Ehlers-Danlos 101: Symptoms, Diagnosis, and Management

[@dizzieblonde2010]

My daughter has been experiencing symptoms for years: growing pains, seizures, POTS, headaches and joint pain and subluxations. After she had COVID in late 2020, we think she has long COVID. It's so hard because she doesn't have insurance and has to pay out of pocket for everything. Thank you for sharing your journey and starting this channel!

[@meaigs]

I would really appreciate more information about your strength training routine, and any tips about exercise.

[@ThatFluteGuyDavidK]

Excellent content and extremely helpful. Thanks for sharing your story.

[@unseenandbelieved]

Thank you!

[@drewmercantini4881]

This is very clear and informative. Thank you so much!

[@unseenandbelieved]

Glad it was helpful!

[@unseenandbelieved]

Let me know your experience with EDS below!🌻

[@lindajakub624]

I had growing pains. Nit sister out brother.

[@Rat-nd3di]

Hii!! I'm 21 y/o, and just now I've discovered what has been happening to me for all these years (pain, paint and more pain, hyperflexibility and fatigue)... Even though I'm still looking for a doctor who knows about this stuff, I've done my research and I'm pretty sure I've got hEDS... The thing is I'm still processing all this new information and it can be overwhelming... How do you know if it's best to use a cane, a wheelchair or another mobility aid? Is it something your doc tells you or how does that work?

[@Truerealism747]

Do you have fybromyalgia with your heds neurologist says i have migraine in body

[@wadehamlin]

Were you on crutches?

[@Truerealism747]

Yeah and the autism means we have a different brain stemnfor pain