Dystonic Storm | DYSTONIA FACTS | Dr. Jean-Pierre Lin

[@DeeDee-pt1xr]

Very informative...mainly aimed at young children

[@Ladylili001]

Thank you for sharing. I'm wondering if my baby might be experiencing repeated dystonic storms. She has symptoms which our professionals have never seen before. They are calling her episodes "paroxysmal events". She experiences hypertonic states for a total of 6-8 hours each day. They are not seizures. I'm curious to know your thoughts?

[@Ladylili001]

kzbin.info/www/bejne/aHy7f4CXjK-kn68 Here is a video of her episodes. They were originally thought to be hyperekplexia. I found that the episodes happened regardless of stimulus.

[@FullTimePatient37]

I am so sorry...how is she now?

[@barnettajohnsonthepancakem3792]

hardly ever included with fibromyalgia and never treated for the pain with actual pain medication. Treated with literally anything else is a wide open doorway to patient abuse by undermedicating the patient. its cruel behavior by NPs and PAs to ignor patients pain.