Early onset CAA #3: Swimming through red tape + thoughts on optimism

[@jackiedozier128]

Watching and sending up prayers🙏🏾🙏🏾

[@k8con]

Hey Melissa, I am here and I am watching

[@Db8it]

I love you, too, little sister. Seeing you was such a true bright spot for me! ❤️

[@lizhughes6729]

Another awesome video. You are a wise woman. ❤️

[@annacuyler3772]

Still listening, Melissa. I value all that you choose to share with us 🌹

[@DocAtCdi]

Im watching, and I Love you!

[@ellencomisar8444]

I have always admired and appreciated your honesty, never more so than now. Keep telling us what's real for you and we (or at least I) will do everything possible to give you what you need when you need it. Love ya, GF

[@susankelland638]

I was diagnosed with it yesterday after several little strokes. Was given blood pressure pills and told in time I may need seizure pills. Also told not to drive for a month. I'm quite shell shocked at the moment. I just wanted to say thank you because now I don't feel alone. Bless you.

[@Db8it]

I am so, so sorry. Not sure if you saw my first video that explains a little more about how this came about for me. The first couple of weeks after diagnosis I was reeling, so I know what you're going through. I'm more than happy to keep in touch if you'd like to. I'm also on Twitter: @CAAHeadCase

[@susankelland638]

@@Db8it Thank you Melissa. I suppose for me it's not dying that scarce me but that I may end up paralysed from all the mini strokes I keep having. In other words, it's the living I have a problem with not the dying. I don't want to be a burden to anyone either. I thought you were very brave about talking about it to everyone too. Thank you for doing this for us all Melissa. It has helped a lot and I shall look at the others that you have done. XOXO

[@Db8it]

@@susankelland638 I totally relate to what you're saying. I'm glad the videos have been helpful to you. Big hugs!

[@Db8it]

Susan, I just stumbled on our exchange here from before. How are you doing now, 2 months later?

[@susankelland638]

@@Db8it I'm not so bad and how are you now? Just keep taking the pills hey! I don't seem to have got any worse so that's good and I've very much come to terms with it. I do have a lot of trouble sleeping but maybe that's nothing to do with it. Much ❤

[@marijkehallberg3834]

I have the same diagnosis, so want to thank you for sharing your experiences in this format... of a weird disease that is supposed to occur in much older, less healthy people. Thank you(!!@

[@Db8it]

Thank you for connecting. I'm so sorry it took me a long time to reply. Things got very confusing for a while and I didn't know where to begin, so kind of checked out for a bit. (New update will be live soon.)

[@brianjohaniuk-milliman3167]

❤️

[@RWSCOTT]

I stumbled across this video in my feed & liked your face so I listened. You are a very courageous person, even just putting yourself out there like this and I liked that you said you need to be sad. I think that's too often considered forbidden, don't be like that, etc. but I think that's cultural denialism, we're not robots, and it's healthy to process sadness- otherwise it's just another kind of illness. Anyway, thank you for being here and helping me not think so much about me today. If I may, I'd like to share something I made a while back that I think you'll appreciate. Regards, R. (the beginning is about stress, if it bothers you, skip to two minutes in) kzbin.info/www/bejne/apq2k2CJjcqMgpI

[@Db8it]

Hey, there, RW. Thank you for everything you said here. I appreciate the opportunity for discussion so much! I'll check out your link. ✌🏼