Ethical Principles & Informed Consent in Research

Informed consent is an essential component of research, but have you ever wondered why? Join us for our October ALS Learning Series where Emma Schmidt, Clinical Research Project Manager at the Les Turner ALS Center at Northwestern Medicine will discuss the history behind informed consent, explain the process of informed consent, your rights as a research participant and provide you with helpful tips and questions to ask if you’re interested in joining research.
Timestamps:
0:00- 4:46 Introduction
4:46-5:42 Overview
5:43- 8:06 What is research and why do we do it
8:07- 9:52 Who is involved in research
9:53- 10:29 Nuremberg Code
10:30 -11:17 Declaration of Helsinki
11:18 - 11:53 National Research Act
11:54 -12:39 Henrietta Lacks
12:40 13:21 Summary
13:32- 19:29 What is informed consent
19:30-30:33 What is discussed during the informed consent process
30:34- 32:24 Signing the informed consent form
32:25- 37:25 Tips from a researcher's perspective
37:26 - 38:32 Summary
38:33- 50:49 - Q& A