Ep. 1 - EARLY SIGNS & MISDIAGNOSIS of Lewy Body Dementia

Lewy body dementia (LBD) distinguishes itself from other dementias in many ways. Hear about the EARLY SIGNS and why MISDIAGNOSIS is unfortunately all too common. People living with LBD, caregivers, and expert physicians share their personal experiences.
This is Episode 1 of a special 10-episode series filmed by the Lewy Body Dementia Resource Center to help families, health care professionals, and the general public understand LBD and to bring much needed AWARENESS of this misunderstood disease which is not rare.

[@FaithAloneUK]

This is really helpful. Thank you. So hard to get diagnosed or even any interest to help us. Just seem to be written off. I realise it can’t be cured but as a care giver to my adult son, it would help enormously to know what’s going on.

[@yfa6244]

So many neurologists and health care providers were clueless with my mom. Even when mom checked ALL the boxes for Lewy Bodies the neurologist said it was Mad Cow disease! Ugh! She passed a few days before she finally could have gone to one of the best neuruologsists that specialized in LBD. The ignorance just left us daughters feeling alone. We know what she had. It should be mandatory for physical therapists also to be educated so they don't just drop the client on a "bad" day. Mom surprised her physical therapists more than once as I begged them to come back in a day or two. It is so very unpredictable, the one things that Alzheimers generally is not!

[@StanKeeler]

MB JB s

[@susanmcmichael5607]

I’m going through all of this right now. Within the last 8 months I have been tested with multiple MRI, MRA, PET scan, EEG, and the 4 hour neurological test. First I was told I had mild Alzheimer Dementia . Now the Neuropsychologist said he thinks it’s Lewy Body Dementia. To me, dementia is dementia…

[@barbmccormick4760]

Thank you for this valuable information.

[@lewybodyresourcecenter]

Ann's beautiful mother Betsy passed away peacefully on January 1, 2023.

[@DNAleguillou]

Do all experience tremors?

[@teriann1952]

I am wondering, for most of these folks...how long can they live a life without serious problems and life expectancy.

[@julesonthebeach777]

I think it’s likely dependent on multiple factors such as other health issues coinciding with LBD. My mom died with LBD in 2017. She’d had open heart surgery nine years earlier. Falling and breaking her hip precipitated her rapid deterioration. She died a few months later.