So sorry for this tragic loss & Holy Spirit Comfort you during grieving. ❤

[@stringstorm]

The deja vu, the squeezing feeling, the soreness after the seizure. After the soreness, it's exhaustion. Those are what I feel when I get mine. To the people who have helped me, thank you and I'm sorry. I don't mean to be an inconvenience.

[@luna-mt7sf]

U shouldn't apologize for something like that it's not like u can control it

[@lebowskisrug]

YS THE DEJA VU OMG

[@lachellebradley9449]

You are NEVER an inconvenience. Both of our kids have epilepsy & it’s scary as heck but never have we looked at it as an inconvenience & I know your family doesn’t either. All we want to do is take care of y’all & make sure you’re okay. ❤

[@poppyozark]

I'm seeing this 3 years after this was made. I hope the best for you. I pray your seizures stop immediately and your life is blessed beyond measure ❤️

[@erinferrara449]

I appreciate you so much. I'm a Mother of a 19 year old with Grand Mal Seizures. My son is none verbal and autistic. You gave me tremendous in-sight into his experience.

[@TornFromHell]

It is different for everyone tho. I will say that. My grand mal lead me to losing all memory. I’ve now lost years of memory. My worst feeling is waking in a hospital knowing I’ve a 2 year old at home. Talking about it while the government screws me has me dying inside. I’m sorry I’m ranting but I just need to see it and at least say it out loud once…

[@josieunderdown3971]

I call my “Aura” spicy deja vu, because it’s more intense than regular deja vu. I’ve recently been diagnosed in February with tonic-clonic nocturnal seizures and it’s nice to hear others perspectives to help understand myself. I find it so weird just experiencing the before and after, and being told by others what happened and not even really knowing myself. And afterwards the pain is like being hit by a bus! Thankyou for sharing 💕

[@dazparry1580]

I just call mine mad dejavu, ive had them all my life without being diagnosed until 32yo, they got to a stage where i would be able to tell people what's about to happen next, if i was able to communicate during. Ive recently realised i have tonic clonic in my sleep too. Either that or i have reoccurring dreams of riding some crazy horse or something. 😏 haha

[@Joshmo1234]

Biting my tongue is the worst.

[@josieunderdown3971]

@@dazparry1580 I had the spicy deja vu my whole life and thought not much of it, then it started getting worse around the time I developed epilepsy! The worst part of it is I was watching a brand new tv show and was bored bc I felt like I had already watched it and knew everything that was going to happen!! 😭 it’s almost as if you’ve dreamt it all before, it’s weird af 😂

[@dazparry1580]

@@josieunderdown3971 ye i know the feeling. Worst thing was trying to explain these things to people when i didnt know what it was. I used to just get 🙁 or 🙄 faces. But sometimes im able to predict things spontaneously without any strange feeling, just point something out before it happens. That gets 😧or 😳 faces.

[@josieunderdown3971]

@@dazparry1580 yeah I get that, i just kept it to myself, I couldn’t think of a way to explain it to people, I literally thought they’d call me crazy! I felt a bit crazy or like I had some weird gift, I didn’t know that others had it! When I tried people were just like 🤷🏼‍♀️ I get deja vu too.. but it’s not the same 😂

[@lily.d13]

My triggers are sleep deprivation and being too hot. The feeling I get before is always deja vu, bad taste or random chills. Gosh I know what he means when he says none of his friends have epilepsy and he wishes he had someone to relate to. This was so well said!

[@truelove8719]

😭😭😭

[@User-aplnk]

Yes same with my seizures

[@JessiPeele]

The way he describes it is 100% accurate. I’ve had epilepsy since I was a baby and I used to have absent seizures. Now I have paralysis seizures. Every once in a great while will I have a grand mal seizure. My last known seizure was when I was pregnant and it was scary as hell. They are so exhausting even just the absent ones.

[@susieleong6852]

do seizures hurt?

[@sophiepalmer-doran344]

@@susieleong6852 no because the person is unconscious the person will not be able to hear see or feel pain during the seizure but after the seizure is done and the person is recovered they may feel sore tired confused one person described it as though he felt he ran a marathon

[@dhines7892]

Some people feel pain. I certainly do after I have had some.

[@spiritualaries4500]

My son's gf has seizures she screams n gets violent before a seizure is this normal .

[@spiritualaries4500]

Is there medicine to stop seizures? N can everyone take it .

[@christinebicanic751]

Big storm in the brain. Perfect description. I began having tonic clonic at 16. I have been seizure-free for over 20 years with medication. This video is spot on.

[@EmmaJohnsonShenanigans]

i didn’t have the smells or sounds he described as an aura before, i just saw “cartoons” and a couple seconds would feel like 10min-1hr, with extreme confusion

[@HexQuesTT]

I started having tonic clonic seizures a little over 2 years ago after I recovered from a brain aneurysm and comments like this always make me feel better and gives me hope I will find the right meds and I'll stop having seizures some day. I had my most recent 2 nights ago, I was lucky I was with my parents and my dad recorded it to send to my specialist and it's crazy! I had no idea what they looked like, from my perspectice I just tense up a but then pass out

[@Sydopath]

Hi Please can you tell what meds you take, that have you seizure free for 20 years? I’ve been on a few different ones over 9 years, but only achieved 10 weeks max without a relapse. 🙏🏻

[@a4rron]

I just had my first seizure yesterday whilst on holiday for my birthday, according to my girlfriend I was out for a minute and a half. I’m still trying to comprehend it and the way I feel about the whole situation today, truly the most terrifying thing I’ve been through and I’m scared of it happening again. I don’t really recall much other than darkness so even though I’m exhausted going to sleep scares me.

[@mizzmayhem3685]

How are you doing, now? I just had my first one while on an international flight, but thankfully still close to Japan. I felt awful for inconveniencing my best friends, who insisted they stay with me, and an entire flight. Though I know my friends do not feel inconvenienced but rather they are truly just glad I am okay. I hope you’re well x

[@sunlake7678]

how was your toilet ( motion) couple of days before or that day , did you dehydrate , or you feel acidity , any of these symptoms

[@maggieanne7502]

The darkness will set you free. I experienced that darkness through both meditation and psychedelics, it’s something worth exploring. I used to be so scared until my last seizure when I truly recognized that I wasn’t the one having the seizure, I was the one experiencing my body having the seizure. After this seizure, my life turned around and many things clicked that hadn’t before.

[@Sydopath]

@@mizzmayhem3685 Despite taking keppra meds, I have been having occasional absence seizures for 8 years. The trigger is frequently - being in a strange or unfamiliar situation, or travelling abroad. Three times I have had one while on a plane, it’s as if my heightened state of expectation spirals into a meltdown. I haven’t stopped travelling though, I just expect the worst, then am pleasantly surprised if it doesn’t happen.

[@bianca_badu]

This video has helped me understand what my 2 year old goes through when he has a seizure. I would love to see a video on here on the parent perspective of raising a child with Epilepsy. I often feel alone in my journey to raise him and make sure he’s well while dealing with the overwhelming emotions I feel myself while seeing him deal with this

[@WhatzItFeelLike]

Thank you for your input. We will see what we can do!!

[@grace2193]

bianca roses don’t feel alone I have epilepsy and my parents have always been supportive you are not alone and neither is your son/daughter

[@saeidakbari4788]

I suggest you look up and try CBD oil (hemp oil). It might be "The Cure."

[@michelleoregan5820]

Hey Bianca, there is a Facebook group for support you could join, lots of parents on there, in fact it was created by a parent of a child with seizures. facebook.com/atkinsforseizures/groups/ hope that helps some.

[@josieunderdown3971]

@@saeidakbari4788 tried and tested, doesn’t work I’m afraid 😂

[@chrstphrgrnt8690]

The way he describes this in detail & how he explains everything so peacefully & enthusiastically is from someone who really suffers from it & I appreciate these kinds of videos.

[@freerobert6969]

I ended up on life support 6 times in last 2 years. Bad seizures I'm allergic to most meds I have violent reactions. It is not fun 😕. My uncle died in a bar from a seizure. I won't give up

[@Vibbe_rant]

I hope you’re doing well ❤

[@Ouchimoo]

I had a violent reaction to a medication and my doctor didn't believe me. Ran tests to prove I had PNES instead.

[@Kristofer3567]

Why dead?

[@ernestagyemang-botchway108]

please dont,praying with you.

[@quietwind4665]

This video and these comments are relatable. My now 40 year old daughter has had major seizures for about 10 or 11 years now. Sometimes 2 minutes long, sometimes 7 or 8. She had to surrender her driver license and has 2 weeks peace sometimes. Initially she was having like 5 a day. Now its mostly only one or two a day, usually 1 to 2 weeks apart. She does take several meds and they help somewhat. She does live with us for the past 8 or 9 years, pretty hard to be independent! Everyone here be blessed.

[@ColtfortyFivez]

You're not alone My parents were dealing with mine 20 years ago, up to ten a day, and then I had brain surgery, which reduced them six years later

[@christophersakwa1625]

One of my friends from back in the day just passed away from injuries sustained during a seizure attack. He was alone at home when it happened, usually he'd feel the seizure coming and take himself to the nearest clinic, but this time it must have hit him when he was asleep and therefore could not preempt it. Rest in Peace Edgar.

[@nothanks6931]

Did he hit his head or was it suffocation

[@christophersakwa1625]

@@nothanks6931 he hit his head

[@chilipepper71]

Frightening because I've been in the same situation and I also live alone. Sorry for your loss.

[@christophersakwa1625]

@@chilipepper71 thanks

[@CaR1235100]

What's scary is I only have seizures in my sleep and they are so dangerous. Just happy my girlfriend has been able to save my life so many times

[@kimakima8643]

Thankyou For helping me be BRAVE AND FEEL LESS CRAZY. I have 3kids and you just helped me teach them how to save mommies LIFE. 💜💜💜💜

[@westriverrockhound4405]

I had my very first seizure 3 days ago. Now that I learn more about them I realize that I had some warning signs; deja vu, and feelings of doom. I don't remember any part of the seizure. My daughter and then my wife found me unconscious with my eyes rolled back in my head. I was vomiting, convulsing, bleeding from my mouth after biting my tongue and cheek. What a horrifying experience for them to witness! Now what? Am I to expect this again?

[@kimakima8643]

The best explanation I’ve heard. I have dejavú ‘s all the time.

[@Joujou421]

The best description I've heard. I've been diagnosed with epilepsy since 2016. Had to figure it out. But now I know when the aura comes and get ready

[@DarthCoco]

Every person who has episodes/seizures are different, but there is definitely much I can practically relate to here. Thank you, for talking about this!

[@mutcoinsnow3483]

I have epilepsy been recently diagnosed in November 2023 at the age of 25. Whatever you have said is bang on. I have tonic clonic seizures. My ones start off as focal and can spread into the tonic clonic, so every time I get a feeling of a focal seizure, I don't know whether it will spread into a tonic clonic or not. When a focal seizure is about to come on, I get a feeling of it and know it's coming. I know you said that you don't think, 'what if I have a seizure here and what will these people think if I have one', but that is exactly what I think. I need to get rid of those thoughts but I just can't. Thank you for this video, helps me feel I'm not alone. I feel like my life is on pause. Can't do all the usual things I used to do. Currently can't enjoy life until seizures are controlled. Memory loss is a big thing that I'm suffering from. I've forgot a lot of events that has happened in my life, forgot how to do activities and forgot passwords. After my tonic clonic seizures, apparently I get extremely aggressive. I start to walk and keep falling to the floor. I start to cry and shout. But at this point I'm still unconscious and my body is acting on its own accord.

[@msdpow8027]

I had seizures as a child and luckily had surgery that cured it. I am just in shock by his description of the feeling before having a seizure as a “déjà vu.” That is SPOT ON! Wow!!! There is no way I could have described it as such when I was 8-9 years old, but that is exactly right!

[@llddau]

MsD Powell not for me at all.

[@msdpow8027]

LaraD He’s explaining from his own experience. All of the videos are people explaining from their own personal experience. Of course one person’s is not going to define/match everyone else’s.

[@stellarvgurl]

Whoah..... so i had a seizure a few times and didnt know rhere were multiple kinds. The past 6 weeks i had 2 and this was the first time i feel and bit my tougne and had body aches. The ones where i got deja vu in the past .. i remember pausing and having intense memories out of no where... i feel alil dizzy and then i sit and wait for it to pass.

[@razanalnajjar9112]

Im thankful for this video. I got recently diagnosed with epilepsy as well… Having a hard time to cope up with it but im so grateful that u shared your experience.. i really admire your courage to speak up for it

[@jackcherbourg2899]

I was on Tegretol throughout my childhood for brain seizures. We stopped it when I hit adolescence. Starting in my 20s, I would have episodes of temporary amnesia, which I never mentioned to anyone because I didn't think anybody would understand me. I had an incident last November, which I described to somebody, and she told me it sounded like a seizure, so I started talking to doctors. I was just diagnosed a couple weeks ago with complex partial seizures. I, like Patrick, feel alone and would love to meet other people with whom I could share experiences. I'm in New York, and the closest Epilepsy Foundation is in Maryland. It is lonely, and I would love to meet other people who understand me.

[@apinhmi]

Read Mark Chapter 9. Siezures are curable. Genuinely Give your life to Jesus Christ. I adopted a homeless epileptic with an autistism. EPILEPSY is a demonic attack. Doctors dont believe so because they will loose patients. Ask Jesus Christ to come into your heart to be your personal savior. Attend a non denominational bible study and learn about Jesus Christ.

[@yolandastrickling1815]

I had seizures from what I hear, my mother never had me in a Crib or a playpen to protect me from falls, always put me on the bed and then I fall off and hit my head. I end up having seizures and she kept me on femur barbital and Dilantin until I was almost 18 years old. I ended up removing myself off the medication at 17. But from so many seizures it effected My learning and I have never mastered an associates degree of bachelors degree or masters degree. I went to college for years and tried to until I eventually gave up.I can’t even pass Algebra because of not being able to master my education, this has mentally destroyed me.

[@leonardagaba3384]

It’s shocked to hear all it’s information, you even know when it’s coming, you even know what type you have.. 😢 I just lost a sister this year 17th May. I wish she got this opportunity to hear all this information. It’s wisdom

[@ashleynicoleec]

i have epilepsy with grand mal seizures so this is the best description of grand mal epilepsy. i could never explain how my seizures went and this guy put it in the best way. everyone is different when it comes to epilepsy

[@ridleycollins2370]

I have just been diagnosed with it, i have all the full blown tonic seizures and what not, and it's good to hear it explained this way. Thank you 🙏 i feel like it goves me slight psychosis when i have my episodes, its scary.

[@rebeccawalters5727]

You nailed it that’s how I felt before I had a seizure I had grand mal seizures for about 15 years and now I don’t have them anymore and just all I can say is hang in there and it sounds like you’re living a pretty good life

[@shwettypotato8107]

How old were you when you Started / stopped? Started when I was 25 and am now 35. Have maybe 1 a year at this point… thank God

[@theafuentebella1759]

How did you stop the seizures? From taking medication? My sister has been having seizures for 18 years and not seem to be getting any better.

[@marie23926]

Great description! Epilepsy sucks but this man is bery fortunate that he can function the way he does. Im hooing to get meds or something ao i can function like this as well ❤️ currently theyre ao frequent daily i can't work & go many places, but i never lose hope. I know ome day ill be able to 😊

[@ivorrogic108]

I love how he lives his life! I hope one day I will reach that level of confidence to live a full life without a fear of getting a seizure ❤ You are a real inspiration

[@Greencloud8]

I had a gran mal yesterday I fell And now my bf says he was worried I sustained spinal injury which I didn’t I realize I have to go to the er now because I’m walking like a Forrest Gump o braces

[@ivorrogic108]

@@Greencloud8 hope everything works out from now on 😉😘

[@thatch75]

this video gives me alot of hope right now thank you

[@llddau]

I’m glad he at least said that the “aura” is different for each person. But it is actually a seizure in itself, a simple focal, old name simple partial. And I’m surprised to hear grand mal, I didn’t know people even said that anymore nowadays, instead of tonic clonic. This whole thing should be prefaced with the fact that this is all very different for everyone. And what you described is very different to my seizures.

[@dhines7892]

Absolutely right. I felt relieved when he mentioned a smell. I have the scent of anesthesia or some might say licorice scent.

[@k.s.6427]

@@dhines7892 HI I SMELL LICORICE! sorry for yelling but im just looking for answers personally. i started having “spells” where i get dizzy and my body tenses up and i have deja vu about what feels like a dream. i smell something bad or usually black licorice (which is also bad). it feels like an out of body experience because even though i know generally whats happening on the outside, i feel like i cant tune back in. I’ve been debating seeing a GP after asking some other professionals that dont have answers for me. I dont mean to infodump about my life recently, but i feel really validated in just reading your comment. I feel more seen, so thank you for sharing

[@pickypaint]

Thank you for sharing? Helps me understand what my daughter goes through! Much appreciated

[@AlucardsSon]

I've had a similar form of epilepsy ever since I've been 16 years old. I'm 22 now and granted while I do get seizures every now and then...I've learned to live with it.

[@anthonymackenzie5821]

Do you have focal seizures to deal with instead of grand mal seizures?

[@frankieclayton9303]

You're right we continue to see stuff over and over again before it happens

[@Leslierowsofficial]

Wao… this video made me feel understood and listened. You seem to be a great and empathic person.

[@Ophidious2020]

That's an awesome way to describe an aura. An out of body experience. Because they are so hard to describe. And I have always said that my epilepsy is spiritual. It is part of my spiritual journey. So I love how you used that to describe that feeling because it actually really makes sense. And who knows maybe we are leaving out bodies. Lol I always want to know where my mind goes when I am having a seizure❤

[@loretamelkumyan8712]

wow. best explanation. I always have a hard time explaining it to others.

[@hannahgerhardt5885]

Thank you for making me not alone ❤

[@jessiicaclark]

i just wanna meet you. you are amazing because of this video. god bless you! i relate with you so much.

[@thelifeofalayahjazmine221]

Thank you for this video I’ve been with epilepsy for 5 years it’s so stressful I get Ora’s as well im so scared because I never know what’s going to happen. It’s difficult explaining to people around you what it feels like but this video helped me when telling others how I feel.

[@babyscarr3]

I just figured I got eplisey 😔 from a brain 🧠 tumor removal I'm still learning more on my sezuire 🙁

[@thelifeofalayahjazmine221]

@@babyscarr3 wow that is crazy . Definitely just avoid stressing yourself out and speak with your neurologist and see what medicine can help control any episodes. I wish you the bedt

[@justsomedangerbigfootwithweb]

I've had two seizures once when I was 20 and again at 21 My seizures tend to be audio based. when I hear a certain frequency or sound my ears start ringing and I slowly lose control of my body. My eyes fade to black and when I wake up I feel disoriented, tired and confused. I'm currently 22 and thankfully the medicine I take prevents them from happening.

[@emal248]

I can’t believe how he has explained this so perfectly.

[@Ann-lr1ex]

Thank-you for sharing your experiences. Recently, I had my first seizure. Your calm manner & describing seizures is very helpful. Mil gracias.

[@gfredbeats]

I didn't like the feeling at first, but now it's like meditating after I go through and starting to feel really good

[@thelouquefamily7405]

I had my first seizures today around 6:15 am a if it had been any later I would’ve been driving on my way to work.. so blessed and thankful good kept me

[@anamariafernandezpabon822]

thelouquefamily7405 Hope everything is ok! You should check your glucose/sugar levels. You can have seizures because low glucose levels. Ask you Dr for a 3 hours glucose and insulin check. 👍

[@freeshabazz8033]

I’m 33 as of this month this is exactly what I go through the tightness,smells,fear feeling, the tiredness, I broke my tooth before I knew it was a seizure. I have been diagnosed as of this year took me on a roller coaster it wasn’t until my second major episode did it all come to light for me. It’s still hard to explain but I’m learning this video really spoke to the side I feel is so hard to communicate what is happening

[@young.codeine921]

Your not alone brudda 💯💯

[@AlaskanEskimo907]

I've had first seizures back in 1997 and the way he describes it is 100% true. But I have a strong tingling feeling thru my left side of the face

[@aneshiaaugustine]

Idk who this guy is but…. I love you with all my heart🫶🏾

[@ssleander]

God bless your heart I have a daughter that is epileptic, and she has 2 babies it's horrible I wish there was a cure. Praying for you and my child!

[@Angasie]

Hi, Thanks for sharing this. What you described it's almost identical to my experiences. I've unfortunately broken bones. Severely bitten my tongue like you have,also on the right,every time. When I come to, totally exhausted, every muscle, fibre and joint is extremely painful. I feel like every tooth in my mouth is loose and about to fall out. So I feel your pain and sympathise. The mediation I take now certainly helps enormously. I, like you, don't allow this condition to dictate my life. Keep well and stay safe.

[@T_History]

I had my first seizure on a plane when I was 11. The sheer confusion I felt when in my eyes I was falling asleep one minute and waking up in a hospital the next was insane.

[@JR_3523]

As someone who has epilepsy, I can relate to this in more ways than one

[@blueduncan9522]

He explained it so well. Especially the de javu feeling

[@ErickMcNerney]

I would have sort of a daja vu feeling but also my mouth would start feeling numb and tingly. I think actually the dumb feeling came first, and so that feeling gave me sort of a daja vu feeling, and I knew what was coming. Apparently I had some kind of rare childhood seizures (was never diagnosed with epilepsy). But even though they spontaneously went away as I grew up (at about age 11), whenever I get any sort of tingling or numbness in my face or mouth I get this feeling of dread - like, oh, are my seizures coming back? What do I do if I really do have one now? (it's been 27 years since the last one). It's terrifying when I'm driving. I feel bad for those who have to deal with seizures their whole lives, because even from experiencing them for a few years in my life, they still haunt me.

[@monicakapushy5189]

My family and I are so sorry for your experiences, fears and trauma. I've lost so much and my family has been through this crazier and crazier experience since I had an accident in 2018. We absolutely understand your fear and the fact that you have struggled, your word's are as strong as the person you are 💜

[@EmmaJohnsonShenanigans]

yeah i don’t think i’ll ever be able to drive to begin with 😕

[@Joshmo1234]

The first time I had a seizure I thought it was from the heat. The next time I had one was in my sleep. I remember coming to and looking around and seeing a look of horror on my girlfriends face and all my friends in my room. My first thought was like, it's 3 AM get out of my room. Then everyone told me I had a seizure and that I need to go to the hospital. After the 5th time I would know what happened with in about 2-3 minutes of waking up. If it's a particularly violent one, if I hit my head on a floor or something for example, I noticed my cognitive functions were a little slower. Reaction times slower, comprehending situations was slower. My memory isn't that great either. By far the scariest was having one while I was asleep purely from the surprise aspect of it even though having a seizure in bed is one of the safest places to have a seizure.

[@JudeTavonFenwick]

I was just diagnosed in late 2003 at 40 years old.. I’m actually in seizure now (left side of my body is numb)… the seizures are causing memory issues and I just lost my baby sister recently and due to the seizures I keep forgetting and it’s making it even worse… I am sooooooo scared! All but one of my friends abandoned me BUT what’s a positive thing is my family and I are even more close and for the 1* time I’ve met someone special 🥰 Thanks for your video!

[@sophiepalmer-doran344]

I also have epilepsy also known as a seizure disorder here is my story When I was a baby I had a febrile seizure I stopped breathing and turned blue my mom gave me mouth to mouth and by the time the EMTS arrived I stopped seizing. As i grew from baby to toddler my parents began to see that i was delayed. So i started early intervention at 3 years old I had occupational therapy and PT . In pre k I would get angry and punch any thing that was in front of me after my parents had been observing me in a pre k class and talking to the pre k teachers it was suggested that my parents should take me to a therapist to rule out any behavior issues. he took one look at me and said that I was having seizures he then referred me to a neurologist. At the at the age of 5, I was diagnosed with childhood absence epilepsy but I have been seizure free since the age of thirteen. And so was taken of meds which caused massive weight gain a hand tremor and memory loss. The point is meds are good up until a point and then it becomes a pill, no pun intended. My triggers are flashing lights, the transition from the out doors to inside a classroom getting too hot and recently sleep deprivation. When i had an absent my pupils will go from normal to pin point that is the only physical sign the eye can lasts My seizures last one second and happened every minute to every minute and a half. So there are 60 seconds in a minute and 24 hours in a day then I was having seizures every 1440 minutes or 86400 seconds so in total I would have 86400 seizures per day with meds. my parents were told to treat me as a normal child and to see how fare I would develop and look at me now I have graduated high school with honors . I am in collage as you can infer I was not expected to do much of what I just mentioned The effects of my seizures is that I have Aspie like tendencies due to my epilepsy which I know is difficult to understand to put it in simple terms as a result of my seizures my brain compensated and rewired itself i also have severe in Processing disorder Perceptual Reasoning, and Working Memory, Coordination,Dexterity, Fine and gross Motor Skills, Hand Strength, Visual Perceptual Skills. When was 19, my father died, and it seems I have had a relapse if that is possible.I still have my absence seizure but it is not enough to put me on meds. When I was thirteen I had my last EEG and my seizures showed up as misfired neurons not seizure activity per say and the Dr. called them “flurries", so here is what my flurries are typically like: I will become very spacey, I can not interact with my surroundings, I also felt locked in to place. I am completely aware, my vision becomes like a tunnel, and thing start to move or vibrate on their own.

[@saeidakbari4788]

I write this for every person: consider using CBD oil. (at least read about it a little bit)

[@tullymogashoa6259]

This video is beautiful. Made with love and consideration. Thank you.❤

[@Carbynnn]

I found this on accident and I don’t like to talk about my epilepsy but I’m glad someone can talk about it, grandmal seizures have affected me it’s made me depressed and it’s making me have memory loss bc of how many times I’ve hit my head and I used to be active not anymore I don’t feel like the same kid I used to be I feel like my old self died and isn’t gonna come back, If you have seizures and are depressed don’t be me talk to someone please

[@AMB_REELZ]

I dont know you, but im sorry ! I wish you wellness and true happiness.

[@ostrichcum9369]

ayye bro i got the same seizure too. Avoid sleep deprivation and think positive all the time, no matter how bad rhe situation gets. having a mild seizure? calm yourself down and be like okay yeah i got seizure. Gonna be fine in a minute. acceptance is a HUGE thing in controlling or reducing the frequency of epilepsy. work out

[@josephschwartz1625]

I’m 22 and I just got diagnosed with Epilepsy a week n half ago. I don’t remember 3 days out of the week. Woke up at the hospital asking my family why do they all look so worried not noticing I’m the one in the hospital bed. I don’t know what to expect. I’m still sore still got a headache. Everything feels so off almost like I’m in a dream

[@Kwame92.]

The same just happened to me waking up in a hospital bed all bruised up and confused can't remember anything from that Wednesday it happened or Thursday

[@josephschwartz1625]

@@Kwame92. It’s been 7 months for me still don’t remember anything from it. It’s rough. Haven’t had any seizures since then but on a bunch of medication.

[@linguisticsdrums9215]

I'm epileptic myself and available to reach out to this gentleman

[@amandareicha5065]

There are over 40 different types of seizures. We all experience them differently. I have 6 different types of epileptic seizures and non epileptic seizures. From my personal experience, the ones I hate the most are recovering from complex partial seizures. The recovery time is 2-6 hours and I lose total loss of communication during the full length of recovery. Even the phrase that repeats in my mind is garbled. I can’t understand anything I read, anything said to me, anything I try to say or write is garbled, it makes so sense. I’m fully aware during recovery and able to do things. It’s just frustrating that I have my own foreign language while I wait for my brain to recover. I find these worse than a secondary grand mal (when one type of seizure spreads and turns into a grand mal). Waking up tired and sore is easier in my opinion. C’est la vie

[@kgrimes842]

I was diagnoised over 14 years ago and those auras are dead on but i also cry and get dizzy and can't walk. Lately I've been having several auras monthly and some result in a seizure others dont but my neuro told me they're actually seizures. That's scary to find out I'm having more seizures than i thought. I also have gran-mal and my after seizure effects are way worse than what he described. Eveeyone is different though. I would like to speak to him. He seems down to earth and is always nice to talk to people who know and feel what it's like to deal with seizures

[@Soham.69]

Me's smiling but deep inside he is so sad 😢

[@workslob]

My first and last seizure o was out for 20mins I couldn't walk for a week and lost my memory it's taken me a long time to get back to normal. It's been horrendous. I describe it as a computer rebooting, you do get back to normal We're all different just take your time.

[@salvadoralt.5155]

Im 19 and have had 4 tonic clonic seizures in under two months (3 in my first day!) I'm trying to learn more about it. Ive gotten some new issues since this diagnosis (mostly memory issues post seizure) so thank you sm for the video ! :-3 I also have tourettes since I was 9 or 10 i have a big heavy feeling its related

[@HEEM_SLEEPY]

It's a really bizarre feeling waking up after a seizure, the first couple of times it took me hours to convince myself that I wasn't dreaming and accept that I was in fact lying in a hospital bed.

[@agermanautoparts5112]

Thank you . for sharing it really helps

[@moonlight.sunlight]

Thanks for sharing. ❤

[@GurlalSingh-rk8db]

He explaine preety accurate how is feel like during seazuires and after seazuires.

[@milyjordan8312]

I have bad epelepsy and he desceibed it very well in this video,strong man😊

[@elialsup6433]

i have had epilepsy since i was 3 years old. Its not always the pain of dealing with the seizure that is difficult, but the emotional toll and experiences that it it takes on you and the people around you. Adapting your life is not always easy but it can and will benefit more then just you when you put in the time and effort. Seizures are traumatic and painful and i have found the best way to avoid them or prevent them is by doing the best we can try stay stress free and also stay healthy on a daily basis. We have solutions and we all have the ability to do what’s best for us :)

[@fbtdcfbygb1385]

I was diagnosed after a pretty traumatic part of my life and my bad decisions that I took that led me to my epilepsy but it still is undiagnosed in where the issue is but man I feel the pain in your voice it’s almost impossible for me to open up because it’s so embarrassing having seizures and the shame it leaves you in afterwards

[@warrenbalderama7]

Thank you for sharing. Needed to hear if for my daughter 🙏

[@T-WRX_83]

I'll be 40 in November and I've had epilepsy for about 7 years. I had a TBI on August 9th 2007. I was expected to die and if not, not fully functional. After the surgery and my consciousness came back enough, the neurologist put me on Dilantin for precautionary measures because it's not necessarily common, but happens enough to notice with people that had a TBI. Especially a bad one. It made me feel like crap so i asked to be taken off of it and i was fine for about 9 years. Suddenly one evening after i got home from work, i was watching TV and next thing i know, I'm in an ambulance. No aura or anything. So i was diagnosed with epilepsy, my TBI making the most sense to be the cause of. For the next 5 years i had 15 total including the initial one. I've finally found a good neurologist and the proper medication and dosage(300 mg of lamotrigine twice a day) I've never had an aura leading up to one and i only remember right before it happened two times. I always turned to my right when i had them (i don't know if that's coincidence because my brain injury was initially on the right side) Because of that, if I'm looking for something and i turn to my right more than once i get super anxious with my first thought being about me having one. I've had deja vu situations also that do the same thing. I have grand mals as well and they usually last for about three minutes. My entire body stiffens for a little bit and then goes to the violent muscle jerks. I'm sore for about a week, give or take, after the seizure. Thank God I'll be serious free for two years in a month 🙏🏻

[@christianwatson2032]

How do you drive??? I have wrecked 2 cars...I never know when it's going to happen..but he just described the way it feels like.the dijvu started years before I had my first seizure

[@spellane6604]

Great video, only recently became full epilepsy, grand mal, I ready have a 3 inch scar on my forehead , but great to see it can be managed and not feared. Keep your belief and strength all impacted by this annoying disorder.

[@snakyYT]

My aura is what I call a feeling. It's kinda like a tingling and pins of needles. This dude has described what it's like mine. I shaki bite my tongue eyes role back. I hear a buzzing in my head during one and I think mom dad help uhhh. After the seizure I can't walk well I have trouble talking and a massive headache. This video is really helpful foe me as even though I had them for 4 years they still scare me. Thanks for this video it really helps

[@broart82]

I had 2 seizures in my lifetime. Diagnosed epileptic here. I live a normal life with meds ❤ you can too. ❤

[@theknightmare4673]

I'm 23 I was diagnosed with epilepsy 2 years ago , this just told my experience exactly on point. Had my last eps 3 weeks ago and broke my jaw , I honestly thought no one will have the experiences that I went through but I was wrong .

[@dysknect4571]

Everytime i watch this it helps me keep going. ❤ Who should I contact?

[@yagrandmomzbeats497]

I was looking for a video to understand the soreness. Thanks

[@valleyboyyrico8721]

I was diagnosed with epilepsy at the age of 14 completely changed my life now I’m 20 & I can say this is the best description of living with epilepsy it’s truly a scary feeling .

[@anthonymackenzie5821]

Do you only have Tonic seizures? or sometimes dose a partial seizure occur instead?

[@slopez1688]

My son is autistic no verbal and started having seizures at 21 Now i understands More . God bless us all.

[@NorthernCalifornia530]

God bless you Buddy 🙏 i had an horrible anxiety attack last night off an on like i was going to have a gran Mal. You explained it perfectly it a horrible feeling sweating palms an pouring heart thin twitching in the face then a calm calmness an then i feel my eyes roll back an I stiff an make loud noises an jaw clinching. Im praying i dont have one tonight they happen at night.

[@theafuentebella1759]

We dont know how to help my sister with seizures. She's had it since 9yrs old and she's 27 now and we cant leave her on her own. She watches TV for more than 2 hrs and she'll have seizures, she'll bake cookies, work out, read a book, learn to do math again and she'll have seizures all the time. She stood for too long during a funeral and she had seizures. Every minor activity and she'll convulse while standing up, look to her left and start peeing on her pants. She's depressed and gets extremely violent afterwards. We tried almost everything checked her up to multiple specialists and tried different programs. We dont know how to help her anymore. What's worse is that shes addicted to playing online games and gets violent if we try to stop her. She knows it's bad for her but she doesnt seem to care anymore because she cant do anything else

[@-m7k0z7-9]

First seizure: had a bad migraine for 2 days, then a tonic seizure that lasted for minutes (but felt like for ever), with a pulsation feeling in my head that was painful. Second seizure: had a sense of dread and utter fear and sadness for 2 hours, then felt like something squeezed my consciousness, and I started getting weaker and weaker where It was hard to hold my head on my shoulders. Then it stopped and I felt drained and my limbs were slightly floppy.

[@cheyennenewbery5840]

Had another Grand Mal yesterday, first one ever in the bath and lucky I wasn't alone in the room. My tongue is raw with so many bites, feeling all these little bits barely holding on the sides, both red/dark raw cuts brushing against my teeth and cheeks, it's a nightmare every time.